The Life Raft Group is committed to enhancing the survival and quality of life for people living with Gastrointestinal Stromal Tumor (GIST), and other rare diseases, through patient-powered research, education and empowerment, and global advocacy efforts.
PATIENT
Leverage patient perspective to drive innovative solutions in cancer research.
POWERED
Educate and empower patients to take a larger role in their care.
SCIENCE
Accelerate research outcomes through collaborative efforts.
FOR LIFE
Increase access to effective treatments worldwide.
Real World Evidence In Action
Traditional models for cancer research have resulted in many breakthrough treatments for patients, but it is not enough. The LRG’s approach to GIST research through real world evidence, relies on timely, accurate data from the patient’s perspective, with patient survival as the primary objective.
RECENT LRG DATA
Did you know that GIST is actually a family of cancers? Learn more about the science of GIST.
Dr. Monica Anderson
Diagnosed in 2012 with Adult GIST.
Marc Wasserman
Diagnosed in 2006 with Adult GIST.
Bella Rocco
Diagnosed in 2009 with Pediatric
(SDH-deficient) GIST.
HELP US SAVE LIVES
The Life Raft Group is a community and it is up to all of us to make a difference. There are many ways to help. We always need patient tissue and data in our GIST patient registry. Volunteering your time or making a monetary donation also helps us drive research forward and save lives.
Top Ten Reasons to Attend Life Fest 2024
REGISTER The global GIST community converges, creating a supportive environment where individuals can connect with others who understand the [...]
Patient of the Month – April 2024: Rachel Wilborn
Each member has a unique story, but all reflect the intrinsic courage of one facing the challenge of GIST. Rachel Wilborn shares her story.
Clinical Trial for Ripretinib
Studies have shown that if you have GIST with mutations in KIT exons 11 and 17/18, ripretinib may be a better option for second-line treatment than the standard sunitinib.
The Impact of Clinical Trials on Treatment Options
Clinical trials are an essential part of medical research, aimed at introducing new procedures and treatments to the public.
Patient of the Month – February 2024: Helbert Salas
Each member has a unique story, but all reflect the intrinsic courage of one facing the challenge of GIST. Simon Yeung shares his story. #thrivingtogether
What are Clinical Trials & How Do You Find Them?
Clinical trials are scientific research studies done in humans that help us to understand whether a new treatment is safe and effective in treating an illness, such as cancer.
Patient of the Month – January 2024: Beatrice Bradford
Each member has a unique story, but all reflect the intrinsic courage of one facing the challenge of GIST. Beatrice Bradford shares her story. #thrivingtogether
New Clinical Trials Focus for the LRG in 2024
Starting in January, every Wednesday will be dedicated learning about clinical trial process and to highlighting the groundbreaking clinical trials focused on gastrointestinal stromal tumors (GIST).
GLOBAL PARTNERS
