Have you just been diagnosed with GIST?
You probably have a lot of questions—and you’re not alone. The Life Raft Group (LRG), a non-profit organization dedicated to rare disease support, is here to help you find the information and support you need to navigate your diagnosis with confidence.
GIST is rare, which means finding the right care and resources can feel overwhelming. But don’t worry—we’ve been helping patients like you for over 20 years. We know that educated patients have better outcomes, and we’re here to make sure you have the tools to advocate for yourself.
To get started, check out our GIST 101 guide and the video below, where MaKayla, a GIST survivor, walks you through three essential steps to take after diagnosis. You’ll learn why finding a GIST specialist, getting mutational testing, and connecting with a mentor can make all the difference in your treatment journey.
You’re not alone. The LRG community is here for you every step of the way.
Fill out a membership app (below) or contact the LRG at 973-837-9092 or liferaft@liferaftgroup.org
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