Research

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17th NIH Pediatric and Wildtype GIST Clinic Held

The 17th Pediatric and Wildtype GIST Clinic was held at the National Institutes of Health in Bethesda, Maryland on September 25-27, 2019. The Clinic was a collaboration amongst researchers, specialists, patient advocates, patients, and family members, with the goal of furthering the knowledge of SDH-deficient Gastrointestinal Stromal (GIST) tumors in order to develop more effective therapies.

By |2019-10-07T15:49:22-04:00October 7th, 2019|News, Research, SDH-Deficient GIST|

Deciphera Releases Positive Trial Results for Ripretinib

Deciphera Pharmaceuticals has released positive results from their INVICTUS Phase 3 Clinical Study of Ripretinib in patients with GIST. They have also updated results from the Phase 1 Study. Deciphera shared that "patients treated [...]

By |2019-08-14T09:38:14-04:00August 14th, 2019|Drug Treatment, News, Research|

The Life Raft Group Patient Registry in Review 2018

Click on image to see Patient Registry in Review 2018 The Life Raft Group has played an instrumental role in bridging the gap between patients with valuable clinical Gastrointestinal Stromal Tumor (GIST) [...]

By |2019-03-25T10:37:22-04:00March 22nd, 2019|News, Patient Registry, Research|

The Life Raft Group Research Model – LRG Science

PDF is available of LRG Science to print here. Real World Evidence in Action Although targeted medicine has brought about immense progress in cancer treatment, there are still enormous challenges [...]

By |2019-05-05T14:20:27-04:00February 21st, 2019|LRG Science, News, Newsletter, Research|

New in SDH-Deficient Research – The Paraganglioma* Preclinical Project

The Pediatric SDH-Deficient GIST Consortium, which was launched at the Biden Cancer Summit, consists of an impressive team of researchers, clinicians, academics, and patient advocacy groups. A member of our consortium, Dr. Joshua D. [...]

By |2018-12-17T14:34:57-04:00December 17th, 2018|News, Newsletter, Research|

The Life Raft Group Announces an Innovative Consortium to Accelerate Cancer Research at the Biden Cancer Summit

WAYNE, N.J. and WASHINGTON, D.C. (September 21, 2018) - The Life Raft Group announces at the Biden Cancer Summit a new initiative to strengthen and advance research for effective treatments of a rare subset of [...]

By |2019-04-19T12:41:47-04:00September 21st, 2018|News, Pediatric GIST, Research, SDH-Deficient GIST|

A New Lifeline – The Pediatric & SDH-Deficient GIST Consortium

The Life Raft Group is excited to cast a new lifeline to increase the quality of life and survival rates of Pediatric and SDH-Deficient GIST patients worldwide through the establishment of a collaborative research consortium. The Pediatric & SDH-Deficient GIST Consortium, unveiled today at the Biden Cancer Summit, supports patients and caregivers at a critical time to share data, tissue, and resources to address the urgency of cancer treatment.

By |2019-09-23T14:37:20-04:00September 21st, 2018|News, Pediatric GIST, Research|