A GIST Diagnosis Can Be Stressful and Confusing
The LRG’s GIST Peer Support Program exists to reassure GIST patients and their caregivers they are not alone in their GIST journey. This program is available to patients, caregivers, family members or a close friend of a GIST patient for support during this difficult period. An LRG GIST Peer will be assigned to you when we receive your request. An LRG GIST Peer helps patients and their caregivers through their GIST journey – from receiving a diagnosis to navigating different resources of information, support, treatment options, and side effects, etc. An LRG GIST Peer is a GIST survivor or caregiver who can offer you understanding and empathy.
The service is free and not intended to replace medical advice or recommendations. Any information shared between a GIST Peer and patient concerning treatments, medications or therapies should be discussed with a physician. We’re available to answer any of your questions.
I’d like to request an LRG GIST Peer.
What’s the next step?
Do You Have Personal Experience with GIST as a Patient or Caregiver?
You can become an LRG GIST Peer and provide support, empathy, and understanding to people with GIST or their caregivers, family members or a close friend. The LRG exists to reassure GIST patients and their caregivers that they are not alone on their GIST journey. Our goal of supporting the community does not stop if patients lose their battle with this disease. The LRG is also seeking volunteers who have lost a loved one to GIST and are willing to offer support to others.
Here’s How It Works
If you would like to be an LRG GIST Peer, please provide us your contact information by clicking the Become a GIST Peer button below. We will respond to your request by emailing you a profile questionnaire regarding your experience and interests. We will strive to connect patients with an GIST Peer who shares similar experiences. All information is kept confidential. Once you return the questionnaire, we will email you to arrange for a personal telephone call or video conference with our Senior Director of Outreach & Engagement and our volunteer National LRG GIST Peer Manager to welcome you and discuss the role and responsibilities as a volunteer GIST Peer. Click the button below to fill out a Volunteer Application.