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The Life Raft Group is committed to enhancing the survival and quality of life for people living with Gastrointestinal Stromal Tumor (GIST), and other rare diseases, through patient-powered research, education and empowerment, and global advocacy efforts.

Real World Evidence In Action

Traditional models for cancer research have resulted in many breakthrough treatments for patients, but it is not enough. The LRG’s approach to GIST research through real world evidence, relies on timely, accurate data from the patient’s perspective, with patient survival as the primary objective.

RECENT LRG DATA

0
Patients in LRG Registry
0%
of Patient Registry members know their mutation
0
Total # of Tissue
0%
of LRG members know their Risk of Recurrence

Update your GIST Patient Registry Information.

Join The Life Raft Group.

Available GIST clinical trials.

Search our database of GIST Specialists.

Dr. Monica Anderson

Dr. Monica Anderson

Diagnosed in 2012 with Adult GIST.

Marc Wasserman

Marc Wasserman

Diagnosed in 2006 with Adult GIST.

Bella Rocco

Bella Rocco

Diagnosed in 2009 with Pediatric
(SDH-deficient) GIST.

HELP US SAVE LIVES

The Life Raft Group is a community and it is up to all of us to make a difference. There are many ways to help. We always need patient tissue and data in our GIST patient registry. Volunteering your time or making a monetary donation also helps us drive research forward and save lives.

  • it's time to tell the stories feature image

Annual Report 2022

By |December 4th, 2023|

In 2022, our theme, “It’s Time to Tell the Stories,” marked a significant milestone as we celebrated 20 years of non-profit service. See our 2022 Annual Report.

GIST Updates from CTOS

By |November 23rd, 2023|

During this virtual presentation, Dr. Loong discussed scientific updates relevant to GIST patients that were exhibited at the Connective Tissue Oncology Society (CTOS) conference. A Q&A segment followed Dr. Loong’s presentation.

  • Cooking to Fight Cancer post 8-15-23

Cooking to Fight Cancer 2023 Photo Gallery

By |November 2nd, 2023|

The Cooking to Fight Cancer fundraiser, created by Board Member and GIST Mentor John Abrams was held at Uncorked Kitchen in Aurora, Colorado on Saturday, October 28th.

Keep up with the latest news, events, and opportunities to help.

To contact The Life Raft Group, please call 973-837-9092

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