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X-WR-CALDESC:Events for The Life Raft Group
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DTSTART;TZID=America/New_York:20190503T130000
DTEND;TZID=America/New_York:20190503T140000
DTSTAMP:20260408T224420
CREATED:20190418T143423Z
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UID:10000019-1556888400-1556892000@liferaftgroup.org
SUMMARY:LRG Webcast: Genetic Testing and SDHx Mutations
DESCRIPTION:Genetic Testing and SDHx Mutations:\nWhat do they have to do with PGL/GIST/Pheos?\nLISTEN TO WEBCAST\n\nThis webcast will highlight how SDHx mutations impact risks for paraganglioma\, pheochromocytomas\, and GIST. We’ll discuss why genetic testing is helpful for any diagnosis of GIST\, paraganglioma or pheochromocytoma\, and what the SDHx genes have to do with tumor risk. We’ll discuss what types of tumors are associated with mutations in the SDHx genes\, and how different SDHx genes (SDHA\, SDHB\, SDHC\, SDHD\, SDHAF2) have different tumor and location risks. This webcast will highlight recommendations for screening and current research initiatives for SDHx and paragangliomas.\n\nAbout the Presenter:\nSamantha Greenberg is a board-certified genetic counselor who oversees the SDHx clinic and specializes in paraganglioma research at Huntsman Cancer Institute. She graduated with a Master’s Degree in Human Genetics and a Master’s of Public Health from the University of Michigan\, and a Bachelor’s Degree in neuroscience from the same university. Prior to her graduate training\, she taught 7th grade science in Tulsa\, Oklahoma\, through Teach for America. At Huntsman\, Samantha also continues public health genomics work with the Department of Health focused on rural clinician education and programming. She has worked to expand cancer genetics’ role in genitourinary cancers\, and oversees the VHL Clinical Care Center.\n\nTechnical Tips to Join Meeting:\n\nThis is a web only meeting\, accessed only by your internet connection. Participants are encouraged to use the web link automatically provided after registration and to use computer speakers (and/or headsets if available) to hear the audio portion of the meeting. Please log in at least ten minutes prior to the start of the webinar.\nPlease ensure you have an updated version of Adobe Flash Player (Google Chrome has Flash built in).\nIf you are using a mobile device or tablet\, in order to view and hear the conference\, download the ReadyTalk App from your App store.\n\nDisclaimer:\nWe cannot provide individual medical advice during this webcast. Information provided in this webcast is not intended as a substitute for your physician’s guidance and care.
URL:https://liferaftgroup.org/event/lrg-webcast-genetic-testing-and-sdhx-mutations/
CATEGORIES:Education,Events,Webcast
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2019/04/greenberg-event.jpg
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20190508T130000
DTEND;TZID=America/New_York:20190508T130000
DTSTAMP:20260408T224420
CREATED:20190423T160916Z
LAST-MODIFIED:20190423T161403Z
UID:10000004-1557320400-1557320400@liferaftgroup.org
SUMMARY:Ask the Experts LIVE
DESCRIPTION:Want to know more about GIST?\nDo you have some burning questions to ask GIST experts?\n\nMembers of the LRG GIST Global Expert Surveillance Team\nwill be at the LRG offices on May 8th at 1:00 pm ET for an\nAsk the Experts LIVE event to be broadcast on YouTube Live.\n\n\n\n \nDr. Gary Schwartz\nColumbia University Irving Medical Center \n\nDr. Jason Sicklick\nMoores Cancer Center\, University of California\, San Diego\n\n\nDr. Jonathan Trent\nSylvester Comprehensive Cancer Center \n\nRegister\n\n\n\n\nWe welcome you to submit your questions ahead of time.\nQuestions can be emailed to Sara Rothschild at srothschild@liferaftgroup.org.\nViewers can also ask questions live during the event.\n\n\nDisclaimer:\nWe cannot provide individual medical advice during this live event. Information provided is not intended as a substitute for your physician’s guidance and care.
URL:https://liferaftgroup.org/event/ask-the-experts-live/
LOCATION:You Tube Live
CATEGORIES:Education,Events
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2019/04/ask-the-experts-live-eventpg.jpg
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20190509T080000
DTEND;TZID=America/New_York:20190509T143000
DTSTAMP:20260408T224420
CREATED:20190410T143442Z
LAST-MODIFIED:20190423T144328Z
UID:10000021-1557388800-1557412200@liferaftgroup.org
SUMMARY:GDOL New Jersey 2019
DESCRIPTION:Register\n\nGDOL (GIST Day of Learning) is a free one day event to help patients and caregivers learn more about this rare cancer\, find support\, and enhance their knowledge base to help them navigate their cancer journey. \nThe Life Raft Group has a simple focus: to cure a form of cancer — GIST — and to help those living with it until then. To do this\, the Life Raft Group focuses on three key areas: research\, patient support & education\, and advocacy\, which lay the foundation of our mission to ensure the survival of GIST patients through a comprehensive approach connecting individual patients’ needs\, the worldwide community of GIST advocates and the global health and research environment. \n\nview agenda for GDOL NJ\n\nRegister by clicking the button above. Any questions\, please contact Diana Nieves\, dnieves@liferaftgroup.org
URL:https://liferaftgroup.org/event/gdol-new-jersey-2019/
LOCATION:Courtyard Marriott\, 263 U.S. 46 West\, Wayne\, 07470\, United States
CATEGORIES:Education,Events
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2019/04/new-jersey.jpg
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20190518T070000
DTEND;TZID=America/New_York:20190518T140000
DTSTAMP:20260408T224420
CREATED:20190304T161832Z
LAST-MODIFIED:20190710T142716Z
UID:10000016-1558162800-1558188000@liferaftgroup.org
SUMMARY:GDOL Tampa 2019
DESCRIPTION:see recap of event\n\nGDOL (GIST Day of Learning) is a free one day event to help patients and caregivers learn more about this rare cancer\, find support\, and enhance their knowledge base to help them navigate their cancer journey. \nThe Life Raft Group has a simple focus: to cure a form of cancer — GIST — and to help those living with it until then. To do this\, the Life Raft Group focuses on three key areas: research\, patient support & education\, and advocacy\, which lay the foundation of our mission to ensure the survival of GIST patients through a comprehensive approach connecting individual patients’ needs\, the worldwide community of GIST advocates and the global health and research environment. \n\nView Agenda for GDOL Tampa\n\nRegister by clicking the button above. Any questions\, please contact Diana Nieves\, dnieves@liferaftgroup.org
URL:https://liferaftgroup.org/event/gdoltampa2019/
LOCATION:Stabile Research Building at Moffitt Cancer Center\, 12902 Magnolia Drive\, Tampa\, FL\, 33612\, United States
CATEGORIES:Education,Events
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
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