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UID:10000490-1681819200-1681822800@liferaftgroup.org
SUMMARY:Fueling GIST Research - Our Community in Action!
DESCRIPTION:Diana Nieves will be chatting with a group of fundraisers from our community who have combined GIST advocacy with a personal passion in their lives to raise funds for GIST research. We are grateful to these individuals who have been so creative and thankful that they are willing to join us on April 18 at noon ET to share how to create a successful virtual or in-person fundraiser to further GIST research. \nJoin us during for virtual presentation to learn how you can help fuel the future of GIST research! \nREGISTERAbout Our Presenter:\nDiana Nieves\nChief Development & Involvement Officer \nIn her role as Chief Development & Involvement Officer\, Diana is charged with busting up silos and eliminating barriers to keep our relationships with members\, donors\, volunteers\, and others focused on our common goal of achieving LRGs mission. She actively cultivates\, engages and deepens these relationships so that she can elevate LRG fundraising and volunteering efforts while meaningfully acknowledging contributions made to the LRG and rare diseases overall. She works closely with the senior executive team and Board of Directors to ensure the development and success of the organization by instilling a culture of community involvement\, philanthropy\, strategic planning while addressing any development issues within the organization. Diana holds a Master of Public Administration degree from New York University\, and a Bachelor of Business Administration from Adelphi University. \nOur Guest Panel includes:\n \nThank you to our 2023 Webinar Sponsors!
URL:https://liferaftgroup.org/event/fueling-gist-research-our-community-in-action/
CATEGORIES:Education,Events
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
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DTSTART;TZID=America/Chicago:20230428T140000
DTEND;TZID=America/Chicago:20230428T160000
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UID:10000488-1682690400-1682697600@liferaftgroup.org
SUMMARY:GIST Day of Learning Virtual - Tennessee
DESCRIPTION:GDOL Tennessee is happening on April 28th\, 2023 VIRTUAL\n2-4pm CDT \nAgenda TBA \nPresenters: Elizabeth Davis\, MD; Vicki Keedy\, MD\, MSCI; Justin Cates\, MD\, Ph.D.; Carlos Prieto-Granada\, MD; Deepa Magge\, MD; Sekhar Padmanabhan; Erin Taylor\, MS\, RD\, CNSC; and Carey Tomlinson\, PT \nTopics Include:  \n• GIST 101 \n• Importance of pathology review\, molecular testing\, and risk stratification \n• Medical and surgical approaches to treatment \n• Management of treatment side effects \n• Importance of nutrition and physical activity during treatment \n• Future directions for GIST therapy \n\nREGISTERWhat is a GDOL?\nA GDOL is a GIST Day of Learning. This is a free one day event to help patients and caregivers learn more about this rare cancer\, find support\, and enhance their knowledge base to help them navigate their cancer journey. \nThe mission of the Life Raft Group is to enhance survival and quality of life for people living with GIST through patient-powered research\, education and empowerment\, and global advocacy efforts. The LRG vision is to champion patient-powered science and drastically increase long-term survivorship for all cancer patients. To accomplish this\, we rely on four key pillars:\n– Leverage the patient perspective to drive innovative solutions in cancer research\n– Educate and empower patients to take a larger role in their care\n– Accelerate research outcomes through collaborative efforts\n– Increase access to effective treatments worldwide \nThank you to our 2023 GDOL Sponsors!\n \n 
URL:https://liferaftgroup.org/event/gist-day-of-learning-virtual-tennessee/
CATEGORIES:Education,Events
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
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