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SUMMARY:NF1 & GIST: Expert and Patient Perspectives
DESCRIPTION:REGISTERJoin The Life Raft Group on October 14 at 12:00 PM for a patient-centered discussion about Neurofibromatosis type 1 (NF1) and its connection to GIST. Dr. Ciara Kelly of Memorial Sloan Kettering Cancer Center and Dr. John Glod of the National Institutes of Health will discuss what patients should know about NF1-associated GIST\, including current research and treatment considerations. Life Raft Group Board member and NF1/GIST patient Rob Taylor will also share his personal experience\, offering a patient perspective on navigating these diagnoses. \nThese webinars are for informational purposes only and should not replace professional medical advice. Always consult your healthcare provider before making any treatment or lifestyle changes. \nAbout Our Presenters:\n \nDr. Ciara Kelly\nMemorial Sloan Kettering Cancer Center\n \nCiara Kelly\, MBBCh\, BAO is a medical oncologist at Memorial Sloan Kettering Cancer Center who has expertise in treating and researching bone and soft tissue sarcomas and merkel cell carcinoma. She works very closely with a team of medical oncologists\, surgeons\, radiation oncologists\, nurses\, and patient support advocates. \nDr. Kelly’s research aims to develop new and more personalized therapies to treat sarcomas. She is actively involved in developing and designing clinical trials that will look at novel agents that target molecular changes within tumors. She is also studying innovative combination immunotherapy options that will harness a person’s own immune defenses to fight their cancer. \nDr. Kelly has a particular interest in advancing understanding of gastrointestinal stromal tumors and other sarcomas at the molecular level. She is using liquid biopsies to analyze tumor DNA in the blood and tumor biopsies to uncover a biomarker that will ultimately help match the best treatment option with each individual person’s tumor. Dr. Kelly is committed to designing and developing novel therapeutic clinical trials for GIST patients that incorporate correlative studies which provide an opportunity to further our understanding of this disease. \n \nDr. John Glod\nNational Institutes of Health \nDr. Glod obtained his M.D. and Ph.D. from the University of Colorado in Denver and trained in pediatrics and pediatric oncology at Cincinnati Children’s Hospital\, Johns Hopkins Hospital\, and the Pediatric Oncology Branch of the NCI. Following a fellowship in neuro-oncology at the NCI\, Dr. Glod served as faculty in the departments of pediatrics and pharmacology at Rutgers Cancer Institute of New Jersey. Dr. Glod currently serves as the Clinical Director of the Pediatric Oncology Branch in the Center for Cancer Research at National Cancer Institute. Dr. Glod’s research interests are focused on early stage clinical trials for pediatric patients and rare pediatric solid tumors including multiple endocrine neoplasia-related medullary thyroid cancer\, SDH-deficient gastrointestinal stromal tumor\, and tumors of the central nervous system. \n \nRob Taylor\nGIST Advocate\n \nRob Taylor is a GIST/NF1 patient\, Life Raft Group Board Member\, LRG Health Equity Council member\, and GIST Mentor. Drawing from his own experience navigating NF1 and GIST\, Rob is passionate about helping others better understand their diagnosis and feel empowered to advocate for the care they deserve. He dedicates significant time to GIST education\, patient support\, and advocacy\, working to ensure that the patient voice is represented in research\, healthcare\, and the broader GIST community. \nThank You to Our Sponsors:
URL:https://liferaftgroup.org/event/nf1-gist-expert-and-patient-perspectives/
CATEGORIES:Education,Events,Webcast
ORGANIZER;CN="Rebecca Pauley":MAILTO:rpauley@liferaftgroup.org
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DTSTART;TZID=America/Vancouver:20261017T093000
DTEND;TZID=America/Vancouver:20261017T160000
DTSTAMP:20260922T125208Z
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SUMMARY:GIST Day of Learning Vancouver
DESCRIPTION:SATURDAY\, OCTOBER 17\, 2026 \nGIST Sarcoma Life Raft Group Canada \nEvent Details \nHosted by GIST Sarcoma Life Raft Group Canada\nLocation: Holiday Inn Vancouver Centre – 711 West Broadway\, Vancouver\, BC \nWhat to Expect \nExpert Presentations: We are honored to welcome Dr. Simmons from the BC Cancer Centre as a featured speaker. And\, speaking to us about Clinical Trials is Dr. Feng from Arthur JE Child Comprehensive Cancer Centre. \nInformative Sessions: Learn about the newest developments in care\, including the latest clinical trial updates. \nAnnual General Meeting: Over the lunch hour\, we will be holding our AGM to discuss organizational updates and future initiatives. \nAGENDA & REGISTRATION
URL:https://liferaftgroup.org/event/gist-day-of-learning-vancouver-2/
CATEGORIES:Education,Events
ORGANIZER;CN="GIST Sarcoma Life Raft Group Canada":MAILTO:yvonne.nunnaro@liferaftgroup.ca
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DTSTART;VALUE=DATE:20261024
DTEND;VALUE=DATE:20261025
DTSTAMP:20261015T160404Z
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SUMMARY:GDOL San Diego
DESCRIPTION:GDOL San Diego will take place in-person at Moores Cancer Center\, 3855 Health Sciences Dr\, 2nd floor\, La Jolla\, CA 92037 on October 24\, 2026. \nREGISTERDownload PDF of Agenda (subject to change.) \n\n \n\n \n\nWhat is a GDOL?\n\nA GDOL is a GIST Day of Learning. This is a free one day event to help patients and caregivers learn more about this rare cancer\, find support\, and enhance their knowledge base to help them navigate their cancer journey\, \nThe Life Raft Group is committed to enhancing the survival and quality of life for people living with Gastrointestinal Stromal Tumor (GIST)\, and other rare diseases\, through patient-powered research\, education and empowerment\, and global advocacy efforts. Our vision is to empower a future fueled by data\, guiding our journey toward cures for rare diseases. \nIf you have any questions\, please contact Brian Morello at bmorello@liferaftgroup.org
URL:https://liferaftgroup.org/event/gdol-san-diego-2026/
LOCATION:Moores Cancer Center\, 3855 Health Sciences Dr\, La Jolla\, CA 92037\, La Jolla\, CA\, 92037\, United States
CATEGORIES:Education,Events
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
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