BEGIN:VCALENDAR VERSION:2.0 PRODID:-//The Life Raft Group - ECPv6.15.18//NONSGML v1.0//EN CALSCALE:GREGORIAN METHOD:PUBLISH X-WR-CALNAME:The Life Raft Group X-ORIGINAL-URL:https://liferaftgroup.org X-WR-CALDESC:Events for The Life Raft Group REFRESH-INTERVAL;VALUE=DURATION:PT1H X-Robots-Tag:noindex X-PUBLISHED-TTL:PT1H BEGIN:VTIMEZONE TZID:America/New_York BEGIN:DAYLIGHT TZOFFSETFROM:-0500 TZOFFSETTO:-0400 TZNAME:EDT DTSTART:20180311T070000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0400 TZOFFSETTO:-0500 TZNAME:EST DTSTART:20181104T060000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:-0500 TZOFFSETTO:-0400 TZNAME:EDT DTSTART:20190310T070000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0400 TZOFFSETTO:-0500 TZNAME:EST DTSTART:20191103T060000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:-0500 TZOFFSETTO:-0400 TZNAME:EDT DTSTART:20200308T070000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0400 TZOFFSETTO:-0500 TZNAME:EST DTSTART:20201101T060000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:-0500 TZOFFSETTO:-0400 TZNAME:EDT DTSTART:20210314T070000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0400 TZOFFSETTO:-0500 TZNAME:EST DTSTART:20211107T060000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:-0500 TZOFFSETTO:-0400 TZNAME:EDT DTSTART:20220313T070000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0400 TZOFFSETTO:-0500 TZNAME:EST DTSTART:20221106T060000 END:STANDARD END:VTIMEZONE BEGIN:VTIMEZONE TZID:America/Los_Angeles BEGIN:DAYLIGHT TZOFFSETFROM:-0800 TZOFFSETTO:-0700 TZNAME:PDT DTSTART:20190310T100000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0700 TZOFFSETTO:-0800 TZNAME:PST DTSTART:20191103T090000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:-0800 TZOFFSETTO:-0700 TZNAME:PDT DTSTART:20200308T100000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0700 TZOFFSETTO:-0800 TZNAME:PST DTSTART:20201101T090000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:-0800 TZOFFSETTO:-0700 TZNAME:PDT DTSTART:20210314T100000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0700 TZOFFSETTO:-0800 TZNAME:PST DTSTART:20211107T090000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:-0800 TZOFFSETTO:-0700 TZNAME:PDT DTSTART:20220313T100000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0700 TZOFFSETTO:-0800 TZNAME:PST DTSTART:20221106T090000 END:STANDARD END:VTIMEZONE BEGIN:VTIMEZONE TZID:America/Mexico_City BEGIN:DAYLIGHT TZOFFSETFROM:-0600 TZOFFSETTO:-0500 TZNAME:CDT DTSTART:20190407T080000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0500 TZOFFSETTO:-0600 TZNAME:CST DTSTART:20191027T070000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:-0600 TZOFFSETTO:-0500 TZNAME:CDT DTSTART:20200405T080000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0500 TZOFFSETTO:-0600 TZNAME:CST DTSTART:20201025T070000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:-0600 TZOFFSETTO:-0500 TZNAME:CDT DTSTART:20210404T080000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0500 TZOFFSETTO:-0600 TZNAME:CST DTSTART:20211031T070000 END:STANDARD END:VTIMEZONE BEGIN:VEVENT DTSTART;VALUE=DATE:20190714 DTEND;VALUE=DATE:20190715 DTSTAMP:20260405T153710 CREATED:20190701T181532Z LAST-MODIFIED:20190709T152321Z UID:10000029-1563062400-1563062400@liferaftgroup.org SUMMARY:GIST Awareness Day - Mumbai\, India DESCRIPTION:The Max Foundation is planning a special day for Friends of Max (FOM) on Sunday\, July 14th in Mumbai\, India to observe and celebrate GIST Day of Awareness (GAD) 2019. This is the annual Patient Group Meeting for the FOM Mumbai City Chapter in the Tata Memorial Hospital auditorium. We are expecting a large group of CML and GIST patients as well as our oncologist fraternity and many of our nonprofit peers from around the city. Please join us! For more information contact Viji Venkatesh at vvenkatesh@themaxfoundation.org or Nikhil Guhagarkar at gdental99@gmail.com. \n  \n  URL:https://liferaftgroup.org/event/gist-awareness-day-mumbai-india/ CATEGORIES:Education,Events,International ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2019/07/GAD-Mumbai-India-feature.jpg ORGANIZER;CN="The Max Foundation":MAILTO:vvenkatesh@themaxfoundation.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20190720T080000 DTEND;TZID=America/New_York:20190720T110000 DTSTAMP:20260405T153710 CREATED:20190701T191100Z LAST-MODIFIED:20190701T202820Z UID:10000030-1563609600-1563620400@liferaftgroup.org SUMMARY:GIST Awareness Day - Nairobi\, Kenya DESCRIPTION:Celebrate GIST Awareness Day (GAD) at a GIST Day of Learning from 8-11am on July 20th at The Nairobi Hospital Cancer Center with Henzo Kenya\, in partnership with The Nairobi Hospital and The Max Foundation. You can download the flyer pictured below here. URL:https://liferaftgroup.org/event/gist-awareness-day-nairobi-kenya/ LOCATION:Nairobi Hospital Cancer Center\, Nairobi\, Kenya CATEGORIES:Education,Events,International ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2017/07/GAD-slider-940.jpg ORGANIZER;CN="Henzo Kenya":MAILTO:info@henzokenya.or.ke END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20190911T140000 DTEND;TZID=America/New_York:20190911T150000 DTSTAMP:20260405T153710 CREATED:20190725T201333Z LAST-MODIFIED:20190917T152156Z UID:10000037-1568210400-1568214000@liferaftgroup.org SUMMARY:LRG Webcast Series: Updates on the Temozolomide Trial DESCRIPTION:The Temozolomide Trial for SDH-deficient GIST Patients\nGIST is becoming increasingly diverse. SDH-deficient GIST and paragangliomas often occur in adolescents and young adults. Since these SDH mutations are germline\, multiple generations of family members are affected.\n\nDr. Jason Sicklick of Moores Cancer Center at the University of California San Diego will present a webcast detailing the Phase II study of Temozolomide (TMZ) in advanced SDH-mutant/deficient GIST\, a new study available to patients with SDH-deficient GIST.\n\n\nListen to the Webinar\n\nAbout the Presenter:\nJason K. Sicklick\, MD\, FACS\, is an Associate Professor of Surgery\, Division of Surgical Oncology; and Co-Director\, Biorepository and Tissue Technology Shared Resource\, Moores Cancer Center at the University of California\, San Diego\, UC San Diego Health Sciences. \n  \n  \n  \n\nTechnical Tips to Join Meeting:\n\nThis is a web-only meeting\, accessed only by your internet connection. Participants are encouraged to use the web link automatically provided after registration and to use computer speakers (and/or headsets if available) to hear the audio portion of the meeting. Please log in at least ten minutes prior to the start of the webinar.\nPlease ensure you have an updated version of Adobe Flash Player (Google Chrome has Flash built-in).\nIf you are using a mobile device or tablet\, in order to view and hear the conference\, download the ReadyTalk App from your App store.\n\n\nDisclaimer:\nWe cannot provide individual medical advice during this webcast. Information provided in this webcast is not intended as a substitute for your physician’s guidance and care. URL:https://liferaftgroup.org/event/lrg-webcast-series-updates-on-the-temozolomide-trial/ CATEGORIES:Education,Webcast ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2019/07/sicklick-temozolomide-webcast.jpg ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20190928T090000 DTEND;TZID=America/New_York:20190928T163000 DTSTAMP:20260405T153710 CREATED:20190712T143844Z LAST-MODIFIED:20190829T185754Z UID:10000036-1569661200-1569688200@liferaftgroup.org SUMMARY:GIST Day of Learning - Ottawa DESCRIPTION:  \n  \n\nGDOL Ottawa\nRegistration is open for the GIST Day of Learning in Ottawa.  This is a one-day conference that provides education and support for people living with Gastrointestinal Stromal Tumour (GIST)\, a soft-tissue sarcoma that can occur anywhere along the GI tract.  The speakers at the GIST Day of Learning will cover many aspects of living with and understanding GIST. This conference will also provide a great opportunity to connect with other GIST patients and caregivers as well as the speakers. \nThe Day of Learning is open to those who have GIST\,  family members\,  caregivers\, healthcare providers and anyone who wishes to learn more about GIST. \nThere is no cost for attending the GIST Day of Learning. \n\nRegister\n\nAgenda:\n(As of 8/29/19\, please check at https://liferaftgroup.ca/join-us-at-the-ottawa-gist-day-of-learning/ to register and see updates) \n  \n \n\nGDOL Location:\nOttawa Conference and Event Centre\n200 Coventry Road\, Ottawa\, ON K1K 4S3\nFree Parking \nConference Hotel:\nCourtyard by Marriott Ottawa East\n200 Coventry Road\nOttawa\, ON K1K 4S3\nFree Parking \n\nWe gratefully acknowledge our GIST Day of Learning sponsors URL:https://liferaftgroup.org/event/gist-day-of-learning-ottawa/ LOCATION:Ottawa Conference and Event Centre\, 200 Coventry Road\, Ottawa\, Ontario\, K1K 4S3\, Canada CATEGORIES:Education,Events ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2019/07/Ottawa-GDOL-Logo.png ORGANIZER;CN="GIST Sarcoma Life Raft Group Canada":MAILTO:yvonne.nunnaro@liferaftgroup.ca END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20191015T130000 DTEND;TZID=America/New_York:20191015T140000 DTSTAMP:20260405T153710 CREATED:20191004T141629Z LAST-MODIFIED:20191018T140257Z UID:10000046-1571144400-1571148000@liferaftgroup.org SUMMARY:GIST CHAT 101: Learn the Basics DESCRIPTION:GIST CHAT 101: Learn the Basics\n\nGIST CHAT is our new ListServ replacement launching on October 15th.\n\nDuring the webinar we will show you how to:\n\n\nRegister\nPost\nReply\nSearch\n…and a few other helpful tips and tricks\n\n\n\n\n\n\nWatch the Webinar URL:https://liferaftgroup.org/event/gist-chat-101-learn-the-basics/ CATEGORIES:Education,Webcast ORGANIZER;CN="The Life Raft Group":MAILTO:liferaft@liferaftgroup.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20200126T140000 DTEND;TZID=America/New_York:20200126T160000 DTSTAMP:20260405T153710 CREATED:20191218T213339Z LAST-MODIFIED:20200116T134939Z UID:10000049-1580047200-1580054400@liferaftgroup.org SUMMARY:GISTLEARN Kitchener DESCRIPTION:“GIST LEARN Kitchener” is an afternoon meeting to provide education and support for people living with GIST. The speakers at GIST LEARN will cover many aspects of living with and understanding GIST. This meeting also offers a great opportunity for you to connect with other GIST patients and caregivers as well as the speakers. \nGIST LEARN meetings are open to those who have GIST\, family members\, caregivers\, healthcare providers and anyone who wishes to learn more about GIST. \nRescheduled to Sunday\, January 26th!\n(Originally scheduled – Sunday\, January 12\, 2020)\n2:00 pm to 4:00 pm \nDoors open at 1:30 pm \nMill Courtland Community Centre\, 216 Mill St.\, Kitchener\, ON \nHazel McLeod will lead an\ninformal round-table discussion\nDavid Josephy will give a GIST presentation\nthat includes a Q&A session\nTo register or for further information call 855-574-4478 or email info@liferaftgroup.ca \n\nDavid Josephy is a Professor of Molecular and Cellular Biology at the University of Guelph\, where he has taught for more than 35 years. He has been President of GIST Sarcoma Life Raft Group Canada (LRGC) since its inception in 2008. In 2010\, David spent a sabbatical term working in the laboratory of Dr. Jonathan Fletcher\, a leading GIST researcher at Brigham and Women’s Hospital in Boston. David is a member of the Science Team of The Life Raft Group (USA) and collaborates with GIST patient support groups around the world. His research interests are in the field of Molecular Toxicology. He is particularly interested in the scientific basis for development of new small-molecule drugs for GIST. \nThank you to our sponsors: URL:https://liferaftgroup.org/event/gistlearn-kitchener/ LOCATION:Mill Courtland Community Centre\, 216 Mill St.\, Kitchener\, Ontario CATEGORIES:Education ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2019/12/kitchener-rescheduled-copy.png ORGANIZER;CN="GIST Sarcoma Life Raft Group Canada":MAILTO:yvonne.nunnaro@liferaftgroup.ca END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/Los_Angeles:20200215T090000 DTEND;TZID=America/Los_Angeles:20200215T170000 DTSTAMP:20260405T153710 CREATED:20191101T154951Z LAST-MODIFIED:20200117T152000Z UID:10000047-1581757200-1581786000@liferaftgroup.org SUMMARY:GDOL Seattle 2020 DESCRIPTION:Join us at GDOL Seattle\, Saturday\, February 15\, 2020 hosted in partnership with the Seattle Cancer Care Alliance at the Orin Smith Auditorium (Building C) on the University of Washington campus – 850 Republican St.\, Seattle\, Washington. GDOL Seattle is an event for patients & caregivers to learn more about GIST\, find support\, & enhance knowledge to help navigate their cancer journey. Meet with other patients and caregivers and experts\, clinicians\, and researchers in the study and treatment of GIST. \nRegisterVIEW AGENDAWhat’s a GDOL?  A GDOL is a GIST Day of Learning\, a free one-day event to help you\, as patients and caregivers\, learn more about GIST\, find support\, and enhance your knowledge base to help you navigate your cancer journey. At a GDOL\, you will learn more about your disease from expert clinicians\, researchers\, and advocates and connect with other patients\, caregivers\, and family members who are also on this rare journey. You are not alone. \nThe LRG’s mission is simple: cure GIST and help those living with it until then. To do this\, we focus on three key areas: research\, patient support & education\, and advocacy. \nSee what a GDOL can offer you – visit this link to see presentations\, photos\, and posts about past GDOLs: \n\nView Past GDOLs \n\nFor questions or more information about GDOL\, Diana Nieves\, Senior Director\, Outreach & Engagement\, DNieves@liferaftgroup.org URL:https://liferaftgroup.org/event/gdol-seattle-2020/ LOCATION:Orin Smith Auditorium – Building C\, University of Washington\, 850 Republican Street\, Seattle\, 98109\, United States CATEGORIES:Education,Events ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2019/11/Seattle-GDOL.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20200305T120000 DTEND;TZID=America/New_York:20200305T120000 DTSTAMP:20260405T153710 CREATED:20200228T201100Z LAST-MODIFIED:20200228T201452Z UID:10000055-1583409600-1583409600@liferaftgroup.org SUMMARY:Webinar - New Treatment Options for Rare Diseases in the Soft Tissue - Day 1 DESCRIPTION:In honor of Rare Disease in the Soft Tissue Day\, OncLive is hosting webinars on March 5 and March 6 at 12pm EST about soft tissue sarcoma. GIST is a soft tissue sarcoma. \nDr. Jonathan Trent \nJonathan Trent\, MD\, PhD\, is a Professor of Medicine\, Associate Director of Clinical Research\, Director of the Sarcoma Program at Sylvester Comprehensive Cancer Center\, University of Miami\, Miller School of Medicine. \nDr. Trent is a recognized GIST expert. \nThe webinar will focus on: \n\nOverview of diagnosis and molecular testing\nCurrent treatment algorithms for soft tissue sarcoma\nNew therapeutic option for PDGFRA+ GIST\nFuture directions in management\n\nTo register for the March 5 webinar: \n\nRegister URL:https://liferaftgroup.org/event/webinar-new-treatment-options-for-rare-diseases-in-the-soft-tissue/ CATEGORIES:Education,Webcast END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20200306T120000 DTEND;TZID=America/New_York:20200306T120000 DTSTAMP:20260405T153710 CREATED:20200228T202106Z LAST-MODIFIED:20200228T202614Z UID:10000056-1583496000-1583496000@liferaftgroup.org SUMMARY:Webinar - New Treatment Options for Rare Diseases in the Soft Tissue - Day 2 DESCRIPTION:In honor of Rare Disease in the Soft Tissue Day\, OncLive is hosting webinars on March 5 and March 6 at 12pm EST about soft tissue sarcoma. GIST is a soft tissue sarcoma. \nDr. Neeta Somaiah \nDr. Neeta Somaiah will present on March 6. She is an Associate Professor and the Director of Clinical Sarcoma Research\, Department of Sarcoma Medical Oncology\, UT MD Anderson Cancer Center. \nThe webinar will focus on: \n\nOverview of diagnosis and molecular testing\nCurrent treatment algorithms for soft tissue sarcoma\nNew therapeutic option for PDGFRA+ GIST\nFuture directions in management\n\nTo register for the March 6 webinar: \n\nRegister URL:https://liferaftgroup.org/event/webinar-new-treatment-options-for-rare-diseases-in-the-soft-tissue-day-2/ CATEGORIES:Education,Webcast END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20200502T120000 DTEND;TZID=America/New_York:20200502T120000 DTSTAMP:20260405T153710 CREATED:20200501T170444Z LAST-MODIFIED:20200504T122823Z UID:10000064-1588420800-1588420800@liferaftgroup.org SUMMARY:Sarcoma and COVID-19: Your Questions Answered DESCRIPTION:From our friends at the Sarcoma Alliance:\nWEBINAR: Sarcoma and COVID-19: Your questions answered\n Saturday\, May 2nd for our multidisciplinary webinar with Sarcoma Experts:\n\nDr. George Demetri\nDr. Gina D’Amato\nDr. Jonathan Trent\nDr. Tom DeLaney\nDr. Fritz Eilber\n\nMeeting begins at 9am Pacific | 10am Mountain | 11am Central | 12noon Eastern\nSEE THE WEBINAR URL:https://liferaftgroup.org/event/sarcoma-and-covid-19-your-questions-answered/ LOCATION:Sarcoma Alliance CATEGORIES:Education,Events END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20200514T140000 DTEND;TZID=America/New_York:20200514T150000 DTSTAMP:20260405T153710 CREATED:20200421T143006Z LAST-MODIFIED:20200520T122214Z UID:10000061-1589464800-1589468400@liferaftgroup.org SUMMARY:LRG Webcast Series: GIST\, TKI Treatment & Effects on Memory DESCRIPTION:Cancer-related cognitive impairment\, or CRCI\, is common among certain cancer survivors\, for example\, individuals with breast cancer. CRCI usually presents as mild to moderate problems with memory and attention and can even persist long after cancer treatment has ended. Many have called this “chemobrain” or “chemofog” but research over the past three decades indicates that cancer itself\, genetic vulnerabilities and treatments other than chemotherapy can lead to persistent CRCI. \nSimilar to patients treated with chemotherapy\, patients with GIST are complaining about long-term side effects of Gleevec therapy with respect to cognitive function (“Gleevec brain”). Nevertheless\, very little is known about CRCI in cancer patients who are being treated with tyrosine kinase inhibitors (TKIs)\, like Gleevec\, including patients with GIST. \nThis discussion will review CRCI in general\, and how a person who is being treated for GIST could be affected. We will also talk about strategies that can help ameliorate CRCI and discuss our new research on CRCI and GIST. Finally\, in light of the COVID-19 pandemic\, we will give advice on how cancer survivors can best cope with and care for themselves during this unusual global health event. \nSEE The RecapAbout the Presenters:\nAnette Duensing\, M.D.\nAssociate Professor of Pathology\nUniversity of Pittsburgh School of Medicine \nAnette Duensing holds an M.D. degree from the University of Hannover School of Medicine\, Germany\, and is an Associate Professor of Pathology at the University of Pittsburgh School of Medicine as well as Member of the Cancer Therapeutics Program at the UPMC Hillman Cancer Center. Her research focuses on gastrointestinal stromal tumors (GISTs) as well as other sarcomas with the goal of identifying novel therapeutic approaches. Recently\, Dr. Duensing has teamed up with Dr. Robert Ferguson at UPMC HCC to study cognitive impairment in GIST patients treated with Gleevec and other tyrosine kinase inhibitors. Dr. Duensing is the author of nearly 70 original articles\, reviews and book chapters. Her research has been supported by the American Cancer Society\, the Sarcoma Foundation of America\, the GIST Cancer Research Fund and the Life Raft Group. \nRobert J. Ferguson\, Ph.D.\nAssistant Professor of Medicine with the Division of Hematology/Oncology\nUniversity of Pittsburgh School of Medicine and Hillman Cancer Center \nDr. Ferguson is a clinical psychologist and Assistant Professor of Medicine with the Division of Hematology/Oncology at the University of Pittsburgh School of Medicine and Hillman Cancer Center. His clinical and research interests are the treatment of cognitive effects of cancer\, cancer survivorship and palliative care. He is the author of numerous peer reviewed research articles and book chapters on treatment of cancer-related cognitive dysfunction and other topics related to the field of behavioral medicine. His research has been funded by grants from the National Cancer Institute\, NIH Office of Research on Women’s Health\, and the Lance Armstrong Foundation. \n\n \nDisclaimer:\nWe cannot provide individual medical advice during this webcast. Information provided in this webcast is not intended as a substitute for your physician’s guidance and care. URL:https://liferaftgroup.org/event/lrg-webcast-series-treatment-effects-memory/ CATEGORIES:Education,Events ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20200529T133000 DTEND;TZID=America/New_York:20200529T143000 DTSTAMP:20260405T153710 CREATED:20200429T145739Z LAST-MODIFIED:20200429T150524Z UID:10000062-1590759000-1590762600@liferaftgroup.org SUMMARY:Webinar - Advances in the Treatment of GIST DESCRIPTION:This is a free CancerCare Connect® Education Workshop for people living with GIST\, their families\, partners\, caregivers\, friends and health care professionals. Listen to this workshop over the telephone or connect to our webcast online. \nWorkshop Topics\n• Overview of the Treatment of Gastrointestinal Stromal Tumors (GIST)\, in the Context of COVID-19\n• Diagnosis and Staging\n• Treatment Options\n• Clinical Trials and Novel Approaches to Treating GIST\n• Strategies to Manage Common Treatment Side Effects\, Discomfort and Pain\n• The Importance of Communicating with Your Health Care Team\n• What’s New on the Horizon for GIST Cancers\n• Questions for Our Panel of Experts \nREGISTERwebinar flyerSpeakers\nSuzanne George\, MD\nClinical Director\nCenter for Sarcoma and Bone Oncology\nSenior Physician\nDana-Farber Cancer Institute Associate Professor of Medicine Harvard Medical School \nMichael C. Heinrich\, MD\nProfessor of Medicine\nCell and Developmental Biology Hematology and Medical Oncology Program in Molecular and Cellular Biosciences\nSchool of Medicine\nOregon Health & Science University (OHSU) \nCarolyn Messner\, DSW\, OSW-C\, FAPOS\, FAOSW\nDirector of Education and Training CancerCare® URL:https://liferaftgroup.org/event/advances-in-the-treatment-gist/ CATEGORIES:Education,Events ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2020/04/cancer-care-connect.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/Mexico_City:20200611T190000 DTEND;TZID=America/Mexico_City:20200611T190000 DTSTAMP:20260405T153710 CREATED:20200609T182644Z LAST-MODIFIED:20200610T133936Z UID:10000070-1591902000-1591902000@liferaftgroup.org SUMMARY:¿Eres paciente con GIST de habla hispana? (Reunión Virtual) DESCRIPTION:Por favor únase a nosotros para esta Reunión Virtual.\nAlojado por Fundacíon GIST México \nAprendiendo más sobre GIST y las nuevas terapias aprobadas. Jueves 11 de junio a las 1900 hrs tiempo Ciudad de México. (8pm New York) \nPresentado por Dr. David Heredia\, Oncólogo médico Instituto Nacional de Cancerología. \nÚnete a la reunión: \nUnirse a reunión de Microsoft Teams \nMás información sobre Teams | Opciones de reunión   URL:https://liferaftgroup.org/event/eres-paciente-con-gist-de-habla-hispana-reunion-virtual/ CATEGORIES:Education,Events,International ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2020/06/Flyer-Reunión-Virtual-de-pacientes-v2-1.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20200616T120000 DTEND;TZID=America/New_York:20200616T130000 DTSTAMP:20260405T153710 CREATED:20200512T205723Z LAST-MODIFIED:20200515T142935Z UID:10000066-1592308800-1592312400@liferaftgroup.org SUMMARY:LRG Webcast Series: GIST: How to Understand your Pathology Report DESCRIPTION:In this webinar\, we will be discussing how to interpret your pathology report. We will cover interpretation of all parts of a pathology report\, beginning with understanding the final diagnosis and diagnostic comment. We will then review the results and significance of performed ancillary testing\, including immunohistochemistry\, prognostic biomarker testing\, and molecular testing. We will end by discussing how the aforementioned pathology report data affects clinical surgical and therapeutic decision-making. \nREGISTERAbout the Presenters:\nKelsey McHugh\, M.D.\nGastrointestinal\, Hepatic\, and Pancreatobiliary Pathology Fellow\nRobert J. Tomsich Pathology & Laboratory Medicine Institute\nCleveland Clinic \nKelsey McHugh\, MD is a board certified anatomic and clinical pathologist\, with cytopathology subspecialty certification\, who is currently completing gastrointestinal\, hepatic\, and pancreatobiliary pathology subspecialty training. She anticipates graduating from the Cleveland Clinic Gastrointestinal\, Hepatic\, and Pancreatobiliary Pathology Fellowship in June 2020\, after which she will remain at the Cleveland Clinic as a staff pathologist beginning July 2020. URL:https://liferaftgroup.org/event/understand-your-pathology-report/ CATEGORIES:Education,Webcast ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20200710T140000 DTEND;TZID=America/New_York:20200710T140000 DTSTAMP:20260405T153710 CREATED:20200612T135558Z LAST-MODIFIED:20200710T151533Z UID:10000071-1594389600-1594389600@liferaftgroup.org SUMMARY:Virtual Life Fest 2020 DESCRIPTION:Virtual Life Fest 2020 – July 10th – July 13th\n2020 brought a global health crisis that has challenged GIST patients. We had planned this year to be in New Orleans to share valuable information about GIST Research\, to enjoy fellowship with each other\, and yes\, to enjoy the wonderful food and music. \nEven though we can’t be together physically for our biennial Life Fest celebration and we won’t be together for GIST Awareness Day\, we can unite and spread a message of hope and positive messages while raising GIST awareness across the globe. Thanks to the generosity of our sponsors\, we still have a wonderful virtual weekend planned\, with some of the same elements Life Fest always provides. \nWith the latest information being shared in both our traditional GIST 101 presentation with Dr. David Josephy\, and through several panels featuring top GIST specialists and researchers\, a program targeted to the SDH community as well as fun events including a cooking demonstration\, Virtual Life Fest will prove that even with the restrictions on gathering\, you cannot keep the GIST community from sharing their strength\, hope and experiences. \nRegisterOur theme for Virtual Life Fest\, and for GIST Awareness Day this year is #GISTHope.\nThere are many ways for you to share this hopeful message: \n\nParticipate in our Virtual Life Fest Events.\nJoin us in our Virtual Walk. Start a fundraising page to invite family and friends to sponsor you in your efforts to raise funds for GIST Research.\nVisit our LRG store to purchase items such as our #GISTHope Masks to wear on your walk.\nMake a donation.\nGo to our GIST Awareness Day (GAD) page to see how to raise awareness\, including our creative #GISTHope rock painting project\nSend your stories\, photos and messages of hope to Mary Garland\, Director of Communications: mgarland@liferaftgroup.org\n\nAll times are Eastern Daylight Time \n\n\n\n\n Friday\, July 10th\n\n\n 2:00pm GIST 101 Presented by David Josephy (pre-recorded video)\n\n\n 4pmGIST ART Launch\n\n\n Saturday\, July 11th\n\n\n 12:00pm GIST Research Panel: Join GIST experts as they provide updates and answer questions on GIST research and new GIST therapies.\n\nPresenters: Roman Groisberg\, MD\, Rutgers Cancer Institute of New Jersey; Michael Heinrich\, MD\, OHSU Knight Cancer Institute; Jason Sicklick\, MD\, Moores Cancer Center\, UC of San Diego\n\n\n 2:00pm GIST Oncologist Panel: Our oncology and surgical GIST experts will share the latest trends\, insights and surgical options\, and answer questions. \n\nPresenters: Gina D’Amato\, MD\, Sylvester Comprehensive Cancer Center\, U of M; Arun Singh\, MD\, Ronald Reagan UCLA Medical Center; Jonathan Trent\, MD\, PhD\, Sylvester Comprehensive Cancer Center\, U of M; Breelyn Wilky\, MD\, UCHealth Cancer Center\, Anschutz Medical Campus\n\n\n 4:00pm Cooking Demonstration (pre-recorded video) and GIST Cookbook Launch\n\n\n Sunday\, July 12th\n\n\n 12:00pm Virtual Walk Launch (pre-recorded videos)\n\n\n Monday\, July 13th\n\n\n 9:00am - 5:00pmGAD and #GISTHope Messages\n\n\n 12:00pm EDTQ&A with SDH Panel of Experts\nChristopher B. Weldon\, MD\, PhD\nBoston Children’s Hospital\n Christopher Weldon\, MD\, PhD is Assistant in Surgery\, Department of Surgery; Director\, Pediatric Surgery Critical Care Fellowship and Assistant Professor of Surgery\, Boston Children’s Hospital\, Harvard Medical School. He is Board Certified in Critical Care\, General Surgery\, and Pediatric Surgery.\n\nLee Helman\, MD\nChildren’s Hospital Los Angeles\n Dr. Helman is a Professor of Pediatrics and Medicine\, Keck School of Medicine\, USC\, Head\, Basic and Translational Research\, Children’s Center for Cancer and Blood Diseases. His laboratory work focuses on the biology and treatment of rhabdomyosarcoma\, Ewing’s sarcoma\, osteosarcoma\, and pediatric GIST tumors. Major areas of research include the pathophysiologic consequences of IGF signaling\, identification of the molecular/biochemical determinants of the biology of sarcomas\, and the application of functional genomics to identify new treatment targets.\n\nJonathan Trent\, MD\nSylvester Comprehensive Cancer Center\n Dr. Trent’s interests are in the clinical and translational research of sarcomas\, direct care of sarcoma patients\, and education about sarcoma. The major efforts of Dr. Trent’s research focus on understanding the mechanisms of action and resistance of imatinib in GIST and other sarcomas while striving toward improved therapeutic options.\n\nAndrew Rosenberg\, MD\nSylvester Comprehensive Cancer Center\n Andrew Eric Rosenberg\, MD is the Vice Chair\, Director of Bone and Soft Tissue Pathology at the Sylvester Comprehensive Cancer Center in the University of Miami.\n\nJason Sicklick\, MD\nMoores Cancer Center\n Dr. Jason Sicklick is an NIH-funded investigator and Associate Professor of Surgery at the University of California San Diego Moores Cancer Center. He is a board-certified general surgeon and surgical oncologist specializing in the treatment of hepatobiliary diseases and sarcomas\, including gastrointestinal stromal tumors (GIST). \n\nRuth Casey\, PhD\nCambridge University Hospitals\, UK\n Dr Dr Casey has a specialist clinical interest in hereditary endocrine neoplasia and endocrine cancer. Her research has focused mainly on the role of succinate dehydrogenase gene mutations in tumorigenesis and has a strong translational focus. Her interest in succinate dehydrogenase deficient tumours has led to her collaboration with PAWS GIST. \n\nEyal Gottlieb\, MSc\,PhD\nTechnicon – Israel Institute of Technology\nDr. Gottlieb is a Professor and Director of the Cancer Metabolomics Lab at the Technion-Israel Institute of Technology. He is an internationally renowned expert in the field of metabolomics – measuring components of metabolism in cells under different conditions.\n\n\nThere will also be other special guest speakers.\n\n\n\n\nDownload SDH Panel Experts Flyer \n \nSponsors URL:https://liferaftgroup.org/event/virtual-life-fest/ CATEGORIES:Education,Events,Fundraising ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20200815T130000 DTEND;TZID=America/New_York:20200815T150000 DTSTAMP:20260405T153710 CREATED:20200727T181233Z LAST-MODIFIED:20200727T182549Z UID:10000082-1597496400-1597503600@liferaftgroup.org SUMMARY:GIST LEARN Online DESCRIPTION:GIST Sarcoma Life Raft Group Canada is pleased to invite you to register for our first online event. Our “GIST LEARN Online” webinar will use Zoom video and audio conferencing to provide education and support for people living with GIST. \nGIST LEARN Online events are open to GIST patients\, caregivers\, family members\, friends\, healthcare providers\, and anyone who wishes to learn more about GIST. \nLife Raft Group Canada has been hosting in-person GIST patient / caregiver meetings in cities all across Canada for the past twelve years. In 2020\, we hope that you will join us online. \nRegister \nKeynote speaker:\nDavid Josephy\, PhD\nProfessor of Molecular and Cellular Biology\nPresident\, GIST Sarcoma Life Raft Group Canada \nThe latest event details can be found at the event registration link above\, but please don’t hesitate to contact Life Raft Group Canada by email or phone if there is anything that you would like to discuss. \nSponsors: URL:https://liferaftgroup.org/event/gist-learn-online/ CATEGORIES:Education,International ORGANIZER;CN="Malcolm Sutherland%2C GIST Sarcoma Life Raft Group Canada":MAILTO:malcolm.sutherland@liferaftgroup.ca END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20200826T150000 DTEND;TZID=America/New_York:20200826T150000 DTSTAMP:20260405T153710 CREATED:20200616T144916Z LAST-MODIFIED:20200630T191338Z UID:10000072-1598454000-1598454000@liferaftgroup.org SUMMARY:Understanding the Link Between Pheo\, Para\, and GIST DESCRIPTION:REGISTERThis hour-long webinar presented by The Pheo Para Alliance will provide an opportunity for the community to ask questions live or submit them beforehand. \nThis Live Webinar Series\, made possible through an educational grant by Progenics\, gives patients and their families an opportunity to tune in and interact with experts on a variety of pheo para topics. \nThe information discussed during this webinar is for informational purposes only\, and does not take the place of medical advice from your doctor(s) who know your medical history and current situation. \nAbout the Presenter:\nDr. Jason Sicklick\nAssociate Professor of Surgery\, Division of Surgical Oncology @UC San Diego Health System\nJason Sicklick\, MD\, is a general surgeon and surgical oncologist who specializes in treating hepatobiliary diseases and sarcomas\, including gastrointestinal stromal tumors (GIST). He has a special interest in abdominal and retroperitoneal sarcomas\, primary liver tumors and colorectal and neuroendocrine cancers that have metastasized to the liver. Read full bio here. \n\n\nSee other webcasts by Dr. Sicklick here:\nRare GIST Subtypes\nUnderstanding the Concept of “Precision Oncology”\nUpdates on the Temozolomide Trial\nNew Insights into Gene Fusion\n\n\n\nModerated by:\n\n\nDebra Melikian\nPatient Advocate\nDebra was thrust into the world of GISTS and pheo para when her husband and son were diagnosed. She is a mother on a mission. She and Dr. Sicklick have a unique relationship that powers both of their missions forward to help all patients. \n\nYou can read more about Debra:\nPatient Advocate’s Story Unfolds in RARE Revolution Magazine URL:https://liferaftgroup.org/event/understanding-the-link-between-pheo-para-and-gist/ CATEGORIES:Education,Events,Webcast ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2020/06/pheo-para-webinar.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20201010T090000 DTEND;TZID=America/New_York:20201010T110000 DTSTAMP:20260405T153710 CREATED:20190913T141141Z LAST-MODIFIED:20200928T185340Z UID:10000043-1602320400-1602327600@liferaftgroup.org SUMMARY:GDOL Tampa 2020 - Virtual DESCRIPTION:Join the LRG for GDOL Tampa\, Saturday\, March 28\, 2020 at 9am. GDOL Tampa is an event for patients & caregivers to learn more about GIST\, find support\, & enhance knowledge to help navigate their cancer journey. Meet with other patients and caregivers and experts\, clinicians\, and researchers in the study and treatment of GIST. \nRegister AgendaWhat’s a GDOL?  A GDOL is a GIST Day of Learning\, a free one-day event to help you\, as patients and caregivers\, learn more about GIST\, find support\, and enhance your knowledge base to help you navigate your cancer journey. At a GDOL\, you will learn more about your disease from expert clinicians\, researchers\, and advocates and connect with other patients\, caregivers\, and family members who are also on this rare journey. You are not alone. \nThe LRG’s mission is simple: cure GIST and help those living with it until then. To do this\, we focus on three key areas: research\, patient support & education\, and advocacy. \nSee what a GDOL can offer you – visit this link to see presentations\, photos\, and posts about past GDOLs: \n\nView Past GDOLs \n\nFor questions or more information about GDOL\, Diana Nieves\, Senior Director\, Outreach & Engagement\, DNieves@liferaftgroup.org URL:https://liferaftgroup.org/event/gdol-tampa-2020/ CATEGORIES:Education,Events ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20201010T150000 DTEND;TZID=America/New_York:20201010T170000 DTSTAMP:20260405T153710 CREATED:20190917T151250Z LAST-MODIFIED:20200821T140652Z UID:10000044-1602342000-1602349200@liferaftgroup.org SUMMARY:GDOL Denver 2020 - Virtual DESCRIPTION:Join the LRG for Virtual GDOL Denver\, October 10 at 1pm ET. GDOL Denver is an event for patients & caregivers to learn more about GIST\, find support\, & enhance knowledge to help navigate their cancer journey. Meet with other patients and caregivers and experts\, clinicians\, and researchers in the study and treatment of GIST. \nRegister AgendaVirtual GDOL Denver Sponsors: \n \nWhat’s a GDOL?  A GDOL is a GIST Day of Learning\, a free one-day event to help you\, as patients and caregivers\, learn more about GIST\, find support\, and enhance your knowledge base to help you navigate your cancer journey. At a GDOL you will learn more about your disease from expert clinicians\, researchers\, and advocates and connect with other patients\, caregivers\, and family members who are also on this rare journey. You are not alone. \nThe LRG’s mission is simple: cure GIST and help those living with it until then. To do this\, we focus on three key areas: research\, patient support & education\, and advocacy. \nSee what a GDOL can offer you – visit this link to see presentations\, photos\, and posts about past GDOLs: \n\nView Past GDOLs \n\nFor questions or more information about GDOL\, Diana Nieves\, Senior Director\, Outreach & Engagement\, DNieves@liferaftgroup.org URL:https://liferaftgroup.org/event/gdol-denver-2020/ CATEGORIES:Education,Events ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2019/09/denver2.png ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20201020T120000 DTEND;TZID=America/New_York:20201020T120000 DTSTAMP:20260405T153710 CREATED:20200909T152729Z LAST-MODIFIED:20200916T162445Z UID:10000087-1603195200-1603195200@liferaftgroup.org SUMMARY:LRG Webcast: Genetics 101 DESCRIPTION:With the alphabet soup of terms and genes that cancer patients tend to hear during diagnosis\, it takes some time to really understand what these terms mean. \nIn her Genetics 101 webcast\, Dr. Raygada will unravel the DNA terms and seek to empower patients by helping them understand the genetic basis of their conditions so that they may decrease the risks associated with the mutations and tumors they carry. \nREGISTERAbout the presenter\nMargarita Raygada\, PhD\, Oncology Genetic Counselor \nDr. Raygada’s doctorate degree is in Medical Science from the Uniformed Services University of the Health Sciences/Naval Hospital\, Bethesda\, Maryland. Her Master’s degree is in Human Genetics and Genetic Counseling\, Georgetown University Hospital (GUH) in Washington\, D.C.\, with two post-doctoral fellowships: Molecular Biology at The Johns Hopkins Hospital in Baltimore\, and Cancer Genetics at GUH. Research Focus: Cancer genetics is my passion. I am interested in delineating the genetic changes in rare tumors and identifying associated phenotypes that may lead to common pathways and therefore improved outcomes for cancer patients. But most importantly I hope to empower patients by helping them understand the genetic basis of their conditions\, and by educating them on how they can use this information to manage their cancer so that they may decrease the risks associated with the mutations and tumors they carry. URL:https://liferaftgroup.org/event/lrg-webcast-genetics-101/ CATEGORIES:Education,Webcast ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2020/08/raygada-event.jpg ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20201026T120000 DTEND;TZID=America/New_York:20201026T120000 DTSTAMP:20260405T153710 CREATED:20201002T183013Z LAST-MODIFIED:20201022T161543Z UID:10000089-1603713600-1603713600@liferaftgroup.org SUMMARY:Women in Sarcoma: Case Presentations DESCRIPTION:Case Presentations\nOctober 26\, 12PM ET \nPlease join us for the second webcast of our Women in Sarcoma series. The Life Raft Group has developed the Women in Sarcoma program in recognition of the many women sarcoma specialists that engage with the sarcoma patient community and focus on educating and advocating on behalf of those living with sarcoma. \nThis panel features three women sarcoma experts presenting unique case studies that they have encountered in their practices. Panelists will interact with each other about these case studies\, and participants will gain meaningful insight into how these experts diagnose and treat sarcoma patients\, and how they collaborate with colleagues toward the goal of achieving positive outcomes for these challenging cases. \n\nIf you have questions about this panel or about registration\, please contact Sara Rothschild\, VP Program Services \n\nPlease join us for this interactive session with women leading the field of sarcoma!\n\nREGISTEROur Panel of Experts\n \n\nVaia Florou\, MD\nOncologist\nUniversity of Utah\nHuntsman Cancer Center\n \n\nCiara Kelly\, MBBCh BAO\nOncologist\nMemorial Sloan Kettering\nCancer Center\n \n\n\nSandra R. Brackert\, NP\nNurse Practitioner\nRonald Reagan UCLA\nMedical Center URL:https://liferaftgroup.org/event/women-in-sarcoma-case-presentations/ CATEGORIES:Education,Research,Webcast ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2020/10/Women-In-Sarcoma-2.jpg ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20210211T120000 DTEND;TZID=America/New_York:20210211T120000 DTSTAMP:20260405T153710 CREATED:20201103T133157Z LAST-MODIFIED:20210124T180346Z UID:10000093-1613044800-1613044800@liferaftgroup.org SUMMARY:LRG Webcast Series: hPPGL Syndrome - a Misnomer with Consequences DESCRIPTION:Dr. Annes will review the hPPGL Syndrome with particular focus on the underlying genetics basis and related tumor risks. He will review the benefits/limitations of genetic testing and pre-symptomatic screening\, including his personal experience directing Stanford’s Hereditary Neuroendocrine Neoplasia Clinic. Finally\, he will discuss opportunities for advancing hPPGL care and ongoing research. \nREGISTERPresenter:\nJustin Annes\, MD\, PhD\nAssociate Professor\, Stanford Department of Medicine \nDr. Annes is an Associate Professor in Stanford’s Department of Medicine and a Faculty Fellow in Stanford’s Chemistry\, Engineering & Medicine for Human Health Institute (ChEM-H). He obtained his BS from Haverford College (1996)\, MD PHD from New York University (1996) and trained in Internal Medicine\, Clinical Genetics and Chemical Biology at Brigham and Women’s Hospital / Harvard University (2011). Dr. Annes is director and founder of Stanford’s Hereditary Neuroendocrine Tumor Clinic (2012) which focuses on the longitudinal care of patients and families with inherited endocrine tumor syndromes\, primarily hPPGL\, MEN1 and MEN2. He participates in several neuroendocrine-focused patient advocacy / research foundations including The Pheo Para Alliance\, Neuroendocrine Tumor Research Foundation and the NIH Pediatric Wildtype GIST Clinic. His NIH-funded research program is positioned at the interface of endocrine pathophysiology\, synthetic chemistry and hereditary disease. The organizing principle of his research program is to harness the power of chemistry\, human tissue samples and animal disease models to deliver fundamental biologic insights and develop novel therapeutic leads for the treatment of endocrine disorders. URL:https://liferaftgroup.org/event/lrg-webcast-hppgl-syndrome/ CATEGORIES:Education,Events ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2020/11/annes1.jpg ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20210224T120000 DTEND;TZID=America/New_York:20210224T120000 DTSTAMP:20260405T153710 CREATED:20210203T201450Z LAST-MODIFIED:20210208T141853Z UID:10000132-1614168000-1614168000@liferaftgroup.org SUMMARY:Finding Biomarkers that Cause GIST DESCRIPTION:From Research to Clinical Application\nEvery GIST patient is unique based on their biology and what treatment to which they will potentially respond. \nDr. Lori Rink\, Fox Chase Cancer Center\, and Dr. Inga-Marie Schaefer\, Brigham & Women’s Hospital\, are two researchers who are making discoveries in their respective laboratories to uncover the unique biomarkers in GIST that will be future drug targets. \nDr. Margaret von Mehren\, Fox Chase Cancer Center\, will moderate the webinar and help the audience understand why these important discoveries in the lab are important to clinicians. This concept of translational medicine is an important field as it helps bring advances into the clinic that can directly impact the survival of GIST patients. \nREGISTERAbout the Presenters\nLori Rink\, PhD\nAssistant Professor\, Molecular Therapeutics\, Fox Chase Cancer Center. Dr. Rink studied at the Biology at the University of Scranton  and  received her doctorate in  for a Doctorate in Molecular Biology from Temple University followed by a post-doctoral fellowship at Fox Chase Cancer Center.  She is an Assistant Professor in the Molecular Therapeutic program. Along with Dr. von Mehren\, two graduate students\, and a post-doctoral fellow\, Dr. Rink’s lab is dedicated to investigating why some GIST patients eventually develop a resistance to Gleevec\, discovering combinations of drugs that will attack GIST\, and identifying markers that could predict how patients will respond to Gleevec. \nInga-Marie Schaefer\, MD\nAssociate Pathologist\, Brigham & Women’s Hospital\, Instructor in Pathology\, Harvard Medical School\nDr. Schaefer is an instructor at the Department of Pathology at Brigham and Women’s Hospital\, Harvard Medical School in Boston\, MA. After graduating with an M.D. degree from Georg-August-University Goettingen in Germany\, she trained in Anatomic Pathology in Germany and at Brigham and Women’s Hospital. Her post-doctoral research in Dr. Jonathan Fletcher’s translational sarcoma laboratory focused on characterizing mechanisms of genomic progression in GIST/sarcoma\, combining diagnostics\, biology\, and genetics. Dr. Schaefer is now evaluating mechanisms of incremental cell cycle dysregulation in GIST progression. \n\nAbout the Moderator\nMargaret von Mehren\, MD\nAssociate Professor\, Director of Sarcoma\, Fox Chase Cancer Center\nDr. von Mehren matriculated at Georgetown University in Washington\, DC\, where she majored in Biology and minored in Philosophy\, and graduating in 1985 with honors. She received her medical degree from Albany Medical College in Albany\, NY. Dr. von Mehren completed an internship and residency at New York University Medical Center in New York before moving to Philadelphia for her fellowship in medical oncology at the Fox Chase Cancer Center and Temple University. After completing fellowship\, Dr. von Mehren joined the faculty of the department of Medical Oncology at Fox Chase Cancer Center where she remains today as and Associate Professor and the director of the Sarcoma program. She is a member of the NCCN panel for soft tissue sarcomas and GIST task force\, as well as the Intergroup GIST Task force. She also volunteers at the NIH Pediatric Wildtype GIST clinic biannually. URL:https://liferaftgroup.org/event/finding-biomarkers-that-cause-gist/ CATEGORIES:Education,Events ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20210512T120000 DTEND;TZID=America/New_York:20210512T130000 DTSTAMP:20260405T153710 CREATED:20210420T151025Z LAST-MODIFIED:20210420T151025Z UID:10000138-1620820800-1620824400@liferaftgroup.org SUMMARY:Management of Metastatic GIST DESCRIPTION:What to Expect When a Tumor Has Spread\nWhile surgery is the backbone of treatment for localized GIST\, in the context of metastatic disease\, treatment generally relies on medical therapy with tyrosine kinase inhibitors such as imatinib. Surgery is used predominantly to optimize their efficacy. This webinar will review options for therapy when patients are diagnosed with metastatic disease at the time of their initial diagnosis\, during observation after initial resection of a GIST\, and when metastatic GIST is resistant to imatinib. We will discuss the role that mutational status and drug toxicities may play in determining the optimal therapy for individual patients. \nREGISTERAbout the Presenter:\nDr. Aimee Crago\, Surgical Oncologist\nMemorial Sloan Kettering Cancer Center \nDr. Crago earned her PhD at the University of Cambridge as a British Marshall Scholar and her MD in the Harvard-MIT Division of Health Sciences and Technology before training in surgery and surgical oncology at Georgetown University Medical Center and Memorial Sloan Kettering Cancer Center. She joined the MSKCC faculty in 2010 as member of the Gastric and Mixed Tumor Service and the Sarcoma Disease Management Team\, and now serves as Associate Attending Surgeon. She is an active participant in the care of patients with soft tissue sarcoma\, GIST and desmoid-type fibromatosis and coordinates a translational science research program that focuses on understanding the molecular drivers of sarcomas and how genomic aberrations in these tumors can inform patient care. Her work has been funded by the National Cancer Institute\, the Food and Drug Administration\, the American Society of Clinical Oncology\, the American College of Surgeons\, and the American Cancer Society among others. Dr. Crago is committed to educating others regarding sarcoma biology and patient care; as such\, she trains clinical and research fellows at Memorial Sloan Kettering\, is a Gerstner Sloan Kettering Graduate School Special Contributing Faculty Member\, and works as chair of the Society for Surgical Oncology Sarcoma Disease Site Working Group.    URL:https://liferaftgroup.org/event/management-of-metastatic-gist/ CATEGORIES:Education,Events ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/Los_Angeles:20210626T100000 DTEND;TZID=America/Los_Angeles:20210626T120000 DTSTAMP:20260405T153710 CREATED:20210601T184215Z LAST-MODIFIED:20210603T172410Z UID:10000141-1624701600-1624708800@liferaftgroup.org SUMMARY:GDOL California 2021 - Virtual DESCRIPTION:Join us virtually for GDOL California on June 26th at 10am Pacific Time. \nAgenda:\nOverview of GIST – Charles Forscher\, M.D.\, Cedars-Sinai\nLocal Control For Primary and Disseminated GIST – Brian Kadera\, M.D.\, UCLA\nNovel Therapies and ctDNA in GIST – Mark Agulnik\, M.D.\, City of Hope\nUtilizing Immunotherapy To Treat GIST – Arun Singh\, M.D.\, UCLA\nSDH and GIST Research on Non-Cancer Cells – Jason Sicklick\, M.D.\, UCSD\nQ&A – all presenters \nREGISTERVirtual GDOL California Sponsors: \n \nWhat’s a GDOL?  A GDOL is a GIST Day of Learning\, a free one-day event to help you\, as patients and caregivers\, learn more about GIST\, find support\, and enhance your knowledge base to help you navigate your cancer journey. At a GDOL you will learn more about your disease from expert clinicians\, researchers\, and advocates and connect with other patients\, caregivers\, and family members who are also on this rare journey. You are not alone. \nThe mission of the Life Raft Group is to enhance survival and quality of life for people living with GIST through patient-powered research\, education and empowerment\, and global advocacy efforts. The LRG vision is to champion patient-powered science and drastically increase long-term survivorship for all cancer patients. To accomplish this\, we rely on four key pillars; \n\nLeverage the patient perspective to drive innovative solutions in cancer research\nEducate and empower patients to take a larger role in their care\nAccelerate research outcomes through collaborative efforts\nIncrease access to effective treatments worldwide\n\nSee what a GDOL can offer you – visit this link to see presentations\, photos\, and posts about past GDOLs: \n\nView Past GDOLs \n\nFor questions or more information about GDOL\, Diana Nieves\, Senior Director\, Outreach & Engagement\, DNieves@liferaftgroup.org URL:https://liferaftgroup.org/event/gdol-california-2021-virtual/ CATEGORIES:Education,Events ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2021/06/California.jpg ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20210713T120000 DTEND;TZID=America/New_York:20210713T120000 DTSTAMP:20260405T153710 CREATED:20210601T193918Z LAST-MODIFIED:20210601T200108Z UID:10000142-1626177600-1626177600@liferaftgroup.org SUMMARY:GIST Awareness Day - Live Q&A with SDH Experts DESCRIPTION:Join us this GIST Awareness Day\, July 13th\, as our esteemed panel of GIST experts (from our Pediatric & SDH-Deficient GIST Consortium) answers your questions about SDH-deficient GIST. You can email your prepared questions to Sara Rothschild at srothschild@liferaftgroup.org or type them into the chat feature the day of the webinar. We will get to as many questions as possible during the event. \nREGISTER URL:https://liferaftgroup.org/event/gist-awareness-day-live-qa-with-sdh-experts/ CATEGORIES:Education,Events ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/06/gist-awareness-day-panel-2021.png ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20210805T080000 DTEND;TZID=America/New_York:20210805T080000 DTSTAMP:20260405T153710 CREATED:20210714T140522Z LAST-MODIFIED:20210714T140522Z UID:10000158-1628150400-1628150400@liferaftgroup.org SUMMARY:New Member Orientation - Virtual DESCRIPTION:This meeting will take place at 8am & 12pm ET every 1st Thursday.\nAre you a new LRG member and looking for guidance on all the things the Life Raft Group has to offer? Join us for a virtual orientation to hear from staff about our services and have the opportunity to ask questions and meet other new members. \nSign Up For Meeting Date URL:https://liferaftgroup.org/event/new-member-orientation-virtual/2021-08-05/ CATEGORIES:Education,Events ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2021/07/orientation-meeting-2021.jpg ORGANIZER;CN="The Life Raft Group":MAILTO:liferaft@liferaftgroup.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20210805T120000 DTEND;TZID=America/New_York:20210805T120000 DTSTAMP:20260405T153710 CREATED:20210714T140637Z LAST-MODIFIED:20210714T140637Z UID:10000163-1628164800-1628164800@liferaftgroup.org SUMMARY:New Member Orientation - Virtual DESCRIPTION:This meeting will take place at 8am & 12pm ET every 1st Thursday.\nAre you a new LRG member and looking for guidance on all the things the Life Raft Group has to offer? Join us for a virtual orientation to hear from staff about our services and have the opportunity to ask questions and meet other new members. \nSign Up For Meeting Date URL:https://liferaftgroup.org/event/new-member-orientation-virtual-2/2021-08-05/ CATEGORIES:Education,Events ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2021/07/orientation-meeting-2021.jpg ORGANIZER;CN="The Life Raft Group":MAILTO:liferaft@liferaftgroup.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20210812T120000 DTEND;TZID=America/New_York:20210812T120000 DTSTAMP:20260405T153710 CREATED:20210720T175722Z LAST-MODIFIED:20210721T142417Z UID:10000168-1628769600-1628769600@liferaftgroup.org SUMMARY:What GISTers Need to Know About Clinical Trials DESCRIPTION:Clinical Trials 101\, a GISTory of Clinical Trials\, & How to Talk to Your Medical Team about Clinical Trials\nClinical trials are an essential tool of modern medicine. We have heard a lot about clinical trials of COVID-19 vaccines and therapies during the pandemic\, and most GISTers are aware that clinical trials established the effectiveness of drugs like imatinib. However\, beyond the headlines there’s a lot to consider when evaluating a clinical trial – especially if you are considering enrolling in one. Who designed the trial? Who approved it? Who is paying for it? Who decides which patients will be enrolled? How will the results be evaluated? And what’s the relationship between clinical trials and “real world evidence”? \nPlease join LRG Science Team members Jim Hughes and David Josephy for an informative presentation on the topic of clinical trials. \nREGISTERAbout the Presenters:\n\nDr. David Josephy \n\nDavid Josephy\, PhD.\nPresident of Life Raft Group Canada\nDavid Josephy was a Professor of Molecular and Cellular Biology at the University of Guelph in Ontario\, Canada\, until his recent retirement. He authored a textbook titled\, “Molecular Toxicology”\, and has written more than 100 scientific publications in biochemistry\, toxicology\, and cancer research.\n\nJim Hughes \nJim Hughes\nLife Raft Group Clinical Trials Coordinator\nJim Hughes attended Kenyon College and Loyola University\, Chicago where he earned a BA in Philosophy. Between schools Jim served three years as an enlisted man and officer in the United States Army in the US and Vietnam. Jim retired from the telecommunications industry after a 35-year career including positions in engineering\, long-range planning\, and marketing. Jim and Margi are the parents of two children Nancy and Jamie. Nancy Hughes Welsh (1967-2005) was an early member of The Life Raft Group (2002). Nancy was diagnosed with leiomyosarcoma in 1991 at age 23. After ten years of surgery and chemotherapy Nancy was re-diagnosed with GIST in 2001. Nancy participated in the Phase Three imatinib trial in 2001 and the Phase Two sunitinib trial in 2003. Jim and Margi continue to facilitate the LRG Chicago chapter meetings. Jim serves on the Board of the LRG and is a member of the LRG Science Team. URL:https://liferaftgroup.org/event/what-gisters-need-to-know-about-clinical-trials/ CATEGORIES:Education,Events ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20210901T130000 DTEND;TZID=America/New_York:20210901T140000 DTSTAMP:20260405T153710 CREATED:20210625T150515Z LAST-MODIFIED:20210625T150515Z UID:10000155-1630501200-1630504800@liferaftgroup.org SUMMARY:Virtual Caregiver Support Group DESCRIPTION:Bi-Weekly Support Group for GIST Caregivers.\nHeld first & third Wednesdays of the month\nAs we continue to navigate this uncertain time together\, we want to offer you a little extra support. LRG has a twice monthly support group for the caregivers facilitated by Marlene Nei\, GIST Caregiver. To continue social distancing and connecting with caregivers across the United States\, we will use an electronic platform to gather as a group. We will talk about all the feelings you might be experiencing\, both in relation to GIST\, and COVID-19. \nWe will share our stories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling because of this unprecedented time. The group will be a safe space not only to feel supported by your fellow caregivers\, but also a place to share our own coping mechanisms to get us through this stressful time. All information shared will be kept confidential. Contact Diana Nieves at dnieves@liferaftgroup.org for more information. \n\nPlease email Diana Nieves at dnieves@liferaftgroup.org to join this meeting.\n\nAbout the Group Leader:\nMarlene Nei\, GIST Caregiver\nAs an active member of the Life Raft Group\, Marlene advocates for the needs of the caregiver community because she feels they are an underrepresented group. It is her mission to advocate for the entire GIST community making sure they are equipped with the appropriate resources on their GIST journey. URL:https://liferaftgroup.org/event/virtual-caregiver-support-group-14/ CATEGORIES:Education,Support Group ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2021/06/Caregiver-Support-Group.jpg ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org END:VEVENT END:VCALENDAR