BEGIN:VCALENDAR VERSION:2.0 PRODID:-//The Life Raft Group - ECPv6.15.18//NONSGML v1.0//EN CALSCALE:GREGORIAN METHOD:PUBLISH X-WR-CALNAME:The Life Raft Group X-ORIGINAL-URL:https://liferaftgroup.org X-WR-CALDESC:Events for The Life Raft Group REFRESH-INTERVAL;VALUE=DURATION:PT1H X-Robots-Tag:noindex X-PUBLISHED-TTL:PT1H BEGIN:VTIMEZONE TZID:America/Mexico_City BEGIN:DAYLIGHT TZOFFSETFROM:-0600 TZOFFSETTO:-0500 TZNAME:CDT DTSTART:20190407T080000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0500 TZOFFSETTO:-0600 TZNAME:CST DTSTART:20191027T070000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:-0600 TZOFFSETTO:-0500 TZNAME:CDT DTSTART:20200405T080000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0500 TZOFFSETTO:-0600 TZNAME:CST DTSTART:20201025T070000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:-0600 TZOFFSETTO:-0500 TZNAME:CDT DTSTART:20210404T080000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0500 TZOFFSETTO:-0600 TZNAME:CST DTSTART:20211031T070000 END:STANDARD END:VTIMEZONE BEGIN:VTIMEZONE TZID:America/New_York BEGIN:DAYLIGHT TZOFFSETFROM:-0500 TZOFFSETTO:-0400 TZNAME:EDT DTSTART:20190310T070000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0400 TZOFFSETTO:-0500 TZNAME:EST DTSTART:20191103T060000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:-0500 TZOFFSETTO:-0400 TZNAME:EDT DTSTART:20200308T070000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0400 TZOFFSETTO:-0500 TZNAME:EST DTSTART:20201101T060000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:-0500 TZOFFSETTO:-0400 TZNAME:EDT DTSTART:20210314T070000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0400 TZOFFSETTO:-0500 TZNAME:EST DTSTART:20211107T060000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:-0500 TZOFFSETTO:-0400 TZNAME:EDT DTSTART:20220313T070000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0400 TZOFFSETTO:-0500 TZNAME:EST DTSTART:20221106T060000 END:STANDARD END:VTIMEZONE BEGIN:VTIMEZONE TZID:America/Los_Angeles BEGIN:DAYLIGHT TZOFFSETFROM:-0800 TZOFFSETTO:-0700 TZNAME:PDT DTSTART:20200308T100000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0700 TZOFFSETTO:-0800 TZNAME:PST DTSTART:20201101T090000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:-0800 TZOFFSETTO:-0700 TZNAME:PDT DTSTART:20210314T100000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0700 TZOFFSETTO:-0800 TZNAME:PST DTSTART:20211107T090000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:-0800 TZOFFSETTO:-0700 TZNAME:PDT DTSTART:20220313T100000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0700 TZOFFSETTO:-0800 TZNAME:PST DTSTART:20221106T090000 END:STANDARD END:VTIMEZONE BEGIN:VTIMEZONE TZID:America/Phoenix BEGIN:STANDARD TZOFFSETFROM:-0700 TZOFFSETTO:-0700 TZNAME:MST DTSTART:20210101T000000 END:STANDARD END:VTIMEZONE BEGIN:VEVENT DTSTART;TZID=America/Mexico_City:20200611T190000 DTEND;TZID=America/Mexico_City:20200611T190000 DTSTAMP:20260406T035503 CREATED:20200609T182644Z LAST-MODIFIED:20200610T133936Z UID:10000070-1591902000-1591902000@liferaftgroup.org SUMMARY:¿Eres paciente con GIST de habla hispana? (Reunión Virtual) DESCRIPTION:Por favor únase a nosotros para esta Reunión Virtual.\nAlojado por Fundacíon GIST México \nAprendiendo más sobre GIST y las nuevas terapias aprobadas. Jueves 11 de junio a las 1900 hrs tiempo Ciudad de México. (8pm New York) \nPresentado por Dr. David Heredia\, Oncólogo médico Instituto Nacional de Cancerología. \nÚnete a la reunión: \nUnirse a reunión de Microsoft Teams \nMás información sobre Teams | Opciones de reunión   URL:https://liferaftgroup.org/event/eres-paciente-con-gist-de-habla-hispana-reunion-virtual/ CATEGORIES:Education,Events,International ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2020/06/Flyer-Reunión-Virtual-de-pacientes-v2-1.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20200616T120000 DTEND;TZID=America/New_York:20200616T130000 DTSTAMP:20260406T035503 CREATED:20200512T205723Z LAST-MODIFIED:20200515T142935Z UID:10000066-1592308800-1592312400@liferaftgroup.org SUMMARY:LRG Webcast Series: GIST: How to Understand your Pathology Report DESCRIPTION:In this webinar\, we will be discussing how to interpret your pathology report. We will cover interpretation of all parts of a pathology report\, beginning with understanding the final diagnosis and diagnostic comment. We will then review the results and significance of performed ancillary testing\, including immunohistochemistry\, prognostic biomarker testing\, and molecular testing. We will end by discussing how the aforementioned pathology report data affects clinical surgical and therapeutic decision-making. \nREGISTERAbout the Presenters:\nKelsey McHugh\, M.D.\nGastrointestinal\, Hepatic\, and Pancreatobiliary Pathology Fellow\nRobert J. Tomsich Pathology & Laboratory Medicine Institute\nCleveland Clinic \nKelsey McHugh\, MD is a board certified anatomic and clinical pathologist\, with cytopathology subspecialty certification\, who is currently completing gastrointestinal\, hepatic\, and pancreatobiliary pathology subspecialty training. She anticipates graduating from the Cleveland Clinic Gastrointestinal\, Hepatic\, and Pancreatobiliary Pathology Fellowship in June 2020\, after which she will remain at the Cleveland Clinic as a staff pathologist beginning July 2020. URL:https://liferaftgroup.org/event/understand-your-pathology-report/ CATEGORIES:Education,Webcast ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20200710T140000 DTEND;TZID=America/New_York:20200710T140000 DTSTAMP:20260406T035503 CREATED:20200612T135558Z LAST-MODIFIED:20200710T151533Z UID:10000071-1594389600-1594389600@liferaftgroup.org SUMMARY:Virtual Life Fest 2020 DESCRIPTION:Virtual Life Fest 2020 – July 10th – July 13th\n2020 brought a global health crisis that has challenged GIST patients. We had planned this year to be in New Orleans to share valuable information about GIST Research\, to enjoy fellowship with each other\, and yes\, to enjoy the wonderful food and music. \nEven though we can’t be together physically for our biennial Life Fest celebration and we won’t be together for GIST Awareness Day\, we can unite and spread a message of hope and positive messages while raising GIST awareness across the globe. Thanks to the generosity of our sponsors\, we still have a wonderful virtual weekend planned\, with some of the same elements Life Fest always provides. \nWith the latest information being shared in both our traditional GIST 101 presentation with Dr. David Josephy\, and through several panels featuring top GIST specialists and researchers\, a program targeted to the SDH community as well as fun events including a cooking demonstration\, Virtual Life Fest will prove that even with the restrictions on gathering\, you cannot keep the GIST community from sharing their strength\, hope and experiences. \nRegisterOur theme for Virtual Life Fest\, and for GIST Awareness Day this year is #GISTHope.\nThere are many ways for you to share this hopeful message: \n\nParticipate in our Virtual Life Fest Events.\nJoin us in our Virtual Walk. Start a fundraising page to invite family and friends to sponsor you in your efforts to raise funds for GIST Research.\nVisit our LRG store to purchase items such as our #GISTHope Masks to wear on your walk.\nMake a donation.\nGo to our GIST Awareness Day (GAD) page to see how to raise awareness\, including our creative #GISTHope rock painting project\nSend your stories\, photos and messages of hope to Mary Garland\, Director of Communications: mgarland@liferaftgroup.org\n\nAll times are Eastern Daylight Time \n\n\n\n\n Friday\, July 10th\n\n\n 2:00pm GIST 101 Presented by David Josephy (pre-recorded video)\n\n\n 4pmGIST ART Launch\n\n\n Saturday\, July 11th\n\n\n 12:00pm GIST Research Panel: Join GIST experts as they provide updates and answer questions on GIST research and new GIST therapies.\n\nPresenters: Roman Groisberg\, MD\, Rutgers Cancer Institute of New Jersey; Michael Heinrich\, MD\, OHSU Knight Cancer Institute; Jason Sicklick\, MD\, Moores Cancer Center\, UC of San Diego\n\n\n 2:00pm GIST Oncologist Panel: Our oncology and surgical GIST experts will share the latest trends\, insights and surgical options\, and answer questions. \n\nPresenters: Gina D’Amato\, MD\, Sylvester Comprehensive Cancer Center\, U of M; Arun Singh\, MD\, Ronald Reagan UCLA Medical Center; Jonathan Trent\, MD\, PhD\, Sylvester Comprehensive Cancer Center\, U of M; Breelyn Wilky\, MD\, UCHealth Cancer Center\, Anschutz Medical Campus\n\n\n 4:00pm Cooking Demonstration (pre-recorded video) and GIST Cookbook Launch\n\n\n Sunday\, July 12th\n\n\n 12:00pm Virtual Walk Launch (pre-recorded videos)\n\n\n Monday\, July 13th\n\n\n 9:00am - 5:00pmGAD and #GISTHope Messages\n\n\n 12:00pm EDTQ&A with SDH Panel of Experts\nChristopher B. Weldon\, MD\, PhD\nBoston Children’s Hospital\n Christopher Weldon\, MD\, PhD is Assistant in Surgery\, Department of Surgery; Director\, Pediatric Surgery Critical Care Fellowship and Assistant Professor of Surgery\, Boston Children’s Hospital\, Harvard Medical School. He is Board Certified in Critical Care\, General Surgery\, and Pediatric Surgery.\n\nLee Helman\, MD\nChildren’s Hospital Los Angeles\n Dr. Helman is a Professor of Pediatrics and Medicine\, Keck School of Medicine\, USC\, Head\, Basic and Translational Research\, Children’s Center for Cancer and Blood Diseases. His laboratory work focuses on the biology and treatment of rhabdomyosarcoma\, Ewing’s sarcoma\, osteosarcoma\, and pediatric GIST tumors. Major areas of research include the pathophysiologic consequences of IGF signaling\, identification of the molecular/biochemical determinants of the biology of sarcomas\, and the application of functional genomics to identify new treatment targets.\n\nJonathan Trent\, MD\nSylvester Comprehensive Cancer Center\n Dr. Trent’s interests are in the clinical and translational research of sarcomas\, direct care of sarcoma patients\, and education about sarcoma. The major efforts of Dr. Trent’s research focus on understanding the mechanisms of action and resistance of imatinib in GIST and other sarcomas while striving toward improved therapeutic options.\n\nAndrew Rosenberg\, MD\nSylvester Comprehensive Cancer Center\n Andrew Eric Rosenberg\, MD is the Vice Chair\, Director of Bone and Soft Tissue Pathology at the Sylvester Comprehensive Cancer Center in the University of Miami.\n\nJason Sicklick\, MD\nMoores Cancer Center\n Dr. Jason Sicklick is an NIH-funded investigator and Associate Professor of Surgery at the University of California San Diego Moores Cancer Center. He is a board-certified general surgeon and surgical oncologist specializing in the treatment of hepatobiliary diseases and sarcomas\, including gastrointestinal stromal tumors (GIST). \n\nRuth Casey\, PhD\nCambridge University Hospitals\, UK\n Dr Dr Casey has a specialist clinical interest in hereditary endocrine neoplasia and endocrine cancer. Her research has focused mainly on the role of succinate dehydrogenase gene mutations in tumorigenesis and has a strong translational focus. Her interest in succinate dehydrogenase deficient tumours has led to her collaboration with PAWS GIST. \n\nEyal Gottlieb\, MSc\,PhD\nTechnicon – Israel Institute of Technology\nDr. Gottlieb is a Professor and Director of the Cancer Metabolomics Lab at the Technion-Israel Institute of Technology. He is an internationally renowned expert in the field of metabolomics – measuring components of metabolism in cells under different conditions.\n\n\nThere will also be other special guest speakers.\n\n\n\n\nDownload SDH Panel Experts Flyer \n \nSponsors URL:https://liferaftgroup.org/event/virtual-life-fest/ CATEGORIES:Education,Events,Fundraising ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20200815T130000 DTEND;TZID=America/New_York:20200815T150000 DTSTAMP:20260406T035503 CREATED:20200727T181233Z LAST-MODIFIED:20200727T182549Z UID:10000082-1597496400-1597503600@liferaftgroup.org SUMMARY:GIST LEARN Online DESCRIPTION:GIST Sarcoma Life Raft Group Canada is pleased to invite you to register for our first online event. Our “GIST LEARN Online” webinar will use Zoom video and audio conferencing to provide education and support for people living with GIST. \nGIST LEARN Online events are open to GIST patients\, caregivers\, family members\, friends\, healthcare providers\, and anyone who wishes to learn more about GIST. \nLife Raft Group Canada has been hosting in-person GIST patient / caregiver meetings in cities all across Canada for the past twelve years. In 2020\, we hope that you will join us online. \nRegister \nKeynote speaker:\nDavid Josephy\, PhD\nProfessor of Molecular and Cellular Biology\nPresident\, GIST Sarcoma Life Raft Group Canada \nThe latest event details can be found at the event registration link above\, but please don’t hesitate to contact Life Raft Group Canada by email or phone if there is anything that you would like to discuss. \nSponsors: URL:https://liferaftgroup.org/event/gist-learn-online/ CATEGORIES:Education,International ORGANIZER;CN="Malcolm Sutherland%2C GIST Sarcoma Life Raft Group Canada":MAILTO:malcolm.sutherland@liferaftgroup.ca END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20200826T150000 DTEND;TZID=America/New_York:20200826T150000 DTSTAMP:20260406T035503 CREATED:20200616T144916Z LAST-MODIFIED:20200630T191338Z UID:10000072-1598454000-1598454000@liferaftgroup.org SUMMARY:Understanding the Link Between Pheo\, Para\, and GIST DESCRIPTION:REGISTERThis hour-long webinar presented by The Pheo Para Alliance will provide an opportunity for the community to ask questions live or submit them beforehand. \nThis Live Webinar Series\, made possible through an educational grant by Progenics\, gives patients and their families an opportunity to tune in and interact with experts on a variety of pheo para topics. \nThe information discussed during this webinar is for informational purposes only\, and does not take the place of medical advice from your doctor(s) who know your medical history and current situation. \nAbout the Presenter:\nDr. Jason Sicklick\nAssociate Professor of Surgery\, Division of Surgical Oncology @UC San Diego Health System\nJason Sicklick\, MD\, is a general surgeon and surgical oncologist who specializes in treating hepatobiliary diseases and sarcomas\, including gastrointestinal stromal tumors (GIST). He has a special interest in abdominal and retroperitoneal sarcomas\, primary liver tumors and colorectal and neuroendocrine cancers that have metastasized to the liver. Read full bio here. \n\n\nSee other webcasts by Dr. Sicklick here:\nRare GIST Subtypes\nUnderstanding the Concept of “Precision Oncology”\nUpdates on the Temozolomide Trial\nNew Insights into Gene Fusion\n\n\n\nModerated by:\n\n\nDebra Melikian\nPatient Advocate\nDebra was thrust into the world of GISTS and pheo para when her husband and son were diagnosed. She is a mother on a mission. She and Dr. Sicklick have a unique relationship that powers both of their missions forward to help all patients. \n\nYou can read more about Debra:\nPatient Advocate’s Story Unfolds in RARE Revolution Magazine URL:https://liferaftgroup.org/event/understanding-the-link-between-pheo-para-and-gist/ CATEGORIES:Education,Events,Webcast ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2020/06/pheo-para-webinar.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20201010T090000 DTEND;TZID=America/New_York:20201010T110000 DTSTAMP:20260406T035503 CREATED:20190913T141141Z LAST-MODIFIED:20200928T185340Z UID:10000043-1602320400-1602327600@liferaftgroup.org SUMMARY:GDOL Tampa 2020 - Virtual DESCRIPTION:Join the LRG for GDOL Tampa\, Saturday\, March 28\, 2020 at 9am. GDOL Tampa is an event for patients & caregivers to learn more about GIST\, find support\, & enhance knowledge to help navigate their cancer journey. Meet with other patients and caregivers and experts\, clinicians\, and researchers in the study and treatment of GIST. \nRegister AgendaWhat’s a GDOL?  A GDOL is a GIST Day of Learning\, a free one-day event to help you\, as patients and caregivers\, learn more about GIST\, find support\, and enhance your knowledge base to help you navigate your cancer journey. At a GDOL\, you will learn more about your disease from expert clinicians\, researchers\, and advocates and connect with other patients\, caregivers\, and family members who are also on this rare journey. You are not alone. \nThe LRG’s mission is simple: cure GIST and help those living with it until then. To do this\, we focus on three key areas: research\, patient support & education\, and advocacy. \nSee what a GDOL can offer you – visit this link to see presentations\, photos\, and posts about past GDOLs: \n\nView Past GDOLs \n\nFor questions or more information about GDOL\, Diana Nieves\, Senior Director\, Outreach & Engagement\, DNieves@liferaftgroup.org URL:https://liferaftgroup.org/event/gdol-tampa-2020/ CATEGORIES:Education,Events ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20201010T150000 DTEND;TZID=America/New_York:20201010T170000 DTSTAMP:20260406T035503 CREATED:20190917T151250Z LAST-MODIFIED:20200821T140652Z UID:10000044-1602342000-1602349200@liferaftgroup.org SUMMARY:GDOL Denver 2020 - Virtual DESCRIPTION:Join the LRG for Virtual GDOL Denver\, October 10 at 1pm ET. GDOL Denver is an event for patients & caregivers to learn more about GIST\, find support\, & enhance knowledge to help navigate their cancer journey. Meet with other patients and caregivers and experts\, clinicians\, and researchers in the study and treatment of GIST. \nRegister AgendaVirtual GDOL Denver Sponsors: \n \nWhat’s a GDOL?  A GDOL is a GIST Day of Learning\, a free one-day event to help you\, as patients and caregivers\, learn more about GIST\, find support\, and enhance your knowledge base to help you navigate your cancer journey. At a GDOL you will learn more about your disease from expert clinicians\, researchers\, and advocates and connect with other patients\, caregivers\, and family members who are also on this rare journey. You are not alone. \nThe LRG’s mission is simple: cure GIST and help those living with it until then. To do this\, we focus on three key areas: research\, patient support & education\, and advocacy. \nSee what a GDOL can offer you – visit this link to see presentations\, photos\, and posts about past GDOLs: \n\nView Past GDOLs \n\nFor questions or more information about GDOL\, Diana Nieves\, Senior Director\, Outreach & Engagement\, DNieves@liferaftgroup.org URL:https://liferaftgroup.org/event/gdol-denver-2020/ CATEGORIES:Education,Events ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2019/09/denver2.png ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20201020T120000 DTEND;TZID=America/New_York:20201020T120000 DTSTAMP:20260406T035503 CREATED:20200909T152729Z LAST-MODIFIED:20200916T162445Z UID:10000087-1603195200-1603195200@liferaftgroup.org SUMMARY:LRG Webcast: Genetics 101 DESCRIPTION:With the alphabet soup of terms and genes that cancer patients tend to hear during diagnosis\, it takes some time to really understand what these terms mean. \nIn her Genetics 101 webcast\, Dr. Raygada will unravel the DNA terms and seek to empower patients by helping them understand the genetic basis of their conditions so that they may decrease the risks associated with the mutations and tumors they carry. \nREGISTERAbout the presenter\nMargarita Raygada\, PhD\, Oncology Genetic Counselor \nDr. Raygada’s doctorate degree is in Medical Science from the Uniformed Services University of the Health Sciences/Naval Hospital\, Bethesda\, Maryland. Her Master’s degree is in Human Genetics and Genetic Counseling\, Georgetown University Hospital (GUH) in Washington\, D.C.\, with two post-doctoral fellowships: Molecular Biology at The Johns Hopkins Hospital in Baltimore\, and Cancer Genetics at GUH. Research Focus: Cancer genetics is my passion. I am interested in delineating the genetic changes in rare tumors and identifying associated phenotypes that may lead to common pathways and therefore improved outcomes for cancer patients. But most importantly I hope to empower patients by helping them understand the genetic basis of their conditions\, and by educating them on how they can use this information to manage their cancer so that they may decrease the risks associated with the mutations and tumors they carry. URL:https://liferaftgroup.org/event/lrg-webcast-genetics-101/ CATEGORIES:Education,Webcast ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2020/08/raygada-event.jpg ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20201026T120000 DTEND;TZID=America/New_York:20201026T120000 DTSTAMP:20260406T035503 CREATED:20201002T183013Z LAST-MODIFIED:20201022T161543Z UID:10000089-1603713600-1603713600@liferaftgroup.org SUMMARY:Women in Sarcoma: Case Presentations DESCRIPTION:Case Presentations\nOctober 26\, 12PM ET \nPlease join us for the second webcast of our Women in Sarcoma series. The Life Raft Group has developed the Women in Sarcoma program in recognition of the many women sarcoma specialists that engage with the sarcoma patient community and focus on educating and advocating on behalf of those living with sarcoma. \nThis panel features three women sarcoma experts presenting unique case studies that they have encountered in their practices. Panelists will interact with each other about these case studies\, and participants will gain meaningful insight into how these experts diagnose and treat sarcoma patients\, and how they collaborate with colleagues toward the goal of achieving positive outcomes for these challenging cases. \n\nIf you have questions about this panel or about registration\, please contact Sara Rothschild\, VP Program Services \n\nPlease join us for this interactive session with women leading the field of sarcoma!\n\nREGISTEROur Panel of Experts\n \n\nVaia Florou\, MD\nOncologist\nUniversity of Utah\nHuntsman Cancer Center\n \n\nCiara Kelly\, MBBCh BAO\nOncologist\nMemorial Sloan Kettering\nCancer Center\n \n\n\nSandra R. Brackert\, NP\nNurse Practitioner\nRonald Reagan UCLA\nMedical Center URL:https://liferaftgroup.org/event/women-in-sarcoma-case-presentations/ CATEGORIES:Education,Research,Webcast ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2020/10/Women-In-Sarcoma-2.jpg ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20210211T120000 DTEND;TZID=America/New_York:20210211T120000 DTSTAMP:20260406T035504 CREATED:20201103T133157Z LAST-MODIFIED:20210124T180346Z UID:10000093-1613044800-1613044800@liferaftgroup.org SUMMARY:LRG Webcast Series: hPPGL Syndrome - a Misnomer with Consequences DESCRIPTION:Dr. Annes will review the hPPGL Syndrome with particular focus on the underlying genetics basis and related tumor risks. He will review the benefits/limitations of genetic testing and pre-symptomatic screening\, including his personal experience directing Stanford’s Hereditary Neuroendocrine Neoplasia Clinic. Finally\, he will discuss opportunities for advancing hPPGL care and ongoing research. \nREGISTERPresenter:\nJustin Annes\, MD\, PhD\nAssociate Professor\, Stanford Department of Medicine \nDr. Annes is an Associate Professor in Stanford’s Department of Medicine and a Faculty Fellow in Stanford’s Chemistry\, Engineering & Medicine for Human Health Institute (ChEM-H). He obtained his BS from Haverford College (1996)\, MD PHD from New York University (1996) and trained in Internal Medicine\, Clinical Genetics and Chemical Biology at Brigham and Women’s Hospital / Harvard University (2011). Dr. Annes is director and founder of Stanford’s Hereditary Neuroendocrine Tumor Clinic (2012) which focuses on the longitudinal care of patients and families with inherited endocrine tumor syndromes\, primarily hPPGL\, MEN1 and MEN2. He participates in several neuroendocrine-focused patient advocacy / research foundations including The Pheo Para Alliance\, Neuroendocrine Tumor Research Foundation and the NIH Pediatric Wildtype GIST Clinic. His NIH-funded research program is positioned at the interface of endocrine pathophysiology\, synthetic chemistry and hereditary disease. The organizing principle of his research program is to harness the power of chemistry\, human tissue samples and animal disease models to deliver fundamental biologic insights and develop novel therapeutic leads for the treatment of endocrine disorders. URL:https://liferaftgroup.org/event/lrg-webcast-hppgl-syndrome/ CATEGORIES:Education,Events ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2020/11/annes1.jpg ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20210224T120000 DTEND;TZID=America/New_York:20210224T120000 DTSTAMP:20260406T035504 CREATED:20210203T201450Z LAST-MODIFIED:20210208T141853Z UID:10000132-1614168000-1614168000@liferaftgroup.org SUMMARY:Finding Biomarkers that Cause GIST DESCRIPTION:From Research to Clinical Application\nEvery GIST patient is unique based on their biology and what treatment to which they will potentially respond. \nDr. Lori Rink\, Fox Chase Cancer Center\, and Dr. Inga-Marie Schaefer\, Brigham & Women’s Hospital\, are two researchers who are making discoveries in their respective laboratories to uncover the unique biomarkers in GIST that will be future drug targets. \nDr. Margaret von Mehren\, Fox Chase Cancer Center\, will moderate the webinar and help the audience understand why these important discoveries in the lab are important to clinicians. This concept of translational medicine is an important field as it helps bring advances into the clinic that can directly impact the survival of GIST patients. \nREGISTERAbout the Presenters\nLori Rink\, PhD\nAssistant Professor\, Molecular Therapeutics\, Fox Chase Cancer Center. Dr. Rink studied at the Biology at the University of Scranton  and  received her doctorate in  for a Doctorate in Molecular Biology from Temple University followed by a post-doctoral fellowship at Fox Chase Cancer Center.  She is an Assistant Professor in the Molecular Therapeutic program. Along with Dr. von Mehren\, two graduate students\, and a post-doctoral fellow\, Dr. Rink’s lab is dedicated to investigating why some GIST patients eventually develop a resistance to Gleevec\, discovering combinations of drugs that will attack GIST\, and identifying markers that could predict how patients will respond to Gleevec. \nInga-Marie Schaefer\, MD\nAssociate Pathologist\, Brigham & Women’s Hospital\, Instructor in Pathology\, Harvard Medical School\nDr. Schaefer is an instructor at the Department of Pathology at Brigham and Women’s Hospital\, Harvard Medical School in Boston\, MA. After graduating with an M.D. degree from Georg-August-University Goettingen in Germany\, she trained in Anatomic Pathology in Germany and at Brigham and Women’s Hospital. Her post-doctoral research in Dr. Jonathan Fletcher’s translational sarcoma laboratory focused on characterizing mechanisms of genomic progression in GIST/sarcoma\, combining diagnostics\, biology\, and genetics. Dr. Schaefer is now evaluating mechanisms of incremental cell cycle dysregulation in GIST progression. \n\nAbout the Moderator\nMargaret von Mehren\, MD\nAssociate Professor\, Director of Sarcoma\, Fox Chase Cancer Center\nDr. von Mehren matriculated at Georgetown University in Washington\, DC\, where she majored in Biology and minored in Philosophy\, and graduating in 1985 with honors. She received her medical degree from Albany Medical College in Albany\, NY. Dr. von Mehren completed an internship and residency at New York University Medical Center in New York before moving to Philadelphia for her fellowship in medical oncology at the Fox Chase Cancer Center and Temple University. After completing fellowship\, Dr. von Mehren joined the faculty of the department of Medical Oncology at Fox Chase Cancer Center where she remains today as and Associate Professor and the director of the Sarcoma program. She is a member of the NCCN panel for soft tissue sarcomas and GIST task force\, as well as the Intergroup GIST Task force. She also volunteers at the NIH Pediatric Wildtype GIST clinic biannually. URL:https://liferaftgroup.org/event/finding-biomarkers-that-cause-gist/ CATEGORIES:Education,Events ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20210512T120000 DTEND;TZID=America/New_York:20210512T130000 DTSTAMP:20260406T035504 CREATED:20210420T151025Z LAST-MODIFIED:20210420T151025Z UID:10000138-1620820800-1620824400@liferaftgroup.org SUMMARY:Management of Metastatic GIST DESCRIPTION:What to Expect When a Tumor Has Spread\nWhile surgery is the backbone of treatment for localized GIST\, in the context of metastatic disease\, treatment generally relies on medical therapy with tyrosine kinase inhibitors such as imatinib. Surgery is used predominantly to optimize their efficacy. This webinar will review options for therapy when patients are diagnosed with metastatic disease at the time of their initial diagnosis\, during observation after initial resection of a GIST\, and when metastatic GIST is resistant to imatinib. We will discuss the role that mutational status and drug toxicities may play in determining the optimal therapy for individual patients. \nREGISTERAbout the Presenter:\nDr. Aimee Crago\, Surgical Oncologist\nMemorial Sloan Kettering Cancer Center \nDr. Crago earned her PhD at the University of Cambridge as a British Marshall Scholar and her MD in the Harvard-MIT Division of Health Sciences and Technology before training in surgery and surgical oncology at Georgetown University Medical Center and Memorial Sloan Kettering Cancer Center. She joined the MSKCC faculty in 2010 as member of the Gastric and Mixed Tumor Service and the Sarcoma Disease Management Team\, and now serves as Associate Attending Surgeon. She is an active participant in the care of patients with soft tissue sarcoma\, GIST and desmoid-type fibromatosis and coordinates a translational science research program that focuses on understanding the molecular drivers of sarcomas and how genomic aberrations in these tumors can inform patient care. Her work has been funded by the National Cancer Institute\, the Food and Drug Administration\, the American Society of Clinical Oncology\, the American College of Surgeons\, and the American Cancer Society among others. Dr. Crago is committed to educating others regarding sarcoma biology and patient care; as such\, she trains clinical and research fellows at Memorial Sloan Kettering\, is a Gerstner Sloan Kettering Graduate School Special Contributing Faculty Member\, and works as chair of the Society for Surgical Oncology Sarcoma Disease Site Working Group.    URL:https://liferaftgroup.org/event/management-of-metastatic-gist/ CATEGORIES:Education,Events ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/Los_Angeles:20210626T100000 DTEND;TZID=America/Los_Angeles:20210626T120000 DTSTAMP:20260406T035504 CREATED:20210601T184215Z LAST-MODIFIED:20210603T172410Z UID:10000141-1624701600-1624708800@liferaftgroup.org SUMMARY:GDOL California 2021 - Virtual DESCRIPTION:Join us virtually for GDOL California on June 26th at 10am Pacific Time. \nAgenda:\nOverview of GIST – Charles Forscher\, M.D.\, Cedars-Sinai\nLocal Control For Primary and Disseminated GIST – Brian Kadera\, M.D.\, UCLA\nNovel Therapies and ctDNA in GIST – Mark Agulnik\, M.D.\, City of Hope\nUtilizing Immunotherapy To Treat GIST – Arun Singh\, M.D.\, UCLA\nSDH and GIST Research on Non-Cancer Cells – Jason Sicklick\, M.D.\, UCSD\nQ&A – all presenters \nREGISTERVirtual GDOL California Sponsors: \n \nWhat’s a GDOL?  A GDOL is a GIST Day of Learning\, a free one-day event to help you\, as patients and caregivers\, learn more about GIST\, find support\, and enhance your knowledge base to help you navigate your cancer journey. At a GDOL you will learn more about your disease from expert clinicians\, researchers\, and advocates and connect with other patients\, caregivers\, and family members who are also on this rare journey. You are not alone. \nThe mission of the Life Raft Group is to enhance survival and quality of life for people living with GIST through patient-powered research\, education and empowerment\, and global advocacy efforts. The LRG vision is to champion patient-powered science and drastically increase long-term survivorship for all cancer patients. To accomplish this\, we rely on four key pillars; \n\nLeverage the patient perspective to drive innovative solutions in cancer research\nEducate and empower patients to take a larger role in their care\nAccelerate research outcomes through collaborative efforts\nIncrease access to effective treatments worldwide\n\nSee what a GDOL can offer you – visit this link to see presentations\, photos\, and posts about past GDOLs: \n\nView Past GDOLs \n\nFor questions or more information about GDOL\, Diana Nieves\, Senior Director\, Outreach & Engagement\, DNieves@liferaftgroup.org URL:https://liferaftgroup.org/event/gdol-california-2021-virtual/ CATEGORIES:Education,Events ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2021/06/California.jpg ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20210713T120000 DTEND;TZID=America/New_York:20210713T120000 DTSTAMP:20260406T035504 CREATED:20210601T193918Z LAST-MODIFIED:20210601T200108Z UID:10000142-1626177600-1626177600@liferaftgroup.org SUMMARY:GIST Awareness Day - Live Q&A with SDH Experts DESCRIPTION:Join us this GIST Awareness Day\, July 13th\, as our esteemed panel of GIST experts (from our Pediatric & SDH-Deficient GIST Consortium) answers your questions about SDH-deficient GIST. You can email your prepared questions to Sara Rothschild at srothschild@liferaftgroup.org or type them into the chat feature the day of the webinar. We will get to as many questions as possible during the event. \nREGISTER URL:https://liferaftgroup.org/event/gist-awareness-day-live-qa-with-sdh-experts/ CATEGORIES:Education,Events ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/06/gist-awareness-day-panel-2021.png ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20210805T080000 DTEND;TZID=America/New_York:20210805T080000 DTSTAMP:20260406T035504 CREATED:20210714T140522Z LAST-MODIFIED:20210714T140522Z UID:10000158-1628150400-1628150400@liferaftgroup.org SUMMARY:New Member Orientation - Virtual DESCRIPTION:This meeting will take place at 8am & 12pm ET every 1st Thursday.\nAre you a new LRG member and looking for guidance on all the things the Life Raft Group has to offer? Join us for a virtual orientation to hear from staff about our services and have the opportunity to ask questions and meet other new members. \nSign Up For Meeting Date URL:https://liferaftgroup.org/event/new-member-orientation-virtual/2021-08-05/ CATEGORIES:Education,Events ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2021/07/orientation-meeting-2021.jpg ORGANIZER;CN="The Life Raft Group":MAILTO:liferaft@liferaftgroup.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20210805T120000 DTEND;TZID=America/New_York:20210805T120000 DTSTAMP:20260406T035504 CREATED:20210714T140637Z LAST-MODIFIED:20210714T140637Z UID:10000163-1628164800-1628164800@liferaftgroup.org SUMMARY:New Member Orientation - Virtual DESCRIPTION:This meeting will take place at 8am & 12pm ET every 1st Thursday.\nAre you a new LRG member and looking for guidance on all the things the Life Raft Group has to offer? Join us for a virtual orientation to hear from staff about our services and have the opportunity to ask questions and meet other new members. \nSign Up For Meeting Date URL:https://liferaftgroup.org/event/new-member-orientation-virtual-2/2021-08-05/ CATEGORIES:Education,Events ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2021/07/orientation-meeting-2021.jpg ORGANIZER;CN="The Life Raft Group":MAILTO:liferaft@liferaftgroup.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20210812T120000 DTEND;TZID=America/New_York:20210812T120000 DTSTAMP:20260406T035504 CREATED:20210720T175722Z LAST-MODIFIED:20210721T142417Z UID:10000168-1628769600-1628769600@liferaftgroup.org SUMMARY:What GISTers Need to Know About Clinical Trials DESCRIPTION:Clinical Trials 101\, a GISTory of Clinical Trials\, & How to Talk to Your Medical Team about Clinical Trials\nClinical trials are an essential tool of modern medicine. We have heard a lot about clinical trials of COVID-19 vaccines and therapies during the pandemic\, and most GISTers are aware that clinical trials established the effectiveness of drugs like imatinib. However\, beyond the headlines there’s a lot to consider when evaluating a clinical trial – especially if you are considering enrolling in one. Who designed the trial? Who approved it? Who is paying for it? Who decides which patients will be enrolled? How will the results be evaluated? And what’s the relationship between clinical trials and “real world evidence”? \nPlease join LRG Science Team members Jim Hughes and David Josephy for an informative presentation on the topic of clinical trials. \nREGISTERAbout the Presenters:\n\nDr. David Josephy \n\nDavid Josephy\, PhD.\nPresident of Life Raft Group Canada\nDavid Josephy was a Professor of Molecular and Cellular Biology at the University of Guelph in Ontario\, Canada\, until his recent retirement. He authored a textbook titled\, “Molecular Toxicology”\, and has written more than 100 scientific publications in biochemistry\, toxicology\, and cancer research.\n\nJim Hughes \nJim Hughes\nLife Raft Group Clinical Trials Coordinator\nJim Hughes attended Kenyon College and Loyola University\, Chicago where he earned a BA in Philosophy. Between schools Jim served three years as an enlisted man and officer in the United States Army in the US and Vietnam. Jim retired from the telecommunications industry after a 35-year career including positions in engineering\, long-range planning\, and marketing. Jim and Margi are the parents of two children Nancy and Jamie. Nancy Hughes Welsh (1967-2005) was an early member of The Life Raft Group (2002). Nancy was diagnosed with leiomyosarcoma in 1991 at age 23. After ten years of surgery and chemotherapy Nancy was re-diagnosed with GIST in 2001. Nancy participated in the Phase Three imatinib trial in 2001 and the Phase Two sunitinib trial in 2003. Jim and Margi continue to facilitate the LRG Chicago chapter meetings. Jim serves on the Board of the LRG and is a member of the LRG Science Team. URL:https://liferaftgroup.org/event/what-gisters-need-to-know-about-clinical-trials/ CATEGORIES:Education,Events ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20210901T130000 DTEND;TZID=America/New_York:20210901T140000 DTSTAMP:20260406T035504 CREATED:20210625T150515Z LAST-MODIFIED:20210625T150515Z UID:10000155-1630501200-1630504800@liferaftgroup.org SUMMARY:Virtual Caregiver Support Group DESCRIPTION:Bi-Weekly Support Group for GIST Caregivers.\nHeld first & third Wednesdays of the month\nAs we continue to navigate this uncertain time together\, we want to offer you a little extra support. LRG has a twice monthly support group for the caregivers facilitated by Marlene Nei\, GIST Caregiver. To continue social distancing and connecting with caregivers across the United States\, we will use an electronic platform to gather as a group. We will talk about all the feelings you might be experiencing\, both in relation to GIST\, and COVID-19. \nWe will share our stories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling because of this unprecedented time. The group will be a safe space not only to feel supported by your fellow caregivers\, but also a place to share our own coping mechanisms to get us through this stressful time. All information shared will be kept confidential. Contact Diana Nieves at dnieves@liferaftgroup.org for more information. \n\nPlease email Diana Nieves at dnieves@liferaftgroup.org to join this meeting.\n\nAbout the Group Leader:\nMarlene Nei\, GIST Caregiver\nAs an active member of the Life Raft Group\, Marlene advocates for the needs of the caregiver community because she feels they are an underrepresented group. It is her mission to advocate for the entire GIST community making sure they are equipped with the appropriate resources on their GIST journey. URL:https://liferaftgroup.org/event/virtual-caregiver-support-group-14/ CATEGORIES:Education,Support Group ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2021/06/Caregiver-Support-Group.jpg ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20210902T080000 DTEND;TZID=America/New_York:20210902T080000 DTSTAMP:20260406T035504 CREATED:20210714T140522Z LAST-MODIFIED:20210714T140522Z UID:10000159-1630569600-1630569600@liferaftgroup.org SUMMARY:New Member Orientation - Virtual DESCRIPTION:This meeting will take place at 8am & 12pm ET every 1st Thursday.\nAre you a new LRG member and looking for guidance on all the things the Life Raft Group has to offer? Join us for a virtual orientation to hear from staff about our services and have the opportunity to ask questions and meet other new members. \nSign Up For Meeting Date URL:https://liferaftgroup.org/event/new-member-orientation-virtual/2021-09-02/ CATEGORIES:Education,Events ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2021/07/orientation-meeting-2021.jpg ORGANIZER;CN="The Life Raft Group":MAILTO:liferaft@liferaftgroup.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20210902T120000 DTEND;TZID=America/New_York:20210902T120000 DTSTAMP:20260406T035504 CREATED:20210714T140637Z LAST-MODIFIED:20210714T140637Z UID:10000164-1630584000-1630584000@liferaftgroup.org SUMMARY:New Member Orientation - Virtual DESCRIPTION:This meeting will take place at 8am & 12pm ET every 1st Thursday.\nAre you a new LRG member and looking for guidance on all the things the Life Raft Group has to offer? Join us for a virtual orientation to hear from staff about our services and have the opportunity to ask questions and meet other new members. \nSign Up For Meeting Date URL:https://liferaftgroup.org/event/new-member-orientation-virtual-2/2021-09-02/ CATEGORIES:Education,Events ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2021/07/orientation-meeting-2021.jpg ORGANIZER;CN="The Life Raft Group":MAILTO:liferaft@liferaftgroup.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20211007T080000 DTEND;TZID=America/New_York:20211007T080000 DTSTAMP:20260406T035504 CREATED:20210714T140522Z LAST-MODIFIED:20210714T140522Z UID:10000160-1633593600-1633593600@liferaftgroup.org SUMMARY:New Member Orientation - Virtual DESCRIPTION:This meeting will take place at 8am & 12pm ET every 1st Thursday.\nAre you a new LRG member and looking for guidance on all the things the Life Raft Group has to offer? Join us for a virtual orientation to hear from staff about our services and have the opportunity to ask questions and meet other new members. \nSign Up For Meeting Date URL:https://liferaftgroup.org/event/new-member-orientation-virtual/2021-10-07/ CATEGORIES:Education,Events ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2021/07/orientation-meeting-2021.jpg ORGANIZER;CN="The Life Raft Group":MAILTO:liferaft@liferaftgroup.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20211007T120000 DTEND;TZID=America/New_York:20211007T120000 DTSTAMP:20260406T035504 CREATED:20210714T140637Z LAST-MODIFIED:20210714T140637Z UID:10000165-1633608000-1633608000@liferaftgroup.org SUMMARY:New Member Orientation - Virtual DESCRIPTION:This meeting will take place at 8am & 12pm ET every 1st Thursday.\nAre you a new LRG member and looking for guidance on all the things the Life Raft Group has to offer? Join us for a virtual orientation to hear from staff about our services and have the opportunity to ask questions and meet other new members. \nSign Up For Meeting Date URL:https://liferaftgroup.org/event/new-member-orientation-virtual-2/2021-10-07/ CATEGORIES:Education,Events ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2021/07/orientation-meeting-2021.jpg ORGANIZER;CN="The Life Raft Group":MAILTO:liferaft@liferaftgroup.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20211028T130000 DTEND;TZID=America/New_York:20211028T130000 DTSTAMP:20260406T035504 CREATED:20210924T195501Z LAST-MODIFIED:20211015T173919Z UID:10000171-1635426000-1635426000@liferaftgroup.org SUMMARY:Perspectives in Biomarker Testing DESCRIPTION:Who Are the “Players” Involved in Biomarker Testing?\nHear Their Perspectives\nUnderstanding the role of mutations and biomarker testing in GIST is one of most important things that GIST patients need to learn. Knowing the driving force behind each individual’s tumors is not just important\, it is critical in determining the most effective treatment for your mutation. Whether it is a pathologist\, an oncologist\, or the laboratory doing the testing\, they each play a key role in the testing process. Learn from different perspectives and ask questions to this distinguished panel of experts. \n\nIf you have questions about this presentation\nor about registration\, please contact:\nSara Rothschild\, VP Program Services\, srothschild@liferaftgroup.org\nREGISTEROur Presenters\n\nJonathan Trent\, MD\, PhD\nDirector\, Sarcoma Oncology\nSylvester Comprehensive Cancer Center\nMiami\, Florida \nDr. Jonathan C. Trent is currently the Associate Director for Clinical Research\, the Director of the Bone and Soft-tissue Sarcoma Group at the Sylvester Comprehensive Cancer Center. Dr. Trent’s interests are in the clinical and translational research of sarcomas\, direct care of sarcoma patients\, and education about sarcoma. As Associate Director for Clinical Research\, his goal is to help Sylvester Faculty develop clinical trials that provide clinically effective and scientifically exciting therapy to cancer patients of South Florida and beyond. The major focus of his clinical\, educational and research efforts are with gastrointestinal stromal tumor (GIST)\, chondrosarcoma\, and other sarcomas. The major efforts of Dr. Trent’s research focus on understanding the mechanisms of action and resistance of imatinib in GIST and other sarcomas while striving toward improved therapeutic options. His work involves the use of novel preoperative/postoperative clinical trials\, prospectively acquired tumor tissue\, cell lines\, archival tissue\, as well as collaborations with disciplines such as the genomics facility\, surgical oncology\, pathology\, radiology and interventional radiology. \n\nLeylah Drusbosky\, PhD\nMedical Science Liaison\nGuardant Health\nTampa\, Florida \nLeylah Drusbosky received her PhD in molecular biology from the University of Florida and has expertise in next generation sequencing\, liquid biopsy\, precision medicine\, and translational research. She is a Medical Science Liaison at Guardant Health\, a company that leverages liquid biopsy to guide personalized treatments in patients with advanced cancer and has a passion for communicating the need for comprehensive genomic profiling to identify the best treatment approach based on each patient’s unique disease biology. \n\nKeith Killian\, PhD\nSenior Pathologist & Associate Medical Director\nFoundation Medicine\nCambridge\, Massachusetts \nDr. Killian is Senior Pathologist and Associate Medical Director at Foundation Medicine. He also serves as the lead pathologist on the partnership with Genentech to develop comprehensive gene expression profiling assays for clinical trial use. Notable prior translational medicine achievements include working with clinicians from the NIH Pediatric Gastrointestinal Stromal Tumor (GIST) clinic to discover the bimodal molecular pathologic mechanism of GIST tumorigenesis\, whereby reciprocal epigenetic and genetic inactivation of succinate dehydrogenase (SDH) explain SDH deficiency in KIT/kinase-WT GIST. Other recent work includes the methyl-deviation index (MDI) as a prognostic marker in breast cancer; MDI can be more generally used to measure malignant cellularity\, including lineage and purity\, in routine biopsies. We also recently discovered the remarkable convergence of epigenomic programming in pluripotent stem cells and germ-cell-tumor cells. Then\, we are completing a study of the clinical utility of saliva in the molecular profiling of solid and hematologic malignancy.\n\nThank you to our sponsors! URL:https://liferaftgroup.org/event/perspectives-in-biomarker-testing/ CATEGORIES:Education,Events ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20211104T080000 DTEND;TZID=America/New_York:20211104T080000 DTSTAMP:20260406T035504 CREATED:20210714T140522Z LAST-MODIFIED:20210714T140522Z UID:10000161-1636012800-1636012800@liferaftgroup.org SUMMARY:New Member Orientation - Virtual DESCRIPTION:This meeting will take place at 8am & 12pm ET every 1st Thursday.\nAre you a new LRG member and looking for guidance on all the things the Life Raft Group has to offer? Join us for a virtual orientation to hear from staff about our services and have the opportunity to ask questions and meet other new members. \nSign Up For Meeting Date URL:https://liferaftgroup.org/event/new-member-orientation-virtual/2021-11-04/ CATEGORIES:Education,Events ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2021/07/orientation-meeting-2021.jpg ORGANIZER;CN="The Life Raft Group":MAILTO:liferaft@liferaftgroup.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20211104T120000 DTEND;TZID=America/New_York:20211104T120000 DTSTAMP:20260406T035504 CREATED:20210714T140637Z LAST-MODIFIED:20210714T140637Z UID:10000166-1636027200-1636027200@liferaftgroup.org SUMMARY:New Member Orientation - Virtual DESCRIPTION:This meeting will take place at 8am & 12pm ET every 1st Thursday.\nAre you a new LRG member and looking for guidance on all the things the Life Raft Group has to offer? Join us for a virtual orientation to hear from staff about our services and have the opportunity to ask questions and meet other new members. \nSign Up For Meeting Date URL:https://liferaftgroup.org/event/new-member-orientation-virtual-2/2021-11-04/ CATEGORIES:Education,Events ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2021/07/orientation-meeting-2021.jpg ORGANIZER;CN="The Life Raft Group":MAILTO:liferaft@liferaftgroup.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20211120T140000 DTEND;TZID=America/New_York:20211120T163000 DTSTAMP:20260406T035504 CREATED:20211109T182713Z LAST-MODIFIED:20211109T182713Z UID:10000177-1637416800-1637425800@liferaftgroup.org SUMMARY:GISTLearn Online - GIST Sarcoma Life Raft Group Canada DESCRIPTION:GIST Sarcoma Life Raft Group Canada (LRGC) is pleased to invite you to register for our “GIST LEARN Online” virtual meeting on Saturday\, November 20\, 2021. The Annual General Meeting meeting will be held at the beginning of the videoconference. \nFor the past thirteen years\, Life Raft Group Canada has been hosting GIST patient and caregiver meetings to provide support and education for those living with GIST. These events are open to GIST patients\, caregivers\, family members\, friends\, healthcare providers\, and anyone who wishes to learn more about GIST. \nLRGC Annual General Meeting\nLRGC members have already been notified about our AGM. Everyone attending the November 20th GIST LEARN Online\, is also welcome to attend the AGM portion of the meeting\, although only LRGC members can participate in the voting procedures. Again this year\, voting at the AGM will be conducted using Zoom polling. \nNew Horizons GIST 2021 Conference\nThe New Horizons GIST conferences traditionally focus on large annual meetings gathering over 50 representatives from 30 countries to discuss critical information that impacts the global GIST patient and medical communities. \nIf you have any questions or would like more information\, please don’t hesitate to contact LRGC at malcolm.sutherland@liferaftgroup.ca \nREGISTERSpeakers\nJoanna Przybyl\, PhD\nAssistant Professor\, Department of Surgery\, McGill University\nPrincipal Investigator\, Cancer Research Program\, Research Institute – McGill University Health Centre\nDavid Josephy\, PhD\nPresident\, GIST Sarcoma Life Raft Group Canada\nProfessor of Molecular and Cellular Biology\, retired.\nDavid has been involved with GIST for the past 20+ years\nHazel McLeod\nDirector\, GIST Sarcoma Life Raft Group Canada.\nSince 2018\, Hazel has been leading roundtable discussions\nwith GIST patients and caregivers across Canada URL:https://liferaftgroup.org/event/gistlearn-online-gist-sarcoma-life-raft-group-canada/ CATEGORIES:Education,Events ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/11/gist-learn-canada-2021.png ORGANIZER;CN="Malcolm Sutherland%2C GIST Sarcoma Life Raft Group Canada":MAILTO:malcolm.sutherland@liferaftgroup.ca END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20211202T080000 DTEND;TZID=America/New_York:20211202T080000 DTSTAMP:20260406T035504 CREATED:20210714T140522Z LAST-MODIFIED:20210714T140522Z UID:10000162-1638432000-1638432000@liferaftgroup.org SUMMARY:New Member Orientation - Virtual DESCRIPTION:This meeting will take place at 8am & 12pm ET every 1st Thursday.\nAre you a new LRG member and looking for guidance on all the things the Life Raft Group has to offer? Join us for a virtual orientation to hear from staff about our services and have the opportunity to ask questions and meet other new members. \nSign Up For Meeting Date URL:https://liferaftgroup.org/event/new-member-orientation-virtual/2021-12-02/ CATEGORIES:Education,Events ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2021/07/orientation-meeting-2021.jpg ORGANIZER;CN="The Life Raft Group":MAILTO:liferaft@liferaftgroup.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20211202T120000 DTEND;TZID=America/New_York:20211202T120000 DTSTAMP:20260406T035504 CREATED:20210714T140637Z LAST-MODIFIED:20210714T140637Z UID:10000167-1638446400-1638446400@liferaftgroup.org SUMMARY:New Member Orientation - Virtual DESCRIPTION:This meeting will take place at 8am & 12pm ET every 1st Thursday.\nAre you a new LRG member and looking for guidance on all the things the Life Raft Group has to offer? Join us for a virtual orientation to hear from staff about our services and have the opportunity to ask questions and meet other new members. \nSign Up For Meeting Date URL:https://liferaftgroup.org/event/new-member-orientation-virtual-2/2021-12-02/ CATEGORIES:Education,Events ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2021/07/orientation-meeting-2021.jpg ORGANIZER;CN="The Life Raft Group":MAILTO:liferaft@liferaftgroup.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20211211T100000 DTEND;TZID=America/New_York:20211211T100000 DTSTAMP:20260406T035504 CREATED:20211026T151822Z LAST-MODIFIED:20211101T194056Z UID:10000176-1639216800-1639216800@liferaftgroup.org SUMMARY:GDOL Pittsburgh - Virtual DESCRIPTION:A GIST Day of Learning (GDOL) is a free one day event to help patients and caregivers learn more about this rare cancer\, find support\, and enhance their knowledge base to help them navigate their cancer journey. \nThe Life Raft Group has a simple focus: to cure a form of cancer — GIST — and to help those living with it until then. To do this\, the Life Raft Group focuses on three key areas: research\, patient support & education\, and advocacy\, which lay the foundation of our mission to ensure the survival of GIST patients through a comprehensive approach connecting individual patients’ needs\, the worldwide community of GIST advocates and the global health and research environment. \nIf you have any questions\, please contact Diana Nieves at dnieves@liferaftgroup.org \nREGISTERThank you to our sponsors for this event: URL:https://liferaftgroup.org/event/gdol-pittsburgh-virtual/ CATEGORIES:Education,Events ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2021/10/GDOL-Pittsburgh-2021.jpg ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/Phoenix:20220127T140000 DTEND;TZID=America/Phoenix:20220127T160000 DTSTAMP:20260406T035504 CREATED:20211026T151755Z LAST-MODIFIED:20211209T170258Z UID:10000175-1643292000-1643299200@liferaftgroup.org SUMMARY:GDOL Arizona - Virtual DESCRIPTION:GDOL Arizona Virtual is January 27th\, 2pm – 4pm MT/4pm – 6pm ET\nA GIST Day of Learning (GDOL) is a free one day event to help patients and caregivers learn more about this rare cancer\, find support\, and enhance their knowledge base to help them navigate their cancer journey. \nThe Life Raft Group has a simple focus: to cure a form of cancer — GIST — and to help those living with it until then. To do this\, the Life Raft Group focuses on three key areas: research\, patient support & education\, and advocacy\, which lay the foundation of our mission to ensure the survival of GIST patients through a comprehensive approach connecting individual patients’ needs\, the worldwide community of GIST advocates and the global health and research environment. \nIf you have any questions\, please contact Diana Nieves at dnieves@liferaftgroup.org \nREGISTERThank you to our sponsors for this event: URL:https://liferaftgroup.org/event/gdol-arizona-virtual/ CATEGORIES:Education,Events ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2021/10/GDOL-Arizona-2021.jpg ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org END:VEVENT END:VCALENDAR