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BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20210626T100000
DTEND;TZID=America/Los_Angeles:20210626T120000
DTSTAMP:20260406T035016
CREATED:20210601T184215Z
LAST-MODIFIED:20210603T172410Z
UID:10000141-1624701600-1624708800@liferaftgroup.org
SUMMARY:GDOL California 2021 - Virtual
DESCRIPTION:Join us virtually for GDOL California on June 26th at 10am Pacific Time. \nAgenda:\nOverview of GIST – Charles Forscher\, M.D.\, Cedars-Sinai\nLocal Control For Primary and Disseminated GIST – Brian Kadera\, M.D.\, UCLA\nNovel Therapies and ctDNA in GIST – Mark Agulnik\, M.D.\, City of Hope\nUtilizing Immunotherapy To Treat GIST – Arun Singh\, M.D.\, UCLA\nSDH and GIST Research on Non-Cancer Cells – Jason Sicklick\, M.D.\, UCSD\nQ&A – all presenters \nREGISTERVirtual GDOL California Sponsors: \n \nWhat’s a GDOL?  A GDOL is a GIST Day of Learning\, a free one-day event to help you\, as patients and caregivers\, learn more about GIST\, find support\, and enhance your knowledge base to help you navigate your cancer journey. At a GDOL you will learn more about your disease from expert clinicians\, researchers\, and advocates and connect with other patients\, caregivers\, and family members who are also on this rare journey. You are not alone. \nThe mission of the Life Raft Group is to enhance survival and quality of life for people living with GIST through patient-powered research\, education and empowerment\, and global advocacy efforts. The LRG vision is to champion patient-powered science and drastically increase long-term survivorship for all cancer patients. To accomplish this\, we rely on four key pillars; \n\nLeverage the patient perspective to drive innovative solutions in cancer research\nEducate and empower patients to take a larger role in their care\nAccelerate research outcomes through collaborative efforts\nIncrease access to effective treatments worldwide\n\nSee what a GDOL can offer you – visit this link to see presentations\, photos\, and posts about past GDOLs: \n\nView Past GDOLs  \n\nFor questions or more information about GDOL\, Diana Nieves\, Senior Director\, Outreach & Engagement\, DNieves@liferaftgroup.org
URL:https://liferaftgroup.org/event/gdol-california-2021-virtual/
CATEGORIES:Education,Events
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2021/06/California.jpg
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20210713T120000
DTEND;TZID=America/New_York:20210713T120000
DTSTAMP:20260406T035017
CREATED:20210601T193918Z
LAST-MODIFIED:20210601T200108Z
UID:10000142-1626177600-1626177600@liferaftgroup.org
SUMMARY:GIST Awareness Day - Live Q&A with SDH Experts
DESCRIPTION:Join us this GIST Awareness Day\, July 13th\, as our esteemed panel of GIST experts (from our Pediatric & SDH-Deficient GIST Consortium) answers your questions about SDH-deficient GIST. You can email your prepared questions to Sara Rothschild at srothschild@liferaftgroup.org or type them into the chat feature the day of the webinar. We will get to as many questions as possible during the event. \nREGISTER
URL:https://liferaftgroup.org/event/gist-awareness-day-live-qa-with-sdh-experts/
CATEGORIES:Education,Events
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/06/gist-awareness-day-panel-2021.png
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20210805T080000
DTEND;TZID=America/New_York:20210805T080000
DTSTAMP:20260406T035017
CREATED:20210714T140522Z
LAST-MODIFIED:20210714T140522Z
UID:10000158-1628150400-1628150400@liferaftgroup.org
SUMMARY:New Member Orientation - Virtual
DESCRIPTION:This meeting will take place at 8am & 12pm ET every 1st Thursday.\nAre you a new LRG member and looking for guidance on all the things the Life Raft Group has to offer? Join us for a virtual orientation to hear from staff about our services and have the opportunity to ask questions and meet other new members. \nSign Up For Meeting Date
URL:https://liferaftgroup.org/event/new-member-orientation-virtual/2021-08-05/
CATEGORIES:Education,Events
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2021/07/orientation-meeting-2021.jpg
ORGANIZER;CN="The Life Raft Group":MAILTO:liferaft@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20210805T120000
DTEND;TZID=America/New_York:20210805T120000
DTSTAMP:20260406T035017
CREATED:20210714T140637Z
LAST-MODIFIED:20210714T140637Z
UID:10000163-1628164800-1628164800@liferaftgroup.org
SUMMARY:New Member Orientation - Virtual
DESCRIPTION:This meeting will take place at 8am & 12pm ET every 1st Thursday.\nAre you a new LRG member and looking for guidance on all the things the Life Raft Group has to offer? Join us for a virtual orientation to hear from staff about our services and have the opportunity to ask questions and meet other new members. \nSign Up For Meeting Date
URL:https://liferaftgroup.org/event/new-member-orientation-virtual-2/2021-08-05/
CATEGORIES:Education,Events
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2021/07/orientation-meeting-2021.jpg
ORGANIZER;CN="The Life Raft Group":MAILTO:liferaft@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20210812T120000
DTEND;TZID=America/New_York:20210812T120000
DTSTAMP:20260406T035017
CREATED:20210720T175722Z
LAST-MODIFIED:20210721T142417Z
UID:10000168-1628769600-1628769600@liferaftgroup.org
SUMMARY:What GISTers Need to Know About Clinical Trials
DESCRIPTION:Clinical Trials 101\, a GISTory of Clinical Trials\, & How to Talk to Your Medical Team about Clinical Trials\nClinical trials are an essential tool of modern medicine. We have heard a lot about clinical trials of COVID-19 vaccines and therapies during the pandemic\, and most GISTers are aware that clinical trials established the effectiveness of drugs like imatinib. However\, beyond the headlines there’s a lot to consider when evaluating a clinical trial – especially if you are considering enrolling in one. Who designed the trial? Who approved it? Who is paying for it? Who decides which patients will be enrolled? How will the results be evaluated? And what’s the relationship between clinical trials and “real world evidence”? \nPlease join LRG Science Team members Jim Hughes and David Josephy for an informative presentation on the topic of clinical trials. \nREGISTERAbout the Presenters:\n\nDr. David Josephy \n\nDavid Josephy\, PhD.\nPresident of Life Raft Group Canada\nDavid Josephy was a Professor of Molecular and Cellular Biology at the University of Guelph in Ontario\, Canada\, until his recent retirement. He authored a textbook titled\, “Molecular Toxicology”\, and has written more than 100 scientific publications in biochemistry\, toxicology\, and cancer research.\n\nJim Hughes \nJim Hughes\nLife Raft Group Clinical Trials Coordinator\nJim Hughes attended Kenyon College and Loyola University\, Chicago where he earned a BA in Philosophy. Between schools Jim served three years as an enlisted man and officer in the United States Army in the US and Vietnam. Jim retired from the telecommunications industry after a 35-year career including positions in engineering\, long-range planning\, and marketing. Jim and Margi are the parents of two children Nancy and Jamie. Nancy Hughes Welsh (1967-2005) was an early member of The Life Raft Group (2002). Nancy was diagnosed with leiomyosarcoma in 1991 at age 23. After ten years of surgery and chemotherapy Nancy was re-diagnosed with GIST in 2001. Nancy participated in the Phase Three imatinib trial in 2001 and the Phase Two sunitinib trial in 2003. Jim and Margi continue to facilitate the LRG Chicago chapter meetings. Jim serves on the Board of the LRG and is a member of the LRG Science Team.
URL:https://liferaftgroup.org/event/what-gisters-need-to-know-about-clinical-trials/
CATEGORIES:Education,Events
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20210901T130000
DTEND;TZID=America/New_York:20210901T140000
DTSTAMP:20260406T035017
CREATED:20210625T150515Z
LAST-MODIFIED:20210625T150515Z
UID:10000155-1630501200-1630504800@liferaftgroup.org
SUMMARY:Virtual Caregiver Support Group
DESCRIPTION:Bi-Weekly Support Group for GIST Caregivers.\nHeld first & third Wednesdays of the month\nAs we continue to navigate this uncertain time together\, we want to offer you a little extra support. LRG has a twice monthly support group for the caregivers facilitated by Marlene Nei\, GIST Caregiver. To continue social distancing and connecting with caregivers across the United States\, we will use an electronic platform to gather as a group. We will talk about all the feelings you might be experiencing\, both in relation to GIST\, and COVID-19. \nWe will share our stories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling because of this unprecedented time. The group will be a safe space not only to feel supported by your fellow caregivers\, but also a place to share our own coping mechanisms to get us through this stressful time. All information shared will be kept confidential. Contact Diana Nieves at dnieves@liferaftgroup.org for more information. \n\nPlease email Diana Nieves at dnieves@liferaftgroup.org to join this meeting.\n\nAbout the Group Leader:\nMarlene Nei\, GIST Caregiver\nAs an active member of the Life Raft Group\, Marlene advocates for the needs of the caregiver community because she feels they are an underrepresented group. It is her mission to advocate for the entire GIST community making sure they are equipped with the appropriate resources on their GIST journey.
URL:https://liferaftgroup.org/event/virtual-caregiver-support-group-14/
CATEGORIES:Education,Support Group
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2021/06/Caregiver-Support-Group.jpg
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20210902T080000
DTEND;TZID=America/New_York:20210902T080000
DTSTAMP:20260406T035017
CREATED:20210714T140522Z
LAST-MODIFIED:20210714T140522Z
UID:10000159-1630569600-1630569600@liferaftgroup.org
SUMMARY:New Member Orientation - Virtual
DESCRIPTION:This meeting will take place at 8am & 12pm ET every 1st Thursday.\nAre you a new LRG member and looking for guidance on all the things the Life Raft Group has to offer? Join us for a virtual orientation to hear from staff about our services and have the opportunity to ask questions and meet other new members. \nSign Up For Meeting Date
URL:https://liferaftgroup.org/event/new-member-orientation-virtual/2021-09-02/
CATEGORIES:Education,Events
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2021/07/orientation-meeting-2021.jpg
ORGANIZER;CN="The Life Raft Group":MAILTO:liferaft@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20210902T120000
DTEND;TZID=America/New_York:20210902T120000
DTSTAMP:20260406T035017
CREATED:20210714T140637Z
LAST-MODIFIED:20210714T140637Z
UID:10000164-1630584000-1630584000@liferaftgroup.org
SUMMARY:New Member Orientation - Virtual
DESCRIPTION:This meeting will take place at 8am & 12pm ET every 1st Thursday.\nAre you a new LRG member and looking for guidance on all the things the Life Raft Group has to offer? Join us for a virtual orientation to hear from staff about our services and have the opportunity to ask questions and meet other new members. \nSign Up For Meeting Date
URL:https://liferaftgroup.org/event/new-member-orientation-virtual-2/2021-09-02/
CATEGORIES:Education,Events
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2021/07/orientation-meeting-2021.jpg
ORGANIZER;CN="The Life Raft Group":MAILTO:liferaft@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20211007T080000
DTEND;TZID=America/New_York:20211007T080000
DTSTAMP:20260406T035017
CREATED:20210714T140522Z
LAST-MODIFIED:20210714T140522Z
UID:10000160-1633593600-1633593600@liferaftgroup.org
SUMMARY:New Member Orientation - Virtual
DESCRIPTION:This meeting will take place at 8am & 12pm ET every 1st Thursday.\nAre you a new LRG member and looking for guidance on all the things the Life Raft Group has to offer? Join us for a virtual orientation to hear from staff about our services and have the opportunity to ask questions and meet other new members. \nSign Up For Meeting Date
URL:https://liferaftgroup.org/event/new-member-orientation-virtual/2021-10-07/
CATEGORIES:Education,Events
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2021/07/orientation-meeting-2021.jpg
ORGANIZER;CN="The Life Raft Group":MAILTO:liferaft@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20211007T120000
DTEND;TZID=America/New_York:20211007T120000
DTSTAMP:20260406T035017
CREATED:20210714T140637Z
LAST-MODIFIED:20210714T140637Z
UID:10000165-1633608000-1633608000@liferaftgroup.org
SUMMARY:New Member Orientation - Virtual
DESCRIPTION:This meeting will take place at 8am & 12pm ET every 1st Thursday.\nAre you a new LRG member and looking for guidance on all the things the Life Raft Group has to offer? Join us for a virtual orientation to hear from staff about our services and have the opportunity to ask questions and meet other new members. \nSign Up For Meeting Date
URL:https://liferaftgroup.org/event/new-member-orientation-virtual-2/2021-10-07/
CATEGORIES:Education,Events
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2021/07/orientation-meeting-2021.jpg
ORGANIZER;CN="The Life Raft Group":MAILTO:liferaft@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20211028T130000
DTEND;TZID=America/New_York:20211028T130000
DTSTAMP:20260406T035017
CREATED:20210924T195501Z
LAST-MODIFIED:20211015T173919Z
UID:10000171-1635426000-1635426000@liferaftgroup.org
SUMMARY:Perspectives in Biomarker Testing
DESCRIPTION:Who Are the “Players” Involved in Biomarker Testing?\nHear Their Perspectives\nUnderstanding the role of mutations and biomarker testing in GIST is one of most important things that GIST patients need to learn. Knowing the driving force behind each individual’s tumors is not just important\, it is critical in determining the most effective treatment for your mutation. Whether it is a pathologist\, an oncologist\, or the laboratory doing the testing\, they each play a key role in the testing process. Learn from different perspectives and ask questions to this distinguished panel of experts. \n\nIf you have questions about this presentation\nor about registration\, please contact:\nSara Rothschild\, VP Program Services\, srothschild@liferaftgroup.org\nREGISTEROur Presenters\n\nJonathan Trent\, MD\, PhD\nDirector\, Sarcoma Oncology\nSylvester Comprehensive Cancer Center\nMiami\, Florida \nDr. Jonathan C. Trent is currently the Associate Director for Clinical Research\, the Director of the Bone and Soft-tissue Sarcoma Group at the Sylvester Comprehensive Cancer Center. Dr. Trent’s interests are in the clinical and translational research of sarcomas\, direct care of sarcoma patients\, and education about sarcoma. As Associate Director for Clinical Research\, his goal is to help Sylvester Faculty develop clinical trials that provide clinically effective and scientifically exciting therapy to cancer patients of South Florida and beyond. The major focus of his clinical\, educational and research efforts are with gastrointestinal stromal tumor (GIST)\, chondrosarcoma\, and other sarcomas. The major efforts of Dr. Trent’s research focus on understanding the mechanisms of action and resistance of imatinib in GIST and other sarcomas while striving toward improved therapeutic options. His work involves the use of novel preoperative/postoperative clinical trials\, prospectively acquired tumor tissue\, cell lines\, archival tissue\, as well as collaborations with disciplines such as the genomics facility\, surgical oncology\, pathology\, radiology and interventional radiology. \n\nLeylah Drusbosky\, PhD\nMedical Science Liaison\nGuardant Health\nTampa\, Florida \nLeylah Drusbosky received her PhD in molecular biology from the University of Florida and has expertise in next generation sequencing\, liquid biopsy\, precision medicine\, and translational research. She is a Medical Science Liaison at Guardant Health\, a company that leverages liquid biopsy to guide personalized treatments in patients with advanced cancer and has a passion for communicating the need for comprehensive genomic profiling to identify the best treatment approach based on each patient’s unique disease biology. \n\nKeith Killian\, PhD\nSenior Pathologist & Associate Medical Director\nFoundation Medicine\nCambridge\, Massachusetts \nDr. Killian is Senior Pathologist and Associate Medical Director at Foundation Medicine. He also serves as the lead pathologist on the partnership with Genentech to develop comprehensive gene expression profiling assays for clinical trial use. Notable prior translational medicine achievements include working with clinicians from the NIH Pediatric Gastrointestinal Stromal Tumor (GIST) clinic to discover the bimodal molecular pathologic mechanism of GIST tumorigenesis\, whereby reciprocal epigenetic and genetic inactivation of succinate dehydrogenase (SDH) explain SDH deficiency in KIT/kinase-WT GIST. Other recent work includes the methyl-deviation index (MDI) as a prognostic marker in breast cancer; MDI can be more generally used to measure malignant cellularity\, including lineage and purity\, in routine biopsies. We also recently discovered the remarkable convergence of epigenomic programming in pluripotent stem cells and germ-cell-tumor cells. Then\, we are completing a study of the clinical utility of saliva in the molecular profiling of solid and hematologic malignancy.\n\nThank you to our sponsors!
URL:https://liferaftgroup.org/event/perspectives-in-biomarker-testing/
CATEGORIES:Education,Events
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20211104T080000
DTEND;TZID=America/New_York:20211104T080000
DTSTAMP:20260406T035017
CREATED:20210714T140522Z
LAST-MODIFIED:20210714T140522Z
UID:10000161-1636012800-1636012800@liferaftgroup.org
SUMMARY:New Member Orientation - Virtual
DESCRIPTION:This meeting will take place at 8am & 12pm ET every 1st Thursday.\nAre you a new LRG member and looking for guidance on all the things the Life Raft Group has to offer? Join us for a virtual orientation to hear from staff about our services and have the opportunity to ask questions and meet other new members. \nSign Up For Meeting Date
URL:https://liferaftgroup.org/event/new-member-orientation-virtual/2021-11-04/
CATEGORIES:Education,Events
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2021/07/orientation-meeting-2021.jpg
ORGANIZER;CN="The Life Raft Group":MAILTO:liferaft@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20211104T120000
DTEND;TZID=America/New_York:20211104T120000
DTSTAMP:20260406T035017
CREATED:20210714T140637Z
LAST-MODIFIED:20210714T140637Z
UID:10000166-1636027200-1636027200@liferaftgroup.org
SUMMARY:New Member Orientation - Virtual
DESCRIPTION:This meeting will take place at 8am & 12pm ET every 1st Thursday.\nAre you a new LRG member and looking for guidance on all the things the Life Raft Group has to offer? Join us for a virtual orientation to hear from staff about our services and have the opportunity to ask questions and meet other new members. \nSign Up For Meeting Date
URL:https://liferaftgroup.org/event/new-member-orientation-virtual-2/2021-11-04/
CATEGORIES:Education,Events
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2021/07/orientation-meeting-2021.jpg
ORGANIZER;CN="The Life Raft Group":MAILTO:liferaft@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20211120T140000
DTEND;TZID=America/New_York:20211120T163000
DTSTAMP:20260406T035017
CREATED:20211109T182713Z
LAST-MODIFIED:20211109T182713Z
UID:10000177-1637416800-1637425800@liferaftgroup.org
SUMMARY:GISTLearn Online - GIST Sarcoma Life Raft Group Canada
DESCRIPTION:GIST Sarcoma Life Raft Group Canada (LRGC) is pleased to invite you to register for our “GIST LEARN Online” virtual meeting on Saturday\, November 20\, 2021. The Annual General Meeting meeting will be held at the beginning of the videoconference. \nFor the past thirteen years\, Life Raft Group Canada has been hosting GIST patient and caregiver meetings to provide support and education for those living with GIST. These events are open to GIST patients\, caregivers\, family members\, friends\, healthcare providers\, and anyone who wishes to learn more about GIST. \nLRGC Annual General Meeting\nLRGC members have already been notified about our AGM. Everyone attending the November 20th GIST LEARN Online\, is also welcome to attend the AGM portion of the meeting\, although only LRGC members can participate in the voting procedures. Again this year\, voting at the AGM will be conducted using Zoom polling. \nNew Horizons GIST 2021 Conference\nThe New Horizons GIST conferences traditionally focus on large annual meetings gathering over 50 representatives from 30 countries to discuss critical information that impacts the global GIST patient and medical communities. \nIf you have any questions or would like more information\, please don’t hesitate to contact LRGC at malcolm.sutherland@liferaftgroup.ca \nREGISTERSpeakers\nJoanna Przybyl\, PhD\nAssistant Professor\, Department of Surgery\, McGill University\nPrincipal Investigator\, Cancer Research Program\, Research Institute – McGill University Health Centre\nDavid Josephy\, PhD\nPresident\, GIST Sarcoma Life Raft Group Canada\nProfessor of Molecular and Cellular Biology\, retired.\nDavid has been involved with GIST for the past 20+ years\nHazel McLeod\nDirector\, GIST Sarcoma Life Raft Group Canada.\nSince 2018\, Hazel has been leading roundtable discussions\nwith GIST patients and caregivers across Canada
URL:https://liferaftgroup.org/event/gistlearn-online-gist-sarcoma-life-raft-group-canada/
CATEGORIES:Education,Events
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/11/gist-learn-canada-2021.png
ORGANIZER;CN="Malcolm Sutherland%2C GIST Sarcoma Life Raft Group Canada":MAILTO:malcolm.sutherland@liferaftgroup.ca
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20211202T080000
DTEND;TZID=America/New_York:20211202T080000
DTSTAMP:20260406T035017
CREATED:20210714T140522Z
LAST-MODIFIED:20210714T140522Z
UID:10000162-1638432000-1638432000@liferaftgroup.org
SUMMARY:New Member Orientation - Virtual
DESCRIPTION:This meeting will take place at 8am & 12pm ET every 1st Thursday.\nAre you a new LRG member and looking for guidance on all the things the Life Raft Group has to offer? Join us for a virtual orientation to hear from staff about our services and have the opportunity to ask questions and meet other new members. \nSign Up For Meeting Date
URL:https://liferaftgroup.org/event/new-member-orientation-virtual/2021-12-02/
CATEGORIES:Education,Events
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2021/07/orientation-meeting-2021.jpg
ORGANIZER;CN="The Life Raft Group":MAILTO:liferaft@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20211202T120000
DTEND;TZID=America/New_York:20211202T120000
DTSTAMP:20260406T035017
CREATED:20210714T140637Z
LAST-MODIFIED:20210714T140637Z
UID:10000167-1638446400-1638446400@liferaftgroup.org
SUMMARY:New Member Orientation - Virtual
DESCRIPTION:This meeting will take place at 8am & 12pm ET every 1st Thursday.\nAre you a new LRG member and looking for guidance on all the things the Life Raft Group has to offer? Join us for a virtual orientation to hear from staff about our services and have the opportunity to ask questions and meet other new members. \nSign Up For Meeting Date
URL:https://liferaftgroup.org/event/new-member-orientation-virtual-2/2021-12-02/
CATEGORIES:Education,Events
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2021/07/orientation-meeting-2021.jpg
ORGANIZER;CN="The Life Raft Group":MAILTO:liferaft@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20211211T100000
DTEND;TZID=America/New_York:20211211T100000
DTSTAMP:20260406T035017
CREATED:20211026T151822Z
LAST-MODIFIED:20211101T194056Z
UID:10000176-1639216800-1639216800@liferaftgroup.org
SUMMARY:GDOL Pittsburgh - Virtual
DESCRIPTION:A GIST Day of Learning (GDOL) is a free one day event to help patients and caregivers learn more about this rare cancer\, find support\, and enhance their knowledge base to help them navigate their cancer journey. \nThe Life Raft Group has a simple focus: to cure a form of cancer — GIST — and to help those living with it until then. To do this\, the Life Raft Group focuses on three key areas: research\, patient support & education\, and advocacy\, which lay the foundation of our mission to ensure the survival of GIST patients through a comprehensive approach connecting individual patients’ needs\, the worldwide community of GIST advocates and the global health and research environment. \nIf you have any questions\, please contact Diana Nieves at dnieves@liferaftgroup.org \nREGISTERThank you to our sponsors for this event:
URL:https://liferaftgroup.org/event/gdol-pittsburgh-virtual/
CATEGORIES:Education,Events
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2021/10/GDOL-Pittsburgh-2021.jpg
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Phoenix:20220127T140000
DTEND;TZID=America/Phoenix:20220127T160000
DTSTAMP:20260406T035017
CREATED:20211026T151755Z
LAST-MODIFIED:20211209T170258Z
UID:10000175-1643292000-1643299200@liferaftgroup.org
SUMMARY:GDOL Arizona - Virtual
DESCRIPTION:GDOL Arizona Virtual is January 27th\, 2pm – 4pm MT/4pm – 6pm ET\nA GIST Day of Learning (GDOL) is a free one day event to help patients and caregivers learn more about this rare cancer\, find support\, and enhance their knowledge base to help them navigate their cancer journey. \nThe Life Raft Group has a simple focus: to cure a form of cancer — GIST — and to help those living with it until then. To do this\, the Life Raft Group focuses on three key areas: research\, patient support & education\, and advocacy\, which lay the foundation of our mission to ensure the survival of GIST patients through a comprehensive approach connecting individual patients’ needs\, the worldwide community of GIST advocates and the global health and research environment. \nIf you have any questions\, please contact Diana Nieves at dnieves@liferaftgroup.org \nREGISTERThank you to our sponsors for this event:
URL:https://liferaftgroup.org/event/gdol-arizona-virtual/
CATEGORIES:Education,Events
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2021/10/GDOL-Arizona-2021.jpg
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220205T120000
DTEND;TZID=America/New_York:20220205T120000
DTSTAMP:20260406T035017
CREATED:20220119T195805Z
LAST-MODIFIED:20220120T154349Z
UID:10000202-1644062400-1644062400@liferaftgroup.org
SUMMARY:Let's Get to the GIST of It Series: Qinlock
DESCRIPTION:The Life Raft Group is excited to share our second segment of “Let’s Get the GIST of It”. \nIn this information session\, we will be discussing Qinlock (ripretinib). During this recurring online event\, patients and caregivers can participate and share their overall experiences (good or bad) with this treatment. The goal of this initiative is to discuss key topics that will provide patients and caregivers with insight about Qinlock (ripretinib). \nWe will discuss topics like side effects\, dosages\, and support. You will also have the opportunity to interact and connect with patients/caregivers like you\, that are taking the same drug or experiencing the same side effects. \nThis information session is open to anyone who has taken\, is taking\, or will be taking Qinlock/ripretinib. We also welcome patients and caregivers who just want more information regarding this drug. Big or small\, all input is important and we would love for you to be part of this program. \nIf you or a loved one is looking to learn more about Qinlock (ripretinib)\, please register for this event using the  button below \nDate: Feb. 5th\nTime: 12pm ET \nIf you have any questions\, please contact dmontoya@liferaftgroup.org \nREGISTER
URL:https://liferaftgroup.org/event/lets-get-to-the-gist-of-it-series-qinlock/
CATEGORIES:Education,Events
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2022/01/qinlock-webinar.png
ORGANIZER;CN="Denisse Montoya":MAILTO:dmontoya@liferafdtgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220222T120000
DTEND;TZID=America/New_York:20220222T120000
DTSTAMP:20260406T035017
CREATED:20220202T155920Z
LAST-MODIFIED:20220203T134700Z
UID:10000204-1645531200-1645531200@liferaftgroup.org
SUMMARY:Be an Informed Patient
DESCRIPTION:Navigating Survivorship Care\nFebruary 22 at 12pm ET \nThe Life Raft Group invites cancer patients and survivors and their caregivers to register for a webinar taking place on February 22\, 2022. The National Comprehensive Cancer Network (NCCN) has created guidelines specifically for patients and caregivers to help them navigate survivorship care. During this webinar\, NCCN’s Dr. Crystal Denlinger and Dottie Shead will review general principles of appropriate survivorship care and how to access and understand patient guidelines related to survivorship care\, so that all can ensure they are getting the appropriate care as cancer survivors. \nREGISTERAbout the Presenters\n\nDr. Crystal Denlinger\nSenior Vice President\, National Comprehensive Cancer Network \nCrystal Denlinger joined the National Comprehensive Cancer Network® (NCCN®) as Senior Vice President\, Chief Scientific Officer in April 2021. She oversees NCCN’s Oncology Research Program and the Drugs & Biologics and Biomarkers Compendia\, and provides\ninput into NCCN’s other programs. Prior to joining NCCN\, Dr. Denlinger was an Associate Professor of Hematology/Oncology at Fox Chase Cancer Center. In this capacity\, she served as the Chief of Gastrointestinal Medical Oncology where she managed the program’s clinical and research efforts\, the Deputy Director of the Early Phase Drug Development Program\, and Co-Director of the Survivorship Program. \nDr. Denlinger is a graduate of Rutgers New Jersey Medical School and The College of New Jersey\, where she earned her medical degree and bachelors of science. She completed her internal medicine residency at Mount Sinai Medical Center in New York City and her fellowship in hematology/oncology at Fox Chase Cancer Center/Temple University Hospital in Philadelphia. She is board certified in Internal Medicine and Medical Oncology. \nDr. Denlinger is a Fellow of the American College of Physicians (ACP) and a member of several medical societies\, including the American Society of Clinical Oncology (ASCO) and the European Society of Medical Oncology (ESMO). She has an extensive lecture and publication history\, with clinical and research interests including gastrointestinal cancers\, early phase drug development\, and cancer survivorship. \n\n\nDottie Shead\nSenior Director of Patient Information\, National Comprehensive Cancer Network \nIn this role\, Ms. Shead is responsible for production of the NCCN Guidelines for Patients. She monitors and maintains tracking schedules representing the status of the NCCN Guidelines for Patients in the development process and web publication. In addition\, Ms. Shead oversees the production of NCCN Programs affiliated with the NCCN Guidelines for Patients\, including the NCCN Know What Your Doctors Know Webinar series and NCCN Animations for Patients. \nMs. Shead joined NCCN in 2000 and served as a Guideline Coordinator responsible for the development\, update and publication of assigned NCCN Clinical Practice Guidelines. Dottie has a Master’s degree in Health Administration from St. Joseph’s University\, and a B.S. in Biology from Arcadia University.
URL:https://liferaftgroup.org/event/be-an-informed-patient-navigating-survivorship-care/
CATEGORIES:Education,Events
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2022/02/NCCN.png
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20220225T140000
DTEND;TZID=America/Chicago:20220225T140000
DTSTAMP:20260406T035017
CREATED:20220120T181416Z
LAST-MODIFIED:20220218T191416Z
UID:10000203-1645797600-1645797600@liferaftgroup.org
SUMMARY:GDOL Tennessee - Virtual
DESCRIPTION:GDOL Nashville Virtual is February 25th\, 2022\, 2pm to 4pm CT/ 3pm to 5pm ET\nA GIST Day of Learning (GDOL) is a free one day event to help patients and caregivers learn more about this rare cancer\, find support\, and enhance their knowledge base to help them navigate their cancer journey. \nThe Life Raft Group has a simple focus: to cure a form of cancer — GIST — and to help those living with it until then. To do this\, the Life Raft Group focuses on three key areas: research\, patient support & education\, and advocacy\, which lay the foundation of our mission to ensure the survival of GIST patients through a comprehensive approach connecting individual patients’ needs\, the worldwide community of GIST advocates and the global health and research environment. \nIf you have any questions\, please contact Diana Nieves at dnieves@liferaftgroup.org \nREGISTER \nThank you to our GDOL Sponsors:
URL:https://liferaftgroup.org/event/gdol-tennessee-virtual/
CATEGORIES:Education,Events
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2022/01/gdol-tennessee-2022.jpg
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220324T190000
DTEND;TZID=America/New_York:20220324T210000
DTSTAMP:20260406T035017
CREATED:20220222T161702Z
LAST-MODIFIED:20220222T162617Z
UID:10000207-1648148400-1648155600@liferaftgroup.org
SUMMARY:GDOL North Carolina - Virtual
DESCRIPTION:GDOL North Carolina is March 24th – 7pm-9pm ET\nA GIST Day of Learning (GDOL) is a free one day event to help patients and caregivers learn more about this rare cancer\, find support\, and enhance their knowledge base to help them navigate their cancer journey. \nThe Life Raft Group has a simple focus: to cure a form of cancer — GIST — and to help those living with it until then. To do this\, the Life Raft Group focuses on three key areas: research\, patient support & education\, and advocacy\, which lay the foundation of our mission to ensure the survival of GIST patients through a comprehensive approach connecting individual patients’ needs\, the worldwide community of GIST advocates and the global health and research environment. \nIf you have any questions\, please contact Diana Nieves at dnieves@liferaftgroup.org \nREGISTER
URL:https://liferaftgroup.org/event/gdol-north-carolina-virtual/
CATEGORIES:Education,Events
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220426T080000
DTEND;TZID=America/New_York:20220426T170000
DTSTAMP:20260406T035017
CREATED:20220304T194309Z
LAST-MODIFIED:20220304T194711Z
UID:10000210-1650960000-1650992400@liferaftgroup.org
SUMMARY:Rare Cancers: Great Unmet Medical Needs
DESCRIPTION:This Symposium is Virtual and In-Person at Columbia University Irving Medical Center\nThe Columbia University Herbert Irving Comprehensive Cancer Center and the Jed Ian Taxel Foundation for Rare Cancer Research invite you to join them for “Rare Cancers: Great Unmet Medical Needs”\, Tuesday\, April 26\, 2022. This CME conference is open to both the patient advocacy community and medical professionals. Leading experts in rare cancer medicine\, research\, public policy\, and advocacy will share their insights at this hybrid event (on location and virtual). Patients & caregivers/patient advocates attend for free. Read more… \n\n\n\nPROGRAM DESCRIPTION AND OBJECTIVES \nAt least 1 in 8 cancers diagnosed in adults are considered rare cancers. By definition rare cancers are ones with a prevalence of < 200\,000 cases per year in the United States. This means that well over 200\,000 patients are diagnosed with rare cancers each year in this country. If one excludes the most common types of cancers such as breast\, lung\, colon and prostate cancer the remaining cancers are particularly rare and this number is much higher. In fact\, rare cancers could represent up to a third of all cancers diagnosed each year. Therefore\, “rare cancers” represent a major health care problem in the United States and around the world. Despite the relative frequency of these cancers they are poorly understood\, infrequently studied\, and do not receive the type of funding seen in the more common tumor types. The symposium is designed to focus on specific types of rare cancers with the goal of developing new treatment paradigms based on an improved understanding of the molecular biology of this heterogeneous group of disease. \nAt the conclusion of this activity\, participants will be better able to: \n\nDefine rare cancers and its heterogeneity\nDiscuss the current approaches used to treat this range of diseases\nIdentify the tumor biology of rare cancers and how this could impact future therapeutic directions in cancer therapy\nPropose future directions in cancer medicine for these rare cancers\nDelineate a blueprint for investing resources in the treatment and cure of rare cancer\n\n\n\n\nOne CME credit is available for medical professionals\, and the deadline for Abstracts is April 1st. All information is available in the brochure from the link below. \nREGISTER\n\n\nMEETING LOCATION \nColumbia University Irving Medical Center\n1130 St. Nicholas Avenue\, First Floor\, New York\, NY 10032 \nParking is available at the Columbia University Irving Medical Center parking lot\, located on the southwest corner of Fort Washington Avenue and West 165th Street. \n\n\n\nEvent Brochure/Agenda PDF
URL:https://liferaftgroup.org/event/rare-cancers-great-unmet-medical-needs/
LOCATION:Columbia University Herbert Irving Comprehensive Cancer Center\, 1130 St. Nicholas Avenue\, New York\, NY\, 10031\, United States
CATEGORIES:Education,Events
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2022/03/great-unmet-needs-symposium.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220427T140000
DTEND;TZID=America/New_York:20220427T160000
DTSTAMP:20260406T035017
CREATED:20220303T150736Z
LAST-MODIFIED:20220304T203028Z
UID:10000209-1651068000-1651075200@liferaftgroup.org
SUMMARY:GDOL Washington\, DC - Virtual
DESCRIPTION:GDOL DC is April 27th – 2pm-4pm ET\nA GIST Day of Learning (GDOL) is a free one day event to help patients and caregivers learn more about this rare cancer\, find support\, and enhance their knowledge base to help them navigate their cancer journey. \nThe Life Raft Group has a simple focus: to cure a form of cancer — GIST — and to help those living with it until then. To do this\, the Life Raft Group focuses on three key areas: research\, patient support & education\, and advocacy\, which lay the foundation of our mission to ensure the survival of GIST patients through a comprehensive approach connecting individual patients’ needs\, the worldwide community of GIST advocates and the global health and research environment. \nIf you have any questions\, please contact Diana Nieves at dnieves@liferaftgroup.org \nREGISTER
URL:https://liferaftgroup.org/event/gdol-washington-dc-virtual/
CATEGORIES:Education,Events
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Mexico_City:20220607T190000
DTEND;TZID=America/Mexico_City:20220607T190000
DTSTAMP:20260406T035017
CREATED:20220601T184801Z
LAST-MODIFIED:20220601T185842Z
UID:10000235-1654628400-1654628400@liferaftgroup.org
SUMMARY:Efectos de la Nutrición y la Microbiota Intestinal en pacientes con GIST
DESCRIPTION:La versión en español titulada\, “Efectos de la Nutrición y la Microbiota Intestinal en pacientes con GIST” \nMartes 07 junio a las 19:00 Cdmx/20:00 Chile /19:00 Colombia /21:00 Ara. \nOrganizado por Fundación GIST México y AlianzaGIST. \nLa Sra. Berenice Carbajal-López es una estudiante de doctorado que tiene un Máster en Ciencias de la Salud con una tesis relacionada con el uso de tecnologías en la atención nutricional y psicológica de los pacientes con GIST. Durante esta presentación virtual\, la Sra. Carbajal-López describió los beneficios de una nutrición adecuada\, la relación entre la nutrición y los procedimientos quirúrgicos\, el vínculo entre el microbioma y el cáncer\, y el ejercicio. \n¿tienes preguntas?\nEnvíe un correo electrónico a Piga Fernández en pfernandez@liferaftgroup.org \nREGISTERAcerca del presentador: \nBerenice Carbajal-López\nFundación GIST México \nLa Sra. Berenice Carbajal-López es estudiante de doctorado y tiene una maestría en Ciencias de la Salud con una tesis relacionada con el uso de tecnologías en la atención nutricional y psicológica de pacientes con GIST. Es diplomada en Investigación Clínica y Bioestadística por el Instituto Nacional de Cancerología de México. Cuenta con experiencia en el cuidado de la salud de pacientes con GIST\, como Coordinadora de Atención al Paciente de 2014 a 2019 y como Directora Global desde 2020 en la Fundación GIST México. La Sra. Carbajal-López también ha colaborado en la redacción y revisión de artículos de investigación y capítulos de libros en el área de Oncología\, con ocho publicaciones a la fecha como autora principal y coautora en revistas indexadas y ha participado en congresos nacionales e internacionales como SMEO 2018\, ASCO 2019 y ESMO-GI 2017\, 2018\, 2019\, 2020\, 2021 y 2022.
URL:https://liferaftgroup.org/event/efectos-de-la-nutricion-y-la-microbiota-intestinal-en-pacientes-con-gist/
CATEGORIES:Education,Events,Webcast
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2022/06/Invitación-Alianza-GIST.jpg
ORGANIZER;CN="Piga Fern%C3%A1ndez":MAILTO:pfernandez@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20220729
DTEND;VALUE=DATE:20220801
DTSTAMP:20260406T035017
CREATED:20190424T181544Z
LAST-MODIFIED:20220721T180545Z
UID:10000027-1659052800-1659311999@liferaftgroup.org
SUMMARY:Life Fest New Orleans
DESCRIPTION:Life Fest New Orleans\n July 29th-31st\, 2022\nIf you have any questions regarding Life Fest\, please email Jessica Nowak at jnowak@liferaftgroup.org \nREGISTERLife Fest is a unique event where hundreds of patients and caregivers come together for a weekend to interact with each other and the medical and scientific communities that serve them. Faced with a rare form of cancer\, GIST patients have a great need for information about this disease\, particularly as the science evolves and our understanding reveals a complex set of subtypes of GIST\, each responding differently to available treatments. Each year brings a wealth of new information\, and patients are eager to learn about the latest treatments. \nLife Fest workshops provide patients with emerging medical information\, and they come away with a deeper knowledge of the disease\, treatments\, and side-effect management. They find hope in knowing the scientific community is working toward a cure\, and hope is such a vital asset as they struggle day by day for survival. \nThe Life Raft Group emerged in recognition of the tremendous need for support in the GIST community. Life Fest 2022 will provide patients and caregivers with that support. Coming together with fellow patients from all walks of life from around the world is a meaningful and powerful experience. \nIn addition to our traditional educational workshops\, Life Fest 2022 will feature scientific presentations highlighting the newest research and the latest treatments. Additionally\, other disease advocacy groups will be invited to present the work of their organizations\, and share lessons learned. \nReasons to attend Life Fest \nProgram Highlights \nWhere to Eat in NOLA \nSights & Sounds of NOLA  \nClick to view online and print agenda \n \nThank you to our Life Fest Sponsors!
URL:https://liferaftgroup.org/event/lifefest2022/
CATEGORIES:Education,Events
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2019/04/life-fest-2022.png
ORGANIZER;CN="The Life Raft Group":MAILTO:liferaft@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220907T180000
DTEND;TZID=America/New_York:20220907T180000
DTSTAMP:20260406T035017
CREATED:20220818T132904Z
LAST-MODIFIED:20220818T132904Z
UID:10000238-1662573600-1662573600@liferaftgroup.org
SUMMARY:Let's Get to the GIST of It!
DESCRIPTION:The Life Raft Group is excited host another “Let’s Get the GIST of It” session. During this recurring online event\, patients and caregivers participate and share  overall experiences (good or bad) of their current treatment. The topic of this installment is “The new and upcoming treatments in GIST.” We will be discussing  two new clinical trials –  Cogent (CGT9486) and Theseus (THE-630)\, as well as recently approved drugs like AYVAKIT (avapritinib) and QINLOCK (ripretinib). \nThe goal of this initiative is to discuss key topics that will provide patients and caregivers with insight about their current treatment\, learn more information about new clinical trials or learn more about a new drug by listening to other people’s experiences. During this event\, we will discuss topics like side effects\, dosages\, scans\, and support. You will also have the opportunity to interact and connect with patients like you who are taking the same drug or experiencing the same side effects. Big or small\, all input is important and we are excited for you to be part of this initiative. \nIf you or a loved one is currently enrolled in a Cogent (CGT9486) and Theseus (THE-630) trial or currently taking ripretinib or avapritinib and would like to learn more about these drugs or share your experiences with other GISTers\, please join this event. For more information or questions\, please contact Sahibjeet Kaur at skaur@liferaftgroup.org \nREGISTER
URL:https://liferaftgroup.org/event/lets-get-to-the-gist-of-it/
CATEGORIES:Education,Events
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2022/08/lets-get-the-gist-of-it.jpg
ORGANIZER;CN="Sahibjeet Kaur":MAILTO:skaur@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20220924T083000
DTEND;TZID=America/Los_Angeles:20220924T083000
DTSTAMP:20260406T035017
CREATED:20220217T155303Z
LAST-MODIFIED:20220906T135627Z
UID:10000206-1664008200-1664008200@liferaftgroup.org
SUMMARY:GDOL San Diego
DESCRIPTION:GDOL San Diego is September 24th\, 8:30 am\nLife Raft Group GIST Do It Walk (Prepare for Miles for Merak) at 8:00 am (Registration at 7:30).\nBreakfast 8:30\, Event Start 9:00 \nA GIST Day of Learning (GDOL) is a free one day event to help patients and caregivers learn more about this rare cancer\, find support\, and enhance their knowledge base to help them navigate their cancer journey. \nThe Life Raft Group has a simple focus: to cure a form of cancer — GIST — and to help those living with it until then. To do this\, the Life Raft Group focuses on three key areas: research\, patient support & education\, and advocacy\, which lay the foundation of our mission to ensure the survival of GIST patients through a comprehensive approach connecting individual patients’ needs\, the worldwide community of GIST advocates and the global health and research environment. \nIf you have any questions\, please contact Diana Nieves at dnieves@liferaftgroup.org \nREGISTERClick for PDF of Agenda \n \nThank you to our GDOL Sponsors:
URL:https://liferaftgroup.org/event/gdol-san-diego/
LOCATION:Moores Cancer Center UC San Diego Health\, Goldberg Auditorium\, 3855 Health Sciences Drive\, San Diego\, CA\, 92037\, United States
CATEGORIES:Education,Events
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20221012T120000
DTEND;TZID=America/New_York:20221012T120000
DTSTAMP:20260406T035017
CREATED:20220913T233534Z
LAST-MODIFIED:20220926T132350Z
UID:10000245-1665576000-1665576000@liferaftgroup.org
SUMMARY:The Emerging Role of Circulating Tumor DNA in GIST
DESCRIPTION:October 12\, Noon ET \nIn this webinar\, “The Emerging Role of Circulating Tumor DNA in Gastrointestinal Stromal Tumor”\, Dr. Bialick will discuss recent data looking at treatment outcomes based off KIT resistant mutations identified by circulating tumor DNA in patients with GIST. \nREGISTEROur Presenter\nSteven Bialick\, DO\nSylvester Comprehensive Cancer Center\, Miami \nSteve Bialick\, DO\, is a  hematology/oncology fellow at Jackson Memorial Hospital and the University of Miami/Sylvester Comprehensive Cancer Center in Miami\, FL.  He completed his internal medicine residency within the University of Pennsylvania Health System before working as a hematologic malignancy hospitalist at the Hospital of the University of Pennsylvania in Philadelphia\, PA.  He is now completing his oncology training with a focus on solid tumor malignancies\, specifically soft tissue and bone sarcomas.  His research interests include hereditary cancer predisposition syndromes\, circulating tumor DNA and its role in guiding targeted therapies\, and the role of DNA damage repair pathways in sarcomas. \nThank you to our Sponsors:
URL:https://liferaftgroup.org/event/the-emerging-role-of-circulating-tumor-dna-in-gist/
CATEGORIES:Education,Events
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20221104
DTEND;VALUE=DATE:20221106
DTSTAMP:20260406T035017
CREATED:20220217T154650Z
LAST-MODIFIED:20221026T123831Z
UID:10000205-1667520000-1667692799@liferaftgroup.org
SUMMARY:GDOL Miami
DESCRIPTION:GDOL Miami – November 4th & 5th – In person\nA GIST Day of Learning (GDOL) is a free one day event to help patients and caregivers learn more about this rare cancer\, find support\, and enhance their knowledge base to help them navigate their cancer journey. \nThe mission of the Life Raft Group is to enhance survival and quality of life for people living with GIST through patient-powered research\, education and empowerment\, and global advocacy efforts. The LRG vision is to champion patient-powered science and drastically increase long-term survivorship for all cancer patients. To accomplish this\, we rely on four key pillars;\n– Leverage the patient perspective to drive innovative solutions in cancer research\n– Educate and empower patients to take a larger role in their care\n– Accelerate research outcomes through collaborative efforts\n– Increase access to effective treatments worldwide \nIf you have any questions\, please contact Diana Nieves at dnieves@liferaftgroup.org \nREGISTERClick here for printable version of agenda \n \nThank you to our GDOL Sponsors:
URL:https://liferaftgroup.org/event/gdol-miami/
LOCATION:Gordon Center for Simulation & Innovation in Medical Education\, 1120 NW 14th Street\, Miami\, FL\, 33136\, United States
CATEGORIES:Education,Events
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
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