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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20211104T120000
DTEND;TZID=America/New_York:20211104T120000
DTSTAMP:20260406T034136
CREATED:20210714T140637Z
LAST-MODIFIED:20210714T140637Z
UID:10000166-1636027200-1636027200@liferaftgroup.org
SUMMARY:New Member Orientation - Virtual
DESCRIPTION:This meeting will take place at 8am & 12pm ET every 1st Thursday.\nAre you a new LRG member and looking for guidance on all the things the Life Raft Group has to offer? Join us for a virtual orientation to hear from staff about our services and have the opportunity to ask questions and meet other new members. \nSign Up For Meeting Date
URL:https://liferaftgroup.org/event/new-member-orientation-virtual-2/2021-11-04/
LOCATION:IL
CATEGORIES:Education,Events
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2021/07/orientation-meeting-2021.jpg
ORGANIZER;CN="The Life Raft Group":MAILTO:liferaft@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20211120T140000
DTEND;TZID=America/New_York:20211120T163000
DTSTAMP:20260406T034136
CREATED:20211109T182713Z
LAST-MODIFIED:20211109T182713Z
UID:10000177-1637416800-1637425800@liferaftgroup.org
SUMMARY:GISTLearn Online - GIST Sarcoma Life Raft Group Canada
DESCRIPTION:GIST Sarcoma Life Raft Group Canada (LRGC) is pleased to invite you to register for our “GIST LEARN Online” virtual meeting on Saturday\, November 20\, 2021. The Annual General Meeting meeting will be held at the beginning of the videoconference. \nFor the past thirteen years\, Life Raft Group Canada has been hosting GIST patient and caregiver meetings to provide support and education for those living with GIST. These events are open to GIST patients\, caregivers\, family members\, friends\, healthcare providers\, and anyone who wishes to learn more about GIST. \nLRGC Annual General Meeting\nLRGC members have already been notified about our AGM. Everyone attending the November 20th GIST LEARN Online\, is also welcome to attend the AGM portion of the meeting\, although only LRGC members can participate in the voting procedures. Again this year\, voting at the AGM will be conducted using Zoom polling. \nNew Horizons GIST 2021 Conference\nThe New Horizons GIST conferences traditionally focus on large annual meetings gathering over 50 representatives from 30 countries to discuss critical information that impacts the global GIST patient and medical communities. \nIf you have any questions or would like more information\, please don’t hesitate to contact LRGC at malcolm.sutherland@liferaftgroup.ca \nREGISTERSpeakers\nJoanna Przybyl\, PhD\nAssistant Professor\, Department of Surgery\, McGill University\nPrincipal Investigator\, Cancer Research Program\, Research Institute – McGill University Health Centre\nDavid Josephy\, PhD\nPresident\, GIST Sarcoma Life Raft Group Canada\nProfessor of Molecular and Cellular Biology\, retired.\nDavid has been involved with GIST for the past 20+ years\nHazel McLeod\nDirector\, GIST Sarcoma Life Raft Group Canada.\nSince 2018\, Hazel has been leading roundtable discussions\nwith GIST patients and caregivers across Canada
URL:https://liferaftgroup.org/event/gistlearn-online-gist-sarcoma-life-raft-group-canada/
LOCATION:IL
CATEGORIES:Education,Events
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/11/gist-learn-canada-2021.png
ORGANIZER;CN="Malcolm Sutherland%2C GIST Sarcoma Life Raft Group Canada":MAILTO:malcolm.sutherland@liferaftgroup.ca
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20211202T080000
DTEND;TZID=America/New_York:20211202T080000
DTSTAMP:20260406T034136
CREATED:20210714T140522Z
LAST-MODIFIED:20210714T140522Z
UID:10000162-1638432000-1638432000@liferaftgroup.org
SUMMARY:New Member Orientation - Virtual
DESCRIPTION:This meeting will take place at 8am & 12pm ET every 1st Thursday.\nAre you a new LRG member and looking for guidance on all the things the Life Raft Group has to offer? Join us for a virtual orientation to hear from staff about our services and have the opportunity to ask questions and meet other new members. \nSign Up For Meeting Date
URL:https://liferaftgroup.org/event/new-member-orientation-virtual/2021-12-02/
LOCATION:IL
CATEGORIES:Education,Events
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2021/07/orientation-meeting-2021.jpg
ORGANIZER;CN="The Life Raft Group":MAILTO:liferaft@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20211202T120000
DTEND;TZID=America/New_York:20211202T120000
DTSTAMP:20260406T034136
CREATED:20210714T140637Z
LAST-MODIFIED:20210714T140637Z
UID:10000167-1638446400-1638446400@liferaftgroup.org
SUMMARY:New Member Orientation - Virtual
DESCRIPTION:This meeting will take place at 8am & 12pm ET every 1st Thursday.\nAre you a new LRG member and looking for guidance on all the things the Life Raft Group has to offer? Join us for a virtual orientation to hear from staff about our services and have the opportunity to ask questions and meet other new members. \nSign Up For Meeting Date
URL:https://liferaftgroup.org/event/new-member-orientation-virtual-2/2021-12-02/
LOCATION:IL
CATEGORIES:Education,Events
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2021/07/orientation-meeting-2021.jpg
ORGANIZER;CN="The Life Raft Group":MAILTO:liferaft@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20211211T100000
DTEND;TZID=America/New_York:20211211T100000
DTSTAMP:20260406T034136
CREATED:20211026T151822Z
LAST-MODIFIED:20211101T194056Z
UID:10000176-1639216800-1639216800@liferaftgroup.org
SUMMARY:GDOL Pittsburgh - Virtual
DESCRIPTION:A GIST Day of Learning (GDOL) is a free one day event to help patients and caregivers learn more about this rare cancer\, find support\, and enhance their knowledge base to help them navigate their cancer journey. \nThe Life Raft Group has a simple focus: to cure a form of cancer — GIST — and to help those living with it until then. To do this\, the Life Raft Group focuses on three key areas: research\, patient support & education\, and advocacy\, which lay the foundation of our mission to ensure the survival of GIST patients through a comprehensive approach connecting individual patients’ needs\, the worldwide community of GIST advocates and the global health and research environment. \nIf you have any questions\, please contact Diana Nieves at dnieves@liferaftgroup.org \nREGISTERThank you to our sponsors for this event:
URL:https://liferaftgroup.org/event/gdol-pittsburgh-virtual/
LOCATION:IL
CATEGORIES:Education,Events
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2021/10/GDOL-Pittsburgh-2021.jpg
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Phoenix:20220127T140000
DTEND;TZID=America/Phoenix:20220127T160000
DTSTAMP:20260406T034136
CREATED:20211026T151755Z
LAST-MODIFIED:20211209T170258Z
UID:10000175-1643292000-1643299200@liferaftgroup.org
SUMMARY:GDOL Arizona - Virtual
DESCRIPTION:GDOL Arizona Virtual is January 27th\, 2pm – 4pm MT/4pm – 6pm ET\nA GIST Day of Learning (GDOL) is a free one day event to help patients and caregivers learn more about this rare cancer\, find support\, and enhance their knowledge base to help them navigate their cancer journey. \nThe Life Raft Group has a simple focus: to cure a form of cancer — GIST — and to help those living with it until then. To do this\, the Life Raft Group focuses on three key areas: research\, patient support & education\, and advocacy\, which lay the foundation of our mission to ensure the survival of GIST patients through a comprehensive approach connecting individual patients’ needs\, the worldwide community of GIST advocates and the global health and research environment. \nIf you have any questions\, please contact Diana Nieves at dnieves@liferaftgroup.org \nREGISTERThank you to our sponsors for this event:
URL:https://liferaftgroup.org/event/gdol-arizona-virtual/
LOCATION:IL
CATEGORIES:Education,Events
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2021/10/GDOL-Arizona-2021.jpg
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220205T120000
DTEND;TZID=America/New_York:20220205T120000
DTSTAMP:20260406T034136
CREATED:20220119T195805Z
LAST-MODIFIED:20220120T154349Z
UID:10000202-1644062400-1644062400@liferaftgroup.org
SUMMARY:Let's Get to the GIST of It Series: Qinlock
DESCRIPTION:The Life Raft Group is excited to share our second segment of “Let’s Get the GIST of It”. \nIn this information session\, we will be discussing Qinlock (ripretinib). During this recurring online event\, patients and caregivers can participate and share their overall experiences (good or bad) with this treatment. The goal of this initiative is to discuss key topics that will provide patients and caregivers with insight about Qinlock (ripretinib). \nWe will discuss topics like side effects\, dosages\, and support. You will also have the opportunity to interact and connect with patients/caregivers like you\, that are taking the same drug or experiencing the same side effects. \nThis information session is open to anyone who has taken\, is taking\, or will be taking Qinlock/ripretinib. We also welcome patients and caregivers who just want more information regarding this drug. Big or small\, all input is important and we would love for you to be part of this program. \nIf you or a loved one is looking to learn more about Qinlock (ripretinib)\, please register for this event using the  button below \nDate: Feb. 5th\nTime: 12pm ET \nIf you have any questions\, please contact dmontoya@liferaftgroup.org \nREGISTER
URL:https://liferaftgroup.org/event/lets-get-to-the-gist-of-it-series-qinlock/
LOCATION:IL
CATEGORIES:Education,Events
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2022/01/qinlock-webinar.png
ORGANIZER;CN="Denisse Montoya":MAILTO:dmontoya@liferafdtgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220222T120000
DTEND;TZID=America/New_York:20220222T120000
DTSTAMP:20260406T034136
CREATED:20220202T155920Z
LAST-MODIFIED:20220203T134700Z
UID:10000204-1645531200-1645531200@liferaftgroup.org
SUMMARY:Be an Informed Patient
DESCRIPTION:Navigating Survivorship Care\nFebruary 22 at 12pm ET \nThe Life Raft Group invites cancer patients and survivors and their caregivers to register for a webinar taking place on February 22\, 2022. The National Comprehensive Cancer Network (NCCN) has created guidelines specifically for patients and caregivers to help them navigate survivorship care. During this webinar\, NCCN’s Dr. Crystal Denlinger and Dottie Shead will review general principles of appropriate survivorship care and how to access and understand patient guidelines related to survivorship care\, so that all can ensure they are getting the appropriate care as cancer survivors. \nREGISTERAbout the Presenters\n\nDr. Crystal Denlinger\nSenior Vice President\, National Comprehensive Cancer Network \nCrystal Denlinger joined the National Comprehensive Cancer Network® (NCCN®) as Senior Vice President\, Chief Scientific Officer in April 2021. She oversees NCCN’s Oncology Research Program and the Drugs & Biologics and Biomarkers Compendia\, and provides\ninput into NCCN’s other programs. Prior to joining NCCN\, Dr. Denlinger was an Associate Professor of Hematology/Oncology at Fox Chase Cancer Center. In this capacity\, she served as the Chief of Gastrointestinal Medical Oncology where she managed the program’s clinical and research efforts\, the Deputy Director of the Early Phase Drug Development Program\, and Co-Director of the Survivorship Program. \nDr. Denlinger is a graduate of Rutgers New Jersey Medical School and The College of New Jersey\, where she earned her medical degree and bachelors of science. She completed her internal medicine residency at Mount Sinai Medical Center in New York City and her fellowship in hematology/oncology at Fox Chase Cancer Center/Temple University Hospital in Philadelphia. She is board certified in Internal Medicine and Medical Oncology. \nDr. Denlinger is a Fellow of the American College of Physicians (ACP) and a member of several medical societies\, including the American Society of Clinical Oncology (ASCO) and the European Society of Medical Oncology (ESMO). She has an extensive lecture and publication history\, with clinical and research interests including gastrointestinal cancers\, early phase drug development\, and cancer survivorship. \n\n\nDottie Shead\nSenior Director of Patient Information\, National Comprehensive Cancer Network \nIn this role\, Ms. Shead is responsible for production of the NCCN Guidelines for Patients. She monitors and maintains tracking schedules representing the status of the NCCN Guidelines for Patients in the development process and web publication. In addition\, Ms. Shead oversees the production of NCCN Programs affiliated with the NCCN Guidelines for Patients\, including the NCCN Know What Your Doctors Know Webinar series and NCCN Animations for Patients. \nMs. Shead joined NCCN in 2000 and served as a Guideline Coordinator responsible for the development\, update and publication of assigned NCCN Clinical Practice Guidelines. Dottie has a Master’s degree in Health Administration from St. Joseph’s University\, and a B.S. in Biology from Arcadia University.
URL:https://liferaftgroup.org/event/be-an-informed-patient-navigating-survivorship-care/
LOCATION:IL
CATEGORIES:Education,Events
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2022/02/NCCN.png
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20220225T140000
DTEND;TZID=America/Chicago:20220225T140000
DTSTAMP:20260406T034136
CREATED:20220120T181416Z
LAST-MODIFIED:20220218T191416Z
UID:10000203-1645797600-1645797600@liferaftgroup.org
SUMMARY:GDOL Tennessee - Virtual
DESCRIPTION:GDOL Nashville Virtual is February 25th\, 2022\, 2pm to 4pm CT/ 3pm to 5pm ET\nA GIST Day of Learning (GDOL) is a free one day event to help patients and caregivers learn more about this rare cancer\, find support\, and enhance their knowledge base to help them navigate their cancer journey. \nThe Life Raft Group has a simple focus: to cure a form of cancer — GIST — and to help those living with it until then. To do this\, the Life Raft Group focuses on three key areas: research\, patient support & education\, and advocacy\, which lay the foundation of our mission to ensure the survival of GIST patients through a comprehensive approach connecting individual patients’ needs\, the worldwide community of GIST advocates and the global health and research environment. \nIf you have any questions\, please contact Diana Nieves at dnieves@liferaftgroup.org \nREGISTER \nThank you to our GDOL Sponsors:
URL:https://liferaftgroup.org/event/gdol-tennessee-virtual/
LOCATION:IL
CATEGORIES:Education,Events
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2022/01/gdol-tennessee-2022.jpg
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220324T190000
DTEND;TZID=America/New_York:20220324T210000
DTSTAMP:20260406T034136
CREATED:20220222T161702Z
LAST-MODIFIED:20220222T162617Z
UID:10000207-1648148400-1648155600@liferaftgroup.org
SUMMARY:GDOL North Carolina - Virtual
DESCRIPTION:GDOL North Carolina is March 24th – 7pm-9pm ET\nA GIST Day of Learning (GDOL) is a free one day event to help patients and caregivers learn more about this rare cancer\, find support\, and enhance their knowledge base to help them navigate their cancer journey. \nThe Life Raft Group has a simple focus: to cure a form of cancer — GIST — and to help those living with it until then. To do this\, the Life Raft Group focuses on three key areas: research\, patient support & education\, and advocacy\, which lay the foundation of our mission to ensure the survival of GIST patients through a comprehensive approach connecting individual patients’ needs\, the worldwide community of GIST advocates and the global health and research environment. \nIf you have any questions\, please contact Diana Nieves at dnieves@liferaftgroup.org \nREGISTER
URL:https://liferaftgroup.org/event/gdol-north-carolina-virtual/
LOCATION:IL
CATEGORIES:Education,Events
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220426T080000
DTEND;TZID=America/New_York:20220426T170000
DTSTAMP:20260406T034136
CREATED:20220304T194309Z
LAST-MODIFIED:20220304T194711Z
UID:10000210-1650960000-1650992400@liferaftgroup.org
SUMMARY:Rare Cancers: Great Unmet Medical Needs
DESCRIPTION:This Symposium is Virtual and In-Person at Columbia University Irving Medical Center\nThe Columbia University Herbert Irving Comprehensive Cancer Center and the Jed Ian Taxel Foundation for Rare Cancer Research invite you to join them for “Rare Cancers: Great Unmet Medical Needs”\, Tuesday\, April 26\, 2022. This CME conference is open to both the patient advocacy community and medical professionals. Leading experts in rare cancer medicine\, research\, public policy\, and advocacy will share their insights at this hybrid event (on location and virtual). Patients & caregivers/patient advocates attend for free. Read more… \n\n\n\nPROGRAM DESCRIPTION AND OBJECTIVES \nAt least 1 in 8 cancers diagnosed in adults are considered rare cancers. By definition rare cancers are ones with a prevalence of < 200\,000 cases per year in the United States. This means that well over 200\,000 patients are diagnosed with rare cancers each year in this country. If one excludes the most common types of cancers such as breast\, lung\, colon and prostate cancer the remaining cancers are particularly rare and this number is much higher. In fact\, rare cancers could represent up to a third of all cancers diagnosed each year. Therefore\, “rare cancers” represent a major health care problem in the United States and around the world. Despite the relative frequency of these cancers they are poorly understood\, infrequently studied\, and do not receive the type of funding seen in the more common tumor types. The symposium is designed to focus on specific types of rare cancers with the goal of developing new treatment paradigms based on an improved understanding of the molecular biology of this heterogeneous group of disease. \nAt the conclusion of this activity\, participants will be better able to: \n\nDefine rare cancers and its heterogeneity\nDiscuss the current approaches used to treat this range of diseases\nIdentify the tumor biology of rare cancers and how this could impact future therapeutic directions in cancer therapy\nPropose future directions in cancer medicine for these rare cancers\nDelineate a blueprint for investing resources in the treatment and cure of rare cancer\n\n\n\n\nOne CME credit is available for medical professionals\, and the deadline for Abstracts is April 1st. All information is available in the brochure from the link below. \nREGISTER\n\n\nMEETING LOCATION \nColumbia University Irving Medical Center\n1130 St. Nicholas Avenue\, First Floor\, New York\, NY 10032 \nParking is available at the Columbia University Irving Medical Center parking lot\, located on the southwest corner of Fort Washington Avenue and West 165th Street. \n\n\n\nEvent Brochure/Agenda PDF
URL:https://liferaftgroup.org/event/rare-cancers-great-unmet-medical-needs/
LOCATION:Columbia University Herbert Irving Comprehensive Cancer Center\, 1130 St. Nicholas Avenue\, New York\, NY\, 10031\, United States
CATEGORIES:Education,Events
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2022/03/great-unmet-needs-symposium.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220427T140000
DTEND;TZID=America/New_York:20220427T160000
DTSTAMP:20260406T034136
CREATED:20220303T150736Z
LAST-MODIFIED:20220304T203028Z
UID:10000209-1651068000-1651075200@liferaftgroup.org
SUMMARY:GDOL Washington\, DC - Virtual
DESCRIPTION:GDOL DC is April 27th – 2pm-4pm ET\nA GIST Day of Learning (GDOL) is a free one day event to help patients and caregivers learn more about this rare cancer\, find support\, and enhance their knowledge base to help them navigate their cancer journey. \nThe Life Raft Group has a simple focus: to cure a form of cancer — GIST — and to help those living with it until then. To do this\, the Life Raft Group focuses on three key areas: research\, patient support & education\, and advocacy\, which lay the foundation of our mission to ensure the survival of GIST patients through a comprehensive approach connecting individual patients’ needs\, the worldwide community of GIST advocates and the global health and research environment. \nIf you have any questions\, please contact Diana Nieves at dnieves@liferaftgroup.org \nREGISTER
URL:https://liferaftgroup.org/event/gdol-washington-dc-virtual/
LOCATION:IL
CATEGORIES:Education,Events
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Mexico_City:20220607T190000
DTEND;TZID=America/Mexico_City:20220607T190000
DTSTAMP:20260406T034136
CREATED:20220601T184801Z
LAST-MODIFIED:20220601T185842Z
UID:10000235-1654628400-1654628400@liferaftgroup.org
SUMMARY:Efectos de la Nutrición y la Microbiota Intestinal en pacientes con GIST
DESCRIPTION:La versión en español titulada\, “Efectos de la Nutrición y la Microbiota Intestinal en pacientes con GIST” \nMartes 07 junio a las 19:00 Cdmx/20:00 Chile /19:00 Colombia /21:00 Ara. \nOrganizado por Fundación GIST México y AlianzaGIST. \nLa Sra. Berenice Carbajal-López es una estudiante de doctorado que tiene un Máster en Ciencias de la Salud con una tesis relacionada con el uso de tecnologías en la atención nutricional y psicológica de los pacientes con GIST. Durante esta presentación virtual\, la Sra. Carbajal-López describió los beneficios de una nutrición adecuada\, la relación entre la nutrición y los procedimientos quirúrgicos\, el vínculo entre el microbioma y el cáncer\, y el ejercicio. \n¿tienes preguntas?\nEnvíe un correo electrónico a Piga Fernández en pfernandez@liferaftgroup.org \nREGISTERAcerca del presentador: \nBerenice Carbajal-López\nFundación GIST México \nLa Sra. Berenice Carbajal-López es estudiante de doctorado y tiene una maestría en Ciencias de la Salud con una tesis relacionada con el uso de tecnologías en la atención nutricional y psicológica de pacientes con GIST. Es diplomada en Investigación Clínica y Bioestadística por el Instituto Nacional de Cancerología de México. Cuenta con experiencia en el cuidado de la salud de pacientes con GIST\, como Coordinadora de Atención al Paciente de 2014 a 2019 y como Directora Global desde 2020 en la Fundación GIST México. La Sra. Carbajal-López también ha colaborado en la redacción y revisión de artículos de investigación y capítulos de libros en el área de Oncología\, con ocho publicaciones a la fecha como autora principal y coautora en revistas indexadas y ha participado en congresos nacionales e internacionales como SMEO 2018\, ASCO 2019 y ESMO-GI 2017\, 2018\, 2019\, 2020\, 2021 y 2022.
URL:https://liferaftgroup.org/event/efectos-de-la-nutricion-y-la-microbiota-intestinal-en-pacientes-con-gist/
LOCATION:IL
CATEGORIES:Education,Events,Webcast
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2022/06/Invitación-Alianza-GIST.jpg
ORGANIZER;CN="Piga Fern%C3%A1ndez":MAILTO:pfernandez@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20220729
DTEND;VALUE=DATE:20220801
DTSTAMP:20260406T034136
CREATED:20190424T181544Z
LAST-MODIFIED:20220721T180545Z
UID:10000027-1659052800-1659311999@liferaftgroup.org
SUMMARY:Life Fest New Orleans
DESCRIPTION:Life Fest New Orleans\n July 29th-31st\, 2022\nIf you have any questions regarding Life Fest\, please email Jessica Nowak at jnowak@liferaftgroup.org \nREGISTERLife Fest is a unique event where hundreds of patients and caregivers come together for a weekend to interact with each other and the medical and scientific communities that serve them. Faced with a rare form of cancer\, GIST patients have a great need for information about this disease\, particularly as the science evolves and our understanding reveals a complex set of subtypes of GIST\, each responding differently to available treatments. Each year brings a wealth of new information\, and patients are eager to learn about the latest treatments. \nLife Fest workshops provide patients with emerging medical information\, and they come away with a deeper knowledge of the disease\, treatments\, and side-effect management. They find hope in knowing the scientific community is working toward a cure\, and hope is such a vital asset as they struggle day by day for survival. \nThe Life Raft Group emerged in recognition of the tremendous need for support in the GIST community. Life Fest 2022 will provide patients and caregivers with that support. Coming together with fellow patients from all walks of life from around the world is a meaningful and powerful experience. \nIn addition to our traditional educational workshops\, Life Fest 2022 will feature scientific presentations highlighting the newest research and the latest treatments. Additionally\, other disease advocacy groups will be invited to present the work of their organizations\, and share lessons learned. \nReasons to attend Life Fest \nProgram Highlights \nWhere to Eat in NOLA \nSights & Sounds of NOLA  \nClick to view online and print agenda \n \nThank you to our Life Fest Sponsors!
URL:https://liferaftgroup.org/event/lifefest2022/
LOCATION:IL
CATEGORIES:Education,Events
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2019/04/life-fest-2022.png
ORGANIZER;CN="The Life Raft Group":MAILTO:liferaft@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220907T180000
DTEND;TZID=America/New_York:20220907T180000
DTSTAMP:20260406T034136
CREATED:20220818T132904Z
LAST-MODIFIED:20220818T132904Z
UID:10000238-1662573600-1662573600@liferaftgroup.org
SUMMARY:Let's Get to the GIST of It!
DESCRIPTION:The Life Raft Group is excited host another “Let’s Get the GIST of It” session. During this recurring online event\, patients and caregivers participate and share  overall experiences (good or bad) of their current treatment. The topic of this installment is “The new and upcoming treatments in GIST.” We will be discussing  two new clinical trials –  Cogent (CGT9486) and Theseus (THE-630)\, as well as recently approved drugs like AYVAKIT (avapritinib) and QINLOCK (ripretinib). \nThe goal of this initiative is to discuss key topics that will provide patients and caregivers with insight about their current treatment\, learn more information about new clinical trials or learn more about a new drug by listening to other people’s experiences. During this event\, we will discuss topics like side effects\, dosages\, scans\, and support. You will also have the opportunity to interact and connect with patients like you who are taking the same drug or experiencing the same side effects. Big or small\, all input is important and we are excited for you to be part of this initiative. \nIf you or a loved one is currently enrolled in a Cogent (CGT9486) and Theseus (THE-630) trial or currently taking ripretinib or avapritinib and would like to learn more about these drugs or share your experiences with other GISTers\, please join this event. For more information or questions\, please contact Sahibjeet Kaur at skaur@liferaftgroup.org \nREGISTER
URL:https://liferaftgroup.org/event/lets-get-to-the-gist-of-it/
LOCATION:IL
CATEGORIES:Education,Events
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2022/08/lets-get-the-gist-of-it.jpg
ORGANIZER;CN="Sahibjeet Kaur":MAILTO:skaur@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20220924T083000
DTEND;TZID=America/Los_Angeles:20220924T083000
DTSTAMP:20260406T034136
CREATED:20220217T155303Z
LAST-MODIFIED:20220906T135627Z
UID:10000206-1664008200-1664008200@liferaftgroup.org
SUMMARY:GDOL San Diego
DESCRIPTION:GDOL San Diego is September 24th\, 8:30 am\nLife Raft Group GIST Do It Walk (Prepare for Miles for Merak) at 8:00 am (Registration at 7:30).\nBreakfast 8:30\, Event Start 9:00 \nA GIST Day of Learning (GDOL) is a free one day event to help patients and caregivers learn more about this rare cancer\, find support\, and enhance their knowledge base to help them navigate their cancer journey. \nThe Life Raft Group has a simple focus: to cure a form of cancer — GIST — and to help those living with it until then. To do this\, the Life Raft Group focuses on three key areas: research\, patient support & education\, and advocacy\, which lay the foundation of our mission to ensure the survival of GIST patients through a comprehensive approach connecting individual patients’ needs\, the worldwide community of GIST advocates and the global health and research environment. \nIf you have any questions\, please contact Diana Nieves at dnieves@liferaftgroup.org \nREGISTERClick for PDF of Agenda \n \nThank you to our GDOL Sponsors:
URL:https://liferaftgroup.org/event/gdol-san-diego/
LOCATION:Moores Cancer Center UC San Diego Health\, Goldberg Auditorium\, 3855 Health Sciences Drive\, San Diego\, CA\, 92037\, United States
CATEGORIES:Education,Events
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20221012T120000
DTEND;TZID=America/New_York:20221012T120000
DTSTAMP:20260406T034136
CREATED:20220913T233534Z
LAST-MODIFIED:20220926T132350Z
UID:10000245-1665576000-1665576000@liferaftgroup.org
SUMMARY:The Emerging Role of Circulating Tumor DNA in GIST
DESCRIPTION:October 12\, Noon ET \nIn this webinar\, “The Emerging Role of Circulating Tumor DNA in Gastrointestinal Stromal Tumor”\, Dr. Bialick will discuss recent data looking at treatment outcomes based off KIT resistant mutations identified by circulating tumor DNA in patients with GIST. \nREGISTEROur Presenter\nSteven Bialick\, DO\nSylvester Comprehensive Cancer Center\, Miami \nSteve Bialick\, DO\, is a  hematology/oncology fellow at Jackson Memorial Hospital and the University of Miami/Sylvester Comprehensive Cancer Center in Miami\, FL.  He completed his internal medicine residency within the University of Pennsylvania Health System before working as a hematologic malignancy hospitalist at the Hospital of the University of Pennsylvania in Philadelphia\, PA.  He is now completing his oncology training with a focus on solid tumor malignancies\, specifically soft tissue and bone sarcomas.  His research interests include hereditary cancer predisposition syndromes\, circulating tumor DNA and its role in guiding targeted therapies\, and the role of DNA damage repair pathways in sarcomas. \nThank you to our Sponsors:
URL:https://liferaftgroup.org/event/the-emerging-role-of-circulating-tumor-dna-in-gist/
LOCATION:IL
CATEGORIES:Education,Events
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20221104
DTEND;VALUE=DATE:20221106
DTSTAMP:20260406T034136
CREATED:20220217T154650Z
LAST-MODIFIED:20221026T123831Z
UID:10000205-1667520000-1667692799@liferaftgroup.org
SUMMARY:GDOL Miami
DESCRIPTION:GDOL Miami – November 4th & 5th – In person\nA GIST Day of Learning (GDOL) is a free one day event to help patients and caregivers learn more about this rare cancer\, find support\, and enhance their knowledge base to help them navigate their cancer journey. \nThe mission of the Life Raft Group is to enhance survival and quality of life for people living with GIST through patient-powered research\, education and empowerment\, and global advocacy efforts. The LRG vision is to champion patient-powered science and drastically increase long-term survivorship for all cancer patients. To accomplish this\, we rely on four key pillars;\n– Leverage the patient perspective to drive innovative solutions in cancer research\n– Educate and empower patients to take a larger role in their care\n– Accelerate research outcomes through collaborative efforts\n– Increase access to effective treatments worldwide \nIf you have any questions\, please contact Diana Nieves at dnieves@liferaftgroup.org \nREGISTERClick here for printable version of agenda \n \nThank you to our GDOL Sponsors:
URL:https://liferaftgroup.org/event/gdol-miami/
LOCATION:Gordon Center for Simulation & Innovation in Medical Education\, 1120 NW 14th Street\, Miami\, FL\, 33136\, United States
CATEGORIES:Education,Events
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20221108T130000
DTEND;TZID=America/New_York:20221108T140000
DTSTAMP:20260406T034136
CREATED:20221025T145353Z
LAST-MODIFIED:20221025T145402Z
UID:10000247-1667912400-1667916000@liferaftgroup.org
SUMMARY:Surgical Considerations for GIST
DESCRIPTION:November 8\, 2022 @ 1PM ET\nThe Life Raft Group is partnering with Dr. Andrew Blakely\, surgical oncologist\, National Cancer Institute\, Center for Cancer Research\, NIH\, to discuss the basics of surgical removal of primary GISTs and considerations in multimetastatic disease. The presentation will include case examples for both non-wild-type and wild-type or SDH-deficient GIST. Q&A will follow the presentation. \nIf you have any questions about this webinar\, please email srothschild@liferaftgroup.org \nREGISTERAbout our Presenter:\nDr. Andrew Blakely\nNational Cancer Institute\, Center for Cancer Research\nNational Institutes of Health \nDr. Blakely completed a Bachelor of Science in Biomedical Engineering followed by medical school at Drexel University. He went on to general surgery residency at Brown University. During residency\, he spent two years of dedicated research time at the Center for Biomedical Engineering developing a device for tissue engineering applications. That work then led to a National Science Foundation grant and a patent. Dr. Blakely then completed his fellowship in Complex General Surgical Oncology at City of Hope National Medical Center. Dr. Blakely is currently a surgical oncologist specializing in peritoneal surface malignancies and soft tissue sarcomas. One of the primary focuses of his research includes improving surgical treatment and ex vivo tumor modeling of gastrointestinal stromal tumors.   \nThank you to our 2022 LRG webinar sponsors:
URL:https://liferaftgroup.org/event/surgical-considerations-for-gist/
LOCATION:IL
CATEGORIES:Education,Events
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20221208T170000
DTEND;TZID=America/New_York:20221208T170000
DTSTAMP:20260406T034136
CREATED:20221101T131851Z
LAST-MODIFIED:20221101T132210Z
UID:10000248-1670518800-1670518800@liferaftgroup.org
SUMMARY:Interactive Q&A with SDH Families
DESCRIPTION:December 8 @ 5PM ET \nThe Life Raft Group invites SDH-deficient GIST patients and caregivers to join us for a virtual conversation with Dr. Sosipatros Boikos of the Georgetown Lombardi Comprehensive Cancer Center. During this meeting\, Dr. Boikos will present background on SDH-deficient GIST and open the meeting to an interactive Q&A with families. Please come prepared with questions and time to interact with the group! \nREGISTERAbout our Presenter:\nDr. Sosipatros Boikos\nGeorgetown Lombardi Comprehensive Cancer Center \nSosipatros Boikos\, MD\, is a fellowship-trained\, board-certified medical oncologist with clinical privileges at MedStar Washington Hospital Center and MedStar Georgetown University Hospital. He is one of the most experienced sarcoma medical oncologists in the Washington\, D.C. metropolitan area\, with 11 years of experience treating sarcomas and rare tumors and more than 20 years of experience in the area of sarcoma cancer genetics and cell biology. Dr. Boikos currently serves MedStar Health as Co-Leader of the Sarcoma Working Group at Georgetown Lombardi Comprehensive Cancer Center.    \nThank you to our 2022 LRG webinar sponsors:
URL:https://liferaftgroup.org/event/interactive-qa-with-sdh-families/
LOCATION:IL
CATEGORIES:Education,Events,Webcast
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20221210T100000
DTEND;TZID=America/Los_Angeles:20221210T100000
DTSTAMP:20260406T034136
CREATED:20221115T152039Z
LAST-MODIFIED:20221115T152039Z
UID:10000249-1670666400-1670666400@liferaftgroup.org
SUMMARY:So. Cal GISTer Virtual Support Group
DESCRIPTION:This Support Group will be held at 10am Pacific Time/1pm Eastern. \nJoin us on Saturday\, December 10\, at 10:00 am PST. Make yourself comfortable at your computer\, laptop\, tablet\, etc. and participate in what will be a very helpful and informative meeting. \nThe Life Raft Group is offering a virtual California Support Group with Southern California Leader Dina Wiley\, PhD. The group will meet to talk to each other\, discuss individual GIST issues\, and get answers to questions. This will enable you to not only get some relief from the worry of GIST\, but to also help others\, as well. We are\, after all\, in the same life raft\, and we are each needed to pull together. When we do\, wonderful things happen! \nAnd here’s the best part — we will have a very special guest – Dr. Michael Heinrich\, Oregon Health & Science University. \nREGISTERAbout the Group Leader:\nDina Wiley – Dina is a long-time Southern California LRG Support Group Leader. Read about Dina’s GIST journey here \nAbout Our Special Guest:\nMichael Heinrich\, MD\nOregon Health & Science University\nProfessor of Medicine\, School of Medicine\nCell and Developmental Biology Graduate Program\, School of Medicine\nCancer Biology Graduate Program\, School of Medicine\nProgram in Molecular and Cellular Biosciences\, School of Medicine \nDr. Heinrich’s research includes both preclinical identification of novel molecular targets and testing of new agents in the laboratory and the clinic. This includes both genomics research using high-throughput gentoyping to identify oncogenic mutations and testing of new compounds in cellular and biochemical assays. Dr. Heinrich’s laboratory is particularly expert in the analysis of inhibitors of oncogenic receptor tyrosine kinases such as KIT\, PDGFRA and FLT3.
URL:https://liferaftgroup.org/event/so-cal-gister-virtual-support-group-2/
LOCATION:IL
CATEGORIES:Education,Events
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2022/11/CA-Support-Group-12-10-22.png
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230316T120000
DTEND;TZID=America/New_York:20230316T120000
DTSTAMP:20260406T034136
CREATED:20230222T214046Z
LAST-MODIFIED:20230223T133610Z
UID:10000487-1678968000-1678968000@liferaftgroup.org
SUMMARY:Nutrition Management & Multidisciplinary Approaches in GIST
DESCRIPTION:The Life Raft Group is partnering with Fundación GIST México to present Nutrition Management and Multidisciplinary Approaches in GIST for GIST patients and caretakers on March 16th at 12pm ET.  During this virtual presentation\, Ms. Carbajal-López will describe the onco-nutritional pathway\, effects of malnutrition in GIST\, multidisciplinary approaches to nutrition\, exercise\, and more. \nThere will be time for questions after the presentation. If you would like to submit your questions ahead of time or if you have questions about the presentation\, please email Sara Rothschild: srothschild@liferaftgroup.org \nREGISTERAbout our Presenter:\nBerenice Carbajal-López\nFundación GIST México \nMs. Carbajal-López is a doctoral student who holds a master’s degree in Health Sciences with a thesis related to the use of technologies in the nutritional and psychological care of patients with GIST. She has a diploma in Clinical Research and Biostatistics at the National Cancer Institute in Mexico. She has experience in health care of GIST patients\, as Patient Care Coordinator from 2014 to 2019 and as Global Director since 2020 at Fundación GIST México. Ms. Carbajal-López has also collaborated in drafting and review of research articles and book chapters in the area of Oncology\, with eight publications to date as main author and co-author in indexed journals and has participated in national and international congresses such as SMEO 2018\, ASCO 2019\, and ESMO-GI 2017\, 2018\, 2019\, 2020\, 2021\, and 2022. \nPlease note that this webinar is not a substitute for your physician’s guidance and care.
URL:https://liferaftgroup.org/event/nutrition-management-multidisciplinary-approaches-in-gist/
LOCATION:IL
CATEGORIES:Education,Events
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230418T120000
DTEND;TZID=America/New_York:20230418T130000
DTSTAMP:20260406T034136
CREATED:20230330T191338Z
LAST-MODIFIED:20230330T191338Z
UID:10000490-1681819200-1681822800@liferaftgroup.org
SUMMARY:Fueling GIST Research - Our Community in Action!
DESCRIPTION:Diana Nieves will be chatting with a group of fundraisers from our community who have combined GIST advocacy with a personal passion in their lives to raise funds for GIST research. We are grateful to these individuals who have been so creative and thankful that they are willing to join us on April 18 at noon ET to share how to create a successful virtual or in-person fundraiser to further GIST research. \nJoin us during for virtual presentation to learn how you can help fuel the future of GIST research! \nREGISTERAbout Our Presenter:\nDiana Nieves\nChief Development & Involvement Officer \nIn her role as Chief Development & Involvement Officer\, Diana is charged with busting up silos and eliminating barriers to keep our relationships with members\, donors\, volunteers\, and others focused on our common goal of achieving LRGs mission. She actively cultivates\, engages and deepens these relationships so that she can elevate LRG fundraising and volunteering efforts while meaningfully acknowledging contributions made to the LRG and rare diseases overall. She works closely with the senior executive team and Board of Directors to ensure the development and success of the organization by instilling a culture of community involvement\, philanthropy\, strategic planning while addressing any development issues within the organization. Diana holds a Master of Public Administration degree from New York University\, and a Bachelor of Business Administration from Adelphi University. \nOur Guest Panel includes:\n \nThank you to our 2023 Webinar Sponsors!
URL:https://liferaftgroup.org/event/fueling-gist-research-our-community-in-action/
LOCATION:IL
CATEGORIES:Education,Events
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20230428T140000
DTEND;TZID=America/Chicago:20230428T160000
DTSTAMP:20260406T034136
CREATED:20230307T183240Z
LAST-MODIFIED:20230421T124418Z
UID:10000488-1682690400-1682697600@liferaftgroup.org
SUMMARY:GIST Day of Learning Virtual - Tennessee
DESCRIPTION:GDOL Tennessee is happening on April 28th\, 2023 VIRTUAL\n2-4pm CDT \nAgenda TBA \nPresenters: Elizabeth Davis\, MD; Vicki Keedy\, MD\, MSCI; Justin Cates\, MD\, Ph.D.; Carlos Prieto-Granada\, MD; Deepa Magge\, MD; Sekhar Padmanabhan; Erin Taylor\, MS\, RD\, CNSC; and Carey Tomlinson\, PT \nTopics Include:  \n• GIST 101 \n• Importance of pathology review\, molecular testing\, and risk stratification \n• Medical and surgical approaches to treatment \n• Management of treatment side effects \n• Importance of nutrition and physical activity during treatment \n• Future directions for GIST therapy \n\nREGISTERWhat is a GDOL?\nA GDOL is a GIST Day of Learning. This is a free one day event to help patients and caregivers learn more about this rare cancer\, find support\, and enhance their knowledge base to help them navigate their cancer journey. \nThe mission of the Life Raft Group is to enhance survival and quality of life for people living with GIST through patient-powered research\, education and empowerment\, and global advocacy efforts. The LRG vision is to champion patient-powered science and drastically increase long-term survivorship for all cancer patients. To accomplish this\, we rely on four key pillars:\n– Leverage the patient perspective to drive innovative solutions in cancer research\n– Educate and empower patients to take a larger role in their care\n– Accelerate research outcomes through collaborative efforts\n– Increase access to effective treatments worldwide \nThank you to our 2023 GDOL Sponsors!\n \n 
URL:https://liferaftgroup.org/event/gist-day-of-learning-virtual-tennessee/
LOCATION:IL
CATEGORIES:Education,Events
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230502T120000
DTEND;TZID=America/New_York:20230502T130000
DTSTAMP:20260406T034136
CREATED:20230403T162300Z
LAST-MODIFIED:20230403T163003Z
UID:10000491-1683028800-1683032400@liferaftgroup.org
SUMMARY:Managing Your Mental Health After Diagnosis
DESCRIPTION:Receiving a cancer diagnosis and undergoing cancer treatment can be a highly stressful and emotionally challenging experience. Patients may experience a range of emotions such as fear\, anxiety\, depression and grief\, as well as many physical symptoms. Paying attention to your mental health is an important part of coping with a cancer diagnosis. The Life Raft Group is partnering with Sarah Paul of CancerCare to host this webinar on May 2nd at 12 ET to discuss why mental health matters and discover ways to find the emotional support that is right for you. \nREGISTERAbout Our Presenter:\nSarah Paul\, LCSW\, OSW-C\nDirector of Clinical Programs\, CancerCare \nMs. Paul is the Director of Clinical Programs and is responsible for delivering CancerCare’s free services to people whose lives are affected by cancer while overseeing administrative aspects of the social work department. Sarah is passionate about creating and developing specialized programs to meet the needs of underserved populations and has a specialization in working with children\, adolescents and young adults. Before starting at CancerCare\, she received her BA in Psychology from SUNY New Paltz and her Master’s in Social Work from Silberman School of Social Work at Hunter College. She is a board certified oncology social worker and in 2020\, she was awarded the Aquamarine Leadership Award by the National Association of Social Workers\, New York City Chapter. \nThank you to our 2023 Webinar Sponsors!
URL:https://liferaftgroup.org/event/managing-mental-health-after-diagnosis/
LOCATION:IL
CATEGORIES:Education,Events
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230513T080000
DTEND;TZID=America/New_York:20230514T170000
DTSTAMP:20260406T034136
CREATED:20230509T134100Z
LAST-MODIFIED:20230509T134214Z
UID:10000498-1683964800-1684083600@liferaftgroup.org
SUMMARY:New Horizons GIST Conference
DESCRIPTION:In-Person Registrations are closed but you can still use the link to join virtually! \nNEW HORIZONS GIST is the most important global annual conference for GIST patient advocates. At NEW HORIZONS GIST\, patients from the global GIST patient community come together\, can interact with top GIST experts\, have access to state‐of‐the‐art medical and scientific information and can exchange best practice in patient advocacy among each other. The conference is a balanced symbiosis of medical content\, advocacy topics and capacity building sessions. After more than 2 years living under the restrictions of the pandemic\, we are happy to annouce that NEW HORIZONS GIST will be held as a hybrid meeting in 2023. \nOn behalf of the “NEW HORIZONS GIST Steering Committee”\, we are very pleased to announce the 2023 NEW HORIZONS GIST Conference May 13 & 14 in Dublin\, Ireland and online via Zoom – for the first time in conjunction with the SPAGN Annual Conference. \nREGISTERPDF of agenda here
URL:https://liferaftgroup.org/event/new-horizons-gist-conference-2/
LOCATION:IL
CATEGORIES:Education,Events
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2023/05/NEW_HORIZONS_GIST_2023_Dubli_Ireland_Briefkopf_L1-1-2048x537-1.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230519T120000
DTEND;TZID=America/New_York:20230519T130000
DTSTAMP:20260406T034136
CREATED:20230424T031643Z
LAST-MODIFIED:20230509T171719Z
UID:10000492-1684497600-1684501200@liferaftgroup.org
SUMMARY:Clinical Trials 101
DESCRIPTION:Dr. Ciara Kelly will be presenting “Clinical Trials 101” to GIST patients and caretakers on May 19th\, 2023 at 12pm ET. During this virtual presentation\, Dr. Kelly will discuss types of clinical trials\, how to find a clinical trial\, current open clinical trials\, and more. \nREGISTERAbout Our Presenter\nDr. Ciara Kelly\,\nMedical Oncologist\, Memorial Sloan Kettering Cancer Center \nDr. Kelly is a medical oncologist at Memorial Sloan Kettering Cancer Center who has expertise in treating and researching bone and soft tissue sarcomas and merkel cell carcinoma. She works very closely with a team of medical oncologists\, surgeons\, radiation oncologists\, nurses\, and patient support advocates. \nDr. Kelly’s research aims to develop new and more personalized therapies to treat sarcomas. She is actively involved in developing and designing clinical trials that will look at novel agents that target molecular changes within tumors. She is also studying innovative combination immunotherapy options that will harness a person’s own immune defenses to fight their cancer. \nDr. Kelly has a particular interest in advancing understanding of gastrointestinal stromal tumors and other sarcomas at the molecular level. She is using liquid biopsies to analyze tumor DNA in the blood and tumor biopsies to uncover a biomarker that will ultimately help match the best treatment option with each individual person’s tumor. Dr. Kelly is committed to designing and developing novel therapeutic clinical trials for GIST patients that incorporate correlative studies which provide an opportunity to further our understanding of this disease. \nThank you to our 2023 Webinar Sponsors!
URL:https://liferaftgroup.org/event/clinical-trials-101/
LOCATION:IL
CATEGORIES:Education,Events
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230520T083000
DTEND;TZID=America/New_York:20230520T170000
DTSTAMP:20260406T034136
CREATED:20230302T155050Z
LAST-MODIFIED:20230510T180827Z
UID:10000486-1684571400-1684602000@liferaftgroup.org
SUMMARY:GIST Day of Learning - Stanford
DESCRIPTION:GDOL Stanford is happening on May 20th\, 2023\nStanford University’s Frances C. Arrillaga Alumni Center\n326 Galvez Street Stanford Stanford\, CA 94305-6105 \nClick here for AGENDA \n \nREGISTERWhat is a GDOL?\nA GDOL is a GIST Day of Learning. This is a free one day event to help patients and caregivers learn more about this rare cancer\, find support\, and enhance their knowledge base to help them navigate their cancer journey. \nThe mission of the Life Raft Group is to enhance survival and quality of life for people living with GIST through patient-powered research\, education and empowerment\, and global advocacy efforts. The LRG vision is to champion patient-powered science and drastically increase long-term survivorship for all cancer patients. To accomplish this\, we rely on four key pillars:\n– Leverage the patient perspective to drive innovative solutions in cancer research\n– Educate and empower patients to take a larger role in their care\n– Accelerate research outcomes through collaborative efforts\n– Increase access to effective treatments worldwide \nThank you to our 2023 GDOL Sponsors!
URL:https://liferaftgroup.org/event/gist-day-of-learning-stanford/
LOCATION:Stanford University Frances C. Arrillaga Alumni Center\, Fischer Conference Center\, 326 Galvez Street\, Stanford\, California\, 94305
CATEGORIES:Education,Events
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230525T190000
DTEND;TZID=America/New_York:20230525T190000
DTSTAMP:20260406T034136
CREATED:20230509T140037Z
LAST-MODIFIED:20230509T140037Z
UID:10000499-1685041200-1685041200@liferaftgroup.org
SUMMARY:Manejo de la Nutrición y Enfoques Multidisciplinarios en GIST
DESCRIPTION:Te invitamos a participar de este webinar organizado por Fundación #GIST México Inscripciones en el siguiente link –\n\n\n\n\n\n\n\n\nWe invite you to participate in this webinar organized by Fundación #GIST Mexico. Registration at the following link –\n\n\n\n\nREGISTER
URL:https://liferaftgroup.org/event/manejo-de-la-nutricion-y-enfoques-multidisciplinarios-en-gist/
LOCATION:IL
CATEGORIES:Education,Events
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2023/05/344866936_1426486971428486_4897021564488838357_n.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230620T183000
DTEND;TZID=America/New_York:20230620T183000
DTSTAMP:20260406T034136
CREATED:20230509T171420Z
LAST-MODIFIED:20230601T192629Z
UID:10000500-1687285800-1687285800@liferaftgroup.org
SUMMARY:GIST Updates from ASCO
DESCRIPTION:ASCO (American Society of Clinical Oncology) is an important conference in the oncology community where new scientific research updates are shared. The Life Raft Group is excited to host Dr. Herbert Loong\, who will summarize abstracts and presentations that were presented during this conference that are relevant to the GIST patient community. \nPlease note that this webinar is not a substitute for your physician’s guidance and care.\nREGISTERAbout Our Presenter\nHerbert H. Loong\, MD\nThe Chinese University of Hong Kong \nDr. Herbert H. Loong holds conjoint appointments of Clinical Associate Professor in the Department of Clinical Oncology and Deputy Medical Director of the Phase 1 Clinical Trials Centre of The Chinese University of Hong Kong. He is also the current and founding convenor of the Prince of Wales Hospital Adult Sarcoma Multidisciplinary Team. \nDr. Loong obtained his medical degree with a Distinction in Surgery from The University of Hong Kong in 2003. He has completed a Fellowship in Drug Development at Princess Margaret Cancer Centre in Toronto\, Canada with a special focus on Experimental Therapeutics. His clinical and research interests also include Sarcoma Medical Oncology\, Thoracic Oncology and Health Economics. He is a recipient of the European Cancer Congress Fellowship Grant (2013)\, the American Society of Clinical Oncology (ASCO) Annual Meeting Merit Award (2014)\, the Hong Kong College of Physicians Young Investigators’ Award (2014). Nominated by patients and their caregivers\, Dr. Loong led the Lung Cancer Team at CUHK to be bestowed the IASLC Foundation Cancer Care Team Award in recognition for providing the best thoracic oncology care in “Asia & Rest of the World” in 2018. \nDr. Loong has served or continues to serve in various capacities in various professional international oncology bodies\, including the International Affairs Committee and the Asia-Pacific Regional Council of ASCO\, the Membership\, Education and Communications Committees of the IASLC. He has been elected as a Board Member of the Connective Tissue Oncology Society (CTOS) for 2022-2024. He is also a founding executive committee member of the newly formed Asia Pacific Oncology Drug Development Network (APODDC). He is also a Board Member in the specialty of Medical Oncology in the Hong Kong College of Physicians. In his appointment as a Registration Committee member of Pharmacy and Poisons Board of Hong Kong\, he helps oversee the registration of medicinal products and clinical trials in the territory. \nThank you to our 2023 Webinar Sponsors!
URL:https://liferaftgroup.org/event/gist-updates-from-asco/
LOCATION:IL
CATEGORIES:Education,Events
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
END:VCALENDAR