BEGIN:VCALENDAR
VERSION:2.0
PRODID:-//The Life Raft Group - ECPv6.15.18//NONSGML v1.0//EN
CALSCALE:GREGORIAN
METHOD:PUBLISH
X-ORIGINAL-URL:https://liferaftgroup.org
X-WR-CALDESC:Events for The Life Raft Group
REFRESH-INTERVAL;VALUE=DURATION:PT1H
X-Robots-Tag:noindex
X-PUBLISHED-TTL:PT1H
BEGIN:VTIMEZONE
TZID:America/New_York
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20230312T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20231105T060000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20240310T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20241103T060000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20250309T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20251102T060000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20260308T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20261101T060000
END:STANDARD
END:VTIMEZONE
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240430T120000
DTEND;TZID=America/New_York:20240430T120000
DTSTAMP:20260406T111827
CREATED:20240403T191818Z
LAST-MODIFIED:20240403T191818Z
UID:10000771-1714478400-1714478400@liferaftgroup.org
SUMMARY:Educate Yourself on GIST Research
DESCRIPTION:How to Educate Yourself on GIST Research – Searching the Web for GIST Science Publications\nLife Raft Group Science Team Member Jim Hughes will present “How to Educate Yourself on GIST Research- Searching the Web for GIST Science Publications” to GIST patients & caregivers on April 30th\, 2024 at 12pm ET. During this virtual presentation\, Jim will outline the importance of patients and caregivers researching their cancer in order to best advocate for themselves. Jim will explain the importance of GIST publications and how to effectively do your own research\, and how to work together with fellow community members to share research findings. \nPlease email srothschild@liferaftgroup.org to submit a question ahead of the presentation.  \n\n\n\nPlease note that this webinar is not a substitute for your physician’s guidance and care.\nREGISTERAbout Our Presenter\n \nJim Hughes\nLRG Clinical Trials Database Coordinator/Science Team Member \nJim Hughes attended Kenyon College\, Ohio and Loyola University\, Chicago where he earned a BA in Philosophy. Between schools Jim served as an officer in the United States Army in the US and Vietnam and following his service worked in telecommunications for 35 years. \nJim and Margi are the parents of two children\, Nancy and Jamie. Nancy Hughes Welsh was an early member of The Life Raft Group (2002). Nancy was diagnosed with leiomyosarcoma in 1991 at age 23. After ten years of surgery and chemotherapy Nancy was re-diagnosed with GIST in 2001. Nancy participated in the Phase Three imatinib trial in 2001 and the Phase Two sunitinib trial in 2003. Nancy’s GIST was eventually diagnosed as SDH epimutant and passed away in 2005. \nJim serves as a Life Raft Group Board Member\, our Clinical Trials Database Coordinator and is a founding member of the LRG Science Team. \n  \nThank you to our Webinar Sponsors!
URL:https://liferaftgroup.org/event/educate-yourself-on-gist-research/
CATEGORIES:Education,Events,Webcast
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240518T083000
DTEND;TZID=America/New_York:20240518T150000
DTSTAMP:20260406T111827
CREATED:20240202T144246Z
LAST-MODIFIED:20240813T205301Z
UID:10000766-1716021000-1716044400@liferaftgroup.org
SUMMARY:GDOL Chicago 2024
DESCRIPTION:GDOL Chicago is an in-person event and will be held at Northwestern University Feinberg School of Medicine\, Lurie Baldwin Auditorium. \nREGISTERWhat is a GDOL? \nA GDOL is a GIST Day of Learning. This is a free one day event to help patients and caregivers learn more about this rare cancer\, find support\, and enhance their knowledge base to help them navigate their cancer journey. \nThe Life Raft Group is committed to enhancing the survival and quality of life for people living with Gastrointestinal Stromal Tumor (GIST)\, and other rare diseases\, through patient-powered research\, education and empowerment\, and global advocacy efforts. Our vision is to empower a future fueled by data\, guiding our journey toward cures for rare diseases. \nIf you have any questions\, please contact Diana Nieves at dnieves@liferaftgroup.org \nClick image for a PDF of the Agenda: \nThank you to our Sponsors!
URL:https://liferaftgroup.org/event/gdol-chicago-2024/
LOCATION:Northwestern University Feinberg School of Medicine\, Lurie Baldwin Auditorium\, 303 East Superior Street\, Chicago\, IL\, United States
CATEGORIES:Education,Events
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240522T110000
DTEND;TZID=America/New_York:20240522T110000
DTSTAMP:20260406T111827
CREATED:20240422T181945Z
LAST-MODIFIED:20240423T174622Z
UID:10000772-1716375600-1716375600@liferaftgroup.org
SUMMARY:Demystifying Clinical Trials
DESCRIPTION:Insights from Experts and Participants\nJoin us May 22nd at 11am ET for an informative webinar presented by Dr. Candace Haddox of Dana-Farber Cancer Institute offering invaluable insights into the world of clinical trials in honor of International Clinical Trials Awareness Day. Dr. Haddox will delve into the fundamentals of clinical trials\, discussing their significance\, weighing the pros and cons of participation\, and guiding attendees through the entire process\, from initiation to conclusion. Following Dr. Haddox’s presentation\, there will be an interactive discussion with GISTer Kandee Evans\, currently enrolled in a clinical trial\, offering firsthand experiences and perspectives. A Q&A session will follow the presentation. \nPlease email srothschild@liferaftgroup.org to submit a question ahead of the presentation.  \n\n\n\nPlease note that this webinar is not a substitute for your physician’s guidance and care.\nREGISTERAbout Our Presenters\n \nDr. Candace Haddox \nDana-Farber Cancer Institute \nDr. Haddox is an Instructor in Medicine at Harvard Medical School\, and a medical oncologist and clinical/translational investigator in the Sarcoma Center and the Center for Cancer Therapeutic Innovation at Dana-Farber Cancer Institute. Dr. Haddox’s research focuses on developing novel therapies rooted in sarcoma biology and determining mechanisms of treatment response and resistance\, particularly in gastrointestinal stromal tumors (GIST). \nDr. Haddox received her Bachelor of Science in neurobiology from the University of Miami. She completed a post-baccalaureate research fellowship at the National Institutes of Health and received her Medical Degree from the University of South Florida. Dr. Haddox completed a residency in Internal Medicine at the Mayo Clinic in Rochester\, Minnesota\, and a fellowship in Medical Oncology at Duke University\, where she also served as Chief Fellow. She joined the faculty at Dana-Farber Cancer Institute in 2021\, where she currently sees patients with sarcomas and leads clinical trials in early drug development. \n \nKandee Evans \nGIST Advocate \nWith a career spanning over three decades\, Kandee Evans is a project management veteran who knows how to make things happen. After dedicating 30 years to her profession\, Kandee recently left her job to focus on her health as a GIST survivor and warrior. Not one to back down from a challenge\, she previously advocated fiercely for her oldest son when he was diagnosed with autism at just two years old. Now\, as a devoted wife and mother of two amazing sons\, Kandee continues to take on each day with grace\, courage\, and determination. \nAt the forefront of GIST research\, Kandee is making a difference through participation. She enrolled in a clinical trial with the University of Miami in February 2024\, she is helping test the effects of IDRX-42 under the direction of Dr. Jonathan Trent.  Her selfless commitment will provide key insights and move science one step closer to finding a treatment for this devastating disease. Kandee’s courage underscores the power of individuals to advance medical progress through clinical trial involvement. \nThank you to our Webinar Sponsors!
URL:https://liferaftgroup.org/event/demystifying-clinical-trials-insights-from-experts-and-participants/
CATEGORIES:Education,Events,Webcast
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240618T190000
DTEND;TZID=America/New_York:20240618T190000
DTSTAMP:20260406T111827
CREATED:20240422T181458Z
LAST-MODIFIED:20240422T182217Z
UID:10000773-1718737200-1718737200@liferaftgroup.org
SUMMARY:Updates from ASCO
DESCRIPTION:The American Society of Clinical Oncology (ASCO) is an important conference in the oncology community where new scientific research updates are shared. The Life Raft Group is excited to partner with Dr. Herbert Loong\, who will summarize abstracts and presentations that were presented during ASCO 2024 that are relevant to the GIST patient community. Join us June 18th at 7pm ET for this virtual presentation. A Q&A session will follow the presentation. \nPlease email srothschild@liferaftgroup.org to submit a question ahead of the presentation.  \n\n\n\nPlease note that this webinar is not a substitute for your physician’s guidance and care.\nREGISTERAbout Our Presenter\n \nDr. Herbert H. Loong\nThe Chinese University of Hong Kong \nDr. Herbert H. Loong holds conjoint appointments of Clinical Associate Professor in the Department of Clinical Oncology and Deputy Medical Director of the Phase 1 Clinical Trials Centre of The Chinese University of Hong Kong. He is also the current and founding convenor of the Prince of Wales Hospital Adult Sarcoma Multidisciplinary Team. \nDr. Loong has served or continues to serve in various capacities in various professional international oncology bodies\, including the International Affairs Committee and the Asia-Pacific Regional Council of ASCO\, the Membership\, Education and Communications Committees of the IASLC. He has been elected as a Board Member of the Connective Tissue Oncology Society (CTOS) for 2022-2024. He is also a founding executive committee member of the newly formed Asia Pacific Oncology Drug Development Network (APODDC). He is also a Board Member in the specialty of Medical Oncology in the Hong Kong College of Physicians. In his appointment as a Registration Committee member of Pharmacy and Poisons Board of Hong Kong\, he helps oversee the registration of medicinal products and clinical trials in the territory. \nThank you to our Webinar Sponsors!
URL:https://liferaftgroup.org/event/updates-asco-2024/
CATEGORIES:Education,Events,Webcast
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240712T120000
DTEND;TZID=America/New_York:20240712T120000
DTSTAMP:20260406T111827
CREATED:20240617T175754Z
LAST-MODIFIED:20250311T151017Z
UID:10000784-1720785600-1720785600@liferaftgroup.org
SUMMARY:GIST Awareness Day: A Focus on GIST Research
DESCRIPTION:July 13th\, GIST Awareness Day\, is a time when GIST experts\, patients\, and caregivers come together to educate the public about this disease and advocate for finding a cure.  The Life Raft Group invites GIST patients and caregivers to celebrate GIST Awareness Day with us on July 12th at 12PM ET. During this virtual event\, Dr. Matthew Hemming and PhD candidate Favour Akabogu of UMass Cancer Center will discuss exploring mechanisms driving GIST\, treatment efficacy\, and clinical outcomes\, as well as the importance of patient involvement in rare disease research. An interactive Q&A segment will follow their presentations. \n\nPlease email srothschild@liferaftgroup.org to submit a question ahead of the presentation.  \n\n\n\nPlease note that this webinar is not a substitute for your physician’s guidance and care.\nREGISTERAbout Our Presenters\n \nDr. Matthew Hemming\nUMass Chan Medical School \nDr. Matthew Hemming  is an assistant professor of medicine at UMass Chan Medical School\, practicing sarcoma medical oncologist\, and principal investigator of the SarcomaLab. He received his BS from UC San Diego\, PhD from Harvard University\, and MD from Harvard Medical School. He completed internal medicine residency at Massachusetts General Hospital and Hematology/Oncology fellowship at Dana-Farber Cancer Institute. He has focused his clinical practice and laboratory work on sarcoma and GIST\, with the goal to improve diagnostic and treatment strategies through basic and translational research. \n \nFavour Akabogu\nPhD Candidate \nFavour Akabogu is a PhD candidate in the SarcomaLab through the Morningside Graduate School of Biomedical Sciences at UMass Chan Medical School where she studies gastrointestinal stromal tumors (GIST) with a focus on identifying novel treatment options. She got her B.A in Biology at Berea College in Kentucky and worked as a Research Associate at Vanderbilt University where she investigated the role of Discodain Domain Receptors (DDRs) in the progression of acute kidney injury to kidney fibrosis. Additionally\, she worked in collaboration with the CDC on understanding the household transmission respiratory disease particularly SARS-CoV2\, RSV and Influenza. She is passionate about healthcare and drug discovery through scientific innovation. She loves traveling\, dancing\, and spending time with family and friends in her free time. \nThank you to our Webinar Sponsors!
URL:https://liferaftgroup.org/event/gist-awareness-day-a-focus-on-gist-research/
CATEGORIES:Education,Events,Webcast
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20240719
DTEND;VALUE=DATE:20240722
DTSTAMP:20260406T111827
CREATED:20230809T123922Z
LAST-MODIFIED:20240816T145009Z
UID:10000624-1721347200-1721606399@liferaftgroup.org
SUMMARY:Life Fest 2024 - San José
DESCRIPTION:REGISTERLife Fest 2024 is July 19th – 21st in San José\, CA!\nLife Fest is a unique event where patients and caregivers come together for a weekend to interact with each other and the medical and scientific communities that serve them. Faced with a rare form of cancer\, GIST patients have a great need for information about this disease\, particularly as the science evolves and our understanding reveals a complex set of subtypes of GIST\, each responding differently to available treatments. Each year brings a wealth of new information\, and patients are eager to learn about the latest treatments.  \nLife Fest workshops provide patients with emerging medical information\, and they come away with a deeper knowledge of the disease\, treatments and side effect management. They find hope in knowing the scientific community is working toward a cure\, and hope is such a vital asset as they struggle day by day for survival.  \nThe Life Raft Group emerged in recognition of the tremendous need for support in the GIST community. Life Fest 2024 will provide patients and caregivers with that support. Coming together with fellow patients from all walks of life from around the world is a meaningful and powerful experience. In addition to our traditional educational workshops\, Life Fest 2024 will feature scientific presentations highlighting the newest research and the latest treatments.  \nView presentations & photo galleries of previous Life Fest events \nClick image for a PDF of the Agenda: \n \nParking\, Hotels & Flights\nParking for the conference location (Signia Hilton Hotel San Jose): \nValet parking from Reef Valet at the hotel is available for $47 overnight. Hourly parking rates are $20.00 for the first hour with $2.00 for each additional hour (not to exceed $47.00. \nAlternate parking:\n50 W San Fernando St Garage\, (408) 283-5063\nhttps://www.parkme.com/lot/22188/50-west-san-jose-ca\n \n285 S Market St Parking Lot\nhttps://www.parkvel.com/california/san-jose/285-s-market-st-parking/ \nFor additional parking locations nearby and located in downtown: https://www.sanjose.org/trip-ideas/parking \nHotel Information\nThe LRG has secured two blocks of hotel rooms for guests stays at two price points. \nThese special group rates will be available until July 1\, 2024. \nSignia Hilton San Jose\n170 S Market Street\nSan Jose\, CA 95113\n408-998-3975 \nLife Fest Group* \n\nRooms are available at the Hilton San Jose at a different price point. This hotel is within walking distance from our Life Fest conference site at the Signia. \nThese special group rates will be available until June 25\, 2024. \nHilton San Jose\n300 Almaden Boulevard\nSan Jose\, CA 95110\n408.947.4453 \nLIFE FEST (hilton.com) \n\nAirline Discounts for Life Fest attendees:\nDelta Air Lines is pleased to offer special discounts for The Life Raft Group. \nPlease click here to book your flights. \nYou may also call Delta Meeting Network® at 1.800.328.1111* Monday–Friday\, 8:00 a.m. – 6:30 p.m. (EST) and refer to Meeting Event Code NM3GE*Please note there is not a service fee for reservations booked and ticketed via our reservation 800 number. \n\nUnited Airlines is pleased to partner with The Life Raft Group for special discounts.\nTo make flight reservations\, please click on discount code ZPCQ398065 \n– MileagePlus members earn valuable miles for their travel when using the Meetings discount code.\n– You may also call United Meetings Reservation Desk Monday – Friday at (800) 426-1122 for booking assistance.\n– Booking fees are waived for Meeting reservations.\n– International customers may contact their local United Reservation Desk. \n\nDonate to the Life Fest Scholarship Fund 2024\nAny questions about Life Fest 2024? \nPlease reach out to Brian Morello\, Director of Development\, at bmorello@liferaftgroup.org \nOur Sponsors:
URL:https://liferaftgroup.org/event/life-fest-2024-san-jose/
LOCATION:Signia by Hilton San Jose\, 170 S. Market St\, San Jose\, CA\, United States
CATEGORIES:Education,Events
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240819T120000
DTEND;TZID=America/New_York:20240819T120000
DTSTAMP:20260406T111827
CREATED:20240724T133110Z
LAST-MODIFIED:20240724T134516Z
UID:10000786-1724068800-1724068800@liferaftgroup.org
SUMMARY:Managing Side Effects of GIST Therapies
DESCRIPTION:The Life Raft Group has partnered with Mia Weiss\, MD of Washington University School of Medicine in St. Louis to present “Managing Side Effects of GIST Therapies” to GIST patients and caretakers on August 19\, 2024 at 12pm. During this virtual presentation\, Dr. Weiss will provide an overview of GIST treatments and their side effects as well as home management for each type of symptom and when to call the clinic. \n\n\nPlease email srothschild@liferaftgroup.org to submit a question ahead of the presentation.  \n\n\n\nPlease note that this webinar is not a substitute for your physician’s guidance and care.\nREGISTERAbout Our Presenter\n \nDr. Mia Weiss\nWashington University School of Medicine in St. Louis \nMia C. Weiss\, M.D. is a medical oncologist with clinical interest in the care of patients with localized and metastatic soft tissue and bone sarcomas. She works collaboratively with pathologists\, radiation oncologists\, and orthopedic surgeons to assess\, diagnose\, and treat these complex malignancies. She is a member of the American College of Physicians\, the American Society of Clinical Oncology\, and the Connective Tissue Oncology Society. Her research interests include clinical trial development to assess efficacy of novel therapies in the treatment of metastatic sarcoma to ultimately improve patient survival and quality of life. She has particular interest related to genomics in sarcoma and finding ways to elucidate which patients are more likely to respond to targeted therapy and why some do not. Dr. Weiss has published several articles during her fellowship which most recently included a review on the use of Tazemetostat in epithelioid sarcoma\, a novel epigenetic regulator and the first of its kind to be approved in a solid tumor. Additionally\, Dr. Weiss has a strong interest in establishing a continuing medical educational program for community based primary care physicians and surgeons related to sarcoma and the importance of referring patients with soft tissue masses to an oncologic surgeon and ideally\, a sarcoma center\, to ensure optimal outcomes for patients. Dr. Weiss looks forward to continuing a career devoted to patient care\, research\, and education. \nThank you to our Webinar Sponsors!
URL:https://liferaftgroup.org/event/managing-side-effects-of-gist-therapies/
CATEGORIES:Education,Events,Webcast
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240909T120000
DTEND;TZID=America/New_York:20240909T120000
DTSTAMP:20260406T111827
CREATED:20240812T202329Z
LAST-MODIFIED:20240812T202409Z
UID:10000788-1725883200-1725883200@liferaftgroup.org
SUMMARY:Locoregional Therapies for Treatment of GIST in the Liver
DESCRIPTION:Interventional radiology is a medical specialty that performs various minimally-invasive procedures to treat cancer and other diseases. The Life Raft Group invites world-renowned interventional radiologist Edward Kim\, MD FSIR of Mount Sinai to present “Locoregional Therapies for Treatment of GIST in the Liver” on September 9th at 12pm ET. During this virtual presentation\, Dr. Kim will describe various locoregional therapies and their appropriate uses\, as well as the role of locoregional therapies and systemic therapy in treating GIST when it metastasizes in the liver. A Q&A portion will follow the presentation. \n\nPlease email srothschild@liferaftgroup.org to submit a question ahead of the presentation.  \n\n\n\nPlease note that this webinar is not a substitute for your physician’s guidance and care.\nREGISTERAbout Our Presenter\n \nDr. Edward Kim\nMount Sinai Medical Center \nEdward Kim\, MD FSIR is Professor of Radiology and Surgery and Director of Interventional Oncology at Mount Sinai Health Systems\, under the Division of Interventional Radiology. He attended Rutgers Medical School and finished his Interventional Radiology training at Mount Sinai.  Dr. Kim is a world-renowned Interventional Radiologist\, who focuses on minimally invasive treatments\, known as locoregional therapies\, for the treatment of liver cancer.  He has authored numerous influential peer reviewed publications and runs multiple prospective clinical trials.  He has been invited to be course director and faculty at numerous meetings throughout the world.  He believes that best patient care is achieved through a multidisciplinary collaboration and helps lead the multidisciplinary tumor board at Mount Sinai\, as well as helped institute multidisciplinary office hours with liver transplant\, hepatology and surgery.  He is a thought leader in liver cancer\, especially with regards to radioembolization\, thermal ablation and chemoembolization\, as well as combination therapies with immune checkpoint inhibitors. \nThank you to our Webinar Sponsors!
URL:https://liferaftgroup.org/event/locoregional-therapies-for-treatment-of-gist-in-the-liver/
CATEGORIES:Education,Events,Webcast
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240914T080000
DTEND;TZID=America/New_York:20240914T080000
DTSTAMP:20260406T111827
CREATED:20240715T141924Z
LAST-MODIFIED:20240820T182732Z
UID:10000785-1726300800-1726300800@liferaftgroup.org
SUMMARY:GDOL Ohio 2024
DESCRIPTION:GDOL Ohio is being held in-person at The Ohio State University Wexner Medical Center\, Biomedical Research Tower (BRT)\, Room 115\, Columbus\, OH 43210. \nREGISTRATIONWhat is a GDOL? \nA GDOL is a GIST Day of Learning. This is a free one day event to help patients and caregivers learn more about this rare cancer\, find support\, and enhance their knowledge base to help them navigate their cancer journey. \nThe Life Raft Group is committed to enhancing the survival and quality of life for people living with Gastrointestinal Stromal Tumor (GIST)\, and other rare diseases\, through patient-powered research\, education and empowerment\, and global advocacy efforts. Our vision is to empower a future fueled by data\, guiding our journey toward cures for rare diseases. \nIf you have any questions\, please contact Brian Morello at bmorello@liferaftgroup.org \nClick image for a PDF of the Agenda: \n\nThank you to our Sponsors!
URL:https://liferaftgroup.org/event/gdol-ohio-2024/
LOCATION:The Ohio State University Wexner Medical Center\, Biomedical Research Tower (BRT)\, 460 W 12th Ave\, Columbus\, OH\, 43210\, United States
CATEGORIES:Education,Events
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240928T090000
DTEND;TZID=America/New_York:20240928T170000
DTSTAMP:20260406T111827
CREATED:20240829T183610Z
LAST-MODIFIED:20240829T183610Z
UID:10000791-1727514000-1727542800@liferaftgroup.org
SUMMARY:GDOL Calgary
DESCRIPTION:REGISTRATION\nPlease join us for a full day GIST Day of Learning event in Calgary\, Alberta on Saturday September 28\, 2024.\nLocation:  Hotel Alt East Village – 635 Confluence Way SE\, Calgary\, Canada\nRefreshments and Lunch will be provided along with a post conference networking event!\nPatients\, caregivers and family are all welcome at this FREE event. \nSpeakers:\nDr. Xiolan Feng Medical Oncologist\, Tom Baker Cancer Centre. Dr. Feng will be speaking about mutational analysis.\nDr. Andrew Blakely will joining us from the NIH National Cancer Institue to talk about his Surgical Trial.\nDr. Herbert Loong will be presenting on current clinical trials including the Cogent Biosciences PEAK Trial.\nGIST 101 to be presented by David Josephy.\nLiving with the emotional impact of GIST group session with Kristin Austman.\nPatient Panel led by Hazel McLeod.
URL:https://liferaftgroup.org/event/gdol-calgary/
CATEGORIES:Education,Events
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2024/08/GDOL-Calgary-Featured-Image.jpg
ORGANIZER;CN="GIST Sarcoma Life Raft Group Canada":MAILTO:yvonne.nunnaro@liferaftgroup.ca
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241007T130000
DTEND;TZID=America/New_York:20241007T130000
DTSTAMP:20260406T111827
CREATED:20240828T192519Z
LAST-MODIFIED:20240904T152915Z
UID:10000790-1728306000-1728306000@liferaftgroup.org
SUMMARY:IDRX-42: Trial Design & Emerging Data from StrateGIST 1
DESCRIPTION:The Life Raft Group invites you to “IDRX-42: Trial Design and Emerging Data from the StrateGIST 1 Study”\, on October 7th\, 2024 at 1PM ET. During this educational webinar\, Suzanne George\, MD of the Dana-Farber Cancer Institute will review emerging data from the first-in-human StrateGIST 1 trial of IDRX-42 in patients with advanced GIST. Dr. George will also discuss the design and rationale for the ongoing Phase 1b portion of the trial\, including first- and second-line cohorts. A Q&A session will follow the presentation. \n\nPlease email srothschild@liferaftgroup.org to submit a question ahead of the presentation.  \n\n\n\nPlease note that this webinar is not a substitute for your physician’s guidance and care.\nREGISTERAbout Our Presenter\n \nDr. Suzanne George\nSarcoma Center at Dana-Farber Cancer Institute \nSuzanne George\, MD is the Division Chief of the Sarcoma Center at Dana-Farber Cancer Institute who leads a team focused on research and clinical care of patients with sarcomas and GIST. She has an extensive research experience in clinical trials and drug development and cares for patient from across New England\, the US and internationally. \nThank you to our Webinar Sponsor!
URL:https://liferaftgroup.org/event/idrx-42-trial-design-and-emerging-data-from-the-strategist1-study/
CATEGORIES:Education,Events,Webcast
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20241030
DTEND;VALUE=DATE:20241031
DTSTAMP:20260406T111827
CREATED:20240917T172132Z
LAST-MODIFIED:20241028T131216Z
UID:10000792-1730246400-1730332799@liferaftgroup.org
SUMMARY:GDOL Miami Virtual
DESCRIPTION:GDOL Miami is being held virtually with the GIST experts at Sylvester Comprehensive Cancer Center. \nREGISTERWhat is a GDOL? \nA GDOL is a GIST Day of Learning. This is a free one day event to help patients and caregivers learn more about this rare cancer\, find support\, and enhance their knowledge base to help them navigate their cancer journey. \nThe Life Raft Group is committed to enhancing the survival and quality of life for people living with Gastrointestinal Stromal Tumor (GIST)\, and other rare diseases\, through patient-powered research\, education and empowerment\, and global advocacy efforts. Our vision is to empower a future fueled by data\, guiding our journey toward cures for rare diseases. \nIf you have any questions\, please contact Brian Morello at bmorello@liferaftgroup.org \nClick Image for a PDF of the Agenda\n \nThank you to our Sponsors!
URL:https://liferaftgroup.org/event/gdol-miami-2/
CATEGORIES:Education,Events
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241106T130000
DTEND;TZID=America/New_York:20241106T130000
DTSTAMP:20260406T111827
CREATED:20241009T190246Z
LAST-MODIFIED:20241107T135829Z
UID:10000794-1730898000-1730898000@liferaftgroup.org
SUMMARY:Know Your Mutation:  Why is Biomarker Testing Important in GIST?
DESCRIPTION:The Life Raft Group invites you to “Know Your Mutation: Why is Biomarker Testing Important in GIST?”\, on November 6th\, 2024 at 1PM ET. During this educational webinar\, Michelle Harris and Calvin Chao of Tempus will discuss the importance of biomarker testing in GIST\, the process of biomarker testing\, how to get testing done for free through the LRG\, and more. A Q&A session will follow the presentation. \n\nPlease email srothschild@liferaftgroup.org to submit a question ahead of the presentation.  \n\n\n\nPlease note that this webinar is not a substitute for your physician’s guidance and care.\nREGISTERAbout Our Presenters\n \nDr. Calvin Chao\nSenior Vice President of Medical Affairs\, Tempus \nPreviously\, Dr. Chao spent thirteen years leading studies and education for the Oncotype DX Breast\, Prostate\, and Colon Cancer assays at Genomic Health\, later acquired by Exact Sciences.  Prior to that role\, he worked in various bio-pharmaceutical medical director positions at Onyx Pharmaceuticals\, PDL BioPharma\, TAP Pharmaceuticals\, and SmithKline Beecham. \nIn his early career\, Dr. Chao practiced as a board-certified internist and hospitalist at Kaiser Permanente in California for ten years. He earned his MD from the University of Texas Medical Branch\, completed his medical residency at Presbyterian-St. Luke’s Medical Center in Denver\, Colorado\, received his MBA from St. Mary’s College\, California\, and his BS in Chemical Engineering from University of California\, Berkeley. \n \nMichelle Harris\nSenior Director Medical Affairs\, Tempus AI \nMichelle has worked in the oncology space for almost 20 years in research\, development and medical affairs.  She has been at Tempus AI for 2&1/2 years leading the field medical liaison team\, who work with physicians on research and education.  Prior to Tempus\, Michelle worked in solid tumor drug development and clinical trials at Novartis and Gilead Sciences. \nThank you to our Webinar Sponsors!
URL:https://liferaftgroup.org/event/know-your-mutation/
CATEGORIES:Education,Events,Webcast
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241106T150000
DTEND;TZID=America/New_York:20241106T170000
DTSTAMP:20260406T111827
CREATED:20241009T185745Z
LAST-MODIFIED:20241024T145922Z
UID:10000793-1730905200-1730912400@liferaftgroup.org
SUMMARY:GDOL North Carolina Virtual
DESCRIPTION:GDOL North Carolina is being held virtually Nov 6th\, 3-5 pm ET at Chapel Hill\, North Carolina. \nREGISTERWhat is a GDOL? \nA GDOL is a GIST Day of Learning. This is a free one day event to help patients and caregivers learn more about this rare cancer\, find support\, and enhance their knowledge base to help them navigate their cancer journey. \nThe Life Raft Group is committed to enhancing the survival and quality of life for people living with Gastrointestinal Stromal Tumor (GIST)\, and other rare diseases\, through patient-powered research\, education and empowerment\, and global advocacy efforts. Our vision is to empower a future fueled by data\, guiding our journey toward cures for rare diseases. \nIf you have any questions\, please contact Brian Morello at bmorello@liferaftgroup.org \nClick Image for a PDF of the Agenda\n \nThank you to our Sponsors!
URL:https://liferaftgroup.org/event/gdol-north-carolina-virtual-2/
CATEGORIES:Education,Events
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241125T120000
DTEND;TZID=America/New_York:20241125T120000
DTSTAMP:20260406T111827
CREATED:20241009T202805Z
LAST-MODIFIED:20241120T145456Z
UID:10000795-1732536000-1732536000@liferaftgroup.org
SUMMARY:Updates from CTOS
DESCRIPTION:The Life Raft Group is partnering with Dr. Thierry Alcindor of Dana-Farber Cancer Institute to present “GIST Updates from CTOS 2024” to GIST patients and caregivers on November 25th at 12pm ET. During this virtual presentation\, Dr. Alcindor will discuss scientific updates relevant to GIST patients that were exhibited at the Connective Tissue Oncology Society (CTOS) conference. A Q&A segment followed Dr. Alcindor’s presentation. \n\nPlease email srothschild@liferaftgroup.org to submit a question ahead of the presentation.  \n\n\n\nPlease note that this webinar is not a substitute for your physician’s guidance and care.\nREGISTERAbout Our Presenter\n \nDr. Thierry Alcindor\nDana-Farber Cancer Institute \nDr. Alcindor earned his medical degree at the State University of Haiti and a Master of Science degree at the University of Oxford. He trained in Internal Medicine and Hematology/Oncology at Yale-New Haven Medical Center and Tufts-New England Medical Center\, respectively. Previously at McGill University\, he is now a Senior Physician and medical oncologist at the Dana-Farber Cancer Institute\, affiliated with Harvard Medical School. His interests cover treatment and investigation of sarcomas\, including gastro-intestinal stromal tumors (GIST). \nThank you to our Webinar Sponsors!
URL:https://liferaftgroup.org/event/updates-from-ctos/
CATEGORIES:Education,Events,Webcast
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250108T143000
DTEND;TZID=America/New_York:20250108T143000
DTSTAMP:20260406T111827
CREATED:20241202T195947Z
LAST-MODIFIED:20241202T201549Z
UID:10000808-1736346600-1736346600@liferaftgroup.org
SUMMARY:Exploring The SARC044 Trial
DESCRIPTION:The Life Raft Group invites you to “Exploring The SARC044 Trial: Key Details & What The GIST Community Can Gain From The Study” on January 8th\, 2024 at 2:30PM ET. Dr. Candace Haddox\, Dana-Farber Cancer Institute\, will present an overview of the Phase II SARC044 Clinical Trial. This currently recruiting study tests the investigational use of bezuclastinib in combination with sunitinib in patients with GIST. Webinar participants will learn about the SARC044 study\, including eligibility\, site locations\, and study rationale. A Q&A session will follow the presentation. \nREGISTERAbout Our Presenter\n \nDr. Candace Haddox\nDana-Farber Cancer Institute \nDr. Candace Haddox is an Instructor in Medicine at Harvard Medical School\, and a medical oncologist and clinical/translational investigator in the Sarcoma Center and the Center for Cancer Therapeutic Innovation at Dana-Farber Cancer Institute. Dr. Haddox’s research focuses on developing novel therapies rooted in sarcoma biology and determining mechanisms of treatment response and resistance\, particularly in gastrointestinal stromal tumors (GIST). \nDr. Haddox received her Bachelor of Science in neurobiology from the University of Miami. She completed a post-baccalaureate research fellowship at the National Institutes of Health and received her Medical Degree from the University of South Florida. Dr. Haddox completed a residency in Internal Medicine at the Mayo Clinic in Rochester\, Minnesota\, and a fellowship in Medical Oncology at Duke University\, where she also served as Chief Fellow. She joined the faculty at Dana-Farber Cancer Institute in 2021\, where she currently sees patients with sarcomas and leads clinical trials in early drug development.
URL:https://liferaftgroup.org/event/exploring-the-sarc044-trial/
CATEGORIES:Education,Events,Webcast
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2024/12/SARC-Webinar.jpg
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250228T160000
DTEND;TZID=America/New_York:20250228T160000
DTSTAMP:20260406T111827
CREATED:20250310T190321Z
LAST-MODIFIED:20250310T190321Z
UID:10000810-1740758400-1740758400@liferaftgroup.org
SUMMARY:Enfermedades raras - "El fin de la odisea diagnóstica"
DESCRIPTION:Alianza GIST y Fundación GIST México te invitan a su próximo webinar en conmemoración del Día Mundial de las Enfermedades Raras. Un espacio para profesionales de la salud. Tu participación es clave. \n\nREGISTER
URL:https://liferaftgroup.org/event/enfermedades-raras-el-fin-de-la-odisea-diagnostica/
CATEGORIES:Education,Events
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250301T080000
DTEND;TZID=America/New_York:20250301T080000
DTSTAMP:20260406T111827
CREATED:20250117T194503Z
LAST-MODIFIED:20250310T185821Z
UID:10000809-1740816000-1740816000@liferaftgroup.org
SUMMARY:GIST Summit 2025 / GDOL Texas
DESCRIPTION:MD Anderson Cancer Center\, GIST Support International and The Life Raft Group are co-hosting GIST Summit 2025 for  GIST patients and caregivers in Houston\, Texas in March  to showcase recent developments in GIST treatments and therapies. \n\n \n\n \n\n \nREGISTERDr. Neeta Somaiah and Dr. Jonathan Trent\, in partnership with MD Anderson Cancer Center\, GIST Support International (GSI) and The Life Raft Group (LRG) are pleased to invite you to the 2025 GIST Summit and Day of Learning to be held on Saturday\, March 1\, at MD Anderson Cancer Prevention Center in Houston\, TX. \nThis free-of-charge Summit is being sponsored through educational and other grants and gifts from pharmaceutical companies and individual donors. The program will include numerous presentations on the current state of GIST as well as future treatments and one-on-one conversations with the experts. All meals\, refreshments\, and parking will be provided. \nPlease join our communuty of GIST patients and caregivers for these relevant and informative talks\, meet with old friends and new\, and catch up on the latest science. Previous GIST Summits and GIST Days of Learning have been great successes\, and this year’s program is exciting as ever. Where else can you discuss GIST issues with the experts and ask questions you always wanted to ask? You will also have time to meet with other GIST patients and caregivers and to share experiences. \nProposed Agenda is below; subject to changes & additions. \nHave questions? Contact Brian Morello: bmorello@liferaftgroup.org \nLink to Agenda PDF \nThank You To Our Sponsors 
URL:https://liferaftgroup.org/event/gist-summit-2025-gdol-texas/
LOCATION:MD Anderson Cancer Prevention Center\, 1155 Pressler Street 8th Floor\, Houston\, TX\, 77030\, United States
CATEGORIES:Education,Events
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2025/01/GIST-Summit-Banner-w-frame.jpg
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250328T150000
DTEND;TZID=America/New_York:20250328T150000
DTSTAMP:20260406T111827
CREATED:20250304T170959Z
LAST-MODIFIED:20250721T171332Z
UID:10000811-1743174000-1743174000@liferaftgroup.org
SUMMARY:Nutrition After GIST Surgery
DESCRIPTION:The Life Raft Group is partnering with María Camila Gomez\, GIST Patient Advocate and Nutrition student\, to present “Nutrition After GIST Surgery” on March 28 at 3PM ET. Ms. Gomez will address nutrition needs after a total or partial gastrectomy\, blending her personal experience as a patient with what she has learned over the past three years of studying nutrition. A question and answer session will follow the presentation. \nThis webinar will be available on our YouTube channel—subscribe for updates on new GIST education videos. These webinars are for informational purposes only and should not replace professional medical advice. Always consult your healthcare provider before making any treatment or lifestyle changes. If you have questions or comments\, please reach out to srothschild@liferaftgroup.org. \nREGISTERAbout Our Presenter\n \nMaría Camila Gómez\nGIST Advocate & Nutrition Student \nMaría Camila Gomez has been a GIST patient since the age of 16 and is currently a sixth-semester Nutrition and Dietetics student. Five years ago\, after undergoing a total gastrectomy\, she recognized the vital role of nutrition in overall health. This realization led her to pursue studies in nutrition\, both to better understand her new reality and to support others facing similar challenges. In addition to her academic journey\, María Camila creates social media content to raise awareness about life without a stomach and the importance of adapted nutrition. \nThank You to Our Webinar Sponsors!
URL:https://liferaftgroup.org/event/nutrition-after-gist-surgery/
CATEGORIES:Education,Events,Webcast
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250328T160000
DTEND;TZID=America/New_York:20250328T160000
DTSTAMP:20260406T111827
CREATED:20250304T170951Z
LAST-MODIFIED:20250721T171401Z
UID:10000812-1743177600-1743177600@liferaftgroup.org
SUMMARY:Nutrición después de la cirugía de GIST
DESCRIPTION:The Life Raft Group se ha asociado con María Camila Gómez\, paciente y defensora de GIST\, así como estudiante de Nutrición\, para presentar “Nutrición después de la cirugía de GIST” el 28 de marzo a las 4 PM ET. En esta presentación\, María Camila abordará la nutrición después de una gastrectomía total o parcial\, combinando su experiencia personal como paciente con los conocimientos adquiridos durante sus últimos tres años de estudio en nutrición. Al finalizar la presentación\, habrá una sesión de preguntas y respuestas. Si tiene preguntas o comentarios\, póngase en contacto con srothschild@liferaftgroup.org. \nREGISTRATEBiografía de la Ponente:\n \nMaría Camila Gómez\nDefensora GIST & Estudiante de Nutrición \nMaría Camila Gómez ha sido paciente de GIST desde los 16 años y actualmente es estudiante de sexto semestre de Nutrición y Dietética. Hace cinco años\, tras someterse a una gastrectomía total\, reconoció el papel fundamental de la nutrición en la salud. Esta experiencia la llevó a estudiar nutrición\, tanto para comprender mejor su nueva realidad como para apoyar a otras personas que enfrentan desafíos similares. Además de su formación académica\, María Camila crea contenido en redes sociales para generar conciencia sobre la vida sin estómago y la importancia de una nutrición adaptada. \nGracias a Nuestros Patrocinadores!
URL:https://liferaftgroup.org/event/nutricion-despues-de-la-cirugia-de-gist/
CATEGORIES:Education,Events,Webcast
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250506T140000
DTEND;TZID=America/New_York:20250506T140000
DTSTAMP:20260406T111827
CREATED:20250402T184138Z
LAST-MODIFIED:20250402T184138Z
UID:10000817-1746540000-1746540000@liferaftgroup.org
SUMMARY:The Benefits of Palliative Care
DESCRIPTION:The Life Raft Group is partnering with Dr. Grant Smith of Stanford Health Care to present “Live Your Best Life – The Benefits of Palliative Care” on May 6th at 2PM ET. During this virtual presentation\, Dr. Smith will share ways to live your best life using a holistic\, person-centered approach. During this workshop\, Dr. Smith will talk about physical symptoms as well as emotional and spiritual well-being. You’ll also learn about the medical specialty\, called palliative care\, and how it can give you an extra level of support and improve your quality of life. A question and answer session will follow the presentation. \nThese webinars are for informational purposes only and should not replace professional medical advice. Always consult your healthcare provider before making any treatment or lifestyle changes. If you have questions or comments\, please reach out to srothschild@liferaftgroup.org. \nREGISTERAbout Our Presenter\n \nDr. Grant Smith\nCare Physician & Clinical Associate Professor of Medicine \nGrant Smith\, MD is a palliative care physician and Clinical Associate Professor of Medicine at the Stanford School of Medicine. He is the medical director of the Stanford Palliative Care Community Partnerships Team. He received his medical degree from Harvard Medical School and completed his residency in internal medicine and fellowship in hospice and palliative medicine at the University of California\, San Francisco. As part of the Stanford faculty\, he is an attending physician on the palliative care inpatient service and in the outpatient palliative care clinic in Palo Alto. \nThank You to Our Sponsors!
URL:https://liferaftgroup.org/event/benefits-of-palliative-care/
CATEGORIES:Education,Webcast
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250506T150000
DTEND;TZID=America/New_York:20250506T150000
DTSTAMP:20260406T111827
CREATED:20250402T184153Z
LAST-MODIFIED:20250403T201911Z
UID:10000818-1746543600-1746543600@liferaftgroup.org
SUMMARY:Los beneficios de los cuidados paliativos
DESCRIPTION:The Life Raft Group\, junto con Olivia Tigre-Nerimora de Stanford Health Care\, presentará el webinar: “Vive tu vida al máximo: Los beneficios de los cuidados paliativos”\, que se llevará a cabo el 6 de mayo a las 3 p. m. (hora del este). En esta sesión virtual\, la Sra. Tigre-Nerimora compartirá estrategias para vivir plenamente con un enfoque holístico y personalizado\, centrado en el bienestar integral. Además\, abordará aspectos clave como el manejo de síntomas físicos\, el bienestar emocional y el cuidado espiritual. También aprenderá sobre los cuidados paliativos y cómo esta especialidad médica puede brindarle apoyo para mejorar su calidad de vida. Al finalizar la presentación\, habrá una sesión de preguntas y respuestas.  \nEstos webinars son solo con fines informativos y no deben reemplazar el consejo médico profesional. Siempre consulte a su proveedor de atención médica antes de realizar cualquier cambio en su tratamiento o estilo de vida. Si tiene preguntas o comentarios\, por favor comuníquese con srothschild@liferaftgroup.org. \nREGISTRATEAcerca de Nuestra Presentadora\n \nOlivia Tigre-Nerimora\, MHA\nGerente de Proyectos\, Centro de Excelencia en Cuidados Paliativos \nOlivia Tigre Nerimora se desempeña actualmente como Gerente de Proyectos para el Centro de Excelencia en Cuidados Paliativos\, Olivia supervisa proyectos destinados a promover la educación y la concientización sobre los cuidados paliativos especializados. Sus esfuerzos enfatizan el aumento de la participación comunitaria\, particularmente entre las poblacionbes mas vulnerasbles\, para garantizar el acceso equitativo y la comprensión de los servicios de cuidados paliativos. \nGracias a Nuestros Patrocinadores!
URL:https://liferaftgroup.org/event/beneficios-de-los-cuidados-paliativos/
CATEGORIES:Education,Webcast
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250513T120000
DTEND;TZID=America/New_York:20250513T120000
DTSTAMP:20260406T111827
CREATED:20250331T190351Z
LAST-MODIFIED:20250402T180059Z
UID:10000816-1747137600-1747137600@liferaftgroup.org
SUMMARY:Holistic Approaches to Healing
DESCRIPTION:The Life Raft Group is partnering with Certified Wellness Coach & Patient Advocate Carolina Williams to present\, “Holistic Approaches to Healing in Harmony”\, on May 13th at 12PM ET. This virtual session will blend mindfulness practices with vibrational living to support cancer patients and their caregivers in navigating the emotional and energetic challenges of healing. Through guided meditations\, breathwork\, and energy-awareness techniques\, participants will learn how to cultivate inner peace\, resilience\, and a healing mindset. Discover how vibrational frequencies influence well-being\, how to shift energy for emotional balance\, and how to create a supportive environment that fosters deep healing for both patients and caregivers. \nThese webinars are for informational purposes only and should not replace professional medical advice. Always consult your healthcare provider before making any treatment or lifestyle changes. If you have questions or comments\, please reach out to srothschild@liferaftgroup.org. \nREGISTERAbout Our Presenter\n \nCarolina Williams\nCertified Wellness Coach & Patient Advocate \nAfter facing Gastrointestinal Stromal Tumor (GIST)\, Carolina experienced an instantaneous remission—a profound moment that reinforced the power of mindfulness\, energy healing\, and vibrational living. While her healing journey included deep spiritual work\, meditation\, and energy alignment\, she also acknowledges the role of Gleevec\, the targeted therapy that supported her recovery. This integrative approach—combining science and vibrational medicine—became the foundation of her work. \nNow a certified Wellness Coach\, Reiki Master\, and Bio-Well Energy Field Practitioner\, Carolina is passionate about guiding cancer patients and caregivers toward inner peace\, resilience\, and healing. She teaches practical tools that support both emotional and physical well-being\, helping others navigate their journeys with greater strength\, hope\, and balance. \nThank You to Our Sponsors!
URL:https://liferaftgroup.org/event/holistic-approaches-to-healing/
CATEGORIES:Education,Webcast
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250524T130000
DTEND;TZID=America/New_York:20250524T130000
DTSTAMP:20260406T111827
CREATED:20250504T172256Z
LAST-MODIFIED:20250504T172256Z
UID:10000821-1748091600-1748091600@liferaftgroup.org
SUMMARY:GIST & Clinical Trials - LRG Canada
DESCRIPTION:REGISTER
URL:https://liferaftgroup.org/event/clinical-trials-lrg-canada/
CATEGORIES:Education,Events,Webcast
ORGANIZER;CN="GIST Sarcoma Life Raft Group Canada":MAILTO:yvonne.nunnaro@liferaftgroup.ca
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250619T190000
DTEND;TZID=America/New_York:20250619T190000
DTSTAMP:20260406T111827
CREATED:20250513T131917Z
LAST-MODIFIED:20250515T204708Z
UID:10000823-1750359600-1750359600@liferaftgroup.org
SUMMARY:Updates from ASCO 2025
DESCRIPTION:ASCO (American Society of Clinical Oncology) is an important conference in the oncology community where new scientific research updates are shared. The Life Raft Group is excited to partner with Herbert Loong\, who will summarize abstracts and presentations that were presented during this conference that are relevant to the GIST patient community. Join us June 19th at 7pm for this virtual presentation. A Q&A session will follow the presentation. \nThese webinars are for informational purposes only and should not replace professional medical advice. Always consult your healthcare provider before making any treatment or lifestyle changes. If you have questions or comments\, please reach out to srothschild@liferaftgroup.org. \nREGISTERAbout Our Presenter\n \nDr. Herbert Loong \nThe Chinese University of Hong Kong \nDr. Herbert H. Loong holds conjoint appointments of Clinical Associate Professor in the Department of Clinical Oncology and Deputy Medical Director of the Phase 1 Clinical Trials Centre of The Chinese University of Hong Kong. He is also the current and founding convenor of the Prince of Wales Hospital Adult Sarcoma Multidisciplinary Team. \nDr. Loong has served or continues to serve in various capacities in various professional international oncology bodies\, including the International Affairs Committee and the Asia-Pacific Regional Council of ASCO\, the Membership\, Education and Communications Committees of the IASLC. He has been elected as a Board Member of the Connective Tissue Oncology Society (CTOS) for 2022-2024. He is also a founding executive committee member of the newly formed Asia Pacific Oncology Drug Development Network (APODDC). He is also a Board Member in the specialty of Medical Oncology in the Hong Kong College of Physicians. In his appointment as a Registration Committee member of Pharmacy and Poisons Board of Hong Kong\, he helps oversee the registration of medicinal products and clinical trials in the territory. \nThank You to Our Sponsors!
URL:https://liferaftgroup.org/event/updates-asco-2025/
CATEGORIES:Education,Webcast
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250630T120000
DTEND;TZID=America/New_York:20250630T120000
DTSTAMP:20260406T111827
CREATED:20250516T163719Z
LAST-MODIFIED:20250623T151652Z
UID:10000825-1751284800-1751284800@liferaftgroup.org
SUMMARY:Navigating Financial Support & Medicare Changes
DESCRIPTION:The Life Raft Group is partnering with Jennifer Noonan of Accessia Health to present “Navigating Financial Support & Medicare Changes: What Patients Need to Know in 2025” to our patient and caregiver community on June 30th at 12PM ET. During this virtual presentation\, Ms. Noonan will cover key updates including the Medicare Prescription Payment Plan (M3P)\, cost-sharing “smoothing\,” and how charitable financial assistance programs can support individuals navigating high out-of-pocket costs. Learn what these changes mean for patients and caregivers — and how to prepare for what’s ahead. A Q&A segment will follow Ms. Noonan’s presentation. \nThese webinars are for informational purposes only and should not replace professional medical advice. Always consult your healthcare provider before making any treatment or lifestyle changes. If you have questions or comments\, please reach out to rpauley@liferaftgroup.org. \nREGISTERAbout Our Presenter\n \nJennifer Noonan\nAccessia Heath \nJennifer Noonan\, Vice President of Clinical Strategy & Patient Engagement at Accessia Health\, is a dedicated healthcare professional with 25+ years of clinical nursing experience. Her vast clinical management background spans diverse healthcare settings\, showcasing her expertise in program design and service delivery under rigorous regulations. Her career began in emergency medicine in Louisville\, KY\, where she spent 17 years in leadership roles and contributing to EMR clinical development and implementation. Transitioning into hospice and palliative care in 2014\, Jennifer excelled in leadership positions for both adult and pediatric patients. A resolute academic\, Jennifer holds degrees from Kentucky State University and Western Governors University. She was appointed to the National Association of Specialty Pharmacy’s Board of Directors in September 2023. Beyond work\, she is a family-oriented martial arts enthusiast\, hiker\, and avid traveler. \nThank You to Our Sponsors!\n 
URL:https://liferaftgroup.org/event/navigating-financial-support/
CATEGORIES:Education,Webcast
ORGANIZER;CN="Rebecca Pauley":MAILTO:rpauley@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250711T140000
DTEND;TZID=America/New_York:20250711T140000
DTSTAMP:20260406T111828
CREATED:20250513T130002Z
LAST-MODIFIED:20250710T185244Z
UID:10000824-1752242400-1752242400@liferaftgroup.org
SUMMARY:GIST Awareness Day Fireside Chat
DESCRIPTION:July 13th\, GIST Awareness Day\, is a time when GIST experts\, patients\, and caregivers come together to educate the public about this disease and advocate for finding a cure.  The Life Raft Group invites GIST patients and caregivers to celebrate GIST Awareness Day with us on July 11th at 2PM ET. During this virtual event\, esteemed GIST experts Dr. Sicklick of UCSD and Dr. Blakely and Dr. John Glod of the NIH will answer patient and caregiver questions in an informal chat. \nThese webinars are for informational purposes only and should not replace professional medical advice. Always consult your healthcare provider before making any treatment or lifestyle changes. If you have questions or comments\, please reach out to srothschild@liferaftgroup.org. \nREGISTERAbout Our Presenters\n \nDr. Jason Sicklick\nUCSD\, Moores Cancer Center \nJason Sicklick\, MD\, is an internationally recognized surgical oncologist who specializes in treating gastrointestinal stromal tumors (GIST)\, abdominal/retroperitoneal sarcomas\, and liver tumors.He leader of the Sarcoma Disease Team and Co-leader of the Structural and Function Genomics Program at UC San Diego Health’s Moores Cancer Center. He is also a member of the National Comprehensive Cancer Network Soft-Tissue Sarcoma Committee and GIST Subcommittee\, which develops best practices for treating these rare and often challenging-to-treat cancers. \n \nDr. Andrew Blakely\nNational Cancer Institute (NCI) \nDr. Blakely completed a Bachelor of Science in Biomedical Engineering followed by medical school at Drexel University. He went on to general surgery residency at Brown University. During residency\, he spent two years of dedicated research time at the Center for Biomedical Engineering developing a device for tissue engineering applications. Dr. Blakely then completed his fellowship in Complex General Surgical Oncology at City of Hope National Medical Center. Dr. Blakely is currently a surgical oncologist specializing in peritoneal surface malignancies and soft tissue sarcomas. One of the primary focuses of his research includes improving surgical treatment and ex vivo tumor modeling of gastrointestinal stromal tumors. \n \nDr. John Glod\nNational Cancer Institute (NCI) \nDr. Glod obtained his M.D. and Ph.D. from the University of Colorado in Denver and trained in pediatrics and pediatric oncology at Cincinnati Children’s Hospital\, Johns Hopkins Hospital\, and the Pediatric Oncology Branch of the NCI.  Dr. Glod currently serves as the Clinical Director of the Pediatric Oncology Branch in the Center for Cancer Research at National Cancer Institute. Dr. Glod’s research interests are focused on early stage clinical trials for pediatric patients and rare pediatric solid tumors including multiple endocrine neoplasia-related medullary thyroid cancer\, SDH-deficient gastrointestinal stromal tumor\, and tumors of the central nervous system. \nThank You to Our Sponsors!\n 
URL:https://liferaftgroup.org/event/gad-fireside-chat/
CATEGORIES:Education,Webcast
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250714T120000
DTEND;TZID=America/New_York:20250714T120000
DTSTAMP:20260406T111828
CREATED:20250318T174657Z
LAST-MODIFIED:20250711T200848Z
UID:10000815-1752494400-1752494400@liferaftgroup.org
SUMMARY:Día del aprendizaje sobre GIST en español
DESCRIPTION:RESERVE LA FECHA – 14 de Julio\n \nPronto compartiremos la agenda. \n¡Reserve la fecha para el primer GIST Day of Learning en español!  \nEl día del aprendizaje sobre Los Tumores del Estroma Gastrointestinal (GIST) es un evento gratuito diseñado para pacientes y cuidadores\, donde pueden informarse sobre este cáncer poco común\, encontrar apoyo y fortalecer su conocimiento para afrontar su camino contra el GIST. \nREGISTRATELink Agenda PDF\n \n¿Qué es un GDOL? \nUn GDOL es un GIST Day of Learning (Día de Aprendizaje sobre GIST). Este es un evento gratuito de un día diseñado para ayudar a pacientes y cuidadores a aprender más sobre este cáncer raro\, encontrar apoyo y ampliar sus conocimientos para navegar su camino en el tratamiento del cáncer. \nThe Life Raft Group está comprometido con mejorar la supervivencia y calidad de vida de las personas que viven con Tumor del Estroma Gastrointestinal (GIST) y otras enfermedades raras\, a través de la investigación impulsada por los pacientes\, la educación\, el empoderamiento y esfuerzos de defensa a nivel global. Nuestra visión es impulsar un futuro basado en datos\, guiando nuestro camino hacia la cura de enfermedades raras. \nSi tiene alguna pregunta\, comuníquese con Brian Morello en bmorello@liferaftgroup.org. \nGracias a Nuestros Patrocinadores!
URL:https://liferaftgroup.org/event/dia-del-aprendizaje-sobre-gist-en-espanol/
CATEGORIES:Education,Events
ORGANIZER;CN="Rebecca Pauley":MAILTO:rpauley@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250812T120000
DTEND;TZID=America/New_York:20250812T120000
DTSTAMP:20260406T111828
CREATED:20250707T163827Z
LAST-MODIFIED:20250707T193754Z
UID:10000828-1755000000-1755000000@liferaftgroup.org
SUMMARY:Making Cents of Caregiving
DESCRIPTION:The Life Raft Group is partnering with Al Berg of the AARP NJ Speakers Bureau to present “Making Cents of Caregiving” on August 12\, at 12PM ET. In this informative and educational session\, you will be introduced to essential information caregivers need to more easily manage the financial complexities of caregiving. Over the course of the presentation\, you will learn how to incorporate financial tips and resources into your caregiving. By the end of the session\, we hope you have the confidence to make your own financial plans for your loved one’s care and well-being. A question and answer session will follow the presentation. \nThese webinars are for informational purposes only and should not replace professional medical advice. Always consult your healthcare provider before making any treatment or lifestyle changes. If you have questions or comments\, please reach out to rpauley@liferaftgroup.org. \nREGISTERAbout Our Presenters\n \nAl Berg\nAARP NJ Speakers Bureau \nAl Berg is a volunteer with the AARP NJ Speakers Bureau\, giving presentations on a variety of topics of interest to older Americans.  During the day\, Al heads up cybersecurity for a major entertainment company. When he is not fighting off hackers\, he is an EMT with the Weehawken Volunteer First Aid Squad and lives in Weehawken with his wife and a very spoiled cat. \nThank You to Our Sponsors!\n 
URL:https://liferaftgroup.org/event/making-cents-of-caregiving/
CATEGORIES:Education,Webcast
ORGANIZER;CN="Rebecca Pauley":MAILTO:rpauley@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250913T080000
DTEND;TZID=America/New_York:20250913T080000
DTSTAMP:20260406T111828
CREATED:20250310T193818Z
LAST-MODIFIED:20250905T005807Z
UID:10000813-1757750400-1757750400@liferaftgroup.org
SUMMARY:GDOL Los Angeles
DESCRIPTION:GDOL Los Angeles will take place in-person on September 13th at UCLA Health. \nREGISTERClick for PDF Agenda\n\n \nWhat is a GDOL? \nA GDOL is a GIST Day of Learning. This is a free one day event to help patients and caregivers learn more about this rare cancer\, find support\, and enhance their knowledge base to help them navigate their cancer journey. \nThe Life Raft Group is committed to enhancing the survival and quality of life for people living with Gastrointestinal Stromal Tumor (GIST)\, and other rare diseases\, through patient-powered research\, education and empowerment\, and global advocacy efforts. Our vision is to empower a future fueled by data\, guiding our journey toward cures for rare diseases. \nIf you have any questions\, please contact Brian Morello at bmorello@liferaftgroup.org
URL:https://liferaftgroup.org/event/gdol-los-angeles/
CATEGORIES:Education,Events
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
END:VCALENDAR