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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20201020T120000
DTEND;TZID=America/New_York:20201020T120000
DTSTAMP:20200916T162445Z
CREATED:20200909T152729Z
LAST-MODIFIED:20200916T162445Z
UID:10000087-1603195200-1603195200@liferaftgroup.org
SUMMARY:LRG Webcast: Genetics 101
DESCRIPTION:With the alphabet soup of terms and genes that cancer patients tend to hear during diagnosis\, it takes some time to really understand what these terms mean. \nIn her Genetics 101 webcast\, Dr. Raygada will unravel the DNA terms and seek to empower patients by helping them understand the genetic basis of their conditions so that they may decrease the risks associated with the mutations and tumors they carry. \nREGISTERAbout the presenter\nMargarita Raygada\, PhD\, Oncology Genetic Counselor \nDr. Raygada’s doctorate degree is in Medical Science from the Uniformed Services University of the Health Sciences/Naval Hospital\, Bethesda\, Maryland. Her Master’s degree is in Human Genetics and Genetic Counseling\, Georgetown University Hospital (GUH) in Washington\, D.C.\, with two post-doctoral fellowships: Molecular Biology at The Johns Hopkins Hospital in Baltimore\, and Cancer Genetics at GUH. Research Focus: Cancer genetics is my passion. I am interested in delineating the genetic changes in rare tumors and identifying associated phenotypes that may lead to common pathways and therefore improved outcomes for cancer patients. But most importantly I hope to empower patients by helping them understand the genetic basis of their conditions\, and by educating them on how they can use this information to manage their cancer so that they may decrease the risks associated with the mutations and tumors they carry.
URL:https://liferaftgroup.org/event/lrg-webcast-genetics-101/
CATEGORIES:Education,Webcast
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2020/08/raygada-event.jpg
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20201010T150000
DTEND;TZID=America/New_York:20201010T170000
DTSTAMP:20200821T140652Z
CREATED:20190917T151250Z
LAST-MODIFIED:20200821T140652Z
UID:10000044-1602342000-1602349200@liferaftgroup.org
SUMMARY:GDOL Denver 2020 - Virtual
DESCRIPTION:Join the LRG for Virtual GDOL Denver\, October 10 at 1pm ET. GDOL Denver is an event for patients & caregivers to learn more about GIST\, find support\, & enhance knowledge to help navigate their cancer journey. Meet with other patients and caregivers and experts\, clinicians\, and researchers in the study and treatment of GIST. \nRegister AgendaVirtual GDOL Denver Sponsors: \n \nWhat’s a GDOL?  A GDOL is a GIST Day of Learning\, a free one-day event to help you\, as patients and caregivers\, learn more about GIST\, find support\, and enhance your knowledge base to help you navigate your cancer journey. At a GDOL you will learn more about your disease from expert clinicians\, researchers\, and advocates and connect with other patients\, caregivers\, and family members who are also on this rare journey. You are not alone. \nThe LRG’s mission is simple: cure GIST and help those living with it until then. To do this\, we focus on three key areas: research\, patient support & education\, and advocacy. \nSee what a GDOL can offer you – visit this link to see presentations\, photos\, and posts about past GDOLs: \n\nView Past GDOLs  \n\nFor questions or more information about GDOL\, Diana Nieves\, Senior Director\, Outreach & Engagement\, DNieves@liferaftgroup.org
URL:https://liferaftgroup.org/event/gdol-denver-2020/
CATEGORIES:Education,Events
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2019/09/denver2.png
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20201010T090000
DTEND;TZID=America/New_York:20201010T110000
DTSTAMP:20200928T185340Z
CREATED:20190913T141141Z
LAST-MODIFIED:20200928T185340Z
UID:10000043-1602320400-1602327600@liferaftgroup.org
SUMMARY:GDOL Tampa 2020 - Virtual
DESCRIPTION:Join the LRG for GDOL Tampa\, Saturday\, March 28\, 2020 at 9am. GDOL Tampa is an event for patients & caregivers to learn more about GIST\, find support\, & enhance knowledge to help navigate their cancer journey. Meet with other patients and caregivers and experts\, clinicians\, and researchers in the study and treatment of GIST. \nRegister AgendaWhat’s a GDOL?  A GDOL is a GIST Day of Learning\, a free one-day event to help you\, as patients and caregivers\, learn more about GIST\, find support\, and enhance your knowledge base to help you navigate your cancer journey. At a GDOL\, you will learn more about your disease from expert clinicians\, researchers\, and advocates and connect with other patients\, caregivers\, and family members who are also on this rare journey. You are not alone. \nThe LRG’s mission is simple: cure GIST and help those living with it until then. To do this\, we focus on three key areas: research\, patient support & education\, and advocacy. \nSee what a GDOL can offer you – visit this link to see presentations\, photos\, and posts about past GDOLs: \n\nView Past GDOLs  \n\nFor questions or more information about GDOL\, Diana Nieves\, Senior Director\, Outreach & Engagement\, DNieves@liferaftgroup.org
URL:https://liferaftgroup.org/event/gdol-tampa-2020/
CATEGORIES:Education,Events
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20200826T150000
DTEND;TZID=America/New_York:20200826T150000
DTSTAMP:20200630T191338Z
CREATED:20200616T144916Z
LAST-MODIFIED:20200630T191338Z
UID:10000072-1598454000-1598454000@liferaftgroup.org
SUMMARY:Understanding the Link Between Pheo\, Para\, and GIST
DESCRIPTION:REGISTERThis hour-long webinar presented by The Pheo Para Alliance will provide an opportunity for the community to ask questions live or submit them beforehand. \nThis Live Webinar Series\, made possible through an educational grant by Progenics\, gives patients and their families an opportunity to tune in and interact with experts on a variety of pheo para topics. \nThe information discussed during this webinar is for informational purposes only\, and does not take the place of medical advice from your doctor(s) who know your medical history and current situation. \nAbout the Presenter:\nDr. Jason Sicklick\nAssociate Professor of Surgery\, Division of Surgical Oncology @UC San Diego Health System\nJason Sicklick\, MD\, is a general surgeon and surgical oncologist who specializes in treating hepatobiliary diseases and sarcomas\, including gastrointestinal stromal tumors (GIST). He has a special interest in abdominal and retroperitoneal sarcomas\, primary liver tumors and colorectal and neuroendocrine cancers that have metastasized to the liver. Read full bio here. \n\n\nSee other webcasts by Dr. Sicklick here:\nRare GIST Subtypes\nUnderstanding the Concept of “Precision Oncology”\nUpdates on the Temozolomide Trial\nNew Insights into Gene Fusion\n\n\n\nModerated by:\n\n\nDebra Melikian\nPatient Advocate\nDebra was thrust into the world of GISTS and pheo para when her husband and son were diagnosed. She is a mother on a mission. She and Dr. Sicklick have a unique relationship that powers both of their missions forward to help all patients. \n\nYou can read more about Debra:\nPatient Advocate’s Story Unfolds in RARE Revolution Magazine
URL:https://liferaftgroup.org/event/understanding-the-link-between-pheo-para-and-gist/
CATEGORIES:Education,Events,Webcast
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2020/06/pheo-para-webinar.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20200815T130000
DTEND;TZID=America/New_York:20200815T150000
DTSTAMP:20200727T182549Z
CREATED:20200727T181233Z
LAST-MODIFIED:20200727T182549Z
UID:10000082-1597496400-1597503600@liferaftgroup.org
SUMMARY:GIST LEARN Online
DESCRIPTION:GIST Sarcoma Life Raft Group Canada is pleased to invite you to register for our first online event. Our “GIST LEARN Online” webinar will use Zoom video and audio conferencing to provide education and support for people living with GIST. \nGIST LEARN Online events are open to GIST patients\, caregivers\, family members\, friends\, healthcare providers\, and anyone who wishes to learn more about GIST. \nLife Raft Group Canada has been hosting in-person GIST patient / caregiver meetings in cities all across Canada for the past twelve years. In 2020\, we hope that you will join us online. \nRegister \nKeynote speaker:\nDavid Josephy\, PhD\nProfessor of Molecular and Cellular Biology\nPresident\, GIST Sarcoma Life Raft Group Canada \nThe latest event details can be found at the event registration link above\, but please don’t hesitate to contact Life Raft Group Canada by email or phone if there is anything that you would like to discuss. \nSponsors:
URL:https://liferaftgroup.org/event/gist-learn-online/
CATEGORIES:Education,International
ORGANIZER;CN="Malcolm Sutherland%2C GIST Sarcoma Life Raft Group Canada":MAILTO:malcolm.sutherland@liferaftgroup.ca
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20200710T140000
DTEND;TZID=America/New_York:20200710T140000
DTSTAMP:20200710T151533Z
CREATED:20200612T135558Z
LAST-MODIFIED:20200710T151533Z
UID:10000071-1594389600-1594389600@liferaftgroup.org
SUMMARY:Virtual Life Fest 2020
DESCRIPTION:Virtual Life Fest 2020 – July 10th – July 13th\n2020 brought a global health crisis that has challenged GIST patients. We had planned this year to be in New Orleans to share valuable information about GIST Research\, to enjoy fellowship with each other\, and yes\, to enjoy the wonderful food and music. \nEven though we can’t be together physically for our biennial Life Fest celebration and we won’t be together for GIST Awareness Day\, we can unite and spread a message of hope and positive messages while raising GIST awareness across the globe. Thanks to the generosity of our sponsors\, we still have a wonderful virtual weekend planned\, with some of the same elements Life Fest always provides. \nWith the latest information being shared in both our traditional GIST 101 presentation with Dr. David Josephy\, and through several panels featuring top GIST specialists and researchers\, a program targeted to the SDH community as well as fun events including a cooking demonstration\, Virtual Life Fest will prove that even with the restrictions on gathering\, you cannot keep the GIST community from sharing their strength\, hope and experiences. \nRegisterOur theme for Virtual Life Fest\, and for GIST Awareness Day this year is #GISTHope.\nThere are many ways for you to share this hopeful message: \n\nParticipate in our Virtual Life Fest Events.\nJoin us in our Virtual Walk. Start a fundraising page to invite family and friends to sponsor you in your efforts to raise funds for GIST Research.\nVisit our LRG store to purchase items such as our #GISTHope Masks to wear on your walk.\nMake a donation.\nGo to our GIST Awareness Day (GAD) page to see how to raise awareness\, including our creative #GISTHope rock painting project\nSend your stories\, photos and messages of hope to Mary Garland\, Director of Communications: mgarland@liferaftgroup.org\n\nAll times are Eastern Daylight Time \n\n\n\n\n	Friday\, July 10th\n\n\n	2:00pm GIST 101 Presented by David Josephy (pre-recorded video)\n\n\n	4pmGIST ART Launch\n\n\n	Saturday\, July 11th\n\n\n	12:00pm GIST Research Panel:  Join GIST experts as they provide updates and answer questions on GIST research and new GIST therapies.\n\nPresenters: Roman Groisberg\, MD\, Rutgers Cancer Institute of New Jersey; Michael Heinrich\, MD\, OHSU Knight Cancer Institute; Jason Sicklick\, MD\, Moores Cancer Center\, UC of San Diego\n\n\n	2:00pm GIST Oncologist Panel: Our oncology and surgical GIST experts will share the latest trends\, insights and surgical options\, and answer questions. \n\nPresenters: Gina D’Amato\, MD\, Sylvester Comprehensive Cancer Center\, U of M; Arun Singh\, MD\, Ronald Reagan UCLA Medical Center; Jonathan Trent\, MD\, PhD\, Sylvester Comprehensive Cancer Center\, U of M; Breelyn Wilky\, MD\, UCHealth Cancer Center\, Anschutz Medical Campus\n\n\n	4:00pm Cooking Demonstration (pre-recorded video) and GIST Cookbook Launch\n\n\n	Sunday\, July 12th\n\n\n	12:00pm Virtual Walk Launch (pre-recorded videos)\n\n\n	Monday\, July 13th\n\n\n	9:00am - 5:00pmGAD and #GISTHope Messages\n\n\n	12:00pm EDTQ&A with SDH Panel of Experts\nChristopher B. Weldon\, MD\, PhD\nBoston Children’s Hospital\n  Christopher Weldon\, MD\, PhD is Assistant in Surgery\, Department of Surgery; Director\, Pediatric Surgery Critical Care Fellowship and Assistant Professor of Surgery\, Boston Children’s Hospital\, Harvard Medical School. He is Board Certified in Critical Care\, General Surgery\, and Pediatric Surgery.\n\nLee Helman\, MD\nChildren’s Hospital Los Angeles\n  Dr. Helman is a Professor of Pediatrics and Medicine\, Keck School of Medicine\, USC\, Head\, Basic and Translational Research\, Children’s Center for Cancer and Blood Diseases. His laboratory work focuses on the biology and treatment of rhabdomyosarcoma\, Ewing’s sarcoma\, osteosarcoma\, and pediatric GIST tumors. Major areas of research include the pathophysiologic consequences of IGF signaling\, identification of the molecular/biochemical determinants of the biology of sarcomas\, and the application of functional genomics to identify new treatment targets.\n\nJonathan Trent\, MD\nSylvester Comprehensive Cancer Center\n Dr. Trent’s interests are in the clinical and translational research of sarcomas\, direct care of sarcoma patients\, and education about sarcoma. The major efforts of Dr. Trent’s research focus on understanding the mechanisms of action and resistance of imatinib in GIST and other sarcomas while striving toward improved therapeutic options.\n\nAndrew Rosenberg\, MD\nSylvester Comprehensive Cancer Center\n Andrew Eric Rosenberg\, MD is the Vice Chair\, Director of Bone and Soft Tissue Pathology at the Sylvester Comprehensive Cancer Center in the University of Miami.\n\nJason Sicklick\, MD\nMoores Cancer Center\n Dr. Jason Sicklick is an NIH-funded investigator and Associate Professor of Surgery at the University of California San Diego Moores Cancer Center. He is a board-certified general surgeon and surgical oncologist specializing in the treatment of hepatobiliary diseases and sarcomas\, including gastrointestinal stromal tumors (GIST). \n\nRuth Casey\, PhD\nCambridge University Hospitals\, UK\n Dr Dr Casey has a specialist clinical interest in hereditary endocrine neoplasia and endocrine cancer. Her research has focused mainly on the role of succinate dehydrogenase gene mutations in tumorigenesis and has a strong translational focus. Her interest in succinate dehydrogenase deficient tumours has led to her collaboration with PAWS GIST.  \n\nEyal Gottlieb\, MSc\,PhD\nTechnicon – Israel Institute of Technology\nDr. Gottlieb is a Professor and Director of the Cancer Metabolomics Lab at the Technion-Israel Institute of Technology. He is an internationally renowned expert in the field of metabolomics – measuring components of metabolism in cells under different conditions.\n\n\nThere will also be other special guest speakers.\n\n\n\n\nDownload SDH Panel Experts Flyer \n \nSponsors
URL:https://liferaftgroup.org/event/virtual-life-fest/
CATEGORIES:Education,Events,Fundraising
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20200616T120000
DTEND;TZID=America/New_York:20200616T130000
DTSTAMP:20200515T142935Z
CREATED:20200512T205723Z
LAST-MODIFIED:20200515T142935Z
UID:10000066-1592308800-1592312400@liferaftgroup.org
SUMMARY:LRG Webcast Series: GIST: How to Understand your Pathology Report
DESCRIPTION:In this webinar\, we will be discussing how to interpret your pathology report. We will cover interpretation of all parts of a pathology report\, beginning with understanding the final diagnosis and diagnostic comment. We will then review the results and significance of performed ancillary testing\, including immunohistochemistry\, prognostic biomarker testing\, and molecular testing. We will end by discussing how the aforementioned pathology report data affects clinical surgical and therapeutic decision-making. \nREGISTERAbout the Presenters:\nKelsey McHugh\, M.D.\nGastrointestinal\, Hepatic\, and Pancreatobiliary Pathology Fellow\nRobert J. Tomsich Pathology & Laboratory Medicine Institute\nCleveland Clinic \nKelsey McHugh\, MD is a board certified anatomic and clinical pathologist\, with cytopathology subspecialty certification\, who is currently completing gastrointestinal\, hepatic\, and pancreatobiliary pathology subspecialty training. She anticipates graduating from the Cleveland Clinic Gastrointestinal\, Hepatic\, and Pancreatobiliary Pathology Fellowship in June 2020\, after which she will remain at the Cleveland Clinic as a staff pathologist beginning July 2020.
URL:https://liferaftgroup.org/event/understand-your-pathology-report/
CATEGORIES:Education,Webcast
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Mexico_City:20200611T190000
DTEND;TZID=America/Mexico_City:20200611T190000
DTSTAMP:20200610T133936Z
CREATED:20200609T182644Z
LAST-MODIFIED:20200610T133936Z
UID:10000070-1591902000-1591902000@liferaftgroup.org
SUMMARY:¿Eres paciente con GIST de habla hispana? (Reunión Virtual)
DESCRIPTION:Por favor únase a nosotros para esta Reunión Virtual.\nAlojado por Fundacíon GIST México \nAprendiendo más sobre GIST y las nuevas terapias aprobadas. Jueves 11 de junio a las 1900 hrs tiempo Ciudad de México. (8pm New York) \nPresentado por Dr. David Heredia\, Oncólogo médico Instituto Nacional de Cancerología. \nÚnete a la reunión: \nUnirse a reunión de Microsoft Teams \nMás información sobre Teams | Opciones de reunión  
URL:https://liferaftgroup.org/event/eres-paciente-con-gist-de-habla-hispana-reunion-virtual/
CATEGORIES:Education,Events,International
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2020/06/Flyer-Reunión-Virtual-de-pacientes-v2-1.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20200529T133000
DTEND;TZID=America/New_York:20200529T143000
DTSTAMP:20200429T150524Z
CREATED:20200429T145739Z
LAST-MODIFIED:20200429T150524Z
UID:10000062-1590759000-1590762600@liferaftgroup.org
SUMMARY:Webinar - Advances in the Treatment of GIST
DESCRIPTION:This is a free CancerCare Connect® Education Workshop for people living with GIST\, their families\, partners\, caregivers\, friends and health care professionals. Listen to this workshop over the telephone or connect to our webcast online. \nWorkshop Topics\n• Overview of the Treatment of Gastrointestinal Stromal Tumors (GIST)\, in the Context of COVID-19\n• Diagnosis and Staging\n• Treatment Options\n• Clinical Trials and Novel Approaches to Treating GIST\n• Strategies to Manage Common Treatment Side Effects\, Discomfort and Pain\n• The Importance of Communicating with Your Health Care Team\n• What’s New on the Horizon for GIST Cancers\n• Questions for Our Panel of Experts \nREGISTERwebinar flyerSpeakers\nSuzanne George\, MD\nClinical Director\nCenter for Sarcoma and Bone Oncology\nSenior Physician\nDana-Farber Cancer Institute Associate Professor of Medicine Harvard Medical School \nMichael C. Heinrich\, MD\nProfessor of Medicine\nCell and Developmental Biology Hematology and Medical Oncology Program in Molecular and Cellular Biosciences\nSchool of Medicine\nOregon Health & Science University (OHSU) \nCarolyn Messner\, DSW\, OSW-C\, FAPOS\, FAOSW\nDirector of Education and Training CancerCare®
URL:https://liferaftgroup.org/event/advances-in-the-treatment-gist/
CATEGORIES:Education,Events
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2020/04/cancer-care-connect.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20200514T140000
DTEND;TZID=America/New_York:20200514T150000
DTSTAMP:20200520T122214Z
CREATED:20200421T143006Z
LAST-MODIFIED:20200520T122214Z
UID:10000061-1589464800-1589468400@liferaftgroup.org
SUMMARY:LRG Webcast Series: GIST\, TKI Treatment & Effects on Memory
DESCRIPTION:Cancer-related cognitive impairment\, or CRCI\, is common among certain cancer survivors\, for example\, individuals with breast cancer. CRCI usually presents as mild to moderate problems with memory and attention and can even persist long after cancer treatment has ended. Many have called this “chemobrain” or “chemofog” but research over the past three decades indicates that cancer itself\, genetic vulnerabilities and treatments other than chemotherapy can lead to persistent CRCI. \nSimilar to patients treated with chemotherapy\, patients with GIST are complaining about long-term side effects of Gleevec therapy with respect to cognitive function (“Gleevec brain”). Nevertheless\, very little is known about CRCI in cancer patients who are being treated with tyrosine kinase inhibitors (TKIs)\, like Gleevec\, including patients with GIST. \nThis discussion will review CRCI in general\, and how a person who is being treated for GIST could be affected. We will also talk about strategies that can help ameliorate CRCI and discuss our new research on CRCI and GIST. Finally\, in light of the COVID-19 pandemic\, we will give advice on how cancer survivors can best cope with and care for themselves during this unusual global health event. \nSEE The RecapAbout the Presenters:\nAnette Duensing\, M.D.\nAssociate Professor of Pathology\nUniversity of Pittsburgh School of Medicine \nAnette Duensing holds an M.D. degree from the University of Hannover School of Medicine\, Germany\, and is an Associate Professor of Pathology at the University of Pittsburgh School of Medicine as well as Member of the Cancer Therapeutics Program at the UPMC Hillman Cancer Center. Her research focuses on gastrointestinal stromal tumors (GISTs) as well as other sarcomas with the goal of identifying novel therapeutic approaches. Recently\, Dr. Duensing has teamed up with Dr. Robert Ferguson at UPMC HCC to study cognitive impairment in GIST patients treated with Gleevec and other tyrosine kinase inhibitors. Dr. Duensing is the author of nearly 70 original articles\, reviews and book chapters. Her research has been supported by the American Cancer Society\, the Sarcoma Foundation of America\, the GIST Cancer Research Fund and the Life Raft Group. \nRobert J. Ferguson\, Ph.D.\nAssistant Professor of Medicine with the Division of Hematology/Oncology\nUniversity of Pittsburgh School of Medicine and Hillman Cancer Center \nDr. Ferguson is a clinical psychologist and Assistant Professor of Medicine with the Division of Hematology/Oncology at the University of Pittsburgh School of Medicine and Hillman Cancer Center. His clinical and research interests are the treatment of cognitive effects of cancer\, cancer survivorship and palliative care. He is the author of numerous peer reviewed research articles and book chapters on treatment of cancer-related cognitive dysfunction and other topics related to the field of behavioral medicine. His research has been funded by grants from the National Cancer Institute\, NIH Office of Research on Women’s Health\, and the Lance Armstrong Foundation. \n\n \nDisclaimer:\nWe cannot provide individual medical advice during this webcast. Information provided in this webcast is not intended as a substitute for your physician’s guidance and care.
URL:https://liferaftgroup.org/event/lrg-webcast-series-treatment-effects-memory/
CATEGORIES:Education,Events
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20200502T120000
DTEND;TZID=America/New_York:20200502T120000
DTSTAMP:20200504T122823Z
CREATED:20200501T170444Z
LAST-MODIFIED:20200504T122823Z
UID:10000064-1588420800-1588420800@liferaftgroup.org
SUMMARY:Sarcoma and COVID-19: Your Questions Answered
DESCRIPTION:From our friends at the Sarcoma Alliance:\nWEBINAR: Sarcoma and COVID-19: Your questions answered\n Saturday\, May 2nd for our multidisciplinary webinar with Sarcoma Experts:\n\nDr. George Demetri\nDr. Gina D’Amato\nDr. Jonathan Trent\nDr. Tom DeLaney\nDr. Fritz Eilber\n\nMeeting begins at 9am Pacific | 10am Mountain | 11am Central | 12noon Eastern\nSEE THE WEBINAR
URL:https://liferaftgroup.org/event/sarcoma-and-covid-19-your-questions-answered/
LOCATION:Sarcoma Alliance
CATEGORIES:Education,Events
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20200306T120000
DTEND;TZID=America/New_York:20200306T120000
DTSTAMP:20200228T202614Z
CREATED:20200228T202106Z
LAST-MODIFIED:20200228T202614Z
UID:10000056-1583496000-1583496000@liferaftgroup.org
SUMMARY:Webinar - New Treatment Options for Rare Diseases in the Soft Tissue - Day 2
DESCRIPTION:In honor of Rare Disease in the Soft Tissue Day\, OncLive is hosting webinars on March 5 and March 6 at 12pm EST about soft tissue sarcoma. GIST is a soft tissue sarcoma. \nDr. Neeta Somaiah \nDr. Neeta Somaiah will present on March 6. She is an Associate Professor and the Director of Clinical Sarcoma Research\, Department of Sarcoma Medical Oncology\, UT MD Anderson Cancer Center. \nThe webinar will focus on: \n\nOverview of diagnosis and molecular testing\nCurrent treatment algorithms for soft tissue sarcoma\nNew therapeutic option for PDGFRA+ GIST\nFuture directions in management\n\nTo register for the March 6 webinar: \n\nRegister
URL:https://liferaftgroup.org/event/webinar-new-treatment-options-for-rare-diseases-in-the-soft-tissue-day-2/
CATEGORIES:Education,Webcast
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20200305T120000
DTEND;TZID=America/New_York:20200305T120000
DTSTAMP:20200228T201452Z
CREATED:20200228T201100Z
LAST-MODIFIED:20200228T201452Z
UID:10000055-1583409600-1583409600@liferaftgroup.org
SUMMARY:Webinar - New Treatment Options for Rare Diseases in the Soft Tissue - Day 1
DESCRIPTION:In honor of Rare Disease in the Soft Tissue Day\, OncLive is hosting webinars on March 5 and March 6 at 12pm EST about soft tissue sarcoma. GIST is a soft tissue sarcoma. \nDr. Jonathan Trent \nJonathan Trent\, MD\, PhD\, is a Professor of Medicine\, Associate Director of Clinical Research\, Director of the Sarcoma Program at Sylvester Comprehensive Cancer Center\, University of Miami\, Miller School of Medicine. \nDr. Trent is a recognized GIST expert. \nThe webinar will focus on: \n\nOverview of diagnosis and molecular testing\nCurrent treatment algorithms for soft tissue sarcoma\nNew therapeutic option for PDGFRA+ GIST\nFuture directions in management\n\nTo register for the March 5 webinar: \n\nRegister
URL:https://liferaftgroup.org/event/webinar-new-treatment-options-for-rare-diseases-in-the-soft-tissue/
CATEGORIES:Education,Webcast
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20200215T090000
DTEND;TZID=America/Los_Angeles:20200215T170000
DTSTAMP:20200117T152000Z
CREATED:20191101T154951Z
LAST-MODIFIED:20200117T152000Z
UID:10000047-1581757200-1581786000@liferaftgroup.org
SUMMARY:GDOL Seattle 2020
DESCRIPTION:Join us at GDOL Seattle\, Saturday\, February 15\, 2020 hosted in partnership with the Seattle Cancer Care Alliance at the Orin Smith Auditorium (Building C) on the University of Washington campus – 850 Republican St.\, Seattle\, Washington. GDOL Seattle is an event for patients & caregivers to learn more about GIST\, find support\, & enhance knowledge to help navigate their cancer journey. Meet with other patients and caregivers and experts\, clinicians\, and researchers in the study and treatment of GIST. \nRegisterVIEW AGENDAWhat’s a GDOL?  A GDOL is a GIST Day of Learning\, a free one-day event to help you\, as patients and caregivers\, learn more about GIST\, find support\, and enhance your knowledge base to help you navigate your cancer journey. At a GDOL\, you will learn more about your disease from expert clinicians\, researchers\, and advocates and connect with other patients\, caregivers\, and family members who are also on this rare journey. You are not alone. \nThe LRG’s mission is simple: cure GIST and help those living with it until then. To do this\, we focus on three key areas: research\, patient support & education\, and advocacy. \nSee what a GDOL can offer you – visit this link to see presentations\, photos\, and posts about past GDOLs: \n\nView Past GDOLs  \n\nFor questions or more information about GDOL\, Diana Nieves\, Senior Director\, Outreach & Engagement\, DNieves@liferaftgroup.org
URL:https://liferaftgroup.org/event/gdol-seattle-2020/
LOCATION:Orin Smith Auditorium – Building C\, University of Washington\, 850 Republican Street\, Seattle\, 98109\, United States
CATEGORIES:Education,Events
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2019/11/Seattle-GDOL.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20200126T140000
DTEND;TZID=America/New_York:20200126T160000
DTSTAMP:20200116T134939Z
CREATED:20191218T213339Z
LAST-MODIFIED:20200116T134939Z
UID:10000049-1580047200-1580054400@liferaftgroup.org
SUMMARY:GISTLEARN Kitchener
DESCRIPTION:“GIST LEARN Kitchener” is an afternoon meeting to provide education and support for people living with GIST. The speakers at GIST LEARN will cover many aspects of living with and understanding GIST. This meeting also offers a great opportunity for you to connect with other GIST patients and caregivers as well as the speakers. \nGIST LEARN meetings are open to those who have GIST\, family members\, caregivers\, healthcare providers and anyone who wishes to learn more about GIST. \nRescheduled to Sunday\, January 26th!\n(Originally scheduled – Sunday\, January 12\, 2020)\n2:00 pm to 4:00 pm \nDoors open at 1:30 pm \nMill Courtland Community Centre\, 216 Mill St.\, Kitchener\, ON \nHazel McLeod will lead an\ninformal round-table discussion\nDavid Josephy will give a GIST presentation\nthat includes a Q&A session\nTo register or for further information call 855-574-4478 or email info@liferaftgroup.ca \n\nDavid Josephy is a Professor of Molecular and Cellular Biology at the University of Guelph\, where he has taught for more than 35 years. He has been President of GIST Sarcoma Life Raft Group Canada (LRGC) since its inception in 2008. In 2010\, David spent a sabbatical term working in the laboratory of Dr. Jonathan Fletcher\, a leading GIST researcher at Brigham and Women’s Hospital in Boston. David is a member of the Science Team of The Life Raft Group (USA) and collaborates with GIST patient support groups around the world. His research interests are in the field of Molecular Toxicology. He is particularly interested in the scientific basis for development of new small-molecule drugs for GIST. \nThank you to our sponsors:
URL:https://liferaftgroup.org/event/gistlearn-kitchener/
LOCATION:Mill Courtland Community Centre\, 216 Mill St.\, Kitchener\, Ontario
CATEGORIES:Education
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2019/12/kitchener-rescheduled-copy.png
ORGANIZER;CN="GIST Sarcoma Life Raft Group Canada":MAILTO:yvonne.nunnaro@liferaftgroup.ca
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20191015T130000
DTEND;TZID=America/New_York:20191015T140000
DTSTAMP:20191018T140257Z
CREATED:20191004T141629Z
LAST-MODIFIED:20191018T140257Z
UID:10000046-1571144400-1571148000@liferaftgroup.org
SUMMARY:GIST CHAT 101: Learn the Basics
DESCRIPTION:GIST CHAT 101: Learn the Basics\n\nGIST CHAT is our new ListServ replacement launching on October 15th.\n\nDuring the webinar we will show you how to:\n\n\nRegister\nPost\nReply\nSearch\n…and a few other helpful tips and tricks\n\n\n\n\n\n\nWatch the Webinar
URL:https://liferaftgroup.org/event/gist-chat-101-learn-the-basics/
CATEGORIES:Education,Webcast
ORGANIZER;CN="The Life Raft Group":MAILTO:liferaft@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20190928T090000
DTEND;TZID=America/New_York:20190928T163000
DTSTAMP:20190829T185754Z
CREATED:20190712T143844Z
LAST-MODIFIED:20190829T185754Z
UID:10000036-1569661200-1569688200@liferaftgroup.org
SUMMARY:GIST Day of Learning - Ottawa
DESCRIPTION:  \n  \n\nGDOL Ottawa\nRegistration is open for the GIST Day of Learning in Ottawa.  This is a one-day conference that provides education and support for people living with Gastrointestinal Stromal Tumour (GIST)\, a soft-tissue sarcoma that can occur anywhere along the GI tract.  The speakers at the GIST Day of Learning will cover many aspects of living with and understanding GIST. This conference will also provide a great opportunity to connect with other GIST patients and caregivers as well as the speakers. \nThe Day of Learning is open to those who have GIST\,  family members\,  caregivers\, healthcare providers and anyone who wishes to learn more about GIST. \nThere is no cost for attending the GIST Day of Learning. \n\nRegister\n\nAgenda:\n(As of 8/29/19\, please check at https://liferaftgroup.ca/join-us-at-the-ottawa-gist-day-of-learning/ to register and see updates) \n  \n \n\nGDOL Location:\nOttawa Conference and Event Centre\n200 Coventry Road\, Ottawa\, ON K1K 4S3\nFree Parking \nConference Hotel:\nCourtyard by Marriott Ottawa East\n200 Coventry Road\nOttawa\, ON K1K 4S3\nFree Parking \n\nWe gratefully acknowledge our GIST Day of Learning sponsors
URL:https://liferaftgroup.org/event/gist-day-of-learning-ottawa/
LOCATION:Ottawa Conference and Event Centre\, 200 Coventry Road\, Ottawa\, Ontario\, K1K 4S3\, Canada
CATEGORIES:Education,Events
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2019/07/Ottawa-GDOL-Logo.png
ORGANIZER;CN="GIST Sarcoma Life Raft Group Canada":MAILTO:yvonne.nunnaro@liferaftgroup.ca
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20190911T140000
DTEND;TZID=America/New_York:20190911T150000
DTSTAMP:20190917T152156Z
CREATED:20190725T201333Z
LAST-MODIFIED:20190917T152156Z
UID:10000037-1568210400-1568214000@liferaftgroup.org
SUMMARY:LRG Webcast Series: Updates on the Temozolomide Trial
DESCRIPTION:The Temozolomide Trial for SDH-deficient GIST Patients\nGIST is becoming increasingly diverse. SDH-deficient GIST and paragangliomas often occur in adolescents and young adults. Since these SDH mutations are germline\, multiple generations of family members are affected.\n\nDr. Jason Sicklick of Moores Cancer Center at the University of California San Diego will present a webcast detailing the Phase II study of Temozolomide (TMZ) in advanced SDH-mutant/deficient GIST\, a new study available to patients with SDH-deficient GIST.\n\n\nListen to the Webinar\n\nAbout the Presenter:\nJason K. Sicklick\, MD\, FACS\, is an Associate Professor of Surgery\, Division of Surgical Oncology; and Co-Director\, Biorepository and Tissue Technology Shared Resource\, Moores Cancer Center at the University of California\, San Diego\, UC San Diego Health Sciences. \n  \n  \n  \n\nTechnical Tips to Join Meeting:\n\nThis is a web-only meeting\, accessed only by your internet connection. Participants are encouraged to use the web link automatically provided after registration and to use computer speakers (and/or headsets if available) to hear the audio portion of the meeting. Please log in at least ten minutes prior to the start of the webinar.\nPlease ensure you have an updated version of Adobe Flash Player (Google Chrome has Flash built-in).\nIf you are using a mobile device or tablet\, in order to view and hear the conference\, download the ReadyTalk App from your App store.\n\n\nDisclaimer:\nWe cannot provide individual medical advice during this webcast. Information provided in this webcast is not intended as a substitute for your physician’s guidance and care.
URL:https://liferaftgroup.org/event/lrg-webcast-series-updates-on-the-temozolomide-trial/
CATEGORIES:Education,Webcast
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2019/07/sicklick-temozolomide-webcast.jpg
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20190720T080000
DTEND;TZID=America/New_York:20190720T110000
DTSTAMP:20190701T202820Z
CREATED:20190701T191100Z
LAST-MODIFIED:20190701T202820Z
UID:10000030-1563609600-1563620400@liferaftgroup.org
SUMMARY:GIST Awareness Day - Nairobi\, Kenya
DESCRIPTION:Celebrate GIST Awareness Day (GAD) at a GIST Day of Learning from 8-11am on July 20th at The Nairobi Hospital Cancer Center with Henzo Kenya\, in partnership with The Nairobi Hospital and The Max Foundation. You can download the flyer pictured below here.
URL:https://liferaftgroup.org/event/gist-awareness-day-nairobi-kenya/
LOCATION:Nairobi Hospital Cancer Center\, Nairobi\, Kenya
CATEGORIES:Education,Events,International
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2017/07/GAD-slider-940.jpg
ORGANIZER;CN="Henzo Kenya":MAILTO:info@henzokenya.or.ke
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20190714
DTEND;VALUE=DATE:20190715
DTSTAMP:20190709T152321Z
CREATED:20190701T181532Z
LAST-MODIFIED:20190709T152321Z
UID:10000029-1563062400-1563062400@liferaftgroup.org
SUMMARY:GIST Awareness Day - Mumbai\, India
DESCRIPTION:The Max Foundation is planning a special day for Friends of Max (FOM) on Sunday\, July 14th in Mumbai\, India to observe and celebrate GIST Day of Awareness (GAD) 2019. This is the annual Patient Group Meeting for the FOM Mumbai City Chapter in the Tata Memorial Hospital auditorium. We are expecting a large group of CML and GIST patients as well as our oncologist fraternity and many of our nonprofit peers from around the city. Please join us! For more information contact Viji Venkatesh at vvenkatesh@themaxfoundation.org or Nikhil Guhagarkar at gdental99@gmail.com. \n  \n 
URL:https://liferaftgroup.org/event/gist-awareness-day-mumbai-india/
CATEGORIES:Education,Events,International
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2019/07/GAD-Mumbai-India-feature.jpg
ORGANIZER;CN="The Max Foundation":MAILTO:vvenkatesh@themaxfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20190518T070000
DTEND;TZID=America/New_York:20190518T140000
DTSTAMP:20190710T142716Z
CREATED:20190304T161832Z
LAST-MODIFIED:20190710T142716Z
UID:10000016-1558162800-1558188000@liferaftgroup.org
SUMMARY:GDOL Tampa 2019
DESCRIPTION:see recap of event\n\nGDOL (GIST Day of Learning) is a free one day event to help patients and caregivers learn more about this rare cancer\, find support\, and enhance their knowledge base to help them navigate their cancer journey. \nThe Life Raft Group has a simple focus: to cure a form of cancer — GIST — and to help those living with it until then. To do this\, the Life Raft Group focuses on three key areas: research\, patient support & education\, and advocacy\, which lay the foundation of our mission to ensure the survival of GIST patients through a comprehensive approach connecting individual patients’ needs\, the worldwide community of GIST advocates and the global health and research environment. \n\nView Agenda for GDOL Tampa\n\nRegister by clicking the button above. Any questions\, please contact Diana Nieves\, dnieves@liferaftgroup.org
URL:https://liferaftgroup.org/event/gdoltampa2019/
LOCATION:Stabile Research Building at Moffitt Cancer Center\, 12902 Magnolia Drive\, Tampa\, FL\, 33612\, United States
CATEGORIES:Education,Events
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20190509T080000
DTEND;TZID=America/New_York:20190509T143000
DTSTAMP:20190423T144328Z
CREATED:20190410T143442Z
LAST-MODIFIED:20190423T144328Z
UID:10000021-1557388800-1557412200@liferaftgroup.org
SUMMARY:GDOL New Jersey 2019
DESCRIPTION:Register\n\nGDOL (GIST Day of Learning) is a free one day event to help patients and caregivers learn more about this rare cancer\, find support\, and enhance their knowledge base to help them navigate their cancer journey. \nThe Life Raft Group has a simple focus: to cure a form of cancer — GIST — and to help those living with it until then. To do this\, the Life Raft Group focuses on three key areas: research\, patient support & education\, and advocacy\, which lay the foundation of our mission to ensure the survival of GIST patients through a comprehensive approach connecting individual patients’ needs\, the worldwide community of GIST advocates and the global health and research environment. \n\nview agenda for GDOL NJ\n\nRegister by clicking the button above. Any questions\, please contact Diana Nieves\, dnieves@liferaftgroup.org
URL:https://liferaftgroup.org/event/gdol-new-jersey-2019/
LOCATION:Courtyard Marriott\, 263 U.S. 46 West\, Wayne\, 07470\, United States
CATEGORIES:Education,Events
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2019/04/new-jersey.jpg
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20190508T130000
DTEND;TZID=America/New_York:20190508T130000
DTSTAMP:20190423T161403Z
CREATED:20190423T160916Z
LAST-MODIFIED:20190423T161403Z
UID:10000004-1557320400-1557320400@liferaftgroup.org
SUMMARY:Ask the Experts LIVE
DESCRIPTION:Want to know more about GIST?\nDo you have some burning questions to ask GIST experts?\n\nMembers of the LRG GIST Global Expert Surveillance Team\nwill be at the LRG offices on May 8th at 1:00 pm ET for an\nAsk the Experts LIVE event to be broadcast on YouTube Live.\n\n\n\n \nDr. Gary Schwartz\nColumbia University Irving Medical Center \n\nDr. Jason Sicklick\nMoores Cancer Center\, University of California\, San Diego\n\n\nDr. Jonathan Trent\nSylvester Comprehensive Cancer Center \n\nRegister\n\n\n\n\nWe welcome you to submit your questions ahead of time.\nQuestions can be emailed to Sara Rothschild at srothschild@liferaftgroup.org.\nViewers can also ask questions live during the event.\n\n\nDisclaimer:\nWe cannot provide individual medical advice during this live event. Information provided is not intended as a substitute for your physician’s guidance and care.
URL:https://liferaftgroup.org/event/ask-the-experts-live/
LOCATION:You Tube Live
CATEGORIES:Education,Events
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2019/04/ask-the-experts-live-eventpg.jpg
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20190503T130000
DTEND;TZID=America/New_York:20190503T140000
DTSTAMP:20190507T155606Z
CREATED:20190418T143423Z
LAST-MODIFIED:20190507T155606Z
UID:10000019-1556888400-1556892000@liferaftgroup.org
SUMMARY:LRG Webcast: Genetic Testing and SDHx Mutations
DESCRIPTION:Genetic Testing and SDHx Mutations:\nWhat do they have to do with PGL/GIST/Pheos?\nLISTEN TO WEBCAST\n\nThis webcast will highlight how SDHx mutations impact risks for paraganglioma\, pheochromocytomas\, and GIST. We’ll discuss why genetic testing is helpful for any diagnosis of GIST\, paraganglioma or pheochromocytoma\, and what the SDHx genes have to do with tumor risk. We’ll discuss what types of tumors are associated with mutations in the SDHx genes\, and how different SDHx genes (SDHA\, SDHB\, SDHC\, SDHD\, SDHAF2) have different tumor and location risks. This webcast will highlight recommendations for screening and current research initiatives for SDHx and paragangliomas.\n\nAbout the Presenter:\nSamantha Greenberg is a board-certified genetic counselor who oversees the SDHx clinic and specializes in paraganglioma research at Huntsman Cancer Institute. She graduated with a Master’s Degree in Human Genetics and a Master’s of Public Health from the University of Michigan\, and a Bachelor’s Degree in neuroscience from the same university. Prior to her graduate training\, she taught 7th grade science in Tulsa\, Oklahoma\, through Teach for America. At Huntsman\, Samantha also continues public health genomics work with the Department of Health focused on rural clinician education and programming. She has worked to expand cancer genetics’ role in genitourinary cancers\, and oversees the VHL Clinical Care Center.\n\nTechnical Tips to Join Meeting:\n\nThis is a web only meeting\, accessed only by your internet connection. Participants are encouraged to use the web link automatically provided after registration and to use computer speakers (and/or headsets if available) to hear the audio portion of the meeting. Please log in at least ten minutes prior to the start of the webinar.\nPlease ensure you have an updated version of Adobe Flash Player (Google Chrome has Flash built in).\nIf you are using a mobile device or tablet\, in order to view and hear the conference\, download the ReadyTalk App from your App store.\n\nDisclaimer:\nWe cannot provide individual medical advice during this webcast. Information provided in this webcast is not intended as a substitute for your physician’s guidance and care.
URL:https://liferaftgroup.org/event/lrg-webcast-genetic-testing-and-sdhx-mutations/
CATEGORIES:Education,Events,Webcast
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2019/04/greenberg-event.jpg
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20190427T090000
DTEND;TZID=America/New_York:20190427T160000
DTSTAMP:20190603T150121Z
CREATED:20190228T142139Z
LAST-MODIFIED:20190603T150121Z
UID:10000003-1556355600-1556380800@liferaftgroup.org
SUMMARY:GIST Day of Learning - Vancouver
DESCRIPTION:GIST Sarcoma Life Raft Group Canada is pleased to announce that registration is now open for the GIST Day of Learning in Vancouver.  This is a one-day conference that provides education and support for people who have GIST (Gastrointestinal Stromal Tumour)\, which is a soft-tissue sarcoma that can occur anywhere along the GI tract.  The Day of Learning will cover many aspects of living with and understanding GIST and provide an update on investigational new drugs being evaluated in clinical trials for GIST.  It will also provide a great opportunity to connect with other GIST patients\, caregivers and the presenters. \nThe Day of Learning is open to people who have GIST\,  family members\,  caregivers\, healthcare providers and anyone who wishes to learn more about GIST. There is no charge for attending the GIST Day of Learning. \n\nAgenda\nMorning Sessions\nThe Biology of GIST: What Every Patient Needs to Know\nDavid Josephy\, LRGC President \nYour GIST Journey – A Round-Table Discussion\nHazel McLeod\, LRGC Director \nAfternoon Sessions\nClinical Management of GIST\nXiaolan Feng\, MD\, BC Cancer \nDevelopment of the Next Generation of GIST Treatments\nMichael Heinrich\, MD\, Knight Cancer Institute\, Oregon Health and Science University \n\nOur keynote speaker is Dr. Michael Heinrich\nDr. Heinrich earned his medical degree from Johns Hopkins School of Medicine in Baltimore and completed both his residency training and fellowship in hematology/medical oncology at Oregon Health & Sciences University (OHSU). Dr. Heinrich’s research\, like much of the work at the Knight Cancer Institute\, revolves around a basic\, yet complex premise. You have to understand what is broken in order to fix it. That’s why Dr. Heinrich is intently focused on identifying the molecular targets that cause cancer\, which is essential to the development of better and less toxic therapies. He is recognized internationally for groundbreaking research discoveries that have improved care for patients with gastrointestinal stromal tumors\, and his research has implications for many types of cancer. \nThis all-day conference will include: \n\n6 educational sessions including Q & A\nLots of opportunity to mix and mingle\nContinental breakfast\, lunch and refreshments\n\nREGISTER HERE \nWhen:\nSaturday April 27\, 2019\n9:00 am – 4:00 pm\n(Doors open at 8:15) \nWhere:\nBest Western Chateau Granville Hotel\n1100 Granville St\,\nVancouver\, BC  V6Z 2B6 \nQuestions?\nContact Malcolm Sutherland\nmalcolm.sutherland@liferaftgroup.ca \n855-574-4478 \n 
URL:https://liferaftgroup.org/event/gist-day-of-learning-vancouver/
LOCATION:Best Western Chateau Granville Hotel\, 1100 Granville St\, Vancouver\, British Columbia\, V6Z 2B6\, Canada
CATEGORIES:Education,Events,International
ORGANIZER;CN="GIST Sarcoma Life Raft Group Canada":MAILTO:yvonne.nunnaro@liferaftgroup.ca
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20190417T120000
DTEND;TZID=America/New_York:20190417T130000
DTSTAMP:20190730T152255Z
CREATED:20190404T133838Z
LAST-MODIFIED:20190730T152255Z
UID:10000022-1555502400-1555506000@liferaftgroup.org
SUMMARY:LRG Webcast: GI Stromal Tumors
DESCRIPTION:GI Stromal Tumors: A PatholoGIST’s Point of View – Mutational Testing in GIST\nLISTEN TO THE WEBCAST\n\nMutational Testing in GIST is a vital component for survival\, especially as cancer treatment becomes more individualized. In this webcast\, Dr. Chris Corless\, Director and Chief Medical Officer of the Knight Diagnostic Laboratories at OHSU\, demystifies the process by which pathologists make the diagnosis of GIST and assess the risk of recurrence. Dr. Corless will discuss how tumor DNA is extracted and analyzed from these tumors\, and how mutations detected in tumor DNA influences treatment decisions.\n\nThere will be a 15 minute Q & A at the end of his presentation.\n\nAbout the Presenter:\n\n\nAfter undergraduate studies at the Univ. of California\, Berkeley\, Dr. Corless received his MD and PhD degrees from Washington University\, St. Louis. He did his residency training in Anatomic Pathology at the Brigham & Women’s Hospital\, Boston\, where he also completed fellowship training in GI Pathology and GU Pathology. He joined the faculty of Oregon Health & Science University in 1994 and was promoted to Professor in 2004. During his career he has served as the residency program director in Pathology and medical director of surgical pathology for OHSU Hospital. He is presently the Director and Chief Medical Officer of the Knight Diagnostic Laboratories at OHSU. An author on over 260 publications\, Dr. Corless has expertise in the application of molecular diagnostics to the classification and prognostication of solid tumors. \n\n\nTechnical Tips to Join Meeting:\n\nThis is a web only meeting\, accessed only by your internet connection. Participants are encouraged to use the web link automatically provided after registration and to use computer speakers (and/or headsets if available) to hear the audio portion of the meeting. Please log in at least ten minutes prior to the start of the webinar.\nPlease ensure you have an updated version of Adobe Flash Player (Google Chrome has Flash built in).\nIf you are using a mobile device or tablet\, in order to view and hear the conference\, download the ReadyTalk App from your App store.\n\nDisclaimer:\nWe cannot provide individual medical advice during this webcast. Information provided in this webcast is not intended as a substitute for your physician’s guidance and care.
URL:https://liferaftgroup.org/event/lrg-webcast-gi-stromal-tumors-mutational-testing-in-gist/
CATEGORIES:Education,Events,Research,Webcast
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2019/04/Corless-Webcast-alt.jpg
ORGANIZER;CN="The Life Raft Group":MAILTO:liferaft@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20190313T120000
DTEND;TZID=America/New_York:20190313T130000
DTSTAMP:20190603T145758Z
CREATED:20190306T165005Z
LAST-MODIFIED:20190603T145758Z
UID:10000014-1552478400-1552482000@liferaftgroup.org
SUMMARY:LRG Webcast: The Biology of GIST
DESCRIPTION:What Every Patient Needs to Know\nWondering what in the world Gastrointestinal Stromal Tumor (GIST) is? \nJoin longtime friend of the Life Raft Group and LRG Science Team member\, Dr. David Josephy\, as he presents the basics of cell biology in cancer\, focusing on GIST. \nPresented in an easy-to-understand way\, Dr. Josephy unravels the mystery behind the differences between sarcomas and carcinomas; protein expression and the role of immunohistochemistry in diagnosis; the significance of mutations in the KIT and PDGFRA genes and the mechanism of action of tyrosine kinase inhibitor drugs. \nSound complicated? Dr. Josephy’s approachable style will decode the terminology and concepts for you\, whether you are newly diagnosed or are a long-term survivor. \nThere will be at 15 min Q&A at the end of his presentation. \n\nListen to the Webcast\n\nAbout the Presenter:\nDavid Josephy is a Professor of Molecular and Cellular Biology at the University of Guelph\, where he has taught for more than 35 years. He has been President of GIST Sarcoma Life Raft Group Canada (LRGC) since its inception in 2008. \nIn 2010\, David spent a sabbatical term working in the laboratory of Dr. Jonathan Fletcher\, a leading GIST researcher at Brigham and Women’s Hospital in Boston. \nDavid is a member of the Science Team of The Life Raft Group (USA) and collaborates with GIST patient support groups around the world. His research interests are in the field of Molecular Toxicology. He is particularly interested in the scientific basis for development of new small-molecule drugs for GIST. \n\n\nTechnical Tips to Join Meeting:\n\nThis is a web only meeting\, accessed only by your internet connection. Participants are encouraged to use the web link automatically provided after registration and to use computer speakers (and/or headsets if available) to hear the audio portion of the meeting. Please log in at least ten minutes prior to the start of the webinar.\nPlease ensure you have an updated version of Adobe Flash Player (Google Chrome has Flash built in).\nIf you are using a mobile device or tablet\, in order to view and hear the conference\, download the ReadyTalk App from your App store.\n\n\nDisclaimer:\nWe cannot provide individual medical advice during this webcast. Information provided in this webcast is not intended as a substitute for your physician’s guidance and care.
URL:https://liferaftgroup.org/event/lrg-webcast-the-biology-of-gist/
CATEGORIES:Education,Events,Webcast
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2018/08/feature-lrg-webcast-series-rev.jpg
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Vienna:20190308T150000
DTEND;TZID=Europe/Vienna:20190308T190000
DTSTAMP:20190603T145624Z
CREATED:20190222T145901Z
LAST-MODIFIED:20190603T145624Z
UID:10000025-1552057200-1552071600@liferaftgroup.org
SUMMARY:GIST Patienten- und Angehörigentreffen
DESCRIPTION:GIST Support Österreich\n10. GIST Patienten- und Angehörigentreffen\nSehr geehrte Damen und Herren\, \nim Namen des GIST Panels Austria (GIPA) und des GIST Support Österreich laden wir Sie herzlich \n– mit freundlicher Unterstützung der Novartis Pharma GmbH – \nzur Teilnahme am 10. GIST Patienten- und Angehörigentreffen in Wien ein. \nDas Treffen bietet Ihnen die Gelegenheit\, sich umfassend über GIST zu informieren und sich mit anderen Betroffenen und Angehörigen auszutauschen. Namhafte Experten aus dem Bereich Pathologie\, Chirurgie und Onkologie präsentieren die neuesten Entwicklungen zu GIST und stehen Ihnen für persönliche Fragen zur Verfügung. \nFreitag\, 8. März 2019\nBeginn: 15:00 Uhr \nVoraussichtliches Ende: 19:00 Uhr \nORT:\nHotel Astoria \nKärntnerstraße 32 (Eingang: Führichgasse 1)\, 1010 Wien \nReferenten\nBrodowicz T. / Bruno-Lindner A. / Lenauer A. / Liegl-Atzwanger B. \nLoewe Ch. / Reiterer R. / Sawdyk R. / Szkanera J. / Wartenberg M. \nProgrammübersicht\nDiagnostik \nGenetik\, Pathologie \nChirurgie \nInterventionelle Radiologie / Der radiologische Befund \nAdjuvante / Begleitende Therapie \nMedikamentöse Therapie des metastasierten GIST \nProgress: Fortschreiten unter medikamentöser Therapie – Neue Ansätze der GIST-Forschung \nKur und medizinische Rehabilitation \nPension: Invaliditäts- und Berufsunfähigkeitspension / Erwerbsunfähigkeitspension \nWiedereingliederungsteilzeitgesetz \nDie Teilnahme an dieser Veranstaltung – inklusive kleinem Imbiss – ist kostenlos\nkontakt@gistsupport.at\nVeranstaltungsseite
URL:https://liferaftgroup.org/event/gist-patienten-und-angehorigentreffen/
LOCATION:Hotel Astoria\, Kärntner Straße 32-34\, Eingang Führichgasse 1\, 1010 Wien\, Vienna\, Austria
CATEGORIES:Education,Events,International
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2019/02/gist-austria-event.jpg
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BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20190216T080000
DTEND;TZID=America/Los_Angeles:20190216T170000
DTSTAMP:20190603T145441Z
CREATED:20181115T132945Z
LAST-MODIFIED:20190603T145441Z
UID:10000018-1550304000-1550336400@liferaftgroup.org
SUMMARY:GDOL Los Angeles 2019
DESCRIPTION:View Recap\, Gallery\, & Presentations
URL:https://liferaftgroup.org/event/gdol_la2019/
LOCATION:Ronald Reagan UCLA Medical Center\, 757 Westwood Plaza\, Los Angeles\, CA\, 90095\, United States
CATEGORIES:Education,Events
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20181027T080000
DTEND;TZID=America/New_York:20181027T150000
DTSTAMP:20190319T185046Z
CREATED:20180627T152729Z
LAST-MODIFIED:20190319T185046Z
UID:10000008-1540627200-1540652400@liferaftgroup.org
SUMMARY:Michigan GDOL 2018
DESCRIPTION:Description\nGIST Days of Learning are one-day programs that provide education and support for people who have GIST and their caregivers\, and are free to all who attend. \nSee event recap here\n  \nAgenda subject to change \nAgenda\n\n\n\n8:15am – 9:15am\nRegistration\n\n\n9:15am – 9:30am\nIntroduction and Brief History of GIST\nLawrence Baker – Medical Oncologist\n\n\n9:30am – 10:00am\nThe Role of the Cancer Surgeon in Diagnosis and Therapy\nWill Burns – Surgical Oncologist\n\n\n10:00am – 10:30am\nThe Role of the Medical Oncologist in Diagnosis and Therapy\nRashmi Chugh – Medical Oncologist\n\n\n10:30am – 10:45am\nBreak\n\n\n10:45am – 11:45am\nDrug Interactions and other FAQ and Side Effect Management \nRachelle McDivitt – Clinical Pharmacist \nStephanie Taylor\, RN\, Oncology\n\n\n11:45am – 1:00pm\nLunch \nRoundtables & Patient Stories led by Physician Assistants and Nurse Practitioners\n\n\n1pm – 1:30pm\nNew Therapies on the Horizon \nScott Schuetze – Medical Oncologist\n\n\n1:30pm – 2:00pm\nGIST Patients as Cancer Survivors \nLawrence Baker\n\n\n\nQ&A to follow
URL:https://liferaftgroup.org/event/michigan-gdol-2018/
LOCATION:University of Michigan\, Michigan League\, 911 North University Avenue\, 2nd Floor\, Hussey Room\, Ann Arbor\, MI\, 48109-1265\, United States
CATEGORIES:Education,Events
ORGANIZER;CN="Jessica":MAILTO:jnowak@liferaftgroup.org
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END:VCALENDAR