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DTSTART;TZID=America/New_York:20240618T190000
DTEND;TZID=America/New_York:20240618T190000
DTSTAMP:20240422T182217Z
CREATED:20240422T181458Z
LAST-MODIFIED:20240422T182217Z
UID:10000773-1718737200-1718737200@liferaftgroup.org
SUMMARY:Updates from ASCO
DESCRIPTION:The American Society of Clinical Oncology (ASCO) is an important conference in the oncology community where new scientific research updates are shared. The Life Raft Group is excited to partner with Dr. Herbert Loong\, who will summarize abstracts and presentations that were presented during ASCO 2024 that are relevant to the GIST patient community. Join us June 18th at 7pm ET for this virtual presentation. A Q&A session will follow the presentation. \nPlease email srothschild@liferaftgroup.org to submit a question ahead of the presentation.  \n\n\n\nPlease note that this webinar is not a substitute for your physician’s guidance and care.\nREGISTERAbout Our Presenter\n \nDr. Herbert H. Loong\nThe Chinese University of Hong Kong \nDr. Herbert H. Loong holds conjoint appointments of Clinical Associate Professor in the Department of Clinical Oncology and Deputy Medical Director of the Phase 1 Clinical Trials Centre of The Chinese University of Hong Kong. He is also the current and founding convenor of the Prince of Wales Hospital Adult Sarcoma Multidisciplinary Team. \nDr. Loong has served or continues to serve in various capacities in various professional international oncology bodies\, including the International Affairs Committee and the Asia-Pacific Regional Council of ASCO\, the Membership\, Education and Communications Committees of the IASLC. He has been elected as a Board Member of the Connective Tissue Oncology Society (CTOS) for 2022-2024. He is also a founding executive committee member of the newly formed Asia Pacific Oncology Drug Development Network (APODDC). He is also a Board Member in the specialty of Medical Oncology in the Hong Kong College of Physicians. In his appointment as a Registration Committee member of Pharmacy and Poisons Board of Hong Kong\, he helps oversee the registration of medicinal products and clinical trials in the territory. \nThank you to our Webinar Sponsors!
URL:https://liferaftgroup.org/event/updates-asco-2024/
CATEGORIES:Education,Events,Webcast
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240522T110000
DTEND;TZID=America/New_York:20240522T110000
DTSTAMP:20240423T174622Z
CREATED:20240422T181945Z
LAST-MODIFIED:20240423T174622Z
UID:10000772-1716375600-1716375600@liferaftgroup.org
SUMMARY:Demystifying Clinical Trials
DESCRIPTION:Insights from Experts and Participants\nJoin us May 22nd at 11am ET for an informative webinar presented by Dr. Candace Haddox of Dana-Farber Cancer Institute offering invaluable insights into the world of clinical trials in honor of International Clinical Trials Awareness Day. Dr. Haddox will delve into the fundamentals of clinical trials\, discussing their significance\, weighing the pros and cons of participation\, and guiding attendees through the entire process\, from initiation to conclusion. Following Dr. Haddox’s presentation\, there will be an interactive discussion with GISTer Kandee Evans\, currently enrolled in a clinical trial\, offering firsthand experiences and perspectives. A Q&A session will follow the presentation. \nPlease email srothschild@liferaftgroup.org to submit a question ahead of the presentation.  \n\n\n\nPlease note that this webinar is not a substitute for your physician’s guidance and care.\nREGISTERAbout Our Presenters\n \nDr. Candace Haddox \nDana-Farber Cancer Institute \nDr. Haddox is an Instructor in Medicine at Harvard Medical School\, and a medical oncologist and clinical/translational investigator in the Sarcoma Center and the Center for Cancer Therapeutic Innovation at Dana-Farber Cancer Institute. Dr. Haddox’s research focuses on developing novel therapies rooted in sarcoma biology and determining mechanisms of treatment response and resistance\, particularly in gastrointestinal stromal tumors (GIST). \nDr. Haddox received her Bachelor of Science in neurobiology from the University of Miami. She completed a post-baccalaureate research fellowship at the National Institutes of Health and received her Medical Degree from the University of South Florida. Dr. Haddox completed a residency in Internal Medicine at the Mayo Clinic in Rochester\, Minnesota\, and a fellowship in Medical Oncology at Duke University\, where she also served as Chief Fellow. She joined the faculty at Dana-Farber Cancer Institute in 2021\, where she currently sees patients with sarcomas and leads clinical trials in early drug development. \n \nKandee Evans \nGIST Advocate \nWith a career spanning over three decades\, Kandee Evans is a project management veteran who knows how to make things happen. After dedicating 30 years to her profession\, Kandee recently left her job to focus on her health as a GIST survivor and warrior. Not one to back down from a challenge\, she previously advocated fiercely for her oldest son when he was diagnosed with autism at just two years old. Now\, as a devoted wife and mother of two amazing sons\, Kandee continues to take on each day with grace\, courage\, and determination. \nAt the forefront of GIST research\, Kandee is making a difference through participation. She enrolled in a clinical trial with the University of Miami in February 2024\, she is helping test the effects of IDRX-42 under the direction of Dr. Jonathan Trent.  Her selfless commitment will provide key insights and move science one step closer to finding a treatment for this devastating disease. Kandee’s courage underscores the power of individuals to advance medical progress through clinical trial involvement. \nThank you to our Webinar Sponsors!
URL:https://liferaftgroup.org/event/demystifying-clinical-trials-insights-from-experts-and-participants/
CATEGORIES:Education,Events,Webcast
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240430T120000
DTEND;TZID=America/New_York:20240430T120000
DTSTAMP:20240403T191818Z
CREATED:20240403T191818Z
LAST-MODIFIED:20240403T191818Z
UID:10000771-1714478400-1714478400@liferaftgroup.org
SUMMARY:Educate Yourself on GIST Research
DESCRIPTION:How to Educate Yourself on GIST Research – Searching the Web for GIST Science Publications\nLife Raft Group Science Team Member Jim Hughes will present “How to Educate Yourself on GIST Research- Searching the Web for GIST Science Publications” to GIST patients & caregivers on April 30th\, 2024 at 12pm ET. During this virtual presentation\, Jim will outline the importance of patients and caregivers researching their cancer in order to best advocate for themselves. Jim will explain the importance of GIST publications and how to effectively do your own research\, and how to work together with fellow community members to share research findings. \nPlease email srothschild@liferaftgroup.org to submit a question ahead of the presentation.  \n\n\n\nPlease note that this webinar is not a substitute for your physician’s guidance and care.\nREGISTERAbout Our Presenter\n \nJim Hughes\nLRG Clinical Trials Database Coordinator/Science Team Member \nJim Hughes attended Kenyon College\, Ohio and Loyola University\, Chicago where he earned a BA in Philosophy. Between schools Jim served as an officer in the United States Army in the US and Vietnam and following his service worked in telecommunications for 35 years. \nJim and Margi are the parents of two children\, Nancy and Jamie. Nancy Hughes Welsh was an early member of The Life Raft Group (2002). Nancy was diagnosed with leiomyosarcoma in 1991 at age 23. After ten years of surgery and chemotherapy Nancy was re-diagnosed with GIST in 2001. Nancy participated in the Phase Three imatinib trial in 2001 and the Phase Two sunitinib trial in 2003. Nancy’s GIST was eventually diagnosed as SDH epimutant and passed away in 2005. \nJim serves as a Life Raft Group Board Member\, our Clinical Trials Database Coordinator and is a founding member of the LRG Science Team. \n  \nThank you to our Webinar Sponsors!
URL:https://liferaftgroup.org/event/educate-yourself-on-gist-research/
CATEGORIES:Education,Events,Webcast
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240411T120000
DTEND;TZID=America/New_York:20240411T120000
DTSTAMP:20240403T190917Z
CREATED:20240313T180524Z
LAST-MODIFIED:20240403T190917Z
UID:10000770-1712836800-1712836800@liferaftgroup.org
SUMMARY:Gaining Insight on the INSIGHT Phase 3 Study
DESCRIPTION:The Life Raft Group is partnering with Dr. Neeta Somaiah of MD Anderson Cancer Center to host "Gaining Insight on the Phase 3 INSIGHT Clinical Trial" for the GIST community on April 11th\, 2024 from 12-1:15 pm ET. During the webinar\, Dr. Somaiah will present an overview of Deciphera Pharmaceutical's Phase 3 INSIGHT Clinical Trial. This study tests the investigational use of ripretinib in a subset of patients living with GIST. Webinar participants will learn about the INSIGHT study\, including eligibility\, site locations\, and study rationale. A Q & A session will follow the presentation.    \nPlease email srothschild@liferaftgroup.org to submit a question ahead of the presentation.  \n\n\n\n\nPlease note that this webinar is not a substitute for your physician's guidance and care.\nREGISTERAbout Our Presenter\nNeeta Somaiah\, MD\nMD Anderson Cancer Center \nDr. Neeta Somaiah received her medical degree from Maulana Azad Medical College in New Delhi\, India and has trained at St. John’s Episcopal in New York\, Drexel University Hospital and Fox Chase Cancer Center in Philadelphia\, prior to joining MD Anderson Cancer Center.  \nDr. Somaiah joined MD Anderson Cancer Center in 2012.  She has thirteen years of sarcoma and clinical research experience. She is board certified in Medical Oncology.  Her primary clinical and research focus is soft tissue sarcomas\, specifically liposarcomas and GIST.  She currently serves as the Principal Investigator of three investigator-initiated trials and nine cooperative group and industry-sponsored clinical trials at MD Anderson Cancer Center and has in depth knowledge with extensive experience in the design and execution of clinical trials. She also has multiple ongoing collaborations for translational research\, both retrospective and prospective\, that help improve the understanding of these rare group of diseases and explore the role of immunotherapy as a therapeutic avenue.  Dr. Somaiah has been presented many honors for her expertise and contributions to science\, including an Exceptional Women in Medicine award and is among the top 1% providers nationally.   \nThank you to our Webinar Sponsor!
URL:https://liferaftgroup.org/event/gaining-insight-on-the-insight-phase-3-study/
CATEGORIES:Education,Events,Webcast
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231127T170000
DTEND;TZID=America/New_York:20231127T170000
DTSTAMP:20231106T143542Z
CREATED:20231031T133024Z
LAST-MODIFIED:20231106T143542Z
UID:10000632-1701104400-1701104400@liferaftgroup.org
SUMMARY:GIST Updates from CTOS
DESCRIPTION:The Life Raft Group is partnering with Dr. Herbert Loong of the Chinese University of Hong Kong to present “GIST Updates from CTOS 2023” to GIST patients and caregivers on November 27th at 5pm ET. During this virtual presentation\, Dr. Loong will discuss scientific updates relevant to GIST patients that were exhibited at the Connective Tissue Oncology Society (CTOS) conference. A Q&A segment will follow Dr. Loong’s presentation. \nREGISTERAbout Our Presenter\nHerbert H. Loong\, MD\nThe Chinese University of Hong Kong \nDr. Herbert H. Loong holds conjoint appointments of Clinical Associate Professor in the Department of Clinical Oncology and Deputy Medical Director of the Phase 1 Clinical Trials Centre of The Chinese University of Hong Kong. He is also the current and founding convenor of the Prince of Wales Hospital Adult Sarcoma Multidisciplinary Team. \nDr. Loong obtained his medical degree with a Distinction in Surgery from The University of Hong Kong in 2003. He has completed a Fellowship in Drug Development at Princess Margaret Cancer Centre in Toronto\, Canada with a special focus on Experimental Therapeutics. His clinical and research interests also include Sarcoma Medical Oncology\, Thoracic Oncology and Health Economics. He is a recipient of the European Cancer Congress Fellowship Grant (2013)\, the American Society of Clinical Oncology (ASCO) Annual Meeting Merit Award (2014)\, the Hong Kong College of Physicians Young Investigators’ Award (2014). Nominated by patients and their caregivers\, Dr. Loong led the Lung Cancer Team at CUHK to be bestowed the IASLC Foundation Cancer Care Team Award in recognition for providing the best thoracic oncology care in “Asia & Rest of the World” in 2018. \nDr. Loong has served or continues to serve in various capacities in various professional international oncology bodies\, including the International Affairs Committee and the Asia-Pacific Regional Council of ASCO\, the Membership\, Education and Communications Committees of the IASLC. He has been elected as a Board Member of the Connective Tissue Oncology Society (CTOS) for 2022-2024. He is also a founding executive committee member of the newly formed Asia Pacific Oncology Drug Development Network (APODDC). He is also a Board Member in the specialty of Medical Oncology in the Hong Kong College of Physicians. In his appointment as a Registration Committee member of Pharmacy and Poisons Board of Hong Kong\, he helps oversee the registration of medicinal products and clinical trials in the territory. \nThank you to our 2023 Webinar Sponsors!
URL:https://liferaftgroup.org/event/gist-updates-from-ctos/
CATEGORIES:Education,Events,Webcast
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231117T150000
DTEND;TZID=America/New_York:20231117T173000
DTSTAMP:20231108T164152Z
CREATED:20231108T161712Z
LAST-MODIFIED:20231108T164152Z
UID:10000568-1700233200-1700242200@liferaftgroup.org
SUMMARY:GIST Day of Learning – Michigan
DESCRIPTION:The Life Raft Group’s GIST Day of Learning (GDOL) Michigan is a free\, virtual event for patients\, families\, and our community to learn from a panel of Rogel Cancer Center at University of Michigan Health experts more about this rare cancer\, find support\, and enhance your knowledge base to help you navigate the GIST journey. Friday\, Nov. 17\, 3-5:30PM ET. \nREGISTERClick image for a PDF of the Agenda: \n \nWhat is a GDOL?\nA GDOL is a GIST Day of Learning. This is a free one day event to help patients and caregivers learn more about this rare cancer\, find support\, and enhance their knowledge base to help them navigate their cancer journey. \nThe mission of the Life Raft Group is to enhance survival and quality of life for people living with GIST through patient-powered research\, education and empowerment\, and global advocacy efforts. The LRG vision is to champion patient-powered science and drastically increase long-term survivorship for all cancer patients. To accomplish this\, we rely on four key pillars:\n– Leverage the patient perspective to drive innovative solutions in cancer research\n– Educate and empower patients to take a larger role in their care\n– Accelerate research outcomes through collaborative efforts\n– Increase access to effective treatments worldwide \nThank you to our 2023 GDOL Sponsors!
URL:https://liferaftgroup.org/event/gist-day-of-learning-michigan-2-2/
CATEGORIES:Events,Webcast
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2023/11/gdol-Michigan-update-time.png
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231012T110000
DTEND;TZID=America/New_York:20231012T110000
DTSTAMP:20230804T192657Z
CREATED:20230804T192657Z
LAST-MODIFIED:20230804T192657Z
UID:10000626-1697108400-1697108400@liferaftgroup.org
SUMMARY:Understanding GIST & Desmoid Tumors
DESCRIPTION:The Life Raft Group is partnering with Dr. Jonathan Trent and Dr. Steven Bialick of Sylvester Comprehensive Cancer Center to present “Understanding GIST and Desmoids” for the GIST/Desmoid community on October 12th\, 2023 at 11AM ET. During this virtual presentation\, Dr. Trent and Dr. Bialick will discuss GIST and desmoid tumors to keep pace with the ever-growing body of knowledge about these disease groups\, and the development of new tools and strategies to support this patient and caregiver community. A Q&A session will follow the presentations. \nREGISTERAbout Our Presenters\nDr. Jonathan Trent\nSylvester Comprehensive Cancer Center \nJonathan C. Trent\, MD\, PhD is currently the Associate Director for Clinical Research\, the Director of the Bone and Soft-tissue Sarcoma Group at the Sylvester Comprehensive Cancer Center. Dr. Trent’s interests are in the clinical and translational research of sarcomas\, direct care of sarcoma patients\, and education about sarcoma. \n\nDr. Steven Bialick\nSylvester Comprehensive Cancer Center \nSteven Bialick\, DO\, MS is a recent graduate of the hematology/oncology fellowship program at the University of Miami/Jackson Memorial Hospital. He is a medical oncologist specializing in the care of patients with sarcoma and gastrointestinal malignancies at the Sylvester Comprehensive Cancer Center in South Florida. Dr. Bialick has a particular clinical research interest in connective tissue cancers and the role of circulating tumor DNA in solid tumor oncology. \n\nThank you to the sponsor of this webinar:
URL:https://liferaftgroup.org/event/understanding-gist-desmoid-tumors/
CATEGORIES:Events,Webcast
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230928T120000
DTEND;TZID=America/New_York:20230928T120000
DTSTAMP:20230822T183247Z
CREATED:20230817T122902Z
LAST-MODIFIED:20230822T183247Z
UID:10000629-1695902400-1695902400@liferaftgroup.org
SUMMARY:Advocating for Yourself or a Loved One with GIST
DESCRIPTION:Santy DiSabatino\, Director of our US GIST Mentor Program\, will be chatting with a group of GIST patients who have extensive experience advocating for themselves and their loved ones for the best possible care. We are grateful to these individuals who have been so inspirational and thankful that they are willing to join us on September 28th at noon ET to share how to navigate the medical space to ensure that you receive the highest quality of life possible for you or your loved one. \nREGISTERAbout Our Presenter\nSanty DiSabatino\nDirector\, US GIST Mentor Program \nSanty DiSabatino has been very active in our LRG community as a volunteer\, serving currently as the Voluntary Director of the GIST Mentor program\, and as a mentor. \n\nOur Featured Guest Panel\n\nIan Seah \nIan Seah is an extremely active GIST patient originally from Singapore and who now resides in New York City. He has various interests that have led him to career opportunities in tech\, crypto\, snack foods and yoga. Since being diagnosed with GIST\, he has continued his diverse career ventures and now enjoys new hobbies such as photography and cooking. Ian has taken part in two GIST clinical trials at Memorial Sloan Kettering and has traveled to Europe for integrative treatment options in his journey to be cancer free. Ian is a great example of someone who has tirelessly advocated for himself to receive the best possible outcomes. \n\nMargaret McInteer\nMargaret McInteer is a loving wife\, mother\, grandmother\, and great grandmother who has worked over fifty years in education. After being diagnosed with GIST in 2019\, Margaret connected with The Life Raft Group and is grateful to have been connected with a wonderful mentor who helped her navigate her disease journey to ensure the highest quality of life. Margaret recounts that being diagnosed with GIST forced her to slow down\, take care of herself\, and pay attention to the important things. She feels her life is even richer now and more fulfilling. \n\n  \nJean and Gary Erion`\nJean and Gary Erion are a married couple who both live with GIST. Gary is retired from the social work/counseling space and Jean currently works in the Assisted Living sector providing direct care. Jean and Gary enjoy long walks and spending quality time with their loved ones. Throughout their GIST journey\, Jean and Gary have advocated for themselves and each other\, gaining valuable self-advocacy experience. \nThank you to our 2023 Webinar Sponsors!
URL:https://liferaftgroup.org/event/advocating-for-yourself-and-loved-ones/
CATEGORIES:Events,Webcast
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230918T120000
DTEND;TZID=America/New_York:20230918T120000
DTSTAMP:20230822T183423Z
CREATED:20230721T225845Z
LAST-MODIFIED:20230822T183423Z
UID:10000567-1695038400-1695038400@liferaftgroup.org
SUMMARY:Getting the GIST of It: How to Manage Side Effects of GIST Therapies
DESCRIPTION:The Life Raft Group has partnered with Emmeline C. Academia\, PharmD\, BCOP of Beth Israel Deaconess Medical Center to present “Getting the GIST of it: How to Manage Side Effects of GIST Therapies” for GIST patients and caretakers on September 18th\, 2023 at 12pm. During this virtual presentation\, Ms. Academia will provide an overview of GIST treatments and their side effects as well as home management for each type of symptom and when to call the clinic. \nREGISTERAbout Our Presenter:\nEmmeline C. Academia\, PharmD\, BCOP \nBeth Israel Deaconess Medical Center \nMs. Academia is a practicing clinical pharmacy specialist in adult oncology at Beth Israel Deaconess Medical Center in Boston. She is board certified in oncology\, and sub-specializes in gastrointestinal and thoracic malignancies\, along with sarcoma. She precepts students from Northeastern University and the Massachusetts College of Pharmacy and Health Sciences. She is a contributing editor for MET Crusaders\, a nonprofit organization dedicated to patients with MET alterations. She also reviews and writes for GoodRx\, focusing on oncology-related medications and topics\, and is the co-author of several published journal articles. Dr. Academia received her Doctor of Pharmacy degree from the University of California\, San Francisco before completing 2 years of pharmacy residency at the University of Colorado in general pharmacy practice\, followed by specialized training in adult oncology. \nThank you to our 2023 Webinar Sponsors!
URL:https://liferaftgroup.org/event/manage-side-effects/
CATEGORIES:Education,Events,Webcast
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230730T150000
DTEND;TZID=America/New_York:20230730T170000
DTSTAMP:20230725T165832Z
CREATED:20230725T162102Z
LAST-MODIFIED:20230725T165832Z
UID:10000570-1690729200-1690736400@liferaftgroup.org
SUMMARY:Understanding GIST Mutations & Clinical Trials Update
DESCRIPTION:In this session of Let’s Get the GIST of It\, we will be reviewing GIST mutations and sharing the current updates on GIST Clinical Trials. The event will be interactive\, so attendees are encouraged to ask questions and participate. Patients and caregivers are invited to attend. \nThe session will be hosted by Sahibjeet Parmar\, Director of Data Management & Research at The Life Raft Group. \nREGISTERAbout Our Presenter:\nSahibjeet Parmar\nDirector\, Data Management & Research \nIn her role as the Director of Data Management & Research\, Sahibjeet is responsible for a team of data management and research associates and data analysts in their day-to-day support of LRG patients and data science. \nAs the point person of The Life Raft Group’s GIST Patient Registry and GIST Collaborative Tissue Bank\, Sahibjeet oversees the operations of these platforms including direct patient contact including outreach\, medical updates\, email community support\, patient education\, biospecimen handling and research collaborations.
URL:https://liferaftgroup.org/event/understanding-gist-mutations/
CATEGORIES:Events,Webcast
ORGANIZER;CN="Denisse Evans":MAILTO:devans@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20221208T170000
DTEND;TZID=America/New_York:20221208T170000
DTSTAMP:20221101T132210Z
CREATED:20221101T131851Z
LAST-MODIFIED:20221101T132210Z
UID:10000248-1670518800-1670518800@liferaftgroup.org
SUMMARY:Interactive Q&A with SDH Families
DESCRIPTION:December 8 @ 5PM ET \nThe Life Raft Group invites SDH-deficient GIST patients and caregivers to join us for a virtual conversation with Dr. Sosipatros Boikos of the Georgetown Lombardi Comprehensive Cancer Center. During this meeting\, Dr. Boikos will present background on SDH-deficient GIST and open the meeting to an interactive Q&A with families. Please come prepared with questions and time to interact with the group! \nREGISTERAbout our Presenter:\nDr. Sosipatros Boikos\nGeorgetown Lombardi Comprehensive Cancer Center \nSosipatros Boikos\, MD\, is a fellowship-trained\, board-certified medical oncologist with clinical privileges at MedStar Washington Hospital Center and MedStar Georgetown University Hospital. He is one of the most experienced sarcoma medical oncologists in the Washington\, D.C. metropolitan area\, with 11 years of experience treating sarcomas and rare tumors and more than 20 years of experience in the area of sarcoma cancer genetics and cell biology. Dr. Boikos currently serves MedStar Health as Co-Leader of the Sarcoma Working Group at Georgetown Lombardi Comprehensive Cancer Center.    \nThank you to our 2022 LRG webinar sponsors:
URL:https://liferaftgroup.org/event/interactive-qa-with-sdh-families/
CATEGORIES:Education,Events,Webcast
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220812T120000
DTEND;TZID=America/New_York:20220812T130000
DTSTAMP:20220504T183401Z
CREATED:20220504T183401Z
LAST-MODIFIED:20220504T183401Z
UID:10000234-1660305600-1660309200@liferaftgroup.org
SUMMARY:The Importance of Biomarker Testing
DESCRIPTION:August 12th\, 12-1pm ET\nThe Life Raft Group is partnering with Dr. Michael Wagner from the University of Washington to present “The Importance of Biomarker Testing” to GIST patients and caregivers on August 12th\, 2022 from 12pm-1pm EST. During this virtual presentation\, Dr. Wagner will describe what biomarker testing is and how GIST patients can advocate for this test to ensure the best treatment for their specific cancer. \nREGISTERAbout our Presenter:\nDr. Michael Wagner\nUniversity of Washington \nMichael Wagner\, MD is an Assistant Professor of Medicine at the University of Washington and an Assistant Professor in the Clinical Research Division at the Fred Hutchinson Cancer Research Center (FHCRC). He is the Director of Sarcoma Clinical Research. After graduating from Harvard University with a medical degree\, Dr. Wagner completed his residency at Mt. Sinai Hospital in New York and medical oncology fellowship at the University of Texas MD Anderson Cancer Center. Dr. Wagner has received numerous awards\, including the Conquer Cancer Foundation of ASCO Young Investigator Award and QuadW Foundation-AACR Fellowship for Clinical/Translational Research for his research on sarcoma. Dr. Wagner has been in his current position in Seattle since 2017. \nThank you to our 2022 LRG webinar sponsors:
URL:https://liferaftgroup.org/event/importance-of-biomarker-testing/
CATEGORIES:Events,Webcast
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2022/05/importance-biomarker-testing.jpg
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220629T120000
DTEND;TZID=America/New_York:20220629T130000
DTSTAMP:20220502T183139Z
CREATED:20220502T183139Z
LAST-MODIFIED:20220502T183139Z
UID:10000233-1656504000-1656507600@liferaftgroup.org
SUMMARY:Managing Medical Bills
DESCRIPTION:June 29th\, 12-1pm ET\nThe Life Raft Group is partnering with Triage Cancer to present Managing Medical Bills to GIST patients and caregivers on June 29th\, 2022 from 12pm-1pm EST. During this virtual presentation\, Melissa Salamon of Triage Cancer will provide valuable information on how to mitigate the financial impact of a cancer diagnosis across the continuum of care. \nREGISTERAbout our Presenter:\nMelissa Salamon\nTriage Cancer \nMelissa is a Staff Attorney at Triage Cancer\, where she provides education on the legal and financial issues that may occur after a cancer diagnosis. Prior to joining Triage Cancer\, Melissa ran the Health Law Partnerships at the Legal Aid Society of Southwest Ohio. Before law school\, Melissa served as an Urban Youth Development volunteer with the U.S. Peace Corps in Paraguay where she became fluent in Spanish. She also worked as a Case Manager in the foster care system in Hillsborough County\, Florida. \nMelissa attended the Ohio State University where she graduated with a J.D./M.A. dual degree from the Moritz College of Law and John Glenn School of Public Affairs. She graduated cum laude with a B.A. in Sociology and Anthropology from Tulane University. She is a member of the Ohio bar. \nThank you to our 2022 LRG webinar sponsors:
URL:https://liferaftgroup.org/event/managing-medical-bills/
CATEGORIES:Events,Webcast
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Mexico_City:20220607T190000
DTEND;TZID=America/Mexico_City:20220607T190000
DTSTAMP:20220601T185842Z
CREATED:20220601T184801Z
LAST-MODIFIED:20220601T185842Z
UID:10000235-1654628400-1654628400@liferaftgroup.org
SUMMARY:Efectos de la Nutrición y la Microbiota Intestinal en pacientes con GIST
DESCRIPTION:La versión en español titulada\, “Efectos de la Nutrición y la Microbiota Intestinal en pacientes con GIST” \nMartes 07 junio a las 19:00 Cdmx/20:00 Chile /19:00 Colombia /21:00 Ara. \nOrganizado por Fundación GIST México y AlianzaGIST. \nLa Sra. Berenice Carbajal-López es una estudiante de doctorado que tiene un Máster en Ciencias de la Salud con una tesis relacionada con el uso de tecnologías en la atención nutricional y psicológica de los pacientes con GIST. Durante esta presentación virtual\, la Sra. Carbajal-López describió los beneficios de una nutrición adecuada\, la relación entre la nutrición y los procedimientos quirúrgicos\, el vínculo entre el microbioma y el cáncer\, y el ejercicio. \n¿tienes preguntas?\nEnvíe un correo electrónico a Piga Fernández en pfernandez@liferaftgroup.org \nREGISTERAcerca del presentador: \nBerenice Carbajal-López\nFundación GIST México \nLa Sra. Berenice Carbajal-López es estudiante de doctorado y tiene una maestría en Ciencias de la Salud con una tesis relacionada con el uso de tecnologías en la atención nutricional y psicológica de pacientes con GIST. Es diplomada en Investigación Clínica y Bioestadística por el Instituto Nacional de Cancerología de México. Cuenta con experiencia en el cuidado de la salud de pacientes con GIST\, como Coordinadora de Atención al Paciente de 2014 a 2019 y como Directora Global desde 2020 en la Fundación GIST México. La Sra. Carbajal-López también ha colaborado en la redacción y revisión de artículos de investigación y capítulos de libros en el área de Oncología\, con ocho publicaciones a la fecha como autora principal y coautora en revistas indexadas y ha participado en congresos nacionales e internacionales como SMEO 2018\, ASCO 2019 y ESMO-GI 2017\, 2018\, 2019\, 2020\, 2021 y 2022.
URL:https://liferaftgroup.org/event/efectos-de-la-nutricion-y-la-microbiota-intestinal-en-pacientes-con-gist/
CATEGORIES:Education,Events,Webcast
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2022/06/Invitación-Alianza-GIST.jpg
ORGANIZER;CN="Piga Fern%C3%A1ndez":MAILTO:pfernandez@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220504T120000
DTEND;TZID=America/New_York:20220504T130000
DTSTAMP:20220406T120523Z
CREATED:20220406T120523Z
LAST-MODIFIED:20220406T120523Z
UID:10000229-1651665600-1651669200@liferaftgroup.org
SUMMARY:Effects of Nutrition and the Gut Microbiome in GIST Patients
DESCRIPTION:May 4th\, 12-1pm ET \nThe Life Raft Group is partnering with Fundación GIST México to present “Effects of Nutrition and Gut Microbiome in GIST Patients” to GIST patients and caretakers on May 4th at 12pm ET. Ms. Berenice Carbajal-López is a doctoral student who holds a Master in Health Sciences with a thesis related to the use of technologies in the nutritional and psychological care of patients with GIST. During this virtual presentation\, Ms. Carbajal-López will describe the benefits of proper nutrition\, the relationship between nutrition and surgical procedures\, the link between the microbiome and cancer\, and exercise. \nREGISTERAbout our Presenter: \nMs. Berenice Carbajal-López is a doctoral student who holds a master’s degree in Health Sciences with a thesis related to the use of technologies in the nutritional and psychological care of patients with GIST. She has a diploma in Clinical Research and Biostatistics at the National Cancer Institute in Mexico. She has experience in health care of GIST patients\, as Patient Care Coordinator from 2014 to 2019 and as Global Director since 2020 at Fundación GIST México. Ms. Carbajal-López has also collaborated in drafting and review of research articles and book chapters in the area of Oncology\, with eight publications to date as main author and co-author in indexed journals and has participated in national and international congresses such as SMEO 2018\, ASCO 2019\, and ESMO-GI 2017\, 2018\, 2019\, 2020\, 2021\, and 2022. \nThank you to our 2022 LRG webinar sponsors:
URL:https://liferaftgroup.org/event/nutrition-gut-microbiome-in-gist-patients/
CATEGORIES:Events,Webcast
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220406T120000
DTEND;TZID=America/New_York:20220406T130000
DTSTAMP:20220303T154212Z
CREATED:20220224T171146Z
LAST-MODIFIED:20220303T154212Z
UID:10000208-1649246400-1649250000@liferaftgroup.org
SUMMARY:Be an Informed Patient\, Part 2: GIST
DESCRIPTION:Be an Informed Patient\, Part 2: Navigating GIST NCCN Guidelines\nIn Part Two of our “Be an Informed Patient” series\, The Life Raft Group invites all GIST patients and caregivers to register for our NCCN Webinar taking place on April 6th at 12:00 pm ET. The National Comprehensive Cancer Network (NCCN) creates guidelines for different diseases to guide physicians in their clinical practice. Dr. Margaret von Mehren serves as the Chair of the sarcoma NCCN guidelines and has been a valuable player along with her medical colleagues on the evolution of the GIST guidelines over the years. In this webinar\, Dr. von Mehren will educate GIST patients and caregivers about these guidelines and provide some case study examples of how guidelines fit into the rubric of patient care. The Life Raft Group will also share insights on real world experiences among the patient community with the guidelines. \nREGISTERAbout our presenters:\nMargaret von Mehren\, MD\nFox Chase Cancer Center \nDr. Margaret von Mehren is Chief of Division of Sarcoma Medical Oncology at Fox Chase Cancer Center. Her research interest focuses in developmental therapeutics for sarcomas and gastrointestinal stromal tumors. She has led investigator-initiated trials\, collaborated with other investigators\, sarcoma clinical trials group\, as well as industry sponsored studies in the testing of novel agents in these rare diseases. Collaboration with the Phase I program and basic scientists at Fox Chase Cancer Center and elsewhere is key to identifying potential novel agents which may have a therapeutic benefit in the treatment of sarcomas. Dr. von Mehren’s work in sarcoma therapeutic development informs her role as the Associate Director of Clinical Research\, in which she oversees the development of investigator initiated clinical trials\, the scientific review and prioritization process of trials as well as conduct of clinical trials at Fox Chase Cancer Center. \n\nDenisse Montoya\, MS\nSenior Director\, Data Mgmt. & Research\, The Life Raft Group \nMs. Montoya has a wealth of experience in clinical evaluation projects including development of protocols\, case report forms\, informed consent\, surveys\, tissue repositories\, and study initiation She is proficient in data management\, preparing research for publication\, drug development\, clinical trial protocols\, onco-pathological/genetical dissemination\, and formulating research premises. As the Senior Director of Data Management & Research\, Denisse is the principal investigator for study protocol design and strategy of Patient Reported Outcomes (PRO). She has expertise in the analysis\, reporting\, and dissemination of PRO data and present scientific work. \nShe leads a dedicated staff in both patient support and in the identification of data trends that may lead to actionable information that will help patients coping with Gastrointestinal Stromal Tumor. In addition\, she takes the lead in collaborative research initiatives\, including maintaining relationships with potential partners\, contributing ongoing data\, and supporting hypothesis generation with the goal of increasing patient survival and advancing GIST research. \nDenisse holds a Bachelor of Science degree in Biology from Rowan University\, and a Master of Science Degree in Biomedical Science from Fairleigh Dickinson University
URL:https://liferaftgroup.org/event/be-an-informed-patient-part-2-gist/
CATEGORIES:Events,Webcast
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20211102T120000
DTEND;TZID=America/New_York:20211102T120000
DTSTAMP:20210930T145721Z
CREATED:20210930T145624Z
LAST-MODIFIED:20210930T145721Z
UID:10000172-1635854400-1635854400@liferaftgroup.org
SUMMARY:Caring for the Caregiver
DESCRIPTION:Caring for the Caregiver will focus on common challenges caregivers experience and how these challenges can often lead to burnout\, while also highlighting the impact of COVID-19. This webinar will provide caregivers with tools and ideas to help improve their physical and emotional wellbeing. To close\, caregivers will be given the opportunity to engage in a self-care practice that is quick enough to integrate into their routine. \nREGISTEROur Presenter\n\nAlyson Erardy\, LMSW\, Oncology Social Worker\nAlyson is an oncology social worker at CancerCare providing emotional and practical support services to people affected by cancer. During her time at CancerCare\, Alyson has developed a passion and expertise in working with the caregiver population by creating new workshops\, programs and groups to create a strong community.
URL:https://liferaftgroup.org/event/caring-for-the-caregiver/
CATEGORIES:Events,Webcast
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20211007T140000
DTEND;TZID=America/New_York:20211007T140000
DTSTAMP:20210913T194922Z
CREATED:20210913T193635Z
LAST-MODIFIED:20210913T194922Z
UID:10000170-1633615200-1633615200@liferaftgroup.org
SUMMARY:Conversations with the LRG: Meet our International GIST Mentors!
DESCRIPTION:Join us Thursday\, October 7th at 2pm ET for our next “Conversations with the LRG”. In this presentation\, our Global GIST Mentors will discuss the role of the GIST Mentor and how one can assist you on your GIST journey. \nYou will learn why each of these patients/caregivers chose to volunteer as a GIST Mentor and more about them and their own journey with GIST. \nThere will be a 15-minute Q&A at the end of the presentation. \nYou may submit questions in advance to Diana Nieves\, Senior Director of Outreach and Engagement: dnieves@liferaftgroup.org \nYou will also be able to submit questions in the chat feature during the presentation for the Q&A. \nREGISTER
URL:https://liferaftgroup.org/event/conversations-with-the-lrg-meet-our-international-gist-mentors/
CATEGORIES:Events,Webcast
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/09/lrg-conver-Int-mentors.png
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20210715T130000
DTEND;TZID=America/New_York:20210715T130000
DTSTAMP:20210712T165243Z
CREATED:20210619T001422Z
LAST-MODIFIED:20210712T165243Z
UID:10000145-1626354000-1626354000@liferaftgroup.org
SUMMARY:POSTPONED: Conversations with the LRG: GIST Mentors
DESCRIPTION:POSTPONED – NEW DATE TBD\nOn Thursday\, July 15th at 1pm ET\, we are presenting another session of “Conversations with the LRG”. In this presentation\, another group of GIST Mentors will discuss the role of the Mentor and how one can assist you on your GIST journey. Learn more about why each of these patients/caregivers volunteer as a GIST Mentor and learn more about their personal journeys with GIST. There will be a 15-minute Q & A at the end of the presentation. \nYou can submit question were in advance to Mary Garland\, Communications Director: mgarland@liferaftgroup.org. Questions can also be submitted during the presentation. \nREGISTER
URL:https://liferaftgroup.org/event/conversations-lrg-gist-mentors/
CATEGORIES:Events,Support Group,Webcast
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2021/06/Mentors-4.jpg
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20201026T120000
DTEND;TZID=America/New_York:20201026T120000
DTSTAMP:20201022T161543Z
CREATED:20201002T183013Z
LAST-MODIFIED:20201022T161543Z
UID:10000089-1603713600-1603713600@liferaftgroup.org
SUMMARY:Women in Sarcoma: Case Presentations
DESCRIPTION:Case Presentations\nOctober 26\, 12PM ET \nPlease join us for the second webcast of our Women in Sarcoma series. The Life Raft Group has developed the Women in Sarcoma program in recognition of the many women sarcoma specialists that engage with the sarcoma patient community and focus on educating and advocating on behalf of those living with sarcoma. \nThis panel features three women sarcoma experts presenting unique case studies that they have encountered in their practices. Panelists will interact with each other about these case studies\, and participants will gain meaningful insight into how these experts diagnose and treat sarcoma patients\, and how they collaborate with colleagues toward the goal of achieving positive outcomes for these challenging cases. \n\nIf you have questions about this panel or about registration\, please contact Sara Rothschild\, VP Program Services \n\nPlease join us for this interactive session with women leading the field of sarcoma!\n\nREGISTEROur Panel of Experts\n \n\nVaia Florou\, MD\nOncologist\nUniversity of Utah\nHuntsman Cancer Center\n \n\nCiara Kelly\, MBBCh BAO\nOncologist\nMemorial Sloan Kettering\nCancer Center\n \n\n\nSandra R. Brackert\, NP\nNurse Practitioner\nRonald Reagan UCLA\nMedical Center
URL:https://liferaftgroup.org/event/women-in-sarcoma-case-presentations/
CATEGORIES:Education,Research,Webcast
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2020/10/Women-In-Sarcoma-2.jpg
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20201020T120000
DTEND;TZID=America/New_York:20201020T120000
DTSTAMP:20200916T162445Z
CREATED:20200909T152729Z
LAST-MODIFIED:20200916T162445Z
UID:10000087-1603195200-1603195200@liferaftgroup.org
SUMMARY:LRG Webcast: Genetics 101
DESCRIPTION:With the alphabet soup of terms and genes that cancer patients tend to hear during diagnosis\, it takes some time to really understand what these terms mean. \nIn her Genetics 101 webcast\, Dr. Raygada will unravel the DNA terms and seek to empower patients by helping them understand the genetic basis of their conditions so that they may decrease the risks associated with the mutations and tumors they carry. \nREGISTERAbout the presenter\nMargarita Raygada\, PhD\, Oncology Genetic Counselor \nDr. Raygada’s doctorate degree is in Medical Science from the Uniformed Services University of the Health Sciences/Naval Hospital\, Bethesda\, Maryland. Her Master’s degree is in Human Genetics and Genetic Counseling\, Georgetown University Hospital (GUH) in Washington\, D.C.\, with two post-doctoral fellowships: Molecular Biology at The Johns Hopkins Hospital in Baltimore\, and Cancer Genetics at GUH. Research Focus: Cancer genetics is my passion. I am interested in delineating the genetic changes in rare tumors and identifying associated phenotypes that may lead to common pathways and therefore improved outcomes for cancer patients. But most importantly I hope to empower patients by helping them understand the genetic basis of their conditions\, and by educating them on how they can use this information to manage their cancer so that they may decrease the risks associated with the mutations and tumors they carry.
URL:https://liferaftgroup.org/event/lrg-webcast-genetics-101/
CATEGORIES:Education,Webcast
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2020/08/raygada-event.jpg
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20200826T150000
DTEND;TZID=America/New_York:20200826T150000
DTSTAMP:20200630T191338Z
CREATED:20200616T144916Z
LAST-MODIFIED:20200630T191338Z
UID:10000072-1598454000-1598454000@liferaftgroup.org
SUMMARY:Understanding the Link Between Pheo\, Para\, and GIST
DESCRIPTION:REGISTERThis hour-long webinar presented by The Pheo Para Alliance will provide an opportunity for the community to ask questions live or submit them beforehand. \nThis Live Webinar Series\, made possible through an educational grant by Progenics\, gives patients and their families an opportunity to tune in and interact with experts on a variety of pheo para topics. \nThe information discussed during this webinar is for informational purposes only\, and does not take the place of medical advice from your doctor(s) who know your medical history and current situation. \nAbout the Presenter:\nDr. Jason Sicklick\nAssociate Professor of Surgery\, Division of Surgical Oncology @UC San Diego Health System\nJason Sicklick\, MD\, is a general surgeon and surgical oncologist who specializes in treating hepatobiliary diseases and sarcomas\, including gastrointestinal stromal tumors (GIST). He has a special interest in abdominal and retroperitoneal sarcomas\, primary liver tumors and colorectal and neuroendocrine cancers that have metastasized to the liver. Read full bio here. \n\n\nSee other webcasts by Dr. Sicklick here:\nRare GIST Subtypes\nUnderstanding the Concept of “Precision Oncology”\nUpdates on the Temozolomide Trial\nNew Insights into Gene Fusion\n\n\n\nModerated by:\n\n\nDebra Melikian\nPatient Advocate\nDebra was thrust into the world of GISTS and pheo para when her husband and son were diagnosed. She is a mother on a mission. She and Dr. Sicklick have a unique relationship that powers both of their missions forward to help all patients. \n\nYou can read more about Debra:\nPatient Advocate’s Story Unfolds in RARE Revolution Magazine
URL:https://liferaftgroup.org/event/understanding-the-link-between-pheo-para-and-gist/
CATEGORIES:Education,Events,Webcast
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2020/06/pheo-para-webinar.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20200616T120000
DTEND;TZID=America/New_York:20200616T130000
DTSTAMP:20200515T142935Z
CREATED:20200512T205723Z
LAST-MODIFIED:20200515T142935Z
UID:10000066-1592308800-1592312400@liferaftgroup.org
SUMMARY:LRG Webcast Series: GIST: How to Understand your Pathology Report
DESCRIPTION:In this webinar\, we will be discussing how to interpret your pathology report. We will cover interpretation of all parts of a pathology report\, beginning with understanding the final diagnosis and diagnostic comment. We will then review the results and significance of performed ancillary testing\, including immunohistochemistry\, prognostic biomarker testing\, and molecular testing. We will end by discussing how the aforementioned pathology report data affects clinical surgical and therapeutic decision-making. \nREGISTERAbout the Presenters:\nKelsey McHugh\, M.D.\nGastrointestinal\, Hepatic\, and Pancreatobiliary Pathology Fellow\nRobert J. Tomsich Pathology & Laboratory Medicine Institute\nCleveland Clinic \nKelsey McHugh\, MD is a board certified anatomic and clinical pathologist\, with cytopathology subspecialty certification\, who is currently completing gastrointestinal\, hepatic\, and pancreatobiliary pathology subspecialty training. She anticipates graduating from the Cleveland Clinic Gastrointestinal\, Hepatic\, and Pancreatobiliary Pathology Fellowship in June 2020\, after which she will remain at the Cleveland Clinic as a staff pathologist beginning July 2020.
URL:https://liferaftgroup.org/event/understand-your-pathology-report/
CATEGORIES:Education,Webcast
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20200402T130000
DTEND;TZID=America/New_York:20200402T130000
DTSTAMP:20200327T132806Z
CREATED:20200327T130818Z
LAST-MODIFIED:20200327T132806Z
UID:10000058-1585832400-1585832400@liferaftgroup.org
SUMMARY:Conversations with the Life Raft Group LIVE
DESCRIPTION:Save the Date!\nPlease join us on Thursday\, April 2nd at 1 pm for our first online program Conversations with the Life Raft Group. \nDesigned to be a source for connection and information for the LRG community\, these presentations will address topics of concern for patients and caregivers during the COVID-19 crisis. \nOur first conversation will be with our Executive Director\, Norman Scherzer. As many of you know\, in previous careers Norman worked for the Centers for Disease Control (CDC)\, and served as the Assistant Commissioner of Health for New York City\, guiding the public through major health crises such as the AIDS epidemic\, Swine flu and many other outbreaks. Norman will discuss strategies for coping with COVID-19. \nViewers will be able to ask questions during the session. \nJoin the conversation
URL:https://liferaftgroup.org/event/conversations-lrg-scherzer/
LOCATION:The Life Raft Group\, 155 US Highway 46\, Ste. 202\, Wayne Plaza II\, Wayne\, NJ\, 07470\, United States
CATEGORIES:Events,Webcast
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20200306T120000
DTEND;TZID=America/New_York:20200306T120000
DTSTAMP:20200228T202614Z
CREATED:20200228T202106Z
LAST-MODIFIED:20200228T202614Z
UID:10000056-1583496000-1583496000@liferaftgroup.org
SUMMARY:Webinar - New Treatment Options for Rare Diseases in the Soft Tissue - Day 2
DESCRIPTION:In honor of Rare Disease in the Soft Tissue Day\, OncLive is hosting webinars on March 5 and March 6 at 12pm EST about soft tissue sarcoma. GIST is a soft tissue sarcoma. \nDr. Neeta Somaiah \nDr. Neeta Somaiah will present on March 6. She is an Associate Professor and the Director of Clinical Sarcoma Research\, Department of Sarcoma Medical Oncology\, UT MD Anderson Cancer Center. \nThe webinar will focus on: \n\nOverview of diagnosis and molecular testing\nCurrent treatment algorithms for soft tissue sarcoma\nNew therapeutic option for PDGFRA+ GIST\nFuture directions in management\n\nTo register for the March 6 webinar: \n\nRegister
URL:https://liferaftgroup.org/event/webinar-new-treatment-options-for-rare-diseases-in-the-soft-tissue-day-2/
CATEGORIES:Education,Webcast
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20200305T120000
DTEND;TZID=America/New_York:20200305T120000
DTSTAMP:20200228T201452Z
CREATED:20200228T201100Z
LAST-MODIFIED:20200228T201452Z
UID:10000055-1583409600-1583409600@liferaftgroup.org
SUMMARY:Webinar - New Treatment Options for Rare Diseases in the Soft Tissue - Day 1
DESCRIPTION:In honor of Rare Disease in the Soft Tissue Day\, OncLive is hosting webinars on March 5 and March 6 at 12pm EST about soft tissue sarcoma. GIST is a soft tissue sarcoma. \nDr. Jonathan Trent \nJonathan Trent\, MD\, PhD\, is a Professor of Medicine\, Associate Director of Clinical Research\, Director of the Sarcoma Program at Sylvester Comprehensive Cancer Center\, University of Miami\, Miller School of Medicine. \nDr. Trent is a recognized GIST expert. \nThe webinar will focus on: \n\nOverview of diagnosis and molecular testing\nCurrent treatment algorithms for soft tissue sarcoma\nNew therapeutic option for PDGFRA+ GIST\nFuture directions in management\n\nTo register for the March 5 webinar: \n\nRegister
URL:https://liferaftgroup.org/event/webinar-new-treatment-options-for-rare-diseases-in-the-soft-tissue/
CATEGORIES:Education,Webcast
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20191015T130000
DTEND;TZID=America/New_York:20191015T140000
DTSTAMP:20191018T140257Z
CREATED:20191004T141629Z
LAST-MODIFIED:20191018T140257Z
UID:10000046-1571144400-1571148000@liferaftgroup.org
SUMMARY:GIST CHAT 101: Learn the Basics
DESCRIPTION:GIST CHAT 101: Learn the Basics\n\nGIST CHAT is our new ListServ replacement launching on October 15th.\n\nDuring the webinar we will show you how to:\n\n\nRegister\nPost\nReply\nSearch\n…and a few other helpful tips and tricks\n\n\n\n\n\n\nWatch the Webinar
URL:https://liferaftgroup.org/event/gist-chat-101-learn-the-basics/
CATEGORIES:Education,Webcast
ORGANIZER;CN="The Life Raft Group":MAILTO:liferaft@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20191007
DTEND;VALUE=DATE:20191008
DTSTAMP:20191007T204413Z
CREATED:20190918T160922Z
LAST-MODIFIED:20191007T204413Z
UID:10000045-1570406400-1570438800@liferaftgroup.org
SUMMARY:LRG Webcast Series: Dental Healthcare in GIST
DESCRIPTION:Dr. Nikhil Guhagarkar will be discussing the dental and oral complications of drugs used in GIST treatment and treatment of these side effects. He will also speak about methods of maintaining good oral hygiene. This video will be prerecorded and released on October 7th and Dr. Guhagarkar will answer questions that you’ve submitted. Please submit questions ahead of time\, you may do so here: \n \nListen to the Webcast\nDr. Guhagarkar is a GISTer and active GIST advocate. He is a City Chapter Leader for Friends of Max India\, a Board Member of SPAEN\, the author of a Friends Of Max publication titled\, “A Guide to Nutrition and Holistic Way of Living with GIST” and participated as an expert in the LRG Webcast Series with “Nutrition and Healthy Living with GIST.” \nAbout the Presenter:\nDr. Nikhil Guhagarkar is an Oral And Maxillofacial Surgeon and Dentist and has over 21 years of experience in his field. Dr. Guhagarkar practices at the Guhagarkar Dental Care Centre in Vileparle\, Mumbai\, India. He completed his BDS from Government Dental College & Hospital\, Mumbai in 1994 and MDS – Oral & Maxillofacial Surgery from Nair Hospital Dental College (NHDC)\, Mumbai in 1998. He is a member of Indian Dental Association and Indian Association of Oral Surgery. \n\nTechnical Tips to Join Meeting:\n\nThis is a recorded presentation which will be released on October 7th. Further instructions will be forthcoming. Dr. Guhagarkar will answer your questions. If you wish to submit questions\, please do so here: QUESTIONS\n\n\nDisclaimer:\nWe cannot provide individual medical advice during this webcast. Information provided in this webcast is not intended as a substitute for your physician’s guidance and care.
URL:https://liferaftgroup.org/event/lrg-webcast-series-dental-healthcare/
CATEGORIES:Events,Webcast
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2019/09/guhagarkar-dental.jpg
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20190911T140000
DTEND;TZID=America/New_York:20190911T150000
DTSTAMP:20190917T152156Z
CREATED:20190725T201333Z
LAST-MODIFIED:20190917T152156Z
UID:10000037-1568210400-1568214000@liferaftgroup.org
SUMMARY:LRG Webcast Series: Updates on the Temozolomide Trial
DESCRIPTION:The Temozolomide Trial for SDH-deficient GIST Patients\nGIST is becoming increasingly diverse. SDH-deficient GIST and paragangliomas often occur in adolescents and young adults. Since these SDH mutations are germline\, multiple generations of family members are affected.\n\nDr. Jason Sicklick of Moores Cancer Center at the University of California San Diego will present a webcast detailing the Phase II study of Temozolomide (TMZ) in advanced SDH-mutant/deficient GIST\, a new study available to patients with SDH-deficient GIST.\n\n\nListen to the Webinar\n\nAbout the Presenter:\nJason K. Sicklick\, MD\, FACS\, is an Associate Professor of Surgery\, Division of Surgical Oncology; and Co-Director\, Biorepository and Tissue Technology Shared Resource\, Moores Cancer Center at the University of California\, San Diego\, UC San Diego Health Sciences. \n  \n  \n  \n\nTechnical Tips to Join Meeting:\n\nThis is a web-only meeting\, accessed only by your internet connection. Participants are encouraged to use the web link automatically provided after registration and to use computer speakers (and/or headsets if available) to hear the audio portion of the meeting. Please log in at least ten minutes prior to the start of the webinar.\nPlease ensure you have an updated version of Adobe Flash Player (Google Chrome has Flash built-in).\nIf you are using a mobile device or tablet\, in order to view and hear the conference\, download the ReadyTalk App from your App store.\n\n\nDisclaimer:\nWe cannot provide individual medical advice during this webcast. Information provided in this webcast is not intended as a substitute for your physician’s guidance and care.
URL:https://liferaftgroup.org/event/lrg-webcast-series-updates-on-the-temozolomide-trial/
CATEGORIES:Education,Webcast
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2019/07/sicklick-temozolomide-webcast.jpg
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20190909T120000
DTEND;TZID=America/New_York:20190909T130000
DTSTAMP:20190911T172010Z
CREATED:20190816T164240Z
LAST-MODIFIED:20190911T172010Z
UID:10000040-1568030400-1568034000@liferaftgroup.org
SUMMARY:LRG Webcast Series: Medicare 101
DESCRIPTION:Medicare 101: An Overview of the A\, B\, C\, and Ds of Medicare\n\nThe A B C’s of Medicare: Everything you need to know\nWhat is Medicare\, am I eligible and how do I enroll?\nWhat does Medicare cover?\nHow much does it cost?\nWhich path should I choose – Medigap Supplement Insurance or Medicare Advantage Plan?\nHow about Prescription Drug coverage?\nFinancial Assistance Programs to help with Medicare costs\n\nRECAP HERE\n\nThere will be a 15 minute Q & A at the end of the presentation. \nAbout the Presenter:\nKathy Sarmiento has been working for the Alliance for Aging for fifteen years.  The Alliance for Aging is the non-profit Area Agency on Aging for Miami-Dade and Monroe Counties in Florida. In her role as the SHINE Liaison\, Kathy manages the all aspects of the free SHINE Medicare counseling program. Kathy also manages the Benefits Enrollment Center at the Alliance for Aging. The Benefits Enrollment Center is a grant from the National Council on Aging to provide five core benefits to financially needy Medicare beneficiaries. Those five core benefits are Medicaid\, food assistance\, assistance paying for Medicare\, Prescription Drug assistance and assistance paying the light bill. \n\n\nTechnical Tips to Join Meeting:\n\nThis is a web-only meeting\, accessed only by your internet connection. Participants are encouraged to use the web link automatically provided after registration and to use computer speakers (and/or headsets if available) to hear the audio portion of the meeting. Please log in at least ten minutes prior to the start of the webinar.\nPlease ensure you have an updated version of Adobe Flash Player (Google Chrome has Flash built-in).\nIf you are using a mobile device or tablet\, in order to view and hear the conference\, download the ReadyTalk App from your App store.\n\n\nDisclaimer:\nWe cannot provide individual medical advice during this webcast. Information provided in this webcast is not intended as a substitute for your physician’s guidance and care.
URL:https://liferaftgroup.org/event/lrg-webcast-series-medicare-101/
CATEGORIES:Webcast
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2019/08/sarmiento-medicare-webcast.jpg
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
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END:VCALENDAR