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DTSTART;TZID=America/New_York:20220629T120000
DTEND;TZID=America/New_York:20220629T130000
DTSTAMP:20220502T183139Z
CREATED:20220502T183139Z
LAST-MODIFIED:20220502T183139Z
UID:10000233-1656504000-1656507600@liferaftgroup.org
SUMMARY:Managing Medical Bills
DESCRIPTION:June 29th\, 12-1pm ET\nThe Life Raft Group is partnering with Triage Cancer to present Managing Medical Bills to GIST patients and caregivers on June 29th\, 2022 from 12pm-1pm EST. During this virtual presentation\, Melissa Salamon of Triage Cancer will provide valuable information on how to mitigate the financial impact of a cancer diagnosis across the continuum of care. \nREGISTERAbout our Presenter:\nMelissa Salamon\nTriage Cancer \nMelissa is a Staff Attorney at Triage Cancer\, where she provides education on the legal and financial issues that may occur after a cancer diagnosis. Prior to joining Triage Cancer\, Melissa ran the Health Law Partnerships at the Legal Aid Society of Southwest Ohio. Before law school\, Melissa served as an Urban Youth Development volunteer with the U.S. Peace Corps in Paraguay where she became fluent in Spanish. She also worked as a Case Manager in the foster care system in Hillsborough County\, Florida. \nMelissa attended the Ohio State University where she graduated with a J.D./M.A. dual degree from the Moritz College of Law and John Glenn School of Public Affairs. She graduated cum laude with a B.A. in Sociology and Anthropology from Tulane University. She is a member of the Ohio bar. \nThank you to our 2022 LRG webinar sponsors:
URL:https://liferaftgroup.org/event/managing-medical-bills/
CATEGORIES:Events,Webcast
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Mexico_City:20220607T190000
DTEND;TZID=America/Mexico_City:20220607T190000
DTSTAMP:20220601T185842Z
CREATED:20220601T184801Z
LAST-MODIFIED:20220601T185842Z
UID:10000235-1654628400-1654628400@liferaftgroup.org
SUMMARY:Efectos de la Nutrición y la Microbiota Intestinal en pacientes con GIST
DESCRIPTION:La versión en español titulada\, “Efectos de la Nutrición y la Microbiota Intestinal en pacientes con GIST” \nMartes 07 junio a las 19:00 Cdmx/20:00 Chile /19:00 Colombia /21:00 Ara. \nOrganizado por Fundación GIST México y AlianzaGIST. \nLa Sra. Berenice Carbajal-López es una estudiante de doctorado que tiene un Máster en Ciencias de la Salud con una tesis relacionada con el uso de tecnologías en la atención nutricional y psicológica de los pacientes con GIST. Durante esta presentación virtual\, la Sra. Carbajal-López describió los beneficios de una nutrición adecuada\, la relación entre la nutrición y los procedimientos quirúrgicos\, el vínculo entre el microbioma y el cáncer\, y el ejercicio. \n¿tienes preguntas?\nEnvíe un correo electrónico a Piga Fernández en pfernandez@liferaftgroup.org \nREGISTERAcerca del presentador: \nBerenice Carbajal-López\nFundación GIST México \nLa Sra. Berenice Carbajal-López es estudiante de doctorado y tiene una maestría en Ciencias de la Salud con una tesis relacionada con el uso de tecnologías en la atención nutricional y psicológica de pacientes con GIST. Es diplomada en Investigación Clínica y Bioestadística por el Instituto Nacional de Cancerología de México. Cuenta con experiencia en el cuidado de la salud de pacientes con GIST\, como Coordinadora de Atención al Paciente de 2014 a 2019 y como Directora Global desde 2020 en la Fundación GIST México. La Sra. Carbajal-López también ha colaborado en la redacción y revisión de artículos de investigación y capítulos de libros en el área de Oncología\, con ocho publicaciones a la fecha como autora principal y coautora en revistas indexadas y ha participado en congresos nacionales e internacionales como SMEO 2018\, ASCO 2019 y ESMO-GI 2017\, 2018\, 2019\, 2020\, 2021 y 2022.
URL:https://liferaftgroup.org/event/efectos-de-la-nutricion-y-la-microbiota-intestinal-en-pacientes-con-gist/
CATEGORIES:Education,Events,Webcast
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2022/06/Invitación-Alianza-GIST.jpg
ORGANIZER;CN="Piga Fern%C3%A1ndez":MAILTO:pfernandez@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220504T120000
DTEND;TZID=America/New_York:20220504T130000
DTSTAMP:20220406T120523Z
CREATED:20220406T120523Z
LAST-MODIFIED:20220406T120523Z
UID:10000229-1651665600-1651669200@liferaftgroup.org
SUMMARY:Effects of Nutrition and the Gut Microbiome in GIST Patients
DESCRIPTION:May 4th\, 12-1pm ET \nThe Life Raft Group is partnering with Fundación GIST México to present “Effects of Nutrition and Gut Microbiome in GIST Patients” to GIST patients and caretakers on May 4th at 12pm ET. Ms. Berenice Carbajal-López is a doctoral student who holds a Master in Health Sciences with a thesis related to the use of technologies in the nutritional and psychological care of patients with GIST. During this virtual presentation\, Ms. Carbajal-López will describe the benefits of proper nutrition\, the relationship between nutrition and surgical procedures\, the link between the microbiome and cancer\, and exercise. \nREGISTERAbout our Presenter: \nMs. Berenice Carbajal-López is a doctoral student who holds a master’s degree in Health Sciences with a thesis related to the use of technologies in the nutritional and psychological care of patients with GIST. She has a diploma in Clinical Research and Biostatistics at the National Cancer Institute in Mexico. She has experience in health care of GIST patients\, as Patient Care Coordinator from 2014 to 2019 and as Global Director since 2020 at Fundación GIST México. Ms. Carbajal-López has also collaborated in drafting and review of research articles and book chapters in the area of Oncology\, with eight publications to date as main author and co-author in indexed journals and has participated in national and international congresses such as SMEO 2018\, ASCO 2019\, and ESMO-GI 2017\, 2018\, 2019\, 2020\, 2021\, and 2022. \nThank you to our 2022 LRG webinar sponsors:
URL:https://liferaftgroup.org/event/nutrition-gut-microbiome-in-gist-patients/
CATEGORIES:Events,Webcast
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220406T120000
DTEND;TZID=America/New_York:20220406T130000
DTSTAMP:20220303T154212Z
CREATED:20220224T171146Z
LAST-MODIFIED:20220303T154212Z
UID:10000208-1649246400-1649250000@liferaftgroup.org
SUMMARY:Be an Informed Patient\, Part 2: GIST
DESCRIPTION:Be an Informed Patient\, Part 2: Navigating GIST NCCN Guidelines\nIn Part Two of our “Be an Informed Patient” series\, The Life Raft Group invites all GIST patients and caregivers to register for our NCCN Webinar taking place on April 6th at 12:00 pm ET. The National Comprehensive Cancer Network (NCCN) creates guidelines for different diseases to guide physicians in their clinical practice. Dr. Margaret von Mehren serves as the Chair of the sarcoma NCCN guidelines and has been a valuable player along with her medical colleagues on the evolution of the GIST guidelines over the years. In this webinar\, Dr. von Mehren will educate GIST patients and caregivers about these guidelines and provide some case study examples of how guidelines fit into the rubric of patient care. The Life Raft Group will also share insights on real world experiences among the patient community with the guidelines. \nREGISTERAbout our presenters:\nMargaret von Mehren\, MD\nFox Chase Cancer Center \nDr. Margaret von Mehren is Chief of Division of Sarcoma Medical Oncology at Fox Chase Cancer Center. Her research interest focuses in developmental therapeutics for sarcomas and gastrointestinal stromal tumors. She has led investigator-initiated trials\, collaborated with other investigators\, sarcoma clinical trials group\, as well as industry sponsored studies in the testing of novel agents in these rare diseases. Collaboration with the Phase I program and basic scientists at Fox Chase Cancer Center and elsewhere is key to identifying potential novel agents which may have a therapeutic benefit in the treatment of sarcomas. Dr. von Mehren’s work in sarcoma therapeutic development informs her role as the Associate Director of Clinical Research\, in which she oversees the development of investigator initiated clinical trials\, the scientific review and prioritization process of trials as well as conduct of clinical trials at Fox Chase Cancer Center. \n\nDenisse Montoya\, MS\nSenior Director\, Data Mgmt. & Research\, The Life Raft Group \nMs. Montoya has a wealth of experience in clinical evaluation projects including development of protocols\, case report forms\, informed consent\, surveys\, tissue repositories\, and study initiation She is proficient in data management\, preparing research for publication\, drug development\, clinical trial protocols\, onco-pathological/genetical dissemination\, and formulating research premises. As the Senior Director of Data Management & Research\, Denisse is the principal investigator for study protocol design and strategy of Patient Reported Outcomes (PRO). She has expertise in the analysis\, reporting\, and dissemination of PRO data and present scientific work. \nShe leads a dedicated staff in both patient support and in the identification of data trends that may lead to actionable information that will help patients coping with Gastrointestinal Stromal Tumor. In addition\, she takes the lead in collaborative research initiatives\, including maintaining relationships with potential partners\, contributing ongoing data\, and supporting hypothesis generation with the goal of increasing patient survival and advancing GIST research. \nDenisse holds a Bachelor of Science degree in Biology from Rowan University\, and a Master of Science Degree in Biomedical Science from Fairleigh Dickinson University
URL:https://liferaftgroup.org/event/be-an-informed-patient-part-2-gist/
CATEGORIES:Events,Webcast
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20211102T120000
DTEND;TZID=America/New_York:20211102T120000
DTSTAMP:20210930T145721Z
CREATED:20210930T145624Z
LAST-MODIFIED:20210930T145721Z
UID:10000172-1635854400-1635854400@liferaftgroup.org
SUMMARY:Caring for the Caregiver
DESCRIPTION:Caring for the Caregiver will focus on common challenges caregivers experience and how these challenges can often lead to burnout\, while also highlighting the impact of COVID-19. This webinar will provide caregivers with tools and ideas to help improve their physical and emotional wellbeing. To close\, caregivers will be given the opportunity to engage in a self-care practice that is quick enough to integrate into their routine. \nREGISTEROur Presenter\n\nAlyson Erardy\, LMSW\, Oncology Social Worker\nAlyson is an oncology social worker at CancerCare providing emotional and practical support services to people affected by cancer. During her time at CancerCare\, Alyson has developed a passion and expertise in working with the caregiver population by creating new workshops\, programs and groups to create a strong community.
URL:https://liferaftgroup.org/event/caring-for-the-caregiver/
CATEGORIES:Events,Webcast
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20211007T140000
DTEND;TZID=America/New_York:20211007T140000
DTSTAMP:20210913T194922Z
CREATED:20210913T193635Z
LAST-MODIFIED:20210913T194922Z
UID:10000170-1633615200-1633615200@liferaftgroup.org
SUMMARY:Conversations with the LRG: Meet our International GIST Mentors!
DESCRIPTION:Join us Thursday\, October 7th at 2pm ET for our next “Conversations with the LRG”. In this presentation\, our Global GIST Mentors will discuss the role of the GIST Mentor and how one can assist you on your GIST journey. \nYou will learn why each of these patients/caregivers chose to volunteer as a GIST Mentor and more about them and their own journey with GIST. \nThere will be a 15-minute Q&A at the end of the presentation. \nYou may submit questions in advance to Diana Nieves\, Senior Director of Outreach and Engagement: dnieves@liferaftgroup.org \nYou will also be able to submit questions in the chat feature during the presentation for the Q&A. \nREGISTER
URL:https://liferaftgroup.org/event/conversations-with-the-lrg-meet-our-international-gist-mentors/
CATEGORIES:Events,Webcast
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/09/lrg-conver-Int-mentors.png
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20210715T130000
DTEND;TZID=America/New_York:20210715T130000
DTSTAMP:20210712T165243Z
CREATED:20210619T001422Z
LAST-MODIFIED:20210712T165243Z
UID:10000145-1626354000-1626354000@liferaftgroup.org
SUMMARY:POSTPONED: Conversations with the LRG: GIST Mentors
DESCRIPTION:POSTPONED – NEW DATE TBD\nOn Thursday\, July 15th at 1pm ET\, we are presenting another session of “Conversations with the LRG”. In this presentation\, another group of GIST Mentors will discuss the role of the Mentor and how one can assist you on your GIST journey. Learn more about why each of these patients/caregivers volunteer as a GIST Mentor and learn more about their personal journeys with GIST. There will be a 15-minute Q & A at the end of the presentation. \nYou can submit question were in advance to Mary Garland\, Communications Director: mgarland@liferaftgroup.org. Questions can also be submitted during the presentation. \nREGISTER
URL:https://liferaftgroup.org/event/conversations-lrg-gist-mentors/
CATEGORIES:Events,Support Group,Webcast
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2021/06/Mentors-4.jpg
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20201026T120000
DTEND;TZID=America/New_York:20201026T120000
DTSTAMP:20201022T161543Z
CREATED:20201002T183013Z
LAST-MODIFIED:20201022T161543Z
UID:10000089-1603713600-1603713600@liferaftgroup.org
SUMMARY:Women in Sarcoma: Case Presentations
DESCRIPTION:Case Presentations\nOctober 26\, 12PM ET \nPlease join us for the second webcast of our Women in Sarcoma series. The Life Raft Group has developed the Women in Sarcoma program in recognition of the many women sarcoma specialists that engage with the sarcoma patient community and focus on educating and advocating on behalf of those living with sarcoma. \nThis panel features three women sarcoma experts presenting unique case studies that they have encountered in their practices. Panelists will interact with each other about these case studies\, and participants will gain meaningful insight into how these experts diagnose and treat sarcoma patients\, and how they collaborate with colleagues toward the goal of achieving positive outcomes for these challenging cases. \n\nIf you have questions about this panel or about registration\, please contact Sara Rothschild\, VP Program Services \n\nPlease join us for this interactive session with women leading the field of sarcoma!\n\nREGISTEROur Panel of Experts\n \n\nVaia Florou\, MD\nOncologist\nUniversity of Utah\nHuntsman Cancer Center\n \n\nCiara Kelly\, MBBCh BAO\nOncologist\nMemorial Sloan Kettering\nCancer Center\n \n\n\nSandra R. Brackert\, NP\nNurse Practitioner\nRonald Reagan UCLA\nMedical Center
URL:https://liferaftgroup.org/event/women-in-sarcoma-case-presentations/
CATEGORIES:Education,Research,Webcast
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2020/10/Women-In-Sarcoma-2.jpg
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20201020T120000
DTEND;TZID=America/New_York:20201020T120000
DTSTAMP:20200916T162445Z
CREATED:20200909T152729Z
LAST-MODIFIED:20200916T162445Z
UID:10000087-1603195200-1603195200@liferaftgroup.org
SUMMARY:LRG Webcast: Genetics 101
DESCRIPTION:With the alphabet soup of terms and genes that cancer patients tend to hear during diagnosis\, it takes some time to really understand what these terms mean. \nIn her Genetics 101 webcast\, Dr. Raygada will unravel the DNA terms and seek to empower patients by helping them understand the genetic basis of their conditions so that they may decrease the risks associated with the mutations and tumors they carry. \nREGISTERAbout the presenter\nMargarita Raygada\, PhD\, Oncology Genetic Counselor \nDr. Raygada’s doctorate degree is in Medical Science from the Uniformed Services University of the Health Sciences/Naval Hospital\, Bethesda\, Maryland. Her Master’s degree is in Human Genetics and Genetic Counseling\, Georgetown University Hospital (GUH) in Washington\, D.C.\, with two post-doctoral fellowships: Molecular Biology at The Johns Hopkins Hospital in Baltimore\, and Cancer Genetics at GUH. Research Focus: Cancer genetics is my passion. I am interested in delineating the genetic changes in rare tumors and identifying associated phenotypes that may lead to common pathways and therefore improved outcomes for cancer patients. But most importantly I hope to empower patients by helping them understand the genetic basis of their conditions\, and by educating them on how they can use this information to manage their cancer so that they may decrease the risks associated with the mutations and tumors they carry.
URL:https://liferaftgroup.org/event/lrg-webcast-genetics-101/
CATEGORIES:Education,Webcast
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2020/08/raygada-event.jpg
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20200826T150000
DTEND;TZID=America/New_York:20200826T150000
DTSTAMP:20200630T191338Z
CREATED:20200616T144916Z
LAST-MODIFIED:20200630T191338Z
UID:10000072-1598454000-1598454000@liferaftgroup.org
SUMMARY:Understanding the Link Between Pheo\, Para\, and GIST
DESCRIPTION:REGISTERThis hour-long webinar presented by The Pheo Para Alliance will provide an opportunity for the community to ask questions live or submit them beforehand. \nThis Live Webinar Series\, made possible through an educational grant by Progenics\, gives patients and their families an opportunity to tune in and interact with experts on a variety of pheo para topics. \nThe information discussed during this webinar is for informational purposes only\, and does not take the place of medical advice from your doctor(s) who know your medical history and current situation. \nAbout the Presenter:\nDr. Jason Sicklick\nAssociate Professor of Surgery\, Division of Surgical Oncology @UC San Diego Health System\nJason Sicklick\, MD\, is a general surgeon and surgical oncologist who specializes in treating hepatobiliary diseases and sarcomas\, including gastrointestinal stromal tumors (GIST). He has a special interest in abdominal and retroperitoneal sarcomas\, primary liver tumors and colorectal and neuroendocrine cancers that have metastasized to the liver. Read full bio here. \n\n\nSee other webcasts by Dr. Sicklick here:\nRare GIST Subtypes\nUnderstanding the Concept of “Precision Oncology”\nUpdates on the Temozolomide Trial\nNew Insights into Gene Fusion\n\n\n\nModerated by:\n\n\nDebra Melikian\nPatient Advocate\nDebra was thrust into the world of GISTS and pheo para when her husband and son were diagnosed. She is a mother on a mission. She and Dr. Sicklick have a unique relationship that powers both of their missions forward to help all patients. \n\nYou can read more about Debra:\nPatient Advocate’s Story Unfolds in RARE Revolution Magazine
URL:https://liferaftgroup.org/event/understanding-the-link-between-pheo-para-and-gist/
CATEGORIES:Education,Events,Webcast
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2020/06/pheo-para-webinar.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20200616T120000
DTEND;TZID=America/New_York:20200616T130000
DTSTAMP:20200515T142935Z
CREATED:20200512T205723Z
LAST-MODIFIED:20200515T142935Z
UID:10000066-1592308800-1592312400@liferaftgroup.org
SUMMARY:LRG Webcast Series: GIST: How to Understand your Pathology Report
DESCRIPTION:In this webinar\, we will be discussing how to interpret your pathology report. We will cover interpretation of all parts of a pathology report\, beginning with understanding the final diagnosis and diagnostic comment. We will then review the results and significance of performed ancillary testing\, including immunohistochemistry\, prognostic biomarker testing\, and molecular testing. We will end by discussing how the aforementioned pathology report data affects clinical surgical and therapeutic decision-making. \nREGISTERAbout the Presenters:\nKelsey McHugh\, M.D.\nGastrointestinal\, Hepatic\, and Pancreatobiliary Pathology Fellow\nRobert J. Tomsich Pathology & Laboratory Medicine Institute\nCleveland Clinic \nKelsey McHugh\, MD is a board certified anatomic and clinical pathologist\, with cytopathology subspecialty certification\, who is currently completing gastrointestinal\, hepatic\, and pancreatobiliary pathology subspecialty training. She anticipates graduating from the Cleveland Clinic Gastrointestinal\, Hepatic\, and Pancreatobiliary Pathology Fellowship in June 2020\, after which she will remain at the Cleveland Clinic as a staff pathologist beginning July 2020.
URL:https://liferaftgroup.org/event/understand-your-pathology-report/
CATEGORIES:Education,Webcast
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20200402T130000
DTEND;TZID=America/New_York:20200402T130000
DTSTAMP:20200327T132806Z
CREATED:20200327T130818Z
LAST-MODIFIED:20200327T132806Z
UID:10000058-1585832400-1585832400@liferaftgroup.org
SUMMARY:Conversations with the Life Raft Group LIVE
DESCRIPTION:Save the Date!\nPlease join us on Thursday\, April 2nd at 1 pm for our first online program Conversations with the Life Raft Group. \nDesigned to be a source for connection and information for the LRG community\, these presentations will address topics of concern for patients and caregivers during the COVID-19 crisis. \nOur first conversation will be with our Executive Director\, Norman Scherzer. As many of you know\, in previous careers Norman worked for the Centers for Disease Control (CDC)\, and served as the Assistant Commissioner of Health for New York City\, guiding the public through major health crises such as the AIDS epidemic\, Swine flu and many other outbreaks. Norman will discuss strategies for coping with COVID-19. \nViewers will be able to ask questions during the session. \nJoin the conversation
URL:https://liferaftgroup.org/event/conversations-lrg-scherzer/
LOCATION:The Life Raft Group\, 155 US Highway 46\, Ste. 202\, Wayne Plaza II\, Wayne\, NJ\, 07470\, United States
CATEGORIES:Events,Webcast
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20200306T120000
DTEND;TZID=America/New_York:20200306T120000
DTSTAMP:20200228T202614Z
CREATED:20200228T202106Z
LAST-MODIFIED:20200228T202614Z
UID:10000056-1583496000-1583496000@liferaftgroup.org
SUMMARY:Webinar - New Treatment Options for Rare Diseases in the Soft Tissue - Day 2
DESCRIPTION:In honor of Rare Disease in the Soft Tissue Day\, OncLive is hosting webinars on March 5 and March 6 at 12pm EST about soft tissue sarcoma. GIST is a soft tissue sarcoma. \nDr. Neeta Somaiah \nDr. Neeta Somaiah will present on March 6. She is an Associate Professor and the Director of Clinical Sarcoma Research\, Department of Sarcoma Medical Oncology\, UT MD Anderson Cancer Center. \nThe webinar will focus on: \n\nOverview of diagnosis and molecular testing\nCurrent treatment algorithms for soft tissue sarcoma\nNew therapeutic option for PDGFRA+ GIST\nFuture directions in management\n\nTo register for the March 6 webinar: \n\nRegister
URL:https://liferaftgroup.org/event/webinar-new-treatment-options-for-rare-diseases-in-the-soft-tissue-day-2/
CATEGORIES:Education,Webcast
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20200305T120000
DTEND;TZID=America/New_York:20200305T120000
DTSTAMP:20200228T201452Z
CREATED:20200228T201100Z
LAST-MODIFIED:20200228T201452Z
UID:10000055-1583409600-1583409600@liferaftgroup.org
SUMMARY:Webinar - New Treatment Options for Rare Diseases in the Soft Tissue - Day 1
DESCRIPTION:In honor of Rare Disease in the Soft Tissue Day\, OncLive is hosting webinars on March 5 and March 6 at 12pm EST about soft tissue sarcoma. GIST is a soft tissue sarcoma. \nDr. Jonathan Trent \nJonathan Trent\, MD\, PhD\, is a Professor of Medicine\, Associate Director of Clinical Research\, Director of the Sarcoma Program at Sylvester Comprehensive Cancer Center\, University of Miami\, Miller School of Medicine. \nDr. Trent is a recognized GIST expert. \nThe webinar will focus on: \n\nOverview of diagnosis and molecular testing\nCurrent treatment algorithms for soft tissue sarcoma\nNew therapeutic option for PDGFRA+ GIST\nFuture directions in management\n\nTo register for the March 5 webinar: \n\nRegister
URL:https://liferaftgroup.org/event/webinar-new-treatment-options-for-rare-diseases-in-the-soft-tissue/
CATEGORIES:Education,Webcast
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20191015T130000
DTEND;TZID=America/New_York:20191015T140000
DTSTAMP:20191018T140257Z
CREATED:20191004T141629Z
LAST-MODIFIED:20191018T140257Z
UID:10000046-1571144400-1571148000@liferaftgroup.org
SUMMARY:GIST CHAT 101: Learn the Basics
DESCRIPTION:GIST CHAT 101: Learn the Basics\n\nGIST CHAT is our new ListServ replacement launching on October 15th.\n\nDuring the webinar we will show you how to:\n\n\nRegister\nPost\nReply\nSearch\n…and a few other helpful tips and tricks\n\n\n\n\n\n\nWatch the Webinar
URL:https://liferaftgroup.org/event/gist-chat-101-learn-the-basics/
CATEGORIES:Education,Webcast
ORGANIZER;CN="The Life Raft Group":MAILTO:liferaft@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20191007
DTEND;VALUE=DATE:20191008
DTSTAMP:20191007T204413Z
CREATED:20190918T160922Z
LAST-MODIFIED:20191007T204413Z
UID:10000045-1570406400-1570438800@liferaftgroup.org
SUMMARY:LRG Webcast Series: Dental Healthcare in GIST
DESCRIPTION:Dr. Nikhil Guhagarkar will be discussing the dental and oral complications of drugs used in GIST treatment and treatment of these side effects. He will also speak about methods of maintaining good oral hygiene. This video will be prerecorded and released on October 7th and Dr. Guhagarkar will answer questions that you’ve submitted. Please submit questions ahead of time\, you may do so here: \n \nListen to the Webcast\nDr. Guhagarkar is a GISTer and active GIST advocate. He is a City Chapter Leader for Friends of Max India\, a Board Member of SPAEN\, the author of a Friends Of Max publication titled\, “A Guide to Nutrition and Holistic Way of Living with GIST” and participated as an expert in the LRG Webcast Series with “Nutrition and Healthy Living with GIST.” \nAbout the Presenter:\nDr. Nikhil Guhagarkar is an Oral And Maxillofacial Surgeon and Dentist and has over 21 years of experience in his field. Dr. Guhagarkar practices at the Guhagarkar Dental Care Centre in Vileparle\, Mumbai\, India. He completed his BDS from Government Dental College & Hospital\, Mumbai in 1994 and MDS – Oral & Maxillofacial Surgery from Nair Hospital Dental College (NHDC)\, Mumbai in 1998. He is a member of Indian Dental Association and Indian Association of Oral Surgery. \n\nTechnical Tips to Join Meeting:\n\nThis is a recorded presentation which will be released on October 7th. Further instructions will be forthcoming. Dr. Guhagarkar will answer your questions. If you wish to submit questions\, please do so here: QUESTIONS\n\n\nDisclaimer:\nWe cannot provide individual medical advice during this webcast. Information provided in this webcast is not intended as a substitute for your physician’s guidance and care.
URL:https://liferaftgroup.org/event/lrg-webcast-series-dental-healthcare/
CATEGORIES:Events,Webcast
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2019/09/guhagarkar-dental.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20190911T140000
DTEND;TZID=America/New_York:20190911T150000
DTSTAMP:20190917T152156Z
CREATED:20190725T201333Z
LAST-MODIFIED:20190917T152156Z
UID:10000037-1568210400-1568214000@liferaftgroup.org
SUMMARY:LRG Webcast Series: Updates on the Temozolomide Trial
DESCRIPTION:The Temozolomide Trial for SDH-deficient GIST Patients\nGIST is becoming increasingly diverse. SDH-deficient GIST and paragangliomas often occur in adolescents and young adults. Since these SDH mutations are germline\, multiple generations of family members are affected.\n\nDr. Jason Sicklick of Moores Cancer Center at the University of California San Diego will present a webcast detailing the Phase II study of Temozolomide (TMZ) in advanced SDH-mutant/deficient GIST\, a new study available to patients with SDH-deficient GIST.\n\n\nListen to the Webinar\n\nAbout the Presenter:\nJason K. Sicklick\, MD\, FACS\, is an Associate Professor of Surgery\, Division of Surgical Oncology; and Co-Director\, Biorepository and Tissue Technology Shared Resource\, Moores Cancer Center at the University of California\, San Diego\, UC San Diego Health Sciences. \n  \n  \n  \n\nTechnical Tips to Join Meeting:\n\nThis is a web-only meeting\, accessed only by your internet connection. Participants are encouraged to use the web link automatically provided after registration and to use computer speakers (and/or headsets if available) to hear the audio portion of the meeting. Please log in at least ten minutes prior to the start of the webinar.\nPlease ensure you have an updated version of Adobe Flash Player (Google Chrome has Flash built-in).\nIf you are using a mobile device or tablet\, in order to view and hear the conference\, download the ReadyTalk App from your App store.\n\n\nDisclaimer:\nWe cannot provide individual medical advice during this webcast. Information provided in this webcast is not intended as a substitute for your physician’s guidance and care.
URL:https://liferaftgroup.org/event/lrg-webcast-series-updates-on-the-temozolomide-trial/
CATEGORIES:Education,Webcast
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2019/07/sicklick-temozolomide-webcast.jpg
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20190909T120000
DTEND;TZID=America/New_York:20190909T130000
DTSTAMP:20190911T172010Z
CREATED:20190816T164240Z
LAST-MODIFIED:20190911T172010Z
UID:10000040-1568030400-1568034000@liferaftgroup.org
SUMMARY:LRG Webcast Series: Medicare 101
DESCRIPTION:Medicare 101: An Overview of the A\, B\, C\, and Ds of Medicare\n\nThe A B C’s of Medicare: Everything you need to know\nWhat is Medicare\, am I eligible and how do I enroll?\nWhat does Medicare cover?\nHow much does it cost?\nWhich path should I choose – Medigap Supplement Insurance or Medicare Advantage Plan?\nHow about Prescription Drug coverage?\nFinancial Assistance Programs to help with Medicare costs\n\nRECAP HERE\n\nThere will be a 15 minute Q & A at the end of the presentation. \nAbout the Presenter:\nKathy Sarmiento has been working for the Alliance for Aging for fifteen years.  The Alliance for Aging is the non-profit Area Agency on Aging for Miami-Dade and Monroe Counties in Florida. In her role as the SHINE Liaison\, Kathy manages the all aspects of the free SHINE Medicare counseling program. Kathy also manages the Benefits Enrollment Center at the Alliance for Aging. The Benefits Enrollment Center is a grant from the National Council on Aging to provide five core benefits to financially needy Medicare beneficiaries. Those five core benefits are Medicaid\, food assistance\, assistance paying for Medicare\, Prescription Drug assistance and assistance paying the light bill. \n\n\nTechnical Tips to Join Meeting:\n\nThis is a web-only meeting\, accessed only by your internet connection. Participants are encouraged to use the web link automatically provided after registration and to use computer speakers (and/or headsets if available) to hear the audio portion of the meeting. Please log in at least ten minutes prior to the start of the webinar.\nPlease ensure you have an updated version of Adobe Flash Player (Google Chrome has Flash built-in).\nIf you are using a mobile device or tablet\, in order to view and hear the conference\, download the ReadyTalk App from your App store.\n\n\nDisclaimer:\nWe cannot provide individual medical advice during this webcast. Information provided in this webcast is not intended as a substitute for your physician’s guidance and care.
URL:https://liferaftgroup.org/event/lrg-webcast-series-medicare-101/
CATEGORIES:Webcast
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2019/08/sarmiento-medicare-webcast.jpg
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20190820T160000
DTEND;TZID=America/New_York:20190820T170000
DTSTAMP:20190906T143456Z
CREATED:20190812T150929Z
LAST-MODIFIED:20190906T143456Z
UID:10000038-1566316800-1566320400@liferaftgroup.org
SUMMARY:Informational Webinar on Avapritinib
DESCRIPTION:Informational Webinar on Avapritinib Clinical Trial Program in GIST – presented by Blueprint Medicines\n\nRECAP HERE\n\nTuesday\, August 20\, Blueprint Medicines is working with The Life Raft Group and GIST Support International to host a webinar providing a data update from the registration-enabling NAVIGATOR trial of the investigational treatment avapritinib in patients with PDGFRA Exon 18 mutant GIST and fourth-line GIST. These data were presented at the American Society of Clinical Oncology (ASCO) Annual Meeting on June 1\, 2019. Please see here for the press release summarizing the data and the slides presented at ASCO. \nThe webinar will be held on August 20th beginning at 4:00 p.m.\, Eastern Time (1:00 p.m.\, Pacific Time).  Maria Roche\, Senior Medical Director at Blueprint Medicines\, will provide an overview of the data presented at ASCO and an update on ongoing or planned studies in multiple lines of GIST treatment. We invite patients with GIST and their families to participate in this informational webinar – see details to access the webinar below. \nPlease submit suggested questions that you would like to be addressed during the webinar to patients@blueprintmedicines.com by Thursday\, August 15th.
URL:https://liferaftgroup.org/event/informational-webinar-on-avapritinib/
CATEGORIES:Research,Webcast
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2019/08/blueprint-medicines-event.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20190503T130000
DTEND;TZID=America/New_York:20190503T140000
DTSTAMP:20190507T155606Z
CREATED:20190418T143423Z
LAST-MODIFIED:20190507T155606Z
UID:10000019-1556888400-1556892000@liferaftgroup.org
SUMMARY:LRG Webcast: Genetic Testing and SDHx Mutations
DESCRIPTION:Genetic Testing and SDHx Mutations:\nWhat do they have to do with PGL/GIST/Pheos?\nLISTEN TO WEBCAST\n\nThis webcast will highlight how SDHx mutations impact risks for paraganglioma\, pheochromocytomas\, and GIST. We’ll discuss why genetic testing is helpful for any diagnosis of GIST\, paraganglioma or pheochromocytoma\, and what the SDHx genes have to do with tumor risk. We’ll discuss what types of tumors are associated with mutations in the SDHx genes\, and how different SDHx genes (SDHA\, SDHB\, SDHC\, SDHD\, SDHAF2) have different tumor and location risks. This webcast will highlight recommendations for screening and current research initiatives for SDHx and paragangliomas.\n\nAbout the Presenter:\nSamantha Greenberg is a board-certified genetic counselor who oversees the SDHx clinic and specializes in paraganglioma research at Huntsman Cancer Institute. She graduated with a Master’s Degree in Human Genetics and a Master’s of Public Health from the University of Michigan\, and a Bachelor’s Degree in neuroscience from the same university. Prior to her graduate training\, she taught 7th grade science in Tulsa\, Oklahoma\, through Teach for America. At Huntsman\, Samantha also continues public health genomics work with the Department of Health focused on rural clinician education and programming. She has worked to expand cancer genetics’ role in genitourinary cancers\, and oversees the VHL Clinical Care Center.\n\nTechnical Tips to Join Meeting:\n\nThis is a web only meeting\, accessed only by your internet connection. Participants are encouraged to use the web link automatically provided after registration and to use computer speakers (and/or headsets if available) to hear the audio portion of the meeting. Please log in at least ten minutes prior to the start of the webinar.\nPlease ensure you have an updated version of Adobe Flash Player (Google Chrome has Flash built in).\nIf you are using a mobile device or tablet\, in order to view and hear the conference\, download the ReadyTalk App from your App store.\n\nDisclaimer:\nWe cannot provide individual medical advice during this webcast. Information provided in this webcast is not intended as a substitute for your physician’s guidance and care.
URL:https://liferaftgroup.org/event/lrg-webcast-genetic-testing-and-sdhx-mutations/
CATEGORIES:Education,Events,Webcast
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2019/04/greenberg-event.jpg
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20190417T120000
DTEND;TZID=America/New_York:20190417T130000
DTSTAMP:20190730T152255Z
CREATED:20190404T133838Z
LAST-MODIFIED:20190730T152255Z
UID:10000022-1555502400-1555506000@liferaftgroup.org
SUMMARY:LRG Webcast: GI Stromal Tumors
DESCRIPTION:GI Stromal Tumors: A PatholoGIST’s Point of View – Mutational Testing in GIST\nLISTEN TO THE WEBCAST\n\nMutational Testing in GIST is a vital component for survival\, especially as cancer treatment becomes more individualized. In this webcast\, Dr. Chris Corless\, Director and Chief Medical Officer of the Knight Diagnostic Laboratories at OHSU\, demystifies the process by which pathologists make the diagnosis of GIST and assess the risk of recurrence. Dr. Corless will discuss how tumor DNA is extracted and analyzed from these tumors\, and how mutations detected in tumor DNA influences treatment decisions.\n\nThere will be a 15 minute Q & A at the end of his presentation.\n\nAbout the Presenter:\n\n\nAfter undergraduate studies at the Univ. of California\, Berkeley\, Dr. Corless received his MD and PhD degrees from Washington University\, St. Louis. He did his residency training in Anatomic Pathology at the Brigham & Women’s Hospital\, Boston\, where he also completed fellowship training in GI Pathology and GU Pathology. He joined the faculty of Oregon Health & Science University in 1994 and was promoted to Professor in 2004. During his career he has served as the residency program director in Pathology and medical director of surgical pathology for OHSU Hospital. He is presently the Director and Chief Medical Officer of the Knight Diagnostic Laboratories at OHSU. An author on over 260 publications\, Dr. Corless has expertise in the application of molecular diagnostics to the classification and prognostication of solid tumors. \n\n\nTechnical Tips to Join Meeting:\n\nThis is a web only meeting\, accessed only by your internet connection. Participants are encouraged to use the web link automatically provided after registration and to use computer speakers (and/or headsets if available) to hear the audio portion of the meeting. Please log in at least ten minutes prior to the start of the webinar.\nPlease ensure you have an updated version of Adobe Flash Player (Google Chrome has Flash built in).\nIf you are using a mobile device or tablet\, in order to view and hear the conference\, download the ReadyTalk App from your App store.\n\nDisclaimer:\nWe cannot provide individual medical advice during this webcast. Information provided in this webcast is not intended as a substitute for your physician’s guidance and care.
URL:https://liferaftgroup.org/event/lrg-webcast-gi-stromal-tumors-mutational-testing-in-gist/
CATEGORIES:Education,Events,Research,Webcast
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2019/04/Corless-Webcast-alt.jpg
ORGANIZER;CN="The Life Raft Group":MAILTO:liferaft@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20190313T120000
DTEND;TZID=America/New_York:20190313T130000
DTSTAMP:20190603T145758Z
CREATED:20190306T165005Z
LAST-MODIFIED:20190603T145758Z
UID:10000014-1552478400-1552482000@liferaftgroup.org
SUMMARY:LRG Webcast: The Biology of GIST
DESCRIPTION:What Every Patient Needs to Know\nWondering what in the world Gastrointestinal Stromal Tumor (GIST) is? \nJoin longtime friend of the Life Raft Group and LRG Science Team member\, Dr. David Josephy\, as he presents the basics of cell biology in cancer\, focusing on GIST. \nPresented in an easy-to-understand way\, Dr. Josephy unravels the mystery behind the differences between sarcomas and carcinomas; protein expression and the role of immunohistochemistry in diagnosis; the significance of mutations in the KIT and PDGFRA genes and the mechanism of action of tyrosine kinase inhibitor drugs. \nSound complicated? Dr. Josephy’s approachable style will decode the terminology and concepts for you\, whether you are newly diagnosed or are a long-term survivor. \nThere will be at 15 min Q&A at the end of his presentation. \n\nListen to the Webcast\n\nAbout the Presenter:\nDavid Josephy is a Professor of Molecular and Cellular Biology at the University of Guelph\, where he has taught for more than 35 years. He has been President of GIST Sarcoma Life Raft Group Canada (LRGC) since its inception in 2008. \nIn 2010\, David spent a sabbatical term working in the laboratory of Dr. Jonathan Fletcher\, a leading GIST researcher at Brigham and Women’s Hospital in Boston. \nDavid is a member of the Science Team of The Life Raft Group (USA) and collaborates with GIST patient support groups around the world. His research interests are in the field of Molecular Toxicology. He is particularly interested in the scientific basis for development of new small-molecule drugs for GIST. \n\n\nTechnical Tips to Join Meeting:\n\nThis is a web only meeting\, accessed only by your internet connection. Participants are encouraged to use the web link automatically provided after registration and to use computer speakers (and/or headsets if available) to hear the audio portion of the meeting. Please log in at least ten minutes prior to the start of the webinar.\nPlease ensure you have an updated version of Adobe Flash Player (Google Chrome has Flash built in).\nIf you are using a mobile device or tablet\, in order to view and hear the conference\, download the ReadyTalk App from your App store.\n\n\nDisclaimer:\nWe cannot provide individual medical advice during this webcast. Information provided in this webcast is not intended as a substitute for your physician’s guidance and care.
URL:https://liferaftgroup.org/event/lrg-webcast-the-biology-of-gist/
CATEGORIES:Education,Events,Webcast
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2018/08/feature-lrg-webcast-series-rev.jpg
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20180905T120000
DTEND;TZID=America/New_York:20180905T130000
DTSTAMP:20190319T185338Z
CREATED:20180827T180349Z
LAST-MODIFIED:20190319T185338Z
UID:10000007-1536148800-1536152400@liferaftgroup.org
SUMMARY:LRG Webcast: What is SDH...
DESCRIPTION:How Is It Related to Cancer\, and What Can Be Done About It?\nSDH is a protein that is based in the mitochondria. Its loss causes a major energy and metabolic crisis. Despite this\, some types of cells can ‘benefit’ from the loss of SDH and continue to grow uncontrollably and generate tumors. \nIdentifying metabolic enzymes as molecular drug targets that are uniquely essential for the survival of SDH-deficient cells is a key first step in the development of new therapies for SDH-deficient tumors. Some of these druggable enzymatic targets are being actively pursued. \nDr. Eyal Gottlieb will break down the biology of cells and discuss metabolism and growth during cancer formation. \nThis webcast is geared for patients and families with SDH-deficient GIST and other tumors. \nThere will be at 15 min Q&A at the end of his presentation. \nView the Webcast\n  \nTo submit questions that could potentially be addressed during the webcast\, please submit to Sara Rothschild at srothschild@liferaftgroup.org by September 1. \nFor some background on cancer metabolism\, review this document. \nPresenter\n\n\n\nDr. Eyal Gottlieb\nLaura and Isaac Perlmutter Chair of Cancer Research\, Faculty of Medicine\nTechnion – Israel Institute of Technology\nHaifa\, Israel \n\n\n\nTechnical Tips to Join Meeting:\n\nThis is a web only meeting\, accessed only by your internet connection. Participants are encouraged to use the web link automatically provided after registration and to use computer speakers (and/or headsets if available) to hear the audio portion of the meeting. Please log in at least ten minutes prior to the start of the webinar.\nPlease ensure you have an updated version of Adobe Flash Player (Google Chrome has Flash built in).\nIf you are using a mobile device or tablet\, in order to view and hear the conference\, download the ReadyTalk App from your App store.
URL:https://liferaftgroup.org/event/webcast-what-is-sdh/
CATEGORIES:Events,Webcast
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2018/08/feature-lrg-webcast-series-rev.jpg
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
END:VCALENDAR