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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261103T180000
DTEND;TZID=America/New_York:20261103T193000
DTSTAMP:20260505T151148Z
CREATED:20260105T170043Z
LAST-MODIFIED:20260505T151148Z
UID:10001036-1793728800-1793734200@liferaftgroup.org
SUMMARY:Virtual GIST Patient Support Group
DESCRIPTION:The Patient Support Group meets via Zoom on the first and third Tuesday of each month from 6:00 PM – 7:30 PM ET (NYC Time). \nWe will start each group with a “Round Robin” in which anyone who feels like updating the group on how they are doing/feeling can do so. There is no pressure to speak if you prefer to simply listen. Once we complete our updates\, the group will have the opportunity for organic conversation to develop in relation to our emotional experiences around GIST\, and other challenges that we may be experiencing as a community. \nIn order to be able to moderate a flowing discussion\, the group will be capped at 15 people each month. The first 15 people into the Zoom waiting room will participate. Keep in mind that since the group is now open\, you don’t necessarily have to attend each month to participate. \nIf you wish to attend\, please email supportgroups@liferaftgroup.org for the Zoom link for the meeting.
URL:https://liferaftgroup.org/event/virtual-gist-patient-support-group-2023-first-2/2026-11-03/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/01/GISTer-Support-Group-2022-1.png
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261104T130000
DTEND;TZID=America/New_York:20261104T140000
DTSTAMP:20261008T203148Z
CREATED:20261008T203148Z
LAST-MODIFIED:20261008T203148Z
UID:10001109-1793797200-1793800800@liferaftgroup.org
SUMMARY:Virtual GIST Caregiver Support Group
DESCRIPTION:Monthly Virtual Support Group for GIST Caregivers\nHeld on the first Wednesday of the month @ 1PM ET \nLRG hosts a monthly virtual support group for the caregivers. We will share our stories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling during this journey as a caregiver. The group will be a safe space not only to feel supported by your fellow caregivers\, but also a place to share our own coping mechanisms\, concerns\, successes and trials. All information shared will be kept confidential. \nIf you wish to attend\, please email supportgroups@liferaftgroup.org for the Zoom link for the meeting. \nAbout the Group Leader:\nMarlene Nei\, GIST Caregiver\nAs an active member of The Life Raft Group\, Marlene advocates for the needs of the caregiver community because she feels they are an underrepresented group. It is her mission to advocate for the entire GIST community making sure they are equipped with the appropriate resources on their GIST journey.
URL:https://liferaftgroup.org/event/virtual-gist-caregiver-support-group-2023-2-2/2026-11-04/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2023/05/caregiver-sg-2023.jpg
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261109T120000
DTEND;TZID=America/New_York:20261109T120000
DTSTAMP:20260924T173830Z
CREATED:20260917T210217Z
LAST-MODIFIED:20260924T173830Z
UID:10001670-1794225600-1794225600@liferaftgroup.org
SUMMARY:Understanding Metabolic Changes in SDH-Deficient GIST
DESCRIPTION:REGISTERJoin The Life Raft Group on November 9 at 12:00 PM for “Understanding Metabolic Changes in SDH-Deficient GIST” with Dr. Matthew Hemming of UMass Chan Medical School. This interactive\, patient-focused webinar will explore what makes SDH-deficient GIST different and how changes in the way tumor cells produce and use energy may help them grow and survive. Dr. Hemming will share exciting new research on these tumors and possible new treatment approaches. Patients will have the opportunity to ask questions and engage directly with Dr. Hemming throughout the discussion. \nThese webinars are for informational purposes only and should not replace professional medical advice. Always consult your healthcare provider before making any treatment or lifestyle changes. \nAbout Our Presenter:\n \nDr. Matthew Hemming\nUMass Chan Medical School\n \nMatthew Hemming\, MD\, PhD\, is an assistant professor of medicine at UMass Chan Medical School\, practicing sarcoma medical oncologist\, and principal investigator of the SarcomaLab. He received his BS from UC San Diego\, PhD from Harvard University\, and MD from Harvard Medical School. He completed internal medicine residency at Massachusetts General Hospital and Hematology/Oncology fellowship at Dana-Farber Cancer Institute. He has focused his clinical practice and laboratory work on sarcoma and GIST\, with the goal to improve diagnostic and treatment strategies through basic and translational research. \nThank You to Our Sponsors:
URL:https://liferaftgroup.org/event/understanding-metabolic-changes-in-sdh-deficient-gist/
CATEGORIES:Education,Events,Webcast
ORGANIZER;CN="Rebecca Pauley":MAILTO:rpauley@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261109T180000
DTEND;TZID=America/New_York:20261109T180000
DTSTAMP:20260605T133628Z
CREATED:20240528T163645Z
LAST-MODIFIED:20260605T133628Z
UID:10001262-1794247200-1794247200@liferaftgroup.org
SUMMARY:Virtual Florida Support Group
DESCRIPTION:Florida Support Group\nZoom\, 2nd Monday of the Month – 6pm ET\nOur moderator is a fellow GISTER/LRG Member from Florida diagnosed with GIST in late 2016.\nIf you wish to attend\, please email supportgroups@liferaftgroup.org for the Zoom link for the meeting.
URL:https://liferaftgroup.org/event/virtual-florida-support-group-2-2-2/2026-11-09/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2022/09/florida-support-group.jpg
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261110T120000
DTEND;TZID=America/New_York:20261110T120000
DTSTAMP:20261015T172934Z
CREATED:20261015T172934Z
LAST-MODIFIED:20261015T172934Z
UID:10001737-1794312000-1794312000@liferaftgroup.org
SUMMARY:AI as a Tool for Patients & Caregivers
DESCRIPTION:REGISTERThe Liposarcoma Support Network\, a program of The Life Raft Group\, is hosting this informative webinar on using AI effectively. Presenters Jillian Scalvini and Lindsay Marsh will be discuss how patients and caregivers can use Artificial intelligence (AI) tools like ChatGPT to better navigate their healthcare journeys\, particularly when managing a complex diagnosis.  AI has become increasingly accessible but knowing how to use it safely and effectively can be challenging.The session will cover practical ways AI can help make medical information easier to understand\, help prepare for appointments\, navigate insurance and billing\, and support conversations with healthcare teams. They will also discuss important considerations around privacy\, accuracy\, and the importance of using AI to complement\, not replace\, guidance from qualified healthcare professionals. \nWhether you’re new to AI or already experimenting with these tools\, this session will provide practical tips and examples you can put to use right away. There will be time for questions and discussion at the end. \nThese webinars are for informational purposes only and should not replace professional medical advice. Always consult your healthcare provider before making any treatment or lifestyle changes. \nAbout Our Presenters:\n \nLindsay Marsh is a Senior Managing Consultant with IBM Consulting\, specializing in Medicaid policy\, healthcare analytics\, and program integrity. With extensive experience helping state healthcare programs navigate complex data\, policies\, and systems\, she brings a unique perspective on making healthcare information more accessible and actionable. Lindsay is also a liposarcoma caregiver and passionate advocate for patients and families navigating cancer. Drawing on both her professional expertise and personal experience supporting her husband\, Darnell\, she is committed to helping patients and caregivers become more informed\, confident advocates throughout their healthcare journeys. She holds a Master of Public Affairs (MPA). \n \nJillian Scalvini is an Associate Partner with IBM Consulting\, specializing in Medicaid program integrity\, healthcare analytics\, and using technology to help organizations navigate complex healthcare systems. She holds a Master of Public Affairs (MPA) and is an Accredited Healthcare Fraud Investigator (AHFI). Beyond her professional experience\, Jillian brings a deeply personal understanding of the challenges families face when navigating complex healthcare situations. She and her family have also been an important part of supporting Lindsay and Darnell throughout Darnell’s liposarcoma journey. Combining her professional expertise with her personal experiences\, Jillian is passionate about helping patients and caregivers access information\, ask informed questions\, and navigate healthcare with greater confidence. \nThank You to Our Sponsors:
URL:https://liferaftgroup.org/event/ai-as-a-tool-for-patients-caregivers/
CATEGORIES:Education,Events,Webcast
ORGANIZER;CN="Rebecca Pauley":MAILTO:rpauley@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261117T180000
DTEND;TZID=America/New_York:20261117T193000
DTSTAMP:20260605T133728Z
CREATED:20230727T134306Z
LAST-MODIFIED:20260605T133728Z
UID:10000740-1794938400-1794943800@liferaftgroup.org
SUMMARY:Virtual GIST Patient Support Group
DESCRIPTION:The Patient Support Group meets via Zoom on the first and third Tuesday of each month from 6:00 PM – 7:30 PM ET (NYC Time). \nWe will start each group with a “Round Robin” in which anyone who feels like updating the group on how they are doing/feeling can do so. There is no pressure to speak if you prefer to simply listen. Once we complete our updates\, the group will have the opportunity for organic conversation to develop in relation to our emotional experiences around GIST\, and other challenges that we may be experiencing as a community. \nIn order to be able to moderate a flowing discussion\, the group will be capped at 15 people each month. The first 15 people into the Zoom waiting room will participate. Keep in mind that since the group is now open\, you don’t necessarily have to attend each month to participate. \nIf you wish to attend\, please email supportgroups@liferaftgroup.org
URL:https://liferaftgroup.org/event/virtual-gist-patient-support-group-third/2026-11-17/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/01/GISTer-Support-Group-2022-1.png
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261118T120000
DTEND;TZID=America/New_York:20261118T120000
DTSTAMP:20261029T154349Z
CREATED:20260804T182302Z
LAST-MODIFIED:20261029T154349Z
UID:10001668-1795003200-1795003200@liferaftgroup.org
SUMMARY:Introducing the New LRG Patient Registry
DESCRIPTION:REGISTERJoin The Life Raft Group for “Introducing the New LRG Patient Registry” on November 18th at 12:00 PM. Denisse Evans\, Senior Director of Data Management & Research\, and Ian Hill\, Data & Registry Systems Analyst\, will walk through the Registry’s new features and share how these enhancements are designed to better serve both patients and researchers in the GIST community. \nAttendees will learn how the redesigned LRG Patient Registry strengthens data collection\, improves the patient experience\, and supports research efforts aimed at advancing understanding of disease progression\, treatment outcomes\, and long-term survivorship. Whether you’re a patient\, caregiver\, researcher\, or advocate\, this webinar will offer valuable insight into how the Registry is evolving to drive meaningful progress in GIST research and care. \nThese webinars are for informational purposes only and should not replace professional medical advice. Always consult your healthcare provider before making any treatment or lifestyle changes. \nAbout Our Presenters:\n \nDenisse Evans\nSenior Director of Data Management & Research \n \nAs Senior Director of Data Management & Research at the Life Raft Group (LRG)\, Denisse Evans brings a dynamic blend of scientific expertise\, strategic leadership\, and a passion for patient advocacy to the forefront of Gastrointestinal Stromal Tumor (GIST) research. Her career has been dedicated to leveraging data-driven insights to improve patient outcomes\, empower communities\, and drive innovation in rare cancer research. \nShe specializes in designing and implementing robust study protocols\, with a focus on Patient-Reported Outcomes (PRO) and biomedical data analysis. As Principal Investigator of the Natural History Study for the largest GIST cohort globally\, she leads groundbreaking research efforts to uncover insights into disease progression\, treatment outcomes\, and long-term survivorship. She spearheaded the development of the newly rebuilt LRG Patient Registry\, guiding its redesign to better serve both patient and scientific communities and strengthening its role as a foundational resource for GIST research. In addition to managing the Registry\, she heads the organization’s Tissue Bank\, a vital resource for advancing translational research. Her leadership extends to fostering collaborations with premier medical and academic institutions\, enabling multi-institutional studies that drive impactful discoveries in the field. \n \nIan Hill\nData and Registry Systems Analyst\n \nIan Hill\, Data and Registry Systems Analyst at The Life Raft Group\, brings a career path that reflects the blending of technical skill\, analytical thinking\, and a strong desire to make a difference in people’s lives. With a Bachelor of Science in Biology from Ramapo College of New Jersey and a Master of Data Science from the same institution he built a strong foundation in understanding complex systems that naturally evolved into his pursuit of data science. In his role\, he brings together his technical training\, scientific background\, and personal values to support registry development\, clean and analyze clinical datasets\, and design reports and dashboards that make data meaningful for researchers\, clinicians\, and patients alike. He played a major part in bringing the technical aspects of the newly rebuilt LRG Patient Registry to life\, helping translate its vision into a functioning system built to serve patients and researchers alike. His ability to translate raw information into actionable insights highlights both his technical expertise and his empathy for those who rely on the data to guide treatment and care. \nThank You to Our Sponsors:
URL:https://liferaftgroup.org/event/introducing-the-new-lrg-patient-registry/
CATEGORIES:Education,Events,Webcast
ORGANIZER;CN="Rebecca Pauley":MAILTO:rpauley@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261119T180000
DTEND;TZID=America/New_York:20261119T180000
DTSTAMP:20261008T172520Z
CREATED:20260922T182858Z
LAST-MODIFIED:20261008T172520Z
UID:10001672-1795111200-1795111200@liferaftgroup.org
SUMMARY:WOLF Water of Life Fall Event
DESCRIPTION:The Life Raft Group and Dr. Matthew Lurin are pleased to present the 9th annual event\, Water of Life Fall Event\, the WOLF. Ever since the first legendary “Once in a Lifetime” event began with pours of York House Blend in the basement of Macy’s Herald Square (which sold the bottle some 70 years prior) the WOLF has been the premier whisky event in New York City\, and synonymous with an amazing evening. This year we return to Keens Steakhouse where we will enjoy a delicious meal along with 16 outstanding pours. Soon after\, our evening moves to part two of the event\, where we will pair even more drams with our own special cigars\, where we will pair even more drams with our own special cigars. As always\, all proceeds go directly to The Life Raft Group to help them in the fight against GIST\, a rare gastrointestinal cancer. \nSo be a part of history and enjoy some unicorn pours\, some mutton\, and cigars as we all Drink Whisky to Fight Cancer! \nREGISTER
URL:https://liferaftgroup.org/event/wolf-water-of-life-fall-event/
LOCATION:Keens Steakhouse\, 72 West 36th St\, New York\, 10018\, United States
CATEGORIES:Events,Fundraising
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261119T200000
DTEND;TZID=America/New_York:20261119T200000
DTSTAMP:20261008T203650Z
CREATED:20261008T203046Z
LAST-MODIFIED:20261008T203650Z
UID:10001674-1795118400-1795118400@liferaftgroup.org
SUMMARY:Virtual GIST Caregiver Support Group
DESCRIPTION:Monthly Virtual Support Group for GIST Caregivers\nHeld on the third Thursday of the month @ 8PM ET \nLRG hosts a monthly virtual support group for the caregivers. We will share our stories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling during this journey as a caregiver. The group will be a safe space not only to feel supported by your fellow caregivers\, but also a place to share our own coping mechanisms\, concerns\, successes and trials. All information shared will be kept confidential. \nIf you wish to attend\, please email supportgroups@liferaftgroup.org for the Zoom link for the meeting. \nAbout the Group Leader:\nDolly M\, GIST Caregiver\nAs an active member of The Life Raft Group\, Dolly advocates for the needs of the caregiver community. It is her mission to advocate for the entire GIST community making sure they are equipped with the appropriate resources on their GIST journey.
URL:https://liferaftgroup.org/event/virtual-gist-caregiver-support-group/2026-11-19/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2026/10/Support-Group-Thursday.png
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20261119T220000
DTEND;TZID=America/Los_Angeles:20261119T220000
DTSTAMP:20261022T135203Z
CREATED:20261021T194355Z
LAST-MODIFIED:20261022T135203Z
UID:10001912-1795125600-1795125600@liferaftgroup.org
SUMMARY:Virtual California Support Group
DESCRIPTION:California Patient Support Group \nZoom\, Third Thursday of the Month – 6pm PT. \nIf you wish to attend\, please email supportgroups@liferaftgroup.org for the Zoom link for the meeting.
URL:https://liferaftgroup.org/event/virtual-california-support-group/2026-11-19/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2026/10/California-Support-Group-Thursday.png
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20261123T180000
DTEND;TZID=America/Chicago:20261123T180000
DTSTAMP:20260605T133820Z
CREATED:20240823T175323Z
LAST-MODIFIED:20260605T133820Z
UID:10000874-1795456800-1795456800@liferaftgroup.org
SUMMARY:Virtual Texas Support Group
DESCRIPTION:Texas Support Group Zoom meeting on the 4th Monday of the month @ 6PM Central Time. Jackie Vanderpol will host this zoom meeting.\nIf you wish to attend\, please email supportgroups@liferaftgroup.org for the Zoom link for the meeting.
URL:https://liferaftgroup.org/event/virtual-texas-support-group/2026-11-23/
CATEGORIES:Events,Support Group
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2024/08/texas-support-group.jpg
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261201T180000
DTEND;TZID=America/New_York:20261201T193000
DTSTAMP:20260505T151148Z
CREATED:20260105T170043Z
LAST-MODIFIED:20260505T151148Z
UID:10001037-1796148000-1796153400@liferaftgroup.org
SUMMARY:Virtual GIST Patient Support Group
DESCRIPTION:The Patient Support Group meets via Zoom on the first and third Tuesday of each month from 6:00 PM – 7:30 PM ET (NYC Time). \nWe will start each group with a “Round Robin” in which anyone who feels like updating the group on how they are doing/feeling can do so. There is no pressure to speak if you prefer to simply listen. Once we complete our updates\, the group will have the opportunity for organic conversation to develop in relation to our emotional experiences around GIST\, and other challenges that we may be experiencing as a community. \nIn order to be able to moderate a flowing discussion\, the group will be capped at 15 people each month. The first 15 people into the Zoom waiting room will participate. Keep in mind that since the group is now open\, you don’t necessarily have to attend each month to participate. \nIf you wish to attend\, please email supportgroups@liferaftgroup.org for the Zoom link for the meeting.
URL:https://liferaftgroup.org/event/virtual-gist-patient-support-group-2023-first-2/2026-12-01/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/01/GISTer-Support-Group-2022-1.png
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261202T120000
DTEND;TZID=America/New_York:20261202T120000
DTSTAMP:20261019T174952Z
CREATED:20261019T174952Z
LAST-MODIFIED:20261019T174952Z
UID:10001739-1796212800-1796212800@liferaftgroup.org
SUMMARY:Updates from CTOS 2026
DESCRIPTION:REGISTERThe CTOS Annual Meeting is the yearly conference of the Connective Tissue Oncology Society\, where global sarcoma experts share new research and clinical insights. The Life Raft Group is partnering with Dr. Pawel Sobczuk of Vall d’Hebron Institute of Oncology to present “GIST Updates from CTOS 2026” on December 2nd at 12 PM ET. During this virtual session\, Dr. Sobczuk will highlight key GIST-relevant findings presented at CTOS\, followed by a Q&A with attendees. \nThese webinars are for informational purposes only and should not replace professional medical advice. Always consult your healthcare provider before making any treatment or lifestyle changes. \nAbout Our Presenter:\n \nDr. Pawel Sobczuk\nVall d’Hebron Institute of Oncology in Barcelona\, Spain \nPawel Sobczuk is a Polish medical oncologist and clinician-scientist with expertise in sarcoma and skin tumours. He currently works as a postdoctoral fellow at the Sarcoma Translational Research Group at Vall d’Hebron Institute of Oncology in Barcelona\, Spain. He is a Board member of the Polish Society of Clinical Oncology. Dr. Sobczuk is a member of the ESMO Young Oncologists Committee and ESMO Communication Committee. \nDr. Sobczuk completed his medical degree at the Medical University of Warsaw. Following his medical studies\, he undertook a residency in Medical Oncology at Maria-Sklodowska Curie National Research Institute of Oncology in Warsaw\, where he also completed his PhD in medical sciences in 2023. He has completed a scientific fellowship at the Memorial Sloan Kettering Cancer Center in New York. \nHis research primarily focuses on translational studies in sarcoma\, with a primary interest in response to immunotherapy and novel mechanisms of resistance to kinase inhibitors in GIST. Dr Sobczuk is a co-principal investigator of the EFTISARC-NEO clinical trial evaluating a novel immunotherapy combination in the neoadjuvant treatment of patients with soft tissue sarcoma. He has published more than 40 peer-reviewed articles in indexed journals and presented results in numerous international meetings. He serves as a member of the editorial board of renewed journals such as JCO Precision Oncology and Cancer Control. \nThank You to Our Sponsors:
URL:https://liferaftgroup.org/event/updates-from-ctos-2026/
CATEGORIES:Education,Events,Webcast
ORGANIZER;CN="Rebecca Pauley":MAILTO:rpauley@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261202T130000
DTEND;TZID=America/New_York:20261202T140000
DTSTAMP:20261008T203148Z
CREATED:20261008T203148Z
LAST-MODIFIED:20261008T203148Z
UID:10001110-1796216400-1796220000@liferaftgroup.org
SUMMARY:Virtual GIST Caregiver Support Group
DESCRIPTION:Monthly Virtual Support Group for GIST Caregivers\nHeld on the first Wednesday of the month @ 1PM ET \nLRG hosts a monthly virtual support group for the caregivers. We will share our stories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling during this journey as a caregiver. The group will be a safe space not only to feel supported by your fellow caregivers\, but also a place to share our own coping mechanisms\, concerns\, successes and trials. All information shared will be kept confidential. \nIf you wish to attend\, please email supportgroups@liferaftgroup.org for the Zoom link for the meeting. \nAbout the Group Leader:\nMarlene Nei\, GIST Caregiver\nAs an active member of The Life Raft Group\, Marlene advocates for the needs of the caregiver community because she feels they are an underrepresented group. It is her mission to advocate for the entire GIST community making sure they are equipped with the appropriate resources on their GIST journey.
URL:https://liferaftgroup.org/event/virtual-gist-caregiver-support-group-2023-2-2/2026-12-02/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2023/05/caregiver-sg-2023.jpg
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261208T123000
DTEND;TZID=America/New_York:20261208T123000
DTSTAMP:20261019T175008Z
CREATED:20261019T175008Z
LAST-MODIFIED:20261019T175008Z
UID:10001738-1796733000-1796733000@liferaftgroup.org
SUMMARY:Exploring a New Clinical Trial for KIT-Mutant GIST
DESCRIPTION:REGISTERThe Life Raft Group is partnering with Dr. Candace Haddox of Dana-Farber Cancer Institute to present “Exploring a New Clinical Trial for KIT-Mutant GIST” on December 8th\, 2026 at 12:30PM ET. Dr. Haddox will discuss a new clinical trial testing a combination therapy of ripretinib plus navlimetostat for GIST patients with a KIT mutation and MTAP gene deletion. She will review the rationale of the treatment\, goals of the trial\, participant eligibility\, how to enroll\, and where to get more information. A Q&A session will follow the presentation. \nThese webinars are for informational purposes only and should not replace professional medical advice. Always consult your healthcare provider before making any treatment or lifestyle changes. \nAbout Our Presenter:\n \nDr. Candace Haddox\nDana-Farber Cancer Institute \nDr. Candace Haddox is an Assistant Professor of Medicine at Harvard Medical School\, and a medical oncologist and clinical/translational investigator in the Sarcoma Center and the Center for Cancer Therapeutic Innovation at Dana-Farber Cancer Institute. Dr. Haddox’s research focuses on developing novel therapies rooted in sarcoma biology and determining mechanisms of treatment response and resistance\, particularly in gastrointestinal stromal tumors (GIST). \nDr. Haddox received her Bachelor of Science in neurobiology from the University of Miami. She completed a post-baccalaureate research fellowship at the National Institutes of Health and received her Medical Degree from the University of South Florida. Dr. Haddox completed a residency in Internal Medicine at the Mayo Clinic in Rochester\, Minnesota\, and a fellowship in Medical Oncology at Duke University\, where she also served as Chief Fellow. She joined the faculty at Dana-Farber Cancer Institute in 2021\, where she currently sees patients with sarcomas and leads clinical trials in early drug development. \nThank You to Our Sponsors:
URL:https://liferaftgroup.org/event/exploring-a-new-clinical-trial-for-kit-mutant-gist/
CATEGORIES:Education,Events,Webcast
ORGANIZER;CN="Rebecca Pauley":MAILTO:rpauley@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261214T180000
DTEND;TZID=America/New_York:20261214T180000
DTSTAMP:20260605T133628Z
CREATED:20240528T163645Z
LAST-MODIFIED:20260605T133628Z
UID:10001263-1797271200-1797271200@liferaftgroup.org
SUMMARY:Virtual Florida Support Group
DESCRIPTION:Florida Support Group\nZoom\, 2nd Monday of the Month – 6pm ET\nOur moderator is a fellow GISTER/LRG Member from Florida diagnosed with GIST in late 2016.\nIf you wish to attend\, please email supportgroups@liferaftgroup.org for the Zoom link for the meeting.
URL:https://liferaftgroup.org/event/virtual-florida-support-group-2-2-2/2026-12-14/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2022/09/florida-support-group.jpg
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261215T180000
DTEND;TZID=America/New_York:20261215T193000
DTSTAMP:20260605T133728Z
CREATED:20230727T134306Z
LAST-MODIFIED:20260605T133728Z
UID:10000741-1797357600-1797363000@liferaftgroup.org
SUMMARY:Virtual GIST Patient Support Group
DESCRIPTION:The Patient Support Group meets via Zoom on the first and third Tuesday of each month from 6:00 PM – 7:30 PM ET (NYC Time). \nWe will start each group with a “Round Robin” in which anyone who feels like updating the group on how they are doing/feeling can do so. There is no pressure to speak if you prefer to simply listen. Once we complete our updates\, the group will have the opportunity for organic conversation to develop in relation to our emotional experiences around GIST\, and other challenges that we may be experiencing as a community. \nIn order to be able to moderate a flowing discussion\, the group will be capped at 15 people each month. The first 15 people into the Zoom waiting room will participate. Keep in mind that since the group is now open\, you don’t necessarily have to attend each month to participate. \nIf you wish to attend\, please email supportgroups@liferaftgroup.org
URL:https://liferaftgroup.org/event/virtual-gist-patient-support-group-third/2026-12-15/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/01/GISTer-Support-Group-2022-1.png
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261217T200000
DTEND;TZID=America/New_York:20261217T200000
DTSTAMP:20261008T203650Z
CREATED:20261008T203046Z
LAST-MODIFIED:20261008T203650Z
UID:10001675-1797537600-1797537600@liferaftgroup.org
SUMMARY:Virtual GIST Caregiver Support Group
DESCRIPTION:Monthly Virtual Support Group for GIST Caregivers\nHeld on the third Thursday of the month @ 8PM ET \nLRG hosts a monthly virtual support group for the caregivers. We will share our stories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling during this journey as a caregiver. The group will be a safe space not only to feel supported by your fellow caregivers\, but also a place to share our own coping mechanisms\, concerns\, successes and trials. All information shared will be kept confidential. \nIf you wish to attend\, please email supportgroups@liferaftgroup.org for the Zoom link for the meeting. \nAbout the Group Leader:\nDolly M\, GIST Caregiver\nAs an active member of The Life Raft Group\, Dolly advocates for the needs of the caregiver community. It is her mission to advocate for the entire GIST community making sure they are equipped with the appropriate resources on their GIST journey.
URL:https://liferaftgroup.org/event/virtual-gist-caregiver-support-group/2026-12-17/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2026/10/Support-Group-Thursday.png
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20261217T220000
DTEND;TZID=America/Los_Angeles:20261217T220000
DTSTAMP:20261022T135203Z
CREATED:20261021T194355Z
LAST-MODIFIED:20261022T135203Z
UID:10001913-1797544800-1797544800@liferaftgroup.org
SUMMARY:Virtual California Support Group
DESCRIPTION:California Patient Support Group \nZoom\, Third Thursday of the Month – 6pm PT. \nIf you wish to attend\, please email supportgroups@liferaftgroup.org for the Zoom link for the meeting.
URL:https://liferaftgroup.org/event/virtual-california-support-group/2026-12-17/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2026/10/California-Support-Group-Thursday.png
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20261228T180000
DTEND;TZID=America/Chicago:20261228T180000
DTSTAMP:20260605T133820Z
CREATED:20240823T175323Z
LAST-MODIFIED:20260605T133820Z
UID:10000875-1798480800-1798480800@liferaftgroup.org
SUMMARY:Virtual Texas Support Group
DESCRIPTION:Texas Support Group Zoom meeting on the 4th Monday of the month @ 6PM Central Time. Jackie Vanderpol will host this zoom meeting.\nIf you wish to attend\, please email supportgroups@liferaftgroup.org for the Zoom link for the meeting.
URL:https://liferaftgroup.org/event/virtual-texas-support-group/2026-12-28/
CATEGORIES:Events,Support Group
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2024/08/texas-support-group.jpg
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20270105T180000
DTEND;TZID=America/New_York:20270105T193000
DTSTAMP:20260505T151148Z
CREATED:20260105T170043Z
LAST-MODIFIED:20260505T151148Z
UID:10001038-1799172000-1799177400@liferaftgroup.org
SUMMARY:Virtual GIST Patient Support Group
DESCRIPTION:The Patient Support Group meets via Zoom on the first and third Tuesday of each month from 6:00 PM – 7:30 PM ET (NYC Time). \nWe will start each group with a “Round Robin” in which anyone who feels like updating the group on how they are doing/feeling can do so. There is no pressure to speak if you prefer to simply listen. Once we complete our updates\, the group will have the opportunity for organic conversation to develop in relation to our emotional experiences around GIST\, and other challenges that we may be experiencing as a community. \nIn order to be able to moderate a flowing discussion\, the group will be capped at 15 people each month. The first 15 people into the Zoom waiting room will participate. Keep in mind that since the group is now open\, you don’t necessarily have to attend each month to participate. \nIf you wish to attend\, please email supportgroups@liferaftgroup.org for the Zoom link for the meeting.
URL:https://liferaftgroup.org/event/virtual-gist-patient-support-group-2023-first-2/2027-01-05/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/01/GISTer-Support-Group-2022-1.png
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20270106T130000
DTEND;TZID=America/New_York:20270106T140000
DTSTAMP:20261008T203148Z
CREATED:20261008T203148Z
LAST-MODIFIED:20261008T203148Z
UID:10001111-1799240400-1799244000@liferaftgroup.org
SUMMARY:Virtual GIST Caregiver Support Group
DESCRIPTION:Monthly Virtual Support Group for GIST Caregivers\nHeld on the first Wednesday of the month @ 1PM ET \nLRG hosts a monthly virtual support group for the caregivers. We will share our stories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling during this journey as a caregiver. The group will be a safe space not only to feel supported by your fellow caregivers\, but also a place to share our own coping mechanisms\, concerns\, successes and trials. All information shared will be kept confidential. \nIf you wish to attend\, please email supportgroups@liferaftgroup.org for the Zoom link for the meeting. \nAbout the Group Leader:\nMarlene Nei\, GIST Caregiver\nAs an active member of The Life Raft Group\, Marlene advocates for the needs of the caregiver community because she feels they are an underrepresented group. It is her mission to advocate for the entire GIST community making sure they are equipped with the appropriate resources on their GIST journey.
URL:https://liferaftgroup.org/event/virtual-gist-caregiver-support-group-2023-2-2/2027-01-06/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2023/05/caregiver-sg-2023.jpg
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20270111T180000
DTEND;TZID=America/New_York:20270111T180000
DTSTAMP:20260605T133628Z
CREATED:20240528T163645Z
LAST-MODIFIED:20260605T133628Z
UID:10000683-1799690400-1799690400@liferaftgroup.org
SUMMARY:Virtual Florida Support Group
DESCRIPTION:Florida Support Group\nZoom\, 2nd Monday of the Month – 6pm ET\nOur moderator is a fellow GISTER/LRG Member from Florida diagnosed with GIST in late 2016.\nIf you wish to attend\, please email supportgroups@liferaftgroup.org for the Zoom link for the meeting.
URL:https://liferaftgroup.org/event/virtual-florida-support-group-2-2-2/2027-01-11/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2022/09/florida-support-group.jpg
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20270119T180000
DTEND;TZID=America/New_York:20270119T193000
DTSTAMP:20260605T133728Z
CREATED:20230727T134306Z
LAST-MODIFIED:20260605T133728Z
UID:10000742-1800381600-1800387000@liferaftgroup.org
SUMMARY:Virtual GIST Patient Support Group
DESCRIPTION:The Patient Support Group meets via Zoom on the first and third Tuesday of each month from 6:00 PM – 7:30 PM ET (NYC Time). \nWe will start each group with a “Round Robin” in which anyone who feels like updating the group on how they are doing/feeling can do so. There is no pressure to speak if you prefer to simply listen. Once we complete our updates\, the group will have the opportunity for organic conversation to develop in relation to our emotional experiences around GIST\, and other challenges that we may be experiencing as a community. \nIn order to be able to moderate a flowing discussion\, the group will be capped at 15 people each month. The first 15 people into the Zoom waiting room will participate. Keep in mind that since the group is now open\, you don’t necessarily have to attend each month to participate. \nIf you wish to attend\, please email supportgroups@liferaftgroup.org
URL:https://liferaftgroup.org/event/virtual-gist-patient-support-group-third/2027-01-19/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/01/GISTer-Support-Group-2022-1.png
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20270121T200000
DTEND;TZID=America/New_York:20270121T200000
DTSTAMP:20261008T203650Z
CREATED:20261008T203046Z
LAST-MODIFIED:20261008T203650Z
UID:10001676-1800561600-1800561600@liferaftgroup.org
SUMMARY:Virtual GIST Caregiver Support Group
DESCRIPTION:Monthly Virtual Support Group for GIST Caregivers\nHeld on the third Thursday of the month @ 8PM ET \nLRG hosts a monthly virtual support group for the caregivers. We will share our stories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling during this journey as a caregiver. The group will be a safe space not only to feel supported by your fellow caregivers\, but also a place to share our own coping mechanisms\, concerns\, successes and trials. All information shared will be kept confidential. \nIf you wish to attend\, please email supportgroups@liferaftgroup.org for the Zoom link for the meeting. \nAbout the Group Leader:\nDolly M\, GIST Caregiver\nAs an active member of The Life Raft Group\, Dolly advocates for the needs of the caregiver community. It is her mission to advocate for the entire GIST community making sure they are equipped with the appropriate resources on their GIST journey.
URL:https://liferaftgroup.org/event/virtual-gist-caregiver-support-group/2027-01-21/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2026/10/Support-Group-Thursday.png
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20270121T220000
DTEND;TZID=America/Los_Angeles:20270121T220000
DTSTAMP:20261022T135203Z
CREATED:20261021T194355Z
LAST-MODIFIED:20261022T135203Z
UID:10001914-1800568800-1800568800@liferaftgroup.org
SUMMARY:Virtual California Support Group
DESCRIPTION:California Patient Support Group \nZoom\, Third Thursday of the Month – 6pm PT. \nIf you wish to attend\, please email supportgroups@liferaftgroup.org for the Zoom link for the meeting.
URL:https://liferaftgroup.org/event/virtual-california-support-group/2027-01-21/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2026/10/California-Support-Group-Thursday.png
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20270125T180000
DTEND;TZID=America/Chicago:20270125T180000
DTSTAMP:20260605T133820Z
CREATED:20240823T175323Z
LAST-MODIFIED:20260605T133820Z
UID:10000876-1800900000-1800900000@liferaftgroup.org
SUMMARY:Virtual Texas Support Group
DESCRIPTION:Texas Support Group Zoom meeting on the 4th Monday of the month @ 6PM Central Time. Jackie Vanderpol will host this zoom meeting.\nIf you wish to attend\, please email supportgroups@liferaftgroup.org for the Zoom link for the meeting.
URL:https://liferaftgroup.org/event/virtual-texas-support-group/2027-01-25/
CATEGORIES:Events,Support Group
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2024/08/texas-support-group.jpg
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20270202T180000
DTEND;TZID=America/New_York:20270202T193000
DTSTAMP:20260505T151148Z
CREATED:20260105T170043Z
LAST-MODIFIED:20260505T151148Z
UID:10001039-1801591200-1801596600@liferaftgroup.org
SUMMARY:Virtual GIST Patient Support Group
DESCRIPTION:The Patient Support Group meets via Zoom on the first and third Tuesday of each month from 6:00 PM – 7:30 PM ET (NYC Time). \nWe will start each group with a “Round Robin” in which anyone who feels like updating the group on how they are doing/feeling can do so. There is no pressure to speak if you prefer to simply listen. Once we complete our updates\, the group will have the opportunity for organic conversation to develop in relation to our emotional experiences around GIST\, and other challenges that we may be experiencing as a community. \nIn order to be able to moderate a flowing discussion\, the group will be capped at 15 people each month. The first 15 people into the Zoom waiting room will participate. Keep in mind that since the group is now open\, you don’t necessarily have to attend each month to participate. \nIf you wish to attend\, please email supportgroups@liferaftgroup.org for the Zoom link for the meeting.
URL:https://liferaftgroup.org/event/virtual-gist-patient-support-group-2023-first-2/2027-02-02/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/01/GISTer-Support-Group-2022-1.png
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20270203T130000
DTEND;TZID=America/New_York:20270203T140000
DTSTAMP:20261008T203148Z
CREATED:20261008T203148Z
LAST-MODIFIED:20261008T203148Z
UID:10001112-1801659600-1801663200@liferaftgroup.org
SUMMARY:Virtual GIST Caregiver Support Group
DESCRIPTION:Monthly Virtual Support Group for GIST Caregivers\nHeld on the first Wednesday of the month @ 1PM ET \nLRG hosts a monthly virtual support group for the caregivers. We will share our stories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling during this journey as a caregiver. The group will be a safe space not only to feel supported by your fellow caregivers\, but also a place to share our own coping mechanisms\, concerns\, successes and trials. All information shared will be kept confidential. \nIf you wish to attend\, please email supportgroups@liferaftgroup.org for the Zoom link for the meeting. \nAbout the Group Leader:\nMarlene Nei\, GIST Caregiver\nAs an active member of The Life Raft Group\, Marlene advocates for the needs of the caregiver community because she feels they are an underrepresented group. It is her mission to advocate for the entire GIST community making sure they are equipped with the appropriate resources on their GIST journey.
URL:https://liferaftgroup.org/event/virtual-gist-caregiver-support-group-2023-2-2/2027-02-03/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2023/05/caregiver-sg-2023.jpg
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20270208T180000
DTEND;TZID=America/New_York:20270208T180000
DTSTAMP:20260605T133628Z
CREATED:20240528T163645Z
LAST-MODIFIED:20260605T133628Z
UID:10001264-1802109600-1802109600@liferaftgroup.org
SUMMARY:Virtual Florida Support Group
DESCRIPTION:Florida Support Group\nZoom\, 2nd Monday of the Month – 6pm ET\nOur moderator is a fellow GISTER/LRG Member from Florida diagnosed with GIST in late 2016.\nIf you wish to attend\, please email supportgroups@liferaftgroup.org for the Zoom link for the meeting.
URL:https://liferaftgroup.org/event/virtual-florida-support-group-2-2-2/2027-02-08/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2022/09/florida-support-group.jpg
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
END:VCALENDAR