The Life Raft Group

LRG Webcast: Optimizing Treatment
2019-05-16 12:00 - 13:00 (America/New_York)
Are you interested in optimizing your treatment?

Listen to the Webcast

This world-renown GIST expert from Europe will share his wealth of experience and insight about how he has helped patients live longer, and how he consults with fellow physicians on the best treatment plan for their patients.
Dr. Peter Reichardt is Assistant Professor and Head of the Department of Oncology and Palliative Care at the Helios Klinikum Berlin-Buch in Berlin, Germany, and is Director of the Cancer Center Berlin-Buch and the Sarcoma Center Berlin-Brandenburg.
In this webcast Dr. Reichardt will discuss surgery for metastatic disease, imatinib plasma level testing, and the management of side effects.
He will also cover dosing, dose escalation and dose schedules, and will explain mutations and the importance of mutational testing.

About the Presenter:
Dr. Peter Reichardt trained in internal medicine and haematology/oncology at the University of Heidelberg and at the MD Anderson Cancer Center, Houston, TX, USA. From 1992 to 2007, he was a consultant at the Charité University Hospital in Berlin. Dr. Reichardt has led and conducted multiple clinical trials in bone sarcomas, soft tissue sarcomas, and gastrointestinal stromal tumours in the adjuvant, advanced, and refractory settings.

Dr. Reichardt is a co-author of the current European Society for Medical Oncology (ESMO) guidelines for the management of GIST, soft tissue and bone sarcomas and a member of the ESMO Sarcoma Faculty. He is chairman of the Scientific Committee of the GIST and Sarcoma patients’ organization ‘Das Lebenshaus’, a member of the Medical Board of the MAX Foundation, and a member of the Life Raft Group’s Global GIST Advisory Team. Dr. Reichardt has contributed to numerous publications on soft tissue sarcoma and GIST management in leading oncology journals.

There will be a 15 minute Q&A at the end of the presentation.

Technical Tips to Join Meeting:

This is a web only meeting, accessed only by your internet connection. Participants are encouraged to use the web link automatically provided after registration and to use computer speakers (and/or headsets if available) to hear the audio portion of the meeting. Please log in at least ten minutes prior to the start of the webinar.
Please ensure you have an updated version of Adobe Flash Player (Google Chrome has Flash built in).
If you are using a mobile device or tablet, in order to view and hear the conference, download the ReadyTalk App from your App store.

Disclaimer:
We cannot provide individual medical advice during this webcast. Information provided in this webcast is not intended as a substitute for your physician’s guidance and care.

Chicago - LRG Support Group Meeting
2019-05-11 13:00 - 15:00 (America/Chicago)
GIST Chicago Support Group
Support group for people living with GIST in the Chicago area.
The typical agenda includes Patient GIST Journey updates and may also include outside subject matter experts as well as informal updates on GIST management and recent GIST publications or meeting presentations.
Attendees are asked to bring a snack or beverage to share.
If you are planning to attend, please RSVP via text to 847-302-5133, so that we can plan for food and room setup.
Location: Wellness house is located at 131 N. County Line Rd. One block east of Hinsdale Hospital. Parking is free.
Doors open at 12:30pm

Colorado - LRG Support Group Meeting
2019-05-11 11:00 (America/Denver)
Join us for the first Colorado Local Support Group Meeting!
May 11, 2019 @ 11 am Central
Host: Colorado State Leader, John Abrams

Register by Email

You will receive location details upon registration.
(The meeting will be held in Englewood, Colorado)

GDOL New Jersey 2019
2019-05-09 08:00 - 14:30 (America/New_York) | Courtyard Marriott, 263 U.S. 46 West, Wayne, 07470, United States
Register

GDOL (GIST Day of Learning) is a free one day event to help patients and caregivers learn more about this rare cancer, find support, and enhance their knowledge base to help them navigate their cancer journey.
The Life Raft Group has a simple focus: to cure a form of cancer — GIST — and to help those living with it until then. To do this, the Life Raft Group focuses on three key areas: research, patient support & education, and advocacy, which lay the foundation of our mission to ensure the survival of GIST patients through a comprehensive approach connecting individual patients’ needs, the worldwide community of GIST advocates and the global health and research environment.

view agenda for GDOL NJ

Register by clicking the button above. Any questions, please contact Diana Nieves, dnieves@liferaftgroup.org

Ask the Experts LIVE
2019-05-08 13:00 (America/New_York) | You Tube Live
Want to know more about GIST?
Do you have some burning questions to ask GIST experts?

Members of the LRG GIST Global Expert Surveillance Team
will be at the LRG offices on May 8th at 1:00 pm ET for an
Ask the Experts LIVE event to be broadcast on YouTube Live.

Dr. Gary Schwartz
Columbia University Irving Medical Center

Dr. Jason Sicklick
Moores Cancer Center, University of California, San Diego

Dr. Jonathan Trent
Sylvester Comprehensive Cancer Center

Register

We welcome you to submit your questions ahead of time.
Questions can be emailed to Sara Rothschild at srothschild@liferaftgroup.org.
Viewers can also ask questions live during the event.

Disclaimer:
We cannot provide individual medical advice during this live event. Information provided is not intended as a substitute for your physician’s guidance and care.

GIST DO IT NJ
2019-05-04 08:00 - 11:00 (America/New_York) | Verona Park, Bloomfield Ave & Lakeside Avenue, Verona, NJ, 07044, United States
Join us for a day of fun and fundraising

Walk to find a cure
Refreshments
Giveaways
Guest Speakers
and much more

Click below to Register, Create a Team, or Join a Team

All participants raising $50+ will have the chance to receive special recognition gifts based on their fundraising level. (Includes registration fee)
$50
· GIST DO IT T-Shirt
$150
· GIST DO IT T-Shirt
· GIST DO IT Water Bottle
$500
· GIST DO IT T-Shirt
· GIST DO IT Water Bottle
· Social Media Recognition
$1000
· GIST DO IT T-Shirt
· GIST DO IT Water Bottle
· Social Media Recognition
· Newsletter Recognition
Funds from GIST DO IT will be directed towards GIST Research

For questions or sponsorship opportunities please contact Diana Nieves by phone or email
973-837-9092 ext. 102
dnieves@liferaftgroup.org

LRG Webcast: Genetic Testing and SDHx Mutations
2019-05-03 13:00 - 14:00 (America/New_York)
Genetic Testing and SDHx Mutations:
What do they have to do with PGL/GIST/Pheos?
LISTEN TO WEBCAST

This webcast will highlight how SDHx mutations impact risks for paraganglioma, pheochromocytomas, and GIST. We’ll discuss why genetic testing is helpful for any diagnosis of GIST, paraganglioma or pheochromocytoma, and what the SDHx genes have to do with tumor risk. We’ll discuss what types of tumors are associated with mutations in the SDHx genes, and how different SDHx genes (SDHA, SDHB, SDHC, SDHD, SDHAF2) have different tumor and location risks. This webcast will highlight recommendations for screening and current research initiatives for SDHx and paragangliomas.

About the Presenter:
Samantha Greenberg is a board-certified genetic counselor who oversees the SDHx clinic and specializes in paraganglioma research at Huntsman Cancer Institute. She graduated with a Master’s Degree in Human Genetics and a Master’s of Public Health from the University of Michigan, and a Bachelor’s Degree in neuroscience from the same university. Prior to her graduate training, she taught 7th grade science in Tulsa, Oklahoma, through Teach for America. At Huntsman, Samantha also continues public health genomics work with the Department of Health focused on rural clinician education and programming. She has worked to expand cancer genetics’ role in genitourinary cancers, and oversees the VHL Clinical Care Center.

Technical Tips to Join Meeting:

This is a web only meeting, accessed only by your internet connection. Participants are encouraged to use the web link automatically provided after registration and to use computer speakers (and/or headsets if available) to hear the audio portion of the meeting. Please log in at least ten minutes prior to the start of the webinar.
Please ensure you have an updated version of Adobe Flash Player (Google Chrome has Flash built in).
If you are using a mobile device or tablet, in order to view and hear the conference, download the ReadyTalk App from your App store.

Disclaimer:
We cannot provide individual medical advice during this webcast. Information provided in this webcast is not intended as a substitute for your physician’s guidance and care.

GIST Day of Learning - Vancouver
2019-04-27 09:00 - 16:00 (America/New_York) | Best Western Chateau Granville Hotel, 1100 Granville St, Vancouver, British Columbia, V6Z 2B6, Canada
GIST Sarcoma Life Raft Group Canada is pleased to announce that registration is now open for the GIST Day of Learning in Vancouver. This is a one-day conference that provides education and support for people who have GIST (Gastrointestinal Stromal Tumour), which is a soft-tissue sarcoma that can occur anywhere along the GI tract. The Day of Learning will cover many aspects of living with and understanding GIST and provide an update on investigational new drugs being evaluated in clinical trials for GIST. It will also provide a great opportunity to connect with other GIST patients, caregivers and the presenters.
The Day of Learning is open to people who have GIST, family members, caregivers, healthcare providers and anyone who wishes to learn more about GIST. There is no charge for attending the GIST Day of Learning.

Agenda
Morning Sessions
The Biology of GIST: What Every Patient Needs to Know
David Josephy, LRGC President
Your GIST Journey – A Round-Table Discussion
Hazel McLeod, LRGC Director
Afternoon Sessions
Clinical Management of GIST
Xiaolan Feng, MD, BC Cancer
Development of the Next Generation of GIST Treatments
Michael Heinrich, MD, Knight Cancer Institute, Oregon Health and Science University

Our keynote speaker is Dr. Michael Heinrich
Dr. Heinrich earned his medical degree from Johns Hopkins School of Medicine in Baltimore and completed both his residency training and fellowship in hematology/medical oncology at Oregon Health & Sciences University (OHSU). Dr. Heinrich’s research, like much of the work at the Knight Cancer Institute, revolves around a basic, yet complex premise. You have to understand what is broken in order to fix it. That’s why Dr. Heinrich is intently focused on identifying the molecular targets that cause cancer, which is essential to the development of better and less toxic therapies. He is recognized internationally for groundbreaking research discoveries that have improved care for patients with gastrointestinal stromal tumors, and his research has implications for many types of cancer.
This all-day conference will include:

6 educational sessions including Q & A
Lots of opportunity to mix and mingle
Continental breakfast, lunch and refreshments

REGISTER HERE
When:
Saturday April 27, 2019
9:00 am – 4:00 pm
(Doors open at 8:15)
Where:
Best Western Chateau Granville Hotel
1100 Granville St,
Vancouver, BC V6Z 2B6
Questions?
Contact Malcolm Sutherland
malcolm.sutherland@liferaftgroup.ca
855-574-4478

LRG Webcast: GI Stromal Tumors
2019-04-17 12:00 - 13:00 (America/New_York)
GI Stromal Tumors: A PatholoGIST’s Point of View – Mutational Testing in GIST
LISTEN TO THE WEBCAST

Mutational Testing in GIST is a vital component for survival, especially as cancer treatment becomes more individualized. In this webcast, Dr. Chris Corless, Director and Chief Medical Officer of the Knight Diagnostic Laboratories at OHSU, demystifies the process by which pathologists make the diagnosis of GIST and assess the risk of recurrence. Dr. Corless will discuss how tumor DNA is extracted and analyzed from these tumors, and how mutations detected in tumor DNA influences treatment decisions.

There will be a 15 minute Q & A at the end of his presentation.

About the Presenter:

After undergraduate studies at the Univ. of California, Berkeley, Dr. Corless received his MD and PhD degrees from Washington University, St. Louis. He did his residency training in Anatomic Pathology at the Brigham & Women’s Hospital, Boston, where he also completed fellowship training in GI Pathology and GU Pathology. He joined the faculty of Oregon Health & Science University in 1994 and was promoted to Professor in 2004. During his career he has served as the residency program director in Pathology and medical director of surgical pathology for OHSU Hospital. He is presently the Director and Chief Medical Officer of the Knight Diagnostic Laboratories at OHSU. An author on over 260 publications, Dr. Corless has expertise in the application of molecular diagnostics to the classification and prognostication of solid tumors.

Technical Tips to Join Meeting:

This is a web only meeting, accessed only by your internet connection. Participants are encouraged to use the web link automatically provided after registration and to use computer speakers (and/or headsets if available) to hear the audio portion of the meeting. Please log in at least ten minutes prior to the start of the webinar.
Please ensure you have an updated version of Adobe Flash Player (Google Chrome has Flash built in).
If you are using a mobile device or tablet, in order to view and hear the conference, download the ReadyTalk App from your App store.

Disclaimer:
We cannot provide individual medical advice during this webcast. Information provided in this webcast is not intended as a substitute for your physician’s guidance and care.

Life Raft Group Canada - Toronto Get-Together
2019-03-31 14:00 - 16:00 (America/Toronto) | Wellspring – Westerkirk House, 105 Wellness Way, Toronto, Ontario
GIST Sarcoma Life Raft Group Canada (LRGC) is pleased to invite GIST patients and caregivers to get together to share our collective knowledge about living with and managing GIST. This is a continuation of our informal GIST Get-Togethers that began in 2011.
Hazel McLeod will lead an informal round-table discussion

David Josephy will give a GIST presentation that includes a Q&A session
David Josephy is a Professor of Molecular and Cellular Biology at the University of Guelph, where he has taught for more than 35 years. He has been President of GIST Sarcoma Life Raft Group Canada (LRGC) since its inception in 2008. In 2010, David spent a sabbatical term working in the laboratory of Dr. Jonathan Fletcher, a leading GIST researcher at Brigham and Women’s Hospital in Boston. David is a member of the Science Team of The Life Raft Group (USA) and collaborates with GIST patient support groups around the world. His research interests are in the field of Molecular Toxicology. He is particularly interested in the scientific basis for development of new small-molecule drugs for GIST.

To REGISTER or for further INFORMATION
please reply to this email or
contact Life Raft Group Canada
855-574-4478
info@liferaftgroup.ca

LRG Webcast: The Biology of GIST
2019-03-13 12:00 - 13:00 (America/New_York)
What Every Patient Needs to Know
Wondering what in the world Gastrointestinal Stromal Tumor (GIST) is?
Join longtime friend of the Life Raft Group and LRG Science Team member, Dr. David Josephy, as he presents the basics of cell biology in cancer, focusing on GIST.
Presented in an easy-to-understand way, Dr. Josephy unravels the mystery behind the differences between sarcomas and carcinomas; protein expression and the role of immunohistochemistry in diagnosis; the significance of mutations in the KIT and PDGFRA genes and the mechanism of action of tyrosine kinase inhibitor drugs.
Sound complicated? Dr. Josephy’s approachable style will decode the terminology and concepts for you, whether you are newly diagnosed or are a long-term survivor.
There will be at 15 min Q&A at the end of his presentation.

Listen to the Webcast

About the Presenter:
David Josephy is a Professor of Molecular and Cellular Biology at the University of Guelph, where he has taught for more than 35 years. He has been President of GIST Sarcoma Life Raft Group Canada (LRGC) since its inception in 2008.
In 2010, David spent a sabbatical term working in the laboratory of Dr. Jonathan Fletcher, a leading GIST researcher at Brigham and Women’s Hospital in Boston.
David is a member of the Science Team of The Life Raft Group (USA) and collaborates with GIST patient support groups around the world. His research interests are in the field of Molecular Toxicology. He is particularly interested in the scientific basis for development of new small-molecule drugs for GIST.

Technical Tips to Join Meeting:

This is a web only meeting, accessed only by your internet connection. Participants are encouraged to use the web link automatically provided after registration and to use computer speakers (and/or headsets if available) to hear the audio portion of the meeting. Please log in at least ten minutes prior to the start of the webinar.
Please ensure you have an updated version of Adobe Flash Player (Google Chrome has Flash built in).
If you are using a mobile device or tablet, in order to view and hear the conference, download the ReadyTalk App from your App store.

Disclaimer:
We cannot provide individual medical advice during this webcast. Information provided in this webcast is not intended as a substitute for your physician’s guidance and care.

GIST Laugh
2019-03-08 19:00 - 22:00 (America/New_York) | Town Tavern DC, 2323 18th Street Northwest, Washington, DC, 20009, United States
GIST Laugh invites attendees 21+ to join us for night filled with comedy! Local stand-up comics will show off their talent, competing to win your votes and be declared Favorite Comedian! Join us for the fun and the fundraising, as we walk one step closer to finding a cure for this rare disease called GIST.
Each ticket comes with 20 votes for your favorite comedian. You will also be able to purchase additional votes at the event.
Comedians:

Kim Casem
Maha Hilal
Monsell Carty
George Antwi-Obimpeh
Sheila Wenz
Shannon Huber
Mariam Aydoun
Veronica Carlan
Andrea Shedler*

*Votes for Andrea Shedler will be counted as “general donations” and split evenly among the other comedians.

GIST Patienten- und Angehörigentreffen
2019-03-08 15:00 - 19:00 (Europe/Vienna) | Hotel Astoria, Kärntner Straße 32-34, Eingang Führichgasse 1, 1010 Wien, Vienna, Austria
GIST Support Österreich
10. GIST Patienten- und Angehörigentreffen
Sehr geehrte Damen und Herren,
im Namen des GIST Panels Austria (GIPA) und des GIST Support Österreich laden wir Sie herzlich
– mit freundlicher Unterstützung der Novartis Pharma GmbH –
zur Teilnahme am 10. GIST Patienten- und Angehörigentreffen in Wien ein.
Das Treffen bietet Ihnen die Gelegenheit, sich umfassend über GIST zu informieren und sich mit anderen Betroffenen und Angehörigen auszutauschen. Namhafte Experten aus dem Bereich Pathologie, Chirurgie und Onkologie präsentieren die neuesten Entwicklungen zu GIST und stehen Ihnen für persönliche Fragen zur Verfügung.
Freitag, 8. März 2019
Beginn: 15:00 Uhr
Voraussichtliches Ende: 19:00 Uhr
ORT:
Hotel Astoria
Kärntnerstraße 32 (Eingang: Führichgasse 1), 1010 Wien
Referenten
Brodowicz T. / Bruno-Lindner A. / Lenauer A. / Liegl-Atzwanger B.
Loewe Ch. / Reiterer R. / Sawdyk R. / Szkanera J. / Wartenberg M.
Programmübersicht
Diagnostik
Genetik, Pathologie
Chirurgie
Interventionelle Radiologie / Der radiologische Befund
Adjuvante / Begleitende Therapie
Medikamentöse Therapie des metastasierten GIST
Progress: Fortschreiten unter medikamentöser Therapie – Neue Ansätze der GIST-Forschung
Kur und medizinische Rehabilitation
Pension: Invaliditäts- und Berufsunfähigkeitspension / Erwerbsunfähigkeitspension
Wiedereingliederungsteilzeitgesetz
Die Teilnahme an dieser Veranstaltung – inklusive kleinem Imbiss – ist kostenlos
kontakt@gistsupport.at
Veranstaltungsseite

GDOL Los Angeles 2019
2019-02-16 08:00 - 17:00 (America/Los_Angeles) | Ronald Reagan UCLA Medical Center, 757 Westwood Plaza, Los Angeles, CA, 90095, United States
View Recap, Gallery, & Presentations

Night to Fight Cancer
2018-11-07 18:00 - 23:00 (America/New_York) | Midtown Loft & Terrace, 267 5th Avenue, New York, NY, 10016, United States
Join us for the 15th annual Night to Fight Cancer on November 7th at Midtown Loft. Hosted by Jerry Cudzil & Matt Knopman
See photos & event recap

Michigan GDOL 2018
2018-10-27 08:00 - 15:00 (America/New_York) | University of Michigan, Michigan League, 911 North University Avenue, 2nd Floor, Hussey Room, Ann Arbor, MI, 48109-1265, United States
Description
GIST Days of Learning are one-day programs that provide education and support for people who have GIST and their caregivers, and are free to all who attend.
See event recap here

Agenda subject to change
Agenda

8:15am – 9:15am
Registration

9:15am – 9:30am
Introduction and Brief History of GIST
Lawrence Baker – Medical Oncologist

9:30am – 10:00am
The Role of the Cancer Surgeon in Diagnosis and Therapy
Will Burns – Surgical Oncologist

10:00am – 10:30am
The Role of the Medical Oncologist in Diagnosis and Therapy
Rashmi Chugh – Medical Oncologist

10:30am – 10:45am
Break

10:45am – 11:45am
Drug Interactions and other FAQ and Side Effect Management
Rachelle McDivitt – Clinical Pharmacist
Stephanie Taylor, RN, Oncology

11:45am – 1:00pm
Lunch
Roundtables & Patient Stories led by Physician Assistants and Nurse Practitioners

1pm – 1:30pm
New Therapies on the Horizon
Scott Schuetze – Medical Oncologist

1:30pm – 2:00pm
GIST Patients as Cancer Survivors
Lawrence Baker

Q&A to follow

Sarcoma & GIST: Education Symposium
2018-09-29 09:00 - 14:45 (America/New_York) | Dana-Farber Cancer Institute, 450 Brookline Ave., Boston, MA, United States
This free educational event is open to the public and will feature presentations from experts from Dana-Farber and Brigham and Women’s Hospital. They will share updates on research advances and emerging therapies for GIST and sarcomas, as well as information on complementary therapies. Each presentation will include time for audience questions. There will also be small group discussions with expert sarcoma medical oncologists during the lunch hour.
Presentations will include: • Radiology • Surgery • Radiation • Clinical trials/emerging therapies • Panel on complementary therapies and other Zakim Center services For directions, visit www.dana-farber.org/directions
Register online at https://sarcoma.eventbrite.com. To learn more about the conference, visit www.dana-farber.org/sarcoma and click on the link for the Sarcoma and GIST patient event.
If you have additional questions, please call Paige Tobie at 617-632-5368

LRG Webcast: What is SDH...
2018-09-05 12:00 - 13:00 (America/New_York)
How Is It Related to Cancer, and What Can Be Done About It?
SDH is a protein that is based in the mitochondria. Its loss causes a major energy and metabolic crisis. Despite this, some types of cells can ‘benefit’ from the loss of SDH and continue to grow uncontrollably and generate tumors.
Identifying metabolic enzymes as molecular drug targets that are uniquely essential for the survival of SDH-deficient cells is a key first step in the development of new therapies for SDH-deficient tumors. Some of these druggable enzymatic targets are being actively pursued.
Dr. Eyal Gottlieb will break down the biology of cells and discuss metabolism and growth during cancer formation.
This webcast is geared for patients and families with SDH-deficient GIST and other tumors.
There will be at 15 min Q&A at the end of his presentation.
View the Webcast

To submit questions that could potentially be addressed during the webcast, please submit to Sara Rothschild at srothschild@liferaftgroup.org by September 1.
For some background on cancer metabolism, review this document.
Presenter

Dr. Eyal Gottlieb
Laura and Isaac Perlmutter Chair of Cancer Research, Faculty of Medicine
Technion – Israel Institute of Technology
Haifa, Israel

Technical Tips to Join Meeting:

This is a web only meeting, accessed only by your internet connection. Participants are encouraged to use the web link automatically provided after registration and to use computer speakers (and/or headsets if available) to hear the audio portion of the meeting. Please log in at least ten minutes prior to the start of the webinar.
Please ensure you have an updated version of Adobe Flash Player (Google Chrome has Flash built in).
If you are using a mobile device or tablet, in order to view and hear the conference, download the ReadyTalk App from your App store.

GIST Do It - Walk to Find a Cure
2018-07-15 07:00 - 20:30 (America/New_York)
GIST Do It. invites participants of all ages to join us in the estimated three-mile walk. Refreshments, giveaways and guest speakers will be a part of the event. Join us for the fun and the fundraising, as we walk one step closer to finding a cure for this rare disease called GIST.
Sunday, July 15th, 2018
7:00 am – 8:30 am
Margaret Pace Park
Miami, Florida
$25 per walker
If you are unable to participate in person, you can register to become a virtual participant.
When you complete your registration it will lead you to create/join a fundraising team.

Register for the GIST Do It Walk

If you have any questions or concerns please email Jessica Nowak jnowak@liferaftgroup.org

Life Fest 2018
2018-07-13 | Hilton Miami Downtown, 1601 Biscayne Boulevard, Miami, FL, 33132, United States
RegisterBook A Hotel
Life Fest is a unique event where hundreds of patients and caregivers come together for a weekend to interact with each other and the medical and scientific communities that serve them. Faced with a rare form of cancer, GIST patients have a great need for information about this disease, particularly as the science evolves and our understanding reveals a complex set of subtypes of GIST, each responding differently to available treatments. Each year brings a wealth of new information, and patients are eager to learn about the latest treatments.
Life Fest workshops provide patients with emerging medical information, and they come away with a deeper knowledge of the disease, treatments and side effect management. They find hope in knowing the scientific community is working toward a cure, and hope is such a vital asset as they struggle day by day for survival. Life Fest Agenda 2018
The Life Raft Group emerged in recognition of the tremendous need for support in the GIST community. Life Fest 2018 will provide patients and caregivers with that support. Coming together with fellow patients from all walks of life from around the world is a meaningful and powerful experience.
In addition to our traditional educational workshops, Life Fest 2018 will feature scientific presentations highlighting the newest research and the latest treatments. Additionally, other disease advocacy groups will be invited to present the work of their organizations, and share lessons learned.
Scholarship/financial assistance will be available to those who can’t afford to participate in Life Fest. The intention of the scholarship/financial aid fund is to make Life Fest available to individual patients, family members and/or caregivers, regardless of their financial situation.
Date / Time
Friday July 13th – 3-5PM
Saturday July 14th – 7:30-5PM
Sunday, July 15th – 8:45AM-noon
Location
Hilton Miami Downtown
1601 Biscayne Boulevard
Miami, FL 33132

Halifax GDOL 2018
2018-05-26 10:30 - 15:00 (America/New_York) | Best Western Chocolate Lake Hotel 250 St Margaret Bay Road – Halifax, 250 St Margaret Bay Road, Halifax, NS, Canada
Life Raft Group Canada is pleased to announce that the GIST Day of Learning is coming to the Maritimes. The Day of Learning is a free one-day conference that provides education and support for people who have GIST, their caregivers, healthcare teams and anyone who wishes to learn more about GIST. The Day of Learning will cover many aspects of living with and understanding GIST as well as the new GIST therapies being developed. It will also be a great opportunity for you to connect with other GIST patients, caregivers and the presenters.
Refreshments and Lunch will be served.
David Josephy is a Professor of Molecular and Cellular Biology at the University of Guelph, where he has taught for more than 30 years. He is a GIST caregiver and has been President of GIST Sarcoma Life Raft Group Canada (LRGC) since its inception in 2008. In 2010, David spent a sabbatical term working in the laboratory of Dr.Jonathan Fletcher, a leading GIST researcher at Brigham and Women’s Hospital in Boston. David is a member of the Science Team of The Life Raft Group (USA) and collaborates with GIST patient support groups around the world. His research interests are in the field of Molecular Toxicology. He is particularly interested in the scientific basis for development of new small-molecule drugs for GIST.

Register
Call: 855-574-4475
Email: malcolm.sutherland@liferaftgroup.ca

The LRG Annual Poker Tournament
2012-09-13 18:00 - 2012-09-14 00:00 (America/New_York) | Midtown Loft & Terrace, 267 5th Avenue, New York, NY, 10016, United States
The 9th Annual LRG Poker Tournament will be held on September 3rd at Midtown Lofts in Manhattan. Players will have a chance to win a grand prize worth $10,000 for a seat in the World Series of Poker. The cost to play is $500 and the cost to watch is $100 per person.
