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DTSTART;TZID=America/New_York:20240305T180000
DTEND;TZID=America/New_York:20240305T193000
DTSTAMP:20260403T191643
CREATED:20230727T133611Z
LAST-MODIFIED:20240823T152527Z
UID:10000601-1709661600-1709667000@liferaftgroup.org
SUMMARY:Virtual GIST Patient Support Group
DESCRIPTION:The Patient Support Group meets via Zoom on the first and third Tuesday of each month from 6:00 PM – 7:30 PM ET (NYC Time). \nWe will start each group with a “Round Robin” in which anyone who feels like updating the group on how they are doing/feeling can do so. There is no pressure to speak if you prefer to simply listen. Once we complete our updates\, the group will have the opportunity for organic conversation to develop in relation to our emotional experiences around GIST\, and other challenges that we may be experiencing as a community. \nIn order to be able to moderate a flowing discussion\, the group will be capped at 15 people each month. The first 15 people into the Zoom waiting room will participate. Keep in mind that since the group is now open\, you don’t necessarily have to attend each month to participate. \nContact Brian Morello to join: bmorello@liferaftgroup.org
URL:https://liferaftgroup.org/event/virtual-gist-patient-support-group-2023-first/2024-03-05/
LOCATION:NJ
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/01/GISTer-Support-Group-2022-1.png
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240306T130000
DTEND;TZID=America/New_York:20240306T140000
DTSTAMP:20260403T191643
CREATED:20230727T134933Z
LAST-MODIFIED:20240614T133545Z
UID:10000637-1709730000-1709733600@liferaftgroup.org
SUMMARY:Virtual GIST Caregiver Support Group
DESCRIPTION:Monthly Virtual Support Group for GIST Caregivers\nHeld on the first Wednesday of the month \nLRG hosts a monthly virtual support group for the caregivers. We will share our stories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling during this journey as a caregiver. The group will be a safe space not only to feel supported by your fellow caregivers\, but also a place to share our own coping mechanisms\, concerns\, successes and trials. All information shared will be kept confidential. \nContact Brian Morello to join: bmorello@liferaftgroup.org \nAbout the Group Leader:\nMarlene Nei\, GIST Caregiver\nAs an active member of The Life Raft Group\, Marlene advocates for the needs of the caregiver community because she feels they are an underrepresented group. It is her mission to advocate for the entire GIST community making sure they are equipped with the appropriate resources on their GIST journey.
URL:https://liferaftgroup.org/event/virtual-gist-caregiver-support-group-2023/2024-03-06/
LOCATION:NJ
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2023/05/caregiver-sg-2023.jpg
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240311T180000
DTEND;TZID=America/New_York:20240311T180000
DTSTAMP:20260403T191644
CREATED:20240103T160444Z
LAST-MODIFIED:20240528T154748Z
UID:10000649-1710180000-1710180000@liferaftgroup.org
SUMMARY:Virtual Florida Support Group
DESCRIPTION:Florida Support Group\nZoom\, 2nd Monday of the Month – 6pm ET\nOur moderator is a fellow GISTER/LRG Member from Florida diagnosed with GIST in late 2016.\nIf you wish to attend\, please email Brian Morello: bmorello@liferaftgroup.org for the Zoom link for the meeting.
URL:https://liferaftgroup.org/event/virtual-florida-support-group-2/2024-03-11/
LOCATION:NJ
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2022/09/florida-support-group.jpg
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240319T180000
DTEND;TZID=America/New_York:20240319T193000
DTSTAMP:20260403T191644
CREATED:20230727T134306Z
LAST-MODIFIED:20260105T170322Z
UID:10000708-1710871200-1710876600@liferaftgroup.org
SUMMARY:Virtual GIST Patient Support Group
DESCRIPTION:The Patient Support Group meets via Zoom on the first and third Tuesday of each month from 6:00 PM – 7:30 PM ET (NYC Time). \nWe will start each group with a “Round Robin” in which anyone who feels like updating the group on how they are doing/feeling can do so. There is no pressure to speak if you prefer to simply listen. Once we complete our updates\, the group will have the opportunity for organic conversation to develop in relation to our emotional experiences around GIST\, and other challenges that we may be experiencing as a community. \nIn order to be able to moderate a flowing discussion\, the group will be capped at 15 people each month. The first 15 people into the Zoom waiting room will participate. Keep in mind that since the group is now open\, you don’t necessarily have to attend each month to participate. \nContact Brian Morello to join: bmorello@liferaftgroup.org
URL:https://liferaftgroup.org/event/virtual-gist-patient-support-group-third/2024-03-19/
LOCATION:NJ
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/01/GISTer-Support-Group-2022-1.png
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240402T180000
DTEND;TZID=America/New_York:20240402T193000
DTSTAMP:20260403T191644
CREATED:20230727T133611Z
LAST-MODIFIED:20240823T152527Z
UID:10000602-1712080800-1712086200@liferaftgroup.org
SUMMARY:Virtual GIST Patient Support Group
DESCRIPTION:The Patient Support Group meets via Zoom on the first and third Tuesday of each month from 6:00 PM – 7:30 PM ET (NYC Time). \nWe will start each group with a “Round Robin” in which anyone who feels like updating the group on how they are doing/feeling can do so. There is no pressure to speak if you prefer to simply listen. Once we complete our updates\, the group will have the opportunity for organic conversation to develop in relation to our emotional experiences around GIST\, and other challenges that we may be experiencing as a community. \nIn order to be able to moderate a flowing discussion\, the group will be capped at 15 people each month. The first 15 people into the Zoom waiting room will participate. Keep in mind that since the group is now open\, you don’t necessarily have to attend each month to participate. \nContact Brian Morello to join: bmorello@liferaftgroup.org
URL:https://liferaftgroup.org/event/virtual-gist-patient-support-group-2023-first/2024-04-02/
LOCATION:NJ
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/01/GISTer-Support-Group-2022-1.png
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240403T130000
DTEND;TZID=America/New_York:20240403T140000
DTSTAMP:20260403T191644
CREATED:20230727T134933Z
LAST-MODIFIED:20240614T133545Z
UID:10000638-1712149200-1712152800@liferaftgroup.org
SUMMARY:Virtual GIST Caregiver Support Group
DESCRIPTION:Monthly Virtual Support Group for GIST Caregivers\nHeld on the first Wednesday of the month \nLRG hosts a monthly virtual support group for the caregivers. We will share our stories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling during this journey as a caregiver. The group will be a safe space not only to feel supported by your fellow caregivers\, but also a place to share our own coping mechanisms\, concerns\, successes and trials. All information shared will be kept confidential. \nContact Brian Morello to join: bmorello@liferaftgroup.org \nAbout the Group Leader:\nMarlene Nei\, GIST Caregiver\nAs an active member of The Life Raft Group\, Marlene advocates for the needs of the caregiver community because she feels they are an underrepresented group. It is her mission to advocate for the entire GIST community making sure they are equipped with the appropriate resources on their GIST journey.
URL:https://liferaftgroup.org/event/virtual-gist-caregiver-support-group-2023/2024-04-03/
LOCATION:NJ
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2023/05/caregiver-sg-2023.jpg
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240408T180000
DTEND;TZID=America/New_York:20240408T180000
DTSTAMP:20260403T191644
CREATED:20240103T160444Z
LAST-MODIFIED:20240528T154748Z
UID:10000650-1712599200-1712599200@liferaftgroup.org
SUMMARY:Virtual Florida Support Group
DESCRIPTION:Florida Support Group\nZoom\, 2nd Monday of the Month – 6pm ET\nOur moderator is a fellow GISTER/LRG Member from Florida diagnosed with GIST in late 2016.\nIf you wish to attend\, please email Brian Morello: bmorello@liferaftgroup.org for the Zoom link for the meeting.
URL:https://liferaftgroup.org/event/virtual-florida-support-group-2/2024-04-08/
LOCATION:NJ
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2022/09/florida-support-group.jpg
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240411T120000
DTEND;TZID=America/New_York:20240411T120000
DTSTAMP:20260403T191644
CREATED:20240313T180524Z
LAST-MODIFIED:20240403T190917Z
UID:10000770-1712836800-1712836800@liferaftgroup.org
SUMMARY:Gaining Insight on the INSIGHT Phase 3 Study
DESCRIPTION:The Life Raft Group is partnering with Dr. Neeta Somaiah of MD Anderson Cancer Center to host "Gaining Insight on the Phase 3 INSIGHT Clinical Trial" for the GIST community on April 11th\, 2024 from 12-1:15 pm ET. During the webinar\, Dr. Somaiah will present an overview of Deciphera Pharmaceutical's Phase 3 INSIGHT Clinical Trial. This study tests the investigational use of ripretinib in a subset of patients living with GIST. Webinar participants will learn about the INSIGHT study\, including eligibility\, site locations\, and study rationale. A Q & A session will follow the presentation.    \nPlease email srothschild@liferaftgroup.org to submit a question ahead of the presentation.  \n\n\n\n\nPlease note that this webinar is not a substitute for your physician's guidance and care.\nREGISTERAbout Our Presenter\nNeeta Somaiah\, MD\nMD Anderson Cancer Center \nDr. Neeta Somaiah received her medical degree from Maulana Azad Medical College in New Delhi\, India and has trained at St. John’s Episcopal in New York\, Drexel University Hospital and Fox Chase Cancer Center in Philadelphia\, prior to joining MD Anderson Cancer Center.  \nDr. Somaiah joined MD Anderson Cancer Center in 2012.  She has thirteen years of sarcoma and clinical research experience. She is board certified in Medical Oncology.  Her primary clinical and research focus is soft tissue sarcomas\, specifically liposarcomas and GIST.  She currently serves as the Principal Investigator of three investigator-initiated trials and nine cooperative group and industry-sponsored clinical trials at MD Anderson Cancer Center and has in depth knowledge with extensive experience in the design and execution of clinical trials. She also has multiple ongoing collaborations for translational research\, both retrospective and prospective\, that help improve the understanding of these rare group of diseases and explore the role of immunotherapy as a therapeutic avenue.  Dr. Somaiah has been presented many honors for her expertise and contributions to science\, including an Exceptional Women in Medicine award and is among the top 1% providers nationally.   \nThank you to our Webinar Sponsor!
URL:https://liferaftgroup.org/event/gaining-insight-on-the-insight-phase-3-study/
LOCATION:NJ
CATEGORIES:Education,Events,Webcast
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240416T180000
DTEND;TZID=America/New_York:20240416T193000
DTSTAMP:20260403T191644
CREATED:20230727T134306Z
LAST-MODIFIED:20260105T170322Z
UID:10000709-1713290400-1713295800@liferaftgroup.org
SUMMARY:Virtual GIST Patient Support Group
DESCRIPTION:The Patient Support Group meets via Zoom on the first and third Tuesday of each month from 6:00 PM – 7:30 PM ET (NYC Time). \nWe will start each group with a “Round Robin” in which anyone who feels like updating the group on how they are doing/feeling can do so. There is no pressure to speak if you prefer to simply listen. Once we complete our updates\, the group will have the opportunity for organic conversation to develop in relation to our emotional experiences around GIST\, and other challenges that we may be experiencing as a community. \nIn order to be able to moderate a flowing discussion\, the group will be capped at 15 people each month. The first 15 people into the Zoom waiting room will participate. Keep in mind that since the group is now open\, you don’t necessarily have to attend each month to participate. \nContact Brian Morello to join: bmorello@liferaftgroup.org
URL:https://liferaftgroup.org/event/virtual-gist-patient-support-group-third/2024-04-16/
LOCATION:NJ
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/01/GISTer-Support-Group-2022-1.png
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240430T120000
DTEND;TZID=America/New_York:20240430T120000
DTSTAMP:20260403T191644
CREATED:20240403T191818Z
LAST-MODIFIED:20240403T191818Z
UID:10000771-1714478400-1714478400@liferaftgroup.org
SUMMARY:Educate Yourself on GIST Research
DESCRIPTION:How to Educate Yourself on GIST Research – Searching the Web for GIST Science Publications\nLife Raft Group Science Team Member Jim Hughes will present “How to Educate Yourself on GIST Research- Searching the Web for GIST Science Publications” to GIST patients & caregivers on April 30th\, 2024 at 12pm ET. During this virtual presentation\, Jim will outline the importance of patients and caregivers researching their cancer in order to best advocate for themselves. Jim will explain the importance of GIST publications and how to effectively do your own research\, and how to work together with fellow community members to share research findings. \nPlease email srothschild@liferaftgroup.org to submit a question ahead of the presentation.  \n\n\n\nPlease note that this webinar is not a substitute for your physician’s guidance and care.\nREGISTERAbout Our Presenter\n \nJim Hughes\nLRG Clinical Trials Database Coordinator/Science Team Member \nJim Hughes attended Kenyon College\, Ohio and Loyola University\, Chicago where he earned a BA in Philosophy. Between schools Jim served as an officer in the United States Army in the US and Vietnam and following his service worked in telecommunications for 35 years. \nJim and Margi are the parents of two children\, Nancy and Jamie. Nancy Hughes Welsh was an early member of The Life Raft Group (2002). Nancy was diagnosed with leiomyosarcoma in 1991 at age 23. After ten years of surgery and chemotherapy Nancy was re-diagnosed with GIST in 2001. Nancy participated in the Phase Three imatinib trial in 2001 and the Phase Two sunitinib trial in 2003. Nancy’s GIST was eventually diagnosed as SDH epimutant and passed away in 2005. \nJim serves as a Life Raft Group Board Member\, our Clinical Trials Database Coordinator and is a founding member of the LRG Science Team. \n  \nThank you to our Webinar Sponsors!
URL:https://liferaftgroup.org/event/educate-yourself-on-gist-research/
LOCATION:NJ
CATEGORIES:Education,Events,Webcast
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240501T130000
DTEND;TZID=America/New_York:20240501T140000
DTSTAMP:20260403T191644
CREATED:20230727T134933Z
LAST-MODIFIED:20240614T133545Z
UID:10000639-1714568400-1714572000@liferaftgroup.org
SUMMARY:Virtual GIST Caregiver Support Group
DESCRIPTION:Monthly Virtual Support Group for GIST Caregivers\nHeld on the first Wednesday of the month \nLRG hosts a monthly virtual support group for the caregivers. We will share our stories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling during this journey as a caregiver. The group will be a safe space not only to feel supported by your fellow caregivers\, but also a place to share our own coping mechanisms\, concerns\, successes and trials. All information shared will be kept confidential. \nContact Brian Morello to join: bmorello@liferaftgroup.org \nAbout the Group Leader:\nMarlene Nei\, GIST Caregiver\nAs an active member of The Life Raft Group\, Marlene advocates for the needs of the caregiver community because she feels they are an underrepresented group. It is her mission to advocate for the entire GIST community making sure they are equipped with the appropriate resources on their GIST journey.
URL:https://liferaftgroup.org/event/virtual-gist-caregiver-support-group-2023/2024-05-01/
LOCATION:NJ
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2023/05/caregiver-sg-2023.jpg
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240507T180000
DTEND;TZID=America/New_York:20240507T193000
DTSTAMP:20260403T191644
CREATED:20230727T133611Z
LAST-MODIFIED:20240823T152527Z
UID:10000603-1715104800-1715110200@liferaftgroup.org
SUMMARY:Virtual GIST Patient Support Group
DESCRIPTION:The Patient Support Group meets via Zoom on the first and third Tuesday of each month from 6:00 PM – 7:30 PM ET (NYC Time). \nWe will start each group with a “Round Robin” in which anyone who feels like updating the group on how they are doing/feeling can do so. There is no pressure to speak if you prefer to simply listen. Once we complete our updates\, the group will have the opportunity for organic conversation to develop in relation to our emotional experiences around GIST\, and other challenges that we may be experiencing as a community. \nIn order to be able to moderate a flowing discussion\, the group will be capped at 15 people each month. The first 15 people into the Zoom waiting room will participate. Keep in mind that since the group is now open\, you don’t necessarily have to attend each month to participate. \nContact Brian Morello to join: bmorello@liferaftgroup.org
URL:https://liferaftgroup.org/event/virtual-gist-patient-support-group-2023-first/2024-05-07/
LOCATION:NJ
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/01/GISTer-Support-Group-2022-1.png
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240513T180000
DTEND;TZID=America/New_York:20240513T180000
DTSTAMP:20260403T191644
CREATED:20240103T160444Z
LAST-MODIFIED:20240528T154748Z
UID:10000651-1715623200-1715623200@liferaftgroup.org
SUMMARY:Virtual Florida Support Group
DESCRIPTION:Florida Support Group\nZoom\, 2nd Monday of the Month – 6pm ET\nOur moderator is a fellow GISTER/LRG Member from Florida diagnosed with GIST in late 2016.\nIf you wish to attend\, please email Brian Morello: bmorello@liferaftgroup.org for the Zoom link for the meeting.
URL:https://liferaftgroup.org/event/virtual-florida-support-group-2/2024-05-13/
LOCATION:NJ
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2022/09/florida-support-group.jpg
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240518T083000
DTEND;TZID=America/New_York:20240518T150000
DTSTAMP:20260403T191644
CREATED:20240202T144246Z
LAST-MODIFIED:20240813T205301Z
UID:10000766-1716021000-1716044400@liferaftgroup.org
SUMMARY:GDOL Chicago 2024
DESCRIPTION:GDOL Chicago is an in-person event and will be held at Northwestern University Feinberg School of Medicine\, Lurie Baldwin Auditorium. \nREGISTERWhat is a GDOL? \nA GDOL is a GIST Day of Learning. This is a free one day event to help patients and caregivers learn more about this rare cancer\, find support\, and enhance their knowledge base to help them navigate their cancer journey. \nThe Life Raft Group is committed to enhancing the survival and quality of life for people living with Gastrointestinal Stromal Tumor (GIST)\, and other rare diseases\, through patient-powered research\, education and empowerment\, and global advocacy efforts. Our vision is to empower a future fueled by data\, guiding our journey toward cures for rare diseases. \nIf you have any questions\, please contact Diana Nieves at dnieves@liferaftgroup.org \nClick image for a PDF of the Agenda: \nThank you to our Sponsors!
URL:https://liferaftgroup.org/event/gdol-chicago-2024/
LOCATION:Northwestern University Feinberg School of Medicine\, Lurie Baldwin Auditorium\, 303 East Superior Street\, Chicago\, IL\, United States
CATEGORIES:Education,Events
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240521T180000
DTEND;TZID=America/New_York:20240521T193000
DTSTAMP:20260403T191644
CREATED:20230727T134306Z
LAST-MODIFIED:20260105T170322Z
UID:10000710-1716314400-1716319800@liferaftgroup.org
SUMMARY:Virtual GIST Patient Support Group
DESCRIPTION:The Patient Support Group meets via Zoom on the first and third Tuesday of each month from 6:00 PM – 7:30 PM ET (NYC Time). \nWe will start each group with a “Round Robin” in which anyone who feels like updating the group on how they are doing/feeling can do so. There is no pressure to speak if you prefer to simply listen. Once we complete our updates\, the group will have the opportunity for organic conversation to develop in relation to our emotional experiences around GIST\, and other challenges that we may be experiencing as a community. \nIn order to be able to moderate a flowing discussion\, the group will be capped at 15 people each month. The first 15 people into the Zoom waiting room will participate. Keep in mind that since the group is now open\, you don’t necessarily have to attend each month to participate. \nContact Brian Morello to join: bmorello@liferaftgroup.org
URL:https://liferaftgroup.org/event/virtual-gist-patient-support-group-third/2024-05-21/
LOCATION:NJ
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/01/GISTer-Support-Group-2022-1.png
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240522T110000
DTEND;TZID=America/New_York:20240522T110000
DTSTAMP:20260403T191644
CREATED:20240422T181945Z
LAST-MODIFIED:20240423T174622Z
UID:10000772-1716375600-1716375600@liferaftgroup.org
SUMMARY:Demystifying Clinical Trials
DESCRIPTION:Insights from Experts and Participants\nJoin us May 22nd at 11am ET for an informative webinar presented by Dr. Candace Haddox of Dana-Farber Cancer Institute offering invaluable insights into the world of clinical trials in honor of International Clinical Trials Awareness Day. Dr. Haddox will delve into the fundamentals of clinical trials\, discussing their significance\, weighing the pros and cons of participation\, and guiding attendees through the entire process\, from initiation to conclusion. Following Dr. Haddox’s presentation\, there will be an interactive discussion with GISTer Kandee Evans\, currently enrolled in a clinical trial\, offering firsthand experiences and perspectives. A Q&A session will follow the presentation. \nPlease email srothschild@liferaftgroup.org to submit a question ahead of the presentation.  \n\n\n\nPlease note that this webinar is not a substitute for your physician’s guidance and care.\nREGISTERAbout Our Presenters\n \nDr. Candace Haddox \nDana-Farber Cancer Institute \nDr. Haddox is an Instructor in Medicine at Harvard Medical School\, and a medical oncologist and clinical/translational investigator in the Sarcoma Center and the Center for Cancer Therapeutic Innovation at Dana-Farber Cancer Institute. Dr. Haddox’s research focuses on developing novel therapies rooted in sarcoma biology and determining mechanisms of treatment response and resistance\, particularly in gastrointestinal stromal tumors (GIST). \nDr. Haddox received her Bachelor of Science in neurobiology from the University of Miami. She completed a post-baccalaureate research fellowship at the National Institutes of Health and received her Medical Degree from the University of South Florida. Dr. Haddox completed a residency in Internal Medicine at the Mayo Clinic in Rochester\, Minnesota\, and a fellowship in Medical Oncology at Duke University\, where she also served as Chief Fellow. She joined the faculty at Dana-Farber Cancer Institute in 2021\, where she currently sees patients with sarcomas and leads clinical trials in early drug development. \n \nKandee Evans \nGIST Advocate \nWith a career spanning over three decades\, Kandee Evans is a project management veteran who knows how to make things happen. After dedicating 30 years to her profession\, Kandee recently left her job to focus on her health as a GIST survivor and warrior. Not one to back down from a challenge\, she previously advocated fiercely for her oldest son when he was diagnosed with autism at just two years old. Now\, as a devoted wife and mother of two amazing sons\, Kandee continues to take on each day with grace\, courage\, and determination. \nAt the forefront of GIST research\, Kandee is making a difference through participation. She enrolled in a clinical trial with the University of Miami in February 2024\, she is helping test the effects of IDRX-42 under the direction of Dr. Jonathan Trent.  Her selfless commitment will provide key insights and move science one step closer to finding a treatment for this devastating disease. Kandee’s courage underscores the power of individuals to advance medical progress through clinical trial involvement. \nThank you to our Webinar Sponsors!
URL:https://liferaftgroup.org/event/demystifying-clinical-trials-insights-from-experts-and-participants/
LOCATION:NJ
CATEGORIES:Education,Events,Webcast
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240604T180000
DTEND;TZID=America/New_York:20240604T193000
DTSTAMP:20260403T191644
CREATED:20230727T133611Z
LAST-MODIFIED:20240823T152527Z
UID:10000604-1717524000-1717529400@liferaftgroup.org
SUMMARY:Virtual GIST Patient Support Group
DESCRIPTION:The Patient Support Group meets via Zoom on the first and third Tuesday of each month from 6:00 PM – 7:30 PM ET (NYC Time). \nWe will start each group with a “Round Robin” in which anyone who feels like updating the group on how they are doing/feeling can do so. There is no pressure to speak if you prefer to simply listen. Once we complete our updates\, the group will have the opportunity for organic conversation to develop in relation to our emotional experiences around GIST\, and other challenges that we may be experiencing as a community. \nIn order to be able to moderate a flowing discussion\, the group will be capped at 15 people each month. The first 15 people into the Zoom waiting room will participate. Keep in mind that since the group is now open\, you don’t necessarily have to attend each month to participate. \nContact Brian Morello to join: bmorello@liferaftgroup.org
URL:https://liferaftgroup.org/event/virtual-gist-patient-support-group-2023-first/2024-06-04/
LOCATION:NJ
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/01/GISTer-Support-Group-2022-1.png
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240605T130000
DTEND;TZID=America/New_York:20240605T140000
DTSTAMP:20260403T191644
CREATED:20230727T134933Z
LAST-MODIFIED:20240614T133545Z
UID:10000640-1717592400-1717596000@liferaftgroup.org
SUMMARY:Virtual GIST Caregiver Support Group
DESCRIPTION:Monthly Virtual Support Group for GIST Caregivers\nHeld on the first Wednesday of the month \nLRG hosts a monthly virtual support group for the caregivers. We will share our stories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling during this journey as a caregiver. The group will be a safe space not only to feel supported by your fellow caregivers\, but also a place to share our own coping mechanisms\, concerns\, successes and trials. All information shared will be kept confidential. \nContact Brian Morello to join: bmorello@liferaftgroup.org \nAbout the Group Leader:\nMarlene Nei\, GIST Caregiver\nAs an active member of The Life Raft Group\, Marlene advocates for the needs of the caregiver community because she feels they are an underrepresented group. It is her mission to advocate for the entire GIST community making sure they are equipped with the appropriate resources on their GIST journey.
URL:https://liferaftgroup.org/event/virtual-gist-caregiver-support-group-2023/2024-06-05/
LOCATION:NJ
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2023/05/caregiver-sg-2023.jpg
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240610T180000
DTEND;TZID=America/New_York:20240610T180000
DTSTAMP:20260403T191644
CREATED:20240528T154845Z
LAST-MODIFIED:20240823T153041Z
UID:10000652-1718042400-1718042400@liferaftgroup.org
SUMMARY:Virtual Florida Support Group
DESCRIPTION:Florida Support Group\nZoom\, 2nd Monday of the Month – 6pm ET\nOur moderator is a fellow GISTER/LRG Member from Florida diagnosed with GIST in late 2016.\nIf you wish to attend\, please email Brian Morello: bmorello@liferaftgroup.org for the Zoom link for the meeting.
URL:https://liferaftgroup.org/event/virtual-florida-support-group-2-2/2024-06-10/
LOCATION:NJ
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2022/09/florida-support-group.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240618T180000
DTEND;TZID=America/New_York:20240618T193000
DTSTAMP:20260403T191644
CREATED:20230727T134306Z
LAST-MODIFIED:20260105T170322Z
UID:10000711-1718733600-1718739000@liferaftgroup.org
SUMMARY:Virtual GIST Patient Support Group
DESCRIPTION:The Patient Support Group meets via Zoom on the first and third Tuesday of each month from 6:00 PM – 7:30 PM ET (NYC Time). \nWe will start each group with a “Round Robin” in which anyone who feels like updating the group on how they are doing/feeling can do so. There is no pressure to speak if you prefer to simply listen. Once we complete our updates\, the group will have the opportunity for organic conversation to develop in relation to our emotional experiences around GIST\, and other challenges that we may be experiencing as a community. \nIn order to be able to moderate a flowing discussion\, the group will be capped at 15 people each month. The first 15 people into the Zoom waiting room will participate. Keep in mind that since the group is now open\, you don’t necessarily have to attend each month to participate. \nContact Brian Morello to join: bmorello@liferaftgroup.org
URL:https://liferaftgroup.org/event/virtual-gist-patient-support-group-third/2024-06-18/
LOCATION:NJ
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/01/GISTer-Support-Group-2022-1.png
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240618T190000
DTEND;TZID=America/New_York:20240618T190000
DTSTAMP:20260403T191644
CREATED:20240422T181458Z
LAST-MODIFIED:20240422T182217Z
UID:10000773-1718737200-1718737200@liferaftgroup.org
SUMMARY:Updates from ASCO
DESCRIPTION:The American Society of Clinical Oncology (ASCO) is an important conference in the oncology community where new scientific research updates are shared. The Life Raft Group is excited to partner with Dr. Herbert Loong\, who will summarize abstracts and presentations that were presented during ASCO 2024 that are relevant to the GIST patient community. Join us June 18th at 7pm ET for this virtual presentation. A Q&A session will follow the presentation. \nPlease email srothschild@liferaftgroup.org to submit a question ahead of the presentation.  \n\n\n\nPlease note that this webinar is not a substitute for your physician’s guidance and care.\nREGISTERAbout Our Presenter\n \nDr. Herbert H. Loong\nThe Chinese University of Hong Kong \nDr. Herbert H. Loong holds conjoint appointments of Clinical Associate Professor in the Department of Clinical Oncology and Deputy Medical Director of the Phase 1 Clinical Trials Centre of The Chinese University of Hong Kong. He is also the current and founding convenor of the Prince of Wales Hospital Adult Sarcoma Multidisciplinary Team. \nDr. Loong has served or continues to serve in various capacities in various professional international oncology bodies\, including the International Affairs Committee and the Asia-Pacific Regional Council of ASCO\, the Membership\, Education and Communications Committees of the IASLC. He has been elected as a Board Member of the Connective Tissue Oncology Society (CTOS) for 2022-2024. He is also a founding executive committee member of the newly formed Asia Pacific Oncology Drug Development Network (APODDC). He is also a Board Member in the specialty of Medical Oncology in the Hong Kong College of Physicians. In his appointment as a Registration Committee member of Pharmacy and Poisons Board of Hong Kong\, he helps oversee the registration of medicinal products and clinical trials in the territory. \nThank you to our Webinar Sponsors!
URL:https://liferaftgroup.org/event/updates-asco-2024/
LOCATION:NJ
CATEGORIES:Education,Events,Webcast
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240702T180000
DTEND;TZID=America/New_York:20240702T193000
DTSTAMP:20260403T191644
CREATED:20230727T133611Z
LAST-MODIFIED:20240823T152527Z
UID:10000605-1719943200-1719948600@liferaftgroup.org
SUMMARY:Virtual GIST Patient Support Group
DESCRIPTION:The Patient Support Group meets via Zoom on the first and third Tuesday of each month from 6:00 PM – 7:30 PM ET (NYC Time). \nWe will start each group with a “Round Robin” in which anyone who feels like updating the group on how they are doing/feeling can do so. There is no pressure to speak if you prefer to simply listen. Once we complete our updates\, the group will have the opportunity for organic conversation to develop in relation to our emotional experiences around GIST\, and other challenges that we may be experiencing as a community. \nIn order to be able to moderate a flowing discussion\, the group will be capped at 15 people each month. The first 15 people into the Zoom waiting room will participate. Keep in mind that since the group is now open\, you don’t necessarily have to attend each month to participate. \nContact Brian Morello to join: bmorello@liferaftgroup.org
URL:https://liferaftgroup.org/event/virtual-gist-patient-support-group-2023-first/2024-07-02/
LOCATION:NJ
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/01/GISTer-Support-Group-2022-1.png
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240703T130000
DTEND;TZID=America/New_York:20240703T140000
DTSTAMP:20260403T191644
CREATED:20230727T134933Z
LAST-MODIFIED:20240614T133545Z
UID:10000641-1720011600-1720015200@liferaftgroup.org
SUMMARY:Virtual GIST Caregiver Support Group
DESCRIPTION:Monthly Virtual Support Group for GIST Caregivers\nHeld on the first Wednesday of the month \nLRG hosts a monthly virtual support group for the caregivers. We will share our stories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling during this journey as a caregiver. The group will be a safe space not only to feel supported by your fellow caregivers\, but also a place to share our own coping mechanisms\, concerns\, successes and trials. All information shared will be kept confidential. \nContact Brian Morello to join: bmorello@liferaftgroup.org \nAbout the Group Leader:\nMarlene Nei\, GIST Caregiver\nAs an active member of The Life Raft Group\, Marlene advocates for the needs of the caregiver community because she feels they are an underrepresented group. It is her mission to advocate for the entire GIST community making sure they are equipped with the appropriate resources on their GIST journey.
URL:https://liferaftgroup.org/event/virtual-gist-caregiver-support-group-2023/2024-07-03/
LOCATION:NJ
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2023/05/caregiver-sg-2023.jpg
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240708T180000
DTEND;TZID=America/New_York:20240708T180000
DTSTAMP:20260403T191644
CREATED:20240528T154845Z
LAST-MODIFIED:20240823T153041Z
UID:10000653-1720461600-1720461600@liferaftgroup.org
SUMMARY:Virtual Florida Support Group
DESCRIPTION:Florida Support Group\nZoom\, 2nd Monday of the Month – 6pm ET\nOur moderator is a fellow GISTER/LRG Member from Florida diagnosed with GIST in late 2016.\nIf you wish to attend\, please email Brian Morello: bmorello@liferaftgroup.org for the Zoom link for the meeting.
URL:https://liferaftgroup.org/event/virtual-florida-support-group-2-2/2024-07-08/
LOCATION:NJ
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2022/09/florida-support-group.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240712T120000
DTEND;TZID=America/New_York:20240712T120000
DTSTAMP:20260403T191644
CREATED:20240617T175754Z
LAST-MODIFIED:20250311T151017Z
UID:10000784-1720785600-1720785600@liferaftgroup.org
SUMMARY:GIST Awareness Day: A Focus on GIST Research
DESCRIPTION:July 13th\, GIST Awareness Day\, is a time when GIST experts\, patients\, and caregivers come together to educate the public about this disease and advocate for finding a cure.  The Life Raft Group invites GIST patients and caregivers to celebrate GIST Awareness Day with us on July 12th at 12PM ET. During this virtual event\, Dr. Matthew Hemming and PhD candidate Favour Akabogu of UMass Cancer Center will discuss exploring mechanisms driving GIST\, treatment efficacy\, and clinical outcomes\, as well as the importance of patient involvement in rare disease research. An interactive Q&A segment will follow their presentations. \n\nPlease email srothschild@liferaftgroup.org to submit a question ahead of the presentation.  \n\n\n\nPlease note that this webinar is not a substitute for your physician’s guidance and care.\nREGISTERAbout Our Presenters\n \nDr. Matthew Hemming\nUMass Chan Medical School \nDr. Matthew Hemming  is an assistant professor of medicine at UMass Chan Medical School\, practicing sarcoma medical oncologist\, and principal investigator of the SarcomaLab. He received his BS from UC San Diego\, PhD from Harvard University\, and MD from Harvard Medical School. He completed internal medicine residency at Massachusetts General Hospital and Hematology/Oncology fellowship at Dana-Farber Cancer Institute. He has focused his clinical practice and laboratory work on sarcoma and GIST\, with the goal to improve diagnostic and treatment strategies through basic and translational research. \n \nFavour Akabogu\nPhD Candidate \nFavour Akabogu is a PhD candidate in the SarcomaLab through the Morningside Graduate School of Biomedical Sciences at UMass Chan Medical School where she studies gastrointestinal stromal tumors (GIST) with a focus on identifying novel treatment options. She got her B.A in Biology at Berea College in Kentucky and worked as a Research Associate at Vanderbilt University where she investigated the role of Discodain Domain Receptors (DDRs) in the progression of acute kidney injury to kidney fibrosis. Additionally\, she worked in collaboration with the CDC on understanding the household transmission respiratory disease particularly SARS-CoV2\, RSV and Influenza. She is passionate about healthcare and drug discovery through scientific innovation. She loves traveling\, dancing\, and spending time with family and friends in her free time. \nThank you to our Webinar Sponsors!
URL:https://liferaftgroup.org/event/gist-awareness-day-a-focus-on-gist-research/
LOCATION:NJ
CATEGORIES:Education,Events,Webcast
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240716T180000
DTEND;TZID=America/New_York:20240716T193000
DTSTAMP:20260403T191644
CREATED:20230727T134306Z
LAST-MODIFIED:20260105T170322Z
UID:10000712-1721152800-1721158200@liferaftgroup.org
SUMMARY:Virtual GIST Patient Support Group
DESCRIPTION:The Patient Support Group meets via Zoom on the first and third Tuesday of each month from 6:00 PM – 7:30 PM ET (NYC Time). \nWe will start each group with a “Round Robin” in which anyone who feels like updating the group on how they are doing/feeling can do so. There is no pressure to speak if you prefer to simply listen. Once we complete our updates\, the group will have the opportunity for organic conversation to develop in relation to our emotional experiences around GIST\, and other challenges that we may be experiencing as a community. \nIn order to be able to moderate a flowing discussion\, the group will be capped at 15 people each month. The first 15 people into the Zoom waiting room will participate. Keep in mind that since the group is now open\, you don’t necessarily have to attend each month to participate. \nContact Brian Morello to join: bmorello@liferaftgroup.org
URL:https://liferaftgroup.org/event/virtual-gist-patient-support-group-third/2024-07-16/
LOCATION:NJ
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/01/GISTer-Support-Group-2022-1.png
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20240719
DTEND;VALUE=DATE:20240722
DTSTAMP:20260403T191644
CREATED:20230809T123922Z
LAST-MODIFIED:20240816T145009Z
UID:10000624-1721347200-1721606399@liferaftgroup.org
SUMMARY:Life Fest 2024 - San José
DESCRIPTION:REGISTERLife Fest 2024 is July 19th – 21st in San José\, CA!\nLife Fest is a unique event where patients and caregivers come together for a weekend to interact with each other and the medical and scientific communities that serve them. Faced with a rare form of cancer\, GIST patients have a great need for information about this disease\, particularly as the science evolves and our understanding reveals a complex set of subtypes of GIST\, each responding differently to available treatments. Each year brings a wealth of new information\, and patients are eager to learn about the latest treatments.  \nLife Fest workshops provide patients with emerging medical information\, and they come away with a deeper knowledge of the disease\, treatments and side effect management. They find hope in knowing the scientific community is working toward a cure\, and hope is such a vital asset as they struggle day by day for survival.  \nThe Life Raft Group emerged in recognition of the tremendous need for support in the GIST community. Life Fest 2024 will provide patients and caregivers with that support. Coming together with fellow patients from all walks of life from around the world is a meaningful and powerful experience. In addition to our traditional educational workshops\, Life Fest 2024 will feature scientific presentations highlighting the newest research and the latest treatments.  \nView presentations & photo galleries of previous Life Fest events \nClick image for a PDF of the Agenda: \n \nParking\, Hotels & Flights\nParking for the conference location (Signia Hilton Hotel San Jose): \nValet parking from Reef Valet at the hotel is available for $47 overnight. Hourly parking rates are $20.00 for the first hour with $2.00 for each additional hour (not to exceed $47.00. \nAlternate parking:\n50 W San Fernando St Garage\, (408) 283-5063\nhttps://www.parkme.com/lot/22188/50-west-san-jose-ca\n \n285 S Market St Parking Lot\nhttps://www.parkvel.com/california/san-jose/285-s-market-st-parking/ \nFor additional parking locations nearby and located in downtown: https://www.sanjose.org/trip-ideas/parking \nHotel Information\nThe LRG has secured two blocks of hotel rooms for guests stays at two price points. \nThese special group rates will be available until July 1\, 2024. \nSignia Hilton San Jose\n170 S Market Street\nSan Jose\, CA 95113\n408-998-3975 \nLife Fest Group* \n\nRooms are available at the Hilton San Jose at a different price point. This hotel is within walking distance from our Life Fest conference site at the Signia. \nThese special group rates will be available until June 25\, 2024. \nHilton San Jose\n300 Almaden Boulevard\nSan Jose\, CA 95110\n408.947.4453 \nLIFE FEST (hilton.com) \n\nAirline Discounts for Life Fest attendees:\nDelta Air Lines is pleased to offer special discounts for The Life Raft Group. \nPlease click here to book your flights. \nYou may also call Delta Meeting Network® at 1.800.328.1111* Monday–Friday\, 8:00 a.m. – 6:30 p.m. (EST) and refer to Meeting Event Code NM3GE*Please note there is not a service fee for reservations booked and ticketed via our reservation 800 number. \n\nUnited Airlines is pleased to partner with The Life Raft Group for special discounts.\nTo make flight reservations\, please click on discount code ZPCQ398065 \n– MileagePlus members earn valuable miles for their travel when using the Meetings discount code.\n– You may also call United Meetings Reservation Desk Monday – Friday at (800) 426-1122 for booking assistance.\n– Booking fees are waived for Meeting reservations.\n– International customers may contact their local United Reservation Desk. \n\nDonate to the Life Fest Scholarship Fund 2024\nAny questions about Life Fest 2024? \nPlease reach out to Brian Morello\, Director of Development\, at bmorello@liferaftgroup.org \nOur Sponsors:
URL:https://liferaftgroup.org/event/life-fest-2024-san-jose/
LOCATION:Signia by Hilton San Jose\, 170 S. Market St\, San Jose\, CA\, United States
CATEGORIES:Education,Events
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240721T071500
DTEND;TZID=America/New_York:20240721T071500
DTSTAMP:20260403T191644
CREATED:20240226T184316Z
LAST-MODIFIED:20240626T124659Z
UID:10000767-1721546100-1721546100@liferaftgroup.org
SUMMARY:GIST Do It Walk San José
DESCRIPTION:Join us for this fundraising walk at Life Fest 2024 in San José\, California\, in memory of GISTer Ted Wolf!\nRegistration + T-shirt is a $40 donation. Additional T-shirts are a $25 donation per shirt.\nREGISTER FOR WALK If you are not walking or want additional T-shirts\, you can get T-shirts for $25 donation + shipping (per shirt)\, order here:\nT-Shirt sizes are S\, M\, L\, XL\, 2XL\, and 3XL. \nShirts are navy blue 50/50 cotton blend. \n\nT-SHIRTS
URL:https://liferaftgroup.org/event/gist-do-it-walk-san-jose/
LOCATION:Signia by Hilton San Jose\, 170 S. Market St\, San Jose\, CA\, United States
CATEGORIES:Fundraising
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240806T180000
DTEND;TZID=America/New_York:20240806T193000
DTSTAMP:20260403T191644
CREATED:20230727T133611Z
LAST-MODIFIED:20240823T152527Z
UID:10000606-1722967200-1722972600@liferaftgroup.org
SUMMARY:Virtual GIST Patient Support Group
DESCRIPTION:The Patient Support Group meets via Zoom on the first and third Tuesday of each month from 6:00 PM – 7:30 PM ET (NYC Time). \nWe will start each group with a “Round Robin” in which anyone who feels like updating the group on how they are doing/feeling can do so. There is no pressure to speak if you prefer to simply listen. Once we complete our updates\, the group will have the opportunity for organic conversation to develop in relation to our emotional experiences around GIST\, and other challenges that we may be experiencing as a community. \nIn order to be able to moderate a flowing discussion\, the group will be capped at 15 people each month. The first 15 people into the Zoom waiting room will participate. Keep in mind that since the group is now open\, you don’t necessarily have to attend each month to participate. \nContact Brian Morello to join: bmorello@liferaftgroup.org
URL:https://liferaftgroup.org/event/virtual-gist-patient-support-group-2023-first/2024-08-06/
LOCATION:NJ
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/01/GISTer-Support-Group-2022-1.png
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240807T130000
DTEND;TZID=America/New_York:20240807T140000
DTSTAMP:20260403T191644
CREATED:20230727T134933Z
LAST-MODIFIED:20240614T133545Z
UID:10000642-1723035600-1723039200@liferaftgroup.org
SUMMARY:Virtual GIST Caregiver Support Group
DESCRIPTION:Monthly Virtual Support Group for GIST Caregivers\nHeld on the first Wednesday of the month \nLRG hosts a monthly virtual support group for the caregivers. We will share our stories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling during this journey as a caregiver. The group will be a safe space not only to feel supported by your fellow caregivers\, but also a place to share our own coping mechanisms\, concerns\, successes and trials. All information shared will be kept confidential. \nContact Brian Morello to join: bmorello@liferaftgroup.org \nAbout the Group Leader:\nMarlene Nei\, GIST Caregiver\nAs an active member of The Life Raft Group\, Marlene advocates for the needs of the caregiver community because she feels they are an underrepresented group. It is her mission to advocate for the entire GIST community making sure they are equipped with the appropriate resources on their GIST journey.
URL:https://liferaftgroup.org/event/virtual-gist-caregiver-support-group-2023/2024-08-07/
LOCATION:NJ
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2023/05/caregiver-sg-2023.jpg
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
END:VCALENDAR