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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220601T130000
DTEND;TZID=America/New_York:20220601T140000
DTSTAMP:20260403T191636
CREATED:20211230T190819Z
LAST-MODIFIED:20230525T182345Z
UID:10000195-1654088400-1654092000@liferaftgroup.org
SUMMARY:Virtual Caregiver Support Group
DESCRIPTION: A Bi-Weekly Virtual Support Group for GIST Caregivers\nHeld on the first & third Wednesdays of the month\nAs we continue to navigate this uncertain time together\, we want to offer you a little extra support. LRG has a twice monthly support group for the caregivers facilitated by Marlene Nei\, GIST Caregiver. To continue social distancing and connecting with caregivers across the United States\, we will use an electronic platform to gather as a group. We will talk about all the feelings you might be experiencing\, both in relation to GIST\, and COVID-19. \nWe will share our stories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling because of this unprecedented time. The group will be a safe space not only to feel supported by your fellow caregivers\, but also a place to share our own coping mechanisms to get us through this stressful time. All information shared will be kept confidential. Contact Diana Nieves at dnieves@liferaftgroup.org for more information. \n\nPlease email Diana Nieves at dnieves@liferaftgroup.org to join this meeting.\n\nAbout the Group Leader:\nMarlene Nei\, GIST Caregiver\nAs an active member of the Life Raft Group\, Marlene advocates for the needs of the caregiver community because she feels they are an underrepresented group. It is her mission to advocate for the entire GIST community making sure they are equipped with the appropriate resources on their GIST journey.
URL:https://liferaftgroup.org/event/virtual-caregiver-support-group-2022-1/2022-06-01/
CATEGORIES:Events
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2021/06/Caregiver-Support-Group.jpg
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Mexico_City:20220607T190000
DTEND;TZID=America/Mexico_City:20220607T190000
DTSTAMP:20260403T191636
CREATED:20220601T184801Z
LAST-MODIFIED:20220601T185842Z
UID:10000235-1654628400-1654628400@liferaftgroup.org
SUMMARY:Efectos de la Nutrición y la Microbiota Intestinal en pacientes con GIST
DESCRIPTION:La versión en español titulada\, “Efectos de la Nutrición y la Microbiota Intestinal en pacientes con GIST” \nMartes 07 junio a las 19:00 Cdmx/20:00 Chile /19:00 Colombia /21:00 Ara. \nOrganizado por Fundación GIST México y AlianzaGIST. \nLa Sra. Berenice Carbajal-López es una estudiante de doctorado que tiene un Máster en Ciencias de la Salud con una tesis relacionada con el uso de tecnologías en la atención nutricional y psicológica de los pacientes con GIST. Durante esta presentación virtual\, la Sra. Carbajal-López describió los beneficios de una nutrición adecuada\, la relación entre la nutrición y los procedimientos quirúrgicos\, el vínculo entre el microbioma y el cáncer\, y el ejercicio. \n¿tienes preguntas?\nEnvíe un correo electrónico a Piga Fernández en pfernandez@liferaftgroup.org \nREGISTERAcerca del presentador: \nBerenice Carbajal-López\nFundación GIST México \nLa Sra. Berenice Carbajal-López es estudiante de doctorado y tiene una maestría en Ciencias de la Salud con una tesis relacionada con el uso de tecnologías en la atención nutricional y psicológica de pacientes con GIST. Es diplomada en Investigación Clínica y Bioestadística por el Instituto Nacional de Cancerología de México. Cuenta con experiencia en el cuidado de la salud de pacientes con GIST\, como Coordinadora de Atención al Paciente de 2014 a 2019 y como Directora Global desde 2020 en la Fundación GIST México. La Sra. Carbajal-López también ha colaborado en la redacción y revisión de artículos de investigación y capítulos de libros en el área de Oncología\, con ocho publicaciones a la fecha como autora principal y coautora en revistas indexadas y ha participado en congresos nacionales e internacionales como SMEO 2018\, ASCO 2019 y ESMO-GI 2017\, 2018\, 2019\, 2020\, 2021 y 2022.
URL:https://liferaftgroup.org/event/efectos-de-la-nutricion-y-la-microbiota-intestinal-en-pacientes-con-gist/
CATEGORIES:Education,Events,Webcast
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2022/06/Invitación-Alianza-GIST.jpg
ORGANIZER;CN="Piga Fern%C3%A1ndez":MAILTO:pfernandez@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220615T130000
DTEND;TZID=America/New_York:20220615T140000
DTSTAMP:20260403T191636
CREATED:20211230T190313Z
LAST-MODIFIED:20221230T174626Z
UID:10000184-1655298000-1655301600@liferaftgroup.org
SUMMARY:Virtual Caregiver Support Group
DESCRIPTION: A Bi-Weekly Virtual Support Group for GIST Caregivers\nHeld on the first & third Wednesdays of the month\nAs we continue to navigate this uncertain time together\, we want to offer you a little extra support. LRG has a twice monthly support group for the caregivers facilitated by Marlene Nei\, GIST Caregiver. To continue social distancing and connecting with caregivers across the United States\, we will use an electronic platform to gather as a group. We will talk about all the feelings you might be experiencing\, both in relation to GIST\, and COVID-19. \nWe will share our stories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling because of this unprecedented time. The group will be a safe space not only to feel supported by your fellow caregivers\, but also a place to share our own coping mechanisms to get us through this stressful time. All information shared will be kept confidential. Contact Diana Nieves at dnieves@liferaftgroup.org for more information. \n\nPlease email Diana Nieves at dnieves@liferaftgroup.org to join this meeting.\n\nAbout the Group Leader:\nMarlene Nei\, GIST Caregiver\nAs an active member of the Life Raft Group\, Marlene advocates for the needs of the caregiver community because she feels they are an underrepresented group. It is her mission to advocate for the entire GIST community making sure they are equipped with the appropriate resources on their GIST journey.
URL:https://liferaftgroup.org/event/virtual-caregiver-support-group-2022-2/2022-06-15/
CATEGORIES:Events
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2021/06/Caregiver-Support-Group.jpg
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220615T190000
DTEND;TZID=America/New_York:20220615T200000
DTSTAMP:20260403T191636
CREATED:20220502T151913Z
LAST-MODIFIED:20220502T151913Z
UID:10000232-1655319600-1655323200@liferaftgroup.org
SUMMARY:Updates from ASCO 2022
DESCRIPTION:Webinar\, June 15\, 7-8 pm ET \nASCO (American Society of Clinical Oncology) is an important conference in the oncology community where new scientific research updates are shared. The Life Raft Group is excited to present Dr. Andrew Wagner and Dr. Herbert Loong\, who will summarize abstracts and presentations that were presented during this conference that are relevant to the GIST patient community. \nREGISTERAbout our Presenter:\nAndrew J. Wagner\, MD\nDana-Farber Cancer Institute \nDr. Andrew J. Wagner is the Deputy Chief Medical Officer at Dana-Farber Cancer Institute and the Medical Director of Adult Ambulatory Oncology. As a medical oncologist and translational researcher in the Center for Sarcoma and Bone Oncology and Associate Professor of Medicine at Harvard Medical School\, Dr. Wagner focuses on the treatment of patients with GIST and sarcoma\, and conducts laboratory research and clinical studies to identify new targets and treatments for these diseases. He received a PhD in Biochemistry and Molecular and an MD from the University of Chicago Pritzker School of Medicine. Dr. Wagner completed his Internship and Residency in Internal Medicine at Brigham and Women’s Hospital in Boston\, where he later served as Chief Medical Resident. He completed a fellowship in Hematology and Medical Oncology at Dana-Farber Cancer Institute\, Brigham and Women’s Hospital\, and Massachusetts General Hospital\, and then joined the Oncology Staff at Dana-Farber where he is currently a Senior Physician in the Department of Medical Oncology. \n\nHerbert H. Loong\, MBBS\, PDipMDPath\, MRCP(UK)\, FRCP Edin\, FHKCP\, FHKAM(Medicine)\nThe Chinese University of Hong Kong \nDr. Herbert H. Loong holds conjoint appointments of Clinical Associate Professor in the Department of Clinical Oncology and Deputy Medical Director of the Phase 1 Clinical Trials Centre of The Chinese University of Hong Kong. He is also the current and founding convenor of the Prince of Wales Hospital Adult Sarcoma Multidisciplinary Team. \nDr. Loong obtained his medical degree with a Distinction in Surgery from The University of Hong Kong in 2003. He has completed a Fellowship in Drug Development at Princess Margaret Cancer Centre in Toronto\, Canada with a special focus on Experimental Therapeutics. His clinical and research interests also include Sarcoma Medical Oncology\, Thoracic Oncology and Health Economics. \nDr. Loong is a recipient of the European Cancer Congress Fellowship Grant (2013)\, the American Society of Clinical Oncology (ASCO) Annual Meeting Merit Award (2014)\, the Hong Kong College of Physicians Young Investigators’ Award (2014). Nominated by patients and their caregivers\, Dr. Loong led the Lung Cancer Team at CUHK to be bestowed the IASLC Foundation Cancer Care Team Award in recognition for providing the best thoracic oncology care in “Asia & Rest of the World” in 2018. \nDr. Loong has served or continues to serve in various capacities in various professional international oncology bodies\, including the International Affairs Committee and the Asia-Pacific Regional Council of ASCO\, the Membership\, Education and Communications Committees of the IASLC. He has been elected as a Board Member of the Connective Tissue Oncology Society (CTOS) for 2022-2024. He is also a founding executive committee member of the newly formed Asia Pacific Oncology Drug Development Network (APODDC). He is also a Board Member in the specialty of Medical Oncology in the Hong Kong College of Physicians. In his appointment as a Registration Committee member of Pharmacy and Poisons Board of Hong Kong\, he helps oversee the registration of medicinal products and clinical trials in the territory. \nThank you to our 2022 LRG webinar sponsors:
URL:https://liferaftgroup.org/event/updates-asco-2022/
CATEGORIES:Events
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20220618T110000
DTEND;TZID=America/Toronto:20220618T160000
DTSTAMP:20260403T191636
CREATED:20220429T175458Z
LAST-MODIFIED:20220429T175636Z
UID:10000231-1655550000-1655568000@liferaftgroup.org
SUMMARY:GDOL Toronto 2022 - Hybrid
DESCRIPTION:GIST SARCOMA LIFE RAFT GROUP CANADA\nSaturday June 18\, 2022 \nAttend in-person at\nToronto Don Valley Hotel\, 175 Wynford Dr\, Toronto\, Ontario\nor attend virtually via Zoom \nIn-person check-in begins at 11:00 AM – Conference begins 12:00 PM – Conference ends at 4:00 PM \nGIST Sarcoma Life Raft Group Canada is pleased to announce that registration is now open for the GIST Day of Learning on Saturday\, June 18\, 2022. \nThis will be our first conference which offers a choice to attend in-person or to attend virtually via Zoom videoconferencing. Our plan is to offer the entire in-person conference via Zoom and allow both in-person and virtual attendees to participate in the roundtable discussions as well as the Q&A during the presentations. \nThis GIST Day of Learning conference will begin at 12:00 PM so as to provide reasonable start and end times for all Canadian time zones. \nFor those unfamiliar with our GIST Day of Learning conferences\,  Life Raft Group Canada has been hosting these GIST patient and caregiver conferences across Canada since 2012\, to provide support and education for those living with GIST. This conference is open to those who have GIST\, caregivers\, family members\, friends\, healthcare providers\, and anyone who wishes to learn more about GIST.  This will be our 11th GIST Day of Learning. \nThere is no charge for attending the GIST Day of Learning. \nThis conference will include: \n\nInformative sessions\nRoundtable discussions in which all attendees can participate\nLots of opportunity to meet informally with other attendees as well as the speakers\nBuffet lunch and refreshments\n\nREGISTERWhen you register\, you will be asked to indicate if you are planning to attend in-person or to attend virtually via Zoom.
URL:https://liferaftgroup.org/event/gdol-toronto-2022-hybrid/
LOCATION:Toronto Don Valley Hotel\, 175 Wynford Dr.\, Toronto\, Ontario\, Canada
CATEGORIES:Events
ORGANIZER;CN="Malcolm Sutherland%2C GIST Sarcoma Life Raft Group Canada":MAILTO:malcolm.sutherland@liferaftgroup.ca
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220629T120000
DTEND;TZID=America/New_York:20220629T130000
DTSTAMP:20260403T191636
CREATED:20220502T183139Z
LAST-MODIFIED:20220502T183139Z
UID:10000233-1656504000-1656507600@liferaftgroup.org
SUMMARY:Managing Medical Bills
DESCRIPTION:June 29th\, 12-1pm ET\nThe Life Raft Group is partnering with Triage Cancer to present Managing Medical Bills to GIST patients and caregivers on June 29th\, 2022 from 12pm-1pm EST. During this virtual presentation\, Melissa Salamon of Triage Cancer will provide valuable information on how to mitigate the financial impact of a cancer diagnosis across the continuum of care. \nREGISTERAbout our Presenter:\nMelissa Salamon\nTriage Cancer \nMelissa is a Staff Attorney at Triage Cancer\, where she provides education on the legal and financial issues that may occur after a cancer diagnosis. Prior to joining Triage Cancer\, Melissa ran the Health Law Partnerships at the Legal Aid Society of Southwest Ohio. Before law school\, Melissa served as an Urban Youth Development volunteer with the U.S. Peace Corps in Paraguay where she became fluent in Spanish. She also worked as a Case Manager in the foster care system in Hillsborough County\, Florida. \nMelissa attended the Ohio State University where she graduated with a J.D./M.A. dual degree from the Moritz College of Law and John Glenn School of Public Affairs. She graduated cum laude with a B.A. in Sociology and Anthropology from Tulane University. She is a member of the Ohio bar. \nThank you to our 2022 LRG webinar sponsors:
URL:https://liferaftgroup.org/event/managing-medical-bills/
CATEGORIES:Events,Webcast
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220706T130000
DTEND;TZID=America/New_York:20220706T140000
DTSTAMP:20260403T191636
CREATED:20211230T190819Z
LAST-MODIFIED:20230525T182345Z
UID:10000196-1657112400-1657116000@liferaftgroup.org
SUMMARY:Virtual Caregiver Support Group
DESCRIPTION: A Bi-Weekly Virtual Support Group for GIST Caregivers\nHeld on the first & third Wednesdays of the month\nAs we continue to navigate this uncertain time together\, we want to offer you a little extra support. LRG has a twice monthly support group for the caregivers facilitated by Marlene Nei\, GIST Caregiver. To continue social distancing and connecting with caregivers across the United States\, we will use an electronic platform to gather as a group. We will talk about all the feelings you might be experiencing\, both in relation to GIST\, and COVID-19. \nWe will share our stories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling because of this unprecedented time. The group will be a safe space not only to feel supported by your fellow caregivers\, but also a place to share our own coping mechanisms to get us through this stressful time. All information shared will be kept confidential. Contact Diana Nieves at dnieves@liferaftgroup.org for more information. \n\nPlease email Diana Nieves at dnieves@liferaftgroup.org to join this meeting.\n\nAbout the Group Leader:\nMarlene Nei\, GIST Caregiver\nAs an active member of the Life Raft Group\, Marlene advocates for the needs of the caregiver community because she feels they are an underrepresented group. It is her mission to advocate for the entire GIST community making sure they are equipped with the appropriate resources on their GIST journey.
URL:https://liferaftgroup.org/event/virtual-caregiver-support-group-2022-1/2022-07-06/
CATEGORIES:Events
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2021/06/Caregiver-Support-Group.jpg
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220713T120000
DTEND;TZID=America/New_York:20220713T130000
DTSTAMP:20260403T191636
CREATED:20220629T193124Z
LAST-MODIFIED:20220629T233740Z
UID:10000236-1657713600-1657717200@liferaftgroup.org
SUMMARY:GIST Awareness Day Webinar: SDH Updates and Stories
DESCRIPTION:GIST Awareness Day (GAD)\, July 13th)\, is a time where GIST experts\, patients\, caregivers can come together to educate the public about this disease and advocate towards finding a cure. The Life Raft Group invites GIST patients and caregivers to celebrate GAD with us on July 13th at 12pm. During this virtual event\, Dr. John Glod\, Clinical Director of the Pediatric Oncology Branch in the Center for Cancer Research at National Cancer Institute\, will discuss updates from the NIH Pediatric & Wildtype GIST Clinic\, which is a part of My Pediatric and Adult Rare Tumor Network (MyPART). Immediately following Dr. Glod’s presentation\, pediatric GIST patient Lleyton Schelesky will share his GIST story. After the presentations\, there will be time for a Q&A. \nIf you have questions about SDH-deficient GIST and would like to submit them prior to the webinar\, please send them to Sara Rothschild at srothschild@liferaftgroup.org. \nREGISTERAbout the Presenters\nJohn Glod\, MD\, PhD\nAssociate Research Physician\, National Cancer Institute\, Pediatric Oncology Branch \nDr. Glod obtained his M.D. and Ph.D. from the University of Colorado in Denver and trained in pediatrics and pediatric oncology at Cincinnati Children’s Hospital\, Johns Hopkins Hospital\, and the Pediatric Oncology Branch of the NCI.  Following an fellowship in neuro-oncology at the NCI\, Dr. Glod served as faculty in the departments of pediatrics and pharmacology at Rutgers Cancer Institute of New Jersey. Dr. Glod joined the Pharmacology and Experimental Therapeutics Section in 2013.  His research interests focus on understanding the biology of rare pediatric solid tumors and exploring new therapies for patients with these diseases. \n\nLleyton Schelesky\nPatient Advocate \nLleyton was diagnosed with GIST at age 12. Now a young adult\, Lleyton will share his experience with SDH-deficient GIST.
URL:https://liferaftgroup.org/event/gist-awareness-day-2022/
CATEGORIES:Events
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220720T130000
DTEND;TZID=America/New_York:20220720T140000
DTSTAMP:20260403T191636
CREATED:20211230T190313Z
LAST-MODIFIED:20221230T174626Z
UID:10000185-1658322000-1658325600@liferaftgroup.org
SUMMARY:Virtual Caregiver Support Group
DESCRIPTION: A Bi-Weekly Virtual Support Group for GIST Caregivers\nHeld on the first & third Wednesdays of the month\nAs we continue to navigate this uncertain time together\, we want to offer you a little extra support. LRG has a twice monthly support group for the caregivers facilitated by Marlene Nei\, GIST Caregiver. To continue social distancing and connecting with caregivers across the United States\, we will use an electronic platform to gather as a group. We will talk about all the feelings you might be experiencing\, both in relation to GIST\, and COVID-19. \nWe will share our stories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling because of this unprecedented time. The group will be a safe space not only to feel supported by your fellow caregivers\, but also a place to share our own coping mechanisms to get us through this stressful time. All information shared will be kept confidential. Contact Diana Nieves at dnieves@liferaftgroup.org for more information. \n\nPlease email Diana Nieves at dnieves@liferaftgroup.org to join this meeting.\n\nAbout the Group Leader:\nMarlene Nei\, GIST Caregiver\nAs an active member of the Life Raft Group\, Marlene advocates for the needs of the caregiver community because she feels they are an underrepresented group. It is her mission to advocate for the entire GIST community making sure they are equipped with the appropriate resources on their GIST journey.
URL:https://liferaftgroup.org/event/virtual-caregiver-support-group-2022-2/2022-07-20/
CATEGORIES:Events
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2021/06/Caregiver-Support-Group.jpg
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20220729
DTEND;VALUE=DATE:20220801
DTSTAMP:20260403T191636
CREATED:20190424T181544Z
LAST-MODIFIED:20220721T180545Z
UID:10000027-1659052800-1659311999@liferaftgroup.org
SUMMARY:Life Fest New Orleans
DESCRIPTION:Life Fest New Orleans\n July 29th-31st\, 2022\nIf you have any questions regarding Life Fest\, please email Jessica Nowak at jnowak@liferaftgroup.org \nREGISTERLife Fest is a unique event where hundreds of patients and caregivers come together for a weekend to interact with each other and the medical and scientific communities that serve them. Faced with a rare form of cancer\, GIST patients have a great need for information about this disease\, particularly as the science evolves and our understanding reveals a complex set of subtypes of GIST\, each responding differently to available treatments. Each year brings a wealth of new information\, and patients are eager to learn about the latest treatments. \nLife Fest workshops provide patients with emerging medical information\, and they come away with a deeper knowledge of the disease\, treatments\, and side-effect management. They find hope in knowing the scientific community is working toward a cure\, and hope is such a vital asset as they struggle day by day for survival. \nThe Life Raft Group emerged in recognition of the tremendous need for support in the GIST community. Life Fest 2022 will provide patients and caregivers with that support. Coming together with fellow patients from all walks of life from around the world is a meaningful and powerful experience. \nIn addition to our traditional educational workshops\, Life Fest 2022 will feature scientific presentations highlighting the newest research and the latest treatments. Additionally\, other disease advocacy groups will be invited to present the work of their organizations\, and share lessons learned. \nReasons to attend Life Fest \nProgram Highlights \nWhere to Eat in NOLA \nSights & Sounds of NOLA  \nClick to view online and print agenda \n \nThank you to our Life Fest Sponsors!
URL:https://liferaftgroup.org/event/lifefest2022/
CATEGORIES:Education,Events
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2019/04/life-fest-2022.png
ORGANIZER;CN="The Life Raft Group":MAILTO:liferaft@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220803T130000
DTEND;TZID=America/New_York:20220803T140000
DTSTAMP:20260403T191636
CREATED:20211230T190819Z
LAST-MODIFIED:20230525T182345Z
UID:10000197-1659531600-1659535200@liferaftgroup.org
SUMMARY:Virtual Caregiver Support Group
DESCRIPTION: A Bi-Weekly Virtual Support Group for GIST Caregivers\nHeld on the first & third Wednesdays of the month\nAs we continue to navigate this uncertain time together\, we want to offer you a little extra support. LRG has a twice monthly support group for the caregivers facilitated by Marlene Nei\, GIST Caregiver. To continue social distancing and connecting with caregivers across the United States\, we will use an electronic platform to gather as a group. We will talk about all the feelings you might be experiencing\, both in relation to GIST\, and COVID-19. \nWe will share our stories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling because of this unprecedented time. The group will be a safe space not only to feel supported by your fellow caregivers\, but also a place to share our own coping mechanisms to get us through this stressful time. All information shared will be kept confidential. Contact Diana Nieves at dnieves@liferaftgroup.org for more information. \n\nPlease email Diana Nieves at dnieves@liferaftgroup.org to join this meeting.\n\nAbout the Group Leader:\nMarlene Nei\, GIST Caregiver\nAs an active member of the Life Raft Group\, Marlene advocates for the needs of the caregiver community because she feels they are an underrepresented group. It is her mission to advocate for the entire GIST community making sure they are equipped with the appropriate resources on their GIST journey.
URL:https://liferaftgroup.org/event/virtual-caregiver-support-group-2022-1/2022-08-03/
CATEGORIES:Events
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2021/06/Caregiver-Support-Group.jpg
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220812T120000
DTEND;TZID=America/New_York:20220812T130000
DTSTAMP:20260403T191636
CREATED:20220504T183401Z
LAST-MODIFIED:20220504T183401Z
UID:10000234-1660305600-1660309200@liferaftgroup.org
SUMMARY:The Importance of Biomarker Testing
DESCRIPTION:August 12th\, 12-1pm ET\nThe Life Raft Group is partnering with Dr. Michael Wagner from the University of Washington to present “The Importance of Biomarker Testing” to GIST patients and caregivers on August 12th\, 2022 from 12pm-1pm EST. During this virtual presentation\, Dr. Wagner will describe what biomarker testing is and how GIST patients can advocate for this test to ensure the best treatment for their specific cancer. \nREGISTERAbout our Presenter:\nDr. Michael Wagner\nUniversity of Washington \nMichael Wagner\, MD is an Assistant Professor of Medicine at the University of Washington and an Assistant Professor in the Clinical Research Division at the Fred Hutchinson Cancer Research Center (FHCRC). He is the Director of Sarcoma Clinical Research. After graduating from Harvard University with a medical degree\, Dr. Wagner completed his residency at Mt. Sinai Hospital in New York and medical oncology fellowship at the University of Texas MD Anderson Cancer Center. Dr. Wagner has received numerous awards\, including the Conquer Cancer Foundation of ASCO Young Investigator Award and QuadW Foundation-AACR Fellowship for Clinical/Translational Research for his research on sarcoma. Dr. Wagner has been in his current position in Seattle since 2017. \nThank you to our 2022 LRG webinar sponsors:
URL:https://liferaftgroup.org/event/importance-of-biomarker-testing/
CATEGORIES:Events,Webcast
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2022/05/importance-biomarker-testing.jpg
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220817T130000
DTEND;TZID=America/New_York:20220817T140000
DTSTAMP:20260403T191636
CREATED:20211230T190313Z
LAST-MODIFIED:20221230T174626Z
UID:10000186-1660741200-1660744800@liferaftgroup.org
SUMMARY:Virtual Caregiver Support Group
DESCRIPTION: A Bi-Weekly Virtual Support Group for GIST Caregivers\nHeld on the first & third Wednesdays of the month\nAs we continue to navigate this uncertain time together\, we want to offer you a little extra support. LRG has a twice monthly support group for the caregivers facilitated by Marlene Nei\, GIST Caregiver. To continue social distancing and connecting with caregivers across the United States\, we will use an electronic platform to gather as a group. We will talk about all the feelings you might be experiencing\, both in relation to GIST\, and COVID-19. \nWe will share our stories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling because of this unprecedented time. The group will be a safe space not only to feel supported by your fellow caregivers\, but also a place to share our own coping mechanisms to get us through this stressful time. All information shared will be kept confidential. Contact Diana Nieves at dnieves@liferaftgroup.org for more information. \n\nPlease email Diana Nieves at dnieves@liferaftgroup.org to join this meeting.\n\nAbout the Group Leader:\nMarlene Nei\, GIST Caregiver\nAs an active member of the Life Raft Group\, Marlene advocates for the needs of the caregiver community because she feels they are an underrepresented group. It is her mission to advocate for the entire GIST community making sure they are equipped with the appropriate resources on their GIST journey.
URL:https://liferaftgroup.org/event/virtual-caregiver-support-group-2022-2/2022-08-17/
CATEGORIES:Events
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2021/06/Caregiver-Support-Group.jpg
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220907T130000
DTEND;TZID=America/New_York:20220907T140000
DTSTAMP:20260403T191636
CREATED:20211230T190819Z
LAST-MODIFIED:20230525T182345Z
UID:10000198-1662555600-1662559200@liferaftgroup.org
SUMMARY:Virtual Caregiver Support Group
DESCRIPTION: A Bi-Weekly Virtual Support Group for GIST Caregivers\nHeld on the first & third Wednesdays of the month\nAs we continue to navigate this uncertain time together\, we want to offer you a little extra support. LRG has a twice monthly support group for the caregivers facilitated by Marlene Nei\, GIST Caregiver. To continue social distancing and connecting with caregivers across the United States\, we will use an electronic platform to gather as a group. We will talk about all the feelings you might be experiencing\, both in relation to GIST\, and COVID-19. \nWe will share our stories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling because of this unprecedented time. The group will be a safe space not only to feel supported by your fellow caregivers\, but also a place to share our own coping mechanisms to get us through this stressful time. All information shared will be kept confidential. Contact Diana Nieves at dnieves@liferaftgroup.org for more information. \n\nPlease email Diana Nieves at dnieves@liferaftgroup.org to join this meeting.\n\nAbout the Group Leader:\nMarlene Nei\, GIST Caregiver\nAs an active member of the Life Raft Group\, Marlene advocates for the needs of the caregiver community because she feels they are an underrepresented group. It is her mission to advocate for the entire GIST community making sure they are equipped with the appropriate resources on their GIST journey.
URL:https://liferaftgroup.org/event/virtual-caregiver-support-group-2022-1/2022-09-07/
CATEGORIES:Events
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2021/06/Caregiver-Support-Group.jpg
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220907T180000
DTEND;TZID=America/New_York:20220907T180000
DTSTAMP:20260403T191636
CREATED:20220818T132904Z
LAST-MODIFIED:20220818T132904Z
UID:10000238-1662573600-1662573600@liferaftgroup.org
SUMMARY:Let's Get to the GIST of It!
DESCRIPTION:The Life Raft Group is excited host another “Let’s Get the GIST of It” session. During this recurring online event\, patients and caregivers participate and share  overall experiences (good or bad) of their current treatment. The topic of this installment is “The new and upcoming treatments in GIST.” We will be discussing  two new clinical trials –  Cogent (CGT9486) and Theseus (THE-630)\, as well as recently approved drugs like AYVAKIT (avapritinib) and QINLOCK (ripretinib). \nThe goal of this initiative is to discuss key topics that will provide patients and caregivers with insight about their current treatment\, learn more information about new clinical trials or learn more about a new drug by listening to other people’s experiences. During this event\, we will discuss topics like side effects\, dosages\, scans\, and support. You will also have the opportunity to interact and connect with patients like you who are taking the same drug or experiencing the same side effects. Big or small\, all input is important and we are excited for you to be part of this initiative. \nIf you or a loved one is currently enrolled in a Cogent (CGT9486) and Theseus (THE-630) trial or currently taking ripretinib or avapritinib and would like to learn more about these drugs or share your experiences with other GISTers\, please join this event. For more information or questions\, please contact Sahibjeet Kaur at skaur@liferaftgroup.org \nREGISTER
URL:https://liferaftgroup.org/event/lets-get-to-the-gist-of-it/
CATEGORIES:Education,Events
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2022/08/lets-get-the-gist-of-it.jpg
ORGANIZER;CN="Sahibjeet Kaur":MAILTO:skaur@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220912T180000
DTEND;TZID=America/New_York:20220912T180000
DTSTAMP:20260403T191636
CREATED:20220908T215655Z
LAST-MODIFIED:20220908T234543Z
UID:10000239-1663005600-1663005600@liferaftgroup.org
SUMMARY:Florida Support Group
DESCRIPTION:Zoom\, 2nd Monday of the Month – 6pm ET \nOur moderator is a fellow GISTER/LRG Member\, Jackie\, from Orlando\, Florida. She was diagnosed with GIST in late 2016. She is hopeful that this group will be helpful to GIST patients and their caregivers\, who are also welcome to attend. This group will meet online every 2nd Monday of the month at 6pm ET. \nIf you wish to attend\, please email Jackie at dillonjackie62@gmail.com for the Zoom link for the meeting.
URL:https://liferaftgroup.org/event/florida-support-group/2022-09-12/
CATEGORIES:Events,Support Group
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2022/09/florida-support-group.jpg
ORGANIZER;CN="Jackie VanderPol":MAILTO:dillonjackie62@gmail.com
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20220914
DTEND;VALUE=DATE:20220917
DTSTAMP:20260403T191636
CREATED:20220407T133211Z
LAST-MODIFIED:20220407T133211Z
UID:10000230-1663113600-1663372799@liferaftgroup.org
SUMMARY:The NIH Pediatric and Wildtype GIST Clinic
DESCRIPTION:The Pediatric and Wildtype GIST clinic at the National Institutes of Health (NIH) is a collaborative effort between clinicians\, research scientists and advocates\, who share the goal of helping young patients with Gastrointestinal Stromal Tumor. \nPending the status of the global COVID-19 pandemic\, the 2022 GIST Clinic is scheduled for September 14-16\, 2022. Now accepting applications. \nContact: CLINICAL RESEARCH NURSE: BJ Thomas\, RN – ncipediatricgist@mail.nih.gov \nREGISTER
URL:https://liferaftgroup.org/event/the-nih-pediatric-and-wildtype-gist-clinic/
LOCATION:NIH Pediatric and Wildtype GIST Clinic\, Building10-CRC\, Room 1-3750\, Bethesda\, 20892
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2020/02/nci-center-for-cancer-research.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220921T130000
DTEND;TZID=America/New_York:20220921T140000
DTSTAMP:20260403T191636
CREATED:20211230T190313Z
LAST-MODIFIED:20221230T174626Z
UID:10000187-1663765200-1663768800@liferaftgroup.org
SUMMARY:Virtual Caregiver Support Group
DESCRIPTION: A Bi-Weekly Virtual Support Group for GIST Caregivers\nHeld on the first & third Wednesdays of the month\nAs we continue to navigate this uncertain time together\, we want to offer you a little extra support. LRG has a twice monthly support group for the caregivers facilitated by Marlene Nei\, GIST Caregiver. To continue social distancing and connecting with caregivers across the United States\, we will use an electronic platform to gather as a group. We will talk about all the feelings you might be experiencing\, both in relation to GIST\, and COVID-19. \nWe will share our stories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling because of this unprecedented time. The group will be a safe space not only to feel supported by your fellow caregivers\, but also a place to share our own coping mechanisms to get us through this stressful time. All information shared will be kept confidential. Contact Diana Nieves at dnieves@liferaftgroup.org for more information. \n\nPlease email Diana Nieves at dnieves@liferaftgroup.org to join this meeting.\n\nAbout the Group Leader:\nMarlene Nei\, GIST Caregiver\nAs an active member of the Life Raft Group\, Marlene advocates for the needs of the caregiver community because she feels they are an underrepresented group. It is her mission to advocate for the entire GIST community making sure they are equipped with the appropriate resources on their GIST journey.
URL:https://liferaftgroup.org/event/virtual-caregiver-support-group-2022-2/2022-09-21/
CATEGORIES:Events
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2021/06/Caregiver-Support-Group.jpg
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20220924T083000
DTEND;TZID=America/Los_Angeles:20220924T083000
DTSTAMP:20260403T191636
CREATED:20220217T155303Z
LAST-MODIFIED:20220906T135627Z
UID:10000206-1664008200-1664008200@liferaftgroup.org
SUMMARY:GDOL San Diego
DESCRIPTION:GDOL San Diego is September 24th\, 8:30 am\nLife Raft Group GIST Do It Walk (Prepare for Miles for Merak) at 8:00 am (Registration at 7:30).\nBreakfast 8:30\, Event Start 9:00 \nA GIST Day of Learning (GDOL) is a free one day event to help patients and caregivers learn more about this rare cancer\, find support\, and enhance their knowledge base to help them navigate their cancer journey. \nThe Life Raft Group has a simple focus: to cure a form of cancer — GIST — and to help those living with it until then. To do this\, the Life Raft Group focuses on three key areas: research\, patient support & education\, and advocacy\, which lay the foundation of our mission to ensure the survival of GIST patients through a comprehensive approach connecting individual patients’ needs\, the worldwide community of GIST advocates and the global health and research environment. \nIf you have any questions\, please contact Diana Nieves at dnieves@liferaftgroup.org \nREGISTERClick for PDF of Agenda \n \nThank you to our GDOL Sponsors:
URL:https://liferaftgroup.org/event/gdol-san-diego/
LOCATION:Moores Cancer Center UC San Diego Health\, Goldberg Auditorium\, 3855 Health Sciences Drive\, San Diego\, CA\, 92037\, United States
CATEGORIES:Education,Events
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20221005T130000
DTEND;TZID=America/New_York:20221005T140000
DTSTAMP:20260403T191636
CREATED:20211230T190819Z
LAST-MODIFIED:20230525T182345Z
UID:10000199-1664974800-1664978400@liferaftgroup.org
SUMMARY:Virtual Caregiver Support Group
DESCRIPTION: A Bi-Weekly Virtual Support Group for GIST Caregivers\nHeld on the first & third Wednesdays of the month\nAs we continue to navigate this uncertain time together\, we want to offer you a little extra support. LRG has a twice monthly support group for the caregivers facilitated by Marlene Nei\, GIST Caregiver. To continue social distancing and connecting with caregivers across the United States\, we will use an electronic platform to gather as a group. We will talk about all the feelings you might be experiencing\, both in relation to GIST\, and COVID-19. \nWe will share our stories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling because of this unprecedented time. The group will be a safe space not only to feel supported by your fellow caregivers\, but also a place to share our own coping mechanisms to get us through this stressful time. All information shared will be kept confidential. Contact Diana Nieves at dnieves@liferaftgroup.org for more information. \n\nPlease email Diana Nieves at dnieves@liferaftgroup.org to join this meeting.\n\nAbout the Group Leader:\nMarlene Nei\, GIST Caregiver\nAs an active member of the Life Raft Group\, Marlene advocates for the needs of the caregiver community because she feels they are an underrepresented group. It is her mission to advocate for the entire GIST community making sure they are equipped with the appropriate resources on their GIST journey.
URL:https://liferaftgroup.org/event/virtual-caregiver-support-group-2022-1/2022-10-05/
CATEGORIES:Events
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2021/06/Caregiver-Support-Group.jpg
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20221010T180000
DTEND;TZID=America/New_York:20221010T180000
DTSTAMP:20260403T191636
CREATED:20220908T215655Z
LAST-MODIFIED:20220908T234543Z
UID:10000240-1665424800-1665424800@liferaftgroup.org
SUMMARY:Florida Support Group
DESCRIPTION:Zoom\, 2nd Monday of the Month – 6pm ET \nOur moderator is a fellow GISTER/LRG Member\, Jackie\, from Orlando\, Florida. She was diagnosed with GIST in late 2016. She is hopeful that this group will be helpful to GIST patients and their caregivers\, who are also welcome to attend. This group will meet online every 2nd Monday of the month at 6pm ET. \nIf you wish to attend\, please email Jackie at dillonjackie62@gmail.com for the Zoom link for the meeting.
URL:https://liferaftgroup.org/event/florida-support-group/2022-10-10/
CATEGORIES:Events,Support Group
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2022/09/florida-support-group.jpg
ORGANIZER;CN="Jackie VanderPol":MAILTO:dillonjackie62@gmail.com
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20221012T120000
DTEND;TZID=America/New_York:20221012T120000
DTSTAMP:20260403T191636
CREATED:20220913T233534Z
LAST-MODIFIED:20220926T132350Z
UID:10000245-1665576000-1665576000@liferaftgroup.org
SUMMARY:The Emerging Role of Circulating Tumor DNA in GIST
DESCRIPTION:October 12\, Noon ET \nIn this webinar\, “The Emerging Role of Circulating Tumor DNA in Gastrointestinal Stromal Tumor”\, Dr. Bialick will discuss recent data looking at treatment outcomes based off KIT resistant mutations identified by circulating tumor DNA in patients with GIST. \nREGISTEROur Presenter\nSteven Bialick\, DO\nSylvester Comprehensive Cancer Center\, Miami \nSteve Bialick\, DO\, is a  hematology/oncology fellow at Jackson Memorial Hospital and the University of Miami/Sylvester Comprehensive Cancer Center in Miami\, FL.  He completed his internal medicine residency within the University of Pennsylvania Health System before working as a hematologic malignancy hospitalist at the Hospital of the University of Pennsylvania in Philadelphia\, PA.  He is now completing his oncology training with a focus on solid tumor malignancies\, specifically soft tissue and bone sarcomas.  His research interests include hereditary cancer predisposition syndromes\, circulating tumor DNA and its role in guiding targeted therapies\, and the role of DNA damage repair pathways in sarcomas. \nThank you to our Sponsors:
URL:https://liferaftgroup.org/event/the-emerging-role-of-circulating-tumor-dna-in-gist/
CATEGORIES:Education,Events
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20221019T130000
DTEND;TZID=America/New_York:20221019T140000
DTSTAMP:20260403T191636
CREATED:20211230T190313Z
LAST-MODIFIED:20221230T174626Z
UID:10000188-1666184400-1666188000@liferaftgroup.org
SUMMARY:Virtual Caregiver Support Group
DESCRIPTION: A Bi-Weekly Virtual Support Group for GIST Caregivers\nHeld on the first & third Wednesdays of the month\nAs we continue to navigate this uncertain time together\, we want to offer you a little extra support. LRG has a twice monthly support group for the caregivers facilitated by Marlene Nei\, GIST Caregiver. To continue social distancing and connecting with caregivers across the United States\, we will use an electronic platform to gather as a group. We will talk about all the feelings you might be experiencing\, both in relation to GIST\, and COVID-19. \nWe will share our stories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling because of this unprecedented time. The group will be a safe space not only to feel supported by your fellow caregivers\, but also a place to share our own coping mechanisms to get us through this stressful time. All information shared will be kept confidential. Contact Diana Nieves at dnieves@liferaftgroup.org for more information. \n\nPlease email Diana Nieves at dnieves@liferaftgroup.org to join this meeting.\n\nAbout the Group Leader:\nMarlene Nei\, GIST Caregiver\nAs an active member of the Life Raft Group\, Marlene advocates for the needs of the caregiver community because she feels they are an underrepresented group. It is her mission to advocate for the entire GIST community making sure they are equipped with the appropriate resources on their GIST journey.
URL:https://liferaftgroup.org/event/virtual-caregiver-support-group-2022-2/2022-10-19/
CATEGORIES:Events
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2021/06/Caregiver-Support-Group.jpg
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20221022T100000
DTEND;TZID=America/Los_Angeles:20221022T100000
DTSTAMP:20260403T191636
CREATED:20220930T174409Z
LAST-MODIFIED:20221003T194939Z
UID:10000246-1666432800-1666432800@liferaftgroup.org
SUMMARY:So. Cal GISTer Virtual Support Group
DESCRIPTION:This Support Group will be held at 10am Pacific Time/1pm Eastern. \nJoin us on Saturday\, October 22\, at 10:00 am PST. Make yourself comfortable at your computer\, laptop\, tablet\, etc. and participate in what will be a very helpful and informative meeting. \nThe Life Raft Group is offering a virtual California Support Group with Southern California Leader Dina Wiley\, PhD. The group will meet to talk to each other\, discuss individual GIST issues\, and get answers to questions. This will enable you to not only get some relief from the worry of GIST\, but to also help others\, as well. We are\, after all\, in the same life raft\, and we are each needed to pull together. When we do\, wonderful things happen! \nAnd here’s the best part — we will have a very special guest – Dr. Adam Burgoyne\, Moores Cancer Center\, UCSD Health. He is currently involved with Temozolomide (TMZ) In Advanced Succinate Dehydrogenase (SDH)-Mutant/Deficient Gastrointestinal Stromal Tumor (GIST) clinical trial. Dr. Burgoyne will be available to answer any questions you may have\, and explain some of the mysteries of GIST.  \nREGISTERAbout the Group Leader:\nDina Wiley – Dina is a long-time Southern California LRG Support Group Leader. Read about Dina’s GIST journey here \nAbout Our Special Guest:\nAdam Burgoyne\, MD\, PhD\nMoores Cancer Center\, UCSD Health\nDr. Burgoyne\, is a board-certified medical oncologist who specializes in diagnosing and treating primary liver cancers such as hepatocellular carcinoma (HCC). He also treats cancers of the esophagus\, gallbladder\, pancreas\, stomach\, small intestine\, colon and appendix\, as well as gastrointestinal stromal tumors (GIST). \nDr. Burgoyne uses many forms of therapy\, including traditional chemotherapy\, immunotherapy and targeted therapy\, with an emphasis on personalized medicine\, to offer the best possible patient outcomes. Dr. Burgoyne is the medical oncologist for UC San Diego Health’s multidisciplinary liver cancer clinic. The clinic offers patients highly specialized and coordinated care at one convenient location\, ensuring easy and timely access to the best cancer doctors and the most innovative treatment approaches. \nAs a physician-scientist\, Dr. Burgoyne also leads original research to improve survival rates among people with primary liver cancer and other cancers affecting the digestive system. In particular\, he is working on developing novel drugs that inhibit multiple targets within the cancer cell with a single agent. He also studies tumor genetics and the biology of gastrointestinal stromal tumors (GIST) to facilitate personalize cancer care. His work has appeared in Journal of Translational Medicine\, Molecular Cancer Therapeutics\, and Cancer\, among others. \nDr. Burgoyne completed a fellowship in hematology and oncology at UC San Diego School of Medicine\, where he was chief fellow. He also completed a residency in internal medicine at UC San Diego School of Medicine. Dr. Burgoyne earned his medical degree and doctorate from Case Western Reserve University School of Medicine in Cleveland\, Ohio. He is board-certified in internal medicine and medical oncology. \nDr. Burgoyne is a member of the American Association for Cancer Research\, the American Association for the Study of Liver Diseases\, the American Society of Hematology\, and the American Society of Clinical Oncology. He is a member of the Alpha Omega Alpha Honor Medical Society.
URL:https://liferaftgroup.org/event/so-cal-gister-virtual-support-group/
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2022/09/CA-Support-Group-10-22-22.png
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20221102T130000
DTEND;TZID=America/New_York:20221102T140000
DTSTAMP:20260403T191636
CREATED:20211230T190819Z
LAST-MODIFIED:20230525T182345Z
UID:10000200-1667394000-1667397600@liferaftgroup.org
SUMMARY:Virtual Caregiver Support Group
DESCRIPTION: A Bi-Weekly Virtual Support Group for GIST Caregivers\nHeld on the first & third Wednesdays of the month\nAs we continue to navigate this uncertain time together\, we want to offer you a little extra support. LRG has a twice monthly support group for the caregivers facilitated by Marlene Nei\, GIST Caregiver. To continue social distancing and connecting with caregivers across the United States\, we will use an electronic platform to gather as a group. We will talk about all the feelings you might be experiencing\, both in relation to GIST\, and COVID-19. \nWe will share our stories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling because of this unprecedented time. The group will be a safe space not only to feel supported by your fellow caregivers\, but also a place to share our own coping mechanisms to get us through this stressful time. All information shared will be kept confidential. Contact Diana Nieves at dnieves@liferaftgroup.org for more information. \n\nPlease email Diana Nieves at dnieves@liferaftgroup.org to join this meeting.\n\nAbout the Group Leader:\nMarlene Nei\, GIST Caregiver\nAs an active member of the Life Raft Group\, Marlene advocates for the needs of the caregiver community because she feels they are an underrepresented group. It is her mission to advocate for the entire GIST community making sure they are equipped with the appropriate resources on their GIST journey.
URL:https://liferaftgroup.org/event/virtual-caregiver-support-group-2022-1/2022-11-02/
CATEGORIES:Events
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2021/06/Caregiver-Support-Group.jpg
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20221104
DTEND;VALUE=DATE:20221106
DTSTAMP:20260403T191636
CREATED:20220217T154650Z
LAST-MODIFIED:20221026T123831Z
UID:10000205-1667520000-1667692799@liferaftgroup.org
SUMMARY:GDOL Miami
DESCRIPTION:GDOL Miami – November 4th & 5th – In person\nA GIST Day of Learning (GDOL) is a free one day event to help patients and caregivers learn more about this rare cancer\, find support\, and enhance their knowledge base to help them navigate their cancer journey. \nThe mission of the Life Raft Group is to enhance survival and quality of life for people living with GIST through patient-powered research\, education and empowerment\, and global advocacy efforts. The LRG vision is to champion patient-powered science and drastically increase long-term survivorship for all cancer patients. To accomplish this\, we rely on four key pillars;\n– Leverage the patient perspective to drive innovative solutions in cancer research\n– Educate and empower patients to take a larger role in their care\n– Accelerate research outcomes through collaborative efforts\n– Increase access to effective treatments worldwide \nIf you have any questions\, please contact Diana Nieves at dnieves@liferaftgroup.org \nREGISTERClick here for printable version of agenda \n \nThank you to our GDOL Sponsors:
URL:https://liferaftgroup.org/event/gdol-miami/
LOCATION:Gordon Center for Simulation & Innovation in Medical Education\, 1120 NW 14th Street\, Miami\, FL\, 33136\, United States
CATEGORIES:Education,Events
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20221107T120000
DTEND;TZID=America/New_York:20221107T120000
DTSTAMP:20260403T191636
CREATED:20220816T195740Z
LAST-MODIFIED:20221026T190034Z
UID:10000237-1667822400-1667822400@liferaftgroup.org
SUMMARY:Navigating Your Cancer Care
DESCRIPTION:Monday\, November 7th at noon ET \nAre you or a loved one currently dealing with a cancer diagnosis? Feeling lost in all the new terminology and decisions you are having to make? At Columbia Cancer\, we know that being diagnosed with cancer can be overwhelming. We are here to help you navigate this challenging time. \nIn this webinar\, you’ll hear from oncologists and people who have been where you are now. You will learn more about the full spectrum of cancer care\, from diagnosis to survivorship\, and have all of your questions answered. \nCANCELLEDAbout the Presenters\nGary K. Schwartz\, MD\nDeputy Director\, Columbia Cancer \nDr. Schwartz is a renowned medical oncologist specializing in rare cancers. Working for decades to bring innovative cancer treatments  to patients\, Dr. Schwartz holds unique insights into the questions and decisions you should consider before entering treatment. \n\nNorman J. Scherzer\nExecutive Director Emeritus\, The Life Raft Group \nNorman Scherzer is Executive Director Emeritus and founder of The Life Raft Group\, and a passionate advocate. The Life Raft Group is a global non-profit which empowers cancer patients to take control of their care through education and advocacy.
URL:https://liferaftgroup.org/event/navigating-your-cancer-care/
CATEGORIES:Events
ORGANIZER;CN="Kristina Mesoznik/Columbia U":MAILTO:kf2604@cumc.columbia.edu
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20221108T130000
DTEND;TZID=America/New_York:20221108T140000
DTSTAMP:20260403T191636
CREATED:20221025T145353Z
LAST-MODIFIED:20221025T145402Z
UID:10000247-1667912400-1667916000@liferaftgroup.org
SUMMARY:Surgical Considerations for GIST
DESCRIPTION:November 8\, 2022 @ 1PM ET\nThe Life Raft Group is partnering with Dr. Andrew Blakely\, surgical oncologist\, National Cancer Institute\, Center for Cancer Research\, NIH\, to discuss the basics of surgical removal of primary GISTs and considerations in multimetastatic disease. The presentation will include case examples for both non-wild-type and wild-type or SDH-deficient GIST. Q&A will follow the presentation. \nIf you have any questions about this webinar\, please email srothschild@liferaftgroup.org \nREGISTERAbout our Presenter:\nDr. Andrew Blakely\nNational Cancer Institute\, Center for Cancer Research\nNational Institutes of Health \nDr. Blakely completed a Bachelor of Science in Biomedical Engineering followed by medical school at Drexel University. He went on to general surgery residency at Brown University. During residency\, he spent two years of dedicated research time at the Center for Biomedical Engineering developing a device for tissue engineering applications. That work then led to a National Science Foundation grant and a patent. Dr. Blakely then completed his fellowship in Complex General Surgical Oncology at City of Hope National Medical Center. Dr. Blakely is currently a surgical oncologist specializing in peritoneal surface malignancies and soft tissue sarcomas. One of the primary focuses of his research includes improving surgical treatment and ex vivo tumor modeling of gastrointestinal stromal tumors.   \nThank you to our 2022 LRG webinar sponsors:
URL:https://liferaftgroup.org/event/surgical-considerations-for-gist/
CATEGORIES:Education,Events
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20221114T180000
DTEND;TZID=America/New_York:20221114T180000
DTSTAMP:20260403T191636
CREATED:20220908T215655Z
LAST-MODIFIED:20220908T234543Z
UID:10000241-1668448800-1668448800@liferaftgroup.org
SUMMARY:Florida Support Group
DESCRIPTION:Zoom\, 2nd Monday of the Month – 6pm ET \nOur moderator is a fellow GISTER/LRG Member\, Jackie\, from Orlando\, Florida. She was diagnosed with GIST in late 2016. She is hopeful that this group will be helpful to GIST patients and their caregivers\, who are also welcome to attend. This group will meet online every 2nd Monday of the month at 6pm ET. \nIf you wish to attend\, please email Jackie at dillonjackie62@gmail.com for the Zoom link for the meeting.
URL:https://liferaftgroup.org/event/florida-support-group/2022-11-14/
CATEGORIES:Events,Support Group
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2022/09/florida-support-group.jpg
ORGANIZER;CN="Jackie VanderPol":MAILTO:dillonjackie62@gmail.com
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20221116T130000
DTEND;TZID=America/New_York:20221116T140000
DTSTAMP:20260403T191636
CREATED:20211230T190313Z
LAST-MODIFIED:20221230T174626Z
UID:10000189-1668603600-1668607200@liferaftgroup.org
SUMMARY:Virtual Caregiver Support Group
DESCRIPTION: A Bi-Weekly Virtual Support Group for GIST Caregivers\nHeld on the first & third Wednesdays of the month\nAs we continue to navigate this uncertain time together\, we want to offer you a little extra support. LRG has a twice monthly support group for the caregivers facilitated by Marlene Nei\, GIST Caregiver. To continue social distancing and connecting with caregivers across the United States\, we will use an electronic platform to gather as a group. We will talk about all the feelings you might be experiencing\, both in relation to GIST\, and COVID-19. \nWe will share our stories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling because of this unprecedented time. The group will be a safe space not only to feel supported by your fellow caregivers\, but also a place to share our own coping mechanisms to get us through this stressful time. All information shared will be kept confidential. Contact Diana Nieves at dnieves@liferaftgroup.org for more information. \n\nPlease email Diana Nieves at dnieves@liferaftgroup.org to join this meeting.\n\nAbout the Group Leader:\nMarlene Nei\, GIST Caregiver\nAs an active member of the Life Raft Group\, Marlene advocates for the needs of the caregiver community because she feels they are an underrepresented group. It is her mission to advocate for the entire GIST community making sure they are equipped with the appropriate resources on their GIST journey.
URL:https://liferaftgroup.org/event/virtual-caregiver-support-group-2022-2/2022-11-16/
CATEGORIES:Events
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2021/06/Caregiver-Support-Group.jpg
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
END:VCALENDAR