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DTSTART;TZID=America/New_York:20230620T183000
DTEND;TZID=America/New_York:20230620T183000
DTSTAMP:20260403T170827
CREATED:20230509T171420Z
LAST-MODIFIED:20230601T192629Z
UID:10000500-1687285800-1687285800@liferaftgroup.org
SUMMARY:GIST Updates from ASCO
DESCRIPTION:ASCO (American Society of Clinical Oncology) is an important conference in the oncology community where new scientific research updates are shared. The Life Raft Group is excited to host Dr. Herbert Loong\, who will summarize abstracts and presentations that were presented during this conference that are relevant to the GIST patient community. \nPlease note that this webinar is not a substitute for your physician’s guidance and care.\nREGISTERAbout Our Presenter\nHerbert H. Loong\, MD\nThe Chinese University of Hong Kong \nDr. Herbert H. Loong holds conjoint appointments of Clinical Associate Professor in the Department of Clinical Oncology and Deputy Medical Director of the Phase 1 Clinical Trials Centre of The Chinese University of Hong Kong. He is also the current and founding convenor of the Prince of Wales Hospital Adult Sarcoma Multidisciplinary Team. \nDr. Loong obtained his medical degree with a Distinction in Surgery from The University of Hong Kong in 2003. He has completed a Fellowship in Drug Development at Princess Margaret Cancer Centre in Toronto\, Canada with a special focus on Experimental Therapeutics. His clinical and research interests also include Sarcoma Medical Oncology\, Thoracic Oncology and Health Economics. He is a recipient of the European Cancer Congress Fellowship Grant (2013)\, the American Society of Clinical Oncology (ASCO) Annual Meeting Merit Award (2014)\, the Hong Kong College of Physicians Young Investigators’ Award (2014). Nominated by patients and their caregivers\, Dr. Loong led the Lung Cancer Team at CUHK to be bestowed the IASLC Foundation Cancer Care Team Award in recognition for providing the best thoracic oncology care in “Asia & Rest of the World” in 2018. \nDr. Loong has served or continues to serve in various capacities in various professional international oncology bodies\, including the International Affairs Committee and the Asia-Pacific Regional Council of ASCO\, the Membership\, Education and Communications Committees of the IASLC. He has been elected as a Board Member of the Connective Tissue Oncology Society (CTOS) for 2022-2024. He is also a founding executive committee member of the newly formed Asia Pacific Oncology Drug Development Network (APODDC). He is also a Board Member in the specialty of Medical Oncology in the Hong Kong College of Physicians. In his appointment as a Registration Committee member of Pharmacy and Poisons Board of Hong Kong\, he helps oversee the registration of medicinal products and clinical trials in the territory. \nThank you to our 2023 Webinar Sponsors!
URL:https://liferaftgroup.org/event/gist-updates-from-asco/
CATEGORIES:Education,Events
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230713T120000
DTEND;TZID=America/New_York:20230713T131500
DTSTAMP:20260403T170827
CREATED:20230601T184055Z
LAST-MODIFIED:20230706T163000Z
UID:10000565-1689249600-1689254100@liferaftgroup.org
SUMMARY:GIST Awareness Day 2023
DESCRIPTION:July 13th\, GIST Awareness Day\, is a time where GIST experts\, patients\, caregivers can come together to educate the public about this disease and advocate towards finding a cure. The Life Raft Group invites GIST patients and caregivers to celebrate GIST Awareness Day with us on July 13th from noon to 1:15pm ET. During this virtual event\, Dr. Jason Sicklick of UC San Diego Health\, Dr. John Glod of the National Cancer Institute\, and Dr. Venkata Ramesh Bulusu of Cambridge University Hospital will discuss GIST research updates. An interactive Q&A segment will follow their presentations. \nPlease note that this webinar is not a substitute for your physician’s guidance and care.\nREGISTERAbout Our Presenters\nDr. Ramesh Bulusu\nCambridge University Hospitals \nDr. Ramesh Bulusu has trained at the Beatson Oncology Centre\, Glasgow\, Addenbrooke’s Hospital\, Cambridge and Churchill hospital\, Oxford\, before taking up his consultant position in Addenbrooke’s hospital in Cambridge in 2002.Dr Bulusu is the founder/chairman of the Cambridge Gastrointestinal Stromal Tumour (GIST) Study Group and the network lead for GISTs in Cambridge. He has served as the Track leader and member of the Sarcoma Track of the American Society of Clinical Oncology Scientific Committee from 2013-2017. \nDr Bulusu is passionate about GISTs and is currently heading a national focus group PAWS-GIST (paediatric\, adolescent\, wild type and syndromic).In 2014\, he has established a national clinic in Cambridge for PAWS-GIST to facilitate research in this rare subgroup of GISTs.\nHe is actively involved in the training and education of health care professionals in the management of GISTs and has presented and lectured extensively\, both nationally and internationally. He has co-authored the UK GIST guidelines in 2004\, 2009 and 2017. \nDr. John Glod\nNIH Center for Cancer Research\, National Cancer  \nAs a member of the Pharmacology and Experimental Therapeutics section of the NCI Pediatric Oncology Branch\, Dr. Glod’s research program focuses broadly on developing new therapies for the treatment of pediatric cancer patients with a focus on rare solid tumors. Dr. Glod has expertise in the management and treatment of patients with rare tumor predisposition syndromes including multiple endocrine neoplasia type 2B and germline succinate dehydrogenase deficiency. He is the NCI principal investigator (PI) for a natural history study of patients with MEN2B and a single institution study of guadecitabine in SDH-deficient GIST\, paraganglioma\, and renal cell cancer as well as other early phase studies in pediatric oncology. \nDr. Jason Sicklick\nMoores Cancer Center\, US San Diego Health \nis an NIH-funded investigator and Associate Professor of Surgery at the University of California San Diego Moores Cancer Center. He is a board-certified general surgeon and surgical oncologist specializing in the treatment of hepatobiliary diseases and sarcomas\, including gastrointestinal stromal tumors (GIST). In 2016\, Dr. Sicklick was named the GIST Clinician of the Year by the Life Raft GIST Support Group\, the largest GIST patient advocacy group in the world. In 2018\, Dr. Sicklick was selected as a James IV Association of Surgeons fellow. This highly prestigious international traveling fellowship is designed to promote communication and collaboration in the surgical community. In 2018 he also received the RARE Champion of Hope in Medical Care & Treatment Award from the Global Genes-Allies in Rare Disease. He obtained his medical degree from the UCLA School of Medicine\, completed his general surgery residency at The Johns Hopkins Hospital\, and completed a fellowship in surgical oncology at Memorial Sloan Kettering Cancer Center. He joined the Division of Surgical Oncology at Moores Cancer Center in 2010. \nDr. Sicklick is an active member of the National Comprehensive Cancer Network (NCCN) Sarcoma and Hepatobiliary Committees\, the Transatlantic Atlantic Retroperitoneal Sarcoma Working Group\, and the SDH GIST Consortium. Dr. Sicklick is on the Editorial Boards of Annals of Surgical Oncology\, Journal of Gastrointestinal Surgery and Journal of Surgical Research. He has published in prestigious journals such as Clinical Cancer Research\, Annals of Surgery\, JAMA Surgery\, Surgery\, and Annals of Surgical Oncology. His translational and clinical research focus on molecular mechanisms of GIST\, as well as precision medicine approaches to cancer therapy. \nThank you to our 2023 Webinar Sponsors!
URL:https://liferaftgroup.org/event/gist-awareness-day-2023-sdh-webinar/
CATEGORIES:Events
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230730T150000
DTEND;TZID=America/New_York:20230730T170000
DTSTAMP:20260403T170827
CREATED:20230725T162102Z
LAST-MODIFIED:20230725T165832Z
UID:10000570-1690729200-1690736400@liferaftgroup.org
SUMMARY:Understanding GIST Mutations & Clinical Trials Update
DESCRIPTION:In this session of Let’s Get the GIST of It\, we will be reviewing GIST mutations and sharing the current updates on GIST Clinical Trials. The event will be interactive\, so attendees are encouraged to ask questions and participate. Patients and caregivers are invited to attend. \nThe session will be hosted by Sahibjeet Parmar\, Director of Data Management & Research at The Life Raft Group. \nREGISTERAbout Our Presenter:\nSahibjeet Parmar\nDirector\, Data Management & Research \nIn her role as the Director of Data Management & Research\, Sahibjeet is responsible for a team of data management and research associates and data analysts in their day-to-day support of LRG patients and data science. \nAs the point person of The Life Raft Group’s GIST Patient Registry and GIST Collaborative Tissue Bank\, Sahibjeet oversees the operations of these platforms including direct patient contact including outreach\, medical updates\, email community support\, patient education\, biospecimen handling and research collaborations.
URL:https://liferaftgroup.org/event/understanding-gist-mutations/
CATEGORIES:Events,Webcast
ORGANIZER;CN="Denisse Evans":MAILTO:devans@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230801T180000
DTEND;TZID=America/New_York:20230801T193000
DTSTAMP:20260403T170827
CREATED:20230727T133611Z
LAST-MODIFIED:20240823T152527Z
UID:10000594-1690912800-1690918200@liferaftgroup.org
SUMMARY:Virtual GIST Patient Support Group
DESCRIPTION:The Patient Support Group meets via Zoom on the first and third Tuesday of each month from 6:00 PM – 7:30 PM ET (NYC Time). \nWe will start each group with a “Round Robin” in which anyone who feels like updating the group on how they are doing/feeling can do so. There is no pressure to speak if you prefer to simply listen. Once we complete our updates\, the group will have the opportunity for organic conversation to develop in relation to our emotional experiences around GIST\, and other challenges that we may be experiencing as a community. \nIn order to be able to moderate a flowing discussion\, the group will be capped at 15 people each month. The first 15 people into the Zoom waiting room will participate. Keep in mind that since the group is now open\, you don’t necessarily have to attend each month to participate. \nContact Brian Morello to join: bmorello@liferaftgroup.org
URL:https://liferaftgroup.org/event/virtual-gist-patient-support-group-2023-first/2023-08-01/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/01/GISTer-Support-Group-2022-1.png
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230802T130000
DTEND;TZID=America/New_York:20230802T140000
DTSTAMP:20260403T170827
CREATED:20230727T134933Z
LAST-MODIFIED:20240614T133545Z
UID:10000618-1690981200-1690984800@liferaftgroup.org
SUMMARY:Virtual GIST Caregiver Support Group
DESCRIPTION:Monthly Virtual Support Group for GIST Caregivers\nHeld on the first Wednesday of the month \nLRG hosts a monthly virtual support group for the caregivers. We will share our stories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling during this journey as a caregiver. The group will be a safe space not only to feel supported by your fellow caregivers\, but also a place to share our own coping mechanisms\, concerns\, successes and trials. All information shared will be kept confidential. \nContact Brian Morello to join: bmorello@liferaftgroup.org \nAbout the Group Leader:\nMarlene Nei\, GIST Caregiver\nAs an active member of The Life Raft Group\, Marlene advocates for the needs of the caregiver community because she feels they are an underrepresented group. It is her mission to advocate for the entire GIST community making sure they are equipped with the appropriate resources on their GIST journey.
URL:https://liferaftgroup.org/event/virtual-gist-caregiver-support-group-2023/2023-08-02/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2023/05/caregiver-sg-2023.jpg
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230814T180000
DTEND;TZID=America/New_York:20230814T180000
DTSTAMP:20260403T170827
CREATED:20230727T133238Z
LAST-MODIFIED:20230727T133238Z
UID:10000571-1692036000-1692036000@liferaftgroup.org
SUMMARY:Virtual Florida Support Group
DESCRIPTION:Florida Support Group\nZoom\, 2nd Monday of the Month – 6pm ET\nOur moderator is a fellow GISTER/LRG Member from Florida diagnosed with GIST in late 2016.\nIf you wish to attend\, please email Diana Nieves: dnieves@liferaftgroup.org for the Zoom link for the meeting.
URL:https://liferaftgroup.org/event/virtual-florida-support-group/2023-08-14/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2022/09/florida-support-group.jpg
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230815T080000
DTEND;TZID=America/New_York:20230815T170000
DTSTAMP:20260403T170827
CREATED:20230727T134306Z
LAST-MODIFIED:20260105T170322Z
UID:10001025-1692086400-1692118800@liferaftgroup.org
SUMMARY:Virtual GIST Patient Support Group
DESCRIPTION:The Patient Support Group meets via Zoom on the first and third Tuesday of each month from 6:00 PM – 7:30 PM ET (NYC Time). \nWe will start each group with a “Round Robin” in which anyone who feels like updating the group on how they are doing/feeling can do so. There is no pressure to speak if you prefer to simply listen. Once we complete our updates\, the group will have the opportunity for organic conversation to develop in relation to our emotional experiences around GIST\, and other challenges that we may be experiencing as a community. \nIn order to be able to moderate a flowing discussion\, the group will be capped at 15 people each month. The first 15 people into the Zoom waiting room will participate. Keep in mind that since the group is now open\, you don’t necessarily have to attend each month to participate. \nContact Brian Morello to join: bmorello@liferaftgroup.org
URL:https://liferaftgroup.org/event/virtual-gist-patient-support-group-third/2023-08-15/1/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/01/GISTer-Support-Group-2022-1.png
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230815T180000
DTEND;TZID=America/New_York:20230815T193000
DTSTAMP:20260403T170827
CREATED:20230727T134306Z
LAST-MODIFIED:20260105T170322Z
UID:10000612-1692122400-1692127800@liferaftgroup.org
SUMMARY:Virtual GIST Patient Support Group
DESCRIPTION:The Patient Support Group meets via Zoom on the first and third Tuesday of each month from 6:00 PM – 7:30 PM ET (NYC Time). \nWe will start each group with a “Round Robin” in which anyone who feels like updating the group on how they are doing/feeling can do so. There is no pressure to speak if you prefer to simply listen. Once we complete our updates\, the group will have the opportunity for organic conversation to develop in relation to our emotional experiences around GIST\, and other challenges that we may be experiencing as a community. \nIn order to be able to moderate a flowing discussion\, the group will be capped at 15 people each month. The first 15 people into the Zoom waiting room will participate. Keep in mind that since the group is now open\, you don’t necessarily have to attend each month to participate. \nContact Brian Morello to join: bmorello@liferaftgroup.org
URL:https://liferaftgroup.org/event/virtual-gist-patient-support-group-third/2023-08-15/2/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/01/GISTer-Support-Group-2022-1.png
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230905T180000
DTEND;TZID=America/New_York:20230905T193000
DTSTAMP:20260403T170827
CREATED:20230727T133611Z
LAST-MODIFIED:20240823T152527Z
UID:10000595-1693936800-1693942200@liferaftgroup.org
SUMMARY:Virtual GIST Patient Support Group
DESCRIPTION:The Patient Support Group meets via Zoom on the first and third Tuesday of each month from 6:00 PM – 7:30 PM ET (NYC Time). \nWe will start each group with a “Round Robin” in which anyone who feels like updating the group on how they are doing/feeling can do so. There is no pressure to speak if you prefer to simply listen. Once we complete our updates\, the group will have the opportunity for organic conversation to develop in relation to our emotional experiences around GIST\, and other challenges that we may be experiencing as a community. \nIn order to be able to moderate a flowing discussion\, the group will be capped at 15 people each month. The first 15 people into the Zoom waiting room will participate. Keep in mind that since the group is now open\, you don’t necessarily have to attend each month to participate. \nContact Brian Morello to join: bmorello@liferaftgroup.org
URL:https://liferaftgroup.org/event/virtual-gist-patient-support-group-2023-first/2023-09-05/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/01/GISTer-Support-Group-2022-1.png
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230906T130000
DTEND;TZID=America/New_York:20230906T140000
DTSTAMP:20260403T170827
CREATED:20230727T134933Z
LAST-MODIFIED:20240614T133545Z
UID:10000619-1694005200-1694008800@liferaftgroup.org
SUMMARY:Virtual GIST Caregiver Support Group
DESCRIPTION:Monthly Virtual Support Group for GIST Caregivers\nHeld on the first Wednesday of the month \nLRG hosts a monthly virtual support group for the caregivers. We will share our stories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling during this journey as a caregiver. The group will be a safe space not only to feel supported by your fellow caregivers\, but also a place to share our own coping mechanisms\, concerns\, successes and trials. All information shared will be kept confidential. \nContact Brian Morello to join: bmorello@liferaftgroup.org \nAbout the Group Leader:\nMarlene Nei\, GIST Caregiver\nAs an active member of The Life Raft Group\, Marlene advocates for the needs of the caregiver community because she feels they are an underrepresented group. It is her mission to advocate for the entire GIST community making sure they are equipped with the appropriate resources on their GIST journey.
URL:https://liferaftgroup.org/event/virtual-gist-caregiver-support-group-2023/2023-09-06/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2023/05/caregiver-sg-2023.jpg
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230911T180000
DTEND;TZID=America/New_York:20230911T180000
DTSTAMP:20260403T170827
CREATED:20230727T133238Z
LAST-MODIFIED:20230727T133238Z
UID:10000572-1694455200-1694455200@liferaftgroup.org
SUMMARY:Virtual Florida Support Group
DESCRIPTION:Florida Support Group\nZoom\, 2nd Monday of the Month – 6pm ET\nOur moderator is a fellow GISTER/LRG Member from Florida diagnosed with GIST in late 2016.\nIf you wish to attend\, please email Diana Nieves: dnieves@liferaftgroup.org for the Zoom link for the meeting.
URL:https://liferaftgroup.org/event/virtual-florida-support-group/2023-09-11/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2022/09/florida-support-group.jpg
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230918T120000
DTEND;TZID=America/New_York:20230918T120000
DTSTAMP:20260403T170827
CREATED:20230721T225845Z
LAST-MODIFIED:20230822T183423Z
UID:10000567-1695038400-1695038400@liferaftgroup.org
SUMMARY:Getting the GIST of It: How to Manage Side Effects of GIST Therapies
DESCRIPTION:The Life Raft Group has partnered with Emmeline C. Academia\, PharmD\, BCOP of Beth Israel Deaconess Medical Center to present “Getting the GIST of it: How to Manage Side Effects of GIST Therapies” for GIST patients and caretakers on September 18th\, 2023 at 12pm. During this virtual presentation\, Ms. Academia will provide an overview of GIST treatments and their side effects as well as home management for each type of symptom and when to call the clinic. \nREGISTERAbout Our Presenter:\nEmmeline C. Academia\, PharmD\, BCOP \nBeth Israel Deaconess Medical Center \nMs. Academia is a practicing clinical pharmacy specialist in adult oncology at Beth Israel Deaconess Medical Center in Boston. She is board certified in oncology\, and sub-specializes in gastrointestinal and thoracic malignancies\, along with sarcoma. She precepts students from Northeastern University and the Massachusetts College of Pharmacy and Health Sciences. She is a contributing editor for MET Crusaders\, a nonprofit organization dedicated to patients with MET alterations. She also reviews and writes for GoodRx\, focusing on oncology-related medications and topics\, and is the co-author of several published journal articles. Dr. Academia received her Doctor of Pharmacy degree from the University of California\, San Francisco before completing 2 years of pharmacy residency at the University of Colorado in general pharmacy practice\, followed by specialized training in adult oncology. \nThank you to our 2023 Webinar Sponsors!
URL:https://liferaftgroup.org/event/manage-side-effects/
CATEGORIES:Education,Events,Webcast
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230919T180000
DTEND;TZID=America/New_York:20230919T193000
DTSTAMP:20260403T170827
CREATED:20230727T134306Z
LAST-MODIFIED:20260105T170322Z
UID:10000613-1695146400-1695151800@liferaftgroup.org
SUMMARY:Virtual GIST Patient Support Group
DESCRIPTION:The Patient Support Group meets via Zoom on the first and third Tuesday of each month from 6:00 PM – 7:30 PM ET (NYC Time). \nWe will start each group with a “Round Robin” in which anyone who feels like updating the group on how they are doing/feeling can do so. There is no pressure to speak if you prefer to simply listen. Once we complete our updates\, the group will have the opportunity for organic conversation to develop in relation to our emotional experiences around GIST\, and other challenges that we may be experiencing as a community. \nIn order to be able to moderate a flowing discussion\, the group will be capped at 15 people each month. The first 15 people into the Zoom waiting room will participate. Keep in mind that since the group is now open\, you don’t necessarily have to attend each month to participate. \nContact Brian Morello to join: bmorello@liferaftgroup.org
URL:https://liferaftgroup.org/event/virtual-gist-patient-support-group-third/2023-09-19/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/01/GISTer-Support-Group-2022-1.png
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230928T120000
DTEND;TZID=America/New_York:20230928T120000
DTSTAMP:20260403T170827
CREATED:20230817T122902Z
LAST-MODIFIED:20230822T183247Z
UID:10000629-1695902400-1695902400@liferaftgroup.org
SUMMARY:Advocating for Yourself or a Loved One with GIST
DESCRIPTION:Santy DiSabatino\, Director of our US GIST Mentor Program\, will be chatting with a group of GIST patients who have extensive experience advocating for themselves and their loved ones for the best possible care. We are grateful to these individuals who have been so inspirational and thankful that they are willing to join us on September 28th at noon ET to share how to navigate the medical space to ensure that you receive the highest quality of life possible for you or your loved one. \nREGISTERAbout Our Presenter\nSanty DiSabatino\nDirector\, US GIST Mentor Program \nSanty DiSabatino has been very active in our LRG community as a volunteer\, serving currently as the Voluntary Director of the GIST Mentor program\, and as a mentor. \n\nOur Featured Guest Panel\n\nIan Seah \nIan Seah is an extremely active GIST patient originally from Singapore and who now resides in New York City. He has various interests that have led him to career opportunities in tech\, crypto\, snack foods and yoga. Since being diagnosed with GIST\, he has continued his diverse career ventures and now enjoys new hobbies such as photography and cooking. Ian has taken part in two GIST clinical trials at Memorial Sloan Kettering and has traveled to Europe for integrative treatment options in his journey to be cancer free. Ian is a great example of someone who has tirelessly advocated for himself to receive the best possible outcomes. \n\nMargaret McInteer\nMargaret McInteer is a loving wife\, mother\, grandmother\, and great grandmother who has worked over fifty years in education. After being diagnosed with GIST in 2019\, Margaret connected with The Life Raft Group and is grateful to have been connected with a wonderful mentor who helped her navigate her disease journey to ensure the highest quality of life. Margaret recounts that being diagnosed with GIST forced her to slow down\, take care of herself\, and pay attention to the important things. She feels her life is even richer now and more fulfilling. \n\n  \nJean and Gary Erion`\nJean and Gary Erion are a married couple who both live with GIST. Gary is retired from the social work/counseling space and Jean currently works in the Assisted Living sector providing direct care. Jean and Gary enjoy long walks and spending quality time with their loved ones. Throughout their GIST journey\, Jean and Gary have advocated for themselves and each other\, gaining valuable self-advocacy experience. \nThank you to our 2023 Webinar Sponsors!
URL:https://liferaftgroup.org/event/advocating-for-yourself-and-loved-ones/
CATEGORIES:Events,Webcast
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231003T180000
DTEND;TZID=America/New_York:20231003T193000
DTSTAMP:20260403T170827
CREATED:20230727T133611Z
LAST-MODIFIED:20240823T152527Z
UID:10000596-1696356000-1696361400@liferaftgroup.org
SUMMARY:Virtual GIST Patient Support Group
DESCRIPTION:The Patient Support Group meets via Zoom on the first and third Tuesday of each month from 6:00 PM – 7:30 PM ET (NYC Time). \nWe will start each group with a “Round Robin” in which anyone who feels like updating the group on how they are doing/feeling can do so. There is no pressure to speak if you prefer to simply listen. Once we complete our updates\, the group will have the opportunity for organic conversation to develop in relation to our emotional experiences around GIST\, and other challenges that we may be experiencing as a community. \nIn order to be able to moderate a flowing discussion\, the group will be capped at 15 people each month. The first 15 people into the Zoom waiting room will participate. Keep in mind that since the group is now open\, you don’t necessarily have to attend each month to participate. \nContact Brian Morello to join: bmorello@liferaftgroup.org
URL:https://liferaftgroup.org/event/virtual-gist-patient-support-group-2023-first/2023-10-03/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/01/GISTer-Support-Group-2022-1.png
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231004T130000
DTEND;TZID=America/New_York:20231004T140000
DTSTAMP:20260403T170827
CREATED:20230727T134933Z
LAST-MODIFIED:20240614T133545Z
UID:10000620-1696424400-1696428000@liferaftgroup.org
SUMMARY:Virtual GIST Caregiver Support Group
DESCRIPTION:Monthly Virtual Support Group for GIST Caregivers\nHeld on the first Wednesday of the month \nLRG hosts a monthly virtual support group for the caregivers. We will share our stories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling during this journey as a caregiver. The group will be a safe space not only to feel supported by your fellow caregivers\, but also a place to share our own coping mechanisms\, concerns\, successes and trials. All information shared will be kept confidential. \nContact Brian Morello to join: bmorello@liferaftgroup.org \nAbout the Group Leader:\nMarlene Nei\, GIST Caregiver\nAs an active member of The Life Raft Group\, Marlene advocates for the needs of the caregiver community because she feels they are an underrepresented group. It is her mission to advocate for the entire GIST community making sure they are equipped with the appropriate resources on their GIST journey.
URL:https://liferaftgroup.org/event/virtual-gist-caregiver-support-group-2023/2023-10-04/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2023/05/caregiver-sg-2023.jpg
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231009T180000
DTEND;TZID=America/New_York:20231009T180000
DTSTAMP:20260403T170827
CREATED:20230727T133238Z
LAST-MODIFIED:20230727T133238Z
UID:10000573-1696874400-1696874400@liferaftgroup.org
SUMMARY:Virtual Florida Support Group
DESCRIPTION:Florida Support Group\nZoom\, 2nd Monday of the Month – 6pm ET\nOur moderator is a fellow GISTER/LRG Member from Florida diagnosed with GIST in late 2016.\nIf you wish to attend\, please email Diana Nieves: dnieves@liferaftgroup.org for the Zoom link for the meeting.
URL:https://liferaftgroup.org/event/virtual-florida-support-group/2023-10-09/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2022/09/florida-support-group.jpg
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231012T110000
DTEND;TZID=America/New_York:20231012T110000
DTSTAMP:20260403T170827
CREATED:20230804T192657Z
LAST-MODIFIED:20230804T192657Z
UID:10000626-1697108400-1697108400@liferaftgroup.org
SUMMARY:Understanding GIST & Desmoid Tumors
DESCRIPTION:The Life Raft Group is partnering with Dr. Jonathan Trent and Dr. Steven Bialick of Sylvester Comprehensive Cancer Center to present “Understanding GIST and Desmoids” for the GIST/Desmoid community on October 12th\, 2023 at 11AM ET. During this virtual presentation\, Dr. Trent and Dr. Bialick will discuss GIST and desmoid tumors to keep pace with the ever-growing body of knowledge about these disease groups\, and the development of new tools and strategies to support this patient and caregiver community. A Q&A session will follow the presentations. \nREGISTERAbout Our Presenters\nDr. Jonathan Trent\nSylvester Comprehensive Cancer Center \nJonathan C. Trent\, MD\, PhD is currently the Associate Director for Clinical Research\, the Director of the Bone and Soft-tissue Sarcoma Group at the Sylvester Comprehensive Cancer Center. Dr. Trent’s interests are in the clinical and translational research of sarcomas\, direct care of sarcoma patients\, and education about sarcoma. \n\nDr. Steven Bialick\nSylvester Comprehensive Cancer Center \nSteven Bialick\, DO\, MS is a recent graduate of the hematology/oncology fellowship program at the University of Miami/Jackson Memorial Hospital. He is a medical oncologist specializing in the care of patients with sarcoma and gastrointestinal malignancies at the Sylvester Comprehensive Cancer Center in South Florida. Dr. Bialick has a particular clinical research interest in connective tissue cancers and the role of circulating tumor DNA in solid tumor oncology. \n\nThank you to the sponsor of this webinar:
URL:https://liferaftgroup.org/event/understanding-gist-desmoid-tumors/
CATEGORIES:Events,Webcast
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231017T180000
DTEND;TZID=America/New_York:20231017T193000
DTSTAMP:20260403T170827
CREATED:20230727T134306Z
LAST-MODIFIED:20260105T170322Z
UID:10000614-1697565600-1697571000@liferaftgroup.org
SUMMARY:Virtual GIST Patient Support Group
DESCRIPTION:The Patient Support Group meets via Zoom on the first and third Tuesday of each month from 6:00 PM – 7:30 PM ET (NYC Time). \nWe will start each group with a “Round Robin” in which anyone who feels like updating the group on how they are doing/feeling can do so. There is no pressure to speak if you prefer to simply listen. Once we complete our updates\, the group will have the opportunity for organic conversation to develop in relation to our emotional experiences around GIST\, and other challenges that we may be experiencing as a community. \nIn order to be able to moderate a flowing discussion\, the group will be capped at 15 people each month. The first 15 people into the Zoom waiting room will participate. Keep in mind that since the group is now open\, you don’t necessarily have to attend each month to participate. \nContact Brian Morello to join: bmorello@liferaftgroup.org
URL:https://liferaftgroup.org/event/virtual-gist-patient-support-group-third/2023-10-17/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/01/GISTer-Support-Group-2022-1.png
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231019T180000
DTEND;TZID=America/New_York:20231019T230000
DTSTAMP:20260403T170827
CREATED:20230814T200826Z
LAST-MODIFIED:20231012T154306Z
UID:10000628-1697738400-1697756400@liferaftgroup.org
SUMMARY:Night to Fight Cancer 2023
DESCRIPTION:10.19.23 NYC\nThis year’s Night to Fight Cancer (Oct. 19 at 6pm) marks the 20th Anniversary of this beloved fundraising event created by past LRG Board President Jerry Cudzil.\nSave the date for our 20th annual event of high-stakes philanthropy & heart-pounding action at the Night to Fight Cancer!\nJoin the LRG team for food\, fun & action! \nDoors open at 6pm – Event starts at 7pm \nVIEW DETAILS & REGISTERFor more information on this event and sponsorship opportunities\, please contact Diana Nieves\, Chief Development & Involvement Officer\, at dnieves@liferaftgroup.org \nTHANK YOU TO OUR SPONSORS!
URL:https://liferaftgroup.org/event/night-to-fight-cancer-2023/
LOCATION:Midtown Loft & Terrace\, 267 5th Avenue\, New York\, NY\, 10016\, United States
CATEGORIES:Events,Fundraising
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2023/08/ntfc-2023-ALT-event-web.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231028T083000
DTEND;TZID=America/New_York:20231028T141500
DTSTAMP:20260403T170827
CREATED:20230314T192629Z
LAST-MODIFIED:20240216T204214Z
UID:10000489-1698481800-1698502500@liferaftgroup.org
SUMMARY:GIST Day of Learning - Colorado
DESCRIPTION:GDOL Denver (Aurora)\, Colorado is happening on October 28th\, 2023! \nREGISTERGDOL Denver (Aurora)\, Colorado is happening on October 28th\, 2023!\nClick image for a PDF of agenda: \n \nWhat is a GDOL?\nA GDOL is a GIST Day of Learning. This is a free one day event to help patients and caregivers learn more about this rare cancer\, find support\, and enhance their knowledge base to help them navigate their cancer journey. \nThe mission of the Life Raft Group is to enhance survival and quality of life for people living with GIST through patient-powered research\, education and empowerment\, and global advocacy efforts. The LRG vision is to champion patient-powered science and drastically increase long-term survivorship for all cancer patients. To accomplish this\, we rely on four key pillars:\n– Leverage the patient perspective to drive innovative solutions in cancer research\n– Educate and empower patients to take a larger role in their care\n– Accelerate research outcomes through collaborative efforts\n– Increase access to effective treatments worldwide \nThank you to our 2023 GDOL Sponsors!\n \n 
URL:https://liferaftgroup.org/event/gist-day-of-learning-colorado-2023/
LOCATION:Anschutz Health and Sciences Building\, Room 2007\, 1890 N Revere Ct.\, Aurora\, 80045\, United States
CATEGORIES:Education,Events
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Denver:20231028T180000
DTEND;TZID=America/Denver:20231028T210000
DTSTAMP:20260403T170827
CREATED:20230814T184327Z
LAST-MODIFIED:20231024T153118Z
UID:10000627-1698516000-1698526800@liferaftgroup.org
SUMMARY:Cooking to Fight Cancer 2023
DESCRIPTION:THIS EVENT IS SOLD OUT!\nTo get on Waitlist – email dnieves@liferaftgroup.org\nOctober 28\, 2023 – 6pm-9pm\nCan’t attend but would like to donate to John’s fundraiser?\n\n\nThank you to our event sponsors:\n \nand our generous anonymous sponsors as well.\nEVENT DESCRIPTION – Join us for a culinary journey that not only tantalizes your taste buds but raises funds to fight GIST! The “Cooking to Fight Cancer” fundraising event will be hosted by GIST Mentor & Board Member John Abrams (READ JOHN’S STORY). This unique gastronomic experience promises to be an unforgettable evening filled with delectable dishes and heartfelt camaraderie\, all while making a meaningful impact in the battle against cancer. As an ardent advocate for cancer research and support\, John Abrams & Uncorked Kitchen haver curated an exquisite menu featuring a fusion of flavors. From mouthwatering appetizers to sumptuous main courses and heavenly desserts\, every bite will contribute to the fight against this formidable disease. \nGather with John & friends to savor delicious cuisine\, share inspiring stories\, and collectively make a difference. Let’s cook up hope for a cancer-free future. RSVP now and mark your calendars for an event that promises to be both gratifying and uplifting! \nEVENT VENUE –\n \n\nThis amazing cooking class and meal will be facilitated by the talented staff at Uncorked Kitchen\, 8171 South Chester Street #Ste A Centennial\, CO. At this Uncorked Kitchen event\, you’ll learn the finer arts of the foodie “trifecta:” one part student\, one part cook\, and one part diner. Every guest gets their hands dirty with every aspect of cooking\, from honing & refining knife skills\, prepping & firing proteins and whipping up pastry chef-level desserts. (Lets channel your inner celebrity chef!) Everyone leaves with a stronger refined palate—tasting throughout the event and learning about the unique spices and flavors that go into each menu. \nYou’ll be introduced to exciting ingredients from the everyday to the exotic\, awakening your mind to a whole new way to experience & eat food. Everything is yours to experience from the food to the high-end kitchen equipment you’ll use during the class. You’ll cook and eat in a space that feels like your (gourmet) friend’s home. And you’ll be raising funds to further GIST research! \nAnd questions on attending this event or sponsoring the event?\nEmail Diana Nieves\, Chief Development & Involvement Officer at dnieves@liferaftgroup.org
URL:https://liferaftgroup.org/event/cooking-to-fight-cancer-2023/
LOCATION:Uncorked Kitchen\, 8171 South Chester Street #Ste A\, Centennial\, CO\, 80112\, United States
CATEGORIES:Events,Fundraising
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2023/08/ctfc-2023-CC-banner.png
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20231101
DTEND;VALUE=DATE:20231102
DTSTAMP:20260403T170827
CREATED:20230915T185030Z
LAST-MODIFIED:20231031T201844Z
UID:10000630-1698796800-1698883199@liferaftgroup.org
SUMMARY:Let's Play Mah Jongg!
DESCRIPTION:Please join Modern Mahjong for a virtual tournament to benefit the LRG! \nPlay at your convenience between Nov. 1-6\n$36 Registration fee for 6 rounds (4 games per round)\nPlay for fun. Compete for gift cards and raise funds & awareness \nBeginners & Advanced Players Welcome! \nREGISTRATION IS CLOSED\nYou’re invited to play virtually with Modern Mahjong to benefit the LRG. Have you always wanted to enter a tournament\, but you’ve been a little hesitant because you’re not sure if you’re fast enough\, or if there’s scoring issues? We have a great way for you to get ready for tournaments while playing in a tournament. It is our Modern Mah Jongg flexible virtual tournament. You play online on any National Mah Jongg League website\, either with friends that you register with\, or we could set you up and you could play with other players on the same website. If we can’t find three other players on the website of your choice\, there’s an option of playing against bots for a bot prize. \nYou play at your convenience anytime between November 1 and November 6. You register for $36 for six rounds\, which is four games per round. You could play them all at once\, or you could break them up however your group works. We try to pair players in the same time zone if we can and put people together for a fun and competitive game. You could win gift cards for Modern Mah Jong and Amazon\, all while raising funds and awareness. Each month that we have a tournament we pick a different charity and this month (November) proceeds will benefit The Life Raft Group. \nThe great thing about playing in our virtual tournament in addition to having fun competing for prizes and raising funds and awareness is we set you up to understand how timing works\, how scoring works and gets you ready to play in a local tournament or a national tournament. \nOur custom score sheets include the rules as well as how to score. So scoring is based on the value of the card. If you are Joker-less other than a singles and pairs hand\, you get a bonus. If you’re self-picked for any hand\, you get a bonus. If you throw to an exposure\, more than two exposures\, you get deductions. And at the end of the tournament\, whoever is considered East simply takes a picture of\, or scans the document of your score sheet and emails them to us. We put everything in order and announce the winners and email prizes out. So it’s a really simple and fun way to get started on tournaments and see if you love them. \nWhat’s not to love having fun with friends\, entering for prizes and doing good by raising funds and awareness for charity? \nQuestions? Email ModernMahjong@gmail.com
URL:https://liferaftgroup.org/event/lets-play-mah-jongg/
CATEGORIES:Events,Fundraising
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2023/09/mahjong-v3.png
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231101T130000
DTEND;TZID=America/New_York:20231101T140000
DTSTAMP:20260403T170827
CREATED:20230727T134933Z
LAST-MODIFIED:20240614T133545Z
UID:10000621-1698843600-1698847200@liferaftgroup.org
SUMMARY:Virtual GIST Caregiver Support Group
DESCRIPTION:Monthly Virtual Support Group for GIST Caregivers\nHeld on the first Wednesday of the month \nLRG hosts a monthly virtual support group for the caregivers. We will share our stories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling during this journey as a caregiver. The group will be a safe space not only to feel supported by your fellow caregivers\, but also a place to share our own coping mechanisms\, concerns\, successes and trials. All information shared will be kept confidential. \nContact Brian Morello to join: bmorello@liferaftgroup.org \nAbout the Group Leader:\nMarlene Nei\, GIST Caregiver\nAs an active member of The Life Raft Group\, Marlene advocates for the needs of the caregiver community because she feels they are an underrepresented group. It is her mission to advocate for the entire GIST community making sure they are equipped with the appropriate resources on their GIST journey.
URL:https://liferaftgroup.org/event/virtual-gist-caregiver-support-group-2023/2023-11-01/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2023/05/caregiver-sg-2023.jpg
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231107T180000
DTEND;TZID=America/New_York:20231107T193000
DTSTAMP:20260403T170827
CREATED:20230727T133611Z
LAST-MODIFIED:20240823T152527Z
UID:10000597-1699380000-1699385400@liferaftgroup.org
SUMMARY:Virtual GIST Patient Support Group
DESCRIPTION:The Patient Support Group meets via Zoom on the first and third Tuesday of each month from 6:00 PM – 7:30 PM ET (NYC Time). \nWe will start each group with a “Round Robin” in which anyone who feels like updating the group on how they are doing/feeling can do so. There is no pressure to speak if you prefer to simply listen. Once we complete our updates\, the group will have the opportunity for organic conversation to develop in relation to our emotional experiences around GIST\, and other challenges that we may be experiencing as a community. \nIn order to be able to moderate a flowing discussion\, the group will be capped at 15 people each month. The first 15 people into the Zoom waiting room will participate. Keep in mind that since the group is now open\, you don’t necessarily have to attend each month to participate. \nContact Brian Morello to join: bmorello@liferaftgroup.org
URL:https://liferaftgroup.org/event/virtual-gist-patient-support-group-2023-first/2023-11-07/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/01/GISTer-Support-Group-2022-1.png
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231113T180000
DTEND;TZID=America/New_York:20231113T180000
DTSTAMP:20260403T170827
CREATED:20230727T133238Z
LAST-MODIFIED:20230727T133238Z
UID:10000574-1699898400-1699898400@liferaftgroup.org
SUMMARY:Virtual Florida Support Group
DESCRIPTION:Florida Support Group\nZoom\, 2nd Monday of the Month – 6pm ET\nOur moderator is a fellow GISTER/LRG Member from Florida diagnosed with GIST in late 2016.\nIf you wish to attend\, please email Diana Nieves: dnieves@liferaftgroup.org for the Zoom link for the meeting.
URL:https://liferaftgroup.org/event/virtual-florida-support-group/2023-11-13/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2022/09/florida-support-group.jpg
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231117T150000
DTEND;TZID=America/New_York:20231117T173000
DTSTAMP:20260403T170827
CREATED:20231108T161712Z
LAST-MODIFIED:20231108T164152Z
UID:10000568-1700233200-1700242200@liferaftgroup.org
SUMMARY:GIST Day of Learning – Michigan
DESCRIPTION:The Life Raft Group’s GIST Day of Learning (GDOL) Michigan is a free\, virtual event for patients\, families\, and our community to learn from a panel of Rogel Cancer Center at University of Michigan Health experts more about this rare cancer\, find support\, and enhance your knowledge base to help you navigate the GIST journey. Friday\, Nov. 17\, 3-5:30PM ET. \nREGISTERClick image for a PDF of the Agenda: \n \nWhat is a GDOL?\nA GDOL is a GIST Day of Learning. This is a free one day event to help patients and caregivers learn more about this rare cancer\, find support\, and enhance their knowledge base to help them navigate their cancer journey. \nThe mission of the Life Raft Group is to enhance survival and quality of life for people living with GIST through patient-powered research\, education and empowerment\, and global advocacy efforts. The LRG vision is to champion patient-powered science and drastically increase long-term survivorship for all cancer patients. To accomplish this\, we rely on four key pillars:\n– Leverage the patient perspective to drive innovative solutions in cancer research\n– Educate and empower patients to take a larger role in their care\n– Accelerate research outcomes through collaborative efforts\n– Increase access to effective treatments worldwide \nThank you to our 2023 GDOL Sponsors!
URL:https://liferaftgroup.org/event/gist-day-of-learning-michigan-2-2/
CATEGORIES:Events,Webcast
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2023/11/gdol-Michigan-update-time.png
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231121T180000
DTEND;TZID=America/New_York:20231121T193000
DTSTAMP:20260403T170828
CREATED:20230727T134306Z
LAST-MODIFIED:20260105T170322Z
UID:10000615-1700589600-1700595000@liferaftgroup.org
SUMMARY:Virtual GIST Patient Support Group
DESCRIPTION:The Patient Support Group meets via Zoom on the first and third Tuesday of each month from 6:00 PM – 7:30 PM ET (NYC Time). \nWe will start each group with a “Round Robin” in which anyone who feels like updating the group on how they are doing/feeling can do so. There is no pressure to speak if you prefer to simply listen. Once we complete our updates\, the group will have the opportunity for organic conversation to develop in relation to our emotional experiences around GIST\, and other challenges that we may be experiencing as a community. \nIn order to be able to moderate a flowing discussion\, the group will be capped at 15 people each month. The first 15 people into the Zoom waiting room will participate. Keep in mind that since the group is now open\, you don’t necessarily have to attend each month to participate. \nContact Brian Morello to join: bmorello@liferaftgroup.org
URL:https://liferaftgroup.org/event/virtual-gist-patient-support-group-third/2023-11-21/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/01/GISTer-Support-Group-2022-1.png
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231127T170000
DTEND;TZID=America/New_York:20231127T170000
DTSTAMP:20260403T170828
CREATED:20231031T133024Z
LAST-MODIFIED:20231106T143542Z
UID:10000632-1701104400-1701104400@liferaftgroup.org
SUMMARY:GIST Updates from CTOS
DESCRIPTION:The Life Raft Group is partnering with Dr. Herbert Loong of the Chinese University of Hong Kong to present “GIST Updates from CTOS 2023” to GIST patients and caregivers on November 27th at 5pm ET. During this virtual presentation\, Dr. Loong will discuss scientific updates relevant to GIST patients that were exhibited at the Connective Tissue Oncology Society (CTOS) conference. A Q&A segment will follow Dr. Loong’s presentation. \nREGISTERAbout Our Presenter\nHerbert H. Loong\, MD\nThe Chinese University of Hong Kong \nDr. Herbert H. Loong holds conjoint appointments of Clinical Associate Professor in the Department of Clinical Oncology and Deputy Medical Director of the Phase 1 Clinical Trials Centre of The Chinese University of Hong Kong. He is also the current and founding convenor of the Prince of Wales Hospital Adult Sarcoma Multidisciplinary Team. \nDr. Loong obtained his medical degree with a Distinction in Surgery from The University of Hong Kong in 2003. He has completed a Fellowship in Drug Development at Princess Margaret Cancer Centre in Toronto\, Canada with a special focus on Experimental Therapeutics. His clinical and research interests also include Sarcoma Medical Oncology\, Thoracic Oncology and Health Economics. He is a recipient of the European Cancer Congress Fellowship Grant (2013)\, the American Society of Clinical Oncology (ASCO) Annual Meeting Merit Award (2014)\, the Hong Kong College of Physicians Young Investigators’ Award (2014). Nominated by patients and their caregivers\, Dr. Loong led the Lung Cancer Team at CUHK to be bestowed the IASLC Foundation Cancer Care Team Award in recognition for providing the best thoracic oncology care in “Asia & Rest of the World” in 2018. \nDr. Loong has served or continues to serve in various capacities in various professional international oncology bodies\, including the International Affairs Committee and the Asia-Pacific Regional Council of ASCO\, the Membership\, Education and Communications Committees of the IASLC. He has been elected as a Board Member of the Connective Tissue Oncology Society (CTOS) for 2022-2024. He is also a founding executive committee member of the newly formed Asia Pacific Oncology Drug Development Network (APODDC). He is also a Board Member in the specialty of Medical Oncology in the Hong Kong College of Physicians. In his appointment as a Registration Committee member of Pharmacy and Poisons Board of Hong Kong\, he helps oversee the registration of medicinal products and clinical trials in the territory. \nThank you to our 2023 Webinar Sponsors!
URL:https://liferaftgroup.org/event/gist-updates-from-ctos/
CATEGORIES:Education,Events,Webcast
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231205T180000
DTEND;TZID=America/New_York:20231205T193000
DTSTAMP:20260403T170828
CREATED:20230727T133611Z
LAST-MODIFIED:20240823T152527Z
UID:10000598-1701799200-1701804600@liferaftgroup.org
SUMMARY:Virtual GIST Patient Support Group
DESCRIPTION:The Patient Support Group meets via Zoom on the first and third Tuesday of each month from 6:00 PM – 7:30 PM ET (NYC Time). \nWe will start each group with a “Round Robin” in which anyone who feels like updating the group on how they are doing/feeling can do so. There is no pressure to speak if you prefer to simply listen. Once we complete our updates\, the group will have the opportunity for organic conversation to develop in relation to our emotional experiences around GIST\, and other challenges that we may be experiencing as a community. \nIn order to be able to moderate a flowing discussion\, the group will be capped at 15 people each month. The first 15 people into the Zoom waiting room will participate. Keep in mind that since the group is now open\, you don’t necessarily have to attend each month to participate. \nContact Brian Morello to join: bmorello@liferaftgroup.org
URL:https://liferaftgroup.org/event/virtual-gist-patient-support-group-2023-first/2023-12-05/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/01/GISTer-Support-Group-2022-1.png
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
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END:VCALENDAR