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X-WR-CALDESC:Events for The Life Raft Group
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20190503T130000
DTEND;TZID=America/New_York:20190503T140000
DTSTAMP:20260405T002313
CREATED:20190418T143423Z
LAST-MODIFIED:20190507T155606Z
UID:10000019-1556888400-1556892000@liferaftgroup.org
SUMMARY:LRG Webcast: Genetic Testing and SDHx Mutations
DESCRIPTION:Genetic Testing and SDHx Mutations:\nWhat do they have to do with PGL/GIST/Pheos?\nLISTEN TO WEBCAST\n\nThis webcast will highlight how SDHx mutations impact risks for paraganglioma\, pheochromocytomas\, and GIST. We’ll discuss why genetic testing is helpful for any diagnosis of GIST\, paraganglioma or pheochromocytoma\, and what the SDHx genes have to do with tumor risk. We’ll discuss what types of tumors are associated with mutations in the SDHx genes\, and how different SDHx genes (SDHA\, SDHB\, SDHC\, SDHD\, SDHAF2) have different tumor and location risks. This webcast will highlight recommendations for screening and current research initiatives for SDHx and paragangliomas.\n\nAbout the Presenter:\nSamantha Greenberg is a board-certified genetic counselor who oversees the SDHx clinic and specializes in paraganglioma research at Huntsman Cancer Institute. She graduated with a Master’s Degree in Human Genetics and a Master’s of Public Health from the University of Michigan\, and a Bachelor’s Degree in neuroscience from the same university. Prior to her graduate training\, she taught 7th grade science in Tulsa\, Oklahoma\, through Teach for America. At Huntsman\, Samantha also continues public health genomics work with the Department of Health focused on rural clinician education and programming. She has worked to expand cancer genetics’ role in genitourinary cancers\, and oversees the VHL Clinical Care Center.\n\nTechnical Tips to Join Meeting:\n\nThis is a web only meeting\, accessed only by your internet connection. Participants are encouraged to use the web link automatically provided after registration and to use computer speakers (and/or headsets if available) to hear the audio portion of the meeting. Please log in at least ten minutes prior to the start of the webinar.\nPlease ensure you have an updated version of Adobe Flash Player (Google Chrome has Flash built in).\nIf you are using a mobile device or tablet\, in order to view and hear the conference\, download the ReadyTalk App from your App store.\n\nDisclaimer:\nWe cannot provide individual medical advice during this webcast. Information provided in this webcast is not intended as a substitute for your physician’s guidance and care.
URL:https://liferaftgroup.org/event/lrg-webcast-genetic-testing-and-sdhx-mutations/
CATEGORIES:Education,Events,Webcast
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2019/04/greenberg-event.jpg
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20190504T080000
DTEND;TZID=America/New_York:20190504T110000
DTSTAMP:20260405T002313
CREATED:20190115T165431Z
LAST-MODIFIED:20190305T213051Z
UID:10000024-1556956800-1556967600@liferaftgroup.org
SUMMARY:GIST DO IT NJ
DESCRIPTION:Join us for a day of fun and fundraising\n\nWalk to find a cure\nRefreshments\nGiveaways\nGuest Speakers\nand much more\n\nClick below to Register\, Create a Team\, or Join a Team \n \n\n\n\nAll participants raising $50+ will have the chance to receive special recognition gifts based on their fundraising level. (Includes registration fee) \n$50 \n·  GIST DO IT T-Shirt \n$150 \n·  GIST DO IT T-Shirt \n·  GIST DO IT Water Bottle \n$500 \n·  GIST DO IT T-Shirt \n·  GIST DO IT Water Bottle \n·  Social Media Recognition \n$1000 \n·  GIST DO IT T-Shirt \n·  GIST DO IT Water Bottle \n·  Social Media Recognition \n·  Newsletter Recognition \nFunds from GIST DO IT will be directed towards GIST Research \n\n\n\nFor questions or sponsorship opportunities please contact Diana Nieves by phone or email \n973-837-9092 ext. 102 \ndnieves@liferaftgroup.org
URL:https://liferaftgroup.org/event/gistdoitnj/
LOCATION:Verona Park\, Bloomfield Ave & Lakeside Avenue\, Verona\, NJ\, 07044\, United States
CATEGORIES:Events,Fundraising
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2019/01/gist-do-it-ted.jpg
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20190508T130000
DTEND;TZID=America/New_York:20190508T130000
DTSTAMP:20260405T002313
CREATED:20190423T160916Z
LAST-MODIFIED:20190423T161403Z
UID:10000004-1557320400-1557320400@liferaftgroup.org
SUMMARY:Ask the Experts LIVE
DESCRIPTION:Want to know more about GIST?\nDo you have some burning questions to ask GIST experts?\n\nMembers of the LRG GIST Global Expert Surveillance Team\nwill be at the LRG offices on May 8th at 1:00 pm ET for an\nAsk the Experts LIVE event to be broadcast on YouTube Live.\n\n\n\n \nDr. Gary Schwartz\nColumbia University Irving Medical Center \n\nDr. Jason Sicklick\nMoores Cancer Center\, University of California\, San Diego\n\n\nDr. Jonathan Trent\nSylvester Comprehensive Cancer Center \n\nRegister\n\n\n\n\nWe welcome you to submit your questions ahead of time.\nQuestions can be emailed to Sara Rothschild at srothschild@liferaftgroup.org.\nViewers can also ask questions live during the event.\n\n\nDisclaimer:\nWe cannot provide individual medical advice during this live event. Information provided is not intended as a substitute for your physician’s guidance and care.
URL:https://liferaftgroup.org/event/ask-the-experts-live/
LOCATION:You Tube Live
CATEGORIES:Education,Events
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2019/04/ask-the-experts-live-eventpg.jpg
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20190509T080000
DTEND;TZID=America/New_York:20190509T143000
DTSTAMP:20260405T002313
CREATED:20190410T143442Z
LAST-MODIFIED:20190423T144328Z
UID:10000021-1557388800-1557412200@liferaftgroup.org
SUMMARY:GDOL New Jersey 2019
DESCRIPTION:Register\n\nGDOL (GIST Day of Learning) is a free one day event to help patients and caregivers learn more about this rare cancer\, find support\, and enhance their knowledge base to help them navigate their cancer journey. \nThe Life Raft Group has a simple focus: to cure a form of cancer — GIST — and to help those living with it until then. To do this\, the Life Raft Group focuses on three key areas: research\, patient support & education\, and advocacy\, which lay the foundation of our mission to ensure the survival of GIST patients through a comprehensive approach connecting individual patients’ needs\, the worldwide community of GIST advocates and the global health and research environment. \n\nview agenda for GDOL NJ\n\nRegister by clicking the button above. Any questions\, please contact Diana Nieves\, dnieves@liferaftgroup.org
URL:https://liferaftgroup.org/event/gdol-new-jersey-2019/
LOCATION:Courtyard Marriott\, 263 U.S. 46 West\, Wayne\, 07470\, United States
CATEGORIES:Education,Events
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2019/04/new-jersey.jpg
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Denver:20190511T110000
DTEND;TZID=America/Denver:20190511T110000
DTSTAMP:20260405T002313
CREATED:20190412T124722Z
LAST-MODIFIED:20190418T200540Z
UID:10000020-1557572400-1557572400@liferaftgroup.org
SUMMARY:Colorado - LRG Support Group Meeting
DESCRIPTION:Join us for the first Colorado Local Support Group Meeting! \nMay 11\, 2019 @ 11 am Central \nHost: Colorado State Leader\, John Abrams \n\nRegister by Email\n\nYou will receive location details upon registration. \n(The meeting will be held in Englewood\, Colorado) \n\n  \n 
URL:https://liferaftgroup.org/event/colorado-lrg-support-group-meeting/
CATEGORIES:Events
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2019/04/support-group-meeting2.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20190511T130000
DTEND;TZID=America/Chicago:20190511T150000
DTSTAMP:20260405T002313
CREATED:20190418T201024Z
LAST-MODIFIED:20190418T201024Z
UID:10000005-1557579600-1557586800@liferaftgroup.org
SUMMARY:Chicago - LRG Support Group Meeting
DESCRIPTION:GIST Chicago Support Group\nSupport group for people living with GIST in the Chicago area. \nThe typical agenda includes Patient GIST Journey updates and may also include outside subject matter experts as well as informal updates on GIST management and recent GIST publications or meeting presentations. \nAttendees are asked to bring a snack or beverage to share. \nIf you are planning to attend\, please RSVP via text to 847-302-5133\, so that we can plan for food and room setup. \nLocation: Wellness house is located at 131 N. County Line Rd. One block east of Hinsdale Hospital. Parking is free. \nDoors open at 12:30pm \n 
URL:https://liferaftgroup.org/event/chicago-lrg-support-group-meeting/
CATEGORIES:Events
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2019/04/support-group-meeting2.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20190516T120000
DTEND;TZID=America/New_York:20190516T130000
DTSTAMP:20260405T002313
CREATED:20190506T161817Z
LAST-MODIFIED:20190708T152602Z
UID:10000026-1558008000-1558011600@liferaftgroup.org
SUMMARY:LRG Webcast: Optimizing Treatment
DESCRIPTION:Are you interested in optimizing your treatment? \n\nListen to the Webcast\n \nThis world-renown GIST expert from Europe will share his wealth of experience and insight about how he has helped patients live longer\, and how he consults with fellow physicians on the best treatment plan for their patients. \nDr. Peter Reichardt is Assistant Professor and Head of the Department of Oncology and Palliative Care at the Helios Klinikum Berlin-Buch in Berlin\, Germany\, and is Director of the Cancer Center Berlin-Buch and the Sarcoma Center Berlin-Brandenburg. \nIn this webcast Dr. Reichardt will discuss surgery for metastatic disease\, imatinib plasma level testing\, and the management of side effects. \nHe will also cover dosing\, dose escalation and dose schedules\, and will explain mutations and the importance of mutational testing. \n\nAbout the Presenter:\nDr. Peter Reichardt trained in internal medicine and haematology/oncology at the University of Heidelberg and at the MD Anderson Cancer Center\, Houston\, TX\, USA. From 1992 to 2007\, he was a consultant at the Charité University Hospital in Berlin. Dr. Reichardt has led and conducted multiple clinical trials in bone sarcomas\, soft tissue sarcomas\, and gastrointestinal stromal tumours in the adjuvant\, advanced\, and refractory settings.\n\nDr. Reichardt is a co-author of the current European Society for Medical Oncology (ESMO) guidelines for the management of GIST\, soft tissue and bone sarcomas and a member of the ESMO Sarcoma Faculty. He is chairman of the Scientific Committee of the GIST and Sarcoma patients’ organization ‘Das Lebenshaus’\, a member of the Medical Board of the MAX Foundation\, and a member of the Life Raft Group’s Global GIST Advisory Team. Dr. Reichardt has contributed to numerous publications on soft tissue sarcoma and GIST management in leading oncology journals.\n\nThere will be a 15 minute Q&A at the end of the presentation.\n\nTechnical Tips to Join Meeting:\n\nThis is a web only meeting\, accessed only by your internet connection. Participants are encouraged to use the web link automatically provided after registration and to use computer speakers (and/or headsets if available) to hear the audio portion of the meeting. Please log in at least ten minutes prior to the start of the webinar.\nPlease ensure you have an updated version of Adobe Flash Player (Google Chrome has Flash built in).\nIf you are using a mobile device or tablet\, in order to view and hear the conference\, download the ReadyTalk App from your App store.\n\nDisclaimer:\nWe cannot provide individual medical advice during this webcast. Information provided in this webcast is not intended as a substitute for your physician’s guidance and care.
URL:https://liferaftgroup.org/event/lrg-webcast-optimizing-treatment/
CATEGORIES:Events
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20190516T174500
DTEND;TZID=America/New_York:20190516T223000
DTSTAMP:20260405T002313
CREATED:20190328T171049Z
LAST-MODIFIED:20190603T160559Z
UID:10000023-1558028700-1558045800@liferaftgroup.org
SUMMARY:Water of Life
DESCRIPTION:Tickets\n\nNow in its fifth year\, the Water of Life is a wonderful evening. Considered by Forbes Online to be one of the top whisky events in the world (and just one of two in the United States to make the list) this event benefiting the Life Raft Group is your chance to enjoy several top spirits with the experts who can discuss them best. \nWhether you crave a spirit that is old in age\, or old and dusty due to years in the bottle; one that is smoky; one that is heavily influenced by a sherry cask\, or bourbon cask\, or port cask; or one from world markets other than just the US or UK\, the Water of Life is the best opportunity to quench your thirst. Maybe a cigar as well? \nIt will also quench your thirst for knowledge. Enjoy your drams in the presence of some of the best-known makers\, ambassadors\, distributors\, retailers\, bloggers\, and even purchasers assembled at a whisky event. \nWith pricing tiers for a range of aficionados\, from beginners to Keepers\, the Water of Life allows something for everyone. Whether you select standard\, VIP\, or Ultra-VIP you will treated to a memorable night. \nAnd remember\, as your ticket price is considered a charity donation\, you can feel good about yourself\, while also feeling quite good! \nSlàinte Mhath! \nCome to Water of Life 2019 and support The Life Raft Group.\n\nThe mission of the Life Raft Group is to enhance survival and quality of life for people living with GIST through patient-powered research\, education and empowerment\, and global advocacy efforts.\n\nWednesday May 15 at 6pm\nUltra-VIP event (exact details sent to attendees)\n\n\nThursday May 16\n5:45 pm – 6:30 pm\n\n\n\nMasterclass\n6:30 pm -7:30 pm\nVIP Only\n\nMain Event\n7:30 pm – 10:30 pm
URL:https://liferaftgroup.org/event/water-of-life/
LOCATION:The Platform At The Pennsy\, 2 Pennsylvania Plaza\, 2nd Floor\, New York\, NY\, 10121\, United States
CATEGORIES:Events,Fundraising
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2019/03/WOLF.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20190518T070000
DTEND;TZID=America/New_York:20190518T140000
DTSTAMP:20260405T002313
CREATED:20190304T161832Z
LAST-MODIFIED:20190710T142716Z
UID:10000016-1558162800-1558188000@liferaftgroup.org
SUMMARY:GDOL Tampa 2019
DESCRIPTION:see recap of event\n\nGDOL (GIST Day of Learning) is a free one day event to help patients and caregivers learn more about this rare cancer\, find support\, and enhance their knowledge base to help them navigate their cancer journey. \nThe Life Raft Group has a simple focus: to cure a form of cancer — GIST — and to help those living with it until then. To do this\, the Life Raft Group focuses on three key areas: research\, patient support & education\, and advocacy\, which lay the foundation of our mission to ensure the survival of GIST patients through a comprehensive approach connecting individual patients’ needs\, the worldwide community of GIST advocates and the global health and research environment. \n\nView Agenda for GDOL Tampa\n\nRegister by clicking the button above. Any questions\, please contact Diana Nieves\, dnieves@liferaftgroup.org
URL:https://liferaftgroup.org/event/gdoltampa2019/
LOCATION:Stabile Research Building at Moffitt Cancer Center\, 12902 Magnolia Drive\, Tampa\, FL\, 33612\, United States
CATEGORIES:Education,Events
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20190526T140000
DTEND;TZID=America/New_York:20190526T160000
DTSTAMP:20260405T002313
CREATED:20190423T193419Z
LAST-MODIFIED:20190423T193419Z
UID:10000001-1558879200-1558886400@liferaftgroup.org
SUMMARY:Life Raft Group Canada - Kitchener Get-Together
DESCRIPTION:This is an invitation for GIST patients\, caregivers\, and anyone interested in GIST (Gastrointestinal Stromal Tumors) to get together to lear more about this rate disease and share collective knowledge about living with and managing GIST. \nSunday\, May 26th\, 2019 – 2PM-4PM\nDoors open at 1:30 \n\nHazel McLeod will lead an informal round-table discussion\n \nDavid Josephy will give a GIST presentation that includes a Q&A session\nDavid Josephy is a Professor of Molecular and Cellular Biology at the University of Guelph\, where he has taught for more than 35 years.  He has been President of GIST Sarcoma Life Raft Group Canada (LRGC) since its inception in 2008. In 2010\, David spent a sabbatical term working in the laboratory of Dr. Jonathan Fletcher\, a leading GIST researcher at Brigham and Women’s Hospital in Boston. David is a member of the Science Team of The Life Raft Group (USA) and collaborates with GIST patient support groups around the world.  His research interests are in the field of Molecular Toxicology. He is particularly interested in the scientific basis for development of new small-molecule drugs for GIST. \n\nTo REGISTER or for further INFORMATION \n please reply to this email or\ncontact Life Raft Group Canada\n855-574-4478\ninfo@liferaftgroup.ca
URL:https://liferaftgroup.org/event/life-raft-group-canada-kitchener-get-together/
LOCATION:Mill Courtland Community Centre\, 216 Mill Street\, Kitchener\, Ontario\, Canada
CATEGORIES:Events,International
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2019/03/lrg-canada-get-to-eventpg.jpg
ORGANIZER;CN="Malcolm Sutherland%2C GIST Sarcoma Life Raft Group Canada":MAILTO:malcolm.sutherland@liferaftgroup.ca
END:VEVENT
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