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SUMMARY:Symptom and Side Effect Management
DESCRIPTION:Listen to the Webcast\n \nGIST and its treatment can cause a variety of symptoms. Adequate management of symptoms can improve a patient’s quality of life. Proper management can also allow the patient to remain on treatment without a decrease in dosage\, interruption of treatment\, or even the discontinuation of treatment. Staying on treatment as prescribed gives patients the best chance of a good outcome and in some cases has been shown to improve survival rates. \nIn this webcast\, Dr. Lori Williams\, Associate Professor in the Department of Symptom Research at MD Anderson Cancer Center\, will review common symptoms associated with GIST and some of its treatments. She will present methods patients can use to self-manage symptoms as well as how to discuss and when to report symptoms to health care providers. \nPete Knox\, LRG Senior Director of Research\, will also share an update on our interactive side effects management platform\, SideEQ. This platform is a great tool to allow patients to optimize their overall health by learning and sharing tips with others on how to manage side effects. To learn more\, visit MySideEQ.org \nThere will be a 15 minute Q & A at the end of the presentation. \nAbout the Presenters:\nDr. Lori Williams is an Associate Professor in the Department of Symptom Research at The University of Texas MD Anderson Cancer Center and an Advanced Oncology Certified Nurse. She has worked in oncology nursing for more than 35 years. She is a member of the executive board of the Patient Advocate and National Patient Advocate Foundations and a secretary-treasurer of the Board of the Oncology Nursing Certification Corporation. Her current work at MD Anderson involves the study of symptoms of cancer and cancer treatment. She is currently working with leadership at MD Anderson to institute routine clinical symptom monitoring for all patients. \nAs Senior Director of Research\, Pete Knox is a key member of the Real World Evidence Team\, utilizing his analytic skills to provide strategic oversight of the Life Raft Group’s research and data platforms. In this role\, he identifies and develops potential collaborations with institutions and organizations that utilize data to advance research\, with the goal of improving overall survival and quality of life for GIST patients. \n\nTechnical Tips to Join Meeting:\n\nThis is a web only meeting\, accessed only by your internet connection. Participants are encouraged to use the web link automatically provided after registration and to use computer speakers (and/or headsets if available) to hear the audio portion of the meeting. Please log in at least ten minutes prior to the start of the webinar.\nPlease ensure you have an updated version of Adobe Flash Player (Google Chrome has Flash built in).\nIf you are using a mobile device or tablet\, in order to view and hear the conference\, download the ReadyTalk App from your App store.\n\n\nDisclaimer:\nWe cannot provide individual medical advice during this webcast. Information provided in this webcast is not intended as a substitute for your physician’s guidance and care.
URL:https://liferaftgroup.org/event/symptom-and-side-effect-management/
CATEGORIES:Events
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2019/06/williams.jpg
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
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DTSTART;TZID=America/New_York:20190622T083000
DTEND;TZID=America/New_York:20190622T180000
DTSTAMP:20260403T195451
CREATED:20190304T155816Z
LAST-MODIFIED:20190814T174851Z
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SUMMARY:GDOL Portland 2019
DESCRIPTION:See recap of event\n\nGDOL (GIST Day of Learning) is a free one day event to help patients and caregivers learn more about this rare cancer\, find support\, and enhance their knowledge base to help them navigate their cancer journey. \nThe Life Raft Group has a simple focus: to cure a form of cancer — GIST — and to help those living with it until then. To do this\, the Life Raft Group focuses on three key areas: research\, patient support & education\, and advocacy\, which lay the foundation of our mission to ensure the survival of GIST patients through a comprehensive approach connecting individual patients’ needs\, the worldwide community of GIST advocates and the global health and research environment. \n\nView agenda for GDOL Portland\n\nRegister by clicking the button above. Any questions\, please contact Diana Nieves\, dnieves@liferaftgroup.org
URL:https://liferaftgroup.org/event/gdolportland2019/
LOCATION:Oregon Health & Science University\, Robertson Life Sciences Building\, 2730 SW Moody Ave\, Room 2S060\, Portland\, OR\, 97201\, United States
CATEGORIES:Events
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
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