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DTSTART;VALUE=DATE:20190907
DTEND;VALUE=DATE:20190908
DTSTAMP:20190913T175941Z
CREATED:20190813T173529Z
LAST-MODIFIED:20190913T175941Z
UID:10000039-1567814400-1567900799@liferaftgroup.org
SUMMARY:Colorado Support Group Meeting
DESCRIPTION:A Colorado Life Raft support group meeting is being held on Saturday\, Sept.\n7th at 11:00am in the Denver suburbs (80111 area code). All GISTers and caregivers/family are welcome.\nWith David Josephy of The Life Raft Group Canada \nPlease email for specifics if interested. \nJohn Abrams\nLRG Colorado State Leader \n\nContact for more information/RSVP\n\n  \nSpecial Guest: David Josephy\n \nDavid Josephy is a Profesor of Molecular and Cellular Biology at the University of Guelph\, where he has taught for more than 35 years. He has been President of GIST Sarcoma Life Raft Group Canada (LRGC) since its inception in 2009. In 2010\, David spent a sabbatical term working in the laboratory of Dr. Jonathan Fletcher\, a leading GIST researcher at Brigham and Women’s Hospital in Boston. David is a member of the Science Team of The Life Raft Group (USA) and collaborates with GIST patient support groups around the world. His research interests are in the field of Molecular Toxicology. He is particularly interested in the scientific basis for development of new small-molecule drugs for GIST \n 
URL:https://liferaftgroup.org/event/colorado-support-group-meeting/
LOCATION:NJ
CATEGORIES:Events
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2019/08/support-group-colorado2.jpg
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DTSTART;TZID=America/New_York:20190909T120000
DTEND;TZID=America/New_York:20190909T130000
DTSTAMP:20190911T172010Z
CREATED:20190816T164240Z
LAST-MODIFIED:20190911T172010Z
UID:10000040-1568030400-1568034000@liferaftgroup.org
SUMMARY:LRG Webcast Series: Medicare 101
DESCRIPTION:Medicare 101: An Overview of the A\, B\, C\, and Ds of Medicare\n\nThe A B C’s of Medicare: Everything you need to know\nWhat is Medicare\, am I eligible and how do I enroll?\nWhat does Medicare cover?\nHow much does it cost?\nWhich path should I choose – Medigap Supplement Insurance or Medicare Advantage Plan?\nHow about Prescription Drug coverage?\nFinancial Assistance Programs to help with Medicare costs\n\nRECAP HERE\n\nThere will be a 15 minute Q & A at the end of the presentation. \nAbout the Presenter:\nKathy Sarmiento has been working for the Alliance for Aging for fifteen years.  The Alliance for Aging is the non-profit Area Agency on Aging for Miami-Dade and Monroe Counties in Florida. In her role as the SHINE Liaison\, Kathy manages the all aspects of the free SHINE Medicare counseling program. Kathy also manages the Benefits Enrollment Center at the Alliance for Aging. The Benefits Enrollment Center is a grant from the National Council on Aging to provide five core benefits to financially needy Medicare beneficiaries. Those five core benefits are Medicaid\, food assistance\, assistance paying for Medicare\, Prescription Drug assistance and assistance paying the light bill. \n\n\nTechnical Tips to Join Meeting:\n\nThis is a web-only meeting\, accessed only by your internet connection. Participants are encouraged to use the web link automatically provided after registration and to use computer speakers (and/or headsets if available) to hear the audio portion of the meeting. Please log in at least ten minutes prior to the start of the webinar.\nPlease ensure you have an updated version of Adobe Flash Player (Google Chrome has Flash built-in).\nIf you are using a mobile device or tablet\, in order to view and hear the conference\, download the ReadyTalk App from your App store.\n\n\nDisclaimer:\nWe cannot provide individual medical advice during this webcast. Information provided in this webcast is not intended as a substitute for your physician’s guidance and care.
URL:https://liferaftgroup.org/event/lrg-webcast-series-medicare-101/
LOCATION:NJ
CATEGORIES:Webcast
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2019/08/sarmiento-medicare-webcast.jpg
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20190911T140000
DTEND;TZID=America/New_York:20190911T150000
DTSTAMP:20190917T152156Z
CREATED:20190725T201333Z
LAST-MODIFIED:20190917T152156Z
UID:10000037-1568210400-1568214000@liferaftgroup.org
SUMMARY:LRG Webcast Series: Updates on the Temozolomide Trial
DESCRIPTION:The Temozolomide Trial for SDH-deficient GIST Patients\nGIST is becoming increasingly diverse. SDH-deficient GIST and paragangliomas often occur in adolescents and young adults. Since these SDH mutations are germline\, multiple generations of family members are affected.\n\nDr. Jason Sicklick of Moores Cancer Center at the University of California San Diego will present a webcast detailing the Phase II study of Temozolomide (TMZ) in advanced SDH-mutant/deficient GIST\, a new study available to patients with SDH-deficient GIST.\n\n\nListen to the Webinar\n\nAbout the Presenter:\nJason K. Sicklick\, MD\, FACS\, is an Associate Professor of Surgery\, Division of Surgical Oncology; and Co-Director\, Biorepository and Tissue Technology Shared Resource\, Moores Cancer Center at the University of California\, San Diego\, UC San Diego Health Sciences. \n  \n  \n  \n\nTechnical Tips to Join Meeting:\n\nThis is a web-only meeting\, accessed only by your internet connection. Participants are encouraged to use the web link automatically provided after registration and to use computer speakers (and/or headsets if available) to hear the audio portion of the meeting. Please log in at least ten minutes prior to the start of the webinar.\nPlease ensure you have an updated version of Adobe Flash Player (Google Chrome has Flash built-in).\nIf you are using a mobile device or tablet\, in order to view and hear the conference\, download the ReadyTalk App from your App store.\n\n\nDisclaimer:\nWe cannot provide individual medical advice during this webcast. Information provided in this webcast is not intended as a substitute for your physician’s guidance and care.
URL:https://liferaftgroup.org/event/lrg-webcast-series-updates-on-the-temozolomide-trial/
LOCATION:NJ
CATEGORIES:Education,Webcast
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2019/07/sicklick-temozolomide-webcast.jpg
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20190928T090000
DTEND;TZID=America/New_York:20190928T163000
DTSTAMP:20190829T185754Z
CREATED:20190712T143844Z
LAST-MODIFIED:20190829T185754Z
UID:10000036-1569661200-1569688200@liferaftgroup.org
SUMMARY:GIST Day of Learning - Ottawa
DESCRIPTION:  \n  \n\nGDOL Ottawa\nRegistration is open for the GIST Day of Learning in Ottawa.  This is a one-day conference that provides education and support for people living with Gastrointestinal Stromal Tumour (GIST)\, a soft-tissue sarcoma that can occur anywhere along the GI tract.  The speakers at the GIST Day of Learning will cover many aspects of living with and understanding GIST. This conference will also provide a great opportunity to connect with other GIST patients and caregivers as well as the speakers. \nThe Day of Learning is open to those who have GIST\,  family members\,  caregivers\, healthcare providers and anyone who wishes to learn more about GIST. \nThere is no cost for attending the GIST Day of Learning. \n\nRegister\n\nAgenda:\n(As of 8/29/19\, please check at https://liferaftgroup.ca/join-us-at-the-ottawa-gist-day-of-learning/ to register and see updates) \n  \n \n\nGDOL Location:\nOttawa Conference and Event Centre\n200 Coventry Road\, Ottawa\, ON K1K 4S3\nFree Parking \nConference Hotel:\nCourtyard by Marriott Ottawa East\n200 Coventry Road\nOttawa\, ON K1K 4S3\nFree Parking \n\nWe gratefully acknowledge our GIST Day of Learning sponsors
URL:https://liferaftgroup.org/event/gist-day-of-learning-ottawa/
LOCATION:Ottawa Conference and Event Centre\, 200 Coventry Road\, Ottawa\, Ontario\, K1K 4S3\, Canada
CATEGORIES:Education,Events
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2019/07/Ottawa-GDOL-Logo.png
ORGANIZER;CN="GIST Sarcoma Life Raft Group Canada":MAILTO:yvonne.nunnaro@liferaftgroup.ca
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