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X-WR-CALDESC:Events for The Life Raft Group
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20200502T120000
DTEND;TZID=America/New_York:20200502T120000
DTSTAMP:20200504T122823Z
CREATED:20200501T170444Z
LAST-MODIFIED:20200504T122823Z
UID:10000064-1588420800-1588420800@liferaftgroup.org
SUMMARY:Sarcoma and COVID-19: Your Questions Answered
DESCRIPTION:From our friends at the Sarcoma Alliance:\nWEBINAR: Sarcoma and COVID-19: Your questions answered\n Saturday\, May 2nd for our multidisciplinary webinar with Sarcoma Experts:\n\nDr. George Demetri\nDr. Gina D’Amato\nDr. Jonathan Trent\nDr. Tom DeLaney\nDr. Fritz Eilber\n\nMeeting begins at 9am Pacific | 10am Mountain | 11am Central | 12noon Eastern\nSEE THE WEBINAR
URL:https://liferaftgroup.org/event/sarcoma-and-covid-19-your-questions-answered/
LOCATION:Sarcoma Alliance
CATEGORIES:Education,Events
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20200505T170000
DTEND;TZID=America/New_York:20200505T180000
DTSTAMP:20200428T183739Z
CREATED:20200428T174857Z
LAST-MODIFIED:20200428T183739Z
UID:10000054-1588698000-1588701600@liferaftgroup.org
SUMMARY:Caregiver Support Group - Virtual
DESCRIPTION:This is an Eight-Week Support Group for GIST Caregivers.\nHeld every Tuesday starting May 5th at 5pm ET.\nLimited to 12 participants. \nOnline Support Group Launching Tuesday\, May 5th \n\nAs we navigate this uncertain time together\, we want to offer you a little extra support. Starting Tuesday\, May 5th at 5pm ET the LRG will have its own weekly support group for caregivers of people living with GIST facilitated by Chelsea Madia\, LCSW and Angela Edson\, LSW. In an effort to continue social distancing\, we will use an electronic platform\, to come together for eight consecutive weeks as a small group of 12 participants. \nWe will talk about all of the feelings you might be experiencing\, both in relation to caring for someone living with GIST\, and also navigating your role during COVID-19. We will share experiences\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling as a result of this unprecedented time. The group will be a safe space not only to feel supported by your fellow GIST caretakers\, but also a place to share our own coping mechanisms to get us through this stressful time. All information shared will be kept confidential. \n\nREGISTER\n \nAbout the Group Leaders:\nAngela Edson\, LSW \nAngela is a licensed social worker in New Jersey. She has been an employee at the Life Raft Group for close to five years. During her graduate studies she interned at a local hospital’s outpatient cancer center providing support to patients and caregivers. Additionally\, Angela has personal experience as a caregiver to loved ones with a cancer diagnosis. She understands the challenges that come along with this role and is excited to co-facilitate this support group.< \nChelsea Madia\, LCSW\nChelsea Madia is a licensed clinical social worker in New York\, who started in the field in 2011 counseling at-risk teens at the Child Center of New York in Jamaica\, Queens. After this\, her work took her to the Coalition for the Homeless in lower Manhattan\, where she supported mentally ill homeless adults in their quest to move into supportive housing\, as well as apply for disability benefits. From there\, she worked for nine months on the Psychiatric Mobile Crisis Team at Mount Sinai Beth Israel\, before being promoted to Program Manager. In November of 2018\, after three years managing the team\, Chelsea was diagnosed with metastatic GIST. Since that time\, she has been stable on Gleevec\, and now is in the early phases of starting her own private counseling practice in New Rochelle\, NY.
URL:https://liferaftgroup.org/event/caregiver-support-group-virtual/
LOCATION:The Life Raft Group\, 155 US Highway 46\, Ste. 202\, Wayne Plaza II\, Wayne\, NJ\, 07470\, United States
CATEGORIES:Events,Fundraising
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2020/04/Virtual-Support-Caregiver.png
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20200514T140000
DTEND;TZID=America/New_York:20200514T150000
DTSTAMP:20200520T122214Z
CREATED:20200421T143006Z
LAST-MODIFIED:20200520T122214Z
UID:10000061-1589464800-1589468400@liferaftgroup.org
SUMMARY:LRG Webcast Series: GIST\, TKI Treatment & Effects on Memory
DESCRIPTION:Cancer-related cognitive impairment\, or CRCI\, is common among certain cancer survivors\, for example\, individuals with breast cancer. CRCI usually presents as mild to moderate problems with memory and attention and can even persist long after cancer treatment has ended. Many have called this “chemobrain” or “chemofog” but research over the past three decades indicates that cancer itself\, genetic vulnerabilities and treatments other than chemotherapy can lead to persistent CRCI. \nSimilar to patients treated with chemotherapy\, patients with GIST are complaining about long-term side effects of Gleevec therapy with respect to cognitive function (“Gleevec brain”). Nevertheless\, very little is known about CRCI in cancer patients who are being treated with tyrosine kinase inhibitors (TKIs)\, like Gleevec\, including patients with GIST. \nThis discussion will review CRCI in general\, and how a person who is being treated for GIST could be affected. We will also talk about strategies that can help ameliorate CRCI and discuss our new research on CRCI and GIST. Finally\, in light of the COVID-19 pandemic\, we will give advice on how cancer survivors can best cope with and care for themselves during this unusual global health event. \nSEE The RecapAbout the Presenters:\nAnette Duensing\, M.D.\nAssociate Professor of Pathology\nUniversity of Pittsburgh School of Medicine \nAnette Duensing holds an M.D. degree from the University of Hannover School of Medicine\, Germany\, and is an Associate Professor of Pathology at the University of Pittsburgh School of Medicine as well as Member of the Cancer Therapeutics Program at the UPMC Hillman Cancer Center. Her research focuses on gastrointestinal stromal tumors (GISTs) as well as other sarcomas with the goal of identifying novel therapeutic approaches. Recently\, Dr. Duensing has teamed up with Dr. Robert Ferguson at UPMC HCC to study cognitive impairment in GIST patients treated with Gleevec and other tyrosine kinase inhibitors. Dr. Duensing is the author of nearly 70 original articles\, reviews and book chapters. Her research has been supported by the American Cancer Society\, the Sarcoma Foundation of America\, the GIST Cancer Research Fund and the Life Raft Group. \nRobert J. Ferguson\, Ph.D.\nAssistant Professor of Medicine with the Division of Hematology/Oncology\nUniversity of Pittsburgh School of Medicine and Hillman Cancer Center \nDr. Ferguson is a clinical psychologist and Assistant Professor of Medicine with the Division of Hematology/Oncology at the University of Pittsburgh School of Medicine and Hillman Cancer Center. His clinical and research interests are the treatment of cognitive effects of cancer\, cancer survivorship and palliative care. He is the author of numerous peer reviewed research articles and book chapters on treatment of cancer-related cognitive dysfunction and other topics related to the field of behavioral medicine. His research has been funded by grants from the National Cancer Institute\, NIH Office of Research on Women’s Health\, and the Lance Armstrong Foundation. \n\n \nDisclaimer:\nWe cannot provide individual medical advice during this webcast. Information provided in this webcast is not intended as a substitute for your physician’s guidance and care.
URL:https://liferaftgroup.org/event/lrg-webcast-series-treatment-effects-memory/
LOCATION:NJ
CATEGORIES:Education,Events
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20200515T180000
DTEND;TZID=America/New_York:20200515T180000
DTSTAMP:20200501T150626Z
CREATED:20200501T150613Z
LAST-MODIFIED:20200501T150626Z
UID:10000063-1589565600-1589565600@liferaftgroup.org
SUMMARY:GISTBe - Virtual Event
DESCRIPTION:GISTMindfulness is a part of our virtual GISTEntertainment series\nDuring the current global pandemic\, The Life Raft Group wants to reassure you that\, as always\, we are in this together. We have been working diligently to provide you with the most up to date information regarding COVID-19 and navigating your cancer diagnosis. However\, we recognize the stressors that come along with this challenging time. \nTo help with deal with the stress\, we have created a series of virtual fundraising events called GISTEntertainment. Over the next few months we will be hosting several virtual events to keep our community feeling connected. We hope you’ll be able to join us for some relaxation\, laughter\, and fun! \nDuring this critical time we are asking you to partner with us. Our suggested donation for this event is $10. \nOur second GISTEntertainment event will be GISTBe on May 15th at 6PM EST. Join us for a Mindfulness session while connecting with others in LRG’s GIST Community during this virtual event.\n\nMindfulness means maintaining a present-moment awareness of our thoughts\, feelings\, bodily sensations\, or surrounding environment. It helps cancer patients better manage symptoms of fatigue\, anxiety\, and fear of recurrence\, and their caregivers to practice self-compassion.\n\nDuring this critical time we are asking you to partner with us. Our suggested donation for this event is $10.\nregisterAbout our presenter:\nThis session will be run by Carolina Ponce\, a Mindfulness coach\, Learning Specialist at a private school\, mother of one boy\, and a GIST Patient (diagnosed in 2006). \nThank you to our GISTEntertainment Series Sponsors!\nRob Taylor \nRob Taylor\, Silver Sponsor\n“During times of struggle\, we have options:\n1. Do nothing and hope that things somehow gets better\,\n2. Continue to use the resource and hope that someone shores it up so that we can continue to benefit.\n3. Become the somehow\, the someone and take the opportunity and responsibility to give and support the resource that has benefited us much. I choose to be the somehow and the someone\, I choose to give.” \nMargaret McInteer \nMargaret McInteer\, Bronze Sponsor\n“LifeRaft has been a godsend in my life since receiving my gist diagnosis a year ago. I’ve learned so much about my cancer through the experiences of others. I’ve also talked to 3 or 4 Life Raft staff members who have given me guidance and support. But the best part has been the mentor you assigned to me. Kay has called and encouraged me numerous times and was recently instrumental in getting me a video conference with Dr. Trent in Miami. I’m grateful beyond words!” \n \nBronze $100 – sponsor names announced at beginning of event\, post on social media platforms \nSilver $250 – sponsor names announced at beginning of event\, post on social media platforms\, highlight in newsletter\n\nGold $500 – sponsor names announced at beginning of event\, post on social media platforms\, highlight in newsletter\, name displayed on website \nPlatinum $1\,000 – sponsor names announced at beginning of event\, month sponsorship\, post on social media platforms\, highlight in newsletter\, name displayed on website \nUltra Platinum $2\,000 – sponsor names announced at beginning of event\, sponsorship for all months\, post on social media platforms\, highlight in newsletter\, name displayed on website \nPlease contact Jessica Nowak for sponsorship opportunities!\njnowak@liferaftgroup.org
URL:https://liferaftgroup.org/event/gist-be-virtual/
LOCATION:NJ
CATEGORIES:Events,Fundraising
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2020/04/GISTBe-event.jpg
ORGANIZER;CN="Jessica Nowak":MAILTO:jnowak@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20200521T130000
DTEND;TZID=America/New_York:20200521T140000
DTSTAMP:20200616T204452Z
CREATED:20200514T180855Z
LAST-MODIFIED:20200616T204452Z
UID:10000067-1590066000-1590069600@liferaftgroup.org
SUMMARY:Conversations with the LRG: Staying Alive in Difficult Times
DESCRIPTION:REcording available on FacebookJoin us on May 21\, 2020 at 1PM ET for the next in our “Conversations with the LRG” series. In this presentation\, Executive Director\, Norman Scherzer will be joined by staff member and Data Analyst\, Jerry Call and by Professor David Josephy to discuss relevant scientific topics including the impact of COVID-19 on GIST patients\, and thoughts on promising research for GIST. There will be a 15-minute Q & A at the end of the presentation. \nYou may submit questions in advance to Mary Garland\, Communications Director: mgarland@liferaftgroup.org \nYou will also be able to submit questions during the presentation that will be answered at the end. \nAbout the Panelists:\n\nAs founder and Executive Director of the LRG\, Norman leverages his extensive experience in the communicable disease sector which included 25 years at the Center for Disease Control and from his position as Assistant Commissioner of Health for New York City\, to help cancer patients both survive and thrive. \nSee Norman Scherzer’s presentation Personal Cancer Survival Plan and the accompaniment Personal Cancer Survival Plan (PDF) \n\nLRG Staff member\, Jerry Call\, is an expert in the science and treatment of GIST. Jerry has been part of the Life Raft Group since its beginnings\, and is currently serving as a Data Analyst\, helping to identify vital information to help patients survive and thrive. \nRead Jerry Call’s latest study\, featured in LRG Science\, Survival in advanced GIST has improved over time and correlates with increased access to post-imatinib tyrosine kinase inhibitors: results from Life Raft Group Registry \n\nDr. David Josephy is a Professor of Biochemistry at the University of Guelph in Canada and serves as President of Life Raft Group Canada. He has given presentations globally on understanding the basics of GIST in his GIST 101 lecture. \nSee Dr. Josephy’s presentation The Biology of GIST – What Every Patient Needs to Know.
URL:https://liferaftgroup.org/event/conversations-staying-alive/
LOCATION:The Life Raft Group\, 155 US Highway 46\, Ste. 202\, Wayne Plaza II\, Wayne\, NJ\, 07470\, United States
CATEGORIES:Events,Fundraising
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2020/05/Conversations-2.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20200527T170000
DTEND;TZID=America/New_York:20200527T180000
DTSTAMP:20200526T122452Z
CREATED:20200504T193256Z
LAST-MODIFIED:20200526T122452Z
UID:10000065-1590598800-1590602400@liferaftgroup.org
SUMMARY:GISTTrivia - Virtual Event - New Date
DESCRIPTION:GISTTrivia is a part of our virtual GISTEntertainment series\nDuring the current global pandemic\, The Life Raft Group wants to reassure you that\, as always\, we are in this together. We have been working diligently to provide you with the most up to date information regarding COVID-19 and navigating your cancer diagnosis. However\, we recognize the stressors that come along with this challenging time. \nTo help with deal with the stress\, we have created a series of virtual fundraising events called GISTEntertainment. Over the next few months we will be hosting several virtual events to keep our community feeling connected. We hope you’ll be able to join us for some relaxation\, laughter\, and fun! \nAt the Life Raft Group\, we work hard to make sure our members are knowledgable about their GIST diagnosis and treatment plan. We believe knowledge is power! What better way to test your knowledge than with Trivia Night? Join us on May 27nd at 6PM EST for some trivia questions regarding GIST\, the LRG\, and some fun! \nDuring this critical time we are asking you to partner with us. Our suggested donation for this event is $10. \nregister
URL:https://liferaftgroup.org/event/gist-trivia-virtual-event/
LOCATION:The Life Raft Group\, 155 US Highway 46\, Ste. 202\, Wayne Plaza II\, Wayne\, NJ\, 07470\, United States
CATEGORIES:Events,Fundraising
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2020/04/GISTTrivia-eventbrite.png
ORGANIZER;CN="Jessica Nowak":MAILTO:jnowak@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20200529T133000
DTEND;TZID=America/New_York:20200529T143000
DTSTAMP:20200429T150524Z
CREATED:20200429T145739Z
LAST-MODIFIED:20200429T150524Z
UID:10000062-1590759000-1590762600@liferaftgroup.org
SUMMARY:Webinar - Advances in the Treatment of GIST
DESCRIPTION:This is a free CancerCare Connect® Education Workshop for people living with GIST\, their families\, partners\, caregivers\, friends and health care professionals. Listen to this workshop over the telephone or connect to our webcast online. \nWorkshop Topics\n• Overview of the Treatment of Gastrointestinal Stromal Tumors (GIST)\, in the Context of COVID-19\n• Diagnosis and Staging\n• Treatment Options\n• Clinical Trials and Novel Approaches to Treating GIST\n• Strategies to Manage Common Treatment Side Effects\, Discomfort and Pain\n• The Importance of Communicating with Your Health Care Team\n• What’s New on the Horizon for GIST Cancers\n• Questions for Our Panel of Experts \nREGISTERwebinar flyerSpeakers\nSuzanne George\, MD\nClinical Director\nCenter for Sarcoma and Bone Oncology\nSenior Physician\nDana-Farber Cancer Institute Associate Professor of Medicine Harvard Medical School \nMichael C. Heinrich\, MD\nProfessor of Medicine\nCell and Developmental Biology Hematology and Medical Oncology Program in Molecular and Cellular Biosciences\nSchool of Medicine\nOregon Health & Science University (OHSU) \nCarolyn Messner\, DSW\, OSW-C\, FAPOS\, FAOSW\nDirector of Education and Training CancerCare®
URL:https://liferaftgroup.org/event/advances-in-the-treatment-gist/
LOCATION:NJ
CATEGORIES:Education,Events
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2020/04/cancer-care-connect.jpg
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