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X-ORIGINAL-URL:https://liferaftgroup.org
X-WR-CALDESC:Events for The Life Raft Group
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20210406T180000
DTEND;TZID=America/New_York:20210406T193000
DTSTAMP:20220323T125554Z
CREATED:20210118T181321Z
LAST-MODIFIED:20220323T125554Z
UID:10000098-1617732000-1617737400@liferaftgroup.org
SUMMARY:Virtual GISTer Support Group
DESCRIPTION:The group will meet via Zoom on the first Tuesday of each month from 6:00 PM – 7:30 PM EST (NYC Time). \nThe group open to those who have not been able to participate in the past\, for one reason or another. We will start each group with a “Round Robin” in which anyone who feels like updating the group on how they are doing/feeling can do so. There is no pressure to speak if you prefer to simply listen. Once we complete our updates\, the group will have the opportunity for organic conversation to develop in relation to our emotional experiences around GIST\, and other challenges that we may be experiencing as a community. \nIn order to be able to moderate a flowing discussion\, the group will be capped at 15 people each month. The first 15 people into the Zoom waiting room will participate. Keep in mind that since the group is now open\, you don’t necessarily have to attend each month to be  to participate. \nContact Diana Nieves to join: dnieves@liferaftgroup.org
URL:https://liferaftgroup.org/event/virtual-gister-support-group-4/2021-04-06/
LOCATION:NJ
CATEGORIES:Events
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/01/GISTer-SUPPORT-2021.png
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20210407T130000
DTEND;TZID=America/New_York:20210407T130000
DTSTAMP:20210603T135810Z
CREATED:20210119T153745Z
LAST-MODIFIED:20210603T135810Z
UID:10000122-1617800400-1617800400@liferaftgroup.org
SUMMARY:Virtual Caregiver Support Group
DESCRIPTION:Weekly Support Group for GIST Caregivers.\nHeld every Wednesday at 1pm ET beginning January 20\, 2021\nAs we continue to navigate this uncertain time together\, we want to offer you a little extra support. Every Wednesday at 1pm ET the LRG has a weekly support group for the caregivers facilitated by Marlene Nei\, GIST Caregiver. To continue social distancing and connecting with caregivers across the United States\, we will use an electronic platform\, to come together every week as a group. We will talk about all the feelings you might be experiencing\, both in relation to GIST\, and COVID-19. \nWe will share our stories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling because of this unprecedented time. The group will be a safe space not only to feel supported by your fellow caregivers\, but also a place to share our own coping mechanisms to get us through this stressful time. All information shared will be kept confidential. Contact Diana Nieves at dnieves@liferaftgroup.org for more information. \nPlease email Diana Nieves at dnieves@liferaftgroup.org to join this meeting.\nAbout the Group Leader:\nMarlene Nei\, GIST Caregiver \nAs an active member of the Life Raft Group\, Marlene advocates for the needs of the caregiver community because she feels they are an underrepresented group. It is her mission to advocate for the entire GIST community making sure they are equipped with the appropriate resources on their GIST journey.
URL:https://liferaftgroup.org/event/virtual-caregiver-support-group-3/2021-04-07/
LOCATION:NJ
CATEGORIES:Events,Support Group
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/01/Caregiver-Support-Group.png
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20210414T130000
DTEND;TZID=America/New_York:20210414T130000
DTSTAMP:20210603T135810Z
CREATED:20210119T153745Z
LAST-MODIFIED:20210603T135810Z
UID:10000123-1618405200-1618405200@liferaftgroup.org
SUMMARY:Virtual Caregiver Support Group
DESCRIPTION:Weekly Support Group for GIST Caregivers.\nHeld every Wednesday at 1pm ET beginning January 20\, 2021\nAs we continue to navigate this uncertain time together\, we want to offer you a little extra support. Every Wednesday at 1pm ET the LRG has a weekly support group for the caregivers facilitated by Marlene Nei\, GIST Caregiver. To continue social distancing and connecting with caregivers across the United States\, we will use an electronic platform\, to come together every week as a group. We will talk about all the feelings you might be experiencing\, both in relation to GIST\, and COVID-19. \nWe will share our stories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling because of this unprecedented time. The group will be a safe space not only to feel supported by your fellow caregivers\, but also a place to share our own coping mechanisms to get us through this stressful time. All information shared will be kept confidential. Contact Diana Nieves at dnieves@liferaftgroup.org for more information. \nPlease email Diana Nieves at dnieves@liferaftgroup.org to join this meeting.\nAbout the Group Leader:\nMarlene Nei\, GIST Caregiver \nAs an active member of the Life Raft Group\, Marlene advocates for the needs of the caregiver community because she feels they are an underrepresented group. It is her mission to advocate for the entire GIST community making sure they are equipped with the appropriate resources on their GIST journey.
URL:https://liferaftgroup.org/event/virtual-caregiver-support-group-3/2021-04-14/
LOCATION:NJ
CATEGORIES:Events,Support Group
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/01/Caregiver-Support-Group.png
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20210417T160000
DTEND;TZID=America/New_York:20210417T160000
DTSTAMP:20210319T131321Z
CREATED:20210311T162247Z
LAST-MODIFIED:20210319T131321Z
UID:10000135-1618675200-1618675200@liferaftgroup.org
SUMMARY:GIST & SDH-Deficient Support Group
DESCRIPTION:Please join us on Saturday\, April 17th\, at 1:00 p.m. PST/4:00pm EST.  Just\, make yourself comfortable at your computer\, laptop\, tablet\, etc. and participate in what is going to be a very helpful and informative meeting. \nThe Life Raft Group is offering a virtual LRG Southern California GIST and SDH-Deficient GIST Support Group led by Southern California Leader Dina Wiley.  The group will meet to talk to each other\, discuss individual GIST issues\, and get answers to questions.  This will enable you to not only get some relief from the worry of GIST\, but to also help others\, as well.  We are\, after all\, in the same life raft\, and we are each needed to pull together.  When we do\, wonderful things happen! \nWe will have a very special participant — Jason Sicklick\, MD\, professor of surgery at UC San Diego School of Medicine and surgical oncologist at Moores Cancer Center at UC San Diego Health.  Dr.  Sicklick has been a key player in GIST research.  Dr. Sicklick will be available to answer any questions you may have about GIST and SDH-Deficient GIST. \nREGISTER
URL:https://liferaftgroup.org/event/gist-sdh-deficient-support-group/
LOCATION:NJ
CATEGORIES:Events,Support Group
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2021/03/california-SDH-group.jpg
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20210421T130000
DTEND;TZID=America/New_York:20210421T130000
DTSTAMP:20210603T135810Z
CREATED:20210119T153745Z
LAST-MODIFIED:20210603T135810Z
UID:10000124-1619010000-1619010000@liferaftgroup.org
SUMMARY:Virtual Caregiver Support Group
DESCRIPTION:Weekly Support Group for GIST Caregivers.\nHeld every Wednesday at 1pm ET beginning January 20\, 2021\nAs we continue to navigate this uncertain time together\, we want to offer you a little extra support. Every Wednesday at 1pm ET the LRG has a weekly support group for the caregivers facilitated by Marlene Nei\, GIST Caregiver. To continue social distancing and connecting with caregivers across the United States\, we will use an electronic platform\, to come together every week as a group. We will talk about all the feelings you might be experiencing\, both in relation to GIST\, and COVID-19. \nWe will share our stories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling because of this unprecedented time. The group will be a safe space not only to feel supported by your fellow caregivers\, but also a place to share our own coping mechanisms to get us through this stressful time. All information shared will be kept confidential. Contact Diana Nieves at dnieves@liferaftgroup.org for more information. \nPlease email Diana Nieves at dnieves@liferaftgroup.org to join this meeting.\nAbout the Group Leader:\nMarlene Nei\, GIST Caregiver \nAs an active member of the Life Raft Group\, Marlene advocates for the needs of the caregiver community because she feels they are an underrepresented group. It is her mission to advocate for the entire GIST community making sure they are equipped with the appropriate resources on their GIST journey.
URL:https://liferaftgroup.org/event/virtual-caregiver-support-group-3/2021-04-21/
LOCATION:NJ
CATEGORIES:Events,Support Group
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/01/Caregiver-Support-Group.png
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20210428T130000
DTEND;TZID=America/New_York:20210428T130000
DTSTAMP:20210603T135810Z
CREATED:20210119T153745Z
LAST-MODIFIED:20210603T135810Z
UID:10000125-1619614800-1619614800@liferaftgroup.org
SUMMARY:Virtual Caregiver Support Group
DESCRIPTION:Weekly Support Group for GIST Caregivers.\nHeld every Wednesday at 1pm ET beginning January 20\, 2021\nAs we continue to navigate this uncertain time together\, we want to offer you a little extra support. Every Wednesday at 1pm ET the LRG has a weekly support group for the caregivers facilitated by Marlene Nei\, GIST Caregiver. To continue social distancing and connecting with caregivers across the United States\, we will use an electronic platform\, to come together every week as a group. We will talk about all the feelings you might be experiencing\, both in relation to GIST\, and COVID-19. \nWe will share our stories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling because of this unprecedented time. The group will be a safe space not only to feel supported by your fellow caregivers\, but also a place to share our own coping mechanisms to get us through this stressful time. All information shared will be kept confidential. Contact Diana Nieves at dnieves@liferaftgroup.org for more information. \nPlease email Diana Nieves at dnieves@liferaftgroup.org to join this meeting.\nAbout the Group Leader:\nMarlene Nei\, GIST Caregiver \nAs an active member of the Life Raft Group\, Marlene advocates for the needs of the caregiver community because she feels they are an underrepresented group. It is her mission to advocate for the entire GIST community making sure they are equipped with the appropriate resources on their GIST journey.
URL:https://liferaftgroup.org/event/virtual-caregiver-support-group-3/2021-04-28/
LOCATION:NJ
CATEGORIES:Events,Support Group
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/01/Caregiver-Support-Group.png
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20210429T120000
DTEND;TZID=America/New_York:20210429T130000
DTSTAMP:20210408T134855Z
CREATED:20210408T134459Z
LAST-MODIFIED:20210408T134855Z
UID:10000137-1619697600-1619701200@liferaftgroup.org
SUMMARY:Genetics of GIST
DESCRIPTION:Risks\, Management\, and What to Know for You and Your Family\nIn this webinar\, we will review what is known about the hereditary causes behind GISTs\, current genetic testing options and results\, how this information affects screening and management\, and implications for one’s family. \n\nREGISTER\n \nPresenters:\nLindsay Kipnis received her MS in Genetic Counseling from Brandeis University in 2013. After graduating she worked in oncology at Women & Infants Hospital in Rhode Island. She joined the Center for Cancer Genetics and Prevention at DFCI in 2014. Lindsay is focused on ensuring that all ovarian cancer patients receive the genetic counseling and testing that is recommended. She also sees a variety of adult patients with personal and family histories of cancer. \n\n \nBecca Vanderwall is a licensed and certified genetic counselor currently practicing at Dana-Farber Cancer Institute in the pediatric cancer genetics risk program. She previously worked in neurometabolics and mitochondrial disease at Boston Children’s Hospital. She earned her MS in Genetic Counseling and MPH in Public Health Genetics from the University of Pittsburgh in 2016. Her special interests include public health research and policy\, health disparities and equity\, hereditary brain tumor risk\, and family dynamics and communication.
URL:https://liferaftgroup.org/event/genetics-of-gist/
LOCATION:NJ
CATEGORIES:Events
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
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