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X-WR-CALNAME:The Life Raft Group
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X-WR-CALDESC:Events for The Life Raft Group
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20211005T180000
DTEND;TZID=America/New_York:20211005T193000
DTSTAMP:20220323T125554Z
CREATED:20210118T181321Z
LAST-MODIFIED:20220323T125554Z
UID:10000104-1633456800-1633462200@liferaftgroup.org
SUMMARY:Virtual GISTer Support Group
DESCRIPTION:The group will meet via Zoom on the first Tuesday of each month from 6:00 PM – 7:30 PM EST (NYC Time). \nThe group open to those who have not been able to participate in the past\, for one reason or another. We will start each group with a “Round Robin” in which anyone who feels like updating the group on how they are doing/feeling can do so. There is no pressure to speak if you prefer to simply listen. Once we complete our updates\, the group will have the opportunity for organic conversation to develop in relation to our emotional experiences around GIST\, and other challenges that we may be experiencing as a community. \nIn order to be able to moderate a flowing discussion\, the group will be capped at 15 people each month. The first 15 people into the Zoom waiting room will participate. Keep in mind that since the group is now open\, you don’t necessarily have to attend each month to be  to participate. \nContact Diana Nieves to join: dnieves@liferaftgroup.org
URL:https://liferaftgroup.org/event/virtual-gister-support-group-4/2021-10-05/
LOCATION:NJ
CATEGORIES:Events
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/01/GISTer-SUPPORT-2021.png
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20211006T130000
DTEND;TZID=America/New_York:20211006T140000
DTSTAMP:20210625T150722Z
CREATED:20210625T150722Z
LAST-MODIFIED:20210625T150722Z
UID:10000156-1633525200-1633528800@liferaftgroup.org
SUMMARY:Virtual Caregiver Support Group
DESCRIPTION:Bi-Weekly Support Group for GIST Caregivers.\nHeld first & third Wednesdays of the month\nAs we continue to navigate this uncertain time together\, we want to offer you a little extra support. LRG has a twice monthly support group for the caregivers facilitated by Marlene Nei\, GIST Caregiver. To continue social distancing and connecting with caregivers across the United States\, we will use an electronic platform to gather as a group. We will talk about all the feelings you might be experiencing\, both in relation to GIST\, and COVID-19. \nWe will share our stories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling because of this unprecedented time. The group will be a safe space not only to feel supported by your fellow caregivers\, but also a place to share our own coping mechanisms to get us through this stressful time. All information shared will be kept confidential. Contact Diana Nieves at dnieves@liferaftgroup.org for more information. \n\nPlease email Diana Nieves at dnieves@liferaftgroup.org to join this meeting.\n\nAbout the Group Leader:\nMarlene Nei\, GIST Caregiver\nAs an active member of the Life Raft Group\, Marlene advocates for the needs of the caregiver community because she feels they are an underrepresented group. It is her mission to advocate for the entire GIST community making sure they are equipped with the appropriate resources on their GIST journey.
URL:https://liferaftgroup.org/event/virtual-caregiver-support-group-15/
LOCATION:NJ
CATEGORIES:Events,Support Group
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2021/06/Caregiver-Support-Group.jpg
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20211007T080000
DTEND;TZID=America/New_York:20211007T080000
DTSTAMP:20210714T140522Z
CREATED:20210714T140522Z
LAST-MODIFIED:20210714T140522Z
UID:10000160-1633593600-1633593600@liferaftgroup.org
SUMMARY:New Member Orientation - Virtual
DESCRIPTION:This meeting will take place at 8am & 12pm ET every 1st Thursday.\nAre you a new LRG member and looking for guidance on all the things the Life Raft Group has to offer? Join us for a virtual orientation to hear from staff about our services and have the opportunity to ask questions and meet other new members. \nSign Up For Meeting Date
URL:https://liferaftgroup.org/event/new-member-orientation-virtual/2021-10-07/
LOCATION:NJ
CATEGORIES:Education,Events
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2021/07/orientation-meeting-2021.jpg
ORGANIZER;CN="The Life Raft Group":MAILTO:liferaft@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20211007T120000
DTEND;TZID=America/New_York:20211007T120000
DTSTAMP:20210714T140637Z
CREATED:20210714T140637Z
LAST-MODIFIED:20210714T140637Z
UID:10000165-1633608000-1633608000@liferaftgroup.org
SUMMARY:New Member Orientation - Virtual
DESCRIPTION:This meeting will take place at 8am & 12pm ET every 1st Thursday.\nAre you a new LRG member and looking for guidance on all the things the Life Raft Group has to offer? Join us for a virtual orientation to hear from staff about our services and have the opportunity to ask questions and meet other new members. \nSign Up For Meeting Date
URL:https://liferaftgroup.org/event/new-member-orientation-virtual-2/2021-10-07/
LOCATION:NJ
CATEGORIES:Education,Events
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2021/07/orientation-meeting-2021.jpg
ORGANIZER;CN="The Life Raft Group":MAILTO:liferaft@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20211007T140000
DTEND;TZID=America/New_York:20211007T140000
DTSTAMP:20210913T194922Z
CREATED:20210913T193635Z
LAST-MODIFIED:20210913T194922Z
UID:10000170-1633615200-1633615200@liferaftgroup.org
SUMMARY:Conversations with the LRG: Meet our International GIST Mentors!
DESCRIPTION:Join us Thursday\, October 7th at 2pm ET for our next “Conversations with the LRG”. In this presentation\, our Global GIST Mentors will discuss the role of the GIST Mentor and how one can assist you on your GIST journey. \nYou will learn why each of these patients/caregivers chose to volunteer as a GIST Mentor and more about them and their own journey with GIST. \nThere will be a 15-minute Q&A at the end of the presentation. \nYou may submit questions in advance to Diana Nieves\, Senior Director of Outreach and Engagement: dnieves@liferaftgroup.org \nYou will also be able to submit questions in the chat feature during the presentation for the Q&A. \nREGISTER
URL:https://liferaftgroup.org/event/conversations-with-the-lrg-meet-our-international-gist-mentors/
LOCATION:NJ
CATEGORIES:Events,Webcast
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/09/lrg-conver-Int-mentors.png
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20211020
DTEND;VALUE=DATE:20211023
DTSTAMP:20211008T131333Z
CREATED:20210902T140123Z
LAST-MODIFIED:20211008T131333Z
UID:10000169-1634688000-1634947199@liferaftgroup.org
SUMMARY:New Horizons GIST Conference
DESCRIPTION:The New Horizons GIST conference will once again be held virtually\, due to the ongoing covid-19 pandemic\, and this year will welcome GIST advocates as well as patients & caregivers.\nNew Horizons GIST traditionally focuses on a large annual conference gathering over 50 representatives from 30 countries to discuss critical information about GIST that impacts the global GIST patient and medical communities. Participants have opportunities to interact with leading GIST experts\, learn new medical and scientific information about GIST\, exchange best practices and discuss advocacy issues. \nOn behalf of the NEW HORIZONS GIST Steering Committee\, the Life Raft Group is very pleased to invite you to the New Horizons GIST 2021 Conference from October 20-22\, 2021 via Zoom. \nThe theme is “Celebrating 20 Years of GIST Treatments.” Over the course of the three day conference\, we will travel along the 20-year treatment journey of GIST and look towards the future. Day one will be the Kickoff Celebration in which we discuss the birth of targeted medicine. Day Two will focus on current targeted therapies\, and Day Three will end with the future outlook and important research questions needing to be addressed by the global GIST community. Each day will have virtual sessions between 9:00 am to 12:00 pm Eastern Time. \nThis meeting will be a great opportunity to come together and reflect upon the past 20 years but also look towards the future as a global community. Each organization is welcome to register several representatives. \nIf you have any questions about this conference\, please email: srothschild@liferaftgroup.org \nREGISTERProposed Agenda: (updated 10.8.2021)\npdf here \nOctober 20 \n \nOctober 21 \n \nOctober 22 \n \nSee past New Horizon GIST conferences
URL:https://liferaftgroup.org/event/new-horizons-gist-conference/
LOCATION:NJ
CATEGORIES:Events,International
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/09/new-horizons-GIST-2021.png
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20211020T130000
DTEND;TZID=America/New_York:20211020T140000
DTSTAMP:20210625T151030Z
CREATED:20210625T151030Z
LAST-MODIFIED:20210625T151030Z
UID:10000157-1634734800-1634738400@liferaftgroup.org
SUMMARY:Virtual Caregiver Support Group
DESCRIPTION:Bi-Weekly Support Group for GIST Caregivers.\nHeld first & third Wednesdays of the month\nAs we continue to navigate this uncertain time together\, we want to offer you a little extra support. LRG has a twice monthly support group for the caregivers facilitated by Marlene Nei\, GIST Caregiver. To continue social distancing and connecting with caregivers across the United States\, we will use an electronic platform to gather as a group. We will talk about all the feelings you might be experiencing\, both in relation to GIST\, and COVID-19. \nWe will share our stories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling because of this unprecedented time. The group will be a safe space not only to feel supported by your fellow caregivers\, but also a place to share our own coping mechanisms to get us through this stressful time. All information shared will be kept confidential. Contact Diana Nieves at dnieves@liferaftgroup.org for more information. \n\nPlease email Diana Nieves at dnieves@liferaftgroup.org to join this meeting.\n\nAbout the Group Leader:\nMarlene Nei\, GIST Caregiver\nAs an active member of the Life Raft Group\, Marlene advocates for the needs of the caregiver community because she feels they are an underrepresented group. It is her mission to advocate for the entire GIST community making sure they are equipped with the appropriate resources on their GIST journey.
URL:https://liferaftgroup.org/event/virtual-caregiver-support-group-16/
LOCATION:NJ
CATEGORIES:Events,Support Group
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2021/06/Caregiver-Support-Group.jpg
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20211028T130000
DTEND;TZID=America/New_York:20211028T130000
DTSTAMP:20211015T173919Z
CREATED:20210924T195501Z
LAST-MODIFIED:20211015T173919Z
UID:10000171-1635426000-1635426000@liferaftgroup.org
SUMMARY:Perspectives in Biomarker Testing
DESCRIPTION:Who Are the “Players” Involved in Biomarker Testing?\nHear Their Perspectives\nUnderstanding the role of mutations and biomarker testing in GIST is one of most important things that GIST patients need to learn. Knowing the driving force behind each individual’s tumors is not just important\, it is critical in determining the most effective treatment for your mutation. Whether it is a pathologist\, an oncologist\, or the laboratory doing the testing\, they each play a key role in the testing process. Learn from different perspectives and ask questions to this distinguished panel of experts. \n\nIf you have questions about this presentation\nor about registration\, please contact:\nSara Rothschild\, VP Program Services\, srothschild@liferaftgroup.org\nREGISTEROur Presenters\n\nJonathan Trent\, MD\, PhD\nDirector\, Sarcoma Oncology\nSylvester Comprehensive Cancer Center\nMiami\, Florida \nDr. Jonathan C. Trent is currently the Associate Director for Clinical Research\, the Director of the Bone and Soft-tissue Sarcoma Group at the Sylvester Comprehensive Cancer Center. Dr. Trent’s interests are in the clinical and translational research of sarcomas\, direct care of sarcoma patients\, and education about sarcoma. As Associate Director for Clinical Research\, his goal is to help Sylvester Faculty develop clinical trials that provide clinically effective and scientifically exciting therapy to cancer patients of South Florida and beyond. The major focus of his clinical\, educational and research efforts are with gastrointestinal stromal tumor (GIST)\, chondrosarcoma\, and other sarcomas. The major efforts of Dr. Trent’s research focus on understanding the mechanisms of action and resistance of imatinib in GIST and other sarcomas while striving toward improved therapeutic options. His work involves the use of novel preoperative/postoperative clinical trials\, prospectively acquired tumor tissue\, cell lines\, archival tissue\, as well as collaborations with disciplines such as the genomics facility\, surgical oncology\, pathology\, radiology and interventional radiology. \n\nLeylah Drusbosky\, PhD\nMedical Science Liaison\nGuardant Health\nTampa\, Florida \nLeylah Drusbosky received her PhD in molecular biology from the University of Florida and has expertise in next generation sequencing\, liquid biopsy\, precision medicine\, and translational research. She is a Medical Science Liaison at Guardant Health\, a company that leverages liquid biopsy to guide personalized treatments in patients with advanced cancer and has a passion for communicating the need for comprehensive genomic profiling to identify the best treatment approach based on each patient’s unique disease biology. \n\nKeith Killian\, PhD\nSenior Pathologist & Associate Medical Director\nFoundation Medicine\nCambridge\, Massachusetts \nDr. Killian is Senior Pathologist and Associate Medical Director at Foundation Medicine. He also serves as the lead pathologist on the partnership with Genentech to develop comprehensive gene expression profiling assays for clinical trial use. Notable prior translational medicine achievements include working with clinicians from the NIH Pediatric Gastrointestinal Stromal Tumor (GIST) clinic to discover the bimodal molecular pathologic mechanism of GIST tumorigenesis\, whereby reciprocal epigenetic and genetic inactivation of succinate dehydrogenase (SDH) explain SDH deficiency in KIT/kinase-WT GIST. Other recent work includes the methyl-deviation index (MDI) as a prognostic marker in breast cancer; MDI can be more generally used to measure malignant cellularity\, including lineage and purity\, in routine biopsies. We also recently discovered the remarkable convergence of epigenomic programming in pluripotent stem cells and germ-cell-tumor cells. Then\, we are completing a study of the clinical utility of saliva in the molecular profiling of solid and hematologic malignancy.\n\nThank you to our sponsors!
URL:https://liferaftgroup.org/event/perspectives-in-biomarker-testing/
LOCATION:NJ
CATEGORIES:Education,Events
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
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