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X-ORIGINAL-URL:https://liferaftgroup.org
X-WR-CALDESC:Events for The Life Raft Group
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220405T180000
DTEND;TZID=America/New_York:20220405T193000
DTSTAMP:20220323T125554Z
CREATED:20210118T181321Z
LAST-MODIFIED:20220323T125554Z
UID:10000110-1649181600-1649187000@liferaftgroup.org
SUMMARY:Virtual GISTer Support Group
DESCRIPTION:The group will meet via Zoom on the first Tuesday of each month from 6:00 PM – 7:30 PM EST (NYC Time). \nThe group open to those who have not been able to participate in the past\, for one reason or another. We will start each group with a “Round Robin” in which anyone who feels like updating the group on how they are doing/feeling can do so. There is no pressure to speak if you prefer to simply listen. Once we complete our updates\, the group will have the opportunity for organic conversation to develop in relation to our emotional experiences around GIST\, and other challenges that we may be experiencing as a community. \nIn order to be able to moderate a flowing discussion\, the group will be capped at 15 people each month. The first 15 people into the Zoom waiting room will participate. Keep in mind that since the group is now open\, you don’t necessarily have to attend each month to be  to participate. \nContact Diana Nieves to join: dnieves@liferaftgroup.org
URL:https://liferaftgroup.org/event/virtual-gister-support-group-4/2022-04-05/
LOCATION:NJ
CATEGORIES:Events
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/01/GISTer-SUPPORT-2021.png
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220406T120000
DTEND;TZID=America/New_York:20220406T130000
DTSTAMP:20220303T154212Z
CREATED:20220224T171146Z
LAST-MODIFIED:20220303T154212Z
UID:10000208-1649246400-1649250000@liferaftgroup.org
SUMMARY:Be an Informed Patient\, Part 2: GIST
DESCRIPTION:Be an Informed Patient\, Part 2: Navigating GIST NCCN Guidelines\nIn Part Two of our “Be an Informed Patient” series\, The Life Raft Group invites all GIST patients and caregivers to register for our NCCN Webinar taking place on April 6th at 12:00 pm ET. The National Comprehensive Cancer Network (NCCN) creates guidelines for different diseases to guide physicians in their clinical practice. Dr. Margaret von Mehren serves as the Chair of the sarcoma NCCN guidelines and has been a valuable player along with her medical colleagues on the evolution of the GIST guidelines over the years. In this webinar\, Dr. von Mehren will educate GIST patients and caregivers about these guidelines and provide some case study examples of how guidelines fit into the rubric of patient care. The Life Raft Group will also share insights on real world experiences among the patient community with the guidelines. \nREGISTERAbout our presenters:\nMargaret von Mehren\, MD\nFox Chase Cancer Center \nDr. Margaret von Mehren is Chief of Division of Sarcoma Medical Oncology at Fox Chase Cancer Center. Her research interest focuses in developmental therapeutics for sarcomas and gastrointestinal stromal tumors. She has led investigator-initiated trials\, collaborated with other investigators\, sarcoma clinical trials group\, as well as industry sponsored studies in the testing of novel agents in these rare diseases. Collaboration with the Phase I program and basic scientists at Fox Chase Cancer Center and elsewhere is key to identifying potential novel agents which may have a therapeutic benefit in the treatment of sarcomas. Dr. von Mehren’s work in sarcoma therapeutic development informs her role as the Associate Director of Clinical Research\, in which she oversees the development of investigator initiated clinical trials\, the scientific review and prioritization process of trials as well as conduct of clinical trials at Fox Chase Cancer Center. \n\nDenisse Montoya\, MS\nSenior Director\, Data Mgmt. & Research\, The Life Raft Group \nMs. Montoya has a wealth of experience in clinical evaluation projects including development of protocols\, case report forms\, informed consent\, surveys\, tissue repositories\, and study initiation She is proficient in data management\, preparing research for publication\, drug development\, clinical trial protocols\, onco-pathological/genetical dissemination\, and formulating research premises. As the Senior Director of Data Management & Research\, Denisse is the principal investigator for study protocol design and strategy of Patient Reported Outcomes (PRO). She has expertise in the analysis\, reporting\, and dissemination of PRO data and present scientific work. \nShe leads a dedicated staff in both patient support and in the identification of data trends that may lead to actionable information that will help patients coping with Gastrointestinal Stromal Tumor. In addition\, she takes the lead in collaborative research initiatives\, including maintaining relationships with potential partners\, contributing ongoing data\, and supporting hypothesis generation with the goal of increasing patient survival and advancing GIST research. \nDenisse holds a Bachelor of Science degree in Biology from Rowan University\, and a Master of Science Degree in Biomedical Science from Fairleigh Dickinson University
URL:https://liferaftgroup.org/event/be-an-informed-patient-part-2-gist/
LOCATION:NJ
CATEGORIES:Events,Webcast
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220406T130000
DTEND;TZID=America/New_York:20220406T140000
DTSTAMP:20230525T182345Z
CREATED:20211230T190819Z
LAST-MODIFIED:20230525T182345Z
UID:10000193-1649250000-1649253600@liferaftgroup.org
SUMMARY:Virtual Caregiver Support Group
DESCRIPTION: A Bi-Weekly Virtual Support Group for GIST Caregivers\nHeld on the first & third Wednesdays of the month\nAs we continue to navigate this uncertain time together\, we want to offer you a little extra support. LRG has a twice monthly support group for the caregivers facilitated by Marlene Nei\, GIST Caregiver. To continue social distancing and connecting with caregivers across the United States\, we will use an electronic platform to gather as a group. We will talk about all the feelings you might be experiencing\, both in relation to GIST\, and COVID-19. \nWe will share our stories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling because of this unprecedented time. The group will be a safe space not only to feel supported by your fellow caregivers\, but also a place to share our own coping mechanisms to get us through this stressful time. All information shared will be kept confidential. Contact Diana Nieves at dnieves@liferaftgroup.org for more information. \n\nPlease email Diana Nieves at dnieves@liferaftgroup.org to join this meeting.\n\nAbout the Group Leader:\nMarlene Nei\, GIST Caregiver\nAs an active member of the Life Raft Group\, Marlene advocates for the needs of the caregiver community because she feels they are an underrepresented group. It is her mission to advocate for the entire GIST community making sure they are equipped with the appropriate resources on their GIST journey.
URL:https://liferaftgroup.org/event/virtual-caregiver-support-group-2022-1/2022-04-06/
LOCATION:NJ
CATEGORIES:Events
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2021/06/Caregiver-Support-Group.jpg
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220409T080000
DTEND;TZID=America/New_York:20220409T080000
DTSTAMP:20220127T204357Z
CREATED:20210617T133953Z
LAST-MODIFIED:20220127T204357Z
UID:10000144-1649491200-1649491200@liferaftgroup.org
SUMMARY:GIST DO IT Walk - Verona\, NJ
DESCRIPTION:Join GISTers\, family & friends\, and the LRG Staff for this beautiful walk around Verona Park as we walk in memory of GISTer Ted Wolf and to raise funds for #GISTresearch! Register today. $35 registration fee includes a free GIST DO IT t-shirt. Meet at the park at 8am. \nIf you can’t be present for the walk\, you can donate to #GISTresearch with the link below also. \nREGISTERInterested in Sponsorship Opportunities?\nContact Jess Nowak\, jnowak@liferaftgroup.org\nEvent Sponsor – $25\,000 \nCompany logo displayed on event signage\, on the LRG website\, & in the LRG newsletter\nCompany logo displayed on Step & Repeat\nThank you from LRG Senior Vice President at event\nAbility to place item/flyer (provided by sponsor) in Swag Bag\nTable at event\n5 registrations\, 5 t-shirts\, and 5 masks \nPlatinum Sponsor – $20\,000 \nCompany logo displayed on event signage\, on the LRG website\, & in the LRG newsletter\nThank you from LRG Senior Vice President at event\nAbility to place item/flyer (provided by sponsor) in Swag Bag\nTable at event\n4 registrations\, 4 t-shirts\, and 4 masks \nGold Sponsor – $15\,000 \nCompany logo displayed on event signage\, on the LRG website\, & in the LRG newsletter\nThank you from LRG Senior Vice President at event\nAbility to place item/flyer (provided by sponsor) in Swag Bag\nTable at event\n3 registrations\, 3 t-shirts\, and 3 masks \nSilver Sponsor – $10\,000 \nCompany name displayed on event signage\, on the LRG website\, & in theLRG newsletter\nThank you from LRG Senior Vice President at event\nAbility to place item/flyer (provided by sponsor) in Swag Bag\nTable at event\n2 registrations\, 2 t-shirts\, and 2 masks \nBronze Sponsor – $5\,000 \nCompany name displayed on event signage\, on the LRG website\, & in the LRG newsletter\nThank you from LRG Senior Vice President at event\n1 registrations\, 1 t-shirts\, and 1 masks
URL:https://liferaftgroup.org/event/gist-do-it-walk-nj-3/
LOCATION:Verona Park\, Verona\, NJ\, Verona\, NJ
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2021/06/gist-do-it-NJ-no-date.jpg
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220420T130000
DTEND;TZID=America/New_York:20220420T140000
DTSTAMP:20221230T174626Z
CREATED:20211230T190313Z
LAST-MODIFIED:20221230T174626Z
UID:10000182-1650459600-1650463200@liferaftgroup.org
SUMMARY:Virtual Caregiver Support Group
DESCRIPTION: A Bi-Weekly Virtual Support Group for GIST Caregivers\nHeld on the first & third Wednesdays of the month\nAs we continue to navigate this uncertain time together\, we want to offer you a little extra support. LRG has a twice monthly support group for the caregivers facilitated by Marlene Nei\, GIST Caregiver. To continue social distancing and connecting with caregivers across the United States\, we will use an electronic platform to gather as a group. We will talk about all the feelings you might be experiencing\, both in relation to GIST\, and COVID-19. \nWe will share our stories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling because of this unprecedented time. The group will be a safe space not only to feel supported by your fellow caregivers\, but also a place to share our own coping mechanisms to get us through this stressful time. All information shared will be kept confidential. Contact Diana Nieves at dnieves@liferaftgroup.org for more information. \n\nPlease email Diana Nieves at dnieves@liferaftgroup.org to join this meeting.\n\nAbout the Group Leader:\nMarlene Nei\, GIST Caregiver\nAs an active member of the Life Raft Group\, Marlene advocates for the needs of the caregiver community because she feels they are an underrepresented group. It is her mission to advocate for the entire GIST community making sure they are equipped with the appropriate resources on their GIST journey.
URL:https://liferaftgroup.org/event/virtual-caregiver-support-group-2022-2/2022-04-20/
LOCATION:NJ
CATEGORIES:Events
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2021/06/Caregiver-Support-Group.jpg
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220426T080000
DTEND;TZID=America/New_York:20220426T170000
DTSTAMP:20220304T194711Z
CREATED:20220304T194309Z
LAST-MODIFIED:20220304T194711Z
UID:10000210-1650960000-1650992400@liferaftgroup.org
SUMMARY:Rare Cancers: Great Unmet Medical Needs
DESCRIPTION:This Symposium is Virtual and In-Person at Columbia University Irving Medical Center\nThe Columbia University Herbert Irving Comprehensive Cancer Center and the Jed Ian Taxel Foundation for Rare Cancer Research invite you to join them for “Rare Cancers: Great Unmet Medical Needs”\, Tuesday\, April 26\, 2022. This CME conference is open to both the patient advocacy community and medical professionals. Leading experts in rare cancer medicine\, research\, public policy\, and advocacy will share their insights at this hybrid event (on location and virtual). Patients & caregivers/patient advocates attend for free. Read more… \n\n\n\nPROGRAM DESCRIPTION AND OBJECTIVES \nAt least 1 in 8 cancers diagnosed in adults are considered rare cancers. By definition rare cancers are ones with a prevalence of < 200\,000 cases per year in the United States. This means that well over 200\,000 patients are diagnosed with rare cancers each year in this country. If one excludes the most common types of cancers such as breast\, lung\, colon and prostate cancer the remaining cancers are particularly rare and this number is much higher. In fact\, rare cancers could represent up to a third of all cancers diagnosed each year. Therefore\, “rare cancers” represent a major health care problem in the United States and around the world. Despite the relative frequency of these cancers they are poorly understood\, infrequently studied\, and do not receive the type of funding seen in the more common tumor types. The symposium is designed to focus on specific types of rare cancers with the goal of developing new treatment paradigms based on an improved understanding of the molecular biology of this heterogeneous group of disease. \nAt the conclusion of this activity\, participants will be better able to: \n\nDefine rare cancers and its heterogeneity\nDiscuss the current approaches used to treat this range of diseases\nIdentify the tumor biology of rare cancers and how this could impact future therapeutic directions in cancer therapy\nPropose future directions in cancer medicine for these rare cancers\nDelineate a blueprint for investing resources in the treatment and cure of rare cancer\n\n\n\n\nOne CME credit is available for medical professionals\, and the deadline for Abstracts is April 1st. All information is available in the brochure from the link below. \nREGISTER\n\n\nMEETING LOCATION \nColumbia University Irving Medical Center\n1130 St. Nicholas Avenue\, First Floor\, New York\, NY 10032 \nParking is available at the Columbia University Irving Medical Center parking lot\, located on the southwest corner of Fort Washington Avenue and West 165th Street. \n\n\n\nEvent Brochure/Agenda PDF
URL:https://liferaftgroup.org/event/rare-cancers-great-unmet-medical-needs/
LOCATION:Columbia University Herbert Irving Comprehensive Cancer Center\, 1130 St. Nicholas Avenue\, New York\, NY\, 10031\, United States
CATEGORIES:Education,Events
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2022/03/great-unmet-needs-symposium.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220427T140000
DTEND;TZID=America/New_York:20220427T160000
DTSTAMP:20220304T203028Z
CREATED:20220303T150736Z
LAST-MODIFIED:20220304T203028Z
UID:10000209-1651068000-1651075200@liferaftgroup.org
SUMMARY:GDOL Washington\, DC - Virtual
DESCRIPTION:GDOL DC is April 27th – 2pm-4pm ET\nA GIST Day of Learning (GDOL) is a free one day event to help patients and caregivers learn more about this rare cancer\, find support\, and enhance their knowledge base to help them navigate their cancer journey. \nThe Life Raft Group has a simple focus: to cure a form of cancer — GIST — and to help those living with it until then. To do this\, the Life Raft Group focuses on three key areas: research\, patient support & education\, and advocacy\, which lay the foundation of our mission to ensure the survival of GIST patients through a comprehensive approach connecting individual patients’ needs\, the worldwide community of GIST advocates and the global health and research environment. \nIf you have any questions\, please contact Diana Nieves at dnieves@liferaftgroup.org \nREGISTER
URL:https://liferaftgroup.org/event/gdol-washington-dc-virtual/
LOCATION:NJ
CATEGORIES:Education,Events
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
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