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X-WR-CALDESC:Events for The Life Raft Group
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DTSTART;TZID=America/New_York:20221102T130000
DTEND;TZID=America/New_York:20221102T140000
DTSTAMP:20230525T182345Z
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UID:10000200-1667394000-1667397600@liferaftgroup.org
SUMMARY:Virtual Caregiver Support Group
DESCRIPTION: A Bi-Weekly Virtual Support Group for GIST Caregivers\nHeld on the first & third Wednesdays of the month\nAs we continue to navigate this uncertain time together\, we want to offer you a little extra support. LRG has a twice monthly support group for the caregivers facilitated by Marlene Nei\, GIST Caregiver. To continue social distancing and connecting with caregivers across the United States\, we will use an electronic platform to gather as a group. We will talk about all the feelings you might be experiencing\, both in relation to GIST\, and COVID-19. \nWe will share our stories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling because of this unprecedented time. The group will be a safe space not only to feel supported by your fellow caregivers\, but also a place to share our own coping mechanisms to get us through this stressful time. All information shared will be kept confidential. Contact Diana Nieves at dnieves@liferaftgroup.org for more information. \n\nPlease email Diana Nieves at dnieves@liferaftgroup.org to join this meeting.\n\nAbout the Group Leader:\nMarlene Nei\, GIST Caregiver\nAs an active member of the Life Raft Group\, Marlene advocates for the needs of the caregiver community because she feels they are an underrepresented group. It is her mission to advocate for the entire GIST community making sure they are equipped with the appropriate resources on their GIST journey.
URL:https://liferaftgroup.org/event/virtual-caregiver-support-group-2022-1/2022-11-02/
LOCATION:NJ
CATEGORIES:Events
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2021/06/Caregiver-Support-Group.jpg
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20221104
DTEND;VALUE=DATE:20221106
DTSTAMP:20221026T123831Z
CREATED:20220217T154650Z
LAST-MODIFIED:20221026T123831Z
UID:10000205-1667520000-1667692799@liferaftgroup.org
SUMMARY:GDOL Miami
DESCRIPTION:GDOL Miami – November 4th & 5th – In person\nA GIST Day of Learning (GDOL) is a free one day event to help patients and caregivers learn more about this rare cancer\, find support\, and enhance their knowledge base to help them navigate their cancer journey. \nThe mission of the Life Raft Group is to enhance survival and quality of life for people living with GIST through patient-powered research\, education and empowerment\, and global advocacy efforts. The LRG vision is to champion patient-powered science and drastically increase long-term survivorship for all cancer patients. To accomplish this\, we rely on four key pillars;\n– Leverage the patient perspective to drive innovative solutions in cancer research\n– Educate and empower patients to take a larger role in their care\n– Accelerate research outcomes through collaborative efforts\n– Increase access to effective treatments worldwide \nIf you have any questions\, please contact Diana Nieves at dnieves@liferaftgroup.org \nREGISTERClick here for printable version of agenda \n \nThank you to our GDOL Sponsors:
URL:https://liferaftgroup.org/event/gdol-miami/
LOCATION:Gordon Center for Simulation & Innovation in Medical Education\, 1120 NW 14th Street\, Miami\, FL\, 33136\, United States
CATEGORIES:Education,Events
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20221107T120000
DTEND;TZID=America/New_York:20221107T120000
DTSTAMP:20221026T190034Z
CREATED:20220816T195740Z
LAST-MODIFIED:20221026T190034Z
UID:10000237-1667822400-1667822400@liferaftgroup.org
SUMMARY:Navigating Your Cancer Care
DESCRIPTION:Monday\, November 7th at noon ET \nAre you or a loved one currently dealing with a cancer diagnosis? Feeling lost in all the new terminology and decisions you are having to make? At Columbia Cancer\, we know that being diagnosed with cancer can be overwhelming. We are here to help you navigate this challenging time. \nIn this webinar\, you’ll hear from oncologists and people who have been where you are now. You will learn more about the full spectrum of cancer care\, from diagnosis to survivorship\, and have all of your questions answered. \nCANCELLEDAbout the Presenters\nGary K. Schwartz\, MD\nDeputy Director\, Columbia Cancer \nDr. Schwartz is a renowned medical oncologist specializing in rare cancers. Working for decades to bring innovative cancer treatments  to patients\, Dr. Schwartz holds unique insights into the questions and decisions you should consider before entering treatment. \n\nNorman J. Scherzer\nExecutive Director Emeritus\, The Life Raft Group \nNorman Scherzer is Executive Director Emeritus and founder of The Life Raft Group\, and a passionate advocate. The Life Raft Group is a global non-profit which empowers cancer patients to take control of their care through education and advocacy.
URL:https://liferaftgroup.org/event/navigating-your-cancer-care/
LOCATION:NJ
CATEGORIES:Events
ORGANIZER;CN="Kristina Mesoznik/Columbia U":MAILTO:kf2604@cumc.columbia.edu
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20221108T130000
DTEND;TZID=America/New_York:20221108T140000
DTSTAMP:20221025T145402Z
CREATED:20221025T145353Z
LAST-MODIFIED:20221025T145402Z
UID:10000247-1667912400-1667916000@liferaftgroup.org
SUMMARY:Surgical Considerations for GIST
DESCRIPTION:November 8\, 2022 @ 1PM ET\nThe Life Raft Group is partnering with Dr. Andrew Blakely\, surgical oncologist\, National Cancer Institute\, Center for Cancer Research\, NIH\, to discuss the basics of surgical removal of primary GISTs and considerations in multimetastatic disease. The presentation will include case examples for both non-wild-type and wild-type or SDH-deficient GIST. Q&A will follow the presentation. \nIf you have any questions about this webinar\, please email srothschild@liferaftgroup.org \nREGISTERAbout our Presenter:\nDr. Andrew Blakely\nNational Cancer Institute\, Center for Cancer Research\nNational Institutes of Health \nDr. Blakely completed a Bachelor of Science in Biomedical Engineering followed by medical school at Drexel University. He went on to general surgery residency at Brown University. During residency\, he spent two years of dedicated research time at the Center for Biomedical Engineering developing a device for tissue engineering applications. That work then led to a National Science Foundation grant and a patent. Dr. Blakely then completed his fellowship in Complex General Surgical Oncology at City of Hope National Medical Center. Dr. Blakely is currently a surgical oncologist specializing in peritoneal surface malignancies and soft tissue sarcomas. One of the primary focuses of his research includes improving surgical treatment and ex vivo tumor modeling of gastrointestinal stromal tumors.   \nThank you to our 2022 LRG webinar sponsors:
URL:https://liferaftgroup.org/event/surgical-considerations-for-gist/
LOCATION:NJ
CATEGORIES:Education,Events
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20221114T180000
DTEND;TZID=America/New_York:20221114T180000
DTSTAMP:20220908T234543Z
CREATED:20220908T215655Z
LAST-MODIFIED:20220908T234543Z
UID:10000241-1668448800-1668448800@liferaftgroup.org
SUMMARY:Florida Support Group
DESCRIPTION:Zoom\, 2nd Monday of the Month – 6pm ET \nOur moderator is a fellow GISTER/LRG Member\, Jackie\, from Orlando\, Florida. She was diagnosed with GIST in late 2016. She is hopeful that this group will be helpful to GIST patients and their caregivers\, who are also welcome to attend. This group will meet online every 2nd Monday of the month at 6pm ET. \nIf you wish to attend\, please email Jackie at dillonjackie62@gmail.com for the Zoom link for the meeting.
URL:https://liferaftgroup.org/event/florida-support-group/2022-11-14/
LOCATION:NJ
CATEGORIES:Events,Support Group
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2022/09/florida-support-group.jpg
ORGANIZER;CN="Jackie VanderPol":MAILTO:dillonjackie62@gmail.com
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20221116T130000
DTEND;TZID=America/New_York:20221116T140000
DTSTAMP:20221230T174626Z
CREATED:20211230T190313Z
LAST-MODIFIED:20221230T174626Z
UID:10000189-1668603600-1668607200@liferaftgroup.org
SUMMARY:Virtual Caregiver Support Group
DESCRIPTION: A Bi-Weekly Virtual Support Group for GIST Caregivers\nHeld on the first & third Wednesdays of the month\nAs we continue to navigate this uncertain time together\, we want to offer you a little extra support. LRG has a twice monthly support group for the caregivers facilitated by Marlene Nei\, GIST Caregiver. To continue social distancing and connecting with caregivers across the United States\, we will use an electronic platform to gather as a group. We will talk about all the feelings you might be experiencing\, both in relation to GIST\, and COVID-19. \nWe will share our stories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling because of this unprecedented time. The group will be a safe space not only to feel supported by your fellow caregivers\, but also a place to share our own coping mechanisms to get us through this stressful time. All information shared will be kept confidential. Contact Diana Nieves at dnieves@liferaftgroup.org for more information. \n\nPlease email Diana Nieves at dnieves@liferaftgroup.org to join this meeting.\n\nAbout the Group Leader:\nMarlene Nei\, GIST Caregiver\nAs an active member of the Life Raft Group\, Marlene advocates for the needs of the caregiver community because she feels they are an underrepresented group. It is her mission to advocate for the entire GIST community making sure they are equipped with the appropriate resources on their GIST journey.
URL:https://liferaftgroup.org/event/virtual-caregiver-support-group-2022-2/2022-11-16/
LOCATION:NJ
CATEGORIES:Events
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2021/06/Caregiver-Support-Group.jpg
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
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