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X-WR-CALDESC:Events for The Life Raft Group
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DTSTART;TZID=America/New_York:20230502T120000
DTEND;TZID=America/New_York:20230502T130000
DTSTAMP:20230403T163003Z
CREATED:20230403T162300Z
LAST-MODIFIED:20230403T163003Z
UID:10000491-1683028800-1683032400@liferaftgroup.org
SUMMARY:Managing Your Mental Health After Diagnosis
DESCRIPTION:Receiving a cancer diagnosis and undergoing cancer treatment can be a highly stressful and emotionally challenging experience. Patients may experience a range of emotions such as fear\, anxiety\, depression and grief\, as well as many physical symptoms. Paying attention to your mental health is an important part of coping with a cancer diagnosis. The Life Raft Group is partnering with Sarah Paul of CancerCare to host this webinar on May 2nd at 12 ET to discuss why mental health matters and discover ways to find the emotional support that is right for you. \nREGISTERAbout Our Presenter:\nSarah Paul\, LCSW\, OSW-C\nDirector of Clinical Programs\, CancerCare \nMs. Paul is the Director of Clinical Programs and is responsible for delivering CancerCare’s free services to people whose lives are affected by cancer while overseeing administrative aspects of the social work department. Sarah is passionate about creating and developing specialized programs to meet the needs of underserved populations and has a specialization in working with children\, adolescents and young adults. Before starting at CancerCare\, she received her BA in Psychology from SUNY New Paltz and her Master’s in Social Work from Silberman School of Social Work at Hunter College. She is a board certified oncology social worker and in 2020\, she was awarded the Aquamarine Leadership Award by the National Association of Social Workers\, New York City Chapter. \nThank you to our 2023 Webinar Sponsors!
URL:https://liferaftgroup.org/event/managing-mental-health-after-diagnosis/
LOCATION:NJ
CATEGORIES:Education,Events
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
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DTSTART;TZID=America/New_York:20230503T130000
DTEND;TZID=America/New_York:20230503T140000
DTSTAMP:20230525T182345Z
CREATED:20211230T190819Z
LAST-MODIFIED:20230525T182345Z
UID:10000441-1683118800-1683122400@liferaftgroup.org
SUMMARY:Virtual Caregiver Support Group
DESCRIPTION: A Bi-Weekly Virtual Support Group for GIST Caregivers\nHeld on the first & third Wednesdays of the month\nAs we continue to navigate this uncertain time together\, we want to offer you a little extra support. LRG has a twice monthly support group for the caregivers facilitated by Marlene Nei\, GIST Caregiver. To continue social distancing and connecting with caregivers across the United States\, we will use an electronic platform to gather as a group. We will talk about all the feelings you might be experiencing\, both in relation to GIST\, and COVID-19. \nWe will share our stories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling because of this unprecedented time. The group will be a safe space not only to feel supported by your fellow caregivers\, but also a place to share our own coping mechanisms to get us through this stressful time. All information shared will be kept confidential. Contact Diana Nieves at dnieves@liferaftgroup.org for more information. \n\nPlease email Diana Nieves at dnieves@liferaftgroup.org to join this meeting.\n\nAbout the Group Leader:\nMarlene Nei\, GIST Caregiver\nAs an active member of the Life Raft Group\, Marlene advocates for the needs of the caregiver community because she feels they are an underrepresented group. It is her mission to advocate for the entire GIST community making sure they are equipped with the appropriate resources on their GIST journey.
URL:https://liferaftgroup.org/event/virtual-caregiver-support-group-2022-1/2023-05-03/
LOCATION:NJ
CATEGORIES:Events
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2021/06/Caregiver-Support-Group.jpg
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230513T080000
DTEND;TZID=America/New_York:20230514T170000
DTSTAMP:20230509T134214Z
CREATED:20230509T134100Z
LAST-MODIFIED:20230509T134214Z
UID:10000498-1683964800-1684083600@liferaftgroup.org
SUMMARY:New Horizons GIST Conference
DESCRIPTION:In-Person Registrations are closed but you can still use the link to join virtually! \nNEW HORIZONS GIST is the most important global annual conference for GIST patient advocates. At NEW HORIZONS GIST\, patients from the global GIST patient community come together\, can interact with top GIST experts\, have access to state‐of‐the‐art medical and scientific information and can exchange best practice in patient advocacy among each other. The conference is a balanced symbiosis of medical content\, advocacy topics and capacity building sessions. After more than 2 years living under the restrictions of the pandemic\, we are happy to annouce that NEW HORIZONS GIST will be held as a hybrid meeting in 2023. \nOn behalf of the “NEW HORIZONS GIST Steering Committee”\, we are very pleased to announce the 2023 NEW HORIZONS GIST Conference May 13 & 14 in Dublin\, Ireland and online via Zoom – for the first time in conjunction with the SPAGN Annual Conference. \nREGISTERPDF of agenda here
URL:https://liferaftgroup.org/event/new-horizons-gist-conference-2/
LOCATION:NJ
CATEGORIES:Education,Events
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2023/05/NEW_HORIZONS_GIST_2023_Dubli_Ireland_Briefkopf_L1-1-2048x537-1.jpg
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230517T130000
DTEND;TZID=America/New_York:20230517T140000
DTSTAMP:20221230T174626Z
CREATED:20211230T190313Z
LAST-MODIFIED:20221230T174626Z
UID:10000466-1684328400-1684332000@liferaftgroup.org
SUMMARY:Virtual Caregiver Support Group
DESCRIPTION: A Bi-Weekly Virtual Support Group for GIST Caregivers\nHeld on the first & third Wednesdays of the month\nAs we continue to navigate this uncertain time together\, we want to offer you a little extra support. LRG has a twice monthly support group for the caregivers facilitated by Marlene Nei\, GIST Caregiver. To continue social distancing and connecting with caregivers across the United States\, we will use an electronic platform to gather as a group. We will talk about all the feelings you might be experiencing\, both in relation to GIST\, and COVID-19. \nWe will share our stories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling because of this unprecedented time. The group will be a safe space not only to feel supported by your fellow caregivers\, but also a place to share our own coping mechanisms to get us through this stressful time. All information shared will be kept confidential. Contact Diana Nieves at dnieves@liferaftgroup.org for more information. \n\nPlease email Diana Nieves at dnieves@liferaftgroup.org to join this meeting.\n\nAbout the Group Leader:\nMarlene Nei\, GIST Caregiver\nAs an active member of the Life Raft Group\, Marlene advocates for the needs of the caregiver community because she feels they are an underrepresented group. It is her mission to advocate for the entire GIST community making sure they are equipped with the appropriate resources on their GIST journey.
URL:https://liferaftgroup.org/event/virtual-caregiver-support-group-2022-2/2023-05-17/
LOCATION:NJ
CATEGORIES:Events
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2021/06/Caregiver-Support-Group.jpg
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230519T120000
DTEND;TZID=America/New_York:20230519T130000
DTSTAMP:20230509T171719Z
CREATED:20230424T031643Z
LAST-MODIFIED:20230509T171719Z
UID:10000492-1684497600-1684501200@liferaftgroup.org
SUMMARY:Clinical Trials 101
DESCRIPTION:Dr. Ciara Kelly will be presenting “Clinical Trials 101” to GIST patients and caretakers on May 19th\, 2023 at 12pm ET. During this virtual presentation\, Dr. Kelly will discuss types of clinical trials\, how to find a clinical trial\, current open clinical trials\, and more. \nREGISTERAbout Our Presenter\nDr. Ciara Kelly\,\nMedical Oncologist\, Memorial Sloan Kettering Cancer Center \nDr. Kelly is a medical oncologist at Memorial Sloan Kettering Cancer Center who has expertise in treating and researching bone and soft tissue sarcomas and merkel cell carcinoma. She works very closely with a team of medical oncologists\, surgeons\, radiation oncologists\, nurses\, and patient support advocates. \nDr. Kelly’s research aims to develop new and more personalized therapies to treat sarcomas. She is actively involved in developing and designing clinical trials that will look at novel agents that target molecular changes within tumors. She is also studying innovative combination immunotherapy options that will harness a person’s own immune defenses to fight their cancer. \nDr. Kelly has a particular interest in advancing understanding of gastrointestinal stromal tumors and other sarcomas at the molecular level. She is using liquid biopsies to analyze tumor DNA in the blood and tumor biopsies to uncover a biomarker that will ultimately help match the best treatment option with each individual person’s tumor. Dr. Kelly is committed to designing and developing novel therapeutic clinical trials for GIST patients that incorporate correlative studies which provide an opportunity to further our understanding of this disease. \nThank you to our 2023 Webinar Sponsors!
URL:https://liferaftgroup.org/event/clinical-trials-101/
LOCATION:NJ
CATEGORIES:Education,Events
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230520T083000
DTEND;TZID=America/New_York:20230520T170000
DTSTAMP:20230510T180827Z
CREATED:20230302T155050Z
LAST-MODIFIED:20230510T180827Z
UID:10000486-1684571400-1684602000@liferaftgroup.org
SUMMARY:GIST Day of Learning - Stanford
DESCRIPTION:GDOL Stanford is happening on May 20th\, 2023\nStanford University’s Frances C. Arrillaga Alumni Center\n326 Galvez Street Stanford Stanford\, CA 94305-6105 \nClick here for AGENDA \n \nREGISTERWhat is a GDOL?\nA GDOL is a GIST Day of Learning. This is a free one day event to help patients and caregivers learn more about this rare cancer\, find support\, and enhance their knowledge base to help them navigate their cancer journey. \nThe mission of the Life Raft Group is to enhance survival and quality of life for people living with GIST through patient-powered research\, education and empowerment\, and global advocacy efforts. The LRG vision is to champion patient-powered science and drastically increase long-term survivorship for all cancer patients. To accomplish this\, we rely on four key pillars:\n– Leverage the patient perspective to drive innovative solutions in cancer research\n– Educate and empower patients to take a larger role in their care\n– Accelerate research outcomes through collaborative efforts\n– Increase access to effective treatments worldwide \nThank you to our 2023 GDOL Sponsors!
URL:https://liferaftgroup.org/event/gist-day-of-learning-stanford/
LOCATION:Stanford University Frances C. Arrillaga Alumni Center\, Fischer Conference Center\, 326 Galvez Street\, Stanford\, California\, 94305
CATEGORIES:Education,Events
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230525T190000
DTEND;TZID=America/New_York:20230525T190000
DTSTAMP:20230509T140037Z
CREATED:20230509T140037Z
LAST-MODIFIED:20230509T140037Z
UID:10000499-1685041200-1685041200@liferaftgroup.org
SUMMARY:Manejo de la Nutrición y Enfoques Multidisciplinarios en GIST
DESCRIPTION:Te invitamos a participar de este webinar organizado por Fundación #GIST México Inscripciones en el siguiente link –\n\n\n\n\n\n\n\n\nWe invite you to participate in this webinar organized by Fundación #GIST Mexico. Registration at the following link –\n\n\n\n\nREGISTER
URL:https://liferaftgroup.org/event/manejo-de-la-nutricion-y-enfoques-multidisciplinarios-en-gist/
LOCATION:NJ
CATEGORIES:Education,Events
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2023/05/344866936_1426486971428486_4897021564488838357_n.jpg
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