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X-WR-CALDESC:Events for The Life Raft Group
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DTSTART;TZID=America/New_York:20230905T180000
DTEND;TZID=America/New_York:20230905T193000
DTSTAMP:20240823T152527Z
CREATED:20230727T133611Z
LAST-MODIFIED:20240823T152527Z
UID:10000595-1693936800-1693942200@liferaftgroup.org
SUMMARY:Virtual GIST Patient Support Group
DESCRIPTION:The Patient Support Group meets via Zoom on the first and third Tuesday of each month from 6:00 PM – 7:30 PM ET (NYC Time). \nWe will start each group with a “Round Robin” in which anyone who feels like updating the group on how they are doing/feeling can do so. There is no pressure to speak if you prefer to simply listen. Once we complete our updates\, the group will have the opportunity for organic conversation to develop in relation to our emotional experiences around GIST\, and other challenges that we may be experiencing as a community. \nIn order to be able to moderate a flowing discussion\, the group will be capped at 15 people each month. The first 15 people into the Zoom waiting room will participate. Keep in mind that since the group is now open\, you don’t necessarily have to attend each month to participate. \nContact Brian Morello to join: bmorello@liferaftgroup.org
URL:https://liferaftgroup.org/event/virtual-gist-patient-support-group-2023-first/2023-09-05/
LOCATION:NJ
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/01/GISTer-Support-Group-2022-1.png
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230906T130000
DTEND;TZID=America/New_York:20230906T140000
DTSTAMP:20240614T133545Z
CREATED:20230727T134933Z
LAST-MODIFIED:20240614T133545Z
UID:10000619-1694005200-1694008800@liferaftgroup.org
SUMMARY:Virtual GIST Caregiver Support Group
DESCRIPTION:Monthly Virtual Support Group for GIST Caregivers\nHeld on the first Wednesday of the month \nLRG hosts a monthly virtual support group for the caregivers. We will share our stories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling during this journey as a caregiver. The group will be a safe space not only to feel supported by your fellow caregivers\, but also a place to share our own coping mechanisms\, concerns\, successes and trials. All information shared will be kept confidential. \nContact Brian Morello to join: bmorello@liferaftgroup.org \nAbout the Group Leader:\nMarlene Nei\, GIST Caregiver\nAs an active member of The Life Raft Group\, Marlene advocates for the needs of the caregiver community because she feels they are an underrepresented group. It is her mission to advocate for the entire GIST community making sure they are equipped with the appropriate resources on their GIST journey.
URL:https://liferaftgroup.org/event/virtual-gist-caregiver-support-group-2023/2023-09-06/
LOCATION:NJ
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2023/05/caregiver-sg-2023.jpg
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230911T180000
DTEND;TZID=America/New_York:20230911T180000
DTSTAMP:20230727T133238Z
CREATED:20230727T133238Z
LAST-MODIFIED:20230727T133238Z
UID:10000572-1694455200-1694455200@liferaftgroup.org
SUMMARY:Virtual Florida Support Group
DESCRIPTION:Florida Support Group\nZoom\, 2nd Monday of the Month – 6pm ET\nOur moderator is a fellow GISTER/LRG Member from Florida diagnosed with GIST in late 2016.\nIf you wish to attend\, please email Diana Nieves: dnieves@liferaftgroup.org for the Zoom link for the meeting.
URL:https://liferaftgroup.org/event/virtual-florida-support-group/2023-09-11/
LOCATION:NJ
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2022/09/florida-support-group.jpg
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230918T120000
DTEND;TZID=America/New_York:20230918T120000
DTSTAMP:20230822T183423Z
CREATED:20230721T225845Z
LAST-MODIFIED:20230822T183423Z
UID:10000567-1695038400-1695038400@liferaftgroup.org
SUMMARY:Getting the GIST of It: How to Manage Side Effects of GIST Therapies
DESCRIPTION:The Life Raft Group has partnered with Emmeline C. Academia\, PharmD\, BCOP of Beth Israel Deaconess Medical Center to present “Getting the GIST of it: How to Manage Side Effects of GIST Therapies” for GIST patients and caretakers on September 18th\, 2023 at 12pm. During this virtual presentation\, Ms. Academia will provide an overview of GIST treatments and their side effects as well as home management for each type of symptom and when to call the clinic. \nREGISTERAbout Our Presenter:\nEmmeline C. Academia\, PharmD\, BCOP \nBeth Israel Deaconess Medical Center \nMs. Academia is a practicing clinical pharmacy specialist in adult oncology at Beth Israel Deaconess Medical Center in Boston. She is board certified in oncology\, and sub-specializes in gastrointestinal and thoracic malignancies\, along with sarcoma. She precepts students from Northeastern University and the Massachusetts College of Pharmacy and Health Sciences. She is a contributing editor for MET Crusaders\, a nonprofit organization dedicated to patients with MET alterations. She also reviews and writes for GoodRx\, focusing on oncology-related medications and topics\, and is the co-author of several published journal articles. Dr. Academia received her Doctor of Pharmacy degree from the University of California\, San Francisco before completing 2 years of pharmacy residency at the University of Colorado in general pharmacy practice\, followed by specialized training in adult oncology. \nThank you to our 2023 Webinar Sponsors!
URL:https://liferaftgroup.org/event/manage-side-effects/
LOCATION:NJ
CATEGORIES:Education,Events,Webcast
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230919T180000
DTEND;TZID=America/New_York:20230919T193000
DTSTAMP:20260605T133728Z
CREATED:20230727T134306Z
LAST-MODIFIED:20260605T133728Z
UID:10000613-1695146400-1695151800@liferaftgroup.org
SUMMARY:Virtual GIST Patient Support Group
DESCRIPTION:The Patient Support Group meets via Zoom on the first and third Tuesday of each month from 6:00 PM – 7:30 PM ET (NYC Time). \nWe will start each group with a “Round Robin” in which anyone who feels like updating the group on how they are doing/feeling can do so. There is no pressure to speak if you prefer to simply listen. Once we complete our updates\, the group will have the opportunity for organic conversation to develop in relation to our emotional experiences around GIST\, and other challenges that we may be experiencing as a community. \nIn order to be able to moderate a flowing discussion\, the group will be capped at 15 people each month. The first 15 people into the Zoom waiting room will participate. Keep in mind that since the group is now open\, you don’t necessarily have to attend each month to participate. \nIf you wish to attend\, please email supportgroups@liferaftgroup.org
URL:https://liferaftgroup.org/event/virtual-gist-patient-support-group-third/2023-09-19/
LOCATION:NJ
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/01/GISTer-Support-Group-2022-1.png
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230928T120000
DTEND;TZID=America/New_York:20230928T120000
DTSTAMP:20230822T183247Z
CREATED:20230817T122902Z
LAST-MODIFIED:20230822T183247Z
UID:10000629-1695902400-1695902400@liferaftgroup.org
SUMMARY:Advocating for Yourself or a Loved One with GIST
DESCRIPTION:Santy DiSabatino\, Director of our US GIST Mentor Program\, will be chatting with a group of GIST patients who have extensive experience advocating for themselves and their loved ones for the best possible care. We are grateful to these individuals who have been so inspirational and thankful that they are willing to join us on September 28th at noon ET to share how to navigate the medical space to ensure that you receive the highest quality of life possible for you or your loved one. \nREGISTERAbout Our Presenter\nSanty DiSabatino\nDirector\, US GIST Mentor Program \nSanty DiSabatino has been very active in our LRG community as a volunteer\, serving currently as the Voluntary Director of the GIST Mentor program\, and as a mentor. \n\nOur Featured Guest Panel\n\nIan Seah \nIan Seah is an extremely active GIST patient originally from Singapore and who now resides in New York City. He has various interests that have led him to career opportunities in tech\, crypto\, snack foods and yoga. Since being diagnosed with GIST\, he has continued his diverse career ventures and now enjoys new hobbies such as photography and cooking. Ian has taken part in two GIST clinical trials at Memorial Sloan Kettering and has traveled to Europe for integrative treatment options in his journey to be cancer free. Ian is a great example of someone who has tirelessly advocated for himself to receive the best possible outcomes. \n\nMargaret McInteer\nMargaret McInteer is a loving wife\, mother\, grandmother\, and great grandmother who has worked over fifty years in education. After being diagnosed with GIST in 2019\, Margaret connected with The Life Raft Group and is grateful to have been connected with a wonderful mentor who helped her navigate her disease journey to ensure the highest quality of life. Margaret recounts that being diagnosed with GIST forced her to slow down\, take care of herself\, and pay attention to the important things. She feels her life is even richer now and more fulfilling. \n\n  \nJean and Gary Erion`\nJean and Gary Erion are a married couple who both live with GIST. Gary is retired from the social work/counseling space and Jean currently works in the Assisted Living sector providing direct care. Jean and Gary enjoy long walks and spending quality time with their loved ones. Throughout their GIST journey\, Jean and Gary have advocated for themselves and each other\, gaining valuable self-advocacy experience. \nThank you to our 2023 Webinar Sponsors!
URL:https://liferaftgroup.org/event/advocating-for-yourself-and-loved-ones/
LOCATION:NJ
CATEGORIES:Events,Webcast
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
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