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X-WR-CALDESC:Events for The Life Raft Group
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DTSTART;TZID=America/New_York:20231003T180000
DTEND;TZID=America/New_York:20231003T193000
DTSTAMP:20240823T152527Z
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LAST-MODIFIED:20240823T152527Z
UID:10000596-1696356000-1696361400@liferaftgroup.org
SUMMARY:Virtual GIST Patient Support Group
DESCRIPTION:The Patient Support Group meets via Zoom on the first and third Tuesday of each month from 6:00 PM – 7:30 PM ET (NYC Time). \nWe will start each group with a “Round Robin” in which anyone who feels like updating the group on how they are doing/feeling can do so. There is no pressure to speak if you prefer to simply listen. Once we complete our updates\, the group will have the opportunity for organic conversation to develop in relation to our emotional experiences around GIST\, and other challenges that we may be experiencing as a community. \nIn order to be able to moderate a flowing discussion\, the group will be capped at 15 people each month. The first 15 people into the Zoom waiting room will participate. Keep in mind that since the group is now open\, you don’t necessarily have to attend each month to participate. \nContact Brian Morello to join: bmorello@liferaftgroup.org
URL:https://liferaftgroup.org/event/virtual-gist-patient-support-group-2023-first/2023-10-03/
LOCATION:NJ
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/01/GISTer-Support-Group-2022-1.png
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231004T130000
DTEND;TZID=America/New_York:20231004T140000
DTSTAMP:20240614T133545Z
CREATED:20230727T134933Z
LAST-MODIFIED:20240614T133545Z
UID:10000620-1696424400-1696428000@liferaftgroup.org
SUMMARY:Virtual GIST Caregiver Support Group
DESCRIPTION:Monthly Virtual Support Group for GIST Caregivers\nHeld on the first Wednesday of the month \nLRG hosts a monthly virtual support group for the caregivers. We will share our stories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling during this journey as a caregiver. The group will be a safe space not only to feel supported by your fellow caregivers\, but also a place to share our own coping mechanisms\, concerns\, successes and trials. All information shared will be kept confidential. \nContact Brian Morello to join: bmorello@liferaftgroup.org \nAbout the Group Leader:\nMarlene Nei\, GIST Caregiver\nAs an active member of The Life Raft Group\, Marlene advocates for the needs of the caregiver community because she feels they are an underrepresented group. It is her mission to advocate for the entire GIST community making sure they are equipped with the appropriate resources on their GIST journey.
URL:https://liferaftgroup.org/event/virtual-gist-caregiver-support-group-2023/2023-10-04/
LOCATION:NJ
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2023/05/caregiver-sg-2023.jpg
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231009T180000
DTEND;TZID=America/New_York:20231009T180000
DTSTAMP:20230727T133238Z
CREATED:20230727T133238Z
LAST-MODIFIED:20230727T133238Z
UID:10000573-1696874400-1696874400@liferaftgroup.org
SUMMARY:Virtual Florida Support Group
DESCRIPTION:Florida Support Group\nZoom\, 2nd Monday of the Month – 6pm ET\nOur moderator is a fellow GISTER/LRG Member from Florida diagnosed with GIST in late 2016.\nIf you wish to attend\, please email Diana Nieves: dnieves@liferaftgroup.org for the Zoom link for the meeting.
URL:https://liferaftgroup.org/event/virtual-florida-support-group/2023-10-09/
LOCATION:NJ
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2022/09/florida-support-group.jpg
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231012T110000
DTEND;TZID=America/New_York:20231012T110000
DTSTAMP:20230804T192657Z
CREATED:20230804T192657Z
LAST-MODIFIED:20230804T192657Z
UID:10000626-1697108400-1697108400@liferaftgroup.org
SUMMARY:Understanding GIST & Desmoid Tumors
DESCRIPTION:The Life Raft Group is partnering with Dr. Jonathan Trent and Dr. Steven Bialick of Sylvester Comprehensive Cancer Center to present “Understanding GIST and Desmoids” for the GIST/Desmoid community on October 12th\, 2023 at 11AM ET. During this virtual presentation\, Dr. Trent and Dr. Bialick will discuss GIST and desmoid tumors to keep pace with the ever-growing body of knowledge about these disease groups\, and the development of new tools and strategies to support this patient and caregiver community. A Q&A session will follow the presentations. \nREGISTERAbout Our Presenters\nDr. Jonathan Trent\nSylvester Comprehensive Cancer Center \nJonathan C. Trent\, MD\, PhD is currently the Associate Director for Clinical Research\, the Director of the Bone and Soft-tissue Sarcoma Group at the Sylvester Comprehensive Cancer Center. Dr. Trent’s interests are in the clinical and translational research of sarcomas\, direct care of sarcoma patients\, and education about sarcoma. \n\nDr. Steven Bialick\nSylvester Comprehensive Cancer Center \nSteven Bialick\, DO\, MS is a recent graduate of the hematology/oncology fellowship program at the University of Miami/Jackson Memorial Hospital. He is a medical oncologist specializing in the care of patients with sarcoma and gastrointestinal malignancies at the Sylvester Comprehensive Cancer Center in South Florida. Dr. Bialick has a particular clinical research interest in connective tissue cancers and the role of circulating tumor DNA in solid tumor oncology. \n\nThank you to the sponsor of this webinar:
URL:https://liferaftgroup.org/event/understanding-gist-desmoid-tumors/
LOCATION:NJ
CATEGORIES:Events,Webcast
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231017T180000
DTEND;TZID=America/New_York:20231017T193000
DTSTAMP:20260605T133728Z
CREATED:20230727T134306Z
LAST-MODIFIED:20260605T133728Z
UID:10000614-1697565600-1697571000@liferaftgroup.org
SUMMARY:Virtual GIST Patient Support Group
DESCRIPTION:The Patient Support Group meets via Zoom on the first and third Tuesday of each month from 6:00 PM – 7:30 PM ET (NYC Time). \nWe will start each group with a “Round Robin” in which anyone who feels like updating the group on how they are doing/feeling can do so. There is no pressure to speak if you prefer to simply listen. Once we complete our updates\, the group will have the opportunity for organic conversation to develop in relation to our emotional experiences around GIST\, and other challenges that we may be experiencing as a community. \nIn order to be able to moderate a flowing discussion\, the group will be capped at 15 people each month. The first 15 people into the Zoom waiting room will participate. Keep in mind that since the group is now open\, you don’t necessarily have to attend each month to participate. \nIf you wish to attend\, please email supportgroups@liferaftgroup.org
URL:https://liferaftgroup.org/event/virtual-gist-patient-support-group-third/2023-10-17/
LOCATION:NJ
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/01/GISTer-Support-Group-2022-1.png
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231019T180000
DTEND;TZID=America/New_York:20231019T230000
DTSTAMP:20231012T154306Z
CREATED:20230814T200826Z
LAST-MODIFIED:20231012T154306Z
UID:10000628-1697738400-1697756400@liferaftgroup.org
SUMMARY:Night to Fight Cancer 2023
DESCRIPTION:10.19.23 NYC\nThis year’s Night to Fight Cancer (Oct. 19 at 6pm) marks the 20th Anniversary of this beloved fundraising event created by past LRG Board President Jerry Cudzil.\nSave the date for our 20th annual event of high-stakes philanthropy & heart-pounding action at the Night to Fight Cancer!\nJoin the LRG team for food\, fun & action! \nDoors open at 6pm – Event starts at 7pm \nVIEW DETAILS & REGISTERFor more information on this event and sponsorship opportunities\, please contact Diana Nieves\, Chief Development & Involvement Officer\, at dnieves@liferaftgroup.org \nTHANK YOU TO OUR SPONSORS!
URL:https://liferaftgroup.org/event/night-to-fight-cancer-2023/
LOCATION:Midtown Loft & Terrace\, 267 5th Avenue\, New York\, NY\, 10016\, United States
CATEGORIES:Events,Fundraising
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2023/08/ntfc-2023-ALT-event-web.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231028T083000
DTEND;TZID=America/New_York:20231028T141500
DTSTAMP:20240216T204214Z
CREATED:20230314T192629Z
LAST-MODIFIED:20240216T204214Z
UID:10000489-1698481800-1698502500@liferaftgroup.org
SUMMARY:GIST Day of Learning - Colorado
DESCRIPTION:GDOL Denver (Aurora)\, Colorado is happening on October 28th\, 2023! \nREGISTERGDOL Denver (Aurora)\, Colorado is happening on October 28th\, 2023!\nClick image for a PDF of agenda: \n \nWhat is a GDOL?\nA GDOL is a GIST Day of Learning. This is a free one day event to help patients and caregivers learn more about this rare cancer\, find support\, and enhance their knowledge base to help them navigate their cancer journey. \nThe mission of the Life Raft Group is to enhance survival and quality of life for people living with GIST through patient-powered research\, education and empowerment\, and global advocacy efforts. The LRG vision is to champion patient-powered science and drastically increase long-term survivorship for all cancer patients. To accomplish this\, we rely on four key pillars:\n– Leverage the patient perspective to drive innovative solutions in cancer research\n– Educate and empower patients to take a larger role in their care\n– Accelerate research outcomes through collaborative efforts\n– Increase access to effective treatments worldwide \nThank you to our 2023 GDOL Sponsors!\n \n 
URL:https://liferaftgroup.org/event/gist-day-of-learning-colorado-2023/
LOCATION:Anschutz Health and Sciences Building\, Room 2007\, 1890 N Revere Ct.\, Aurora\, 80045\, United States
CATEGORIES:Education,Events
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Denver:20231028T180000
DTEND;TZID=America/Denver:20231028T210000
DTSTAMP:20231024T153118Z
CREATED:20230814T184327Z
LAST-MODIFIED:20231024T153118Z
UID:10000627-1698516000-1698526800@liferaftgroup.org
SUMMARY:Cooking to Fight Cancer 2023
DESCRIPTION:THIS EVENT IS SOLD OUT!\nTo get on Waitlist – email dnieves@liferaftgroup.org\nOctober 28\, 2023 – 6pm-9pm\nCan’t attend but would like to donate to John’s fundraiser?\n\n\nThank you to our event sponsors:\n \nand our generous anonymous sponsors as well.\nEVENT DESCRIPTION – Join us for a culinary journey that not only tantalizes your taste buds but raises funds to fight GIST! The “Cooking to Fight Cancer” fundraising event will be hosted by GIST Mentor & Board Member John Abrams (READ JOHN’S STORY). This unique gastronomic experience promises to be an unforgettable evening filled with delectable dishes and heartfelt camaraderie\, all while making a meaningful impact in the battle against cancer. As an ardent advocate for cancer research and support\, John Abrams & Uncorked Kitchen haver curated an exquisite menu featuring a fusion of flavors. From mouthwatering appetizers to sumptuous main courses and heavenly desserts\, every bite will contribute to the fight against this formidable disease. \nGather with John & friends to savor delicious cuisine\, share inspiring stories\, and collectively make a difference. Let’s cook up hope for a cancer-free future. RSVP now and mark your calendars for an event that promises to be both gratifying and uplifting! \nEVENT VENUE –\n \n\nThis amazing cooking class and meal will be facilitated by the talented staff at Uncorked Kitchen\, 8171 South Chester Street #Ste A Centennial\, CO. At this Uncorked Kitchen event\, you’ll learn the finer arts of the foodie “trifecta:” one part student\, one part cook\, and one part diner. Every guest gets their hands dirty with every aspect of cooking\, from honing & refining knife skills\, prepping & firing proteins and whipping up pastry chef-level desserts. (Lets channel your inner celebrity chef!) Everyone leaves with a stronger refined palate—tasting throughout the event and learning about the unique spices and flavors that go into each menu. \nYou’ll be introduced to exciting ingredients from the everyday to the exotic\, awakening your mind to a whole new way to experience & eat food. Everything is yours to experience from the food to the high-end kitchen equipment you’ll use during the class. You’ll cook and eat in a space that feels like your (gourmet) friend’s home. And you’ll be raising funds to further GIST research! \nAnd questions on attending this event or sponsoring the event?\nEmail Diana Nieves\, Chief Development & Involvement Officer at dnieves@liferaftgroup.org
URL:https://liferaftgroup.org/event/cooking-to-fight-cancer-2023/
LOCATION:Uncorked Kitchen\, 8171 South Chester Street #Ste A\, Centennial\, CO\, 80112\, United States
CATEGORIES:Events,Fundraising
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2023/08/ctfc-2023-CC-banner.png
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
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