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X-WR-CALNAME:The Life Raft Group
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X-WR-CALDESC:Events for The Life Raft Group
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DTSTART;TZID=America/New_York:20240501T130000
DTEND;TZID=America/New_York:20240501T140000
DTSTAMP:20240614T133545Z
CREATED:20230727T134933Z
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UID:10000639-1714568400-1714572000@liferaftgroup.org
SUMMARY:Virtual GIST Caregiver Support Group
DESCRIPTION:Monthly Virtual Support Group for GIST Caregivers\nHeld on the first Wednesday of the month \nLRG hosts a monthly virtual support group for the caregivers. We will share our stories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling during this journey as a caregiver. The group will be a safe space not only to feel supported by your fellow caregivers\, but also a place to share our own coping mechanisms\, concerns\, successes and trials. All information shared will be kept confidential. \nContact Brian Morello to join: bmorello@liferaftgroup.org \nAbout the Group Leader:\nMarlene Nei\, GIST Caregiver\nAs an active member of The Life Raft Group\, Marlene advocates for the needs of the caregiver community because she feels they are an underrepresented group. It is her mission to advocate for the entire GIST community making sure they are equipped with the appropriate resources on their GIST journey.
URL:https://liferaftgroup.org/event/virtual-gist-caregiver-support-group-2023/2024-05-01/
LOCATION:NJ
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2023/05/caregiver-sg-2023.jpg
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240507T180000
DTEND;TZID=America/New_York:20240507T193000
DTSTAMP:20240823T152527Z
CREATED:20230727T133611Z
LAST-MODIFIED:20240823T152527Z
UID:10000603-1715104800-1715110200@liferaftgroup.org
SUMMARY:Virtual GIST Patient Support Group
DESCRIPTION:The Patient Support Group meets via Zoom on the first and third Tuesday of each month from 6:00 PM – 7:30 PM ET (NYC Time). \nWe will start each group with a “Round Robin” in which anyone who feels like updating the group on how they are doing/feeling can do so. There is no pressure to speak if you prefer to simply listen. Once we complete our updates\, the group will have the opportunity for organic conversation to develop in relation to our emotional experiences around GIST\, and other challenges that we may be experiencing as a community. \nIn order to be able to moderate a flowing discussion\, the group will be capped at 15 people each month. The first 15 people into the Zoom waiting room will participate. Keep in mind that since the group is now open\, you don’t necessarily have to attend each month to participate. \nContact Brian Morello to join: bmorello@liferaftgroup.org
URL:https://liferaftgroup.org/event/virtual-gist-patient-support-group-2023-first/2024-05-07/
LOCATION:NJ
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/01/GISTer-Support-Group-2022-1.png
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240513T180000
DTEND;TZID=America/New_York:20240513T180000
DTSTAMP:20240528T154748Z
CREATED:20240103T160444Z
LAST-MODIFIED:20240528T154748Z
UID:10000651-1715623200-1715623200@liferaftgroup.org
SUMMARY:Virtual Florida Support Group
DESCRIPTION:Florida Support Group\nZoom\, 2nd Monday of the Month – 6pm ET\nOur moderator is a fellow GISTER/LRG Member from Florida diagnosed with GIST in late 2016.\nIf you wish to attend\, please email Brian Morello: bmorello@liferaftgroup.org for the Zoom link for the meeting.
URL:https://liferaftgroup.org/event/virtual-florida-support-group-2/2024-05-13/
LOCATION:NJ
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2022/09/florida-support-group.jpg
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240518T083000
DTEND;TZID=America/New_York:20240518T150000
DTSTAMP:20240813T205301Z
CREATED:20240202T144246Z
LAST-MODIFIED:20240813T205301Z
UID:10000766-1716021000-1716044400@liferaftgroup.org
SUMMARY:GDOL Chicago 2024
DESCRIPTION:GDOL Chicago is an in-person event and will be held at Northwestern University Feinberg School of Medicine\, Lurie Baldwin Auditorium. \nREGISTERWhat is a GDOL? \nA GDOL is a GIST Day of Learning. This is a free one day event to help patients and caregivers learn more about this rare cancer\, find support\, and enhance their knowledge base to help them navigate their cancer journey. \nThe Life Raft Group is committed to enhancing the survival and quality of life for people living with Gastrointestinal Stromal Tumor (GIST)\, and other rare diseases\, through patient-powered research\, education and empowerment\, and global advocacy efforts. Our vision is to empower a future fueled by data\, guiding our journey toward cures for rare diseases. \nIf you have any questions\, please contact Diana Nieves at dnieves@liferaftgroup.org \nClick image for a PDF of the Agenda: \nThank you to our Sponsors!
URL:https://liferaftgroup.org/event/gdol-chicago-2024/
LOCATION:Northwestern University Feinberg School of Medicine\, Lurie Baldwin Auditorium\, 303 East Superior Street\, Chicago\, IL\, United States
CATEGORIES:Education,Events
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
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DTSTART;TZID=America/New_York:20240521T180000
DTEND;TZID=America/New_York:20240521T193000
DTSTAMP:20260605T133728Z
CREATED:20230727T134306Z
LAST-MODIFIED:20260605T133728Z
UID:10000710-1716314400-1716319800@liferaftgroup.org
SUMMARY:Virtual GIST Patient Support Group
DESCRIPTION:The Patient Support Group meets via Zoom on the first and third Tuesday of each month from 6:00 PM – 7:30 PM ET (NYC Time). \nWe will start each group with a “Round Robin” in which anyone who feels like updating the group on how they are doing/feeling can do so. There is no pressure to speak if you prefer to simply listen. Once we complete our updates\, the group will have the opportunity for organic conversation to develop in relation to our emotional experiences around GIST\, and other challenges that we may be experiencing as a community. \nIn order to be able to moderate a flowing discussion\, the group will be capped at 15 people each month. The first 15 people into the Zoom waiting room will participate. Keep in mind that since the group is now open\, you don’t necessarily have to attend each month to participate. \nIf you wish to attend\, please email supportgroups@liferaftgroup.org
URL:https://liferaftgroup.org/event/virtual-gist-patient-support-group-third/2024-05-21/
LOCATION:NJ
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/01/GISTer-Support-Group-2022-1.png
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240522T110000
DTEND;TZID=America/New_York:20240522T110000
DTSTAMP:20240423T174622Z
CREATED:20240422T181945Z
LAST-MODIFIED:20240423T174622Z
UID:10000772-1716375600-1716375600@liferaftgroup.org
SUMMARY:Demystifying Clinical Trials
DESCRIPTION:Insights from Experts and Participants\nJoin us May 22nd at 11am ET for an informative webinar presented by Dr. Candace Haddox of Dana-Farber Cancer Institute offering invaluable insights into the world of clinical trials in honor of International Clinical Trials Awareness Day. Dr. Haddox will delve into the fundamentals of clinical trials\, discussing their significance\, weighing the pros and cons of participation\, and guiding attendees through the entire process\, from initiation to conclusion. Following Dr. Haddox’s presentation\, there will be an interactive discussion with GISTer Kandee Evans\, currently enrolled in a clinical trial\, offering firsthand experiences and perspectives. A Q&A session will follow the presentation. \nPlease email srothschild@liferaftgroup.org to submit a question ahead of the presentation.  \n\n\n\nPlease note that this webinar is not a substitute for your physician’s guidance and care.\nREGISTERAbout Our Presenters\n \nDr. Candace Haddox \nDana-Farber Cancer Institute \nDr. Haddox is an Instructor in Medicine at Harvard Medical School\, and a medical oncologist and clinical/translational investigator in the Sarcoma Center and the Center for Cancer Therapeutic Innovation at Dana-Farber Cancer Institute. Dr. Haddox’s research focuses on developing novel therapies rooted in sarcoma biology and determining mechanisms of treatment response and resistance\, particularly in gastrointestinal stromal tumors (GIST). \nDr. Haddox received her Bachelor of Science in neurobiology from the University of Miami. She completed a post-baccalaureate research fellowship at the National Institutes of Health and received her Medical Degree from the University of South Florida. Dr. Haddox completed a residency in Internal Medicine at the Mayo Clinic in Rochester\, Minnesota\, and a fellowship in Medical Oncology at Duke University\, where she also served as Chief Fellow. She joined the faculty at Dana-Farber Cancer Institute in 2021\, where she currently sees patients with sarcomas and leads clinical trials in early drug development. \n \nKandee Evans \nGIST Advocate \nWith a career spanning over three decades\, Kandee Evans is a project management veteran who knows how to make things happen. After dedicating 30 years to her profession\, Kandee recently left her job to focus on her health as a GIST survivor and warrior. Not one to back down from a challenge\, she previously advocated fiercely for her oldest son when he was diagnosed with autism at just two years old. Now\, as a devoted wife and mother of two amazing sons\, Kandee continues to take on each day with grace\, courage\, and determination. \nAt the forefront of GIST research\, Kandee is making a difference through participation. She enrolled in a clinical trial with the University of Miami in February 2024\, she is helping test the effects of IDRX-42 under the direction of Dr. Jonathan Trent.  Her selfless commitment will provide key insights and move science one step closer to finding a treatment for this devastating disease. Kandee’s courage underscores the power of individuals to advance medical progress through clinical trial involvement. \nThank you to our Webinar Sponsors!
URL:https://liferaftgroup.org/event/demystifying-clinical-trials-insights-from-experts-and-participants/
LOCATION:NJ
CATEGORIES:Education,Events,Webcast
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
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