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X-ORIGINAL-URL:https://liferaftgroup.org
X-WR-CALDESC:Events for The Life Raft Group
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DTSTART;TZID=America/New_York:20240903T180000
DTEND;TZID=America/New_York:20240903T193000
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UID:10000607-1725386400-1725391800@liferaftgroup.org
SUMMARY:Virtual GIST Patient Support Group
DESCRIPTION:The Patient Support Group meets via Zoom on the first and third Tuesday of each month from 6:00 PM – 7:30 PM ET (NYC Time). \nWe will start each group with a “Round Robin” in which anyone who feels like updating the group on how they are doing/feeling can do so. There is no pressure to speak if you prefer to simply listen. Once we complete our updates\, the group will have the opportunity for organic conversation to develop in relation to our emotional experiences around GIST\, and other challenges that we may be experiencing as a community. \nIn order to be able to moderate a flowing discussion\, the group will be capped at 15 people each month. The first 15 people into the Zoom waiting room will participate. Keep in mind that since the group is now open\, you don’t necessarily have to attend each month to participate. \nContact Brian Morello to join: bmorello@liferaftgroup.org
URL:https://liferaftgroup.org/event/virtual-gist-patient-support-group-2023-first/2024-09-03/
LOCATION:NJ
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/01/GISTer-Support-Group-2022-1.png
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240904T130000
DTEND;TZID=America/New_York:20240904T140000
DTSTAMP:20240614T133545Z
CREATED:20230727T134933Z
LAST-MODIFIED:20240614T133545Z
UID:10000643-1725454800-1725458400@liferaftgroup.org
SUMMARY:Virtual GIST Caregiver Support Group
DESCRIPTION:Monthly Virtual Support Group for GIST Caregivers\nHeld on the first Wednesday of the month \nLRG hosts a monthly virtual support group for the caregivers. We will share our stories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling during this journey as a caregiver. The group will be a safe space not only to feel supported by your fellow caregivers\, but also a place to share our own coping mechanisms\, concerns\, successes and trials. All information shared will be kept confidential. \nContact Brian Morello to join: bmorello@liferaftgroup.org \nAbout the Group Leader:\nMarlene Nei\, GIST Caregiver\nAs an active member of The Life Raft Group\, Marlene advocates for the needs of the caregiver community because she feels they are an underrepresented group. It is her mission to advocate for the entire GIST community making sure they are equipped with the appropriate resources on their GIST journey.
URL:https://liferaftgroup.org/event/virtual-gist-caregiver-support-group-2023/2024-09-04/
LOCATION:NJ
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2023/05/caregiver-sg-2023.jpg
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240909T120000
DTEND;TZID=America/New_York:20240909T120000
DTSTAMP:20240812T202409Z
CREATED:20240812T202329Z
LAST-MODIFIED:20240812T202409Z
UID:10000788-1725883200-1725883200@liferaftgroup.org
SUMMARY:Locoregional Therapies for Treatment of GIST in the Liver
DESCRIPTION:Interventional radiology is a medical specialty that performs various minimally-invasive procedures to treat cancer and other diseases. The Life Raft Group invites world-renowned interventional radiologist Edward Kim\, MD FSIR of Mount Sinai to present “Locoregional Therapies for Treatment of GIST in the Liver” on September 9th at 12pm ET. During this virtual presentation\, Dr. Kim will describe various locoregional therapies and their appropriate uses\, as well as the role of locoregional therapies and systemic therapy in treating GIST when it metastasizes in the liver. A Q&A portion will follow the presentation. \n\nPlease email srothschild@liferaftgroup.org to submit a question ahead of the presentation.  \n\n\n\nPlease note that this webinar is not a substitute for your physician’s guidance and care.\nREGISTERAbout Our Presenter\n \nDr. Edward Kim\nMount Sinai Medical Center \nEdward Kim\, MD FSIR is Professor of Radiology and Surgery and Director of Interventional Oncology at Mount Sinai Health Systems\, under the Division of Interventional Radiology. He attended Rutgers Medical School and finished his Interventional Radiology training at Mount Sinai.  Dr. Kim is a world-renowned Interventional Radiologist\, who focuses on minimally invasive treatments\, known as locoregional therapies\, for the treatment of liver cancer.  He has authored numerous influential peer reviewed publications and runs multiple prospective clinical trials.  He has been invited to be course director and faculty at numerous meetings throughout the world.  He believes that best patient care is achieved through a multidisciplinary collaboration and helps lead the multidisciplinary tumor board at Mount Sinai\, as well as helped institute multidisciplinary office hours with liver transplant\, hepatology and surgery.  He is a thought leader in liver cancer\, especially with regards to radioembolization\, thermal ablation and chemoembolization\, as well as combination therapies with immune checkpoint inhibitors. \nThank you to our Webinar Sponsors!
URL:https://liferaftgroup.org/event/locoregional-therapies-for-treatment-of-gist-in-the-liver/
LOCATION:NJ
CATEGORIES:Education,Events,Webcast
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240909T180000
DTEND;TZID=America/New_York:20240909T180000
DTSTAMP:20240823T153041Z
CREATED:20240528T154845Z
LAST-MODIFIED:20240823T153041Z
UID:10000655-1725904800-1725904800@liferaftgroup.org
SUMMARY:Virtual Florida Support Group
DESCRIPTION:Florida Support Group\nZoom\, 2nd Monday of the Month – 6pm ET\nOur moderator is a fellow GISTER/LRG Member from Florida diagnosed with GIST in late 2016.\nIf you wish to attend\, please email Brian Morello: bmorello@liferaftgroup.org for the Zoom link for the meeting.
URL:https://liferaftgroup.org/event/virtual-florida-support-group-2-2/2024-09-09/
LOCATION:NJ
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2022/09/florida-support-group.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240914T080000
DTEND;TZID=America/New_York:20240914T080000
DTSTAMP:20240820T182732Z
CREATED:20240715T141924Z
LAST-MODIFIED:20240820T182732Z
UID:10000785-1726300800-1726300800@liferaftgroup.org
SUMMARY:GDOL Ohio 2024
DESCRIPTION:GDOL Ohio is being held in-person at The Ohio State University Wexner Medical Center\, Biomedical Research Tower (BRT)\, Room 115\, Columbus\, OH 43210. \nREGISTRATIONWhat is a GDOL? \nA GDOL is a GIST Day of Learning. This is a free one day event to help patients and caregivers learn more about this rare cancer\, find support\, and enhance their knowledge base to help them navigate their cancer journey. \nThe Life Raft Group is committed to enhancing the survival and quality of life for people living with Gastrointestinal Stromal Tumor (GIST)\, and other rare diseases\, through patient-powered research\, education and empowerment\, and global advocacy efforts. Our vision is to empower a future fueled by data\, guiding our journey toward cures for rare diseases. \nIf you have any questions\, please contact Brian Morello at bmorello@liferaftgroup.org \nClick image for a PDF of the Agenda: \n\nThank you to our Sponsors!
URL:https://liferaftgroup.org/event/gdol-ohio-2024/
LOCATION:The Ohio State University Wexner Medical Center\, Biomedical Research Tower (BRT)\, 460 W 12th Ave\, Columbus\, OH\, 43210\, United States
CATEGORIES:Education,Events
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240917T180000
DTEND;TZID=America/New_York:20240917T193000
DTSTAMP:20260605T133728Z
CREATED:20230727T134306Z
LAST-MODIFIED:20260605T133728Z
UID:10000714-1726596000-1726601400@liferaftgroup.org
SUMMARY:Virtual GIST Patient Support Group
DESCRIPTION:The Patient Support Group meets via Zoom on the first and third Tuesday of each month from 6:00 PM – 7:30 PM ET (NYC Time). \nWe will start each group with a “Round Robin” in which anyone who feels like updating the group on how they are doing/feeling can do so. There is no pressure to speak if you prefer to simply listen. Once we complete our updates\, the group will have the opportunity for organic conversation to develop in relation to our emotional experiences around GIST\, and other challenges that we may be experiencing as a community. \nIn order to be able to moderate a flowing discussion\, the group will be capped at 15 people each month. The first 15 people into the Zoom waiting room will participate. Keep in mind that since the group is now open\, you don’t necessarily have to attend each month to participate. \nIf you wish to attend\, please email supportgroups@liferaftgroup.org
URL:https://liferaftgroup.org/event/virtual-gist-patient-support-group-third/2024-09-17/
LOCATION:NJ
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/01/GISTer-Support-Group-2022-1.png
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20240923T180000
DTEND;TZID=America/Chicago:20240923T180000
DTSTAMP:20260605T133820Z
CREATED:20240823T175323Z
LAST-MODIFIED:20260605T133820Z
UID:10000848-1727114400-1727114400@liferaftgroup.org
SUMMARY:Virtual Texas Support Group
DESCRIPTION:Texas Support Group Zoom meeting on the 4th Monday of the month @ 6PM Central Time. Jackie Vanderpol will host this zoom meeting.\nIf you wish to attend\, please email supportgroups@liferaftgroup.org for the Zoom link for the meeting.
URL:https://liferaftgroup.org/event/virtual-texas-support-group/2024-09-23/
LOCATION:NJ
CATEGORIES:Events,Support Group
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2024/08/texas-support-group.jpg
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240928T090000
DTEND;TZID=America/New_York:20240928T170000
DTSTAMP:20240829T183610Z
CREATED:20240829T183610Z
LAST-MODIFIED:20240829T183610Z
UID:10000791-1727514000-1727542800@liferaftgroup.org
SUMMARY:GDOL Calgary
DESCRIPTION:REGISTRATION\nPlease join us for a full day GIST Day of Learning event in Calgary\, Alberta on Saturday September 28\, 2024.\nLocation:  Hotel Alt East Village – 635 Confluence Way SE\, Calgary\, Canada\nRefreshments and Lunch will be provided along with a post conference networking event!\nPatients\, caregivers and family are all welcome at this FREE event. \nSpeakers:\nDr. Xiolan Feng Medical Oncologist\, Tom Baker Cancer Centre. Dr. Feng will be speaking about mutational analysis.\nDr. Andrew Blakely will joining us from the NIH National Cancer Institue to talk about his Surgical Trial.\nDr. Herbert Loong will be presenting on current clinical trials including the Cogent Biosciences PEAK Trial.\nGIST 101 to be presented by David Josephy.\nLiving with the emotional impact of GIST group session with Kristin Austman.\nPatient Panel led by Hazel McLeod.
URL:https://liferaftgroup.org/event/gdol-calgary/
LOCATION:NJ
CATEGORIES:Education,Events
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2024/08/GDOL-Calgary-Featured-Image.jpg
ORGANIZER;CN="GIST Sarcoma Life Raft Group Canada":MAILTO:yvonne.nunnaro@liferaftgroup.ca
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