BEGIN:VCALENDAR
VERSION:2.0
PRODID:-//The Life Raft Group - ECPv6.17.3//NONSGML v1.0//EN
CALSCALE:GREGORIAN
METHOD:PUBLISH
X-WR-CALNAME:The Life Raft Group
X-ORIGINAL-URL:https://liferaftgroup.org
X-WR-CALDESC:Events for The Life Raft Group
REFRESH-INTERVAL;VALUE=DURATION:PT1H
X-Robots-Tag:noindex
X-PUBLISHED-TTL:PT1H
BEGIN:VTIMEZONE
TZID:America/New_York
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20230312T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20231105T060000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20240310T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20241103T060000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20250309T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20251102T060000
END:STANDARD
END:VTIMEZONE
BEGIN:VTIMEZONE
TZID:America/Chicago
BEGIN:DAYLIGHT
TZOFFSETFROM:-0600
TZOFFSETTO:-0500
TZNAME:CDT
DTSTART:20230312T080000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0500
TZOFFSETTO:-0600
TZNAME:CST
DTSTART:20231105T070000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0600
TZOFFSETTO:-0500
TZNAME:CDT
DTSTART:20240310T080000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0500
TZOFFSETTO:-0600
TZNAME:CST
DTSTART:20241103T070000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0600
TZOFFSETTO:-0500
TZNAME:CDT
DTSTART:20250309T080000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0500
TZOFFSETTO:-0600
TZNAME:CST
DTSTART:20251102T070000
END:STANDARD
END:VTIMEZONE
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241001T180000
DTEND;TZID=America/New_York:20241001T193000
DTSTAMP:20240823T152527Z
CREATED:20230727T133611Z
LAST-MODIFIED:20240823T152527Z
UID:10000608-1727805600-1727811000@liferaftgroup.org
SUMMARY:Virtual GIST Patient Support Group
DESCRIPTION:The Patient Support Group meets via Zoom on the first and third Tuesday of each month from 6:00 PM – 7:30 PM ET (NYC Time). \nWe will start each group with a “Round Robin” in which anyone who feels like updating the group on how they are doing/feeling can do so. There is no pressure to speak if you prefer to simply listen. Once we complete our updates\, the group will have the opportunity for organic conversation to develop in relation to our emotional experiences around GIST\, and other challenges that we may be experiencing as a community. \nIn order to be able to moderate a flowing discussion\, the group will be capped at 15 people each month. The first 15 people into the Zoom waiting room will participate. Keep in mind that since the group is now open\, you don’t necessarily have to attend each month to participate. \nContact Brian Morello to join: bmorello@liferaftgroup.org
URL:https://liferaftgroup.org/event/virtual-gist-patient-support-group-2023-first/2024-10-01/
LOCATION:NJ
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/01/GISTer-Support-Group-2022-1.png
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241002T130000
DTEND;TZID=America/New_York:20241002T140000
DTSTAMP:20240614T133545Z
CREATED:20230727T134933Z
LAST-MODIFIED:20240614T133545Z
UID:10000644-1727874000-1727877600@liferaftgroup.org
SUMMARY:Virtual GIST Caregiver Support Group
DESCRIPTION:Monthly Virtual Support Group for GIST Caregivers\nHeld on the first Wednesday of the month \nLRG hosts a monthly virtual support group for the caregivers. We will share our stories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling during this journey as a caregiver. The group will be a safe space not only to feel supported by your fellow caregivers\, but also a place to share our own coping mechanisms\, concerns\, successes and trials. All information shared will be kept confidential. \nContact Brian Morello to join: bmorello@liferaftgroup.org \nAbout the Group Leader:\nMarlene Nei\, GIST Caregiver\nAs an active member of The Life Raft Group\, Marlene advocates for the needs of the caregiver community because she feels they are an underrepresented group. It is her mission to advocate for the entire GIST community making sure they are equipped with the appropriate resources on their GIST journey.
URL:https://liferaftgroup.org/event/virtual-gist-caregiver-support-group-2023/2024-10-02/
LOCATION:NJ
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2023/05/caregiver-sg-2023.jpg
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241007T130000
DTEND;TZID=America/New_York:20241007T130000
DTSTAMP:20240904T152915Z
CREATED:20240828T192519Z
LAST-MODIFIED:20240904T152915Z
UID:10000790-1728306000-1728306000@liferaftgroup.org
SUMMARY:IDRX-42: Trial Design & Emerging Data from StrateGIST 1
DESCRIPTION:The Life Raft Group invites you to “IDRX-42: Trial Design and Emerging Data from the StrateGIST 1 Study”\, on October 7th\, 2024 at 1PM ET. During this educational webinar\, Suzanne George\, MD of the Dana-Farber Cancer Institute will review emerging data from the first-in-human StrateGIST 1 trial of IDRX-42 in patients with advanced GIST. Dr. George will also discuss the design and rationale for the ongoing Phase 1b portion of the trial\, including first- and second-line cohorts. A Q&A session will follow the presentation. \n\nPlease email srothschild@liferaftgroup.org to submit a question ahead of the presentation.  \n\n\n\nPlease note that this webinar is not a substitute for your physician’s guidance and care.\nREGISTERAbout Our Presenter\n \nDr. Suzanne George\nSarcoma Center at Dana-Farber Cancer Institute \nSuzanne George\, MD is the Division Chief of the Sarcoma Center at Dana-Farber Cancer Institute who leads a team focused on research and clinical care of patients with sarcomas and GIST. She has an extensive research experience in clinical trials and drug development and cares for patient from across New England\, the US and internationally. \nThank you to our Webinar Sponsor!
URL:https://liferaftgroup.org/event/idrx-42-trial-design-and-emerging-data-from-the-strategist1-study/
LOCATION:NJ
CATEGORIES:Education,Events,Webcast
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241014T180000
DTEND;TZID=America/New_York:20241014T180000
DTSTAMP:20240823T153041Z
CREATED:20240528T154845Z
LAST-MODIFIED:20240823T153041Z
UID:10000656-1728928800-1728928800@liferaftgroup.org
SUMMARY:Virtual Florida Support Group
DESCRIPTION:Florida Support Group\nZoom\, 2nd Monday of the Month – 6pm ET\nOur moderator is a fellow GISTER/LRG Member from Florida diagnosed with GIST in late 2016.\nIf you wish to attend\, please email Brian Morello: bmorello@liferaftgroup.org for the Zoom link for the meeting.
URL:https://liferaftgroup.org/event/virtual-florida-support-group-2-2/2024-10-14/
LOCATION:NJ
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2022/09/florida-support-group.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241015T180000
DTEND;TZID=America/New_York:20241015T193000
DTSTAMP:20260605T133728Z
CREATED:20230727T134306Z
LAST-MODIFIED:20260605T133728Z
UID:10000715-1729015200-1729020600@liferaftgroup.org
SUMMARY:Virtual GIST Patient Support Group
DESCRIPTION:The Patient Support Group meets via Zoom on the first and third Tuesday of each month from 6:00 PM – 7:30 PM ET (NYC Time). \nWe will start each group with a “Round Robin” in which anyone who feels like updating the group on how they are doing/feeling can do so. There is no pressure to speak if you prefer to simply listen. Once we complete our updates\, the group will have the opportunity for organic conversation to develop in relation to our emotional experiences around GIST\, and other challenges that we may be experiencing as a community. \nIn order to be able to moderate a flowing discussion\, the group will be capped at 15 people each month. The first 15 people into the Zoom waiting room will participate. Keep in mind that since the group is now open\, you don’t necessarily have to attend each month to participate. \nIf you wish to attend\, please email supportgroups@liferaftgroup.org
URL:https://liferaftgroup.org/event/virtual-gist-patient-support-group-third/2024-10-15/
LOCATION:NJ
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/01/GISTer-Support-Group-2022-1.png
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20241028T180000
DTEND;TZID=America/Chicago:20241028T180000
DTSTAMP:20260605T133820Z
CREATED:20240823T175323Z
LAST-MODIFIED:20260605T133820Z
UID:10000849-1730138400-1730138400@liferaftgroup.org
SUMMARY:Virtual Texas Support Group
DESCRIPTION:Texas Support Group Zoom meeting on the 4th Monday of the month @ 6PM Central Time. Jackie Vanderpol will host this zoom meeting.\nIf you wish to attend\, please email supportgroups@liferaftgroup.org for the Zoom link for the meeting.
URL:https://liferaftgroup.org/event/virtual-texas-support-group/2024-10-28/
LOCATION:NJ
CATEGORIES:Events,Support Group
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2024/08/texas-support-group.jpg
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20241030
DTEND;VALUE=DATE:20241031
DTSTAMP:20241028T131216Z
CREATED:20240917T172132Z
LAST-MODIFIED:20241028T131216Z
UID:10000792-1730246400-1730332799@liferaftgroup.org
SUMMARY:GDOL Miami Virtual
DESCRIPTION:GDOL Miami is being held virtually with the GIST experts at Sylvester Comprehensive Cancer Center. \nREGISTERWhat is a GDOL? \nA GDOL is a GIST Day of Learning. This is a free one day event to help patients and caregivers learn more about this rare cancer\, find support\, and enhance their knowledge base to help them navigate their cancer journey. \nThe Life Raft Group is committed to enhancing the survival and quality of life for people living with Gastrointestinal Stromal Tumor (GIST)\, and other rare diseases\, through patient-powered research\, education and empowerment\, and global advocacy efforts. Our vision is to empower a future fueled by data\, guiding our journey toward cures for rare diseases. \nIf you have any questions\, please contact Brian Morello at bmorello@liferaftgroup.org \nClick Image for a PDF of the Agenda\n \nThank you to our Sponsors!
URL:https://liferaftgroup.org/event/gdol-miami-2/
LOCATION:NJ
CATEGORIES:Education,Events
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
END:VCALENDAR