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X-WR-CALDESC:Events for The Life Raft Group
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DTSTART;TZID=America/New_York:20180929T090000
DTEND;TZID=America/New_York:20180929T144500
DTSTAMP:20260403T182155
CREATED:20180918T160321Z
LAST-MODIFIED:20180918T171752Z
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SUMMARY:Sarcoma & GIST: Education Symposium
DESCRIPTION:This free educational event is open to the public and will feature presentations from experts from Dana-Farber and Brigham and Women’s Hospital. They will share updates on research advances and emerging therapies for GIST and sarcomas\, as well as information on complementary therapies. Each presentation will include time for audience questions. There will also be small group discussions with expert sarcoma medical oncologists during the lunch hour. \nPresentations will include: • Radiology • Surgery • Radiation • Clinical trials/emerging therapies • Panel on complementary therapies and other Zakim Center services For directions\, visit www.dana-farber.org/directions \nRegister online at https://sarcoma.eventbrite.com. To learn more about the conference\, visit www.dana-farber.org/sarcoma and click on the link for the Sarcoma and GIST patient event. \nIf you have additional questions\, please call Paige Tobie at 617-632-5368
URL:https://liferaftgroup.org/event/sarcoma-and-gist-education-symposium/
LOCATION:Dana-Farber Cancer Institute\, 450 Brookline Ave.\, Boston\, MA\, United States
CATEGORIES:Education,Events
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20180905T120000
DTEND;TZID=America/New_York:20180905T130000
DTSTAMP:20260403T182155
CREATED:20180827T180349Z
LAST-MODIFIED:20190319T185338Z
UID:10000007-1536148800-1536152400@liferaftgroup.org
SUMMARY:LRG Webcast: What is SDH...
DESCRIPTION:How Is It Related to Cancer\, and What Can Be Done About It?\nSDH is a protein that is based in the mitochondria. Its loss causes a major energy and metabolic crisis. Despite this\, some types of cells can ‘benefit’ from the loss of SDH and continue to grow uncontrollably and generate tumors. \nIdentifying metabolic enzymes as molecular drug targets that are uniquely essential for the survival of SDH-deficient cells is a key first step in the development of new therapies for SDH-deficient tumors. Some of these druggable enzymatic targets are being actively pursued. \nDr. Eyal Gottlieb will break down the biology of cells and discuss metabolism and growth during cancer formation. \nThis webcast is geared for patients and families with SDH-deficient GIST and other tumors. \nThere will be at 15 min Q&A at the end of his presentation. \nView the Webcast\n  \nTo submit questions that could potentially be addressed during the webcast\, please submit to Sara Rothschild at srothschild@liferaftgroup.org by September 1. \nFor some background on cancer metabolism\, review this document. \nPresenter\n\n\n\nDr. Eyal Gottlieb\nLaura and Isaac Perlmutter Chair of Cancer Research\, Faculty of Medicine\nTechnion – Israel Institute of Technology\nHaifa\, Israel \n\n\n\nTechnical Tips to Join Meeting:\n\nThis is a web only meeting\, accessed only by your internet connection. Participants are encouraged to use the web link automatically provided after registration and to use computer speakers (and/or headsets if available) to hear the audio portion of the meeting. Please log in at least ten minutes prior to the start of the webinar.\nPlease ensure you have an updated version of Adobe Flash Player (Google Chrome has Flash built in).\nIf you are using a mobile device or tablet\, in order to view and hear the conference\, download the ReadyTalk App from your App store.
URL:https://liferaftgroup.org/event/webcast-what-is-sdh/
CATEGORIES:Events,Webcast
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ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
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DTSTART;TZID=America/New_York:20180715T070000
DTEND;TZID=America/New_York:20180715T203000
DTSTAMP:20260403T182155
CREATED:20180712T142144Z
LAST-MODIFIED:20180712T142709Z
UID:10000013-1531638000-1531686600@liferaftgroup.org
SUMMARY:GIST Do It - Walk to Find a Cure
DESCRIPTION:GIST Do It. invites participants of all ages to join us in the estimated three-mile walk. Refreshments\, giveaways and guest speakers will be a part of the event. Join us for the fun and the fundraising\, as we walk one step closer to finding a cure for this rare disease called GIST. \nSunday\, July 15th\, 2018 \n7:00 am – 8:30 am \nMargaret Pace Park \nMiami\, Florida \n$25 per walker \nIf you are unable to participate in person\, you can register to become a virtual participant. \nWhen you complete your registration it will lead you to create/join a fundraising team. \n\nRegister for the GIST Do It Walk\n\nIf you have any questions or concerns please email Jessica Nowak jnowak@liferaftgroup.org
URL:https://liferaftgroup.org/event/gist-do-it/
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20180713
DTEND;VALUE=DATE:20180714
DTSTAMP:20260403T182155
CREATED:20180523T171436Z
LAST-MODIFIED:20180612T152557Z
UID:10000009-1531440000-1531472400@liferaftgroup.org
SUMMARY:Life Fest 2018
DESCRIPTION:RegisterBook A Hotel\nLife Fest is a unique event where hundreds of patients and caregivers come together for a weekend to interact with each other and the medical and scientific communities that serve them. Faced with a rare form of cancer\, GIST patients have a great need for information about this disease\, particularly as the science evolves and our understanding reveals a complex set of subtypes of GIST\, each responding differently to available treatments. Each year brings a wealth of new information\, and patients are eager to learn about the latest treatments. \nLife Fest workshops provide patients with emerging medical information\, and they come away with a deeper knowledge of the disease\, treatments and side effect management. They find hope in knowing the scientific community is working toward a cure\, and hope is such a vital asset as they struggle day by day for survival. Life Fest Agenda 2018 \nThe Life Raft Group emerged in recognition of the tremendous need for support in the GIST community. Life Fest 2018 will provide patients and caregivers with that support. Coming together with fellow patients from all walks of life from around the world is a meaningful and powerful experience. \nIn addition to our traditional educational workshops\, Life Fest 2018 will feature scientific presentations highlighting the newest research and the latest treatments. Additionally\, other disease advocacy groups will be invited to present the work of their organizations\, and share lessons learned. \nScholarship/financial assistance will be available to those who can’t afford to participate in Life Fest. The intention of the scholarship/financial aid fund is to make Life Fest available to individual patients\, family members and/or caregivers\, regardless of their financial situation. \nDate / Time\nFriday July 13th – 3-5PM\nSaturday July 14th – 7:30-5PM\nSunday\, July 15th – 8:45AM-noon \nLocation\nHilton Miami Downtown\n1601 Biscayne Boulevard\nMiami\, FL 33132
URL:https://liferaftgroup.org/event/life-fest-2018/
LOCATION:Hilton Miami Downtown\, 1601 Biscayne Boulevard\, Miami\, FL\, 33132\, United States
CATEGORIES:Education
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20180526T103000
DTEND;TZID=America/New_York:20180526T150000
DTSTAMP:20260403T182155
CREATED:20180523T164807Z
LAST-MODIFIED:20180523T164807Z
UID:10000010-1527330600-1527346800@liferaftgroup.org
SUMMARY:Halifax GDOL 2018
DESCRIPTION:Life Raft Group Canada is pleased to announce that the GIST Day of Learning is coming to the Maritimes. The Day of Learning is a free one-day conference that provides education and support for people who have GIST\, their caregivers\, healthcare teams and anyone who wishes to learn more about GIST. The Day of Learning will cover many aspects of living with and understanding GIST as well as the new GIST therapies being developed. It will also be a great opportunity for you to connect with other GIST patients\, caregivers and the presenters. \nRefreshments and Lunch will be served. \nDavid Josephy is a Professor of Molecular and Cellular Biology at the University of Guelph\, where he has taught for more than 30 years. He is a GIST caregiver and has been President of GIST Sarcoma Life Raft Group Canada (LRGC) since its inception in 2008. In 2010\, David spent a sabbatical term working in the laboratory of Dr.Jonathan Fletcher\, a leading GIST researcher at Brigham and Women’s Hospital in Boston. David is a member of the Science Team of The Life Raft Group (USA) and collaborates with GIST patient support groups around the world. His research interests are in the field of Molecular Toxicology. He is particularly interested in the scientific basis for development of new small-molecule drugs for GIST. \n\nRegister\nCall: 855-574-4475\nEmail: malcolm.sutherland@liferaftgroup.ca
URL:https://liferaftgroup.org/event/halifax-gdol-2018/
LOCATION:Best Western Chocolate Lake Hotel 250 St Margaret Bay Road – Halifax\, 250 St Margaret Bay Road\, Halifax\, NS\, Canada
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20120913T180000
DTEND;TZID=America/New_York:20120914T000000
DTSTAMP:20260403T182155
CREATED:20120807T233041Z
LAST-MODIFIED:20220912T203124Z
UID:10000011-1347559200-1347580800@liferaftgroup.org
SUMMARY:The LRG Annual Poker Tournament
DESCRIPTION:The 9th Annual LRG Poker Tournament will be held on September 3rd at Midtown Lofts in Manhattan. Players will have a chance to win a grand prize worth $10\,000 for a seat in the World Series of Poker. The cost to play is $500 and the cost to watch is $100 per person.
URL:https://liferaftgroup.org/event/the-lrg-annual-poker-tournament/
LOCATION:Midtown Loft & Terrace\, 267 5th Avenue\, New York\, NY\, 10016\, United States
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