The Life Raft Group

Michigan GDOL 2018
2018-10-27 08:00 - 15:00 (America/New_York) | University of Michigan, Michigan League, 911 North University Avenue, 2nd Floor, Hussey Room, Ann Arbor, MI, 48109-1265, United States
Description
GIST Days of Learning are one-day programs that provide education and support for people who have GIST and their caregivers, and are free to all who attend.
See event recap here

Agenda subject to change
Agenda

8:15am – 9:15am
Registration

9:15am – 9:30am
Introduction and Brief History of GIST
Lawrence Baker – Medical Oncologist

9:30am – 10:00am
The Role of the Cancer Surgeon in Diagnosis and Therapy
Will Burns – Surgical Oncologist

10:00am – 10:30am
The Role of the Medical Oncologist in Diagnosis and Therapy
Rashmi Chugh – Medical Oncologist

10:30am – 10:45am
Break

10:45am – 11:45am
Drug Interactions and other FAQ and Side Effect Management
Rachelle McDivitt – Clinical Pharmacist
Stephanie Taylor, RN, Oncology

11:45am – 1:00pm
Lunch
Roundtables & Patient Stories led by Physician Assistants and Nurse Practitioners

1pm – 1:30pm
New Therapies on the Horizon
Scott Schuetze – Medical Oncologist

1:30pm – 2:00pm
GIST Patients as Cancer Survivors
Lawrence Baker

Q&A to follow

Sarcoma & GIST: Education Symposium
2018-09-29 09:00 - 14:45 | Dana-Farber Cancer Institute, 450 Brookline Ave., Boston, MA, United States
This free educational event is open to the public and will feature presentations from experts from Dana-Farber and Brigham and Women’s Hospital. They will share updates on research advances and emerging therapies for GIST and sarcomas, as well as information on complementary therapies. Each presentation will include time for audience questions. There will also be small group discussions with expert sarcoma medical oncologists during the lunch hour.
Presentations will include: • Radiology • Surgery • Radiation • Clinical trials/emerging therapies • Panel on complementary therapies and other Zakim Center services For directions, visit www.dana-farber.org/directions
Register online at https://sarcoma.eventbrite.com. To learn more about the conference, visit www.dana-farber.org/sarcoma and click on the link for the Sarcoma and GIST patient event.
If you have additional questions, please call Paige Tobie at 617-632-5368

LRG Webcast: What is SDH...
2018-09-05 12:00 - 13:00
How Is It Related to Cancer, and What Can Be Done About It?
SDH is a protein that is based in the mitochondria. Its loss causes a major energy and metabolic crisis. Despite this, some types of cells can ‘benefit’ from the loss of SDH and continue to grow uncontrollably and generate tumors.
Identifying metabolic enzymes as molecular drug targets that are uniquely essential for the survival of SDH-deficient cells is a key first step in the development of new therapies for SDH-deficient tumors. Some of these druggable enzymatic targets are being actively pursued.
Dr. Eyal Gottlieb will break down the biology of cells and discuss metabolism and growth during cancer formation.
This webcast is geared for patients and families with SDH-deficient GIST and other tumors.
There will be at 15 min Q&A at the end of his presentation.
View the Webcast

To submit questions that could potentially be addressed during the webcast, please submit to Sara Rothschild at srothschild@liferaftgroup.org by September 1.
For some background on cancer metabolism, review this document.
Presenter

Dr. Eyal Gottlieb
Laura and Isaac Perlmutter Chair of Cancer Research, Faculty of Medicine
Technion – Israel Institute of Technology
Haifa, Israel

Technical Tips to Join Meeting:

This is a web only meeting, accessed only by your internet connection. Participants are encouraged to use the web link automatically provided after registration and to use computer speakers (and/or headsets if available) to hear the audio portion of the meeting. Please log in at least ten minutes prior to the start of the webinar.
Please ensure you have an updated version of Adobe Flash Player (Google Chrome has Flash built in).
If you are using a mobile device or tablet, in order to view and hear the conference, download the ReadyTalk App from your App store.

GIST Do It - Walk to Find a Cure
2018-07-15 07:00 - 20:30
GIST Do It. invites participants of all ages to join us in the estimated three-mile walk. Refreshments, giveaways and guest speakers will be a part of the event. Join us for the fun and the fundraising, as we walk one step closer to finding a cure for this rare disease called GIST.
Sunday, July 15th, 2018
7:00 am – 8:30 am
Margaret Pace Park
Miami, Florida
$25 per walker
If you are unable to participate in person, you can register to become a virtual participant.
When you complete your registration it will lead you to create/join a fundraising team.

Register for the GIST Do It Walk

If you have any questions or concerns please email Jessica Nowak jnowak@liferaftgroup.org

Life Fest 2018
2018-07-13 | Hilton Miami Downtown, 1601 Biscayne Boulevard, Miami, FL, 33132, United States
RegisterBook A Hotel
Life Fest is a unique event where hundreds of patients and caregivers come together for a weekend to interact with each other and the medical and scientific communities that serve them. Faced with a rare form of cancer, GIST patients have a great need for information about this disease, particularly as the science evolves and our understanding reveals a complex set of subtypes of GIST, each responding differently to available treatments. Each year brings a wealth of new information, and patients are eager to learn about the latest treatments.
Life Fest workshops provide patients with emerging medical information, and they come away with a deeper knowledge of the disease, treatments and side effect management. They find hope in knowing the scientific community is working toward a cure, and hope is such a vital asset as they struggle day by day for survival. Life Fest Agenda 2018
The Life Raft Group emerged in recognition of the tremendous need for support in the GIST community. Life Fest 2018 will provide patients and caregivers with that support. Coming together with fellow patients from all walks of life from around the world is a meaningful and powerful experience.
In addition to our traditional educational workshops, Life Fest 2018 will feature scientific presentations highlighting the newest research and the latest treatments. Additionally, other disease advocacy groups will be invited to present the work of their organizations, and share lessons learned.
Scholarship/financial assistance will be available to those who can’t afford to participate in Life Fest. The intention of the scholarship/financial aid fund is to make Life Fest available to individual patients, family members and/or caregivers, regardless of their financial situation.
Date / Time
Friday July 13th – 3-5PM
Saturday July 14th – 7:30-5PM
Sunday, July 15th – 8:45AM-noon
Location
Hilton Miami Downtown
1601 Biscayne Boulevard
Miami, FL 33132

Halifax GDOL 2018
2018-05-26 10:30 - 15:00 | Best Western Chocolate Lake Hotel 250 St Margaret Bay Road – Halifax, 250 St Margaret Bay Road, Halifax, NS, Canada
Life Raft Group Canada is pleased to announce that the GIST Day of Learning is coming to the Maritimes. The Day of Learning is a free one-day conference that provides education and support for people who have GIST, their caregivers, healthcare teams and anyone who wishes to learn more about GIST. The Day of Learning will cover many aspects of living with and understanding GIST as well as the new GIST therapies being developed. It will also be a great opportunity for you to connect with other GIST patients, caregivers and the presenters.
Refreshments and Lunch will be served.
David Josephy is a Professor of Molecular and Cellular Biology at the University of Guelph, where he has taught for more than 30 years. He is a GIST caregiver and has been President of GIST Sarcoma Life Raft Group Canada (LRGC) since its inception in 2008. In 2010, David spent a sabbatical term working in the laboratory of Dr.Jonathan Fletcher, a leading GIST researcher at Brigham and Women’s Hospital in Boston. David is a member of the Science Team of The Life Raft Group (USA) and collaborates with GIST patient support groups around the world. His research interests are in the field of Molecular Toxicology. He is particularly interested in the scientific basis for development of new small-molecule drugs for GIST.

Register
Call: 855-574-4475
Email: malcolm.sutherland@liferaftgroup.ca

The LRG Annual Poker Tournament
2012-09-13 18:00 - 2012-09-14 00:00 | Midtown Loft & Terrace, 267 5th Avenue, New York, NY, 10016, United States
The 9th Annual LRG Poker Tournament will be held on September 3rd at Midtown Lofts in Manhattan. Players will have a chance to win a grand prize worth $10,000 for a seat in the World Series of Poker. The cost to play is $500 and the cost to watch is $100 per person.
