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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20200902T183000
DTEND;TZID=America/New_York:20200902T183000
DTSTAMP:20260403T154658
CREATED:20200821T145337Z
LAST-MODIFIED:20200821T151148Z
UID:10000084-1599071400-1599071400@liferaftgroup.org
SUMMARY:Virtual SDH Support Group
DESCRIPTION:The Life Raft Group is hoping to start an online group for kids and teens living with GIST\, but we can’t do it without you!\nWould your child or teen be interested in talking to other adolescents about what it’s like to live with GIST?\nThe group will be a space to talk about everything from your relationship to your own body\, to your relationship with your family and peers\, and even your relationship with yourself. It will be a safe place to vent\, and explore the many emotions that come up not only around living with your disease\, but also around living through this unique and challenging time. You can even vent about your parents if you want. \nIf they are interested\, your child will have the opportunity to connect with others through their brave battles with GIST\, and feel seen! And if they are on the fence\, remind them that they are not locked into this experience if it doesn’t feel right for them. \nRegister
URL:https://liferaftgroup.org/event/sdh-virtual-support-group/
CATEGORIES:Events
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2020/08/SDH-GISTer.png
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20200910T140000
DTEND;TZID=America/New_York:20200910T140000
DTSTAMP:20260403T154658
CREATED:20200811T122728Z
LAST-MODIFIED:20200811T122728Z
UID:10000083-1599746400-1599746400@liferaftgroup.org
SUMMARY:Conversations with the LRG: GIST Mentors\, Part 2
DESCRIPTION:Join us on Thursday\, September 10th at 1pm ET for our next “Conversations with the LRG”. In this presentation\, GIST Mentors Carolyn Dewalt\, Julie Durkee\, and Kay Stolzer will discuss the role of the GIST Mentor and how one can assist you on your GIST journey. \nYou will learn why each of these patients/caregivers chose to volunteer as a GIST Mentor and more about them and their own journey with GIST. \nThere will be a 15-minute Q & A at the end of the presentation. \nYou may submit questions in advance to Diana Nieves\, Senior Director\, Outreach & Engagement: dnieves@liferaftgroup.org. \nYou will also be able to submit questions during the presentation that will be answered at the end. \nREGISTER
URL:https://liferaftgroup.org/event/conversations-with-the-lrg-gist-mentors-part-2/
CATEGORIES:Events
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2020/08/GIST-Mentor-Convo2.png
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20200924T140000
DTEND;TZID=America/New_York:20200924T140000
DTSTAMP:20260403T154658
CREATED:20200911T003207Z
LAST-MODIFIED:20200911T122756Z
UID:10000088-1600956000-1600956000@liferaftgroup.org
SUMMARY:Women in Sarcoma: Cancer Warriors
DESCRIPTION:An Interactive Multidisciplinary Panel of Experts\nSeptember 24th\, 2020 at 2pm \nThe Life Raft Group has developed the Women in Sarcoma program in recognition of the many women sarcoma specialists that engage with our organization and our patient and caregiver community to educate and advocate on behalf of those living with sarcoma. Our goal is to highlight women in the sarcoma medical profession that make a difference in patients’ lives\, and to inspire the community to hear stories and perspectives of women’s role in oncology. \nThe September webcast will feature an interactive panel of women sarcoma experts sharing their expertise as powerful advocates working on behalf of those living with sarcoma. Please join us for this interactive session with women leading the field of sarcoma! \nIf you have questions about this panel or about registration\, please contact Sara Rothschild\, VP Program Services \n\nREGISTEROur Panel of Experts\n[table “61” not found /]
URL:https://liferaftgroup.org/event/women-in-sarcoma-cancer-warriors/
CATEGORIES:Events
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20200926T080000
DTEND;TZID=America/New_York:20200926T080000
DTSTAMP:20260403T154658
CREATED:20200128T161248Z
LAST-MODIFIED:20200708T145216Z
UID:10000053-1601107200-1601107200@liferaftgroup.org
SUMMARY:GIST DO IT Walk - Verona\, NJ
DESCRIPTION:Sign up today for the 2nd Annual Verona\, NJ GIST DO IT Walk!\nJoin GISTers\, family & friends\, and the LRG Staff for this beautiful walk around Verona Park as we walk in memory of GISTer Ted Wolf and to raise funds for #GISTresearch! Register today. $35 registration fee includes a free GIST DO IT t-shirt. Meet at the park at 8am. You can purchase LRG face masks and additional t-shirts at our store.\nSee photos from last year’s NJ GIST DO IT Walk.\nIf you can’t be present for the walk\, you can donate to #GISTresearch with the link below also. \nRegisterInterested in Sponsorship Opportunities?\nContact Jess Nowak\, jnowak@liferaftgroup.org\nEvent Sponsor – $25\,000 \nCompany logo displayed on event signage\, on the LRG website\, & in the LRG newsletter\nCompany logo displayed on Step & Repeat\nThank you from LRG Senior Vice President at event\nAbility to place item/flyer (provided by sponsor) in Swag Bag\nTable at event\n5 registrations\, 5 t-shirts\, and 5 masks \nPlatinum Sponsor – $20\,000 \nCompany logo displayed on event signage\, on the LRG website\, & in the LRG newsletter\nThank you from LRG Senior Vice President at event\nAbility to place item/flyer (provided by sponsor) in Swag Bag\nTable at event\n4 registrations\, 4 t-shirts\, and 4 masks \nGold Sponsor – $15\,000 \nCompany logo displayed on event signage\, on the LRG website\, & in the LRG newsletter\nThank you from LRG Senior Vice President at event\nAbility to place item/flyer (provided by sponsor) in Swag Bag\nTable at event\n3 registrations\, 3 t-shirts\, and 3 masks \nSilver Sponsor – $10\,000 \nCompany name displayed on event signage\, on the LRG website\, & in theLRG newsletter\nThank you from LRG Senior Vice President at event\nAbility to place item/flyer (provided by sponsor) in Swag Bag\nTable at event\n2 registrations\, 2 t-shirts\, and 2 masks \nBronze Sponsor – $5\,000 \nCompany name displayed on event signage\, on the LRG website\, & in the LRG newsletter\nThank you from LRG Senior Vice President at event\n1 registrations\, 1 t-shirts\, and 1 masks
URL:https://liferaftgroup.org/event/gist-do-it-walk-nj/
LOCATION:Verona Park\, Bloomfield Ave & Lakeside Avenue\, Verona\, NJ\, 07044\, United States
CATEGORIES:Events,Fundraising
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2020/01/gist-do-it-NJ-2020.png
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20201010T090000
DTEND;TZID=America/New_York:20201010T110000
DTSTAMP:20260403T154658
CREATED:20190913T141141Z
LAST-MODIFIED:20200928T185340Z
UID:10000043-1602320400-1602327600@liferaftgroup.org
SUMMARY:GDOL Tampa 2020 - Virtual
DESCRIPTION:Join the LRG for GDOL Tampa\, Saturday\, March 28\, 2020 at 9am. GDOL Tampa is an event for patients & caregivers to learn more about GIST\, find support\, & enhance knowledge to help navigate their cancer journey. Meet with other patients and caregivers and experts\, clinicians\, and researchers in the study and treatment of GIST. \nRegister AgendaWhat’s a GDOL?  A GDOL is a GIST Day of Learning\, a free one-day event to help you\, as patients and caregivers\, learn more about GIST\, find support\, and enhance your knowledge base to help you navigate your cancer journey. At a GDOL\, you will learn more about your disease from expert clinicians\, researchers\, and advocates and connect with other patients\, caregivers\, and family members who are also on this rare journey. You are not alone. \nThe LRG’s mission is simple: cure GIST and help those living with it until then. To do this\, we focus on three key areas: research\, patient support & education\, and advocacy. \nSee what a GDOL can offer you – visit this link to see presentations\, photos\, and posts about past GDOLs: \n\nView Past GDOLs  \n\nFor questions or more information about GDOL\, Diana Nieves\, Senior Director\, Outreach & Engagement\, DNieves@liferaftgroup.org
URL:https://liferaftgroup.org/event/gdol-tampa-2020/
CATEGORIES:Education,Events
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20201010T150000
DTEND;TZID=America/New_York:20201010T170000
DTSTAMP:20260403T154658
CREATED:20190917T151250Z
LAST-MODIFIED:20200821T140652Z
UID:10000044-1602342000-1602349200@liferaftgroup.org
SUMMARY:GDOL Denver 2020 - Virtual
DESCRIPTION:Join the LRG for Virtual GDOL Denver\, October 10 at 1pm ET. GDOL Denver is an event for patients & caregivers to learn more about GIST\, find support\, & enhance knowledge to help navigate their cancer journey. Meet with other patients and caregivers and experts\, clinicians\, and researchers in the study and treatment of GIST. \nRegister AgendaVirtual GDOL Denver Sponsors: \n \nWhat’s a GDOL?  A GDOL is a GIST Day of Learning\, a free one-day event to help you\, as patients and caregivers\, learn more about GIST\, find support\, and enhance your knowledge base to help you navigate your cancer journey. At a GDOL you will learn more about your disease from expert clinicians\, researchers\, and advocates and connect with other patients\, caregivers\, and family members who are also on this rare journey. You are not alone. \nThe LRG’s mission is simple: cure GIST and help those living with it until then. To do this\, we focus on three key areas: research\, patient support & education\, and advocacy. \nSee what a GDOL can offer you – visit this link to see presentations\, photos\, and posts about past GDOLs: \n\nView Past GDOLs  \n\nFor questions or more information about GDOL\, Diana Nieves\, Senior Director\, Outreach & Engagement\, DNieves@liferaftgroup.org
URL:https://liferaftgroup.org/event/gdol-denver-2020/
CATEGORIES:Education,Events
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2019/09/denver2.png
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20201020T120000
DTEND;TZID=America/New_York:20201020T120000
DTSTAMP:20260403T154658
CREATED:20200909T152729Z
LAST-MODIFIED:20200916T162445Z
UID:10000087-1603195200-1603195200@liferaftgroup.org
SUMMARY:LRG Webcast: Genetics 101
DESCRIPTION:With the alphabet soup of terms and genes that cancer patients tend to hear during diagnosis\, it takes some time to really understand what these terms mean. \nIn her Genetics 101 webcast\, Dr. Raygada will unravel the DNA terms and seek to empower patients by helping them understand the genetic basis of their conditions so that they may decrease the risks associated with the mutations and tumors they carry. \nREGISTERAbout the presenter\nMargarita Raygada\, PhD\, Oncology Genetic Counselor \nDr. Raygada’s doctorate degree is in Medical Science from the Uniformed Services University of the Health Sciences/Naval Hospital\, Bethesda\, Maryland. Her Master’s degree is in Human Genetics and Genetic Counseling\, Georgetown University Hospital (GUH) in Washington\, D.C.\, with two post-doctoral fellowships: Molecular Biology at The Johns Hopkins Hospital in Baltimore\, and Cancer Genetics at GUH. Research Focus: Cancer genetics is my passion. I am interested in delineating the genetic changes in rare tumors and identifying associated phenotypes that may lead to common pathways and therefore improved outcomes for cancer patients. But most importantly I hope to empower patients by helping them understand the genetic basis of their conditions\, and by educating them on how they can use this information to manage their cancer so that they may decrease the risks associated with the mutations and tumors they carry.
URL:https://liferaftgroup.org/event/lrg-webcast-genetics-101/
CATEGORIES:Education,Webcast
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2020/08/raygada-event.jpg
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20201026T120000
DTEND;TZID=America/New_York:20201026T120000
DTSTAMP:20260403T154658
CREATED:20201002T183013Z
LAST-MODIFIED:20201022T161543Z
UID:10000089-1603713600-1603713600@liferaftgroup.org
SUMMARY:Women in Sarcoma: Case Presentations
DESCRIPTION:Case Presentations\nOctober 26\, 12PM ET \nPlease join us for the second webcast of our Women in Sarcoma series. The Life Raft Group has developed the Women in Sarcoma program in recognition of the many women sarcoma specialists that engage with the sarcoma patient community and focus on educating and advocating on behalf of those living with sarcoma. \nThis panel features three women sarcoma experts presenting unique case studies that they have encountered in their practices. Panelists will interact with each other about these case studies\, and participants will gain meaningful insight into how these experts diagnose and treat sarcoma patients\, and how they collaborate with colleagues toward the goal of achieving positive outcomes for these challenging cases. \n\nIf you have questions about this panel or about registration\, please contact Sara Rothschild\, VP Program Services \n\nPlease join us for this interactive session with women leading the field of sarcoma!\n\nREGISTEROur Panel of Experts\n \n\nVaia Florou\, MD\nOncologist\nUniversity of Utah\nHuntsman Cancer Center\n \n\nCiara Kelly\, MBBCh BAO\nOncologist\nMemorial Sloan Kettering\nCancer Center\n \n\n\nSandra R. Brackert\, NP\nNurse Practitioner\nRonald Reagan UCLA\nMedical Center
URL:https://liferaftgroup.org/event/women-in-sarcoma-case-presentations/
CATEGORIES:Education,Research,Webcast
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2020/10/Women-In-Sarcoma-2.jpg
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20201104T130000
DTEND;TZID=America/New_York:20201104T130000
DTSTAMP:20260403T154658
CREATED:20201030T201114Z
LAST-MODIFIED:20201030T201114Z
UID:10000090-1604494800-1604494800@liferaftgroup.org
SUMMARY:Virtual Caregiver Support Group
DESCRIPTION:This is an Eight-Week Support Group for GIST Caregivers.\nHeld every Thursday starting September 2 at 1pm ET.\nLimited to 12 participants. \nAs we continue to navigate this uncertain time together\, we want to offer you a little extra support. Starting Wednesday\, November 4th at 1pm ET the LRG will have its own weekly support group for the caregivers facilitated by Marlene Nei\, GIST Caregiver. In an effort to continue social distancing\, we will use an electronic platform\, to come together for 8 consecutive weeks as a small group of 10 participants. We will talk about all of the feelings you might be experiencing\, both in relation to GIST\, and also COVID-19. We will share our stories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling as a result of this unprecedented time. The group will be a safe space not only to feel supported by your fellow caregivers\, but also a place to share our own coping mechanisms to get us through this stressful time. All information shared will be kept confidential. \nAbout the Group Leader:\nMarlene Nei\, GIST Caregiver \nAs an active member of the Life Raft Group\, Marlene advocates for the needs of the caregiver community because she feels they are an underrepresented group. It is her mission to advocate for the entire GIST community making sure they are equipped with the appropriate resources on their GIST journey. \nRegister
URL:https://liferaftgroup.org/event/virtual-caregiver-support-group-2/
CATEGORIES:Events
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20201111T170000
DTEND;TZID=America/New_York:20201111T170000
DTSTAMP:20260403T154658
CREATED:20201030T201304Z
LAST-MODIFIED:20201030T201611Z
UID:10000091-1605114000-1605114000@liferaftgroup.org
SUMMARY:Virtual GISTer Support Group
DESCRIPTION:As we continue to navigate this uncertain time together\, we want to offer you a little extra support. Starting Wednesday\,  November 4th\, at 5pm ET\, the LRG will have its own weekly support group for people living with GIST facilitated by social worker Chelsea Madia. In an effort to continue social distancing\, we will use an electronic platform\, to come together for eight (8) consecutive weeks as a small group of 10 participants. \nWe will talk about all of the feelings you might be experiencing\, both in relation to GIST\, and also COVID-19. We will share our GISTories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling as a result of this unprecedented time. The group will be a safe space not only to feel supported by your fellow GIST survivors but also a place to share our own coping mechanisms to get us through this stressful time.  All information shared will be kept confidential. \n\nREGISTER \nAbout the Group Leaders:\nChelsea Madia\, LCSW\nChelsea is a licensed clinical social worker in New York\, who started in the field in 2011 counseling at-risk teens at the Child Center of New York in Jamaica\, Queens. After this\, her work took her to the Coalition for the Homeless in lower Manhattan\, where she supported mentally ill homeless adults in their quest to move into supportive housing\, as well as apply for disability benefits. From there\, she worked for nine months on the Psychiatric Mobile Crisis Team at Mount Sinai Beth Israel\, before being promoted to Program Manager. In November of 2018\, after three years managing the team\, Chelsea was diagnosed with metastatic GIST. Since that time\, she has been stable on Gleevec\, and now is in the early phases of starting her own private counseling practice in New Rochelle\, NY.
URL:https://liferaftgroup.org/event/virtual-gister-support-group-3/
CATEGORIES:Events
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20210120T130000
DTEND;TZID=America/New_York:20210120T130000
DTSTAMP:20260403T154658
CREATED:20210119T153745Z
LAST-MODIFIED:20210603T135810Z
UID:10000111-1611147600-1611147600@liferaftgroup.org
SUMMARY:Virtual Caregiver Support Group
DESCRIPTION:Weekly Support Group for GIST Caregivers.\nHeld every Wednesday at 1pm ET beginning January 20\, 2021\nAs we continue to navigate this uncertain time together\, we want to offer you a little extra support. Every Wednesday at 1pm ET the LRG has a weekly support group for the caregivers facilitated by Marlene Nei\, GIST Caregiver. To continue social distancing and connecting with caregivers across the United States\, we will use an electronic platform\, to come together every week as a group. We will talk about all the feelings you might be experiencing\, both in relation to GIST\, and COVID-19. \nWe will share our stories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling because of this unprecedented time. The group will be a safe space not only to feel supported by your fellow caregivers\, but also a place to share our own coping mechanisms to get us through this stressful time. All information shared will be kept confidential. Contact Diana Nieves at dnieves@liferaftgroup.org for more information. \nPlease email Diana Nieves at dnieves@liferaftgroup.org to join this meeting.\nAbout the Group Leader:\nMarlene Nei\, GIST Caregiver \nAs an active member of the Life Raft Group\, Marlene advocates for the needs of the caregiver community because she feels they are an underrepresented group. It is her mission to advocate for the entire GIST community making sure they are equipped with the appropriate resources on their GIST journey.
URL:https://liferaftgroup.org/event/virtual-caregiver-support-group-3/2021-01-20/
CATEGORIES:Events,Support Group
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/01/Caregiver-Support-Group.png
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20210127T130000
DTEND;TZID=America/New_York:20210127T130000
DTSTAMP:20260403T154658
CREATED:20210119T153745Z
LAST-MODIFIED:20210603T135810Z
UID:10000112-1611752400-1611752400@liferaftgroup.org
SUMMARY:Virtual Caregiver Support Group
DESCRIPTION:Weekly Support Group for GIST Caregivers.\nHeld every Wednesday at 1pm ET beginning January 20\, 2021\nAs we continue to navigate this uncertain time together\, we want to offer you a little extra support. Every Wednesday at 1pm ET the LRG has a weekly support group for the caregivers facilitated by Marlene Nei\, GIST Caregiver. To continue social distancing and connecting with caregivers across the United States\, we will use an electronic platform\, to come together every week as a group. We will talk about all the feelings you might be experiencing\, both in relation to GIST\, and COVID-19. \nWe will share our stories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling because of this unprecedented time. The group will be a safe space not only to feel supported by your fellow caregivers\, but also a place to share our own coping mechanisms to get us through this stressful time. All information shared will be kept confidential. Contact Diana Nieves at dnieves@liferaftgroup.org for more information. \nPlease email Diana Nieves at dnieves@liferaftgroup.org to join this meeting.\nAbout the Group Leader:\nMarlene Nei\, GIST Caregiver \nAs an active member of the Life Raft Group\, Marlene advocates for the needs of the caregiver community because she feels they are an underrepresented group. It is her mission to advocate for the entire GIST community making sure they are equipped with the appropriate resources on their GIST journey.
URL:https://liferaftgroup.org/event/virtual-caregiver-support-group-3/2021-01-27/
CATEGORIES:Events,Support Group
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/01/Caregiver-Support-Group.png
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20210202T180000
DTEND;TZID=America/New_York:20210202T193000
DTSTAMP:20260403T154658
CREATED:20210118T181321Z
LAST-MODIFIED:20220323T125554Z
UID:10000096-1612288800-1612294200@liferaftgroup.org
SUMMARY:Virtual GISTer Support Group
DESCRIPTION:The group will meet via Zoom on the first Tuesday of each month from 6:00 PM – 7:30 PM EST (NYC Time). \nThe group open to those who have not been able to participate in the past\, for one reason or another. We will start each group with a “Round Robin” in which anyone who feels like updating the group on how they are doing/feeling can do so. There is no pressure to speak if you prefer to simply listen. Once we complete our updates\, the group will have the opportunity for organic conversation to develop in relation to our emotional experiences around GIST\, and other challenges that we may be experiencing as a community. \nIn order to be able to moderate a flowing discussion\, the group will be capped at 15 people each month. The first 15 people into the Zoom waiting room will participate. Keep in mind that since the group is now open\, you don’t necessarily have to attend each month to be  to participate. \nContact Diana Nieves to join: dnieves@liferaftgroup.org
URL:https://liferaftgroup.org/event/virtual-gister-support-group-4/2021-02-02/
CATEGORIES:Events
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/01/GISTer-SUPPORT-2021.png
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20210203T130000
DTEND;TZID=America/New_York:20210203T130000
DTSTAMP:20260403T154658
CREATED:20210119T153745Z
LAST-MODIFIED:20210603T135810Z
UID:10000113-1612357200-1612357200@liferaftgroup.org
SUMMARY:Virtual Caregiver Support Group
DESCRIPTION:Weekly Support Group for GIST Caregivers.\nHeld every Wednesday at 1pm ET beginning January 20\, 2021\nAs we continue to navigate this uncertain time together\, we want to offer you a little extra support. Every Wednesday at 1pm ET the LRG has a weekly support group for the caregivers facilitated by Marlene Nei\, GIST Caregiver. To continue social distancing and connecting with caregivers across the United States\, we will use an electronic platform\, to come together every week as a group. We will talk about all the feelings you might be experiencing\, both in relation to GIST\, and COVID-19. \nWe will share our stories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling because of this unprecedented time. The group will be a safe space not only to feel supported by your fellow caregivers\, but also a place to share our own coping mechanisms to get us through this stressful time. All information shared will be kept confidential. Contact Diana Nieves at dnieves@liferaftgroup.org for more information. \nPlease email Diana Nieves at dnieves@liferaftgroup.org to join this meeting.\nAbout the Group Leader:\nMarlene Nei\, GIST Caregiver \nAs an active member of the Life Raft Group\, Marlene advocates for the needs of the caregiver community because she feels they are an underrepresented group. It is her mission to advocate for the entire GIST community making sure they are equipped with the appropriate resources on their GIST journey.
URL:https://liferaftgroup.org/event/virtual-caregiver-support-group-3/2021-02-03/
CATEGORIES:Events,Support Group
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/01/Caregiver-Support-Group.png
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Australia/Melbourne:20210205T110000
DTEND;TZID=Australia/Melbourne:20210205T110000
DTSTAMP:20260403T154658
CREATED:20210111T201224Z
LAST-MODIFIED:20210113T134856Z
UID:10000094-1612522800-1612522800@liferaftgroup.org
SUMMARY:Australian GISTers Virtual Meet & Greet
DESCRIPTION:Please be aware of the time difference: This webinar takes place on Feb 4th at 7pm ET for the US and Feb 5th at 11 am Melbourne time.) \nPlease join us for a Virtual Meet & Greet with our new Australian GIST Representatives Shari Reid and Amy Kenworthy! GIST patients and family members are welcome to join this virtual get together to connect as well as meet one of the leading GIST experts in Australia – Dr. John Zalcberg from Monash University. \nREGISTERPresenters\nShari Reid\, Victoria \nShari Reid\, formerly a Systems Administrator in Health & Safety\, is currently a proud\, full-time mum to son Robbie. Though she’s living in regional Victoria with her husband\, Glenn\, and son\, Shari was born in the U.S. and her family moved to Australia when she was a baby. \n\nAmy Kenworthy\, Gold Coast \nProfessor Amy Kenworthy\, also born in the U.S.\, was raised in Massachusetts and immigrated to Queensland\, Australia\, after finishing her PhD in 1999. She and her husband\, George\, are both professors at Bond University on the Gold Coast. They have two teens\, Bryce\, 13\, and Mariel\, 17. \n\nRead more about these amazing GISTers! \n\nDr. John  Zalcberg\nProfessor Zalcberg is currently the Head of the Cancer Research Program as well as NHMRC (MRFF) Practitioner Fellow in the School of Public Health and Preventive Medicine at Monash University – currently overseeing the establishment and activities of clinical quality registries across various tumour types. He is also the inaugural Tony Charlton Chair of Oncology at Alfred Health as well.\nYou can view this presentation on OncLive – Dr. Zalcberg on the Management of Patients With GIST
URL:https://liferaftgroup.org/event/australian-gisters-virtual-meet-greet/
CATEGORIES:Events,International
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20210206T160000
DTEND;TZID=America/New_York:20210206T160000
DTSTAMP:20260403T154658
CREATED:20210118T154203Z
LAST-MODIFIED:20210118T154203Z
UID:10000095-1612627200-1612627200@liferaftgroup.org
SUMMARY:California GISTer Virtual Support Group
DESCRIPTION:This Support Group will be held at 1pm Pacific Time/4pm ET.\nJoin us on Saturday\, February 6\, at 1:00 p.m. PST/4:00pm EST. Make yourself comfortable at your computer\, laptop\, tablet\, etc. and participate in what will be a very helpful and informative meeting. \nThe Life Raft Group is offering a virtual California Support Group with Southern California Leader Dina Wiley. The group will meet to talk to each other\, discuss individual GIST issues\, and get answers to questions. This will enable you to not only get some relief from the worry of GIST\, but to also help others\, as well. We are\, after all\, in the same life raft\, and we are each needed to pull together. When we do\, wonderful things happen! \nAnd here’s the best part — we will have a very special participant — Dr. Michael Heinrich\, Professor of Medicine at the Knight Cancer Institute of the Oregon Health & Science University. Dr Heinrich was a key player in the original Gleevec research. And\, as new mutations of GIST are found he has continued his research resulting in new and better drugs that attack GIST where Gleevec cannot. Dr. Heinrich will be available to answer any questions you may have\, and explain some of the mysteries of GIST. \nREGISTERAbout the Group Leader:\nDina Wiley – Dina is a long-time Southern California LRG Support Group Leader. Read about Dina’s GIST journey here \nAbout the Special Guest:\nMichael Heinrich\, M.D.\nProfessor of Medicine and Cell/Developmental Biology\nOHSU School of Medicine \nDr. Heinrich earned his medical degree from Johns Hopkins School of Medicine in Baltimore and completed both his residency training and fellowship in hematology/medical oncology at OHSU. \nDr. Heinrich’s research\, like much of the work at the Knight Cancer Institute\, revolves around a basic\, yet complex premise. You have to understand what is broken in order to fix it. That’s why Dr. Heinrich is intently focused on identifying the molecular targets that cause cancer\, which is essential to the development of better and less toxic therapies. He is recognized internationally for groundbreaking research discoveries that have improved care for patients with gastrointestinal stromal tumors\, and his research has implications for many types of cancer. \nListen to Dr. Heinrich’s most recent webinar for the LRG. \n\nDisclaimer: Information provided in this webcast is not intended as a substitute for your physician’s guidance and care.
URL:https://liferaftgroup.org/event/california-gister-virtual-support-group/
CATEGORIES:Events
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2021/01/california-support-group-2-6-21.jpg
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20210210T130000
DTEND;TZID=America/New_York:20210210T130000
DTSTAMP:20260403T154658
CREATED:20210119T153745Z
LAST-MODIFIED:20210603T135810Z
UID:10000114-1612962000-1612962000@liferaftgroup.org
SUMMARY:Virtual Caregiver Support Group
DESCRIPTION:Weekly Support Group for GIST Caregivers.\nHeld every Wednesday at 1pm ET beginning January 20\, 2021\nAs we continue to navigate this uncertain time together\, we want to offer you a little extra support. Every Wednesday at 1pm ET the LRG has a weekly support group for the caregivers facilitated by Marlene Nei\, GIST Caregiver. To continue social distancing and connecting with caregivers across the United States\, we will use an electronic platform\, to come together every week as a group. We will talk about all the feelings you might be experiencing\, both in relation to GIST\, and COVID-19. \nWe will share our stories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling because of this unprecedented time. The group will be a safe space not only to feel supported by your fellow caregivers\, but also a place to share our own coping mechanisms to get us through this stressful time. All information shared will be kept confidential. Contact Diana Nieves at dnieves@liferaftgroup.org for more information. \nPlease email Diana Nieves at dnieves@liferaftgroup.org to join this meeting.\nAbout the Group Leader:\nMarlene Nei\, GIST Caregiver \nAs an active member of the Life Raft Group\, Marlene advocates for the needs of the caregiver community because she feels they are an underrepresented group. It is her mission to advocate for the entire GIST community making sure they are equipped with the appropriate resources on their GIST journey.
URL:https://liferaftgroup.org/event/virtual-caregiver-support-group-3/2021-02-10/
CATEGORIES:Events,Support Group
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/01/Caregiver-Support-Group.png
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20210211T120000
DTEND;TZID=America/New_York:20210211T120000
DTSTAMP:20260403T154658
CREATED:20201103T133157Z
LAST-MODIFIED:20210124T180346Z
UID:10000093-1613044800-1613044800@liferaftgroup.org
SUMMARY:LRG Webcast Series: hPPGL Syndrome - a Misnomer with Consequences
DESCRIPTION:Dr. Annes will review the hPPGL Syndrome with particular focus on the underlying genetics basis and related tumor risks. He will review the benefits/limitations of genetic testing and pre-symptomatic screening\, including his personal experience directing Stanford’s Hereditary Neuroendocrine Neoplasia Clinic. Finally\, he will discuss opportunities for advancing hPPGL care and ongoing research. \nREGISTERPresenter:\nJustin Annes\, MD\, PhD\nAssociate Professor\, Stanford Department of Medicine \nDr. Annes is an Associate Professor in Stanford’s Department of Medicine and a Faculty Fellow in Stanford’s Chemistry\, Engineering & Medicine for Human Health Institute (ChEM-H). He obtained his BS from Haverford College (1996)\, MD PHD from New York University (1996) and trained in Internal Medicine\, Clinical Genetics and Chemical Biology at Brigham and Women’s Hospital / Harvard University (2011). Dr. Annes is director and founder of Stanford’s Hereditary Neuroendocrine Tumor Clinic (2012) which focuses on the longitudinal care of patients and families with inherited endocrine tumor syndromes\, primarily hPPGL\, MEN1 and MEN2. He participates in several neuroendocrine-focused patient advocacy / research foundations including The Pheo Para Alliance\, Neuroendocrine Tumor Research Foundation and the NIH Pediatric Wildtype GIST Clinic. His NIH-funded research program is positioned at the interface of endocrine pathophysiology\, synthetic chemistry and hereditary disease. The organizing principle of his research program is to harness the power of chemistry\, human tissue samples and animal disease models to deliver fundamental biologic insights and develop novel therapeutic leads for the treatment of endocrine disorders.
URL:https://liferaftgroup.org/event/lrg-webcast-hppgl-syndrome/
CATEGORIES:Education,Events
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2020/11/annes1.jpg
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20210217T130000
DTEND;TZID=America/New_York:20210217T130000
DTSTAMP:20260403T154658
CREATED:20210119T153745Z
LAST-MODIFIED:20210603T135810Z
UID:10000115-1613566800-1613566800@liferaftgroup.org
SUMMARY:Virtual Caregiver Support Group
DESCRIPTION:Weekly Support Group for GIST Caregivers.\nHeld every Wednesday at 1pm ET beginning January 20\, 2021\nAs we continue to navigate this uncertain time together\, we want to offer you a little extra support. Every Wednesday at 1pm ET the LRG has a weekly support group for the caregivers facilitated by Marlene Nei\, GIST Caregiver. To continue social distancing and connecting with caregivers across the United States\, we will use an electronic platform\, to come together every week as a group. We will talk about all the feelings you might be experiencing\, both in relation to GIST\, and COVID-19. \nWe will share our stories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling because of this unprecedented time. The group will be a safe space not only to feel supported by your fellow caregivers\, but also a place to share our own coping mechanisms to get us through this stressful time. All information shared will be kept confidential. Contact Diana Nieves at dnieves@liferaftgroup.org for more information. \nPlease email Diana Nieves at dnieves@liferaftgroup.org to join this meeting.\nAbout the Group Leader:\nMarlene Nei\, GIST Caregiver \nAs an active member of the Life Raft Group\, Marlene advocates for the needs of the caregiver community because she feels they are an underrepresented group. It is her mission to advocate for the entire GIST community making sure they are equipped with the appropriate resources on their GIST journey.
URL:https://liferaftgroup.org/event/virtual-caregiver-support-group-3/2021-02-17/
CATEGORIES:Events,Support Group
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/01/Caregiver-Support-Group.png
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20210218T140000
DTEND;TZID=America/New_York:20210218T140000
DTSTAMP:20260403T154658
CREATED:20210127T155358Z
LAST-MODIFIED:20210127T155358Z
UID:10000131-1613656800-1613656800@liferaftgroup.org
SUMMARY:Conversations with the LRG: GIST Mentors\, Part 3
DESCRIPTION:Join us on Thursday\, February 18th at 2pm ET for our next “Conversations with the LRG”. In this presentation\, our GIST Mentors will discuss the role of the GIST Mentor and how one can assist you on your GIST journey. \nYou will learn why each of these patients/caregivers chose to volunteer as a GIST Mentor and more about them and their own journey with GIST. \n\nREGISTER\n \nThere will be a 15-minute Q & A at the end of the presentation. \nYou may submit questions in advance to Diana Nieves\, Senior Director\, Outreach & Engagement: dnieves@liferaftgroup.org. \nYou will also be able to submit questions during the presentation that will be answered at the end.
URL:https://liferaftgroup.org/event/conversations-with-the-lrg-gist-mentors-part-3/
CATEGORIES:Events
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/01/gist-mentors-part-3.png
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20210224T120000
DTEND;TZID=America/New_York:20210224T120000
DTSTAMP:20260403T154658
CREATED:20210203T201450Z
LAST-MODIFIED:20210208T141853Z
UID:10000132-1614168000-1614168000@liferaftgroup.org
SUMMARY:Finding Biomarkers that Cause GIST
DESCRIPTION:From Research to Clinical Application\nEvery GIST patient is unique based on their biology and what treatment to which they will potentially respond. \nDr. Lori Rink\, Fox Chase Cancer Center\, and Dr. Inga-Marie Schaefer\, Brigham & Women’s Hospital\, are two researchers who are making discoveries in their respective laboratories to uncover the unique biomarkers in GIST that will be future drug targets. \nDr. Margaret von Mehren\, Fox Chase Cancer Center\, will moderate the webinar and help the audience understand why these important discoveries in the lab are important to clinicians. This concept of translational medicine is an important field as it helps bring advances into the clinic that can directly impact the survival of GIST patients. \nREGISTERAbout the Presenters\nLori Rink\, PhD\nAssistant Professor\, Molecular Therapeutics\, Fox Chase Cancer Center. Dr. Rink studied at the Biology at the University of Scranton  and  received her doctorate in  for a Doctorate in Molecular Biology from Temple University followed by a post-doctoral fellowship at Fox Chase Cancer Center.  She is an Assistant Professor in the Molecular Therapeutic program. Along with Dr. von Mehren\, two graduate students\, and a post-doctoral fellow\, Dr. Rink’s lab is dedicated to investigating why some GIST patients eventually develop a resistance to Gleevec\, discovering combinations of drugs that will attack GIST\, and identifying markers that could predict how patients will respond to Gleevec. \nInga-Marie Schaefer\, MD\nAssociate Pathologist\, Brigham & Women’s Hospital\, Instructor in Pathology\, Harvard Medical School\nDr. Schaefer is an instructor at the Department of Pathology at Brigham and Women’s Hospital\, Harvard Medical School in Boston\, MA. After graduating with an M.D. degree from Georg-August-University Goettingen in Germany\, she trained in Anatomic Pathology in Germany and at Brigham and Women’s Hospital. Her post-doctoral research in Dr. Jonathan Fletcher’s translational sarcoma laboratory focused on characterizing mechanisms of genomic progression in GIST/sarcoma\, combining diagnostics\, biology\, and genetics. Dr. Schaefer is now evaluating mechanisms of incremental cell cycle dysregulation in GIST progression. \n\nAbout the Moderator\nMargaret von Mehren\, MD\nAssociate Professor\, Director of Sarcoma\, Fox Chase Cancer Center\nDr. von Mehren matriculated at Georgetown University in Washington\, DC\, where she majored in Biology and minored in Philosophy\, and graduating in 1985 with honors. She received her medical degree from Albany Medical College in Albany\, NY. Dr. von Mehren completed an internship and residency at New York University Medical Center in New York before moving to Philadelphia for her fellowship in medical oncology at the Fox Chase Cancer Center and Temple University. After completing fellowship\, Dr. von Mehren joined the faculty of the department of Medical Oncology at Fox Chase Cancer Center where she remains today as and Associate Professor and the director of the Sarcoma program. She is a member of the NCCN panel for soft tissue sarcomas and GIST task force\, as well as the Intergroup GIST Task force. She also volunteers at the NIH Pediatric Wildtype GIST clinic biannually.
URL:https://liferaftgroup.org/event/finding-biomarkers-that-cause-gist/
CATEGORIES:Education,Events
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20210224T130000
DTEND;TZID=America/New_York:20210224T130000
DTSTAMP:20260403T154658
CREATED:20210119T153745Z
LAST-MODIFIED:20210603T135810Z
UID:10000116-1614171600-1614171600@liferaftgroup.org
SUMMARY:Virtual Caregiver Support Group
DESCRIPTION:Weekly Support Group for GIST Caregivers.\nHeld every Wednesday at 1pm ET beginning January 20\, 2021\nAs we continue to navigate this uncertain time together\, we want to offer you a little extra support. Every Wednesday at 1pm ET the LRG has a weekly support group for the caregivers facilitated by Marlene Nei\, GIST Caregiver. To continue social distancing and connecting with caregivers across the United States\, we will use an electronic platform\, to come together every week as a group. We will talk about all the feelings you might be experiencing\, both in relation to GIST\, and COVID-19. \nWe will share our stories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling because of this unprecedented time. The group will be a safe space not only to feel supported by your fellow caregivers\, but also a place to share our own coping mechanisms to get us through this stressful time. All information shared will be kept confidential. Contact Diana Nieves at dnieves@liferaftgroup.org for more information. \nPlease email Diana Nieves at dnieves@liferaftgroup.org to join this meeting.\nAbout the Group Leader:\nMarlene Nei\, GIST Caregiver \nAs an active member of the Life Raft Group\, Marlene advocates for the needs of the caregiver community because she feels they are an underrepresented group. It is her mission to advocate for the entire GIST community making sure they are equipped with the appropriate resources on their GIST journey.
URL:https://liferaftgroup.org/event/virtual-caregiver-support-group-3/2021-02-24/
CATEGORIES:Events,Support Group
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/01/Caregiver-Support-Group.png
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20210302T180000
DTEND;TZID=America/New_York:20210302T193000
DTSTAMP:20260403T154658
CREATED:20210118T181321Z
LAST-MODIFIED:20220323T125554Z
UID:10000097-1614708000-1614713400@liferaftgroup.org
SUMMARY:Virtual GISTer Support Group
DESCRIPTION:The group will meet via Zoom on the first Tuesday of each month from 6:00 PM – 7:30 PM EST (NYC Time). \nThe group open to those who have not been able to participate in the past\, for one reason or another. We will start each group with a “Round Robin” in which anyone who feels like updating the group on how they are doing/feeling can do so. There is no pressure to speak if you prefer to simply listen. Once we complete our updates\, the group will have the opportunity for organic conversation to develop in relation to our emotional experiences around GIST\, and other challenges that we may be experiencing as a community. \nIn order to be able to moderate a flowing discussion\, the group will be capped at 15 people each month. The first 15 people into the Zoom waiting room will participate. Keep in mind that since the group is now open\, you don’t necessarily have to attend each month to be  to participate. \nContact Diana Nieves to join: dnieves@liferaftgroup.org
URL:https://liferaftgroup.org/event/virtual-gister-support-group-4/2021-03-02/
CATEGORIES:Events
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/01/GISTer-SUPPORT-2021.png
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20210303T130000
DTEND;TZID=America/New_York:20210303T130000
DTSTAMP:20260403T154658
CREATED:20210119T153745Z
LAST-MODIFIED:20210603T135810Z
UID:10000117-1614776400-1614776400@liferaftgroup.org
SUMMARY:Virtual Caregiver Support Group
DESCRIPTION:Weekly Support Group for GIST Caregivers.\nHeld every Wednesday at 1pm ET beginning January 20\, 2021\nAs we continue to navigate this uncertain time together\, we want to offer you a little extra support. Every Wednesday at 1pm ET the LRG has a weekly support group for the caregivers facilitated by Marlene Nei\, GIST Caregiver. To continue social distancing and connecting with caregivers across the United States\, we will use an electronic platform\, to come together every week as a group. We will talk about all the feelings you might be experiencing\, both in relation to GIST\, and COVID-19. \nWe will share our stories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling because of this unprecedented time. The group will be a safe space not only to feel supported by your fellow caregivers\, but also a place to share our own coping mechanisms to get us through this stressful time. All information shared will be kept confidential. Contact Diana Nieves at dnieves@liferaftgroup.org for more information. \nPlease email Diana Nieves at dnieves@liferaftgroup.org to join this meeting.\nAbout the Group Leader:\nMarlene Nei\, GIST Caregiver \nAs an active member of the Life Raft Group\, Marlene advocates for the needs of the caregiver community because she feels they are an underrepresented group. It is her mission to advocate for the entire GIST community making sure they are equipped with the appropriate resources on their GIST journey.
URL:https://liferaftgroup.org/event/virtual-caregiver-support-group-3/2021-03-03/
CATEGORIES:Events,Support Group
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/01/Caregiver-Support-Group.png
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20210310T130000
DTEND;TZID=America/New_York:20210310T130000
DTSTAMP:20260403T154658
CREATED:20210119T153745Z
LAST-MODIFIED:20210603T135810Z
UID:10000118-1615381200-1615381200@liferaftgroup.org
SUMMARY:Virtual Caregiver Support Group
DESCRIPTION:Weekly Support Group for GIST Caregivers.\nHeld every Wednesday at 1pm ET beginning January 20\, 2021\nAs we continue to navigate this uncertain time together\, we want to offer you a little extra support. Every Wednesday at 1pm ET the LRG has a weekly support group for the caregivers facilitated by Marlene Nei\, GIST Caregiver. To continue social distancing and connecting with caregivers across the United States\, we will use an electronic platform\, to come together every week as a group. We will talk about all the feelings you might be experiencing\, both in relation to GIST\, and COVID-19. \nWe will share our stories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling because of this unprecedented time. The group will be a safe space not only to feel supported by your fellow caregivers\, but also a place to share our own coping mechanisms to get us through this stressful time. All information shared will be kept confidential. Contact Diana Nieves at dnieves@liferaftgroup.org for more information. \nPlease email Diana Nieves at dnieves@liferaftgroup.org to join this meeting.\nAbout the Group Leader:\nMarlene Nei\, GIST Caregiver \nAs an active member of the Life Raft Group\, Marlene advocates for the needs of the caregiver community because she feels they are an underrepresented group. It is her mission to advocate for the entire GIST community making sure they are equipped with the appropriate resources on their GIST journey.
URL:https://liferaftgroup.org/event/virtual-caregiver-support-group-3/2021-03-10/
CATEGORIES:Events,Support Group
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/01/Caregiver-Support-Group.png
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20210317T130000
DTEND;TZID=America/New_York:20210317T130000
DTSTAMP:20260403T154658
CREATED:20210119T153745Z
LAST-MODIFIED:20210603T135810Z
UID:10000119-1615986000-1615986000@liferaftgroup.org
SUMMARY:Virtual Caregiver Support Group
DESCRIPTION:Weekly Support Group for GIST Caregivers.\nHeld every Wednesday at 1pm ET beginning January 20\, 2021\nAs we continue to navigate this uncertain time together\, we want to offer you a little extra support. Every Wednesday at 1pm ET the LRG has a weekly support group for the caregivers facilitated by Marlene Nei\, GIST Caregiver. To continue social distancing and connecting with caregivers across the United States\, we will use an electronic platform\, to come together every week as a group. We will talk about all the feelings you might be experiencing\, both in relation to GIST\, and COVID-19. \nWe will share our stories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling because of this unprecedented time. The group will be a safe space not only to feel supported by your fellow caregivers\, but also a place to share our own coping mechanisms to get us through this stressful time. All information shared will be kept confidential. Contact Diana Nieves at dnieves@liferaftgroup.org for more information. \nPlease email Diana Nieves at dnieves@liferaftgroup.org to join this meeting.\nAbout the Group Leader:\nMarlene Nei\, GIST Caregiver \nAs an active member of the Life Raft Group\, Marlene advocates for the needs of the caregiver community because she feels they are an underrepresented group. It is her mission to advocate for the entire GIST community making sure they are equipped with the appropriate resources on their GIST journey.
URL:https://liferaftgroup.org/event/virtual-caregiver-support-group-3/2021-03-17/
CATEGORIES:Events,Support Group
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/01/Caregiver-Support-Group.png
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20210324T130000
DTEND;TZID=America/New_York:20210324T130000
DTSTAMP:20260403T154658
CREATED:20210119T153745Z
LAST-MODIFIED:20210603T135810Z
UID:10000120-1616590800-1616590800@liferaftgroup.org
SUMMARY:Virtual Caregiver Support Group
DESCRIPTION:Weekly Support Group for GIST Caregivers.\nHeld every Wednesday at 1pm ET beginning January 20\, 2021\nAs we continue to navigate this uncertain time together\, we want to offer you a little extra support. Every Wednesday at 1pm ET the LRG has a weekly support group for the caregivers facilitated by Marlene Nei\, GIST Caregiver. To continue social distancing and connecting with caregivers across the United States\, we will use an electronic platform\, to come together every week as a group. We will talk about all the feelings you might be experiencing\, both in relation to GIST\, and COVID-19. \nWe will share our stories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling because of this unprecedented time. The group will be a safe space not only to feel supported by your fellow caregivers\, but also a place to share our own coping mechanisms to get us through this stressful time. All information shared will be kept confidential. Contact Diana Nieves at dnieves@liferaftgroup.org for more information. \nPlease email Diana Nieves at dnieves@liferaftgroup.org to join this meeting.\nAbout the Group Leader:\nMarlene Nei\, GIST Caregiver \nAs an active member of the Life Raft Group\, Marlene advocates for the needs of the caregiver community because she feels they are an underrepresented group. It is her mission to advocate for the entire GIST community making sure they are equipped with the appropriate resources on their GIST journey.
URL:https://liferaftgroup.org/event/virtual-caregiver-support-group-3/2021-03-24/
CATEGORIES:Events,Support Group
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/01/Caregiver-Support-Group.png
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20210327T130000
DTEND;TZID=America/New_York:20210327T150000
DTSTAMP:20260403T154658
CREATED:20210304T202558Z
LAST-MODIFIED:20210304T204117Z
UID:10000134-1616850000-1616857200@liferaftgroup.org
SUMMARY:Living Well with GIST - Support Group for Women
DESCRIPTION:We are excited to announce the start of our new monthly support group\, “Living Well with GIST – A Support Group for Women” (virtual) beginning Saturday\, March 27 from 1 to 3PM ET. Led by GIST Mentor Kay Stolzer\, the group will explore issues of interest to female GIST patients as they navigate their journey. Guest speakers will be invited to address issues that affect how having GIST impacts they way they think and feel about themselves. \nThe group will meet virtually on the last Saturday of every month. \nLimited to 25 attendees – there will be a waitlist. \nREGISTER
URL:https://liferaftgroup.org/event/living-well-with-gist-support-group-for-women/
CATEGORIES:Events,Support Group
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2021/03/Womens-Support-Group.jpg
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20210331T130000
DTEND;TZID=America/New_York:20210331T130000
DTSTAMP:20260403T154658
CREATED:20210119T153745Z
LAST-MODIFIED:20210603T135810Z
UID:10000121-1617195600-1617195600@liferaftgroup.org
SUMMARY:Virtual Caregiver Support Group
DESCRIPTION:Weekly Support Group for GIST Caregivers.\nHeld every Wednesday at 1pm ET beginning January 20\, 2021\nAs we continue to navigate this uncertain time together\, we want to offer you a little extra support. Every Wednesday at 1pm ET the LRG has a weekly support group for the caregivers facilitated by Marlene Nei\, GIST Caregiver. To continue social distancing and connecting with caregivers across the United States\, we will use an electronic platform\, to come together every week as a group. We will talk about all the feelings you might be experiencing\, both in relation to GIST\, and COVID-19. \nWe will share our stories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling because of this unprecedented time. The group will be a safe space not only to feel supported by your fellow caregivers\, but also a place to share our own coping mechanisms to get us through this stressful time. All information shared will be kept confidential. Contact Diana Nieves at dnieves@liferaftgroup.org for more information. \nPlease email Diana Nieves at dnieves@liferaftgroup.org to join this meeting.\nAbout the Group Leader:\nMarlene Nei\, GIST Caregiver \nAs an active member of the Life Raft Group\, Marlene advocates for the needs of the caregiver community because she feels they are an underrepresented group. It is her mission to advocate for the entire GIST community making sure they are equipped with the appropriate resources on their GIST journey.
URL:https://liferaftgroup.org/event/virtual-caregiver-support-group-3/2021-03-31/
CATEGORIES:Events,Support Group
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/01/Caregiver-Support-Group.png
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20210331T180000
DTEND;TZID=America/New_York:20210331T180000
DTSTAMP:20260403T154658
CREATED:20210303T125152Z
LAST-MODIFIED:20210303T125152Z
UID:10000133-1617213600-1617213600@liferaftgroup.org
SUMMARY:'Let's Get the GIST of It' Series
DESCRIPTION:The Life Raft Group is excited to share our new initiative called“Let’s Get the GIST of It”. During this recurring online event\, patients and caregivers can participate and share their overall experiences (good or bad) of their current treatment.\n\nThe goal of this initiative is to discuss key topics that will provide patients and caregivers with insight about their current treatment.We will discuss topics like side effects\, dosages\, scans\, and support.You will also have the opportunity to interact and connect with patients like you that are taking the same drug or experiencing the same side effects.Big or small\, all input is important and we would love for you to be part of this initiative.\n\n\nIf you or a loved one is currently taking Ayvakit or is looking to learn more about it\, please register for this event.\n\n\nThe 3/31/21 meeting meeting topic will be AYVAKIT (avapritinib).\n\nDate: 03/31/2021\nTime: 6:00pm ET\n\nREGISTER
URL:https://liferaftgroup.org/event/lets-get-the-gist-of-it-series/
CATEGORIES:Events,Support Group
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2021/03/lets-get-to-the-gist-of-it-v2.jpg
ORGANIZER;CN="Denisse Montoya":MAILTO:dmontoya@liferafdtgroup.org
END:VEVENT
END:VCALENDAR