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DTSTART;TZID=America/New_York:20211102T180000
DTEND;TZID=America/New_York:20211102T193000
DTSTAMP:20260403T174031
CREATED:20210118T181321Z
LAST-MODIFIED:20220323T125554Z
UID:10000105-1635876000-1635881400@liferaftgroup.org
SUMMARY:Virtual GISTer Support Group
DESCRIPTION:The group will meet via Zoom on the first Tuesday of each month from 6:00 PM – 7:30 PM EST (NYC Time). \nThe group open to those who have not been able to participate in the past\, for one reason or another. We will start each group with a “Round Robin” in which anyone who feels like updating the group on how they are doing/feeling can do so. There is no pressure to speak if you prefer to simply listen. Once we complete our updates\, the group will have the opportunity for organic conversation to develop in relation to our emotional experiences around GIST\, and other challenges that we may be experiencing as a community. \nIn order to be able to moderate a flowing discussion\, the group will be capped at 15 people each month. The first 15 people into the Zoom waiting room will participate. Keep in mind that since the group is now open\, you don’t necessarily have to attend each month to be  to participate. \nContact Diana Nieves to join: dnieves@liferaftgroup.org
URL:https://liferaftgroup.org/event/virtual-gister-support-group-4/2021-11-02/
CATEGORIES:Events
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/01/GISTer-SUPPORT-2021.png
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20211103T130000
DTEND;TZID=America/New_York:20211103T140000
DTSTAMP:20260403T174031
CREATED:20210625T145842Z
LAST-MODIFIED:20210625T145842Z
UID:10000154-1635944400-1635948000@liferaftgroup.org
SUMMARY:Virtual Caregiver Support Group
DESCRIPTION:Bi-Weekly Support Group for GIST Caregivers.\nHeld first & third Wednesdays of the month\nAs we continue to navigate this uncertain time together\, we want to offer you a little extra support. LRG has a twice monthly support group for the caregivers facilitated by Marlene Nei\, GIST Caregiver. To continue social distancing and connecting with caregivers across the United States\, we will use an electronic platform to gather as a group. We will talk about all the feelings you might be experiencing\, both in relation to GIST\, and COVID-19. \nWe will share our stories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling because of this unprecedented time. The group will be a safe space not only to feel supported by your fellow caregivers\, but also a place to share our own coping mechanisms to get us through this stressful time. All information shared will be kept confidential. Contact Diana Nieves at dnieves@liferaftgroup.org for more information. \n\nPlease email Diana Nieves at dnieves@liferaftgroup.org to join this meeting.\n\nAbout the Group Leader:\nMarlene Nei\, GIST Caregiver\nAs an active member of the Life Raft Group\, Marlene advocates for the needs of the caregiver community because she feels they are an underrepresented group. It is her mission to advocate for the entire GIST community making sure they are equipped with the appropriate resources on their GIST journey.
URL:https://liferaftgroup.org/event/virtual-caregiver-support-group-13/
CATEGORIES:Events,Support Group
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2021/06/Caregiver-Support-Group.jpg
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20211104T080000
DTEND;TZID=America/New_York:20211104T080000
DTSTAMP:20260403T174031
CREATED:20210714T140522Z
LAST-MODIFIED:20210714T140522Z
UID:10000161-1636012800-1636012800@liferaftgroup.org
SUMMARY:New Member Orientation - Virtual
DESCRIPTION:This meeting will take place at 8am & 12pm ET every 1st Thursday.\nAre you a new LRG member and looking for guidance on all the things the Life Raft Group has to offer? Join us for a virtual orientation to hear from staff about our services and have the opportunity to ask questions and meet other new members. \nSign Up For Meeting Date
URL:https://liferaftgroup.org/event/new-member-orientation-virtual/2021-11-04/
CATEGORIES:Education,Events
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2021/07/orientation-meeting-2021.jpg
ORGANIZER;CN="The Life Raft Group":MAILTO:liferaft@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20211104T120000
DTEND;TZID=America/New_York:20211104T120000
DTSTAMP:20260403T174031
CREATED:20210714T140637Z
LAST-MODIFIED:20210714T140637Z
UID:10000166-1636027200-1636027200@liferaftgroup.org
SUMMARY:New Member Orientation - Virtual
DESCRIPTION:This meeting will take place at 8am & 12pm ET every 1st Thursday.\nAre you a new LRG member and looking for guidance on all the things the Life Raft Group has to offer? Join us for a virtual orientation to hear from staff about our services and have the opportunity to ask questions and meet other new members. \nSign Up For Meeting Date
URL:https://liferaftgroup.org/event/new-member-orientation-virtual-2/2021-11-04/
CATEGORIES:Education,Events
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2021/07/orientation-meeting-2021.jpg
ORGANIZER;CN="The Life Raft Group":MAILTO:liferaft@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20211106T100000
DTEND;TZID=America/New_York:20211106T120000
DTSTAMP:20260403T174031
CREATED:20211004T190529Z
LAST-MODIFIED:20211026T154811Z
UID:10000173-1636192800-1636200000@liferaftgroup.org
SUMMARY:GDOL New York City/New Jersey - Virtual
DESCRIPTION:This virtual meeting is for GISTers in the NY-NJ area.\n \nA GIST Day of Learning (GDOL) is a free one day event to help patients and caregivers learn more about this rare cancer\, find support\, and enhance their knowledge base to help them navigate their cancer journey. \nThe Life Raft Group has a simple focus: to cure a form of cancer — GIST — and to help those living with it until then. To do this\, the Life Raft Group focuses on three key areas: research\, patient support & education\, and advocacy\, which lay the foundation of our mission to ensure the survival of GIST patients through a comprehensive approach connecting individual patients’ needs\, the worldwide community of GIST advocates and the global health and research environment. \nREGISTERThank you to our sponsors for this event:
URL:https://liferaftgroup.org/event/gdol-nyc-2021/
CATEGORIES:Events
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/10/gdol-ny-nj.png
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20211117T130000
DTEND;TZID=America/New_York:20211117T140000
DTSTAMP:20260403T174031
CREATED:20210625T144922Z
LAST-MODIFIED:20210625T150055Z
UID:10000150-1637154000-1637157600@liferaftgroup.org
SUMMARY:Virtual Caregiver Support Group
DESCRIPTION:Bi-Weekly Support Group for GIST Caregivers.\nHeld first & third Wednesdays of the month\nAs we continue to navigate this uncertain time together\, we want to offer you a little extra support. LRG has a twice monthly support group for the caregivers facilitated by Marlene Nei\, GIST Caregiver. To continue social distancing and connecting with caregivers across the United States\, we will use an electronic platform to gather as a group. We will talk about all the feelings you might be experiencing\, both in relation to GIST\, and COVID-19. \nWe will share our stories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling because of this unprecedented time. The group will be a safe space not only to feel supported by your fellow caregivers\, but also a place to share our own coping mechanisms to get us through this stressful time. All information shared will be kept confidential. Contact Diana Nieves at dnieves@liferaftgroup.org for more information. \n\nPlease email Diana Nieves at dnieves@liferaftgroup.org to join this meeting.\n\nAbout the Group Leader:\nMarlene Nei\, GIST Caregiver\nAs an active member of the Life Raft Group\, Marlene advocates for the needs of the caregiver community because she feels they are an underrepresented group. It is her mission to advocate for the entire GIST community making sure they are equipped with the appropriate resources on their GIST journey.
URL:https://liferaftgroup.org/event/virtual-caregiver-support-group-9/
CATEGORIES:Events,Support Group
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2021/06/Caregiver-Support-Group.jpg
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20211118T130000
DTEND;TZID=America/New_York:20211118T141500
DTSTAMP:20260403T174031
CREATED:20211013T191553Z
LAST-MODIFIED:20211101T192901Z
UID:10000174-1637240400-1637244900@liferaftgroup.org
SUMMARY:Immunotherapy and GIST
DESCRIPTION:As the landscape of GIST treatment continues to evolve\, the area of immunotherapy has grown interest. GIST contains tumor-infiltrating immune cells which opens the possibility to the rationale for immunotherapy treatments. This webinar will provide an overview of immunotherapy with some examples of studies exploring single agent versus combination of therapy in GIST. \n\nIf you have questions about this presentation\nor about registration\, please contact:\nSara Rothschild\, VP Program Services\, srothschild@liferaftgroup.org\nREGISTEROur Presenters\n\nJonathan Trent\, MD\nDirector\, Sarcoma Oncology\nSylvester Comprehensive Cancer Center\nMiami\, Florida \nDr. Trent is currently the Associate Director for Clinical Research\, the Director of the Bone and Soft-tissue Sarcoma Group at the Sylvester Comprehensive Cancer Center. Dr. Trent’s interests are in the clinical and translational research of sarcomas\, direct care of sarcoma patients\, and education about sarcoma. As Associate Director for Clinical Research\, his goal is to help Sylvester Faculty develop clinical trials that provide clinically effective and scientifically exciting therapy to cancer patients of South Florida and beyond. The major focus of his clinical\, educational and research efforts are with gastrointestinal stromal tumor (GIST)\, chondrosarcoma\, and other sarcomas. The major efforts of Dr. Trent’s research focus on understanding the mechanisms of action and resistance of imatinib in GIST and other sarcomas while striving toward improved therapeutic options. His work involves the use of novel preoperative/postoperative clinical trials\, prospectively acquired tumor tissue\, cell lines\, archival tissue\, as well as collaborations with disciplines such as the genomics facility\, surgical oncology\, pathology\, radiology and interventional radiology. \nJunaid Arshad\, MD\nAssistant Professor & Clinical Scholar\nUniversity of Arizona Cancer Center\nTucson\, Arizona\n \nDr. Arshad finished his medical degree from King Edward Medical University\, Lahore Pakistan. He relocated to the United States in 2013 and worked as a research volunteer at Wayne State University\, Detroit. After completing his internal medicine residency training from St. Mary’s Hospital Waterbury\, CT\, he moved to University of Miami for his hematology and medical oncology fellowship. \nDr. Arshad developed interest in Gastrointestinal Stromal Tumors (GIST) after working with Dr. Jonathan Trent who was also his mentor at the University of Miami. Dr. Arshad has published several peer reviewed publications focusing on the use of ctDNA in GIST. Currently Dr. Arshad is working as an Assistant Professor at University of Arizona Cancer Center in the field of GI Medical Oncology focusing on the GIST and Upper GI cancers. \nArun Singh\, MD\nOncologist\, Sarcoma and Connective Tissue Medical Oncology\nUniversity of California Los Angeles Medical Center\nSan Monica\, California\n \nDr. Singh is an associate professor in the Department of Medicine\, Division of Hematology/Oncology at the David Geffen School of Medicine UCLA. Dr Singh is a hematologist and medical oncologist whose practice focuses on the treatment of bone and soft tissue sarcomas. Dr Singh’s research focus is on developing novel therapies for patients with sarcomas. In the preclinical setting\, he works on elucidating the mechanisms contributing to the promotion of growth in cancer cells and optimizing the use of targeted therapy in specific sarcoma subtypes. The insights gained from these efforts are then translated into the clinic in the form of new drugs in early stage phase 1 and 2 clinical trials for sarcomas where there is an unmet clinical need. \nRonald DeMatteo\, MD\, FACS\nSurgeon\, Endocrinology and Oncology\nPenn Medicine\nPhiladelphia\, Pennsylvania \nDr. DeMatteo is the Chairman of the Department of Surgery and a Surgical Oncologist who specializes in treating diseases of the liver\, bile duct\, gallbladder\, pancreas and abdominal sarcomas (GIST). His clinical research has focused on liver\, bile duct\, gallbladder\, and pancreas cancers. In addition\, he has led several national trials testing the benefit of imatinib mesylate (Gleevec) following surgery for gastrointestinal stromal tumor (GIST)\, a tumor that usually begins in the stomach or intestine. In the laboratory he and his colleagues study the immune environment of the liver and tumor immunology\, working to develop immune therapies to help prevent tumors from returning after surgery. \nThank you to our sponsors!
URL:https://liferaftgroup.org/event/immunotherapy-and-gist/
CATEGORIES:Events,Research
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20211120T140000
DTEND;TZID=America/New_York:20211120T163000
DTSTAMP:20260403T174031
CREATED:20211109T182713Z
LAST-MODIFIED:20211109T182713Z
UID:10000177-1637416800-1637425800@liferaftgroup.org
SUMMARY:GISTLearn Online - GIST Sarcoma Life Raft Group Canada
DESCRIPTION:GIST Sarcoma Life Raft Group Canada (LRGC) is pleased to invite you to register for our “GIST LEARN Online” virtual meeting on Saturday\, November 20\, 2021. The Annual General Meeting meeting will be held at the beginning of the videoconference. \nFor the past thirteen years\, Life Raft Group Canada has been hosting GIST patient and caregiver meetings to provide support and education for those living with GIST. These events are open to GIST patients\, caregivers\, family members\, friends\, healthcare providers\, and anyone who wishes to learn more about GIST. \nLRGC Annual General Meeting\nLRGC members have already been notified about our AGM. Everyone attending the November 20th GIST LEARN Online\, is also welcome to attend the AGM portion of the meeting\, although only LRGC members can participate in the voting procedures. Again this year\, voting at the AGM will be conducted using Zoom polling. \nNew Horizons GIST 2021 Conference\nThe New Horizons GIST conferences traditionally focus on large annual meetings gathering over 50 representatives from 30 countries to discuss critical information that impacts the global GIST patient and medical communities. \nIf you have any questions or would like more information\, please don’t hesitate to contact LRGC at malcolm.sutherland@liferaftgroup.ca \nREGISTERSpeakers\nJoanna Przybyl\, PhD\nAssistant Professor\, Department of Surgery\, McGill University\nPrincipal Investigator\, Cancer Research Program\, Research Institute – McGill University Health Centre\nDavid Josephy\, PhD\nPresident\, GIST Sarcoma Life Raft Group Canada\nProfessor of Molecular and Cellular Biology\, retired.\nDavid has been involved with GIST for the past 20+ years\nHazel McLeod\nDirector\, GIST Sarcoma Life Raft Group Canada.\nSince 2018\, Hazel has been leading roundtable discussions\nwith GIST patients and caregivers across Canada
URL:https://liferaftgroup.org/event/gistlearn-online-gist-sarcoma-life-raft-group-canada/
CATEGORIES:Education,Events
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/11/gist-learn-canada-2021.png
ORGANIZER;CN="Malcolm Sutherland%2C GIST Sarcoma Life Raft Group Canada":MAILTO:malcolm.sutherland@liferaftgroup.ca
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20211201T130000
DTEND;TZID=America/New_York:20211201T140000
DTSTAMP:20260403T174031
CREATED:20210625T145111Z
LAST-MODIFIED:20210625T145459Z
UID:10000152-1638363600-1638367200@liferaftgroup.org
SUMMARY:Virtual Caregiver Support Group
DESCRIPTION:Bi-Weekly Support Group for GIST Caregivers.\nHeld first & third Wednesdays of the month\nAs we continue to navigate this uncertain time together\, we want to offer you a little extra support. LRG has a twice monthly support group for the caregivers facilitated by Marlene Nei\, GIST Caregiver. To continue social distancing and connecting with caregivers across the United States\, we will use an electronic platform to gather as a group. We will talk about all the feelings you might be experiencing\, both in relation to GIST\, and COVID-19. \nWe will share our stories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling because of this unprecedented time. The group will be a safe space not only to feel supported by your fellow caregivers\, but also a place to share our own coping mechanisms to get us through this stressful time. All information shared will be kept confidential. Contact Diana Nieves at dnieves@liferaftgroup.org for more information. \n\nPlease email Diana Nieves at dnieves@liferaftgroup.org to join this meeting.\n\nAbout the Group Leader:\nMarlene Nei\, GIST Caregiver\nAs an active member of the Life Raft Group\, Marlene advocates for the needs of the caregiver community because she feels they are an underrepresented group. It is her mission to advocate for the entire GIST community making sure they are equipped with the appropriate resources on their GIST journey.
URL:https://liferaftgroup.org/event/virtual-caregiver-support-group-11/
CATEGORIES:Events,Support Group
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2021/06/Caregiver-Support-Group.jpg
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20211202T080000
DTEND;TZID=America/New_York:20211202T080000
DTSTAMP:20260403T174031
CREATED:20210714T140522Z
LAST-MODIFIED:20210714T140522Z
UID:10000162-1638432000-1638432000@liferaftgroup.org
SUMMARY:New Member Orientation - Virtual
DESCRIPTION:This meeting will take place at 8am & 12pm ET every 1st Thursday.\nAre you a new LRG member and looking for guidance on all the things the Life Raft Group has to offer? Join us for a virtual orientation to hear from staff about our services and have the opportunity to ask questions and meet other new members. \nSign Up For Meeting Date
URL:https://liferaftgroup.org/event/new-member-orientation-virtual/2021-12-02/
CATEGORIES:Education,Events
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2021/07/orientation-meeting-2021.jpg
ORGANIZER;CN="The Life Raft Group":MAILTO:liferaft@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20211202T120000
DTEND;TZID=America/New_York:20211202T120000
DTSTAMP:20260403T174031
CREATED:20210714T140637Z
LAST-MODIFIED:20210714T140637Z
UID:10000167-1638446400-1638446400@liferaftgroup.org
SUMMARY:New Member Orientation - Virtual
DESCRIPTION:This meeting will take place at 8am & 12pm ET every 1st Thursday.\nAre you a new LRG member and looking for guidance on all the things the Life Raft Group has to offer? Join us for a virtual orientation to hear from staff about our services and have the opportunity to ask questions and meet other new members. \nSign Up For Meeting Date
URL:https://liferaftgroup.org/event/new-member-orientation-virtual-2/2021-12-02/
CATEGORIES:Education,Events
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2021/07/orientation-meeting-2021.jpg
ORGANIZER;CN="The Life Raft Group":MAILTO:liferaft@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20211207T180000
DTEND;TZID=America/New_York:20211207T193000
DTSTAMP:20260403T174031
CREATED:20210118T181321Z
LAST-MODIFIED:20220323T125554Z
UID:10000106-1638900000-1638905400@liferaftgroup.org
SUMMARY:Virtual GISTer Support Group
DESCRIPTION:The group will meet via Zoom on the first Tuesday of each month from 6:00 PM – 7:30 PM EST (NYC Time). \nThe group open to those who have not been able to participate in the past\, for one reason or another. We will start each group with a “Round Robin” in which anyone who feels like updating the group on how they are doing/feeling can do so. There is no pressure to speak if you prefer to simply listen. Once we complete our updates\, the group will have the opportunity for organic conversation to develop in relation to our emotional experiences around GIST\, and other challenges that we may be experiencing as a community. \nIn order to be able to moderate a flowing discussion\, the group will be capped at 15 people each month. The first 15 people into the Zoom waiting room will participate. Keep in mind that since the group is now open\, you don’t necessarily have to attend each month to be  to participate. \nContact Diana Nieves to join: dnieves@liferaftgroup.org
URL:https://liferaftgroup.org/event/virtual-gister-support-group-4/2021-12-07/
CATEGORIES:Events
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/01/GISTer-SUPPORT-2021.png
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20211211T100000
DTEND;TZID=America/New_York:20211211T100000
DTSTAMP:20260403T174031
CREATED:20211026T151822Z
LAST-MODIFIED:20211101T194056Z
UID:10000176-1639216800-1639216800@liferaftgroup.org
SUMMARY:GDOL Pittsburgh - Virtual
DESCRIPTION:A GIST Day of Learning (GDOL) is a free one day event to help patients and caregivers learn more about this rare cancer\, find support\, and enhance their knowledge base to help them navigate their cancer journey. \nThe Life Raft Group has a simple focus: to cure a form of cancer — GIST — and to help those living with it until then. To do this\, the Life Raft Group focuses on three key areas: research\, patient support & education\, and advocacy\, which lay the foundation of our mission to ensure the survival of GIST patients through a comprehensive approach connecting individual patients’ needs\, the worldwide community of GIST advocates and the global health and research environment. \nIf you have any questions\, please contact Diana Nieves at dnieves@liferaftgroup.org \nREGISTERThank you to our sponsors for this event:
URL:https://liferaftgroup.org/event/gdol-pittsburgh-virtual/
CATEGORIES:Education,Events
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2021/10/GDOL-Pittsburgh-2021.jpg
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20211215T130000
DTEND;TZID=America/New_York:20211215T140000
DTSTAMP:20260403T174031
CREATED:20210625T145716Z
LAST-MODIFIED:20210625T145716Z
UID:10000153-1639573200-1639576800@liferaftgroup.org
SUMMARY:Virtual Caregiver Support Group
DESCRIPTION:Bi-Weekly Support Group for GIST Caregivers.\nHeld first & third Wednesdays of the month\nAs we continue to navigate this uncertain time together\, we want to offer you a little extra support. LRG has a twice monthly support group for the caregivers facilitated by Marlene Nei\, GIST Caregiver. To continue social distancing and connecting with caregivers across the United States\, we will use an electronic platform to gather as a group. We will talk about all the feelings you might be experiencing\, both in relation to GIST\, and COVID-19. \nWe will share our stories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling because of this unprecedented time. The group will be a safe space not only to feel supported by your fellow caregivers\, but also a place to share our own coping mechanisms to get us through this stressful time. All information shared will be kept confidential. Contact Diana Nieves at dnieves@liferaftgroup.org for more information. \n\nPlease email Diana Nieves at dnieves@liferaftgroup.org to join this meeting.\n\nAbout the Group Leader:\nMarlene Nei\, GIST Caregiver\nAs an active member of the Life Raft Group\, Marlene advocates for the needs of the caregiver community because she feels they are an underrepresented group. It is her mission to advocate for the entire GIST community making sure they are equipped with the appropriate resources on their GIST journey.
URL:https://liferaftgroup.org/event/virtual-caregiver-support-group-12/
CATEGORIES:Events,Support Group
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2021/06/Caregiver-Support-Group.jpg
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220104T180000
DTEND;TZID=America/New_York:20220104T193000
DTSTAMP:20260403T174031
CREATED:20210118T181321Z
LAST-MODIFIED:20220323T125554Z
UID:10000107-1641319200-1641324600@liferaftgroup.org
SUMMARY:Virtual GISTer Support Group
DESCRIPTION:The group will meet via Zoom on the first Tuesday of each month from 6:00 PM – 7:30 PM EST (NYC Time). \nThe group open to those who have not been able to participate in the past\, for one reason or another. We will start each group with a “Round Robin” in which anyone who feels like updating the group on how they are doing/feeling can do so. There is no pressure to speak if you prefer to simply listen. Once we complete our updates\, the group will have the opportunity for organic conversation to develop in relation to our emotional experiences around GIST\, and other challenges that we may be experiencing as a community. \nIn order to be able to moderate a flowing discussion\, the group will be capped at 15 people each month. The first 15 people into the Zoom waiting room will participate. Keep in mind that since the group is now open\, you don’t necessarily have to attend each month to be  to participate. \nContact Diana Nieves to join: dnieves@liferaftgroup.org
URL:https://liferaftgroup.org/event/virtual-gister-support-group-4/2022-01-04/
CATEGORIES:Events
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/01/GISTer-SUPPORT-2021.png
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220105T130000
DTEND;TZID=America/New_York:20220105T140000
DTSTAMP:20260403T174031
CREATED:20211230T190819Z
LAST-MODIFIED:20230525T182345Z
UID:10000190-1641387600-1641391200@liferaftgroup.org
SUMMARY:Virtual Caregiver Support Group
DESCRIPTION: A Bi-Weekly Virtual Support Group for GIST Caregivers\nHeld on the first & third Wednesdays of the month\nAs we continue to navigate this uncertain time together\, we want to offer you a little extra support. LRG has a twice monthly support group for the caregivers facilitated by Marlene Nei\, GIST Caregiver. To continue social distancing and connecting with caregivers across the United States\, we will use an electronic platform to gather as a group. We will talk about all the feelings you might be experiencing\, both in relation to GIST\, and COVID-19. \nWe will share our stories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling because of this unprecedented time. The group will be a safe space not only to feel supported by your fellow caregivers\, but also a place to share our own coping mechanisms to get us through this stressful time. All information shared will be kept confidential. Contact Diana Nieves at dnieves@liferaftgroup.org for more information. \n\nPlease email Diana Nieves at dnieves@liferaftgroup.org to join this meeting.\n\nAbout the Group Leader:\nMarlene Nei\, GIST Caregiver\nAs an active member of the Life Raft Group\, Marlene advocates for the needs of the caregiver community because she feels they are an underrepresented group. It is her mission to advocate for the entire GIST community making sure they are equipped with the appropriate resources on their GIST journey.
URL:https://liferaftgroup.org/event/virtual-caregiver-support-group-2022-1/2022-01-05/
CATEGORIES:Events
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2021/06/Caregiver-Support-Group.jpg
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220106T120000
DTEND;TZID=America/New_York:20220106T130000
DTSTAMP:20260403T174031
CREATED:20211217T160325Z
LAST-MODIFIED:20220106T144522Z
UID:10000178-1641470400-1641474000@liferaftgroup.org
SUMMARY:The Value of Biomarker Testing: Case Studies
DESCRIPTION:Case Studies Across Multiple Institutions\nUnderstanding the role of mutations and biomarker testing in GIST is one of most important things that GIST patients need to learn. Knowing the driving force behind each individual’s tumors is not just important\, it is critical. In this webinar\, you will hear case study presentations from three top sarcoma institutions that demonstrate the value of biomarker testing. A Question & Answer session will follow the presentations. \nREGISTERPresenters:\nPrapassorn Thirasastr\, MD\, MSc\nPost doctorate Fellow\nSarcoma Medical Oncology Department\nThe University of Texas MD Anderson Cancer Center\, Texas \nDr. Thirasastr graduated from faculty of medicine\, Chulalongkorn University in Bangkok\, Thailand. She had trained at King Chulalongkorn Memorial Hospital\, Bangkok\, Thailand for 6 years and received board certification in both Internal Medicine and Medical Oncology. Also\, she had awarded a Higher Graduate Diploma of Clinical Sciences and Master of Sciences degree from Chulalongkorn University in 2016 and 2018\, respectively. Dr. Thirasastr had practiced as a medical oncologist in Thailand for 2 years before joining post-doctoral research program in MD Anderson Cancer Center under Dr. Neeta Somaiah\, an Associate Professor of Sarcoma Medical Oncology and Deputy Chair in Division of Cancer Medicine at University of Texas MD Anderson Cancer Center\, as her Mentor.Currently her researches focus on sarcoma\, especially liposarcoma\, and GISTs and she has engaged in both clinical and basic science research projects. \n\nSteven Bialick\, DO\nSylvester Comprehensive Cancer Center\, Miami \nSteve Bialick\, DO is a second-year hematology/oncology fellow at Jackson Memorial Hospital and the University of Miami/Sylvester Comprehensive Cancer Center in Miami\, FL.  He completed his internal medicine residency within the University of Pennsylvania Health System before working as a hematologic malignancy hospitalist at the Hospital of the University of Pennsylvania in Philadelphia\, PA.  He is now completing his oncology training with a focus on solid tumor malignancies\, specifically soft tissue and bone sarcomas.  His research interests include hereditary cancer predisposition syndromes\, circulating tumor DNA and its role in guiding targeted therapies\, and the role of DNA damage repair pathways in sarcomas. \n\nDr. Dixon Dorand\, MD\, PhD\nClinical Fellow\nVanderbilt University Medical Center \nDr. R. Dixon Dorand\, Jr.\, MD\, PhD completed his graduate studies at Case Western Reserve University in Cleveland\, OH. His research with Dr. Alex Huang\, MD\, PhD at Rainbow Babies and Children’s Hospital focused on understanding the mechanisms regulating immune therapy in adolescent and young adult cancers. Specifically\, he investigated the signaling pathways that alter gene expression involved in regulating responses to immune checkpoint therapy as well as the role of nanoparticles for drug delivery. After graduation\, he enrolled in the Physician Scientist Training Program at Vanderbilt University Medical Center where he completed his internal medicine residency training.   \nDr. Dorand is currently completing his medical oncology fellowship in the Molecular and Genetic Epidemiology of Cancer program at Vanderbilt Ingram Cancer Center (VICC). He works in the laboratory of Dr. Ben H. Park\, MD\, PhD where he uses a basic science approach to interrogate how mutations that regulate genetic machinery can be manipulated for therapeutic benefit. He also uses genetic profiling to determine which tumor mutations contribute to chemotherapy resistance in sarcomas. Clinically\, he collaborates with Dr. Elizabeth Davis\, MD & Dr. Vicki Keedy\, MD at VICC to characterize mutations in patient tumor samples in GIST and other sarcoma types that may provide new therapeutic targets. He hopes to pursue a career focused on GIST and other soft tissue & bone sarcomas once he completes his formal training. 
URL:https://liferaftgroup.org/event/biomarker-testing-case-studies/
CATEGORIES:Events
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220119T130000
DTEND;TZID=America/New_York:20220119T140000
DTSTAMP:20260403T174031
CREATED:20211230T190313Z
LAST-MODIFIED:20221230T174626Z
UID:10000179-1642597200-1642600800@liferaftgroup.org
SUMMARY:Virtual Caregiver Support Group
DESCRIPTION: A Bi-Weekly Virtual Support Group for GIST Caregivers\nHeld on the first & third Wednesdays of the month\nAs we continue to navigate this uncertain time together\, we want to offer you a little extra support. LRG has a twice monthly support group for the caregivers facilitated by Marlene Nei\, GIST Caregiver. To continue social distancing and connecting with caregivers across the United States\, we will use an electronic platform to gather as a group. We will talk about all the feelings you might be experiencing\, both in relation to GIST\, and COVID-19. \nWe will share our stories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling because of this unprecedented time. The group will be a safe space not only to feel supported by your fellow caregivers\, but also a place to share our own coping mechanisms to get us through this stressful time. All information shared will be kept confidential. Contact Diana Nieves at dnieves@liferaftgroup.org for more information. \n\nPlease email Diana Nieves at dnieves@liferaftgroup.org to join this meeting.\n\nAbout the Group Leader:\nMarlene Nei\, GIST Caregiver\nAs an active member of the Life Raft Group\, Marlene advocates for the needs of the caregiver community because she feels they are an underrepresented group. It is her mission to advocate for the entire GIST community making sure they are equipped with the appropriate resources on their GIST journey.
URL:https://liferaftgroup.org/event/virtual-caregiver-support-group-2022-2/2022-01-19/
CATEGORIES:Events
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2021/06/Caregiver-Support-Group.jpg
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Phoenix:20220127T140000
DTEND;TZID=America/Phoenix:20220127T160000
DTSTAMP:20260403T174031
CREATED:20211026T151755Z
LAST-MODIFIED:20211209T170258Z
UID:10000175-1643292000-1643299200@liferaftgroup.org
SUMMARY:GDOL Arizona - Virtual
DESCRIPTION:GDOL Arizona Virtual is January 27th\, 2pm – 4pm MT/4pm – 6pm ET\nA GIST Day of Learning (GDOL) is a free one day event to help patients and caregivers learn more about this rare cancer\, find support\, and enhance their knowledge base to help them navigate their cancer journey. \nThe Life Raft Group has a simple focus: to cure a form of cancer — GIST — and to help those living with it until then. To do this\, the Life Raft Group focuses on three key areas: research\, patient support & education\, and advocacy\, which lay the foundation of our mission to ensure the survival of GIST patients through a comprehensive approach connecting individual patients’ needs\, the worldwide community of GIST advocates and the global health and research environment. \nIf you have any questions\, please contact Diana Nieves at dnieves@liferaftgroup.org \nREGISTERThank you to our sponsors for this event:
URL:https://liferaftgroup.org/event/gdol-arizona-virtual/
CATEGORIES:Education,Events
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2021/10/GDOL-Arizona-2021.jpg
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220201T180000
DTEND;TZID=America/New_York:20220201T193000
DTSTAMP:20260403T174031
CREATED:20210118T181321Z
LAST-MODIFIED:20220323T125554Z
UID:10000108-1643738400-1643743800@liferaftgroup.org
SUMMARY:Virtual GISTer Support Group
DESCRIPTION:The group will meet via Zoom on the first Tuesday of each month from 6:00 PM – 7:30 PM EST (NYC Time). \nThe group open to those who have not been able to participate in the past\, for one reason or another. We will start each group with a “Round Robin” in which anyone who feels like updating the group on how they are doing/feeling can do so. There is no pressure to speak if you prefer to simply listen. Once we complete our updates\, the group will have the opportunity for organic conversation to develop in relation to our emotional experiences around GIST\, and other challenges that we may be experiencing as a community. \nIn order to be able to moderate a flowing discussion\, the group will be capped at 15 people each month. The first 15 people into the Zoom waiting room will participate. Keep in mind that since the group is now open\, you don’t necessarily have to attend each month to be  to participate. \nContact Diana Nieves to join: dnieves@liferaftgroup.org
URL:https://liferaftgroup.org/event/virtual-gister-support-group-4/2022-02-01/
CATEGORIES:Events
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/01/GISTer-SUPPORT-2021.png
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220202T130000
DTEND;TZID=America/New_York:20220202T140000
DTSTAMP:20260403T174031
CREATED:20211230T190819Z
LAST-MODIFIED:20230525T182345Z
UID:10000191-1643806800-1643810400@liferaftgroup.org
SUMMARY:Virtual Caregiver Support Group
DESCRIPTION: A Bi-Weekly Virtual Support Group for GIST Caregivers\nHeld on the first & third Wednesdays of the month\nAs we continue to navigate this uncertain time together\, we want to offer you a little extra support. LRG has a twice monthly support group for the caregivers facilitated by Marlene Nei\, GIST Caregiver. To continue social distancing and connecting with caregivers across the United States\, we will use an electronic platform to gather as a group. We will talk about all the feelings you might be experiencing\, both in relation to GIST\, and COVID-19. \nWe will share our stories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling because of this unprecedented time. The group will be a safe space not only to feel supported by your fellow caregivers\, but also a place to share our own coping mechanisms to get us through this stressful time. All information shared will be kept confidential. Contact Diana Nieves at dnieves@liferaftgroup.org for more information. \n\nPlease email Diana Nieves at dnieves@liferaftgroup.org to join this meeting.\n\nAbout the Group Leader:\nMarlene Nei\, GIST Caregiver\nAs an active member of the Life Raft Group\, Marlene advocates for the needs of the caregiver community because she feels they are an underrepresented group. It is her mission to advocate for the entire GIST community making sure they are equipped with the appropriate resources on their GIST journey.
URL:https://liferaftgroup.org/event/virtual-caregiver-support-group-2022-1/2022-02-02/
CATEGORIES:Events
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2021/06/Caregiver-Support-Group.jpg
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220205T120000
DTEND;TZID=America/New_York:20220205T120000
DTSTAMP:20260403T174031
CREATED:20220119T195805Z
LAST-MODIFIED:20220120T154349Z
UID:10000202-1644062400-1644062400@liferaftgroup.org
SUMMARY:Let's Get to the GIST of It Series: Qinlock
DESCRIPTION:The Life Raft Group is excited to share our second segment of “Let’s Get the GIST of It”. \nIn this information session\, we will be discussing Qinlock (ripretinib). During this recurring online event\, patients and caregivers can participate and share their overall experiences (good or bad) with this treatment. The goal of this initiative is to discuss key topics that will provide patients and caregivers with insight about Qinlock (ripretinib). \nWe will discuss topics like side effects\, dosages\, and support. You will also have the opportunity to interact and connect with patients/caregivers like you\, that are taking the same drug or experiencing the same side effects. \nThis information session is open to anyone who has taken\, is taking\, or will be taking Qinlock/ripretinib. We also welcome patients and caregivers who just want more information regarding this drug. Big or small\, all input is important and we would love for you to be part of this program. \nIf you or a loved one is looking to learn more about Qinlock (ripretinib)\, please register for this event using the  button below \nDate: Feb. 5th\nTime: 12pm ET \nIf you have any questions\, please contact dmontoya@liferaftgroup.org \nREGISTER
URL:https://liferaftgroup.org/event/lets-get-to-the-gist-of-it-series-qinlock/
CATEGORIES:Education,Events
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2022/01/qinlock-webinar.png
ORGANIZER;CN="Denisse Montoya":MAILTO:dmontoya@liferafdtgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220216T130000
DTEND;TZID=America/New_York:20220216T140000
DTSTAMP:20260403T174031
CREATED:20211230T190313Z
LAST-MODIFIED:20221230T174626Z
UID:10000180-1645016400-1645020000@liferaftgroup.org
SUMMARY:Virtual Caregiver Support Group
DESCRIPTION: A Bi-Weekly Virtual Support Group for GIST Caregivers\nHeld on the first & third Wednesdays of the month\nAs we continue to navigate this uncertain time together\, we want to offer you a little extra support. LRG has a twice monthly support group for the caregivers facilitated by Marlene Nei\, GIST Caregiver. To continue social distancing and connecting with caregivers across the United States\, we will use an electronic platform to gather as a group. We will talk about all the feelings you might be experiencing\, both in relation to GIST\, and COVID-19. \nWe will share our stories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling because of this unprecedented time. The group will be a safe space not only to feel supported by your fellow caregivers\, but also a place to share our own coping mechanisms to get us through this stressful time. All information shared will be kept confidential. Contact Diana Nieves at dnieves@liferaftgroup.org for more information. \n\nPlease email Diana Nieves at dnieves@liferaftgroup.org to join this meeting.\n\nAbout the Group Leader:\nMarlene Nei\, GIST Caregiver\nAs an active member of the Life Raft Group\, Marlene advocates for the needs of the caregiver community because she feels they are an underrepresented group. It is her mission to advocate for the entire GIST community making sure they are equipped with the appropriate resources on their GIST journey.
URL:https://liferaftgroup.org/event/virtual-caregiver-support-group-2022-2/2022-02-16/
CATEGORIES:Events
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2021/06/Caregiver-Support-Group.jpg
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220222T120000
DTEND;TZID=America/New_York:20220222T120000
DTSTAMP:20260403T174031
CREATED:20220202T155920Z
LAST-MODIFIED:20220203T134700Z
UID:10000204-1645531200-1645531200@liferaftgroup.org
SUMMARY:Be an Informed Patient
DESCRIPTION:Navigating Survivorship Care\nFebruary 22 at 12pm ET \nThe Life Raft Group invites cancer patients and survivors and their caregivers to register for a webinar taking place on February 22\, 2022. The National Comprehensive Cancer Network (NCCN) has created guidelines specifically for patients and caregivers to help them navigate survivorship care. During this webinar\, NCCN’s Dr. Crystal Denlinger and Dottie Shead will review general principles of appropriate survivorship care and how to access and understand patient guidelines related to survivorship care\, so that all can ensure they are getting the appropriate care as cancer survivors. \nREGISTERAbout the Presenters\n\nDr. Crystal Denlinger\nSenior Vice President\, National Comprehensive Cancer Network \nCrystal Denlinger joined the National Comprehensive Cancer Network® (NCCN®) as Senior Vice President\, Chief Scientific Officer in April 2021. She oversees NCCN’s Oncology Research Program and the Drugs & Biologics and Biomarkers Compendia\, and provides\ninput into NCCN’s other programs. Prior to joining NCCN\, Dr. Denlinger was an Associate Professor of Hematology/Oncology at Fox Chase Cancer Center. In this capacity\, she served as the Chief of Gastrointestinal Medical Oncology where she managed the program’s clinical and research efforts\, the Deputy Director of the Early Phase Drug Development Program\, and Co-Director of the Survivorship Program. \nDr. Denlinger is a graduate of Rutgers New Jersey Medical School and The College of New Jersey\, where she earned her medical degree and bachelors of science. She completed her internal medicine residency at Mount Sinai Medical Center in New York City and her fellowship in hematology/oncology at Fox Chase Cancer Center/Temple University Hospital in Philadelphia. She is board certified in Internal Medicine and Medical Oncology. \nDr. Denlinger is a Fellow of the American College of Physicians (ACP) and a member of several medical societies\, including the American Society of Clinical Oncology (ASCO) and the European Society of Medical Oncology (ESMO). She has an extensive lecture and publication history\, with clinical and research interests including gastrointestinal cancers\, early phase drug development\, and cancer survivorship. \n\n\nDottie Shead\nSenior Director of Patient Information\, National Comprehensive Cancer Network \nIn this role\, Ms. Shead is responsible for production of the NCCN Guidelines for Patients. She monitors and maintains tracking schedules representing the status of the NCCN Guidelines for Patients in the development process and web publication. In addition\, Ms. Shead oversees the production of NCCN Programs affiliated with the NCCN Guidelines for Patients\, including the NCCN Know What Your Doctors Know Webinar series and NCCN Animations for Patients. \nMs. Shead joined NCCN in 2000 and served as a Guideline Coordinator responsible for the development\, update and publication of assigned NCCN Clinical Practice Guidelines. Dottie has a Master’s degree in Health Administration from St. Joseph’s University\, and a B.S. in Biology from Arcadia University.
URL:https://liferaftgroup.org/event/be-an-informed-patient-navigating-survivorship-care/
CATEGORIES:Education,Events
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2022/02/NCCN.png
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20220225T140000
DTEND;TZID=America/Chicago:20220225T140000
DTSTAMP:20260403T174031
CREATED:20220120T181416Z
LAST-MODIFIED:20220218T191416Z
UID:10000203-1645797600-1645797600@liferaftgroup.org
SUMMARY:GDOL Tennessee - Virtual
DESCRIPTION:GDOL Nashville Virtual is February 25th\, 2022\, 2pm to 4pm CT/ 3pm to 5pm ET\nA GIST Day of Learning (GDOL) is a free one day event to help patients and caregivers learn more about this rare cancer\, find support\, and enhance their knowledge base to help them navigate their cancer journey. \nThe Life Raft Group has a simple focus: to cure a form of cancer — GIST — and to help those living with it until then. To do this\, the Life Raft Group focuses on three key areas: research\, patient support & education\, and advocacy\, which lay the foundation of our mission to ensure the survival of GIST patients through a comprehensive approach connecting individual patients’ needs\, the worldwide community of GIST advocates and the global health and research environment. \nIf you have any questions\, please contact Diana Nieves at dnieves@liferaftgroup.org \nREGISTER \nThank you to our GDOL Sponsors:
URL:https://liferaftgroup.org/event/gdol-tennessee-virtual/
CATEGORIES:Education,Events
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2022/01/gdol-tennessee-2022.jpg
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220301T180000
DTEND;TZID=America/New_York:20220301T193000
DTSTAMP:20260403T174031
CREATED:20210118T181321Z
LAST-MODIFIED:20220323T125554Z
UID:10000109-1646157600-1646163000@liferaftgroup.org
SUMMARY:Virtual GISTer Support Group
DESCRIPTION:The group will meet via Zoom on the first Tuesday of each month from 6:00 PM – 7:30 PM EST (NYC Time). \nThe group open to those who have not been able to participate in the past\, for one reason or another. We will start each group with a “Round Robin” in which anyone who feels like updating the group on how they are doing/feeling can do so. There is no pressure to speak if you prefer to simply listen. Once we complete our updates\, the group will have the opportunity for organic conversation to develop in relation to our emotional experiences around GIST\, and other challenges that we may be experiencing as a community. \nIn order to be able to moderate a flowing discussion\, the group will be capped at 15 people each month. The first 15 people into the Zoom waiting room will participate. Keep in mind that since the group is now open\, you don’t necessarily have to attend each month to be  to participate. \nContact Diana Nieves to join: dnieves@liferaftgroup.org
URL:https://liferaftgroup.org/event/virtual-gister-support-group-4/2022-03-01/
CATEGORIES:Events
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/01/GISTer-SUPPORT-2021.png
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220302T130000
DTEND;TZID=America/New_York:20220302T140000
DTSTAMP:20260403T174031
CREATED:20211230T190819Z
LAST-MODIFIED:20230525T182345Z
UID:10000192-1646226000-1646229600@liferaftgroup.org
SUMMARY:Virtual Caregiver Support Group
DESCRIPTION: A Bi-Weekly Virtual Support Group for GIST Caregivers\nHeld on the first & third Wednesdays of the month\nAs we continue to navigate this uncertain time together\, we want to offer you a little extra support. LRG has a twice monthly support group for the caregivers facilitated by Marlene Nei\, GIST Caregiver. To continue social distancing and connecting with caregivers across the United States\, we will use an electronic platform to gather as a group. We will talk about all the feelings you might be experiencing\, both in relation to GIST\, and COVID-19. \nWe will share our stories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling because of this unprecedented time. The group will be a safe space not only to feel supported by your fellow caregivers\, but also a place to share our own coping mechanisms to get us through this stressful time. All information shared will be kept confidential. Contact Diana Nieves at dnieves@liferaftgroup.org for more information. \n\nPlease email Diana Nieves at dnieves@liferaftgroup.org to join this meeting.\n\nAbout the Group Leader:\nMarlene Nei\, GIST Caregiver\nAs an active member of the Life Raft Group\, Marlene advocates for the needs of the caregiver community because she feels they are an underrepresented group. It is her mission to advocate for the entire GIST community making sure they are equipped with the appropriate resources on their GIST journey.
URL:https://liferaftgroup.org/event/virtual-caregiver-support-group-2022-1/2022-03-02/
CATEGORIES:Events
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2021/06/Caregiver-Support-Group.jpg
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220316T130000
DTEND;TZID=America/New_York:20220316T140000
DTSTAMP:20260403T174031
CREATED:20211230T190313Z
LAST-MODIFIED:20221230T174626Z
UID:10000181-1647435600-1647439200@liferaftgroup.org
SUMMARY:Virtual Caregiver Support Group
DESCRIPTION: A Bi-Weekly Virtual Support Group for GIST Caregivers\nHeld on the first & third Wednesdays of the month\nAs we continue to navigate this uncertain time together\, we want to offer you a little extra support. LRG has a twice monthly support group for the caregivers facilitated by Marlene Nei\, GIST Caregiver. To continue social distancing and connecting with caregivers across the United States\, we will use an electronic platform to gather as a group. We will talk about all the feelings you might be experiencing\, both in relation to GIST\, and COVID-19. \nWe will share our stories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling because of this unprecedented time. The group will be a safe space not only to feel supported by your fellow caregivers\, but also a place to share our own coping mechanisms to get us through this stressful time. All information shared will be kept confidential. Contact Diana Nieves at dnieves@liferaftgroup.org for more information. \n\nPlease email Diana Nieves at dnieves@liferaftgroup.org to join this meeting.\n\nAbout the Group Leader:\nMarlene Nei\, GIST Caregiver\nAs an active member of the Life Raft Group\, Marlene advocates for the needs of the caregiver community because she feels they are an underrepresented group. It is her mission to advocate for the entire GIST community making sure they are equipped with the appropriate resources on their GIST journey.
URL:https://liferaftgroup.org/event/virtual-caregiver-support-group-2022-2/2022-03-16/
CATEGORIES:Events
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2021/06/Caregiver-Support-Group.jpg
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220324T190000
DTEND;TZID=America/New_York:20220324T210000
DTSTAMP:20260403T174031
CREATED:20220222T161702Z
LAST-MODIFIED:20220222T162617Z
UID:10000207-1648148400-1648155600@liferaftgroup.org
SUMMARY:GDOL North Carolina - Virtual
DESCRIPTION:GDOL North Carolina is March 24th – 7pm-9pm ET\nA GIST Day of Learning (GDOL) is a free one day event to help patients and caregivers learn more about this rare cancer\, find support\, and enhance their knowledge base to help them navigate their cancer journey. \nThe Life Raft Group has a simple focus: to cure a form of cancer — GIST — and to help those living with it until then. To do this\, the Life Raft Group focuses on three key areas: research\, patient support & education\, and advocacy\, which lay the foundation of our mission to ensure the survival of GIST patients through a comprehensive approach connecting individual patients’ needs\, the worldwide community of GIST advocates and the global health and research environment. \nIf you have any questions\, please contact Diana Nieves at dnieves@liferaftgroup.org \nREGISTER
URL:https://liferaftgroup.org/event/gdol-north-carolina-virtual/
CATEGORIES:Education,Events
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220405T180000
DTEND;TZID=America/New_York:20220405T193000
DTSTAMP:20260403T174031
CREATED:20210118T181321Z
LAST-MODIFIED:20220323T125554Z
UID:10000110-1649181600-1649187000@liferaftgroup.org
SUMMARY:Virtual GISTer Support Group
DESCRIPTION:The group will meet via Zoom on the first Tuesday of each month from 6:00 PM – 7:30 PM EST (NYC Time). \nThe group open to those who have not been able to participate in the past\, for one reason or another. We will start each group with a “Round Robin” in which anyone who feels like updating the group on how they are doing/feeling can do so. There is no pressure to speak if you prefer to simply listen. Once we complete our updates\, the group will have the opportunity for organic conversation to develop in relation to our emotional experiences around GIST\, and other challenges that we may be experiencing as a community. \nIn order to be able to moderate a flowing discussion\, the group will be capped at 15 people each month. The first 15 people into the Zoom waiting room will participate. Keep in mind that since the group is now open\, you don’t necessarily have to attend each month to be  to participate. \nContact Diana Nieves to join: dnieves@liferaftgroup.org
URL:https://liferaftgroup.org/event/virtual-gister-support-group-4/2022-04-05/
CATEGORIES:Events
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/01/GISTer-SUPPORT-2021.png
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
END:VCALENDAR