BEGIN:VCALENDAR VERSION:2.0 PRODID:-//The Life Raft Group - ECPv6.15.18//NONSGML v1.0//EN CALSCALE:GREGORIAN METHOD:PUBLISH X-ORIGINAL-URL:https://liferaftgroup.org X-WR-CALDESC:Events for The Life Raft Group REFRESH-INTERVAL;VALUE=DURATION:PT1H X-Robots-Tag:noindex X-PUBLISHED-TTL:PT1H BEGIN:VTIMEZONE TZID:America/New_York BEGIN:DAYLIGHT TZOFFSETFROM:-0500 TZOFFSETTO:-0400 TZNAME:EDT DTSTART:20200308T070000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0400 TZOFFSETTO:-0500 TZNAME:EST DTSTART:20201101T060000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:-0500 TZOFFSETTO:-0400 TZNAME:EDT DTSTART:20210314T070000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0400 TZOFFSETTO:-0500 TZNAME:EST DTSTART:20211107T060000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:-0500 TZOFFSETTO:-0400 TZNAME:EDT DTSTART:20220313T070000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0400 TZOFFSETTO:-0500 TZNAME:EST DTSTART:20221106T060000 END:STANDARD END:VTIMEZONE BEGIN:VTIMEZONE TZID:Europe/Amsterdam BEGIN:DAYLIGHT TZOFFSETFROM:+0100 TZOFFSETTO:+0200 TZNAME:CEST DTSTART:20200329T010000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:+0200 TZOFFSETTO:+0100 TZNAME:CET DTSTART:20201025T010000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:+0100 TZOFFSETTO:+0200 TZNAME:CEST DTSTART:20210328T010000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:+0200 TZOFFSETTO:+0100 TZNAME:CET DTSTART:20211031T010000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:+0100 TZOFFSETTO:+0200 TZNAME:CEST DTSTART:20220327T010000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:+0200 TZOFFSETTO:+0100 TZNAME:CET DTSTART:20221030T010000 END:STANDARD END:VTIMEZONE BEGIN:VTIMEZONE TZID:America/Los_Angeles BEGIN:DAYLIGHT TZOFFSETFROM:-0800 TZOFFSETTO:-0700 TZNAME:PDT DTSTART:20200308T100000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0700 TZOFFSETTO:-0800 TZNAME:PST DTSTART:20201101T090000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:-0800 TZOFFSETTO:-0700 TZNAME:PDT DTSTART:20210314T100000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0700 TZOFFSETTO:-0800 TZNAME:PST DTSTART:20211107T090000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:-0800 TZOFFSETTO:-0700 TZNAME:PDT DTSTART:20220313T100000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0700 TZOFFSETTO:-0800 TZNAME:PST DTSTART:20221106T090000 END:STANDARD END:VTIMEZONE BEGIN:VEVENT DTSTART;TZID=America/New_York:20210331T130000 DTEND;TZID=America/New_York:20210331T130000 DTSTAMP:20260403T171803 CREATED:20210119T153745Z LAST-MODIFIED:20210603T135810Z UID:10000121-1617195600-1617195600@liferaftgroup.org SUMMARY:Virtual Caregiver Support Group DESCRIPTION:Weekly Support Group for GIST Caregivers.\nHeld every Wednesday at 1pm ET beginning January 20\, 2021\nAs we continue to navigate this uncertain time together\, we want to offer you a little extra support. Every Wednesday at 1pm ET the LRG has a weekly support group for the caregivers facilitated by Marlene Nei\, GIST Caregiver. To continue social distancing and connecting with caregivers across the United States\, we will use an electronic platform\, to come together every week as a group. We will talk about all the feelings you might be experiencing\, both in relation to GIST\, and COVID-19. \nWe will share our stories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling because of this unprecedented time. The group will be a safe space not only to feel supported by your fellow caregivers\, but also a place to share our own coping mechanisms to get us through this stressful time. All information shared will be kept confidential. Contact Diana Nieves at dnieves@liferaftgroup.org for more information. \nPlease email Diana Nieves at dnieves@liferaftgroup.org to join this meeting.\nAbout the Group Leader:\nMarlene Nei\, GIST Caregiver \nAs an active member of the Life Raft Group\, Marlene advocates for the needs of the caregiver community because she feels they are an underrepresented group. It is her mission to advocate for the entire GIST community making sure they are equipped with the appropriate resources on their GIST journey. URL:https://liferaftgroup.org/event/virtual-caregiver-support-group-3/2021-03-31/ CATEGORIES:Events,Support Group ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/01/Caregiver-Support-Group.png ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20210331T180000 DTEND;TZID=America/New_York:20210331T180000 DTSTAMP:20260403T171803 CREATED:20210303T125152Z LAST-MODIFIED:20210303T125152Z UID:10000133-1617213600-1617213600@liferaftgroup.org SUMMARY:'Let's Get the GIST of It' Series DESCRIPTION:The Life Raft Group is excited to share our new initiative called“Let’s Get the GIST of It”. During this recurring online event\, patients and caregivers can participate and share their overall experiences (good or bad) of their current treatment.\n\nThe goal of this initiative is to discuss key topics that will provide patients and caregivers with insight about their current treatment.We will discuss topics like side effects\, dosages\, scans\, and support.You will also have the opportunity to interact and connect with patients like you that are taking the same drug or experiencing the same side effects.Big or small\, all input is important and we would love for you to be part of this initiative.\n\n\nIf you or a loved one is currently taking Ayvakit or is looking to learn more about it\, please register for this event.\n\n\nThe 3/31/21 meeting meeting topic will be AYVAKIT (avapritinib).\n\nDate: 03/31/2021\nTime: 6:00pm ET\n\nREGISTER URL:https://liferaftgroup.org/event/lets-get-the-gist-of-it-series/ CATEGORIES:Events,Support Group ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2021/03/lets-get-to-the-gist-of-it-v2.jpg ORGANIZER;CN="Denisse Montoya":MAILTO:dmontoya@liferafdtgroup.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20210406T180000 DTEND;TZID=America/New_York:20210406T193000 DTSTAMP:20260403T171803 CREATED:20210118T181321Z LAST-MODIFIED:20220323T125554Z UID:10000098-1617732000-1617737400@liferaftgroup.org SUMMARY:Virtual GISTer Support Group DESCRIPTION:The group will meet via Zoom on the first Tuesday of each month from 6:00 PM – 7:30 PM EST (NYC Time). \nThe group open to those who have not been able to participate in the past\, for one reason or another. We will start each group with a “Round Robin” in which anyone who feels like updating the group on how they are doing/feeling can do so. There is no pressure to speak if you prefer to simply listen. Once we complete our updates\, the group will have the opportunity for organic conversation to develop in relation to our emotional experiences around GIST\, and other challenges that we may be experiencing as a community. \nIn order to be able to moderate a flowing discussion\, the group will be capped at 15 people each month. The first 15 people into the Zoom waiting room will participate. Keep in mind that since the group is now open\, you don’t necessarily have to attend each month to be to participate. \nContact Diana Nieves to join: dnieves@liferaftgroup.org URL:https://liferaftgroup.org/event/virtual-gister-support-group-4/2021-04-06/ CATEGORIES:Events ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/01/GISTer-SUPPORT-2021.png ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20210407T130000 DTEND;TZID=America/New_York:20210407T130000 DTSTAMP:20260403T171803 CREATED:20210119T153745Z LAST-MODIFIED:20210603T135810Z UID:10000122-1617800400-1617800400@liferaftgroup.org SUMMARY:Virtual Caregiver Support Group DESCRIPTION:Weekly Support Group for GIST Caregivers.\nHeld every Wednesday at 1pm ET beginning January 20\, 2021\nAs we continue to navigate this uncertain time together\, we want to offer you a little extra support. Every Wednesday at 1pm ET the LRG has a weekly support group for the caregivers facilitated by Marlene Nei\, GIST Caregiver. To continue social distancing and connecting with caregivers across the United States\, we will use an electronic platform\, to come together every week as a group. We will talk about all the feelings you might be experiencing\, both in relation to GIST\, and COVID-19. \nWe will share our stories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling because of this unprecedented time. The group will be a safe space not only to feel supported by your fellow caregivers\, but also a place to share our own coping mechanisms to get us through this stressful time. All information shared will be kept confidential. Contact Diana Nieves at dnieves@liferaftgroup.org for more information. \nPlease email Diana Nieves at dnieves@liferaftgroup.org to join this meeting.\nAbout the Group Leader:\nMarlene Nei\, GIST Caregiver \nAs an active member of the Life Raft Group\, Marlene advocates for the needs of the caregiver community because she feels they are an underrepresented group. It is her mission to advocate for the entire GIST community making sure they are equipped with the appropriate resources on their GIST journey. URL:https://liferaftgroup.org/event/virtual-caregiver-support-group-3/2021-04-07/ CATEGORIES:Events,Support Group ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/01/Caregiver-Support-Group.png ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20210414T130000 DTEND;TZID=America/New_York:20210414T130000 DTSTAMP:20260403T171803 CREATED:20210119T153745Z LAST-MODIFIED:20210603T135810Z UID:10000123-1618405200-1618405200@liferaftgroup.org SUMMARY:Virtual Caregiver Support Group DESCRIPTION:Weekly Support Group for GIST Caregivers.\nHeld every Wednesday at 1pm ET beginning January 20\, 2021\nAs we continue to navigate this uncertain time together\, we want to offer you a little extra support. Every Wednesday at 1pm ET the LRG has a weekly support group for the caregivers facilitated by Marlene Nei\, GIST Caregiver. To continue social distancing and connecting with caregivers across the United States\, we will use an electronic platform\, to come together every week as a group. We will talk about all the feelings you might be experiencing\, both in relation to GIST\, and COVID-19. \nWe will share our stories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling because of this unprecedented time. The group will be a safe space not only to feel supported by your fellow caregivers\, but also a place to share our own coping mechanisms to get us through this stressful time. All information shared will be kept confidential. Contact Diana Nieves at dnieves@liferaftgroup.org for more information. \nPlease email Diana Nieves at dnieves@liferaftgroup.org to join this meeting.\nAbout the Group Leader:\nMarlene Nei\, GIST Caregiver \nAs an active member of the Life Raft Group\, Marlene advocates for the needs of the caregiver community because she feels they are an underrepresented group. It is her mission to advocate for the entire GIST community making sure they are equipped with the appropriate resources on their GIST journey. URL:https://liferaftgroup.org/event/virtual-caregiver-support-group-3/2021-04-14/ CATEGORIES:Events,Support Group ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/01/Caregiver-Support-Group.png ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20210417T160000 DTEND;TZID=America/New_York:20210417T160000 DTSTAMP:20260403T171803 CREATED:20210311T162247Z LAST-MODIFIED:20210319T131321Z UID:10000135-1618675200-1618675200@liferaftgroup.org SUMMARY:GIST & SDH-Deficient Support Group DESCRIPTION:Please join us on Saturday\, April 17th\, at 1:00 p.m. PST/4:00pm EST.  Just\, make yourself comfortable at your computer\, laptop\, tablet\, etc. and participate in what is going to be a very helpful and informative meeting. \nThe Life Raft Group is offering a virtual LRG Southern California GIST and SDH-Deficient GIST Support Group led by Southern California Leader Dina Wiley.  The group will meet to talk to each other\, discuss individual GIST issues\, and get answers to questions.  This will enable you to not only get some relief from the worry of GIST\, but to also help others\, as well.  We are\, after all\, in the same life raft\, and we are each needed to pull together.  When we do\, wonderful things happen! \nWe will have a very special participant — Jason Sicklick\, MD\, professor of surgery at UC San Diego School of Medicine and surgical oncologist at Moores Cancer Center at UC San Diego Health.  Dr.  Sicklick has been a key player in GIST research.  Dr. Sicklick will be available to answer any questions you may have about GIST and SDH-Deficient GIST. \nREGISTER URL:https://liferaftgroup.org/event/gist-sdh-deficient-support-group/ CATEGORIES:Events,Support Group ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2021/03/california-SDH-group.jpg ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20210421T130000 DTEND;TZID=America/New_York:20210421T130000 DTSTAMP:20260403T171803 CREATED:20210119T153745Z LAST-MODIFIED:20210603T135810Z UID:10000124-1619010000-1619010000@liferaftgroup.org SUMMARY:Virtual Caregiver Support Group DESCRIPTION:Weekly Support Group for GIST Caregivers.\nHeld every Wednesday at 1pm ET beginning January 20\, 2021\nAs we continue to navigate this uncertain time together\, we want to offer you a little extra support. Every Wednesday at 1pm ET the LRG has a weekly support group for the caregivers facilitated by Marlene Nei\, GIST Caregiver. To continue social distancing and connecting with caregivers across the United States\, we will use an electronic platform\, to come together every week as a group. We will talk about all the feelings you might be experiencing\, both in relation to GIST\, and COVID-19. \nWe will share our stories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling because of this unprecedented time. The group will be a safe space not only to feel supported by your fellow caregivers\, but also a place to share our own coping mechanisms to get us through this stressful time. All information shared will be kept confidential. Contact Diana Nieves at dnieves@liferaftgroup.org for more information. \nPlease email Diana Nieves at dnieves@liferaftgroup.org to join this meeting.\nAbout the Group Leader:\nMarlene Nei\, GIST Caregiver \nAs an active member of the Life Raft Group\, Marlene advocates for the needs of the caregiver community because she feels they are an underrepresented group. It is her mission to advocate for the entire GIST community making sure they are equipped with the appropriate resources on their GIST journey. URL:https://liferaftgroup.org/event/virtual-caregiver-support-group-3/2021-04-21/ CATEGORIES:Events,Support Group ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/01/Caregiver-Support-Group.png ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20210428T130000 DTEND;TZID=America/New_York:20210428T130000 DTSTAMP:20260403T171803 CREATED:20210119T153745Z LAST-MODIFIED:20210603T135810Z UID:10000125-1619614800-1619614800@liferaftgroup.org SUMMARY:Virtual Caregiver Support Group DESCRIPTION:Weekly Support Group for GIST Caregivers.\nHeld every Wednesday at 1pm ET beginning January 20\, 2021\nAs we continue to navigate this uncertain time together\, we want to offer you a little extra support. Every Wednesday at 1pm ET the LRG has a weekly support group for the caregivers facilitated by Marlene Nei\, GIST Caregiver. To continue social distancing and connecting with caregivers across the United States\, we will use an electronic platform\, to come together every week as a group. We will talk about all the feelings you might be experiencing\, both in relation to GIST\, and COVID-19. \nWe will share our stories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling because of this unprecedented time. The group will be a safe space not only to feel supported by your fellow caregivers\, but also a place to share our own coping mechanisms to get us through this stressful time. All information shared will be kept confidential. Contact Diana Nieves at dnieves@liferaftgroup.org for more information. \nPlease email Diana Nieves at dnieves@liferaftgroup.org to join this meeting.\nAbout the Group Leader:\nMarlene Nei\, GIST Caregiver \nAs an active member of the Life Raft Group\, Marlene advocates for the needs of the caregiver community because she feels they are an underrepresented group. It is her mission to advocate for the entire GIST community making sure they are equipped with the appropriate resources on their GIST journey. URL:https://liferaftgroup.org/event/virtual-caregiver-support-group-3/2021-04-28/ CATEGORIES:Events,Support Group ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/01/Caregiver-Support-Group.png ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20210429T120000 DTEND;TZID=America/New_York:20210429T130000 DTSTAMP:20260403T171803 CREATED:20210408T134459Z LAST-MODIFIED:20210408T134855Z UID:10000137-1619697600-1619701200@liferaftgroup.org SUMMARY:Genetics of GIST DESCRIPTION:Risks\, Management\, and What to Know for You and Your Family\nIn this webinar\, we will review what is known about the hereditary causes behind GISTs\, current genetic testing options and results\, how this information affects screening and management\, and implications for one’s family. \n\nREGISTER\n \nPresenters:\nLindsay Kipnis received her MS in Genetic Counseling from Brandeis University in 2013. After graduating she worked in oncology at Women & Infants Hospital in Rhode Island. She joined the Center for Cancer Genetics and Prevention at DFCI in 2014. Lindsay is focused on ensuring that all ovarian cancer patients receive the genetic counseling and testing that is recommended. She also sees a variety of adult patients with personal and family histories of cancer. \n\n \nBecca Vanderwall is a licensed and certified genetic counselor currently practicing at Dana-Farber Cancer Institute in the pediatric cancer genetics risk program. She previously worked in neurometabolics and mitochondrial disease at Boston Children’s Hospital. She earned her MS in Genetic Counseling and MPH in Public Health Genetics from the University of Pittsburgh in 2016. Her special interests include public health research and policy\, health disparities and equity\, hereditary brain tumor risk\, and family dynamics and communication. URL:https://liferaftgroup.org/event/genetics-of-gist/ CATEGORIES:Events ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20210504T140000 DTEND;TZID=America/New_York:20210504T140000 DTSTAMP:20260403T171803 CREATED:20210426T193251Z LAST-MODIFIED:20210426T193251Z UID:10000139-1620136800-1620136800@liferaftgroup.org SUMMARY:Conversations with the LRG: Long-Term Survivors DESCRIPTION:Long-Term Survivors Share Their Stories & Advice on Living Well with GIST\nMay 4th at 2pm ET – Join us for a lively discussion with three long-term survivors\, Erin McBean\, John Abrams\, and Dr. mOe Anderson. Diagnosed at different stages of life\, with different mutations\, these GISTers share how they have thrived with GIST over ten years and counting. This webinar will be moderated by Pete Knox\, Senior Director of Research for the LRG\, and will include a Q&A segment following the discussion. You may submit questions ahead of time to pknox@liferaftgroup.org or in the chat box during the event. \nREGISTER URL:https://liferaftgroup.org/event/conversations-with-the-lrg-long-term-survivors/ CATEGORIES:Events ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2021/04/Convo-with-the-LRG-LTS.jpg ORGANIZER;CN="Pete Knox":MAILTO:pknox@liferaftgroup.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20210504T180000 DTEND;TZID=America/New_York:20210504T193000 DTSTAMP:20260403T171803 CREATED:20210118T181321Z LAST-MODIFIED:20220323T125554Z UID:10000099-1620151200-1620156600@liferaftgroup.org SUMMARY:Virtual GISTer Support Group DESCRIPTION:The group will meet via Zoom on the first Tuesday of each month from 6:00 PM – 7:30 PM EST (NYC Time). \nThe group open to those who have not been able to participate in the past\, for one reason or another. We will start each group with a “Round Robin” in which anyone who feels like updating the group on how they are doing/feeling can do so. There is no pressure to speak if you prefer to simply listen. Once we complete our updates\, the group will have the opportunity for organic conversation to develop in relation to our emotional experiences around GIST\, and other challenges that we may be experiencing as a community. \nIn order to be able to moderate a flowing discussion\, the group will be capped at 15 people each month. The first 15 people into the Zoom waiting room will participate. Keep in mind that since the group is now open\, you don’t necessarily have to attend each month to be to participate. \nContact Diana Nieves to join: dnieves@liferaftgroup.org URL:https://liferaftgroup.org/event/virtual-gister-support-group-4/2021-05-04/ CATEGORIES:Events ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/01/GISTer-SUPPORT-2021.png ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20210505T130000 DTEND;TZID=America/New_York:20210505T130000 DTSTAMP:20260403T171803 CREATED:20210119T153745Z LAST-MODIFIED:20210603T135810Z UID:10000126-1620219600-1620219600@liferaftgroup.org SUMMARY:Virtual Caregiver Support Group DESCRIPTION:Weekly Support Group for GIST Caregivers.\nHeld every Wednesday at 1pm ET beginning January 20\, 2021\nAs we continue to navigate this uncertain time together\, we want to offer you a little extra support. Every Wednesday at 1pm ET the LRG has a weekly support group for the caregivers facilitated by Marlene Nei\, GIST Caregiver. To continue social distancing and connecting with caregivers across the United States\, we will use an electronic platform\, to come together every week as a group. We will talk about all the feelings you might be experiencing\, both in relation to GIST\, and COVID-19. \nWe will share our stories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling because of this unprecedented time. The group will be a safe space not only to feel supported by your fellow caregivers\, but also a place to share our own coping mechanisms to get us through this stressful time. All information shared will be kept confidential. Contact Diana Nieves at dnieves@liferaftgroup.org for more information. \nPlease email Diana Nieves at dnieves@liferaftgroup.org to join this meeting.\nAbout the Group Leader:\nMarlene Nei\, GIST Caregiver \nAs an active member of the Life Raft Group\, Marlene advocates for the needs of the caregiver community because she feels they are an underrepresented group. It is her mission to advocate for the entire GIST community making sure they are equipped with the appropriate resources on their GIST journey. URL:https://liferaftgroup.org/event/virtual-caregiver-support-group-3/2021-05-05/ CATEGORIES:Events,Support Group ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/01/Caregiver-Support-Group.png ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/Amsterdam:20210507T140000 DTEND;TZID=Europe/Amsterdam:20210507T140000 DTSTAMP:20260403T171803 CREATED:20210406T184840Z LAST-MODIFIED:20210406T190150Z UID:10000136-1620396000-1620396000@liferaftgroup.org SUMMARY:New Horizons GIST: Special Topic - Mutational Testing DESCRIPTION:This webinar is for all GIST patients around the world. Hosted by SPAEN (Sarcoma Patients EuroNet Association)\, this two hour New Horizons GIST presentation will focus on mutational testing in GIST as a guide for the right therapy. \nThis live online event will take place May 7th\, 2021 at 2pm CET/8am ET. \n\nREGISTER URL:https://liferaftgroup.org/event/new-horizons-mutational-tesing/ CATEGORIES:Events,International ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2021/04/new-horizons-gist-mt-v1.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20210512T120000 DTEND;TZID=America/New_York:20210512T130000 DTSTAMP:20260403T171803 CREATED:20210420T151025Z LAST-MODIFIED:20210420T151025Z UID:10000138-1620820800-1620824400@liferaftgroup.org SUMMARY:Management of Metastatic GIST DESCRIPTION:What to Expect When a Tumor Has Spread\nWhile surgery is the backbone of treatment for localized GIST\, in the context of metastatic disease\, treatment generally relies on medical therapy with tyrosine kinase inhibitors such as imatinib. Surgery is used predominantly to optimize their efficacy. This webinar will review options for therapy when patients are diagnosed with metastatic disease at the time of their initial diagnosis\, during observation after initial resection of a GIST\, and when metastatic GIST is resistant to imatinib. We will discuss the role that mutational status and drug toxicities may play in determining the optimal therapy for individual patients. \nREGISTERAbout the Presenter:\nDr. Aimee Crago\, Surgical Oncologist\nMemorial Sloan Kettering Cancer Center \nDr. Crago earned her PhD at the University of Cambridge as a British Marshall Scholar and her MD in the Harvard-MIT Division of Health Sciences and Technology before training in surgery and surgical oncology at Georgetown University Medical Center and Memorial Sloan Kettering Cancer Center. She joined the MSKCC faculty in 2010 as member of the Gastric and Mixed Tumor Service and the Sarcoma Disease Management Team\, and now serves as Associate Attending Surgeon. She is an active participant in the care of patients with soft tissue sarcoma\, GIST and desmoid-type fibromatosis and coordinates a translational science research program that focuses on understanding the molecular drivers of sarcomas and how genomic aberrations in these tumors can inform patient care. Her work has been funded by the National Cancer Institute\, the Food and Drug Administration\, the American Society of Clinical Oncology\, the American College of Surgeons\, and the American Cancer Society among others. Dr. Crago is committed to educating others regarding sarcoma biology and patient care; as such\, she trains clinical and research fellows at Memorial Sloan Kettering\, is a Gerstner Sloan Kettering Graduate School Special Contributing Faculty Member\, and works as chair of the Society for Surgical Oncology Sarcoma Disease Site Working Group.    URL:https://liferaftgroup.org/event/management-of-metastatic-gist/ CATEGORIES:Education,Events ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20210512T130000 DTEND;TZID=America/New_York:20210512T130000 DTSTAMP:20260403T171803 CREATED:20210119T153745Z LAST-MODIFIED:20210603T135810Z UID:10000127-1620824400-1620824400@liferaftgroup.org SUMMARY:Virtual Caregiver Support Group DESCRIPTION:Weekly Support Group for GIST Caregivers.\nHeld every Wednesday at 1pm ET beginning January 20\, 2021\nAs we continue to navigate this uncertain time together\, we want to offer you a little extra support. Every Wednesday at 1pm ET the LRG has a weekly support group for the caregivers facilitated by Marlene Nei\, GIST Caregiver. To continue social distancing and connecting with caregivers across the United States\, we will use an electronic platform\, to come together every week as a group. We will talk about all the feelings you might be experiencing\, both in relation to GIST\, and COVID-19. \nWe will share our stories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling because of this unprecedented time. The group will be a safe space not only to feel supported by your fellow caregivers\, but also a place to share our own coping mechanisms to get us through this stressful time. All information shared will be kept confidential. Contact Diana Nieves at dnieves@liferaftgroup.org for more information. \nPlease email Diana Nieves at dnieves@liferaftgroup.org to join this meeting.\nAbout the Group Leader:\nMarlene Nei\, GIST Caregiver \nAs an active member of the Life Raft Group\, Marlene advocates for the needs of the caregiver community because she feels they are an underrepresented group. It is her mission to advocate for the entire GIST community making sure they are equipped with the appropriate resources on their GIST journey. URL:https://liferaftgroup.org/event/virtual-caregiver-support-group-3/2021-05-12/ CATEGORIES:Events,Support Group ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/01/Caregiver-Support-Group.png ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20210519T130000 DTEND;TZID=America/New_York:20210519T130000 DTSTAMP:20260403T171803 CREATED:20210119T153745Z LAST-MODIFIED:20210603T135810Z UID:10000128-1621429200-1621429200@liferaftgroup.org SUMMARY:Virtual Caregiver Support Group DESCRIPTION:Weekly Support Group for GIST Caregivers.\nHeld every Wednesday at 1pm ET beginning January 20\, 2021\nAs we continue to navigate this uncertain time together\, we want to offer you a little extra support. Every Wednesday at 1pm ET the LRG has a weekly support group for the caregivers facilitated by Marlene Nei\, GIST Caregiver. To continue social distancing and connecting with caregivers across the United States\, we will use an electronic platform\, to come together every week as a group. We will talk about all the feelings you might be experiencing\, both in relation to GIST\, and COVID-19. \nWe will share our stories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling because of this unprecedented time. The group will be a safe space not only to feel supported by your fellow caregivers\, but also a place to share our own coping mechanisms to get us through this stressful time. All information shared will be kept confidential. Contact Diana Nieves at dnieves@liferaftgroup.org for more information. \nPlease email Diana Nieves at dnieves@liferaftgroup.org to join this meeting.\nAbout the Group Leader:\nMarlene Nei\, GIST Caregiver \nAs an active member of the Life Raft Group\, Marlene advocates for the needs of the caregiver community because she feels they are an underrepresented group. It is her mission to advocate for the entire GIST community making sure they are equipped with the appropriate resources on their GIST journey. URL:https://liferaftgroup.org/event/virtual-caregiver-support-group-3/2021-05-19/ CATEGORIES:Events,Support Group ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/01/Caregiver-Support-Group.png ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20210524T120000 DTEND;TZID=America/New_York:20210524T120000 DTSTAMP:20260403T171803 CREATED:20210505T192910Z LAST-MODIFIED:20210524T171308Z UID:10000140-1621857600-1621857600@liferaftgroup.org SUMMARY:New Treatment Updates for Advanced GIST DESCRIPTION:During this webinar\, Dr. William Tap will discuss newly approved treatment options as well as clinical trials for advanced GIST. Dr. Tap will explain how each of these drugs works to target mutations and when they are used for targeted treatment. A Q&A session will follow this presentation. \nREGISTERAbout the Presenter\nDr. William D. Tap\nChief\, Sarcoma Medical Oncology Service\nMemorial Sloan Kettering Cancer Center \nDr. Tap is the Chief of the Sarcoma Medical Oncology Service at Memorial Sloan Kettering Cancer Center in New York. Bill has extensive experience in translational medicine and is currently in charge of the clinical\, basic science\, and translational aspects of the Sarcoma Medical Oncology Program at MSKCC. He is also helping to develop a comprehensive Adolescent and Young Adult Caner Program at MSKCC. Bill received his Medical Degree from Jefferson Medical College in Philadelphia\, PA and performed his residency in Internal Medicine at the Vanderbilt University Medical Center in Nashville\, TN and his fellowship in Hematology and Medical Oncology at the UCLA Medical Center in Los Angeles\, CA. Bill also has a tremendous interest in global health care initiatives and effecting health disparities in underserved areas in the US and abroad. URL:https://liferaftgroup.org/event/new-treatment-updates-for-advanced-gist/ CATEGORIES:Events ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20210526T130000 DTEND;TZID=America/New_York:20210526T130000 DTSTAMP:20260403T171803 CREATED:20210119T153745Z LAST-MODIFIED:20210603T135810Z UID:10000129-1622034000-1622034000@liferaftgroup.org SUMMARY:Virtual Caregiver Support Group DESCRIPTION:Weekly Support Group for GIST Caregivers.\nHeld every Wednesday at 1pm ET beginning January 20\, 2021\nAs we continue to navigate this uncertain time together\, we want to offer you a little extra support. Every Wednesday at 1pm ET the LRG has a weekly support group for the caregivers facilitated by Marlene Nei\, GIST Caregiver. To continue social distancing and connecting with caregivers across the United States\, we will use an electronic platform\, to come together every week as a group. We will talk about all the feelings you might be experiencing\, both in relation to GIST\, and COVID-19. \nWe will share our stories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling because of this unprecedented time. The group will be a safe space not only to feel supported by your fellow caregivers\, but also a place to share our own coping mechanisms to get us through this stressful time. All information shared will be kept confidential. Contact Diana Nieves at dnieves@liferaftgroup.org for more information. \nPlease email Diana Nieves at dnieves@liferaftgroup.org to join this meeting.\nAbout the Group Leader:\nMarlene Nei\, GIST Caregiver \nAs an active member of the Life Raft Group\, Marlene advocates for the needs of the caregiver community because she feels they are an underrepresented group. It is her mission to advocate for the entire GIST community making sure they are equipped with the appropriate resources on their GIST journey. URL:https://liferaftgroup.org/event/virtual-caregiver-support-group-3/2021-05-26/ CATEGORIES:Events,Support Group ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/01/Caregiver-Support-Group.png ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20210601T180000 DTEND;TZID=America/New_York:20210601T193000 DTSTAMP:20260403T171803 CREATED:20210118T181321Z LAST-MODIFIED:20220323T125554Z UID:10000100-1622570400-1622575800@liferaftgroup.org SUMMARY:Virtual GISTer Support Group DESCRIPTION:The group will meet via Zoom on the first Tuesday of each month from 6:00 PM – 7:30 PM EST (NYC Time). \nThe group open to those who have not been able to participate in the past\, for one reason or another. We will start each group with a “Round Robin” in which anyone who feels like updating the group on how they are doing/feeling can do so. There is no pressure to speak if you prefer to simply listen. Once we complete our updates\, the group will have the opportunity for organic conversation to develop in relation to our emotional experiences around GIST\, and other challenges that we may be experiencing as a community. \nIn order to be able to moderate a flowing discussion\, the group will be capped at 15 people each month. The first 15 people into the Zoom waiting room will participate. Keep in mind that since the group is now open\, you don’t necessarily have to attend each month to be to participate. \nContact Diana Nieves to join: dnieves@liferaftgroup.org URL:https://liferaftgroup.org/event/virtual-gister-support-group-4/2021-06-01/ CATEGORIES:Events ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/01/GISTer-SUPPORT-2021.png ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20210602T130000 DTEND;TZID=America/New_York:20210602T130000 DTSTAMP:20260403T171803 CREATED:20210119T153745Z LAST-MODIFIED:20210603T135810Z UID:10000130-1622638800-1622638800@liferaftgroup.org SUMMARY:Virtual Caregiver Support Group DESCRIPTION:Weekly Support Group for GIST Caregivers.\nHeld every Wednesday at 1pm ET beginning January 20\, 2021\nAs we continue to navigate this uncertain time together\, we want to offer you a little extra support. Every Wednesday at 1pm ET the LRG has a weekly support group for the caregivers facilitated by Marlene Nei\, GIST Caregiver. To continue social distancing and connecting with caregivers across the United States\, we will use an electronic platform\, to come together every week as a group. We will talk about all the feelings you might be experiencing\, both in relation to GIST\, and COVID-19. \nWe will share our stories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling because of this unprecedented time. The group will be a safe space not only to feel supported by your fellow caregivers\, but also a place to share our own coping mechanisms to get us through this stressful time. All information shared will be kept confidential. Contact Diana Nieves at dnieves@liferaftgroup.org for more information. \nPlease email Diana Nieves at dnieves@liferaftgroup.org to join this meeting.\nAbout the Group Leader:\nMarlene Nei\, GIST Caregiver \nAs an active member of the Life Raft Group\, Marlene advocates for the needs of the caregiver community because she feels they are an underrepresented group. It is her mission to advocate for the entire GIST community making sure they are equipped with the appropriate resources on their GIST journey. URL:https://liferaftgroup.org/event/virtual-caregiver-support-group-3/2021-06-02/ CATEGORIES:Events,Support Group ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/01/Caregiver-Support-Group.png ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20210616T130000 DTEND;TZID=America/New_York:20210616T140000 DTSTAMP:20260403T171803 CREATED:20210604T133134Z LAST-MODIFIED:20210604T152237Z UID:10000143-1623848400-1623852000@liferaftgroup.org SUMMARY:Virtual Caregiver Support Group DESCRIPTION:Weekly Support Group for GIST Caregivers.\nHeld first & third Wednesdays of the month\nAs we continue to navigate this uncertain time together\, we want to offer you a little extra support. LRG has a twice monthly support group for the caregivers facilitated by Marlene Nei\, GIST Caregiver. To continue social distancing and connecting with caregivers across the United States\, we will use an electronic platform to gather as a group. We will talk about all the feelings you might be experiencing\, both in relation to GIST\, and COVID-19. \nWe will share our stories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling because of this unprecedented time. The group will be a safe space not only to feel supported by your fellow caregivers\, but also a place to share our own coping mechanisms to get us through this stressful time. All information shared will be kept confidential. Contact Diana Nieves at dnieves@liferaftgroup.org for more information. \n\nPlease email Diana Nieves at dnieves@liferaftgroup.org to join this meeting.\n\nAbout the Group Leader:\nMarlene Nei\, GIST Caregiver\nAs an active member of the Life Raft Group\, Marlene advocates for the needs of the caregiver community because she feels they are an underrepresented group. It is her mission to advocate for the entire GIST community making sure they are equipped with the appropriate resources on their GIST journey. URL:https://liferaftgroup.org/event/virtual-caregiver-support-group-4/ CATEGORIES:Events ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2021/06/Caregiver-Support-Group.jpg ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/Los_Angeles:20210626T100000 DTEND;TZID=America/Los_Angeles:20210626T120000 DTSTAMP:20260403T171803 CREATED:20210601T184215Z LAST-MODIFIED:20210603T172410Z UID:10000141-1624701600-1624708800@liferaftgroup.org SUMMARY:GDOL California 2021 - Virtual DESCRIPTION:Join us virtually for GDOL California on June 26th at 10am Pacific Time. \nAgenda:\nOverview of GIST – Charles Forscher\, M.D.\, Cedars-Sinai\nLocal Control For Primary and Disseminated GIST – Brian Kadera\, M.D.\, UCLA\nNovel Therapies and ctDNA in GIST – Mark Agulnik\, M.D.\, City of Hope\nUtilizing Immunotherapy To Treat GIST – Arun Singh\, M.D.\, UCLA\nSDH and GIST Research on Non-Cancer Cells – Jason Sicklick\, M.D.\, UCSD\nQ&A – all presenters \nREGISTERVirtual GDOL California Sponsors: \n \nWhat’s a GDOL?  A GDOL is a GIST Day of Learning\, a free one-day event to help you\, as patients and caregivers\, learn more about GIST\, find support\, and enhance your knowledge base to help you navigate your cancer journey. At a GDOL you will learn more about your disease from expert clinicians\, researchers\, and advocates and connect with other patients\, caregivers\, and family members who are also on this rare journey. You are not alone. \nThe mission of the Life Raft Group is to enhance survival and quality of life for people living with GIST through patient-powered research\, education and empowerment\, and global advocacy efforts. The LRG vision is to champion patient-powered science and drastically increase long-term survivorship for all cancer patients. To accomplish this\, we rely on four key pillars; \n\nLeverage the patient perspective to drive innovative solutions in cancer research\nEducate and empower patients to take a larger role in their care\nAccelerate research outcomes through collaborative efforts\nIncrease access to effective treatments worldwide\n\nSee what a GDOL can offer you – visit this link to see presentations\, photos\, and posts about past GDOLs: \n\nView Past GDOLs \n\nFor questions or more information about GDOL\, Diana Nieves\, Senior Director\, Outreach & Engagement\, DNieves@liferaftgroup.org URL:https://liferaftgroup.org/event/gdol-california-2021-virtual/ CATEGORIES:Education,Events ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2021/06/California.jpg ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20210706T180000 DTEND;TZID=America/New_York:20210706T193000 DTSTAMP:20260403T171803 CREATED:20210118T181321Z LAST-MODIFIED:20220323T125554Z UID:10000101-1625594400-1625599800@liferaftgroup.org SUMMARY:Virtual GISTer Support Group DESCRIPTION:The group will meet via Zoom on the first Tuesday of each month from 6:00 PM – 7:30 PM EST (NYC Time). \nThe group open to those who have not been able to participate in the past\, for one reason or another. We will start each group with a “Round Robin” in which anyone who feels like updating the group on how they are doing/feeling can do so. There is no pressure to speak if you prefer to simply listen. Once we complete our updates\, the group will have the opportunity for organic conversation to develop in relation to our emotional experiences around GIST\, and other challenges that we may be experiencing as a community. \nIn order to be able to moderate a flowing discussion\, the group will be capped at 15 people each month. The first 15 people into the Zoom waiting room will participate. Keep in mind that since the group is now open\, you don’t necessarily have to attend each month to be to participate. \nContact Diana Nieves to join: dnieves@liferaftgroup.org URL:https://liferaftgroup.org/event/virtual-gister-support-group-4/2021-07-06/ CATEGORIES:Events ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/01/GISTer-SUPPORT-2021.png ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20210707T130000 DTEND;TZID=America/New_York:20210707T140000 DTSTAMP:20260403T171803 CREATED:20210625T125611Z LAST-MODIFIED:20210625T125848Z UID:10000146-1625662800-1625666400@liferaftgroup.org SUMMARY:Virtual Caregiver Support Group DESCRIPTION:Bi-Weekly Support Group for GIST Caregivers.\nHeld first & third Wednesdays of the month\nAs we continue to navigate this uncertain time together\, we want to offer you a little extra support. LRG has a twice monthly support group for the caregivers facilitated by Marlene Nei\, GIST Caregiver. To continue social distancing and connecting with caregivers across the United States\, we will use an electronic platform to gather as a group. We will talk about all the feelings you might be experiencing\, both in relation to GIST\, and COVID-19. \nWe will share our stories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling because of this unprecedented time. The group will be a safe space not only to feel supported by your fellow caregivers\, but also a place to share our own coping mechanisms to get us through this stressful time. All information shared will be kept confidential. Contact Diana Nieves at dnieves@liferaftgroup.org for more information. \n\nPlease email Diana Nieves at dnieves@liferaftgroup.org to join this meeting.\n\nAbout the Group Leader:\nMarlene Nei\, GIST Caregiver\nAs an active member of the Life Raft Group\, Marlene advocates for the needs of the caregiver community because she feels they are an underrepresented group. It is her mission to advocate for the entire GIST community making sure they are equipped with the appropriate resources on their GIST journey. URL:https://liferaftgroup.org/event/virtual-caregiver-support-group-5/ CATEGORIES:Events,Support Group ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2021/06/Caregiver-Support-Group.jpg ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20210713T120000 DTEND;TZID=America/New_York:20210713T120000 DTSTAMP:20260403T171803 CREATED:20210601T193918Z LAST-MODIFIED:20210601T200108Z UID:10000142-1626177600-1626177600@liferaftgroup.org SUMMARY:GIST Awareness Day - Live Q&A with SDH Experts DESCRIPTION:Join us this GIST Awareness Day\, July 13th\, as our esteemed panel of GIST experts (from our Pediatric & SDH-Deficient GIST Consortium) answers your questions about SDH-deficient GIST. You can email your prepared questions to Sara Rothschild at srothschild@liferaftgroup.org or type them into the chat feature the day of the webinar. We will get to as many questions as possible during the event. \nREGISTER URL:https://liferaftgroup.org/event/gist-awareness-day-live-qa-with-sdh-experts/ CATEGORIES:Education,Events ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/06/gist-awareness-day-panel-2021.png ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20210715T130000 DTEND;TZID=America/New_York:20210715T130000 DTSTAMP:20260403T171803 CREATED:20210619T001422Z LAST-MODIFIED:20210712T165243Z UID:10000145-1626354000-1626354000@liferaftgroup.org SUMMARY:POSTPONED: Conversations with the LRG: GIST Mentors DESCRIPTION:POSTPONED – NEW DATE TBD\nOn Thursday\, July 15th at 1pm ET\, we are presenting another session of “Conversations with the LRG”. In this presentation\, another group of GIST Mentors will discuss the role of the Mentor and how one can assist you on your GIST journey. Learn more about why each of these patients/caregivers volunteer as a GIST Mentor and learn more about their personal journeys with GIST. There will be a 15-minute Q & A at the end of the presentation. \nYou can submit question were in advance to Mary Garland\, Communications Director: mgarland@liferaftgroup.org. Questions can also be submitted during the presentation. \nREGISTER URL:https://liferaftgroup.org/event/conversations-lrg-gist-mentors/ CATEGORIES:Events,Support Group,Webcast ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2021/06/Mentors-4.jpg ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20210721T130000 DTEND;TZID=America/New_York:20210721T140000 DTSTAMP:20260403T171803 CREATED:20210625T125910Z LAST-MODIFIED:20210625T143257Z UID:10000147-1626872400-1626876000@liferaftgroup.org SUMMARY:Virtual Caregiver Support Group DESCRIPTION:Bi-Weekly Support Group for GIST Caregivers.\nHeld first & third Wednesdays of the month\nAs we continue to navigate this uncertain time together\, we want to offer you a little extra support. LRG has a twice monthly support group for the caregivers facilitated by Marlene Nei\, GIST Caregiver. To continue social distancing and connecting with caregivers across the United States\, we will use an electronic platform to gather as a group. We will talk about all the feelings you might be experiencing\, both in relation to GIST\, and COVID-19. \nWe will share our stories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling because of this unprecedented time. The group will be a safe space not only to feel supported by your fellow caregivers\, but also a place to share our own coping mechanisms to get us through this stressful time. All information shared will be kept confidential. Contact Diana Nieves at dnieves@liferaftgroup.org for more information. \n\nPlease email Diana Nieves at dnieves@liferaftgroup.org to join this meeting.\n\nAbout the Group Leader:\nMarlene Nei\, GIST CaregiverAs an active member of the Life Raft Group\, Marlene advocates for the needs of the caregiver community because she feels they are an underrepresented group. It is her mission to advocate for the entire GIST community making sure they are equipped with the appropriate resources on their GIST journey. URL:https://liferaftgroup.org/event/virtual-caregiver-support-group-6/ CATEGORIES:Events,Support Group ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2021/06/Caregiver-Support-Group.jpg ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20210803T180000 DTEND;TZID=America/New_York:20210803T193000 DTSTAMP:20260403T171803 CREATED:20210118T181321Z LAST-MODIFIED:20220323T125554Z UID:10000102-1628013600-1628019000@liferaftgroup.org SUMMARY:Virtual GISTer Support Group DESCRIPTION:The group will meet via Zoom on the first Tuesday of each month from 6:00 PM – 7:30 PM EST (NYC Time). \nThe group open to those who have not been able to participate in the past\, for one reason or another. We will start each group with a “Round Robin” in which anyone who feels like updating the group on how they are doing/feeling can do so. There is no pressure to speak if you prefer to simply listen. Once we complete our updates\, the group will have the opportunity for organic conversation to develop in relation to our emotional experiences around GIST\, and other challenges that we may be experiencing as a community. \nIn order to be able to moderate a flowing discussion\, the group will be capped at 15 people each month. The first 15 people into the Zoom waiting room will participate. Keep in mind that since the group is now open\, you don’t necessarily have to attend each month to be to participate. \nContact Diana Nieves to join: dnieves@liferaftgroup.org URL:https://liferaftgroup.org/event/virtual-gister-support-group-4/2021-08-03/ CATEGORIES:Events ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/01/GISTer-SUPPORT-2021.png ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20210804T130000 DTEND;TZID=America/New_York:20210804T140000 DTSTAMP:20260403T171804 CREATED:20210625T143912Z LAST-MODIFIED:20210625T143912Z UID:10000148-1628082000-1628085600@liferaftgroup.org SUMMARY:Virtual Caregiver Support Group DESCRIPTION:Bi-Weekly Support Group for GIST Caregivers.\nHeld first & third Wednesdays of the month\nAs we continue to navigate this uncertain time together\, we want to offer you a little extra support. LRG has a twice monthly support group for the caregivers facilitated by Marlene Nei\, GIST Caregiver. To continue social distancing and connecting with caregivers across the United States\, we will use an electronic platform to gather as a group. We will talk about all the feelings you might be experiencing\, both in relation to GIST\, and COVID-19. \nWe will share our stories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling because of this unprecedented time. The group will be a safe space not only to feel supported by your fellow caregivers\, but also a place to share our own coping mechanisms to get us through this stressful time. All information shared will be kept confidential. Contact Diana Nieves at dnieves@liferaftgroup.org for more information. \n\nPlease email Diana Nieves at dnieves@liferaftgroup.org to join this meeting.\n\nAbout the Group Leader:\nMarlene Nei\, GIST Caregiver\nAs an active member of the Life Raft Group\, Marlene advocates for the needs of the caregiver community because she feels they are an underrepresented group. It is her mission to advocate for the entire GIST community making sure they are equipped with the appropriate resources on their GIST journey. URL:https://liferaftgroup.org/event/virtual-caregiver-support-group-7/ CATEGORIES:Events,Support Group ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2021/06/Caregiver-Support-Group.jpg ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20210805T080000 DTEND;TZID=America/New_York:20210805T080000 DTSTAMP:20260403T171804 CREATED:20210714T140522Z LAST-MODIFIED:20210714T140522Z UID:10000158-1628150400-1628150400@liferaftgroup.org SUMMARY:New Member Orientation - Virtual DESCRIPTION:This meeting will take place at 8am & 12pm ET every 1st Thursday.\nAre you a new LRG member and looking for guidance on all the things the Life Raft Group has to offer? Join us for a virtual orientation to hear from staff about our services and have the opportunity to ask questions and meet other new members. \nSign Up For Meeting Date URL:https://liferaftgroup.org/event/new-member-orientation-virtual/2021-08-05/ CATEGORIES:Education,Events ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2021/07/orientation-meeting-2021.jpg ORGANIZER;CN="The Life Raft Group":MAILTO:liferaft@liferaftgroup.org END:VEVENT END:VCALENDAR