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DTSTART;TZID=America/New_York:20231113T180000
DTEND;TZID=America/New_York:20231113T180000
DTSTAMP:20260403T162237
CREATED:20230727T133238Z
LAST-MODIFIED:20230727T133238Z
UID:10000574-1699898400-1699898400@liferaftgroup.org
SUMMARY:Virtual Florida Support Group
DESCRIPTION:Florida Support Group\nZoom\, 2nd Monday of the Month – 6pm ET\nOur moderator is a fellow GISTER/LRG Member from Florida diagnosed with GIST in late 2016.\nIf you wish to attend\, please email Diana Nieves: dnieves@liferaftgroup.org for the Zoom link for the meeting.
URL:https://liferaftgroup.org/event/virtual-florida-support-group/2023-11-13/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2022/09/florida-support-group.jpg
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231117T150000
DTEND;TZID=America/New_York:20231117T173000
DTSTAMP:20260403T162237
CREATED:20231108T161712Z
LAST-MODIFIED:20231108T164152Z
UID:10000568-1700233200-1700242200@liferaftgroup.org
SUMMARY:GIST Day of Learning – Michigan
DESCRIPTION:The Life Raft Group’s GIST Day of Learning (GDOL) Michigan is a free\, virtual event for patients\, families\, and our community to learn from a panel of Rogel Cancer Center at University of Michigan Health experts more about this rare cancer\, find support\, and enhance your knowledge base to help you navigate the GIST journey. Friday\, Nov. 17\, 3-5:30PM ET. \nREGISTERClick image for a PDF of the Agenda: \n \nWhat is a GDOL?\nA GDOL is a GIST Day of Learning. This is a free one day event to help patients and caregivers learn more about this rare cancer\, find support\, and enhance their knowledge base to help them navigate their cancer journey. \nThe mission of the Life Raft Group is to enhance survival and quality of life for people living with GIST through patient-powered research\, education and empowerment\, and global advocacy efforts. The LRG vision is to champion patient-powered science and drastically increase long-term survivorship for all cancer patients. To accomplish this\, we rely on four key pillars:\n– Leverage the patient perspective to drive innovative solutions in cancer research\n– Educate and empower patients to take a larger role in their care\n– Accelerate research outcomes through collaborative efforts\n– Increase access to effective treatments worldwide \nThank you to our 2023 GDOL Sponsors!
URL:https://liferaftgroup.org/event/gist-day-of-learning-michigan-2-2/
CATEGORIES:Events,Webcast
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2023/11/gdol-Michigan-update-time.png
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231121T180000
DTEND;TZID=America/New_York:20231121T193000
DTSTAMP:20260403T162237
CREATED:20230727T134306Z
LAST-MODIFIED:20260105T170322Z
UID:10000615-1700589600-1700595000@liferaftgroup.org
SUMMARY:Virtual GIST Patient Support Group
DESCRIPTION:The Patient Support Group meets via Zoom on the first and third Tuesday of each month from 6:00 PM – 7:30 PM ET (NYC Time). \nWe will start each group with a “Round Robin” in which anyone who feels like updating the group on how they are doing/feeling can do so. There is no pressure to speak if you prefer to simply listen. Once we complete our updates\, the group will have the opportunity for organic conversation to develop in relation to our emotional experiences around GIST\, and other challenges that we may be experiencing as a community. \nIn order to be able to moderate a flowing discussion\, the group will be capped at 15 people each month. The first 15 people into the Zoom waiting room will participate. Keep in mind that since the group is now open\, you don’t necessarily have to attend each month to participate. \nContact Brian Morello to join: bmorello@liferaftgroup.org
URL:https://liferaftgroup.org/event/virtual-gist-patient-support-group-third/2023-11-21/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/01/GISTer-Support-Group-2022-1.png
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231127T170000
DTEND;TZID=America/New_York:20231127T170000
DTSTAMP:20260403T162237
CREATED:20231031T133024Z
LAST-MODIFIED:20231106T143542Z
UID:10000632-1701104400-1701104400@liferaftgroup.org
SUMMARY:GIST Updates from CTOS
DESCRIPTION:The Life Raft Group is partnering with Dr. Herbert Loong of the Chinese University of Hong Kong to present “GIST Updates from CTOS 2023” to GIST patients and caregivers on November 27th at 5pm ET. During this virtual presentation\, Dr. Loong will discuss scientific updates relevant to GIST patients that were exhibited at the Connective Tissue Oncology Society (CTOS) conference. A Q&A segment will follow Dr. Loong’s presentation. \nREGISTERAbout Our Presenter\nHerbert H. Loong\, MD\nThe Chinese University of Hong Kong \nDr. Herbert H. Loong holds conjoint appointments of Clinical Associate Professor in the Department of Clinical Oncology and Deputy Medical Director of the Phase 1 Clinical Trials Centre of The Chinese University of Hong Kong. He is also the current and founding convenor of the Prince of Wales Hospital Adult Sarcoma Multidisciplinary Team. \nDr. Loong obtained his medical degree with a Distinction in Surgery from The University of Hong Kong in 2003. He has completed a Fellowship in Drug Development at Princess Margaret Cancer Centre in Toronto\, Canada with a special focus on Experimental Therapeutics. His clinical and research interests also include Sarcoma Medical Oncology\, Thoracic Oncology and Health Economics. He is a recipient of the European Cancer Congress Fellowship Grant (2013)\, the American Society of Clinical Oncology (ASCO) Annual Meeting Merit Award (2014)\, the Hong Kong College of Physicians Young Investigators’ Award (2014). Nominated by patients and their caregivers\, Dr. Loong led the Lung Cancer Team at CUHK to be bestowed the IASLC Foundation Cancer Care Team Award in recognition for providing the best thoracic oncology care in “Asia & Rest of the World” in 2018. \nDr. Loong has served or continues to serve in various capacities in various professional international oncology bodies\, including the International Affairs Committee and the Asia-Pacific Regional Council of ASCO\, the Membership\, Education and Communications Committees of the IASLC. He has been elected as a Board Member of the Connective Tissue Oncology Society (CTOS) for 2022-2024. He is also a founding executive committee member of the newly formed Asia Pacific Oncology Drug Development Network (APODDC). He is also a Board Member in the specialty of Medical Oncology in the Hong Kong College of Physicians. In his appointment as a Registration Committee member of Pharmacy and Poisons Board of Hong Kong\, he helps oversee the registration of medicinal products and clinical trials in the territory. \nThank you to our 2023 Webinar Sponsors!
URL:https://liferaftgroup.org/event/gist-updates-from-ctos/
CATEGORIES:Education,Events,Webcast
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231205T180000
DTEND;TZID=America/New_York:20231205T193000
DTSTAMP:20260403T162237
CREATED:20230727T133611Z
LAST-MODIFIED:20240823T152527Z
UID:10000598-1701799200-1701804600@liferaftgroup.org
SUMMARY:Virtual GIST Patient Support Group
DESCRIPTION:The Patient Support Group meets via Zoom on the first and third Tuesday of each month from 6:00 PM – 7:30 PM ET (NYC Time). \nWe will start each group with a “Round Robin” in which anyone who feels like updating the group on how they are doing/feeling can do so. There is no pressure to speak if you prefer to simply listen. Once we complete our updates\, the group will have the opportunity for organic conversation to develop in relation to our emotional experiences around GIST\, and other challenges that we may be experiencing as a community. \nIn order to be able to moderate a flowing discussion\, the group will be capped at 15 people each month. The first 15 people into the Zoom waiting room will participate. Keep in mind that since the group is now open\, you don’t necessarily have to attend each month to participate. \nContact Brian Morello to join: bmorello@liferaftgroup.org
URL:https://liferaftgroup.org/event/virtual-gist-patient-support-group-2023-first/2023-12-05/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/01/GISTer-Support-Group-2022-1.png
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231206T130000
DTEND;TZID=America/New_York:20231206T140000
DTSTAMP:20260403T162237
CREATED:20230727T134933Z
LAST-MODIFIED:20240614T133545Z
UID:10000622-1701867600-1701871200@liferaftgroup.org
SUMMARY:Virtual GIST Caregiver Support Group
DESCRIPTION:Monthly Virtual Support Group for GIST Caregivers\nHeld on the first Wednesday of the month \nLRG hosts a monthly virtual support group for the caregivers. We will share our stories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling during this journey as a caregiver. The group will be a safe space not only to feel supported by your fellow caregivers\, but also a place to share our own coping mechanisms\, concerns\, successes and trials. All information shared will be kept confidential. \nContact Brian Morello to join: bmorello@liferaftgroup.org \nAbout the Group Leader:\nMarlene Nei\, GIST Caregiver\nAs an active member of The Life Raft Group\, Marlene advocates for the needs of the caregiver community because she feels they are an underrepresented group. It is her mission to advocate for the entire GIST community making sure they are equipped with the appropriate resources on their GIST journey.
URL:https://liferaftgroup.org/event/virtual-gist-caregiver-support-group-2023/2023-12-06/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2023/05/caregiver-sg-2023.jpg
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231207T130000
DTEND;TZID=America/New_York:20231207T130000
DTSTAMP:20260403T162237
CREATED:20231116T164425Z
LAST-MODIFIED:20231116T164647Z
UID:10000633-1701954000-1701954000@liferaftgroup.org
SUMMARY:Matching Biomarkers to Disease Biology & Therapy
DESCRIPTION:The Life Raft Group is partnering with Dr. Jason Sicklick of UC San Diego Health’s Moores Cancer Center to present “Matching Biomarker to Biology and Therapy” for the GIST community on December 7th\, 2023 at 1:00 PM ET. During this virtual presentation\, Dr. Sicklick will discuss the importance of biomarker testing and research that correlates the biology of GIST with treatment. A Q&A session will follow the presentations. \nPlease note that this webinar is not a substitute for your physician’s guidance and care.\nREGISTERAbout Our Presenters\nDr. Jason Sicklick\nMoores Cancer Center\, US San Diego Health \nDr. Sicklick is an internationally recognized surgical oncologist who specializes in treating gastrointestinal stromal tumors (GIST)\, abdominal/retroperitoneal sarcomas\, and liver tumors. \nHe is a champion of innovation and collaboration to improve outcomes for cancer patients. He leader of the Sarcoma Disease Team and Co-leader of the Structural and Function Genomics Program at UC San Diego Health’s Moores Cancer Center. Dr. Sicklick is also a member of the National Comprehensive Cancer Network Soft-Tissue Sarcoma Committee and GIST Subcommittee\, which develops best practices for treating these rare and often challenging-to-treat cancers. \nAs professor of surgery and pharmacology at UC San Diego School of Medicine\, Dr. Sicklick conducts basic\, translational and clinical research to improve our understanding of GIST\, as well as to enhance precision medicine approaches for treating metastatic cancers. His laboratory focuses on the molecular mechanisms of GIST development and drug resistance. \nThank you to our 2023 Webinar Sponsors!
URL:https://liferaftgroup.org/event/matching-biomarkers-to-disease/
CATEGORIES:Education,Events
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231211T180000
DTEND;TZID=America/New_York:20231211T180000
DTSTAMP:20260403T162237
CREATED:20230727T133238Z
LAST-MODIFIED:20230727T133238Z
UID:10000575-1702317600-1702317600@liferaftgroup.org
SUMMARY:Virtual Florida Support Group
DESCRIPTION:Florida Support Group\nZoom\, 2nd Monday of the Month – 6pm ET\nOur moderator is a fellow GISTER/LRG Member from Florida diagnosed with GIST in late 2016.\nIf you wish to attend\, please email Diana Nieves: dnieves@liferaftgroup.org for the Zoom link for the meeting.
URL:https://liferaftgroup.org/event/virtual-florida-support-group/2023-12-11/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2022/09/florida-support-group.jpg
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231219T180000
DTEND;TZID=America/New_York:20231219T193000
DTSTAMP:20260403T162237
CREATED:20230727T134306Z
LAST-MODIFIED:20260105T170322Z
UID:10000616-1703008800-1703014200@liferaftgroup.org
SUMMARY:Virtual GIST Patient Support Group
DESCRIPTION:The Patient Support Group meets via Zoom on the first and third Tuesday of each month from 6:00 PM – 7:30 PM ET (NYC Time). \nWe will start each group with a “Round Robin” in which anyone who feels like updating the group on how they are doing/feeling can do so. There is no pressure to speak if you prefer to simply listen. Once we complete our updates\, the group will have the opportunity for organic conversation to develop in relation to our emotional experiences around GIST\, and other challenges that we may be experiencing as a community. \nIn order to be able to moderate a flowing discussion\, the group will be capped at 15 people each month. The first 15 people into the Zoom waiting room will participate. Keep in mind that since the group is now open\, you don’t necessarily have to attend each month to participate. \nContact Brian Morello to join: bmorello@liferaftgroup.org
URL:https://liferaftgroup.org/event/virtual-gist-patient-support-group-third/2023-12-19/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/01/GISTer-Support-Group-2022-1.png
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240102T180000
DTEND;TZID=America/New_York:20240102T193000
DTSTAMP:20260403T162237
CREATED:20230727T133611Z
LAST-MODIFIED:20240823T152527Z
UID:10000599-1704218400-1704223800@liferaftgroup.org
SUMMARY:Virtual GIST Patient Support Group
DESCRIPTION:The Patient Support Group meets via Zoom on the first and third Tuesday of each month from 6:00 PM – 7:30 PM ET (NYC Time). \nWe will start each group with a “Round Robin” in which anyone who feels like updating the group on how they are doing/feeling can do so. There is no pressure to speak if you prefer to simply listen. Once we complete our updates\, the group will have the opportunity for organic conversation to develop in relation to our emotional experiences around GIST\, and other challenges that we may be experiencing as a community. \nIn order to be able to moderate a flowing discussion\, the group will be capped at 15 people each month. The first 15 people into the Zoom waiting room will participate. Keep in mind that since the group is now open\, you don’t necessarily have to attend each month to participate. \nContact Brian Morello to join: bmorello@liferaftgroup.org
URL:https://liferaftgroup.org/event/virtual-gist-patient-support-group-2023-first/2024-01-02/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/01/GISTer-Support-Group-2022-1.png
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240103T130000
DTEND;TZID=America/New_York:20240103T140000
DTSTAMP:20260403T162237
CREATED:20230727T134933Z
LAST-MODIFIED:20240614T133545Z
UID:10000623-1704286800-1704290400@liferaftgroup.org
SUMMARY:Virtual GIST Caregiver Support Group
DESCRIPTION:Monthly Virtual Support Group for GIST Caregivers\nHeld on the first Wednesday of the month \nLRG hosts a monthly virtual support group for the caregivers. We will share our stories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling during this journey as a caregiver. The group will be a safe space not only to feel supported by your fellow caregivers\, but also a place to share our own coping mechanisms\, concerns\, successes and trials. All information shared will be kept confidential. \nContact Brian Morello to join: bmorello@liferaftgroup.org \nAbout the Group Leader:\nMarlene Nei\, GIST Caregiver\nAs an active member of The Life Raft Group\, Marlene advocates for the needs of the caregiver community because she feels they are an underrepresented group. It is her mission to advocate for the entire GIST community making sure they are equipped with the appropriate resources on their GIST journey.
URL:https://liferaftgroup.org/event/virtual-gist-caregiver-support-group-2023/2024-01-03/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2023/05/caregiver-sg-2023.jpg
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240115T180000
DTEND;TZID=America/New_York:20240115T180000
DTSTAMP:20260403T162237
CREATED:20240103T160107Z
LAST-MODIFIED:20240103T160107Z
UID:10000635-1705341600-1705341600@liferaftgroup.org
SUMMARY:Florida Support Group - Special Date
DESCRIPTION:Florida Support Group\nSpecial date for January 2024 – 6pm ET\nGoes back to regular schedule in February of 2nd Monday of each month. \n\nOur moderator is a fellow GISTER/LRG Member from Florida diagnosed with GIST in late 2016.\nIf you wish to attend\, please email Diana Nieves: dnieves@liferaftgroup.org for the Zoom link for the meeting.
URL:https://liferaftgroup.org/event/florida-support-group-special-date/
CATEGORIES:Events,Support Group
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2024/01/florida-support-group-SD.png
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240116T180000
DTEND;TZID=America/New_York:20240116T193000
DTSTAMP:20260403T162237
CREATED:20230727T134306Z
LAST-MODIFIED:20260105T170322Z
UID:10000617-1705428000-1705433400@liferaftgroup.org
SUMMARY:Virtual GIST Patient Support Group
DESCRIPTION:The Patient Support Group meets via Zoom on the first and third Tuesday of each month from 6:00 PM – 7:30 PM ET (NYC Time). \nWe will start each group with a “Round Robin” in which anyone who feels like updating the group on how they are doing/feeling can do so. There is no pressure to speak if you prefer to simply listen. Once we complete our updates\, the group will have the opportunity for organic conversation to develop in relation to our emotional experiences around GIST\, and other challenges that we may be experiencing as a community. \nIn order to be able to moderate a flowing discussion\, the group will be capped at 15 people each month. The first 15 people into the Zoom waiting room will participate. Keep in mind that since the group is now open\, you don’t necessarily have to attend each month to participate. \nContact Brian Morello to join: bmorello@liferaftgroup.org
URL:https://liferaftgroup.org/event/virtual-gist-patient-support-group-third/2024-01-16/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/01/GISTer-Support-Group-2022-1.png
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240206T180000
DTEND;TZID=America/New_York:20240206T193000
DTSTAMP:20260403T162237
CREATED:20230727T133611Z
LAST-MODIFIED:20240823T152527Z
UID:10000600-1707242400-1707247800@liferaftgroup.org
SUMMARY:Virtual GIST Patient Support Group
DESCRIPTION:The Patient Support Group meets via Zoom on the first and third Tuesday of each month from 6:00 PM – 7:30 PM ET (NYC Time). \nWe will start each group with a “Round Robin” in which anyone who feels like updating the group on how they are doing/feeling can do so. There is no pressure to speak if you prefer to simply listen. Once we complete our updates\, the group will have the opportunity for organic conversation to develop in relation to our emotional experiences around GIST\, and other challenges that we may be experiencing as a community. \nIn order to be able to moderate a flowing discussion\, the group will be capped at 15 people each month. The first 15 people into the Zoom waiting room will participate. Keep in mind that since the group is now open\, you don’t necessarily have to attend each month to participate. \nContact Brian Morello to join: bmorello@liferaftgroup.org
URL:https://liferaftgroup.org/event/virtual-gist-patient-support-group-2023-first/2024-02-06/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/01/GISTer-Support-Group-2022-1.png
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240207T130000
DTEND;TZID=America/New_York:20240207T140000
DTSTAMP:20260403T162237
CREATED:20230727T134933Z
LAST-MODIFIED:20240614T133545Z
UID:10000636-1707310800-1707314400@liferaftgroup.org
SUMMARY:Virtual GIST Caregiver Support Group
DESCRIPTION:Monthly Virtual Support Group for GIST Caregivers\nHeld on the first Wednesday of the month \nLRG hosts a monthly virtual support group for the caregivers. We will share our stories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling during this journey as a caregiver. The group will be a safe space not only to feel supported by your fellow caregivers\, but also a place to share our own coping mechanisms\, concerns\, successes and trials. All information shared will be kept confidential. \nContact Brian Morello to join: bmorello@liferaftgroup.org \nAbout the Group Leader:\nMarlene Nei\, GIST Caregiver\nAs an active member of The Life Raft Group\, Marlene advocates for the needs of the caregiver community because she feels they are an underrepresented group. It is her mission to advocate for the entire GIST community making sure they are equipped with the appropriate resources on their GIST journey.
URL:https://liferaftgroup.org/event/virtual-gist-caregiver-support-group-2023/2024-02-07/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2023/05/caregiver-sg-2023.jpg
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240212T180000
DTEND;TZID=America/New_York:20240212T180000
DTSTAMP:20260403T162237
CREATED:20240103T160444Z
LAST-MODIFIED:20240528T154748Z
UID:10000648-1707760800-1707760800@liferaftgroup.org
SUMMARY:Virtual Florida Support Group
DESCRIPTION:Florida Support Group\nZoom\, 2nd Monday of the Month – 6pm ET\nOur moderator is a fellow GISTER/LRG Member from Florida diagnosed with GIST in late 2016.\nIf you wish to attend\, please email Brian Morello: bmorello@liferaftgroup.org for the Zoom link for the meeting.
URL:https://liferaftgroup.org/event/virtual-florida-support-group-2/2024-02-12/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2022/09/florida-support-group.jpg
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240220T180000
DTEND;TZID=America/New_York:20240220T193000
DTSTAMP:20260403T162237
CREATED:20230727T134306Z
LAST-MODIFIED:20260105T170322Z
UID:10000707-1708452000-1708457400@liferaftgroup.org
SUMMARY:Virtual GIST Patient Support Group
DESCRIPTION:The Patient Support Group meets via Zoom on the first and third Tuesday of each month from 6:00 PM – 7:30 PM ET (NYC Time). \nWe will start each group with a “Round Robin” in which anyone who feels like updating the group on how they are doing/feeling can do so. There is no pressure to speak if you prefer to simply listen. Once we complete our updates\, the group will have the opportunity for organic conversation to develop in relation to our emotional experiences around GIST\, and other challenges that we may be experiencing as a community. \nIn order to be able to moderate a flowing discussion\, the group will be capped at 15 people each month. The first 15 people into the Zoom waiting room will participate. Keep in mind that since the group is now open\, you don’t necessarily have to attend each month to participate. \nContact Brian Morello to join: bmorello@liferaftgroup.org
URL:https://liferaftgroup.org/event/virtual-gist-patient-support-group-third/2024-02-20/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/01/GISTer-Support-Group-2022-1.png
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240229T130000
DTEND;TZID=America/New_York:20240229T130000
DTSTAMP:20260403T162237
CREATED:20240220T193104Z
LAST-MODIFIED:20240221T182457Z
UID:10000768-1709211600-1709211600@liferaftgroup.org
SUMMARY:GIST Leaping into Clinical Trials
DESCRIPTION:REGISTER\nJoin us as we leap into the world of GIST clinical trials. In this session of our ‘Let’s Get the GIST of It Series’\, we will discuss new and emerging clinical trials\, as well as updates from existing trials. We will focus on details of each trial including trial site locations and eligibility criteria. \nWe will talk about trials that are for KIT\, PDGFRA\, SDH-deficient mutations along with NTRK fusions. The session will be interactive\, so attendees are encouraged to ask questions and participate. We invite patients and caregivers to attend. \nThe event will be hosted by Sahibjeet Parmar\, Director of Data Management & Research at The Life Raft Group.
URL:https://liferaftgroup.org/event/gist-leaping-into-clinical-trials/
CATEGORIES:Education,Events
ORGANIZER;CN="Denisse Evans":MAILTO:devans@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240305T180000
DTEND;TZID=America/New_York:20240305T193000
DTSTAMP:20260403T162237
CREATED:20230727T133611Z
LAST-MODIFIED:20240823T152527Z
UID:10000601-1709661600-1709667000@liferaftgroup.org
SUMMARY:Virtual GIST Patient Support Group
DESCRIPTION:The Patient Support Group meets via Zoom on the first and third Tuesday of each month from 6:00 PM – 7:30 PM ET (NYC Time). \nWe will start each group with a “Round Robin” in which anyone who feels like updating the group on how they are doing/feeling can do so. There is no pressure to speak if you prefer to simply listen. Once we complete our updates\, the group will have the opportunity for organic conversation to develop in relation to our emotional experiences around GIST\, and other challenges that we may be experiencing as a community. \nIn order to be able to moderate a flowing discussion\, the group will be capped at 15 people each month. The first 15 people into the Zoom waiting room will participate. Keep in mind that since the group is now open\, you don’t necessarily have to attend each month to participate. \nContact Brian Morello to join: bmorello@liferaftgroup.org
URL:https://liferaftgroup.org/event/virtual-gist-patient-support-group-2023-first/2024-03-05/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/01/GISTer-Support-Group-2022-1.png
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240306T130000
DTEND;TZID=America/New_York:20240306T140000
DTSTAMP:20260403T162237
CREATED:20230727T134933Z
LAST-MODIFIED:20240614T133545Z
UID:10000637-1709730000-1709733600@liferaftgroup.org
SUMMARY:Virtual GIST Caregiver Support Group
DESCRIPTION:Monthly Virtual Support Group for GIST Caregivers\nHeld on the first Wednesday of the month \nLRG hosts a monthly virtual support group for the caregivers. We will share our stories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling during this journey as a caregiver. The group will be a safe space not only to feel supported by your fellow caregivers\, but also a place to share our own coping mechanisms\, concerns\, successes and trials. All information shared will be kept confidential. \nContact Brian Morello to join: bmorello@liferaftgroup.org \nAbout the Group Leader:\nMarlene Nei\, GIST Caregiver\nAs an active member of The Life Raft Group\, Marlene advocates for the needs of the caregiver community because she feels they are an underrepresented group. It is her mission to advocate for the entire GIST community making sure they are equipped with the appropriate resources on their GIST journey.
URL:https://liferaftgroup.org/event/virtual-gist-caregiver-support-group-2023/2024-03-06/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2023/05/caregiver-sg-2023.jpg
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240311T180000
DTEND;TZID=America/New_York:20240311T180000
DTSTAMP:20260403T162237
CREATED:20240103T160444Z
LAST-MODIFIED:20240528T154748Z
UID:10000649-1710180000-1710180000@liferaftgroup.org
SUMMARY:Virtual Florida Support Group
DESCRIPTION:Florida Support Group\nZoom\, 2nd Monday of the Month – 6pm ET\nOur moderator is a fellow GISTER/LRG Member from Florida diagnosed with GIST in late 2016.\nIf you wish to attend\, please email Brian Morello: bmorello@liferaftgroup.org for the Zoom link for the meeting.
URL:https://liferaftgroup.org/event/virtual-florida-support-group-2/2024-03-11/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2022/09/florida-support-group.jpg
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240319T180000
DTEND;TZID=America/New_York:20240319T193000
DTSTAMP:20260403T162237
CREATED:20230727T134306Z
LAST-MODIFIED:20260105T170322Z
UID:10000708-1710871200-1710876600@liferaftgroup.org
SUMMARY:Virtual GIST Patient Support Group
DESCRIPTION:The Patient Support Group meets via Zoom on the first and third Tuesday of each month from 6:00 PM – 7:30 PM ET (NYC Time). \nWe will start each group with a “Round Robin” in which anyone who feels like updating the group on how they are doing/feeling can do so. There is no pressure to speak if you prefer to simply listen. Once we complete our updates\, the group will have the opportunity for organic conversation to develop in relation to our emotional experiences around GIST\, and other challenges that we may be experiencing as a community. \nIn order to be able to moderate a flowing discussion\, the group will be capped at 15 people each month. The first 15 people into the Zoom waiting room will participate. Keep in mind that since the group is now open\, you don’t necessarily have to attend each month to participate. \nContact Brian Morello to join: bmorello@liferaftgroup.org
URL:https://liferaftgroup.org/event/virtual-gist-patient-support-group-third/2024-03-19/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/01/GISTer-Support-Group-2022-1.png
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240402T180000
DTEND;TZID=America/New_York:20240402T193000
DTSTAMP:20260403T162237
CREATED:20230727T133611Z
LAST-MODIFIED:20240823T152527Z
UID:10000602-1712080800-1712086200@liferaftgroup.org
SUMMARY:Virtual GIST Patient Support Group
DESCRIPTION:The Patient Support Group meets via Zoom on the first and third Tuesday of each month from 6:00 PM – 7:30 PM ET (NYC Time). \nWe will start each group with a “Round Robin” in which anyone who feels like updating the group on how they are doing/feeling can do so. There is no pressure to speak if you prefer to simply listen. Once we complete our updates\, the group will have the opportunity for organic conversation to develop in relation to our emotional experiences around GIST\, and other challenges that we may be experiencing as a community. \nIn order to be able to moderate a flowing discussion\, the group will be capped at 15 people each month. The first 15 people into the Zoom waiting room will participate. Keep in mind that since the group is now open\, you don’t necessarily have to attend each month to participate. \nContact Brian Morello to join: bmorello@liferaftgroup.org
URL:https://liferaftgroup.org/event/virtual-gist-patient-support-group-2023-first/2024-04-02/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/01/GISTer-Support-Group-2022-1.png
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240403T130000
DTEND;TZID=America/New_York:20240403T140000
DTSTAMP:20260403T162237
CREATED:20230727T134933Z
LAST-MODIFIED:20240614T133545Z
UID:10000638-1712149200-1712152800@liferaftgroup.org
SUMMARY:Virtual GIST Caregiver Support Group
DESCRIPTION:Monthly Virtual Support Group for GIST Caregivers\nHeld on the first Wednesday of the month \nLRG hosts a monthly virtual support group for the caregivers. We will share our stories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling during this journey as a caregiver. The group will be a safe space not only to feel supported by your fellow caregivers\, but also a place to share our own coping mechanisms\, concerns\, successes and trials. All information shared will be kept confidential. \nContact Brian Morello to join: bmorello@liferaftgroup.org \nAbout the Group Leader:\nMarlene Nei\, GIST Caregiver\nAs an active member of The Life Raft Group\, Marlene advocates for the needs of the caregiver community because she feels they are an underrepresented group. It is her mission to advocate for the entire GIST community making sure they are equipped with the appropriate resources on their GIST journey.
URL:https://liferaftgroup.org/event/virtual-gist-caregiver-support-group-2023/2024-04-03/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2023/05/caregiver-sg-2023.jpg
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240408T180000
DTEND;TZID=America/New_York:20240408T180000
DTSTAMP:20260403T162237
CREATED:20240103T160444Z
LAST-MODIFIED:20240528T154748Z
UID:10000650-1712599200-1712599200@liferaftgroup.org
SUMMARY:Virtual Florida Support Group
DESCRIPTION:Florida Support Group\nZoom\, 2nd Monday of the Month – 6pm ET\nOur moderator is a fellow GISTER/LRG Member from Florida diagnosed with GIST in late 2016.\nIf you wish to attend\, please email Brian Morello: bmorello@liferaftgroup.org for the Zoom link for the meeting.
URL:https://liferaftgroup.org/event/virtual-florida-support-group-2/2024-04-08/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2022/09/florida-support-group.jpg
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240411T120000
DTEND;TZID=America/New_York:20240411T120000
DTSTAMP:20260403T162237
CREATED:20240313T180524Z
LAST-MODIFIED:20240403T190917Z
UID:10000770-1712836800-1712836800@liferaftgroup.org
SUMMARY:Gaining Insight on the INSIGHT Phase 3 Study
DESCRIPTION:The Life Raft Group is partnering with Dr. Neeta Somaiah of MD Anderson Cancer Center to host "Gaining Insight on the Phase 3 INSIGHT Clinical Trial" for the GIST community on April 11th\, 2024 from 12-1:15 pm ET. During the webinar\, Dr. Somaiah will present an overview of Deciphera Pharmaceutical's Phase 3 INSIGHT Clinical Trial. This study tests the investigational use of ripretinib in a subset of patients living with GIST. Webinar participants will learn about the INSIGHT study\, including eligibility\, site locations\, and study rationale. A Q & A session will follow the presentation.    \nPlease email srothschild@liferaftgroup.org to submit a question ahead of the presentation.  \n\n\n\n\nPlease note that this webinar is not a substitute for your physician's guidance and care.\nREGISTERAbout Our Presenter\nNeeta Somaiah\, MD\nMD Anderson Cancer Center \nDr. Neeta Somaiah received her medical degree from Maulana Azad Medical College in New Delhi\, India and has trained at St. John’s Episcopal in New York\, Drexel University Hospital and Fox Chase Cancer Center in Philadelphia\, prior to joining MD Anderson Cancer Center.  \nDr. Somaiah joined MD Anderson Cancer Center in 2012.  She has thirteen years of sarcoma and clinical research experience. She is board certified in Medical Oncology.  Her primary clinical and research focus is soft tissue sarcomas\, specifically liposarcomas and GIST.  She currently serves as the Principal Investigator of three investigator-initiated trials and nine cooperative group and industry-sponsored clinical trials at MD Anderson Cancer Center and has in depth knowledge with extensive experience in the design and execution of clinical trials. She also has multiple ongoing collaborations for translational research\, both retrospective and prospective\, that help improve the understanding of these rare group of diseases and explore the role of immunotherapy as a therapeutic avenue.  Dr. Somaiah has been presented many honors for her expertise and contributions to science\, including an Exceptional Women in Medicine award and is among the top 1% providers nationally.   \nThank you to our Webinar Sponsor!
URL:https://liferaftgroup.org/event/gaining-insight-on-the-insight-phase-3-study/
CATEGORIES:Education,Events,Webcast
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240416T180000
DTEND;TZID=America/New_York:20240416T193000
DTSTAMP:20260403T162237
CREATED:20230727T134306Z
LAST-MODIFIED:20260105T170322Z
UID:10000709-1713290400-1713295800@liferaftgroup.org
SUMMARY:Virtual GIST Patient Support Group
DESCRIPTION:The Patient Support Group meets via Zoom on the first and third Tuesday of each month from 6:00 PM – 7:30 PM ET (NYC Time). \nWe will start each group with a “Round Robin” in which anyone who feels like updating the group on how they are doing/feeling can do so. There is no pressure to speak if you prefer to simply listen. Once we complete our updates\, the group will have the opportunity for organic conversation to develop in relation to our emotional experiences around GIST\, and other challenges that we may be experiencing as a community. \nIn order to be able to moderate a flowing discussion\, the group will be capped at 15 people each month. The first 15 people into the Zoom waiting room will participate. Keep in mind that since the group is now open\, you don’t necessarily have to attend each month to participate. \nContact Brian Morello to join: bmorello@liferaftgroup.org
URL:https://liferaftgroup.org/event/virtual-gist-patient-support-group-third/2024-04-16/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/01/GISTer-Support-Group-2022-1.png
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240430T120000
DTEND;TZID=America/New_York:20240430T120000
DTSTAMP:20260403T162237
CREATED:20240403T191818Z
LAST-MODIFIED:20240403T191818Z
UID:10000771-1714478400-1714478400@liferaftgroup.org
SUMMARY:Educate Yourself on GIST Research
DESCRIPTION:How to Educate Yourself on GIST Research – Searching the Web for GIST Science Publications\nLife Raft Group Science Team Member Jim Hughes will present “How to Educate Yourself on GIST Research- Searching the Web for GIST Science Publications” to GIST patients & caregivers on April 30th\, 2024 at 12pm ET. During this virtual presentation\, Jim will outline the importance of patients and caregivers researching their cancer in order to best advocate for themselves. Jim will explain the importance of GIST publications and how to effectively do your own research\, and how to work together with fellow community members to share research findings. \nPlease email srothschild@liferaftgroup.org to submit a question ahead of the presentation.  \n\n\n\nPlease note that this webinar is not a substitute for your physician’s guidance and care.\nREGISTERAbout Our Presenter\n \nJim Hughes\nLRG Clinical Trials Database Coordinator/Science Team Member \nJim Hughes attended Kenyon College\, Ohio and Loyola University\, Chicago where he earned a BA in Philosophy. Between schools Jim served as an officer in the United States Army in the US and Vietnam and following his service worked in telecommunications for 35 years. \nJim and Margi are the parents of two children\, Nancy and Jamie. Nancy Hughes Welsh was an early member of The Life Raft Group (2002). Nancy was diagnosed with leiomyosarcoma in 1991 at age 23. After ten years of surgery and chemotherapy Nancy was re-diagnosed with GIST in 2001. Nancy participated in the Phase Three imatinib trial in 2001 and the Phase Two sunitinib trial in 2003. Nancy’s GIST was eventually diagnosed as SDH epimutant and passed away in 2005. \nJim serves as a Life Raft Group Board Member\, our Clinical Trials Database Coordinator and is a founding member of the LRG Science Team. \n  \nThank you to our Webinar Sponsors!
URL:https://liferaftgroup.org/event/educate-yourself-on-gist-research/
CATEGORIES:Education,Events,Webcast
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240501T130000
DTEND;TZID=America/New_York:20240501T140000
DTSTAMP:20260403T162237
CREATED:20230727T134933Z
LAST-MODIFIED:20240614T133545Z
UID:10000639-1714568400-1714572000@liferaftgroup.org
SUMMARY:Virtual GIST Caregiver Support Group
DESCRIPTION:Monthly Virtual Support Group for GIST Caregivers\nHeld on the first Wednesday of the month \nLRG hosts a monthly virtual support group for the caregivers. We will share our stories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling during this journey as a caregiver. The group will be a safe space not only to feel supported by your fellow caregivers\, but also a place to share our own coping mechanisms\, concerns\, successes and trials. All information shared will be kept confidential. \nContact Brian Morello to join: bmorello@liferaftgroup.org \nAbout the Group Leader:\nMarlene Nei\, GIST Caregiver\nAs an active member of The Life Raft Group\, Marlene advocates for the needs of the caregiver community because she feels they are an underrepresented group. It is her mission to advocate for the entire GIST community making sure they are equipped with the appropriate resources on their GIST journey.
URL:https://liferaftgroup.org/event/virtual-gist-caregiver-support-group-2023/2024-05-01/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2023/05/caregiver-sg-2023.jpg
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240507T180000
DTEND;TZID=America/New_York:20240507T193000
DTSTAMP:20260403T162237
CREATED:20230727T133611Z
LAST-MODIFIED:20240823T152527Z
UID:10000603-1715104800-1715110200@liferaftgroup.org
SUMMARY:Virtual GIST Patient Support Group
DESCRIPTION:The Patient Support Group meets via Zoom on the first and third Tuesday of each month from 6:00 PM – 7:30 PM ET (NYC Time). \nWe will start each group with a “Round Robin” in which anyone who feels like updating the group on how they are doing/feeling can do so. There is no pressure to speak if you prefer to simply listen. Once we complete our updates\, the group will have the opportunity for organic conversation to develop in relation to our emotional experiences around GIST\, and other challenges that we may be experiencing as a community. \nIn order to be able to moderate a flowing discussion\, the group will be capped at 15 people each month. The first 15 people into the Zoom waiting room will participate. Keep in mind that since the group is now open\, you don’t necessarily have to attend each month to participate. \nContact Brian Morello to join: bmorello@liferaftgroup.org
URL:https://liferaftgroup.org/event/virtual-gist-patient-support-group-2023-first/2024-05-07/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/01/GISTer-Support-Group-2022-1.png
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
END:VCALENDAR