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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250627T120000
DTEND;TZID=America/New_York:20250627T140000
DTSTAMP:20260403T151523
CREATED:20250519T143225Z
LAST-MODIFIED:20250619T161858Z
UID:10000826-1751025600-1751032800@liferaftgroup.org
SUMMARY:LRG Open House
DESCRIPTION:Jerry Call stops at The Life Raft Group’s offices in Wayne\, NJ on his way back home to Virgina. Come meet Jerry\, the LRG Staff\, Norman Scherzer as well as patients\, caregivers and medical professionals. We are serving up lunch and beverages (all free) – indoors Building 2. \nREGISTER
URL:https://liferaftgroup.org/event/lrg-open-house/
LOCATION:The Life Raft Group\, 155 US Highway 46\, Ste. 202\, Wayne Plaza II\, Wayne\, NJ\, 07470\, United States
CATEGORIES:Events,Fundraising
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250630T120000
DTEND;TZID=America/New_York:20250630T120000
DTSTAMP:20260403T151523
CREATED:20250516T163719Z
LAST-MODIFIED:20250623T151652Z
UID:10000825-1751284800-1751284800@liferaftgroup.org
SUMMARY:Navigating Financial Support & Medicare Changes
DESCRIPTION:The Life Raft Group is partnering with Jennifer Noonan of Accessia Health to present “Navigating Financial Support & Medicare Changes: What Patients Need to Know in 2025” to our patient and caregiver community on June 30th at 12PM ET. During this virtual presentation\, Ms. Noonan will cover key updates including the Medicare Prescription Payment Plan (M3P)\, cost-sharing “smoothing\,” and how charitable financial assistance programs can support individuals navigating high out-of-pocket costs. Learn what these changes mean for patients and caregivers — and how to prepare for what’s ahead. A Q&A segment will follow Ms. Noonan’s presentation. \nThese webinars are for informational purposes only and should not replace professional medical advice. Always consult your healthcare provider before making any treatment or lifestyle changes. If you have questions or comments\, please reach out to rpauley@liferaftgroup.org. \nREGISTERAbout Our Presenter\n \nJennifer Noonan\nAccessia Heath \nJennifer Noonan\, Vice President of Clinical Strategy & Patient Engagement at Accessia Health\, is a dedicated healthcare professional with 25+ years of clinical nursing experience. Her vast clinical management background spans diverse healthcare settings\, showcasing her expertise in program design and service delivery under rigorous regulations. Her career began in emergency medicine in Louisville\, KY\, where she spent 17 years in leadership roles and contributing to EMR clinical development and implementation. Transitioning into hospice and palliative care in 2014\, Jennifer excelled in leadership positions for both adult and pediatric patients. A resolute academic\, Jennifer holds degrees from Kentucky State University and Western Governors University. She was appointed to the National Association of Specialty Pharmacy’s Board of Directors in September 2023. Beyond work\, she is a family-oriented martial arts enthusiast\, hiker\, and avid traveler. \nThank You to Our Sponsors!\n 
URL:https://liferaftgroup.org/event/navigating-financial-support/
CATEGORIES:Education,Webcast
ORGANIZER;CN="Rebecca Pauley":MAILTO:rpauley@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250702T130000
DTEND;TZID=America/New_York:20250702T140000
DTSTAMP:20260403T151523
CREATED:20240528T163612Z
LAST-MODIFIED:20260226T163718Z
UID:10001093-1751461200-1751464800@liferaftgroup.org
SUMMARY:Virtual GIST Caregiver Support Group
DESCRIPTION:Monthly Virtual Support Group for GIST Caregivers\nHeld on the first Wednesday of the month \nLRG hosts a monthly virtual support group for the caregivers. We will share our stories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling during this journey as a caregiver. The group will be a safe space not only to feel supported by your fellow caregivers\, but also a place to share our own coping mechanisms\, concerns\, successes and trials. All information shared will be kept confidential. \nContact Rachel LoCurto at rlocurto@liferaftgroup.org for more information and to join this meeting. \nAbout the Group Leader:\nMarlene Nei\, GIST Caregiver\nAs an active member of The Life Raft Group\, Marlene advocates for the needs of the caregiver community because she feels they are an underrepresented group. It is her mission to advocate for the entire GIST community making sure they are equipped with the appropriate resources on their GIST journey.
URL:https://liferaftgroup.org/event/virtual-gist-caregiver-support-group-2023-2/2025-07-02/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2023/05/caregiver-sg-2023.jpg
ORGANIZER;CN="Rachel LoCurto":MAILTO:rlocurto@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250711T140000
DTEND;TZID=America/New_York:20250711T140000
DTSTAMP:20260403T151523
CREATED:20250513T130002Z
LAST-MODIFIED:20250710T185244Z
UID:10000824-1752242400-1752242400@liferaftgroup.org
SUMMARY:GIST Awareness Day Fireside Chat
DESCRIPTION:July 13th\, GIST Awareness Day\, is a time when GIST experts\, patients\, and caregivers come together to educate the public about this disease and advocate for finding a cure.  The Life Raft Group invites GIST patients and caregivers to celebrate GIST Awareness Day with us on July 11th at 2PM ET. During this virtual event\, esteemed GIST experts Dr. Sicklick of UCSD and Dr. Blakely and Dr. John Glod of the NIH will answer patient and caregiver questions in an informal chat. \nThese webinars are for informational purposes only and should not replace professional medical advice. Always consult your healthcare provider before making any treatment or lifestyle changes. If you have questions or comments\, please reach out to srothschild@liferaftgroup.org. \nREGISTERAbout Our Presenters\n \nDr. Jason Sicklick\nUCSD\, Moores Cancer Center \nJason Sicklick\, MD\, is an internationally recognized surgical oncologist who specializes in treating gastrointestinal stromal tumors (GIST)\, abdominal/retroperitoneal sarcomas\, and liver tumors.He leader of the Sarcoma Disease Team and Co-leader of the Structural and Function Genomics Program at UC San Diego Health’s Moores Cancer Center. He is also a member of the National Comprehensive Cancer Network Soft-Tissue Sarcoma Committee and GIST Subcommittee\, which develops best practices for treating these rare and often challenging-to-treat cancers. \n \nDr. Andrew Blakely\nNational Cancer Institute (NCI) \nDr. Blakely completed a Bachelor of Science in Biomedical Engineering followed by medical school at Drexel University. He went on to general surgery residency at Brown University. During residency\, he spent two years of dedicated research time at the Center for Biomedical Engineering developing a device for tissue engineering applications. Dr. Blakely then completed his fellowship in Complex General Surgical Oncology at City of Hope National Medical Center. Dr. Blakely is currently a surgical oncologist specializing in peritoneal surface malignancies and soft tissue sarcomas. One of the primary focuses of his research includes improving surgical treatment and ex vivo tumor modeling of gastrointestinal stromal tumors. \n \nDr. John Glod\nNational Cancer Institute (NCI) \nDr. Glod obtained his M.D. and Ph.D. from the University of Colorado in Denver and trained in pediatrics and pediatric oncology at Cincinnati Children’s Hospital\, Johns Hopkins Hospital\, and the Pediatric Oncology Branch of the NCI.  Dr. Glod currently serves as the Clinical Director of the Pediatric Oncology Branch in the Center for Cancer Research at National Cancer Institute. Dr. Glod’s research interests are focused on early stage clinical trials for pediatric patients and rare pediatric solid tumors including multiple endocrine neoplasia-related medullary thyroid cancer\, SDH-deficient gastrointestinal stromal tumor\, and tumors of the central nervous system. \nThank You to Our Sponsors!\n 
URL:https://liferaftgroup.org/event/gad-fireside-chat/
CATEGORIES:Education,Webcast
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250714T120000
DTEND;TZID=America/New_York:20250714T120000
DTSTAMP:20260403T151523
CREATED:20250318T174657Z
LAST-MODIFIED:20250711T200848Z
UID:10000815-1752494400-1752494400@liferaftgroup.org
SUMMARY:Día del aprendizaje sobre GIST en español
DESCRIPTION:RESERVE LA FECHA – 14 de Julio\n \nPronto compartiremos la agenda. \n¡Reserve la fecha para el primer GIST Day of Learning en español!  \nEl día del aprendizaje sobre Los Tumores del Estroma Gastrointestinal (GIST) es un evento gratuito diseñado para pacientes y cuidadores\, donde pueden informarse sobre este cáncer poco común\, encontrar apoyo y fortalecer su conocimiento para afrontar su camino contra el GIST. \nREGISTRATELink Agenda PDF\n \n¿Qué es un GDOL? \nUn GDOL es un GIST Day of Learning (Día de Aprendizaje sobre GIST). Este es un evento gratuito de un día diseñado para ayudar a pacientes y cuidadores a aprender más sobre este cáncer raro\, encontrar apoyo y ampliar sus conocimientos para navegar su camino en el tratamiento del cáncer. \nThe Life Raft Group está comprometido con mejorar la supervivencia y calidad de vida de las personas que viven con Tumor del Estroma Gastrointestinal (GIST) y otras enfermedades raras\, a través de la investigación impulsada por los pacientes\, la educación\, el empoderamiento y esfuerzos de defensa a nivel global. Nuestra visión es impulsar un futuro basado en datos\, guiando nuestro camino hacia la cura de enfermedades raras. \nSi tiene alguna pregunta\, comuníquese con Brian Morello en bmorello@liferaftgroup.org. \nGracias a Nuestros Patrocinadores!
URL:https://liferaftgroup.org/event/dia-del-aprendizaje-sobre-gist-en-espanol/
CATEGORIES:Education,Events
ORGANIZER;CN="Rebecca Pauley":MAILTO:rpauley@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250714T180000
DTEND;TZID=America/New_York:20250714T180000
DTSTAMP:20260403T151523
CREATED:20240528T163645Z
LAST-MODIFIED:20260226T165312Z
UID:10001248-1752516000-1752516000@liferaftgroup.org
SUMMARY:Virtual Florida Support Group
DESCRIPTION:Florida Support Group\nZoom\, 2nd Monday of the Month – 6pm ET\nOur moderator is a fellow GISTER/LRG Member from Florida diagnosed with GIST in late 2016.\nIf you wish to attend\, please email Rachel LoCurto: rlocurto@liferaftgroup.org for the Zoom link for the meeting.
URL:https://liferaftgroup.org/event/virtual-florida-support-group-2-2-2/2025-07-14/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2022/09/florida-support-group.jpg
ORGANIZER;CN="Rachel LoCurto":MAILTO:rlocurto@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250715T150000
DTEND;TZID=America/New_York:20250715T150000
DTSTAMP:20260403T151523
CREATED:20250710T225236Z
LAST-MODIFIED:20260226T154752Z
UID:10000830-1752591600-1752591600@liferaftgroup.org
SUMMARY:SDH Support Group
DESCRIPTION:We are excited to announce the launch of a dedicated Support Group for SDH-GIST patients\, created to offer a welcoming space for connection\, understanding\, and shared experience. Whether you’re newly diagnosed or have been managing SDH for years\, this group is here to support you. Together\, we will share our stories and knowledge\, discuss challenges\, celebrate progress\, and offer encouragement to one another in a safe\, respectful environment. \nWhat to Expect: \n\nRegular virtual meetings\nPeer support and open discussion\nGuest speakers and educational sessions\nOpportunities to ask questions and share your story\n\nThis group will meet the 3rd Tuesdays of the month. Space is limited as we aim to keep the support groups small to allow for sharing & discussion.  If interested in the group\, please contact Becky Owens at bowens@liferaftgroup.org. A registration link will be sent to those who express interest. You are not alone\, and we hope this group becomes a meaningful part of your life.
URL:https://liferaftgroup.org/event/sdh-support-group/2025-07-15/
CATEGORIES:Events,Support Group
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2025/07/SDH-Support-Group-Event-Banner.png
ORGANIZER;CN="Becky Owens":MAILTO:bowens@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250715T180000
DTEND;TZID=America/New_York:20250715T193000
DTSTAMP:20260403T151523
CREATED:20230727T134306Z
LAST-MODIFIED:20260105T170322Z
UID:10000724-1752602400-1752607800@liferaftgroup.org
SUMMARY:Virtual GIST Patient Support Group
DESCRIPTION:The Patient Support Group meets via Zoom on the first and third Tuesday of each month from 6:00 PM – 7:30 PM ET (NYC Time). \nWe will start each group with a “Round Robin” in which anyone who feels like updating the group on how they are doing/feeling can do so. There is no pressure to speak if you prefer to simply listen. Once we complete our updates\, the group will have the opportunity for organic conversation to develop in relation to our emotional experiences around GIST\, and other challenges that we may be experiencing as a community. \nIn order to be able to moderate a flowing discussion\, the group will be capped at 15 people each month. The first 15 people into the Zoom waiting room will participate. Keep in mind that since the group is now open\, you don’t necessarily have to attend each month to participate. \nContact Brian Morello to join: bmorello@liferaftgroup.org
URL:https://liferaftgroup.org/event/virtual-gist-patient-support-group-third/2025-07-15/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/01/GISTer-Support-Group-2022-1.png
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20250728T180000
DTEND;TZID=America/Chicago:20250728T180000
DTSTAMP:20260403T151523
CREATED:20240823T175323Z
LAST-MODIFIED:20260226T163049Z
UID:10000858-1753725600-1753725600@liferaftgroup.org
SUMMARY:Virtual Texas Support Group
DESCRIPTION:Texas Support Group Zoom meeting on the 4th Monday of the month @ 6PM Central Time. Jackie Vanderpol will host this zoom meeting. Contact Rachel LoCurto at rlocurto@liferaftgroup.org with any questions or to get the Zoom link.
URL:https://liferaftgroup.org/event/virtual-texas-support-group/2025-07-28/
CATEGORIES:Events,Support Group
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2024/08/texas-support-group.jpg
ORGANIZER;CN="Rachel LoCurto":MAILTO:rlocurto@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250806T130000
DTEND;TZID=America/New_York:20250806T140000
DTSTAMP:20260403T151523
CREATED:20240528T163612Z
LAST-MODIFIED:20260226T163718Z
UID:10001094-1754485200-1754488800@liferaftgroup.org
SUMMARY:Virtual GIST Caregiver Support Group
DESCRIPTION:Monthly Virtual Support Group for GIST Caregivers\nHeld on the first Wednesday of the month \nLRG hosts a monthly virtual support group for the caregivers. We will share our stories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling during this journey as a caregiver. The group will be a safe space not only to feel supported by your fellow caregivers\, but also a place to share our own coping mechanisms\, concerns\, successes and trials. All information shared will be kept confidential. \nContact Rachel LoCurto at rlocurto@liferaftgroup.org for more information and to join this meeting. \nAbout the Group Leader:\nMarlene Nei\, GIST Caregiver\nAs an active member of The Life Raft Group\, Marlene advocates for the needs of the caregiver community because she feels they are an underrepresented group. It is her mission to advocate for the entire GIST community making sure they are equipped with the appropriate resources on their GIST journey.
URL:https://liferaftgroup.org/event/virtual-gist-caregiver-support-group-2023-2/2025-08-06/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2023/05/caregiver-sg-2023.jpg
ORGANIZER;CN="Rachel LoCurto":MAILTO:rlocurto@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250811T180000
DTEND;TZID=America/New_York:20250811T180000
DTSTAMP:20260403T151523
CREATED:20240528T163645Z
LAST-MODIFIED:20260226T165312Z
UID:10000666-1754935200-1754935200@liferaftgroup.org
SUMMARY:Virtual Florida Support Group
DESCRIPTION:Florida Support Group\nZoom\, 2nd Monday of the Month – 6pm ET\nOur moderator is a fellow GISTER/LRG Member from Florida diagnosed with GIST in late 2016.\nIf you wish to attend\, please email Rachel LoCurto: rlocurto@liferaftgroup.org for the Zoom link for the meeting.
URL:https://liferaftgroup.org/event/virtual-florida-support-group-2-2-2/2025-08-11/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2022/09/florida-support-group.jpg
ORGANIZER;CN="Rachel LoCurto":MAILTO:rlocurto@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250812T120000
DTEND;TZID=America/New_York:20250812T120000
DTSTAMP:20260403T151523
CREATED:20250707T163827Z
LAST-MODIFIED:20250707T193754Z
UID:10000828-1755000000-1755000000@liferaftgroup.org
SUMMARY:Making Cents of Caregiving
DESCRIPTION:The Life Raft Group is partnering with Al Berg of the AARP NJ Speakers Bureau to present “Making Cents of Caregiving” on August 12\, at 12PM ET. In this informative and educational session\, you will be introduced to essential information caregivers need to more easily manage the financial complexities of caregiving. Over the course of the presentation\, you will learn how to incorporate financial tips and resources into your caregiving. By the end of the session\, we hope you have the confidence to make your own financial plans for your loved one’s care and well-being. A question and answer session will follow the presentation. \nThese webinars are for informational purposes only and should not replace professional medical advice. Always consult your healthcare provider before making any treatment or lifestyle changes. If you have questions or comments\, please reach out to rpauley@liferaftgroup.org. \nREGISTERAbout Our Presenters\n \nAl Berg\nAARP NJ Speakers Bureau \nAl Berg is a volunteer with the AARP NJ Speakers Bureau\, giving presentations on a variety of topics of interest to older Americans.  During the day\, Al heads up cybersecurity for a major entertainment company. When he is not fighting off hackers\, he is an EMT with the Weehawken Volunteer First Aid Squad and lives in Weehawken with his wife and a very spoiled cat. \nThank You to Our Sponsors!\n 
URL:https://liferaftgroup.org/event/making-cents-of-caregiving/
CATEGORIES:Education,Webcast
ORGANIZER;CN="Rebecca Pauley":MAILTO:rpauley@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250819T150000
DTEND;TZID=America/New_York:20250819T150000
DTSTAMP:20260403T151523
CREATED:20250710T225236Z
LAST-MODIFIED:20260226T154752Z
UID:10000831-1755615600-1755615600@liferaftgroup.org
SUMMARY:SDH Support Group
DESCRIPTION:We are excited to announce the launch of a dedicated Support Group for SDH-GIST patients\, created to offer a welcoming space for connection\, understanding\, and shared experience. Whether you’re newly diagnosed or have been managing SDH for years\, this group is here to support you. Together\, we will share our stories and knowledge\, discuss challenges\, celebrate progress\, and offer encouragement to one another in a safe\, respectful environment. \nWhat to Expect: \n\nRegular virtual meetings\nPeer support and open discussion\nGuest speakers and educational sessions\nOpportunities to ask questions and share your story\n\nThis group will meet the 3rd Tuesdays of the month. Space is limited as we aim to keep the support groups small to allow for sharing & discussion.  If interested in the group\, please contact Becky Owens at bowens@liferaftgroup.org. A registration link will be sent to those who express interest. You are not alone\, and we hope this group becomes a meaningful part of your life.
URL:https://liferaftgroup.org/event/sdh-support-group/2025-08-19/
CATEGORIES:Events,Support Group
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2025/07/SDH-Support-Group-Event-Banner.png
ORGANIZER;CN="Becky Owens":MAILTO:bowens@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250819T180000
DTEND;TZID=America/New_York:20250819T193000
DTSTAMP:20260403T151523
CREATED:20230727T134306Z
LAST-MODIFIED:20260105T170322Z
UID:10000725-1755626400-1755631800@liferaftgroup.org
SUMMARY:Virtual GIST Patient Support Group
DESCRIPTION:The Patient Support Group meets via Zoom on the first and third Tuesday of each month from 6:00 PM – 7:30 PM ET (NYC Time). \nWe will start each group with a “Round Robin” in which anyone who feels like updating the group on how they are doing/feeling can do so. There is no pressure to speak if you prefer to simply listen. Once we complete our updates\, the group will have the opportunity for organic conversation to develop in relation to our emotional experiences around GIST\, and other challenges that we may be experiencing as a community. \nIn order to be able to moderate a flowing discussion\, the group will be capped at 15 people each month. The first 15 people into the Zoom waiting room will participate. Keep in mind that since the group is now open\, you don’t necessarily have to attend each month to participate. \nContact Brian Morello to join: bmorello@liferaftgroup.org
URL:https://liferaftgroup.org/event/virtual-gist-patient-support-group-third/2025-08-19/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/01/GISTer-Support-Group-2022-1.png
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20250825T180000
DTEND;TZID=America/Chicago:20250825T180000
DTSTAMP:20260403T151523
CREATED:20240823T175323Z
LAST-MODIFIED:20260226T163049Z
UID:10000859-1756144800-1756144800@liferaftgroup.org
SUMMARY:Virtual Texas Support Group
DESCRIPTION:Texas Support Group Zoom meeting on the 4th Monday of the month @ 6PM Central Time. Jackie Vanderpol will host this zoom meeting. Contact Rachel LoCurto at rlocurto@liferaftgroup.org with any questions or to get the Zoom link.
URL:https://liferaftgroup.org/event/virtual-texas-support-group/2025-08-25/
CATEGORIES:Events,Support Group
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2024/08/texas-support-group.jpg
ORGANIZER;CN="Rachel LoCurto":MAILTO:rlocurto@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250903T130000
DTEND;TZID=America/New_York:20250903T140000
DTSTAMP:20260403T151523
CREATED:20240528T163612Z
LAST-MODIFIED:20260226T163718Z
UID:10001095-1756904400-1756908000@liferaftgroup.org
SUMMARY:Virtual GIST Caregiver Support Group
DESCRIPTION:Monthly Virtual Support Group for GIST Caregivers\nHeld on the first Wednesday of the month \nLRG hosts a monthly virtual support group for the caregivers. We will share our stories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling during this journey as a caregiver. The group will be a safe space not only to feel supported by your fellow caregivers\, but also a place to share our own coping mechanisms\, concerns\, successes and trials. All information shared will be kept confidential. \nContact Rachel LoCurto at rlocurto@liferaftgroup.org for more information and to join this meeting. \nAbout the Group Leader:\nMarlene Nei\, GIST Caregiver\nAs an active member of The Life Raft Group\, Marlene advocates for the needs of the caregiver community because she feels they are an underrepresented group. It is her mission to advocate for the entire GIST community making sure they are equipped with the appropriate resources on their GIST journey.
URL:https://liferaftgroup.org/event/virtual-gist-caregiver-support-group-2023-2/2025-09-03/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2023/05/caregiver-sg-2023.jpg
ORGANIZER;CN="Rachel LoCurto":MAILTO:rlocurto@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250908T180000
DTEND;TZID=America/New_York:20250908T180000
DTSTAMP:20260403T151523
CREATED:20240528T163645Z
LAST-MODIFIED:20260226T165312Z
UID:10001249-1757354400-1757354400@liferaftgroup.org
SUMMARY:Virtual Florida Support Group
DESCRIPTION:Florida Support Group\nZoom\, 2nd Monday of the Month – 6pm ET\nOur moderator is a fellow GISTER/LRG Member from Florida diagnosed with GIST in late 2016.\nIf you wish to attend\, please email Rachel LoCurto: rlocurto@liferaftgroup.org for the Zoom link for the meeting.
URL:https://liferaftgroup.org/event/virtual-florida-support-group-2-2-2/2025-09-08/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2022/09/florida-support-group.jpg
ORGANIZER;CN="Rachel LoCurto":MAILTO:rlocurto@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250913T080000
DTEND;TZID=America/New_York:20250913T080000
DTSTAMP:20260403T151523
CREATED:20250310T193818Z
LAST-MODIFIED:20250905T005807Z
UID:10000813-1757750400-1757750400@liferaftgroup.org
SUMMARY:GDOL Los Angeles
DESCRIPTION:GDOL Los Angeles will take place in-person on September 13th at UCLA Health. \nREGISTERClick for PDF Agenda\n\n \nWhat is a GDOL? \nA GDOL is a GIST Day of Learning. This is a free one day event to help patients and caregivers learn more about this rare cancer\, find support\, and enhance their knowledge base to help them navigate their cancer journey. \nThe Life Raft Group is committed to enhancing the survival and quality of life for people living with Gastrointestinal Stromal Tumor (GIST)\, and other rare diseases\, through patient-powered research\, education and empowerment\, and global advocacy efforts. Our vision is to empower a future fueled by data\, guiding our journey toward cures for rare diseases. \nIf you have any questions\, please contact Brian Morello at bmorello@liferaftgroup.org
URL:https://liferaftgroup.org/event/gdol-los-angeles/
CATEGORIES:Education,Events
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250916T150000
DTEND;TZID=America/New_York:20250916T150000
DTSTAMP:20260403T151523
CREATED:20250710T225236Z
LAST-MODIFIED:20260226T154752Z
UID:10000832-1758034800-1758034800@liferaftgroup.org
SUMMARY:SDH Support Group
DESCRIPTION:We are excited to announce the launch of a dedicated Support Group for SDH-GIST patients\, created to offer a welcoming space for connection\, understanding\, and shared experience. Whether you’re newly diagnosed or have been managing SDH for years\, this group is here to support you. Together\, we will share our stories and knowledge\, discuss challenges\, celebrate progress\, and offer encouragement to one another in a safe\, respectful environment. \nWhat to Expect: \n\nRegular virtual meetings\nPeer support and open discussion\nGuest speakers and educational sessions\nOpportunities to ask questions and share your story\n\nThis group will meet the 3rd Tuesdays of the month. Space is limited as we aim to keep the support groups small to allow for sharing & discussion.  If interested in the group\, please contact Becky Owens at bowens@liferaftgroup.org. A registration link will be sent to those who express interest. You are not alone\, and we hope this group becomes a meaningful part of your life.
URL:https://liferaftgroup.org/event/sdh-support-group/2025-09-16/
CATEGORIES:Events,Support Group
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2025/07/SDH-Support-Group-Event-Banner.png
ORGANIZER;CN="Becky Owens":MAILTO:bowens@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250916T180000
DTEND;TZID=America/New_York:20250916T193000
DTSTAMP:20260403T151523
CREATED:20230727T134306Z
LAST-MODIFIED:20260105T170322Z
UID:10000726-1758045600-1758051000@liferaftgroup.org
SUMMARY:Virtual GIST Patient Support Group
DESCRIPTION:The Patient Support Group meets via Zoom on the first and third Tuesday of each month from 6:00 PM – 7:30 PM ET (NYC Time). \nWe will start each group with a “Round Robin” in which anyone who feels like updating the group on how they are doing/feeling can do so. There is no pressure to speak if you prefer to simply listen. Once we complete our updates\, the group will have the opportunity for organic conversation to develop in relation to our emotional experiences around GIST\, and other challenges that we may be experiencing as a community. \nIn order to be able to moderate a flowing discussion\, the group will be capped at 15 people each month. The first 15 people into the Zoom waiting room will participate. Keep in mind that since the group is now open\, you don’t necessarily have to attend each month to participate. \nContact Brian Morello to join: bmorello@liferaftgroup.org
URL:https://liferaftgroup.org/event/virtual-gist-patient-support-group-third/2025-09-16/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/01/GISTer-Support-Group-2022-1.png
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20250922T180000
DTEND;TZID=America/Chicago:20250922T180000
DTSTAMP:20260403T151523
CREATED:20240823T175323Z
LAST-MODIFIED:20260226T163049Z
UID:10000860-1758564000-1758564000@liferaftgroup.org
SUMMARY:Virtual Texas Support Group
DESCRIPTION:Texas Support Group Zoom meeting on the 4th Monday of the month @ 6PM Central Time. Jackie Vanderpol will host this zoom meeting. Contact Rachel LoCurto at rlocurto@liferaftgroup.org with any questions or to get the Zoom link.
URL:https://liferaftgroup.org/event/virtual-texas-support-group/2025-09-22/
CATEGORIES:Events,Support Group
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2024/08/texas-support-group.jpg
ORGANIZER;CN="Rachel LoCurto":MAILTO:rlocurto@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250927T080000
DTEND;TZID=America/New_York:20250927T080000
DTSTAMP:20260403T151523
CREATED:20250310T203711Z
LAST-MODIFIED:20250925T145704Z
UID:10000814-1758960000-1758960000@liferaftgroup.org
SUMMARY:GDOL Boston
DESCRIPTION:GDOL Boston will take place in-person on September 27th at the Dana-Farber Cancer Institute. \nREGISTERClick for PDF Agenda\n \nWhat is a GDOL? \nA GDOL is a GIST Day of Learning. This is a free one day event to help patients and caregivers learn more about this rare cancer\, find support\, and enhance their knowledge base to help them navigate their cancer journey. \nThe Life Raft Group is committed to enhancing the survival and quality of life for people living with Gastrointestinal Stromal Tumor (GIST)\, and other rare diseases\, through patient-powered research\, education and empowerment\, and global advocacy efforts. Our vision is to empower a future fueled by data\, guiding our journey toward cures for rare diseases. \nIf you have any questions\, please contact Brian Morello at bmorello@liferaftgroup.org
URL:https://liferaftgroup.org/event/gdol-boston/
CATEGORIES:Education,Events
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251001T130000
DTEND;TZID=America/New_York:20251001T140000
DTSTAMP:20260403T151523
CREATED:20240528T163612Z
LAST-MODIFIED:20260226T163718Z
UID:10001096-1759323600-1759327200@liferaftgroup.org
SUMMARY:Virtual GIST Caregiver Support Group
DESCRIPTION:Monthly Virtual Support Group for GIST Caregivers\nHeld on the first Wednesday of the month \nLRG hosts a monthly virtual support group for the caregivers. We will share our stories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling during this journey as a caregiver. The group will be a safe space not only to feel supported by your fellow caregivers\, but also a place to share our own coping mechanisms\, concerns\, successes and trials. All information shared will be kept confidential. \nContact Rachel LoCurto at rlocurto@liferaftgroup.org for more information and to join this meeting. \nAbout the Group Leader:\nMarlene Nei\, GIST Caregiver\nAs an active member of The Life Raft Group\, Marlene advocates for the needs of the caregiver community because she feels they are an underrepresented group. It is her mission to advocate for the entire GIST community making sure they are equipped with the appropriate resources on their GIST journey.
URL:https://liferaftgroup.org/event/virtual-gist-caregiver-support-group-2023-2/2025-10-01/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2023/05/caregiver-sg-2023.jpg
ORGANIZER;CN="Rachel LoCurto":MAILTO:rlocurto@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251004T100000
DTEND;TZID=America/New_York:20251004T160000
DTSTAMP:20260403T151523
CREATED:20250812T163703Z
LAST-MODIFIED:20250812T163703Z
UID:10000919-1759572000-1759593600@liferaftgroup.org
SUMMARY:Montreal GIST Day of Learning/Annual General Meeting
DESCRIPTION:GIST Sarcoma LRG Canada is hosting a GIST Day of Learning/GDOL/Annual Meeting on October 4 in Montreal for patients and caregivers. Refreshments and lunch provided.\nMORE Info/register
URL:https://liferaftgroup.org/event/montreal-gist-day-of-learning-annual-general-meeting/
CATEGORIES:Education,Events
ORGANIZER;CN="GIST Sarcoma Life Raft Group Canada":MAILTO:yvonne.nunnaro@liferaftgroup.ca
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251013T180000
DTEND;TZID=America/New_York:20251013T180000
DTSTAMP:20260403T151523
CREATED:20240528T163645Z
LAST-MODIFIED:20260226T165312Z
UID:10001250-1760378400-1760378400@liferaftgroup.org
SUMMARY:Virtual Florida Support Group
DESCRIPTION:Florida Support Group\nZoom\, 2nd Monday of the Month – 6pm ET\nOur moderator is a fellow GISTER/LRG Member from Florida diagnosed with GIST in late 2016.\nIf you wish to attend\, please email Rachel LoCurto: rlocurto@liferaftgroup.org for the Zoom link for the meeting.
URL:https://liferaftgroup.org/event/virtual-florida-support-group-2-2-2/2025-10-13/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2022/09/florida-support-group.jpg
ORGANIZER;CN="Rachel LoCurto":MAILTO:rlocurto@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251021T150000
DTEND;TZID=America/New_York:20251021T150000
DTSTAMP:20260403T151523
CREATED:20250710T225236Z
LAST-MODIFIED:20260226T154752Z
UID:10000833-1761058800-1761058800@liferaftgroup.org
SUMMARY:SDH Support Group
DESCRIPTION:We are excited to announce the launch of a dedicated Support Group for SDH-GIST patients\, created to offer a welcoming space for connection\, understanding\, and shared experience. Whether you’re newly diagnosed or have been managing SDH for years\, this group is here to support you. Together\, we will share our stories and knowledge\, discuss challenges\, celebrate progress\, and offer encouragement to one another in a safe\, respectful environment. \nWhat to Expect: \n\nRegular virtual meetings\nPeer support and open discussion\nGuest speakers and educational sessions\nOpportunities to ask questions and share your story\n\nThis group will meet the 3rd Tuesdays of the month. Space is limited as we aim to keep the support groups small to allow for sharing & discussion.  If interested in the group\, please contact Becky Owens at bowens@liferaftgroup.org. A registration link will be sent to those who express interest. You are not alone\, and we hope this group becomes a meaningful part of your life.
URL:https://liferaftgroup.org/event/sdh-support-group/2025-10-21/
CATEGORIES:Events,Support Group
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2025/07/SDH-Support-Group-Event-Banner.png
ORGANIZER;CN="Becky Owens":MAILTO:bowens@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251021T180000
DTEND;TZID=America/New_York:20251021T193000
DTSTAMP:20260403T151523
CREATED:20230727T134306Z
LAST-MODIFIED:20260105T170322Z
UID:10000727-1761069600-1761075000@liferaftgroup.org
SUMMARY:Virtual GIST Patient Support Group
DESCRIPTION:The Patient Support Group meets via Zoom on the first and third Tuesday of each month from 6:00 PM – 7:30 PM ET (NYC Time). \nWe will start each group with a “Round Robin” in which anyone who feels like updating the group on how they are doing/feeling can do so. There is no pressure to speak if you prefer to simply listen. Once we complete our updates\, the group will have the opportunity for organic conversation to develop in relation to our emotional experiences around GIST\, and other challenges that we may be experiencing as a community. \nIn order to be able to moderate a flowing discussion\, the group will be capped at 15 people each month. The first 15 people into the Zoom waiting room will participate. Keep in mind that since the group is now open\, you don’t necessarily have to attend each month to participate. \nContact Brian Morello to join: bmorello@liferaftgroup.org
URL:https://liferaftgroup.org/event/virtual-gist-patient-support-group-third/2025-10-21/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/01/GISTer-Support-Group-2022-1.png
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20251027T180000
DTEND;TZID=America/Chicago:20251027T180000
DTSTAMP:20260403T151523
CREATED:20240823T175323Z
LAST-MODIFIED:20260226T163049Z
UID:10000861-1761588000-1761588000@liferaftgroup.org
SUMMARY:Virtual Texas Support Group
DESCRIPTION:Texas Support Group Zoom meeting on the 4th Monday of the month @ 6PM Central Time. Jackie Vanderpol will host this zoom meeting. Contact Rachel LoCurto at rlocurto@liferaftgroup.org with any questions or to get the Zoom link.
URL:https://liferaftgroup.org/event/virtual-texas-support-group/2025-10-27/
CATEGORIES:Events,Support Group
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2024/08/texas-support-group.jpg
ORGANIZER;CN="Rachel LoCurto":MAILTO:rlocurto@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251105T130000
DTEND;TZID=America/New_York:20251105T140000
DTSTAMP:20260403T151523
CREATED:20240528T163612Z
LAST-MODIFIED:20260226T163718Z
UID:10001097-1762347600-1762351200@liferaftgroup.org
SUMMARY:Virtual GIST Caregiver Support Group
DESCRIPTION:Monthly Virtual Support Group for GIST Caregivers\nHeld on the first Wednesday of the month \nLRG hosts a monthly virtual support group for the caregivers. We will share our stories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling during this journey as a caregiver. The group will be a safe space not only to feel supported by your fellow caregivers\, but also a place to share our own coping mechanisms\, concerns\, successes and trials. All information shared will be kept confidential. \nContact Rachel LoCurto at rlocurto@liferaftgroup.org for more information and to join this meeting. \nAbout the Group Leader:\nMarlene Nei\, GIST Caregiver\nAs an active member of The Life Raft Group\, Marlene advocates for the needs of the caregiver community because she feels they are an underrepresented group. It is her mission to advocate for the entire GIST community making sure they are equipped with the appropriate resources on their GIST journey.
URL:https://liferaftgroup.org/event/virtual-gist-caregiver-support-group-2023-2/2025-11-05/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2023/05/caregiver-sg-2023.jpg
ORGANIZER;CN="Rachel LoCurto":MAILTO:rlocurto@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251110T140000
DTEND;TZID=America/New_York:20251110T140000
DTSTAMP:20260403T151523
CREATED:20250721T171140Z
LAST-MODIFIED:20251015T155959Z
UID:10000846-1762783200-1762783200@liferaftgroup.org
SUMMARY:ctDNA and the INSIGHT Study
DESCRIPTION:REGISTERThe Life Raft Group is partnering with Deciphera Pharmaceuticals and Dr. Jonathan Trent of the Sylvester Comprehensive Cancer Center to present “ctDNA and the INSIGHT Study” on November 10th at 2PM ET. During this virtual presentation\, Dr. Trent will explain how ctDNA works as a non-invasive method to monitor mutations and disease progression\, and how it may help personalize treatment strategies for GIST patients. \nDenisse Evans\, Sr. Director of Data Management & Research for the LRG\, will present the results and analysis of the LRG’s recent patient survey: Understanding Mutational and ctDNA Testing for patients in the U.S. She will highlight how patients currently access and understand testing\, key barriers to uptake\, and what these findings reveal about the real-world experiences of the GIST community. Denisse will also discuss how these insights can help shape future education\, advocacy\, and research efforts to ensure patients have the tools they need to make informed decisions about their care. \nA question-and-answer session will follow the presentation. \nThese webinars are for informational purposes only and should not replace professional medical advice. Always consult your healthcare provider before making any treatment or lifestyle changes. If you have questions or comments\, please reach out to rpauley@liferaftgroup.org. \nAbout Our Presenters\n \nDr. Jonathan Trent\nSylvester Comprehensive Cancer Center \nJonathan Trent\, M.D.\, Ph.D. is a board‑certified oncologist\, professor of medicine\, and Associate Director for Clinical Research at the Sylvester Comprehensive Cancer Center\, University of Miami Health System. He serves as the Director of the Bone and Soft-Tissue Sarcoma Group and leads the Sarcoma Medical Oncology program\, with a focus on gastrointestinal stromal tumor (GIST)\, chondrosarcoma\, synovial sarcoma\, and other rare sarcomas. \nDenisse Evans\, MS\nSenior Director\, Data Mgmt. & Research \nMs. Evans has a wealth of experience in clinical evaluation projects including development of protocols\, case report forms\, informed consent\, surveys\, tissue repositories\, and study initiation She is proficient in data management\, preparing research for publication\, drug development\, clinical trial protocols\, onco-pathological/genetical dissemination\, and formulating research premises. As the Senior Director of Data Management & Research\, Denisse is the principal investigator for study protocol design and strategy of Patient Reported Outcomes (PRO). She has expertise in the analysis\, reporting\, and dissemination of PRO data and present scientific work. \nShe leads a dedicated staff in both patient support and in the identification of data trends that may lead to actionable information that will help patients coping with Gastrointestinal Stromal Tumor. In addition\, she takes the lead in collaborative research initiatives\, including maintaining relationships with potential partners\, contributing ongoing data\, and supporting hypothesis generation with the goal of increasing patient survival and advancing GIST research. \nDenisse holds a Bachelor of Science degree in Biology from Rowan University\, and a Master of Science Degree in Biomedical Science from Fairleigh Dickinson University. \nThank You to Our Sponsor!
URL:https://liferaftgroup.org/event/ctdna-and-the-insight-study/
CATEGORIES:Education,Webcast
ORGANIZER;CN="Rebecca Pauley":MAILTO:rpauley@liferaftgroup.org
END:VEVENT
END:VCALENDAR