BEGIN:VCALENDAR
VERSION:2.0
PRODID:-//The Life Raft Group - ECPv6.15.18//NONSGML v1.0//EN
CALSCALE:GREGORIAN
METHOD:PUBLISH
X-ORIGINAL-URL:https://liferaftgroup.org
X-WR-CALDESC:Events for The Life Raft Group
REFRESH-INTERVAL;VALUE=DURATION:PT1H
X-Robots-Tag:noindex
X-PUBLISHED-TTL:PT1H
BEGIN:VTIMEZONE
TZID:America/New_York
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20210314T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20211107T060000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20220313T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20221106T060000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20230312T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20231105T060000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20240310T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20241103T060000
END:STANDARD
END:VTIMEZONE
BEGIN:VTIMEZONE
TZID:America/Los_Angeles
BEGIN:DAYLIGHT
TZOFFSETFROM:-0800
TZOFFSETTO:-0700
TZNAME:PDT
DTSTART:20210314T100000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0700
TZOFFSETTO:-0800
TZNAME:PST
DTSTART:20211107T090000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0800
TZOFFSETTO:-0700
TZNAME:PDT
DTSTART:20220313T100000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0700
TZOFFSETTO:-0800
TZNAME:PST
DTSTART:20221106T090000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0800
TZOFFSETTO:-0700
TZNAME:PDT
DTSTART:20230312T100000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0700
TZOFFSETTO:-0800
TZNAME:PST
DTSTART:20231105T090000
END:STANDARD
END:VTIMEZONE
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230118T130000
DTEND;TZID=America/New_York:20230118T140000
DTSTAMP:20260403T172857
CREATED:20211230T190313Z
LAST-MODIFIED:20221230T174626Z
UID:10000462-1674046800-1674050400@liferaftgroup.org
SUMMARY:Virtual Caregiver Support Group
DESCRIPTION: A Bi-Weekly Virtual Support Group for GIST Caregivers\nHeld on the first & third Wednesdays of the month\nAs we continue to navigate this uncertain time together\, we want to offer you a little extra support. LRG has a twice monthly support group for the caregivers facilitated by Marlene Nei\, GIST Caregiver. To continue social distancing and connecting with caregivers across the United States\, we will use an electronic platform to gather as a group. We will talk about all the feelings you might be experiencing\, both in relation to GIST\, and COVID-19. \nWe will share our stories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling because of this unprecedented time. The group will be a safe space not only to feel supported by your fellow caregivers\, but also a place to share our own coping mechanisms to get us through this stressful time. All information shared will be kept confidential. Contact Diana Nieves at dnieves@liferaftgroup.org for more information. \n\nPlease email Diana Nieves at dnieves@liferaftgroup.org to join this meeting.\n\nAbout the Group Leader:\nMarlene Nei\, GIST Caregiver\nAs an active member of the Life Raft Group\, Marlene advocates for the needs of the caregiver community because she feels they are an underrepresented group. It is her mission to advocate for the entire GIST community making sure they are equipped with the appropriate resources on their GIST journey.
URL:https://liferaftgroup.org/event/virtual-caregiver-support-group-2022-2/2023-01-18/
CATEGORIES:Events
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2021/06/Caregiver-Support-Group.jpg
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230118T100000
DTEND;TZID=America/New_York:20230118T100000
DTSTAMP:20260403T172857
CREATED:20221227T160551Z
LAST-MODIFIED:20230103T165747Z
UID:10000251-1674036000-1674036000@liferaftgroup.org
SUMMARY:La Senda Verde - Virtual Tour
DESCRIPTION:La Senda Verde Tour – January 18 at 10am ET\n \nOur theme for 2023 is Thriving Together and during this time\, we’ll present stories and featured webinars on how our patients & caregivers are thriving living with GIST. We want to celebrate these personal passions and joys with the desire to bring our community their own moments of joy and relaxation through these experiences. \n \nLa Senda Verde co-founders Vicky Ossio & Marcelo Levy \nCaregiver Vicky Ossio shares her passion for rescuing and rehoming animals who were confiscated due to  illegal trafficking and the destruction of their habitats. With co-founder Marcelo Levy\, this sanctuary has sheltered hundreds of displaced animals and worked toward providing a diverse\, natural setting through progressive conservation called rewilding. \nVicky came to know The Life Raft Group through her daughter Carolina\, who was diagnosed with GIST in 2006 at age 27. She and Carolina have attended many Life Fest weekends and GDOLs and have been active volunteers with the LRG throughout the years. \nREGISTERVicky and Marcelo will share a view of Senda Verde to our community on January 18th at 10am. Everyone is welcome to join and enjoy this presentation with a live Q&A to follow. During our tour\, we will meet birds\, reptiles\, monkeys and other big mammals\, like bears and big cats. We will also make a quick visit to our rewinding area to see the native stingless bees\, and our butterfly farm. \nSenda Verde was established in 2003 in the subtropical region east side of the Bolivian Andes in South America. Concerned about the urgent need to do something meaningful in favor of the natural world\, Vicky and Marcelo decided to take hands-on action. They decided to devote their energy\, effort and work to that noble and inspiring task: saving and sheltering wild animals rescued from illegal trafficking and destruction of habitats. \nSenda Verde shelters approximately one thousand wild animals. This sanctuary exists to save and shelter animals rescued from illegal trafficking and destruction of habitats\, and to inspire people to value nature. They have taken a progressive approach to conservation within our property and surrounding areas\, letting natural processes enhance and reshape the land and restore degraded old agricultural landscapes.
URL:https://liferaftgroup.org/event/la-senda-verde-virtual-tour/
CATEGORIES:Events
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2022/12/la-senda-verde-event-image.jpg
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230104T130000
DTEND;TZID=America/New_York:20230104T140000
DTSTAMP:20260403T172857
CREATED:20211230T190819Z
LAST-MODIFIED:20230525T182345Z
UID:10000437-1672837200-1672840800@liferaftgroup.org
SUMMARY:Virtual Caregiver Support Group
DESCRIPTION: A Bi-Weekly Virtual Support Group for GIST Caregivers\nHeld on the first & third Wednesdays of the month\nAs we continue to navigate this uncertain time together\, we want to offer you a little extra support. LRG has a twice monthly support group for the caregivers facilitated by Marlene Nei\, GIST Caregiver. To continue social distancing and connecting with caregivers across the United States\, we will use an electronic platform to gather as a group. We will talk about all the feelings you might be experiencing\, both in relation to GIST\, and COVID-19. \nWe will share our stories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling because of this unprecedented time. The group will be a safe space not only to feel supported by your fellow caregivers\, but also a place to share our own coping mechanisms to get us through this stressful time. All information shared will be kept confidential. Contact Diana Nieves at dnieves@liferaftgroup.org for more information. \n\nPlease email Diana Nieves at dnieves@liferaftgroup.org to join this meeting.\n\nAbout the Group Leader:\nMarlene Nei\, GIST Caregiver\nAs an active member of the Life Raft Group\, Marlene advocates for the needs of the caregiver community because she feels they are an underrepresented group. It is her mission to advocate for the entire GIST community making sure they are equipped with the appropriate resources on their GIST journey.
URL:https://liferaftgroup.org/event/virtual-caregiver-support-group-2022-1/2023-01-04/
CATEGORIES:Events
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2021/06/Caregiver-Support-Group.jpg
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20221221T130000
DTEND;TZID=America/New_York:20221221T140000
DTSTAMP:20260403T172857
CREATED:20211230T190313Z
LAST-MODIFIED:20221230T174626Z
UID:10000461-1671627600-1671631200@liferaftgroup.org
SUMMARY:Virtual Caregiver Support Group
DESCRIPTION: A Bi-Weekly Virtual Support Group for GIST Caregivers\nHeld on the first & third Wednesdays of the month\nAs we continue to navigate this uncertain time together\, we want to offer you a little extra support. LRG has a twice monthly support group for the caregivers facilitated by Marlene Nei\, GIST Caregiver. To continue social distancing and connecting with caregivers across the United States\, we will use an electronic platform to gather as a group. We will talk about all the feelings you might be experiencing\, both in relation to GIST\, and COVID-19. \nWe will share our stories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling because of this unprecedented time. The group will be a safe space not only to feel supported by your fellow caregivers\, but also a place to share our own coping mechanisms to get us through this stressful time. All information shared will be kept confidential. Contact Diana Nieves at dnieves@liferaftgroup.org for more information. \n\nPlease email Diana Nieves at dnieves@liferaftgroup.org to join this meeting.\n\nAbout the Group Leader:\nMarlene Nei\, GIST Caregiver\nAs an active member of the Life Raft Group\, Marlene advocates for the needs of the caregiver community because she feels they are an underrepresented group. It is her mission to advocate for the entire GIST community making sure they are equipped with the appropriate resources on their GIST journey.
URL:https://liferaftgroup.org/event/virtual-caregiver-support-group-2022-2/2022-12-21/
CATEGORIES:Events
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2021/06/Caregiver-Support-Group.jpg
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20221210T100000
DTEND;TZID=America/Los_Angeles:20221210T100000
DTSTAMP:20260403T172857
CREATED:20221115T152039Z
LAST-MODIFIED:20221115T152039Z
UID:10000249-1670666400-1670666400@liferaftgroup.org
SUMMARY:So. Cal GISTer Virtual Support Group
DESCRIPTION:This Support Group will be held at 10am Pacific Time/1pm Eastern. \nJoin us on Saturday\, December 10\, at 10:00 am PST. Make yourself comfortable at your computer\, laptop\, tablet\, etc. and participate in what will be a very helpful and informative meeting. \nThe Life Raft Group is offering a virtual California Support Group with Southern California Leader Dina Wiley\, PhD. The group will meet to talk to each other\, discuss individual GIST issues\, and get answers to questions. This will enable you to not only get some relief from the worry of GIST\, but to also help others\, as well. We are\, after all\, in the same life raft\, and we are each needed to pull together. When we do\, wonderful things happen! \nAnd here’s the best part — we will have a very special guest – Dr. Michael Heinrich\, Oregon Health & Science University. \nREGISTERAbout the Group Leader:\nDina Wiley – Dina is a long-time Southern California LRG Support Group Leader. Read about Dina’s GIST journey here \nAbout Our Special Guest:\nMichael Heinrich\, MD\nOregon Health & Science University\nProfessor of Medicine\, School of Medicine\nCell and Developmental Biology Graduate Program\, School of Medicine\nCancer Biology Graduate Program\, School of Medicine\nProgram in Molecular and Cellular Biosciences\, School of Medicine \nDr. Heinrich’s research includes both preclinical identification of novel molecular targets and testing of new agents in the laboratory and the clinic. This includes both genomics research using high-throughput gentoyping to identify oncogenic mutations and testing of new compounds in cellular and biochemical assays. Dr. Heinrich’s laboratory is particularly expert in the analysis of inhibitors of oncogenic receptor tyrosine kinases such as KIT\, PDGFRA and FLT3.
URL:https://liferaftgroup.org/event/so-cal-gister-virtual-support-group-2/
CATEGORIES:Education,Events
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2022/11/CA-Support-Group-12-10-22.png
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20221208T170000
DTEND;TZID=America/New_York:20221208T170000
DTSTAMP:20260403T172857
CREATED:20221101T131851Z
LAST-MODIFIED:20221101T132210Z
UID:10000248-1670518800-1670518800@liferaftgroup.org
SUMMARY:Interactive Q&A with SDH Families
DESCRIPTION:December 8 @ 5PM ET \nThe Life Raft Group invites SDH-deficient GIST patients and caregivers to join us for a virtual conversation with Dr. Sosipatros Boikos of the Georgetown Lombardi Comprehensive Cancer Center. During this meeting\, Dr. Boikos will present background on SDH-deficient GIST and open the meeting to an interactive Q&A with families. Please come prepared with questions and time to interact with the group! \nREGISTERAbout our Presenter:\nDr. Sosipatros Boikos\nGeorgetown Lombardi Comprehensive Cancer Center \nSosipatros Boikos\, MD\, is a fellowship-trained\, board-certified medical oncologist with clinical privileges at MedStar Washington Hospital Center and MedStar Georgetown University Hospital. He is one of the most experienced sarcoma medical oncologists in the Washington\, D.C. metropolitan area\, with 11 years of experience treating sarcomas and rare tumors and more than 20 years of experience in the area of sarcoma cancer genetics and cell biology. Dr. Boikos currently serves MedStar Health as Co-Leader of the Sarcoma Working Group at Georgetown Lombardi Comprehensive Cancer Center.    \nThank you to our 2022 LRG webinar sponsors:
URL:https://liferaftgroup.org/event/interactive-qa-with-sdh-families/
CATEGORIES:Education,Events,Webcast
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20221207T130000
DTEND;TZID=America/New_York:20221207T140000
DTSTAMP:20260403T172857
CREATED:20211230T190819Z
LAST-MODIFIED:20230525T182345Z
UID:10000201-1670418000-1670421600@liferaftgroup.org
SUMMARY:Virtual Caregiver Support Group
DESCRIPTION: A Bi-Weekly Virtual Support Group for GIST Caregivers\nHeld on the first & third Wednesdays of the month\nAs we continue to navigate this uncertain time together\, we want to offer you a little extra support. LRG has a twice monthly support group for the caregivers facilitated by Marlene Nei\, GIST Caregiver. To continue social distancing and connecting with caregivers across the United States\, we will use an electronic platform to gather as a group. We will talk about all the feelings you might be experiencing\, both in relation to GIST\, and COVID-19. \nWe will share our stories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling because of this unprecedented time. The group will be a safe space not only to feel supported by your fellow caregivers\, but also a place to share our own coping mechanisms to get us through this stressful time. All information shared will be kept confidential. Contact Diana Nieves at dnieves@liferaftgroup.org for more information. \n\nPlease email Diana Nieves at dnieves@liferaftgroup.org to join this meeting.\n\nAbout the Group Leader:\nMarlene Nei\, GIST Caregiver\nAs an active member of the Life Raft Group\, Marlene advocates for the needs of the caregiver community because she feels they are an underrepresented group. It is her mission to advocate for the entire GIST community making sure they are equipped with the appropriate resources on their GIST journey.
URL:https://liferaftgroup.org/event/virtual-caregiver-support-group-2022-1/2022-12-07/
CATEGORIES:Events
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2021/06/Caregiver-Support-Group.jpg
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20221116T130000
DTEND;TZID=America/New_York:20221116T140000
DTSTAMP:20260403T172857
CREATED:20211230T190313Z
LAST-MODIFIED:20221230T174626Z
UID:10000189-1668603600-1668607200@liferaftgroup.org
SUMMARY:Virtual Caregiver Support Group
DESCRIPTION: A Bi-Weekly Virtual Support Group for GIST Caregivers\nHeld on the first & third Wednesdays of the month\nAs we continue to navigate this uncertain time together\, we want to offer you a little extra support. LRG has a twice monthly support group for the caregivers facilitated by Marlene Nei\, GIST Caregiver. To continue social distancing and connecting with caregivers across the United States\, we will use an electronic platform to gather as a group. We will talk about all the feelings you might be experiencing\, both in relation to GIST\, and COVID-19. \nWe will share our stories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling because of this unprecedented time. The group will be a safe space not only to feel supported by your fellow caregivers\, but also a place to share our own coping mechanisms to get us through this stressful time. All information shared will be kept confidential. Contact Diana Nieves at dnieves@liferaftgroup.org for more information. \n\nPlease email Diana Nieves at dnieves@liferaftgroup.org to join this meeting.\n\nAbout the Group Leader:\nMarlene Nei\, GIST Caregiver\nAs an active member of the Life Raft Group\, Marlene advocates for the needs of the caregiver community because she feels they are an underrepresented group. It is her mission to advocate for the entire GIST community making sure they are equipped with the appropriate resources on their GIST journey.
URL:https://liferaftgroup.org/event/virtual-caregiver-support-group-2022-2/2022-11-16/
CATEGORIES:Events
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2021/06/Caregiver-Support-Group.jpg
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20221114T180000
DTEND;TZID=America/New_York:20221114T180000
DTSTAMP:20260403T172857
CREATED:20220908T215655Z
LAST-MODIFIED:20220908T234543Z
UID:10000241-1668448800-1668448800@liferaftgroup.org
SUMMARY:Florida Support Group
DESCRIPTION:Zoom\, 2nd Monday of the Month – 6pm ET \nOur moderator is a fellow GISTER/LRG Member\, Jackie\, from Orlando\, Florida. She was diagnosed with GIST in late 2016. She is hopeful that this group will be helpful to GIST patients and their caregivers\, who are also welcome to attend. This group will meet online every 2nd Monday of the month at 6pm ET. \nIf you wish to attend\, please email Jackie at dillonjackie62@gmail.com for the Zoom link for the meeting.
URL:https://liferaftgroup.org/event/florida-support-group/2022-11-14/
CATEGORIES:Events,Support Group
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2022/09/florida-support-group.jpg
ORGANIZER;CN="Jackie VanderPol":MAILTO:dillonjackie62@gmail.com
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20221108T130000
DTEND;TZID=America/New_York:20221108T140000
DTSTAMP:20260403T172857
CREATED:20221025T145353Z
LAST-MODIFIED:20221025T145402Z
UID:10000247-1667912400-1667916000@liferaftgroup.org
SUMMARY:Surgical Considerations for GIST
DESCRIPTION:November 8\, 2022 @ 1PM ET\nThe Life Raft Group is partnering with Dr. Andrew Blakely\, surgical oncologist\, National Cancer Institute\, Center for Cancer Research\, NIH\, to discuss the basics of surgical removal of primary GISTs and considerations in multimetastatic disease. The presentation will include case examples for both non-wild-type and wild-type or SDH-deficient GIST. Q&A will follow the presentation. \nIf you have any questions about this webinar\, please email srothschild@liferaftgroup.org \nREGISTERAbout our Presenter:\nDr. Andrew Blakely\nNational Cancer Institute\, Center for Cancer Research\nNational Institutes of Health \nDr. Blakely completed a Bachelor of Science in Biomedical Engineering followed by medical school at Drexel University. He went on to general surgery residency at Brown University. During residency\, he spent two years of dedicated research time at the Center for Biomedical Engineering developing a device for tissue engineering applications. That work then led to a National Science Foundation grant and a patent. Dr. Blakely then completed his fellowship in Complex General Surgical Oncology at City of Hope National Medical Center. Dr. Blakely is currently a surgical oncologist specializing in peritoneal surface malignancies and soft tissue sarcomas. One of the primary focuses of his research includes improving surgical treatment and ex vivo tumor modeling of gastrointestinal stromal tumors.   \nThank you to our 2022 LRG webinar sponsors:
URL:https://liferaftgroup.org/event/surgical-considerations-for-gist/
CATEGORIES:Education,Events
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20221107T120000
DTEND;TZID=America/New_York:20221107T120000
DTSTAMP:20260403T172857
CREATED:20220816T195740Z
LAST-MODIFIED:20221026T190034Z
UID:10000237-1667822400-1667822400@liferaftgroup.org
SUMMARY:Navigating Your Cancer Care
DESCRIPTION:Monday\, November 7th at noon ET \nAre you or a loved one currently dealing with a cancer diagnosis? Feeling lost in all the new terminology and decisions you are having to make? At Columbia Cancer\, we know that being diagnosed with cancer can be overwhelming. We are here to help you navigate this challenging time. \nIn this webinar\, you’ll hear from oncologists and people who have been where you are now. You will learn more about the full spectrum of cancer care\, from diagnosis to survivorship\, and have all of your questions answered. \nCANCELLEDAbout the Presenters\nGary K. Schwartz\, MD\nDeputy Director\, Columbia Cancer \nDr. Schwartz is a renowned medical oncologist specializing in rare cancers. Working for decades to bring innovative cancer treatments  to patients\, Dr. Schwartz holds unique insights into the questions and decisions you should consider before entering treatment. \n\nNorman J. Scherzer\nExecutive Director Emeritus\, The Life Raft Group \nNorman Scherzer is Executive Director Emeritus and founder of The Life Raft Group\, and a passionate advocate. The Life Raft Group is a global non-profit which empowers cancer patients to take control of their care through education and advocacy.
URL:https://liferaftgroup.org/event/navigating-your-cancer-care/
CATEGORIES:Events
ORGANIZER;CN="Kristina Mesoznik/Columbia U":MAILTO:kf2604@cumc.columbia.edu
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20221104
DTEND;VALUE=DATE:20221106
DTSTAMP:20260403T172857
CREATED:20220217T154650Z
LAST-MODIFIED:20221026T123831Z
UID:10000205-1667520000-1667692799@liferaftgroup.org
SUMMARY:GDOL Miami
DESCRIPTION:GDOL Miami – November 4th & 5th – In person\nA GIST Day of Learning (GDOL) is a free one day event to help patients and caregivers learn more about this rare cancer\, find support\, and enhance their knowledge base to help them navigate their cancer journey. \nThe mission of the Life Raft Group is to enhance survival and quality of life for people living with GIST through patient-powered research\, education and empowerment\, and global advocacy efforts. The LRG vision is to champion patient-powered science and drastically increase long-term survivorship for all cancer patients. To accomplish this\, we rely on four key pillars;\n– Leverage the patient perspective to drive innovative solutions in cancer research\n– Educate and empower patients to take a larger role in their care\n– Accelerate research outcomes through collaborative efforts\n– Increase access to effective treatments worldwide \nIf you have any questions\, please contact Diana Nieves at dnieves@liferaftgroup.org \nREGISTERClick here for printable version of agenda \n \nThank you to our GDOL Sponsors:
URL:https://liferaftgroup.org/event/gdol-miami/
LOCATION:Gordon Center for Simulation & Innovation in Medical Education\, 1120 NW 14th Street\, Miami\, FL\, 33136\, United States
CATEGORIES:Education,Events
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20221102T130000
DTEND;TZID=America/New_York:20221102T140000
DTSTAMP:20260403T172857
CREATED:20211230T190819Z
LAST-MODIFIED:20230525T182345Z
UID:10000200-1667394000-1667397600@liferaftgroup.org
SUMMARY:Virtual Caregiver Support Group
DESCRIPTION: A Bi-Weekly Virtual Support Group for GIST Caregivers\nHeld on the first & third Wednesdays of the month\nAs we continue to navigate this uncertain time together\, we want to offer you a little extra support. LRG has a twice monthly support group for the caregivers facilitated by Marlene Nei\, GIST Caregiver. To continue social distancing and connecting with caregivers across the United States\, we will use an electronic platform to gather as a group. We will talk about all the feelings you might be experiencing\, both in relation to GIST\, and COVID-19. \nWe will share our stories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling because of this unprecedented time. The group will be a safe space not only to feel supported by your fellow caregivers\, but also a place to share our own coping mechanisms to get us through this stressful time. All information shared will be kept confidential. Contact Diana Nieves at dnieves@liferaftgroup.org for more information. \n\nPlease email Diana Nieves at dnieves@liferaftgroup.org to join this meeting.\n\nAbout the Group Leader:\nMarlene Nei\, GIST Caregiver\nAs an active member of the Life Raft Group\, Marlene advocates for the needs of the caregiver community because she feels they are an underrepresented group. It is her mission to advocate for the entire GIST community making sure they are equipped with the appropriate resources on their GIST journey.
URL:https://liferaftgroup.org/event/virtual-caregiver-support-group-2022-1/2022-11-02/
CATEGORIES:Events
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2021/06/Caregiver-Support-Group.jpg
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20221022T100000
DTEND;TZID=America/Los_Angeles:20221022T100000
DTSTAMP:20260403T172857
CREATED:20220930T174409Z
LAST-MODIFIED:20221003T194939Z
UID:10000246-1666432800-1666432800@liferaftgroup.org
SUMMARY:So. Cal GISTer Virtual Support Group
DESCRIPTION:This Support Group will be held at 10am Pacific Time/1pm Eastern. \nJoin us on Saturday\, October 22\, at 10:00 am PST. Make yourself comfortable at your computer\, laptop\, tablet\, etc. and participate in what will be a very helpful and informative meeting. \nThe Life Raft Group is offering a virtual California Support Group with Southern California Leader Dina Wiley\, PhD. The group will meet to talk to each other\, discuss individual GIST issues\, and get answers to questions. This will enable you to not only get some relief from the worry of GIST\, but to also help others\, as well. We are\, after all\, in the same life raft\, and we are each needed to pull together. When we do\, wonderful things happen! \nAnd here’s the best part — we will have a very special guest – Dr. Adam Burgoyne\, Moores Cancer Center\, UCSD Health. He is currently involved with Temozolomide (TMZ) In Advanced Succinate Dehydrogenase (SDH)-Mutant/Deficient Gastrointestinal Stromal Tumor (GIST) clinical trial. Dr. Burgoyne will be available to answer any questions you may have\, and explain some of the mysteries of GIST.  \nREGISTERAbout the Group Leader:\nDina Wiley – Dina is a long-time Southern California LRG Support Group Leader. Read about Dina’s GIST journey here \nAbout Our Special Guest:\nAdam Burgoyne\, MD\, PhD\nMoores Cancer Center\, UCSD Health\nDr. Burgoyne\, is a board-certified medical oncologist who specializes in diagnosing and treating primary liver cancers such as hepatocellular carcinoma (HCC). He also treats cancers of the esophagus\, gallbladder\, pancreas\, stomach\, small intestine\, colon and appendix\, as well as gastrointestinal stromal tumors (GIST). \nDr. Burgoyne uses many forms of therapy\, including traditional chemotherapy\, immunotherapy and targeted therapy\, with an emphasis on personalized medicine\, to offer the best possible patient outcomes. Dr. Burgoyne is the medical oncologist for UC San Diego Health’s multidisciplinary liver cancer clinic. The clinic offers patients highly specialized and coordinated care at one convenient location\, ensuring easy and timely access to the best cancer doctors and the most innovative treatment approaches. \nAs a physician-scientist\, Dr. Burgoyne also leads original research to improve survival rates among people with primary liver cancer and other cancers affecting the digestive system. In particular\, he is working on developing novel drugs that inhibit multiple targets within the cancer cell with a single agent. He also studies tumor genetics and the biology of gastrointestinal stromal tumors (GIST) to facilitate personalize cancer care. His work has appeared in Journal of Translational Medicine\, Molecular Cancer Therapeutics\, and Cancer\, among others. \nDr. Burgoyne completed a fellowship in hematology and oncology at UC San Diego School of Medicine\, where he was chief fellow. He also completed a residency in internal medicine at UC San Diego School of Medicine. Dr. Burgoyne earned his medical degree and doctorate from Case Western Reserve University School of Medicine in Cleveland\, Ohio. He is board-certified in internal medicine and medical oncology. \nDr. Burgoyne is a member of the American Association for Cancer Research\, the American Association for the Study of Liver Diseases\, the American Society of Hematology\, and the American Society of Clinical Oncology. He is a member of the Alpha Omega Alpha Honor Medical Society.
URL:https://liferaftgroup.org/event/so-cal-gister-virtual-support-group/
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2022/09/CA-Support-Group-10-22-22.png
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20221019T130000
DTEND;TZID=America/New_York:20221019T140000
DTSTAMP:20260403T172857
CREATED:20211230T190313Z
LAST-MODIFIED:20221230T174626Z
UID:10000188-1666184400-1666188000@liferaftgroup.org
SUMMARY:Virtual Caregiver Support Group
DESCRIPTION: A Bi-Weekly Virtual Support Group for GIST Caregivers\nHeld on the first & third Wednesdays of the month\nAs we continue to navigate this uncertain time together\, we want to offer you a little extra support. LRG has a twice monthly support group for the caregivers facilitated by Marlene Nei\, GIST Caregiver. To continue social distancing and connecting with caregivers across the United States\, we will use an electronic platform to gather as a group. We will talk about all the feelings you might be experiencing\, both in relation to GIST\, and COVID-19. \nWe will share our stories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling because of this unprecedented time. The group will be a safe space not only to feel supported by your fellow caregivers\, but also a place to share our own coping mechanisms to get us through this stressful time. All information shared will be kept confidential. Contact Diana Nieves at dnieves@liferaftgroup.org for more information. \n\nPlease email Diana Nieves at dnieves@liferaftgroup.org to join this meeting.\n\nAbout the Group Leader:\nMarlene Nei\, GIST Caregiver\nAs an active member of the Life Raft Group\, Marlene advocates for the needs of the caregiver community because she feels they are an underrepresented group. It is her mission to advocate for the entire GIST community making sure they are equipped with the appropriate resources on their GIST journey.
URL:https://liferaftgroup.org/event/virtual-caregiver-support-group-2022-2/2022-10-19/
CATEGORIES:Events
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2021/06/Caregiver-Support-Group.jpg
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20221012T120000
DTEND;TZID=America/New_York:20221012T120000
DTSTAMP:20260403T172857
CREATED:20220913T233534Z
LAST-MODIFIED:20220926T132350Z
UID:10000245-1665576000-1665576000@liferaftgroup.org
SUMMARY:The Emerging Role of Circulating Tumor DNA in GIST
DESCRIPTION:October 12\, Noon ET \nIn this webinar\, “The Emerging Role of Circulating Tumor DNA in Gastrointestinal Stromal Tumor”\, Dr. Bialick will discuss recent data looking at treatment outcomes based off KIT resistant mutations identified by circulating tumor DNA in patients with GIST. \nREGISTEROur Presenter\nSteven Bialick\, DO\nSylvester Comprehensive Cancer Center\, Miami \nSteve Bialick\, DO\, is a  hematology/oncology fellow at Jackson Memorial Hospital and the University of Miami/Sylvester Comprehensive Cancer Center in Miami\, FL.  He completed his internal medicine residency within the University of Pennsylvania Health System before working as a hematologic malignancy hospitalist at the Hospital of the University of Pennsylvania in Philadelphia\, PA.  He is now completing his oncology training with a focus on solid tumor malignancies\, specifically soft tissue and bone sarcomas.  His research interests include hereditary cancer predisposition syndromes\, circulating tumor DNA and its role in guiding targeted therapies\, and the role of DNA damage repair pathways in sarcomas. \nThank you to our Sponsors:
URL:https://liferaftgroup.org/event/the-emerging-role-of-circulating-tumor-dna-in-gist/
CATEGORIES:Education,Events
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20221010T180000
DTEND;TZID=America/New_York:20221010T180000
DTSTAMP:20260403T172857
CREATED:20220908T215655Z
LAST-MODIFIED:20220908T234543Z
UID:10000240-1665424800-1665424800@liferaftgroup.org
SUMMARY:Florida Support Group
DESCRIPTION:Zoom\, 2nd Monday of the Month – 6pm ET \nOur moderator is a fellow GISTER/LRG Member\, Jackie\, from Orlando\, Florida. She was diagnosed with GIST in late 2016. She is hopeful that this group will be helpful to GIST patients and their caregivers\, who are also welcome to attend. This group will meet online every 2nd Monday of the month at 6pm ET. \nIf you wish to attend\, please email Jackie at dillonjackie62@gmail.com for the Zoom link for the meeting.
URL:https://liferaftgroup.org/event/florida-support-group/2022-10-10/
CATEGORIES:Events,Support Group
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2022/09/florida-support-group.jpg
ORGANIZER;CN="Jackie VanderPol":MAILTO:dillonjackie62@gmail.com
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20221005T130000
DTEND;TZID=America/New_York:20221005T140000
DTSTAMP:20260403T172857
CREATED:20211230T190819Z
LAST-MODIFIED:20230525T182345Z
UID:10000199-1664974800-1664978400@liferaftgroup.org
SUMMARY:Virtual Caregiver Support Group
DESCRIPTION: A Bi-Weekly Virtual Support Group for GIST Caregivers\nHeld on the first & third Wednesdays of the month\nAs we continue to navigate this uncertain time together\, we want to offer you a little extra support. LRG has a twice monthly support group for the caregivers facilitated by Marlene Nei\, GIST Caregiver. To continue social distancing and connecting with caregivers across the United States\, we will use an electronic platform to gather as a group. We will talk about all the feelings you might be experiencing\, both in relation to GIST\, and COVID-19. \nWe will share our stories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling because of this unprecedented time. The group will be a safe space not only to feel supported by your fellow caregivers\, but also a place to share our own coping mechanisms to get us through this stressful time. All information shared will be kept confidential. Contact Diana Nieves at dnieves@liferaftgroup.org for more information. \n\nPlease email Diana Nieves at dnieves@liferaftgroup.org to join this meeting.\n\nAbout the Group Leader:\nMarlene Nei\, GIST Caregiver\nAs an active member of the Life Raft Group\, Marlene advocates for the needs of the caregiver community because she feels they are an underrepresented group. It is her mission to advocate for the entire GIST community making sure they are equipped with the appropriate resources on their GIST journey.
URL:https://liferaftgroup.org/event/virtual-caregiver-support-group-2022-1/2022-10-05/
CATEGORIES:Events
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2021/06/Caregiver-Support-Group.jpg
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20220924T083000
DTEND;TZID=America/Los_Angeles:20220924T083000
DTSTAMP:20260403T172857
CREATED:20220217T155303Z
LAST-MODIFIED:20220906T135627Z
UID:10000206-1664008200-1664008200@liferaftgroup.org
SUMMARY:GDOL San Diego
DESCRIPTION:GDOL San Diego is September 24th\, 8:30 am\nLife Raft Group GIST Do It Walk (Prepare for Miles for Merak) at 8:00 am (Registration at 7:30).\nBreakfast 8:30\, Event Start 9:00 \nA GIST Day of Learning (GDOL) is a free one day event to help patients and caregivers learn more about this rare cancer\, find support\, and enhance their knowledge base to help them navigate their cancer journey. \nThe Life Raft Group has a simple focus: to cure a form of cancer — GIST — and to help those living with it until then. To do this\, the Life Raft Group focuses on three key areas: research\, patient support & education\, and advocacy\, which lay the foundation of our mission to ensure the survival of GIST patients through a comprehensive approach connecting individual patients’ needs\, the worldwide community of GIST advocates and the global health and research environment. \nIf you have any questions\, please contact Diana Nieves at dnieves@liferaftgroup.org \nREGISTERClick for PDF of Agenda \n \nThank you to our GDOL Sponsors:
URL:https://liferaftgroup.org/event/gdol-san-diego/
LOCATION:Moores Cancer Center UC San Diego Health\, Goldberg Auditorium\, 3855 Health Sciences Drive\, San Diego\, CA\, 92037\, United States
CATEGORIES:Education,Events
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220921T130000
DTEND;TZID=America/New_York:20220921T140000
DTSTAMP:20260403T172857
CREATED:20211230T190313Z
LAST-MODIFIED:20221230T174626Z
UID:10000187-1663765200-1663768800@liferaftgroup.org
SUMMARY:Virtual Caregiver Support Group
DESCRIPTION: A Bi-Weekly Virtual Support Group for GIST Caregivers\nHeld on the first & third Wednesdays of the month\nAs we continue to navigate this uncertain time together\, we want to offer you a little extra support. LRG has a twice monthly support group for the caregivers facilitated by Marlene Nei\, GIST Caregiver. To continue social distancing and connecting with caregivers across the United States\, we will use an electronic platform to gather as a group. We will talk about all the feelings you might be experiencing\, both in relation to GIST\, and COVID-19. \nWe will share our stories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling because of this unprecedented time. The group will be a safe space not only to feel supported by your fellow caregivers\, but also a place to share our own coping mechanisms to get us through this stressful time. All information shared will be kept confidential. Contact Diana Nieves at dnieves@liferaftgroup.org for more information. \n\nPlease email Diana Nieves at dnieves@liferaftgroup.org to join this meeting.\n\nAbout the Group Leader:\nMarlene Nei\, GIST Caregiver\nAs an active member of the Life Raft Group\, Marlene advocates for the needs of the caregiver community because she feels they are an underrepresented group. It is her mission to advocate for the entire GIST community making sure they are equipped with the appropriate resources on their GIST journey.
URL:https://liferaftgroup.org/event/virtual-caregiver-support-group-2022-2/2022-09-21/
CATEGORIES:Events
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2021/06/Caregiver-Support-Group.jpg
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20220914
DTEND;VALUE=DATE:20220917
DTSTAMP:20260403T172857
CREATED:20220407T133211Z
LAST-MODIFIED:20220407T133211Z
UID:10000230-1663113600-1663372799@liferaftgroup.org
SUMMARY:The NIH Pediatric and Wildtype GIST Clinic
DESCRIPTION:The Pediatric and Wildtype GIST clinic at the National Institutes of Health (NIH) is a collaborative effort between clinicians\, research scientists and advocates\, who share the goal of helping young patients with Gastrointestinal Stromal Tumor. \nPending the status of the global COVID-19 pandemic\, the 2022 GIST Clinic is scheduled for September 14-16\, 2022. Now accepting applications. \nContact: CLINICAL RESEARCH NURSE: BJ Thomas\, RN – ncipediatricgist@mail.nih.gov \nREGISTER
URL:https://liferaftgroup.org/event/the-nih-pediatric-and-wildtype-gist-clinic/
LOCATION:NIH Pediatric and Wildtype GIST Clinic\, Building10-CRC\, Room 1-3750\, Bethesda\, 20892
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2020/02/nci-center-for-cancer-research.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220912T180000
DTEND;TZID=America/New_York:20220912T180000
DTSTAMP:20260403T172857
CREATED:20220908T215655Z
LAST-MODIFIED:20220908T234543Z
UID:10000239-1663005600-1663005600@liferaftgroup.org
SUMMARY:Florida Support Group
DESCRIPTION:Zoom\, 2nd Monday of the Month – 6pm ET \nOur moderator is a fellow GISTER/LRG Member\, Jackie\, from Orlando\, Florida. She was diagnosed with GIST in late 2016. She is hopeful that this group will be helpful to GIST patients and their caregivers\, who are also welcome to attend. This group will meet online every 2nd Monday of the month at 6pm ET. \nIf you wish to attend\, please email Jackie at dillonjackie62@gmail.com for the Zoom link for the meeting.
URL:https://liferaftgroup.org/event/florida-support-group/2022-09-12/
CATEGORIES:Events,Support Group
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2022/09/florida-support-group.jpg
ORGANIZER;CN="Jackie VanderPol":MAILTO:dillonjackie62@gmail.com
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220907T180000
DTEND;TZID=America/New_York:20220907T180000
DTSTAMP:20260403T172857
CREATED:20220818T132904Z
LAST-MODIFIED:20220818T132904Z
UID:10000238-1662573600-1662573600@liferaftgroup.org
SUMMARY:Let's Get to the GIST of It!
DESCRIPTION:The Life Raft Group is excited host another “Let’s Get the GIST of It” session. During this recurring online event\, patients and caregivers participate and share  overall experiences (good or bad) of their current treatment. The topic of this installment is “The new and upcoming treatments in GIST.” We will be discussing  two new clinical trials –  Cogent (CGT9486) and Theseus (THE-630)\, as well as recently approved drugs like AYVAKIT (avapritinib) and QINLOCK (ripretinib). \nThe goal of this initiative is to discuss key topics that will provide patients and caregivers with insight about their current treatment\, learn more information about new clinical trials or learn more about a new drug by listening to other people’s experiences. During this event\, we will discuss topics like side effects\, dosages\, scans\, and support. You will also have the opportunity to interact and connect with patients like you who are taking the same drug or experiencing the same side effects. Big or small\, all input is important and we are excited for you to be part of this initiative. \nIf you or a loved one is currently enrolled in a Cogent (CGT9486) and Theseus (THE-630) trial or currently taking ripretinib or avapritinib and would like to learn more about these drugs or share your experiences with other GISTers\, please join this event. For more information or questions\, please contact Sahibjeet Kaur at skaur@liferaftgroup.org \nREGISTER
URL:https://liferaftgroup.org/event/lets-get-to-the-gist-of-it/
CATEGORIES:Education,Events
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2022/08/lets-get-the-gist-of-it.jpg
ORGANIZER;CN="Sahibjeet Kaur":MAILTO:skaur@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220907T130000
DTEND;TZID=America/New_York:20220907T140000
DTSTAMP:20260403T172857
CREATED:20211230T190819Z
LAST-MODIFIED:20230525T182345Z
UID:10000198-1662555600-1662559200@liferaftgroup.org
SUMMARY:Virtual Caregiver Support Group
DESCRIPTION: A Bi-Weekly Virtual Support Group for GIST Caregivers\nHeld on the first & third Wednesdays of the month\nAs we continue to navigate this uncertain time together\, we want to offer you a little extra support. LRG has a twice monthly support group for the caregivers facilitated by Marlene Nei\, GIST Caregiver. To continue social distancing and connecting with caregivers across the United States\, we will use an electronic platform to gather as a group. We will talk about all the feelings you might be experiencing\, both in relation to GIST\, and COVID-19. \nWe will share our stories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling because of this unprecedented time. The group will be a safe space not only to feel supported by your fellow caregivers\, but also a place to share our own coping mechanisms to get us through this stressful time. All information shared will be kept confidential. Contact Diana Nieves at dnieves@liferaftgroup.org for more information. \n\nPlease email Diana Nieves at dnieves@liferaftgroup.org to join this meeting.\n\nAbout the Group Leader:\nMarlene Nei\, GIST Caregiver\nAs an active member of the Life Raft Group\, Marlene advocates for the needs of the caregiver community because she feels they are an underrepresented group. It is her mission to advocate for the entire GIST community making sure they are equipped with the appropriate resources on their GIST journey.
URL:https://liferaftgroup.org/event/virtual-caregiver-support-group-2022-1/2022-09-07/
CATEGORIES:Events
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2021/06/Caregiver-Support-Group.jpg
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220817T130000
DTEND;TZID=America/New_York:20220817T140000
DTSTAMP:20260403T172857
CREATED:20211230T190313Z
LAST-MODIFIED:20221230T174626Z
UID:10000186-1660741200-1660744800@liferaftgroup.org
SUMMARY:Virtual Caregiver Support Group
DESCRIPTION: A Bi-Weekly Virtual Support Group for GIST Caregivers\nHeld on the first & third Wednesdays of the month\nAs we continue to navigate this uncertain time together\, we want to offer you a little extra support. LRG has a twice monthly support group for the caregivers facilitated by Marlene Nei\, GIST Caregiver. To continue social distancing and connecting with caregivers across the United States\, we will use an electronic platform to gather as a group. We will talk about all the feelings you might be experiencing\, both in relation to GIST\, and COVID-19. \nWe will share our stories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling because of this unprecedented time. The group will be a safe space not only to feel supported by your fellow caregivers\, but also a place to share our own coping mechanisms to get us through this stressful time. All information shared will be kept confidential. Contact Diana Nieves at dnieves@liferaftgroup.org for more information. \n\nPlease email Diana Nieves at dnieves@liferaftgroup.org to join this meeting.\n\nAbout the Group Leader:\nMarlene Nei\, GIST Caregiver\nAs an active member of the Life Raft Group\, Marlene advocates for the needs of the caregiver community because she feels they are an underrepresented group. It is her mission to advocate for the entire GIST community making sure they are equipped with the appropriate resources on their GIST journey.
URL:https://liferaftgroup.org/event/virtual-caregiver-support-group-2022-2/2022-08-17/
CATEGORIES:Events
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2021/06/Caregiver-Support-Group.jpg
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220812T120000
DTEND;TZID=America/New_York:20220812T130000
DTSTAMP:20260403T172857
CREATED:20220504T183401Z
LAST-MODIFIED:20220504T183401Z
UID:10000234-1660305600-1660309200@liferaftgroup.org
SUMMARY:The Importance of Biomarker Testing
DESCRIPTION:August 12th\, 12-1pm ET\nThe Life Raft Group is partnering with Dr. Michael Wagner from the University of Washington to present “The Importance of Biomarker Testing” to GIST patients and caregivers on August 12th\, 2022 from 12pm-1pm EST. During this virtual presentation\, Dr. Wagner will describe what biomarker testing is and how GIST patients can advocate for this test to ensure the best treatment for their specific cancer. \nREGISTERAbout our Presenter:\nDr. Michael Wagner\nUniversity of Washington \nMichael Wagner\, MD is an Assistant Professor of Medicine at the University of Washington and an Assistant Professor in the Clinical Research Division at the Fred Hutchinson Cancer Research Center (FHCRC). He is the Director of Sarcoma Clinical Research. After graduating from Harvard University with a medical degree\, Dr. Wagner completed his residency at Mt. Sinai Hospital in New York and medical oncology fellowship at the University of Texas MD Anderson Cancer Center. Dr. Wagner has received numerous awards\, including the Conquer Cancer Foundation of ASCO Young Investigator Award and QuadW Foundation-AACR Fellowship for Clinical/Translational Research for his research on sarcoma. Dr. Wagner has been in his current position in Seattle since 2017. \nThank you to our 2022 LRG webinar sponsors:
URL:https://liferaftgroup.org/event/importance-of-biomarker-testing/
CATEGORIES:Events,Webcast
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2022/05/importance-biomarker-testing.jpg
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220803T130000
DTEND;TZID=America/New_York:20220803T140000
DTSTAMP:20260403T172857
CREATED:20211230T190819Z
LAST-MODIFIED:20230525T182345Z
UID:10000197-1659531600-1659535200@liferaftgroup.org
SUMMARY:Virtual Caregiver Support Group
DESCRIPTION: A Bi-Weekly Virtual Support Group for GIST Caregivers\nHeld on the first & third Wednesdays of the month\nAs we continue to navigate this uncertain time together\, we want to offer you a little extra support. LRG has a twice monthly support group for the caregivers facilitated by Marlene Nei\, GIST Caregiver. To continue social distancing and connecting with caregivers across the United States\, we will use an electronic platform to gather as a group. We will talk about all the feelings you might be experiencing\, both in relation to GIST\, and COVID-19. \nWe will share our stories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling because of this unprecedented time. The group will be a safe space not only to feel supported by your fellow caregivers\, but also a place to share our own coping mechanisms to get us through this stressful time. All information shared will be kept confidential. Contact Diana Nieves at dnieves@liferaftgroup.org for more information. \n\nPlease email Diana Nieves at dnieves@liferaftgroup.org to join this meeting.\n\nAbout the Group Leader:\nMarlene Nei\, GIST Caregiver\nAs an active member of the Life Raft Group\, Marlene advocates for the needs of the caregiver community because she feels they are an underrepresented group. It is her mission to advocate for the entire GIST community making sure they are equipped with the appropriate resources on their GIST journey.
URL:https://liferaftgroup.org/event/virtual-caregiver-support-group-2022-1/2022-08-03/
CATEGORIES:Events
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2021/06/Caregiver-Support-Group.jpg
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20220729
DTEND;VALUE=DATE:20220801
DTSTAMP:20260403T172857
CREATED:20190424T181544Z
LAST-MODIFIED:20220721T180545Z
UID:10000027-1659052800-1659311999@liferaftgroup.org
SUMMARY:Life Fest New Orleans
DESCRIPTION:Life Fest New Orleans\n July 29th-31st\, 2022\nIf you have any questions regarding Life Fest\, please email Jessica Nowak at jnowak@liferaftgroup.org \nREGISTERLife Fest is a unique event where hundreds of patients and caregivers come together for a weekend to interact with each other and the medical and scientific communities that serve them. Faced with a rare form of cancer\, GIST patients have a great need for information about this disease\, particularly as the science evolves and our understanding reveals a complex set of subtypes of GIST\, each responding differently to available treatments. Each year brings a wealth of new information\, and patients are eager to learn about the latest treatments. \nLife Fest workshops provide patients with emerging medical information\, and they come away with a deeper knowledge of the disease\, treatments\, and side-effect management. They find hope in knowing the scientific community is working toward a cure\, and hope is such a vital asset as they struggle day by day for survival. \nThe Life Raft Group emerged in recognition of the tremendous need for support in the GIST community. Life Fest 2022 will provide patients and caregivers with that support. Coming together with fellow patients from all walks of life from around the world is a meaningful and powerful experience. \nIn addition to our traditional educational workshops\, Life Fest 2022 will feature scientific presentations highlighting the newest research and the latest treatments. Additionally\, other disease advocacy groups will be invited to present the work of their organizations\, and share lessons learned. \nReasons to attend Life Fest \nProgram Highlights \nWhere to Eat in NOLA \nSights & Sounds of NOLA  \nClick to view online and print agenda \n \nThank you to our Life Fest Sponsors!
URL:https://liferaftgroup.org/event/lifefest2022/
CATEGORIES:Education,Events
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2019/04/life-fest-2022.png
ORGANIZER;CN="The Life Raft Group":MAILTO:liferaft@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220720T130000
DTEND;TZID=America/New_York:20220720T140000
DTSTAMP:20260403T172857
CREATED:20211230T190313Z
LAST-MODIFIED:20221230T174626Z
UID:10000185-1658322000-1658325600@liferaftgroup.org
SUMMARY:Virtual Caregiver Support Group
DESCRIPTION: A Bi-Weekly Virtual Support Group for GIST Caregivers\nHeld on the first & third Wednesdays of the month\nAs we continue to navigate this uncertain time together\, we want to offer you a little extra support. LRG has a twice monthly support group for the caregivers facilitated by Marlene Nei\, GIST Caregiver. To continue social distancing and connecting with caregivers across the United States\, we will use an electronic platform to gather as a group. We will talk about all the feelings you might be experiencing\, both in relation to GIST\, and COVID-19. \nWe will share our stories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling because of this unprecedented time. The group will be a safe space not only to feel supported by your fellow caregivers\, but also a place to share our own coping mechanisms to get us through this stressful time. All information shared will be kept confidential. Contact Diana Nieves at dnieves@liferaftgroup.org for more information. \n\nPlease email Diana Nieves at dnieves@liferaftgroup.org to join this meeting.\n\nAbout the Group Leader:\nMarlene Nei\, GIST Caregiver\nAs an active member of the Life Raft Group\, Marlene advocates for the needs of the caregiver community because she feels they are an underrepresented group. It is her mission to advocate for the entire GIST community making sure they are equipped with the appropriate resources on their GIST journey.
URL:https://liferaftgroup.org/event/virtual-caregiver-support-group-2022-2/2022-07-20/
CATEGORIES:Events
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2021/06/Caregiver-Support-Group.jpg
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220713T120000
DTEND;TZID=America/New_York:20220713T130000
DTSTAMP:20260403T172857
CREATED:20220629T193124Z
LAST-MODIFIED:20220629T233740Z
UID:10000236-1657713600-1657717200@liferaftgroup.org
SUMMARY:GIST Awareness Day Webinar: SDH Updates and Stories
DESCRIPTION:GIST Awareness Day (GAD)\, July 13th)\, is a time where GIST experts\, patients\, caregivers can come together to educate the public about this disease and advocate towards finding a cure. The Life Raft Group invites GIST patients and caregivers to celebrate GAD with us on July 13th at 12pm. During this virtual event\, Dr. John Glod\, Clinical Director of the Pediatric Oncology Branch in the Center for Cancer Research at National Cancer Institute\, will discuss updates from the NIH Pediatric & Wildtype GIST Clinic\, which is a part of My Pediatric and Adult Rare Tumor Network (MyPART). Immediately following Dr. Glod’s presentation\, pediatric GIST patient Lleyton Schelesky will share his GIST story. After the presentations\, there will be time for a Q&A. \nIf you have questions about SDH-deficient GIST and would like to submit them prior to the webinar\, please send them to Sara Rothschild at srothschild@liferaftgroup.org. \nREGISTERAbout the Presenters\nJohn Glod\, MD\, PhD\nAssociate Research Physician\, National Cancer Institute\, Pediatric Oncology Branch \nDr. Glod obtained his M.D. and Ph.D. from the University of Colorado in Denver and trained in pediatrics and pediatric oncology at Cincinnati Children’s Hospital\, Johns Hopkins Hospital\, and the Pediatric Oncology Branch of the NCI.  Following an fellowship in neuro-oncology at the NCI\, Dr. Glod served as faculty in the departments of pediatrics and pharmacology at Rutgers Cancer Institute of New Jersey. Dr. Glod joined the Pharmacology and Experimental Therapeutics Section in 2013.  His research interests focus on understanding the biology of rare pediatric solid tumors and exploring new therapies for patients with these diseases. \n\nLleyton Schelesky\nPatient Advocate \nLleyton was diagnosed with GIST at age 12. Now a young adult\, Lleyton will share his experience with SDH-deficient GIST.
URL:https://liferaftgroup.org/event/gist-awareness-day-2022/
CATEGORIES:Events
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
END:VCALENDAR