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DTSTART;TZID=America/New_York:20240702T180000
DTEND;TZID=America/New_York:20240702T193000
DTSTAMP:20260403T161722
CREATED:20230727T133611Z
LAST-MODIFIED:20240823T152527Z
UID:10000605-1719943200-1719948600@liferaftgroup.org
SUMMARY:Virtual GIST Patient Support Group
DESCRIPTION:The Patient Support Group meets via Zoom on the first and third Tuesday of each month from 6:00 PM – 7:30 PM ET (NYC Time). \nWe will start each group with a “Round Robin” in which anyone who feels like updating the group on how they are doing/feeling can do so. There is no pressure to speak if you prefer to simply listen. Once we complete our updates\, the group will have the opportunity for organic conversation to develop in relation to our emotional experiences around GIST\, and other challenges that we may be experiencing as a community. \nIn order to be able to moderate a flowing discussion\, the group will be capped at 15 people each month. The first 15 people into the Zoom waiting room will participate. Keep in mind that since the group is now open\, you don’t necessarily have to attend each month to participate. \nContact Brian Morello to join: bmorello@liferaftgroup.org
URL:https://liferaftgroup.org/event/virtual-gist-patient-support-group-2023-first/2024-07-02/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/01/GISTer-Support-Group-2022-1.png
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240703T130000
DTEND;TZID=America/New_York:20240703T140000
DTSTAMP:20260403T161722
CREATED:20230727T134933Z
LAST-MODIFIED:20240614T133545Z
UID:10000641-1720011600-1720015200@liferaftgroup.org
SUMMARY:Virtual GIST Caregiver Support Group
DESCRIPTION:Monthly Virtual Support Group for GIST Caregivers\nHeld on the first Wednesday of the month \nLRG hosts a monthly virtual support group for the caregivers. We will share our stories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling during this journey as a caregiver. The group will be a safe space not only to feel supported by your fellow caregivers\, but also a place to share our own coping mechanisms\, concerns\, successes and trials. All information shared will be kept confidential. \nContact Brian Morello to join: bmorello@liferaftgroup.org \nAbout the Group Leader:\nMarlene Nei\, GIST Caregiver\nAs an active member of The Life Raft Group\, Marlene advocates for the needs of the caregiver community because she feels they are an underrepresented group. It is her mission to advocate for the entire GIST community making sure they are equipped with the appropriate resources on their GIST journey.
URL:https://liferaftgroup.org/event/virtual-gist-caregiver-support-group-2023/2024-07-03/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2023/05/caregiver-sg-2023.jpg
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240708T180000
DTEND;TZID=America/New_York:20240708T180000
DTSTAMP:20260403T161722
CREATED:20240528T154845Z
LAST-MODIFIED:20240823T153041Z
UID:10000653-1720461600-1720461600@liferaftgroup.org
SUMMARY:Virtual Florida Support Group
DESCRIPTION:Florida Support Group\nZoom\, 2nd Monday of the Month – 6pm ET\nOur moderator is a fellow GISTER/LRG Member from Florida diagnosed with GIST in late 2016.\nIf you wish to attend\, please email Brian Morello: bmorello@liferaftgroup.org for the Zoom link for the meeting.
URL:https://liferaftgroup.org/event/virtual-florida-support-group-2-2/2024-07-08/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2022/09/florida-support-group.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240712T120000
DTEND;TZID=America/New_York:20240712T120000
DTSTAMP:20260403T161722
CREATED:20240617T175754Z
LAST-MODIFIED:20250311T151017Z
UID:10000784-1720785600-1720785600@liferaftgroup.org
SUMMARY:GIST Awareness Day: A Focus on GIST Research
DESCRIPTION:July 13th\, GIST Awareness Day\, is a time when GIST experts\, patients\, and caregivers come together to educate the public about this disease and advocate for finding a cure.  The Life Raft Group invites GIST patients and caregivers to celebrate GIST Awareness Day with us on July 12th at 12PM ET. During this virtual event\, Dr. Matthew Hemming and PhD candidate Favour Akabogu of UMass Cancer Center will discuss exploring mechanisms driving GIST\, treatment efficacy\, and clinical outcomes\, as well as the importance of patient involvement in rare disease research. An interactive Q&A segment will follow their presentations. \n\nPlease email srothschild@liferaftgroup.org to submit a question ahead of the presentation.  \n\n\n\nPlease note that this webinar is not a substitute for your physician’s guidance and care.\nREGISTERAbout Our Presenters\n \nDr. Matthew Hemming\nUMass Chan Medical School \nDr. Matthew Hemming  is an assistant professor of medicine at UMass Chan Medical School\, practicing sarcoma medical oncologist\, and principal investigator of the SarcomaLab. He received his BS from UC San Diego\, PhD from Harvard University\, and MD from Harvard Medical School. He completed internal medicine residency at Massachusetts General Hospital and Hematology/Oncology fellowship at Dana-Farber Cancer Institute. He has focused his clinical practice and laboratory work on sarcoma and GIST\, with the goal to improve diagnostic and treatment strategies through basic and translational research. \n \nFavour Akabogu\nPhD Candidate \nFavour Akabogu is a PhD candidate in the SarcomaLab through the Morningside Graduate School of Biomedical Sciences at UMass Chan Medical School where she studies gastrointestinal stromal tumors (GIST) with a focus on identifying novel treatment options. She got her B.A in Biology at Berea College in Kentucky and worked as a Research Associate at Vanderbilt University where she investigated the role of Discodain Domain Receptors (DDRs) in the progression of acute kidney injury to kidney fibrosis. Additionally\, she worked in collaboration with the CDC on understanding the household transmission respiratory disease particularly SARS-CoV2\, RSV and Influenza. She is passionate about healthcare and drug discovery through scientific innovation. She loves traveling\, dancing\, and spending time with family and friends in her free time. \nThank you to our Webinar Sponsors!
URL:https://liferaftgroup.org/event/gist-awareness-day-a-focus-on-gist-research/
CATEGORIES:Education,Events,Webcast
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240716T180000
DTEND;TZID=America/New_York:20240716T193000
DTSTAMP:20260403T161722
CREATED:20230727T134306Z
LAST-MODIFIED:20260105T170322Z
UID:10000712-1721152800-1721158200@liferaftgroup.org
SUMMARY:Virtual GIST Patient Support Group
DESCRIPTION:The Patient Support Group meets via Zoom on the first and third Tuesday of each month from 6:00 PM – 7:30 PM ET (NYC Time). \nWe will start each group with a “Round Robin” in which anyone who feels like updating the group on how they are doing/feeling can do so. There is no pressure to speak if you prefer to simply listen. Once we complete our updates\, the group will have the opportunity for organic conversation to develop in relation to our emotional experiences around GIST\, and other challenges that we may be experiencing as a community. \nIn order to be able to moderate a flowing discussion\, the group will be capped at 15 people each month. The first 15 people into the Zoom waiting room will participate. Keep in mind that since the group is now open\, you don’t necessarily have to attend each month to participate. \nContact Brian Morello to join: bmorello@liferaftgroup.org
URL:https://liferaftgroup.org/event/virtual-gist-patient-support-group-third/2024-07-16/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/01/GISTer-Support-Group-2022-1.png
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20240719
DTEND;VALUE=DATE:20240722
DTSTAMP:20260403T161722
CREATED:20230809T123922Z
LAST-MODIFIED:20240816T145009Z
UID:10000624-1721347200-1721606399@liferaftgroup.org
SUMMARY:Life Fest 2024 - San José
DESCRIPTION:REGISTERLife Fest 2024 is July 19th – 21st in San José\, CA!\nLife Fest is a unique event where patients and caregivers come together for a weekend to interact with each other and the medical and scientific communities that serve them. Faced with a rare form of cancer\, GIST patients have a great need for information about this disease\, particularly as the science evolves and our understanding reveals a complex set of subtypes of GIST\, each responding differently to available treatments. Each year brings a wealth of new information\, and patients are eager to learn about the latest treatments.  \nLife Fest workshops provide patients with emerging medical information\, and they come away with a deeper knowledge of the disease\, treatments and side effect management. They find hope in knowing the scientific community is working toward a cure\, and hope is such a vital asset as they struggle day by day for survival.  \nThe Life Raft Group emerged in recognition of the tremendous need for support in the GIST community. Life Fest 2024 will provide patients and caregivers with that support. Coming together with fellow patients from all walks of life from around the world is a meaningful and powerful experience. In addition to our traditional educational workshops\, Life Fest 2024 will feature scientific presentations highlighting the newest research and the latest treatments.  \nView presentations & photo galleries of previous Life Fest events \nClick image for a PDF of the Agenda: \n \nParking\, Hotels & Flights\nParking for the conference location (Signia Hilton Hotel San Jose): \nValet parking from Reef Valet at the hotel is available for $47 overnight. Hourly parking rates are $20.00 for the first hour with $2.00 for each additional hour (not to exceed $47.00. \nAlternate parking:\n50 W San Fernando St Garage\, (408) 283-5063\nhttps://www.parkme.com/lot/22188/50-west-san-jose-ca\n \n285 S Market St Parking Lot\nhttps://www.parkvel.com/california/san-jose/285-s-market-st-parking/ \nFor additional parking locations nearby and located in downtown: https://www.sanjose.org/trip-ideas/parking \nHotel Information\nThe LRG has secured two blocks of hotel rooms for guests stays at two price points. \nThese special group rates will be available until July 1\, 2024. \nSignia Hilton San Jose\n170 S Market Street\nSan Jose\, CA 95113\n408-998-3975 \nLife Fest Group* \n\nRooms are available at the Hilton San Jose at a different price point. This hotel is within walking distance from our Life Fest conference site at the Signia. \nThese special group rates will be available until June 25\, 2024. \nHilton San Jose\n300 Almaden Boulevard\nSan Jose\, CA 95110\n408.947.4453 \nLIFE FEST (hilton.com) \n\nAirline Discounts for Life Fest attendees:\nDelta Air Lines is pleased to offer special discounts for The Life Raft Group. \nPlease click here to book your flights. \nYou may also call Delta Meeting Network® at 1.800.328.1111* Monday–Friday\, 8:00 a.m. – 6:30 p.m. (EST) and refer to Meeting Event Code NM3GE*Please note there is not a service fee for reservations booked and ticketed via our reservation 800 number. \n\nUnited Airlines is pleased to partner with The Life Raft Group for special discounts.\nTo make flight reservations\, please click on discount code ZPCQ398065 \n– MileagePlus members earn valuable miles for their travel when using the Meetings discount code.\n– You may also call United Meetings Reservation Desk Monday – Friday at (800) 426-1122 for booking assistance.\n– Booking fees are waived for Meeting reservations.\n– International customers may contact their local United Reservation Desk. \n\nDonate to the Life Fest Scholarship Fund 2024\nAny questions about Life Fest 2024? \nPlease reach out to Brian Morello\, Director of Development\, at bmorello@liferaftgroup.org \nOur Sponsors:
URL:https://liferaftgroup.org/event/life-fest-2024-san-jose/
LOCATION:Signia by Hilton San Jose\, 170 S. Market St\, San Jose\, CA\, United States
CATEGORIES:Education,Events
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240721T071500
DTEND;TZID=America/New_York:20240721T071500
DTSTAMP:20260403T161722
CREATED:20240226T184316Z
LAST-MODIFIED:20240626T124659Z
UID:10000767-1721546100-1721546100@liferaftgroup.org
SUMMARY:GIST Do It Walk San José
DESCRIPTION:Join us for this fundraising walk at Life Fest 2024 in San José\, California\, in memory of GISTer Ted Wolf!\nRegistration + T-shirt is a $40 donation. Additional T-shirts are a $25 donation per shirt.\nREGISTER FOR WALK If you are not walking or want additional T-shirts\, you can get T-shirts for $25 donation + shipping (per shirt)\, order here:\nT-Shirt sizes are S\, M\, L\, XL\, 2XL\, and 3XL. \nShirts are navy blue 50/50 cotton blend. \n\nT-SHIRTS
URL:https://liferaftgroup.org/event/gist-do-it-walk-san-jose/
LOCATION:Signia by Hilton San Jose\, 170 S. Market St\, San Jose\, CA\, United States
CATEGORIES:Fundraising
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240806T180000
DTEND;TZID=America/New_York:20240806T193000
DTSTAMP:20260403T161722
CREATED:20230727T133611Z
LAST-MODIFIED:20240823T152527Z
UID:10000606-1722967200-1722972600@liferaftgroup.org
SUMMARY:Virtual GIST Patient Support Group
DESCRIPTION:The Patient Support Group meets via Zoom on the first and third Tuesday of each month from 6:00 PM – 7:30 PM ET (NYC Time). \nWe will start each group with a “Round Robin” in which anyone who feels like updating the group on how they are doing/feeling can do so. There is no pressure to speak if you prefer to simply listen. Once we complete our updates\, the group will have the opportunity for organic conversation to develop in relation to our emotional experiences around GIST\, and other challenges that we may be experiencing as a community. \nIn order to be able to moderate a flowing discussion\, the group will be capped at 15 people each month. The first 15 people into the Zoom waiting room will participate. Keep in mind that since the group is now open\, you don’t necessarily have to attend each month to participate. \nContact Brian Morello to join: bmorello@liferaftgroup.org
URL:https://liferaftgroup.org/event/virtual-gist-patient-support-group-2023-first/2024-08-06/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/01/GISTer-Support-Group-2022-1.png
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240807T130000
DTEND;TZID=America/New_York:20240807T140000
DTSTAMP:20260403T161722
CREATED:20230727T134933Z
LAST-MODIFIED:20240614T133545Z
UID:10000642-1723035600-1723039200@liferaftgroup.org
SUMMARY:Virtual GIST Caregiver Support Group
DESCRIPTION:Monthly Virtual Support Group for GIST Caregivers\nHeld on the first Wednesday of the month \nLRG hosts a monthly virtual support group for the caregivers. We will share our stories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling during this journey as a caregiver. The group will be a safe space not only to feel supported by your fellow caregivers\, but also a place to share our own coping mechanisms\, concerns\, successes and trials. All information shared will be kept confidential. \nContact Brian Morello to join: bmorello@liferaftgroup.org \nAbout the Group Leader:\nMarlene Nei\, GIST Caregiver\nAs an active member of The Life Raft Group\, Marlene advocates for the needs of the caregiver community because she feels they are an underrepresented group. It is her mission to advocate for the entire GIST community making sure they are equipped with the appropriate resources on their GIST journey.
URL:https://liferaftgroup.org/event/virtual-gist-caregiver-support-group-2023/2024-08-07/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2023/05/caregiver-sg-2023.jpg
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240812T180000
DTEND;TZID=America/New_York:20240812T180000
DTSTAMP:20260403T161722
CREATED:20240528T154845Z
LAST-MODIFIED:20240823T153041Z
UID:10000654-1723485600-1723485600@liferaftgroup.org
SUMMARY:Virtual Florida Support Group
DESCRIPTION:Florida Support Group\nZoom\, 2nd Monday of the Month – 6pm ET\nOur moderator is a fellow GISTER/LRG Member from Florida diagnosed with GIST in late 2016.\nIf you wish to attend\, please email Brian Morello: bmorello@liferaftgroup.org for the Zoom link for the meeting.
URL:https://liferaftgroup.org/event/virtual-florida-support-group-2-2/2024-08-12/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2022/09/florida-support-group.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240819T120000
DTEND;TZID=America/New_York:20240819T120000
DTSTAMP:20260403T161722
CREATED:20240724T133110Z
LAST-MODIFIED:20240724T134516Z
UID:10000786-1724068800-1724068800@liferaftgroup.org
SUMMARY:Managing Side Effects of GIST Therapies
DESCRIPTION:The Life Raft Group has partnered with Mia Weiss\, MD of Washington University School of Medicine in St. Louis to present “Managing Side Effects of GIST Therapies” to GIST patients and caretakers on August 19\, 2024 at 12pm. During this virtual presentation\, Dr. Weiss will provide an overview of GIST treatments and their side effects as well as home management for each type of symptom and when to call the clinic. \n\n\nPlease email srothschild@liferaftgroup.org to submit a question ahead of the presentation.  \n\n\n\nPlease note that this webinar is not a substitute for your physician’s guidance and care.\nREGISTERAbout Our Presenter\n \nDr. Mia Weiss\nWashington University School of Medicine in St. Louis \nMia C. Weiss\, M.D. is a medical oncologist with clinical interest in the care of patients with localized and metastatic soft tissue and bone sarcomas. She works collaboratively with pathologists\, radiation oncologists\, and orthopedic surgeons to assess\, diagnose\, and treat these complex malignancies. She is a member of the American College of Physicians\, the American Society of Clinical Oncology\, and the Connective Tissue Oncology Society. Her research interests include clinical trial development to assess efficacy of novel therapies in the treatment of metastatic sarcoma to ultimately improve patient survival and quality of life. She has particular interest related to genomics in sarcoma and finding ways to elucidate which patients are more likely to respond to targeted therapy and why some do not. Dr. Weiss has published several articles during her fellowship which most recently included a review on the use of Tazemetostat in epithelioid sarcoma\, a novel epigenetic regulator and the first of its kind to be approved in a solid tumor. Additionally\, Dr. Weiss has a strong interest in establishing a continuing medical educational program for community based primary care physicians and surgeons related to sarcoma and the importance of referring patients with soft tissue masses to an oncologic surgeon and ideally\, a sarcoma center\, to ensure optimal outcomes for patients. Dr. Weiss looks forward to continuing a career devoted to patient care\, research\, and education. \nThank you to our Webinar Sponsors!
URL:https://liferaftgroup.org/event/managing-side-effects-of-gist-therapies/
CATEGORIES:Education,Events,Webcast
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240820T180000
DTEND;TZID=America/New_York:20240820T193000
DTSTAMP:20260403T161722
CREATED:20230727T134306Z
LAST-MODIFIED:20260105T170322Z
UID:10000713-1724176800-1724182200@liferaftgroup.org
SUMMARY:Virtual GIST Patient Support Group
DESCRIPTION:The Patient Support Group meets via Zoom on the first and third Tuesday of each month from 6:00 PM – 7:30 PM ET (NYC Time). \nWe will start each group with a “Round Robin” in which anyone who feels like updating the group on how they are doing/feeling can do so. There is no pressure to speak if you prefer to simply listen. Once we complete our updates\, the group will have the opportunity for organic conversation to develop in relation to our emotional experiences around GIST\, and other challenges that we may be experiencing as a community. \nIn order to be able to moderate a flowing discussion\, the group will be capped at 15 people each month. The first 15 people into the Zoom waiting room will participate. Keep in mind that since the group is now open\, you don’t necessarily have to attend each month to participate. \nContact Brian Morello to join: bmorello@liferaftgroup.org
URL:https://liferaftgroup.org/event/virtual-gist-patient-support-group-third/2024-08-20/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/01/GISTer-Support-Group-2022-1.png
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20240826T180000
DTEND;TZID=America/Chicago:20240826T180000
DTSTAMP:20260403T161722
CREATED:20240823T175323Z
LAST-MODIFIED:20260226T163049Z
UID:10000847-1724695200-1724695200@liferaftgroup.org
SUMMARY:Virtual Texas Support Group
DESCRIPTION:Texas Support Group Zoom meeting on the 4th Monday of the month @ 6PM Central Time. Jackie Vanderpol will host this zoom meeting. Contact Rachel LoCurto at rlocurto@liferaftgroup.org with any questions or to get the Zoom link.
URL:https://liferaftgroup.org/event/virtual-texas-support-group/2024-08-26/
CATEGORIES:Events,Support Group
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2024/08/texas-support-group.jpg
ORGANIZER;CN="Rachel LoCurto":MAILTO:rlocurto@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240903T180000
DTEND;TZID=America/New_York:20240903T193000
DTSTAMP:20260403T161722
CREATED:20230727T133611Z
LAST-MODIFIED:20240823T152527Z
UID:10000607-1725386400-1725391800@liferaftgroup.org
SUMMARY:Virtual GIST Patient Support Group
DESCRIPTION:The Patient Support Group meets via Zoom on the first and third Tuesday of each month from 6:00 PM – 7:30 PM ET (NYC Time). \nWe will start each group with a “Round Robin” in which anyone who feels like updating the group on how they are doing/feeling can do so. There is no pressure to speak if you prefer to simply listen. Once we complete our updates\, the group will have the opportunity for organic conversation to develop in relation to our emotional experiences around GIST\, and other challenges that we may be experiencing as a community. \nIn order to be able to moderate a flowing discussion\, the group will be capped at 15 people each month. The first 15 people into the Zoom waiting room will participate. Keep in mind that since the group is now open\, you don’t necessarily have to attend each month to participate. \nContact Brian Morello to join: bmorello@liferaftgroup.org
URL:https://liferaftgroup.org/event/virtual-gist-patient-support-group-2023-first/2024-09-03/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/01/GISTer-Support-Group-2022-1.png
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240904T130000
DTEND;TZID=America/New_York:20240904T140000
DTSTAMP:20260403T161722
CREATED:20230727T134933Z
LAST-MODIFIED:20240614T133545Z
UID:10000643-1725454800-1725458400@liferaftgroup.org
SUMMARY:Virtual GIST Caregiver Support Group
DESCRIPTION:Monthly Virtual Support Group for GIST Caregivers\nHeld on the first Wednesday of the month \nLRG hosts a monthly virtual support group for the caregivers. We will share our stories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling during this journey as a caregiver. The group will be a safe space not only to feel supported by your fellow caregivers\, but also a place to share our own coping mechanisms\, concerns\, successes and trials. All information shared will be kept confidential. \nContact Brian Morello to join: bmorello@liferaftgroup.org \nAbout the Group Leader:\nMarlene Nei\, GIST Caregiver\nAs an active member of The Life Raft Group\, Marlene advocates for the needs of the caregiver community because she feels they are an underrepresented group. It is her mission to advocate for the entire GIST community making sure they are equipped with the appropriate resources on their GIST journey.
URL:https://liferaftgroup.org/event/virtual-gist-caregiver-support-group-2023/2024-09-04/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2023/05/caregiver-sg-2023.jpg
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240909T120000
DTEND;TZID=America/New_York:20240909T120000
DTSTAMP:20260403T161722
CREATED:20240812T202329Z
LAST-MODIFIED:20240812T202409Z
UID:10000788-1725883200-1725883200@liferaftgroup.org
SUMMARY:Locoregional Therapies for Treatment of GIST in the Liver
DESCRIPTION:Interventional radiology is a medical specialty that performs various minimally-invasive procedures to treat cancer and other diseases. The Life Raft Group invites world-renowned interventional radiologist Edward Kim\, MD FSIR of Mount Sinai to present “Locoregional Therapies for Treatment of GIST in the Liver” on September 9th at 12pm ET. During this virtual presentation\, Dr. Kim will describe various locoregional therapies and their appropriate uses\, as well as the role of locoregional therapies and systemic therapy in treating GIST when it metastasizes in the liver. A Q&A portion will follow the presentation. \n\nPlease email srothschild@liferaftgroup.org to submit a question ahead of the presentation.  \n\n\n\nPlease note that this webinar is not a substitute for your physician’s guidance and care.\nREGISTERAbout Our Presenter\n \nDr. Edward Kim\nMount Sinai Medical Center \nEdward Kim\, MD FSIR is Professor of Radiology and Surgery and Director of Interventional Oncology at Mount Sinai Health Systems\, under the Division of Interventional Radiology. He attended Rutgers Medical School and finished his Interventional Radiology training at Mount Sinai.  Dr. Kim is a world-renowned Interventional Radiologist\, who focuses on minimally invasive treatments\, known as locoregional therapies\, for the treatment of liver cancer.  He has authored numerous influential peer reviewed publications and runs multiple prospective clinical trials.  He has been invited to be course director and faculty at numerous meetings throughout the world.  He believes that best patient care is achieved through a multidisciplinary collaboration and helps lead the multidisciplinary tumor board at Mount Sinai\, as well as helped institute multidisciplinary office hours with liver transplant\, hepatology and surgery.  He is a thought leader in liver cancer\, especially with regards to radioembolization\, thermal ablation and chemoembolization\, as well as combination therapies with immune checkpoint inhibitors. \nThank you to our Webinar Sponsors!
URL:https://liferaftgroup.org/event/locoregional-therapies-for-treatment-of-gist-in-the-liver/
CATEGORIES:Education,Events,Webcast
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240909T180000
DTEND;TZID=America/New_York:20240909T180000
DTSTAMP:20260403T161722
CREATED:20240528T154845Z
LAST-MODIFIED:20240823T153041Z
UID:10000655-1725904800-1725904800@liferaftgroup.org
SUMMARY:Virtual Florida Support Group
DESCRIPTION:Florida Support Group\nZoom\, 2nd Monday of the Month – 6pm ET\nOur moderator is a fellow GISTER/LRG Member from Florida diagnosed with GIST in late 2016.\nIf you wish to attend\, please email Brian Morello: bmorello@liferaftgroup.org for the Zoom link for the meeting.
URL:https://liferaftgroup.org/event/virtual-florida-support-group-2-2/2024-09-09/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2022/09/florida-support-group.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240914T080000
DTEND;TZID=America/New_York:20240914T080000
DTSTAMP:20260403T161723
CREATED:20240715T141924Z
LAST-MODIFIED:20240820T182732Z
UID:10000785-1726300800-1726300800@liferaftgroup.org
SUMMARY:GDOL Ohio 2024
DESCRIPTION:GDOL Ohio is being held in-person at The Ohio State University Wexner Medical Center\, Biomedical Research Tower (BRT)\, Room 115\, Columbus\, OH 43210. \nREGISTRATIONWhat is a GDOL? \nA GDOL is a GIST Day of Learning. This is a free one day event to help patients and caregivers learn more about this rare cancer\, find support\, and enhance their knowledge base to help them navigate their cancer journey. \nThe Life Raft Group is committed to enhancing the survival and quality of life for people living with Gastrointestinal Stromal Tumor (GIST)\, and other rare diseases\, through patient-powered research\, education and empowerment\, and global advocacy efforts. Our vision is to empower a future fueled by data\, guiding our journey toward cures for rare diseases. \nIf you have any questions\, please contact Brian Morello at bmorello@liferaftgroup.org \nClick image for a PDF of the Agenda: \n\nThank you to our Sponsors!
URL:https://liferaftgroup.org/event/gdol-ohio-2024/
LOCATION:The Ohio State University Wexner Medical Center\, Biomedical Research Tower (BRT)\, 460 W 12th Ave\, Columbus\, OH\, 43210\, United States
CATEGORIES:Education,Events
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240917T180000
DTEND;TZID=America/New_York:20240917T193000
DTSTAMP:20260403T161723
CREATED:20230727T134306Z
LAST-MODIFIED:20260105T170322Z
UID:10000714-1726596000-1726601400@liferaftgroup.org
SUMMARY:Virtual GIST Patient Support Group
DESCRIPTION:The Patient Support Group meets via Zoom on the first and third Tuesday of each month from 6:00 PM – 7:30 PM ET (NYC Time). \nWe will start each group with a “Round Robin” in which anyone who feels like updating the group on how they are doing/feeling can do so. There is no pressure to speak if you prefer to simply listen. Once we complete our updates\, the group will have the opportunity for organic conversation to develop in relation to our emotional experiences around GIST\, and other challenges that we may be experiencing as a community. \nIn order to be able to moderate a flowing discussion\, the group will be capped at 15 people each month. The first 15 people into the Zoom waiting room will participate. Keep in mind that since the group is now open\, you don’t necessarily have to attend each month to participate. \nContact Brian Morello to join: bmorello@liferaftgroup.org
URL:https://liferaftgroup.org/event/virtual-gist-patient-support-group-third/2024-09-17/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/01/GISTer-Support-Group-2022-1.png
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20240923T180000
DTEND;TZID=America/Chicago:20240923T180000
DTSTAMP:20260403T161723
CREATED:20240823T175323Z
LAST-MODIFIED:20260226T163049Z
UID:10000848-1727114400-1727114400@liferaftgroup.org
SUMMARY:Virtual Texas Support Group
DESCRIPTION:Texas Support Group Zoom meeting on the 4th Monday of the month @ 6PM Central Time. Jackie Vanderpol will host this zoom meeting. Contact Rachel LoCurto at rlocurto@liferaftgroup.org with any questions or to get the Zoom link.
URL:https://liferaftgroup.org/event/virtual-texas-support-group/2024-09-23/
CATEGORIES:Events,Support Group
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2024/08/texas-support-group.jpg
ORGANIZER;CN="Rachel LoCurto":MAILTO:rlocurto@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240928T090000
DTEND;TZID=America/New_York:20240928T170000
DTSTAMP:20260403T161723
CREATED:20240829T183610Z
LAST-MODIFIED:20240829T183610Z
UID:10000791-1727514000-1727542800@liferaftgroup.org
SUMMARY:GDOL Calgary
DESCRIPTION:REGISTRATION\nPlease join us for a full day GIST Day of Learning event in Calgary\, Alberta on Saturday September 28\, 2024.\nLocation:  Hotel Alt East Village – 635 Confluence Way SE\, Calgary\, Canada\nRefreshments and Lunch will be provided along with a post conference networking event!\nPatients\, caregivers and family are all welcome at this FREE event. \nSpeakers:\nDr. Xiolan Feng Medical Oncologist\, Tom Baker Cancer Centre. Dr. Feng will be speaking about mutational analysis.\nDr. Andrew Blakely will joining us from the NIH National Cancer Institue to talk about his Surgical Trial.\nDr. Herbert Loong will be presenting on current clinical trials including the Cogent Biosciences PEAK Trial.\nGIST 101 to be presented by David Josephy.\nLiving with the emotional impact of GIST group session with Kristin Austman.\nPatient Panel led by Hazel McLeod.
URL:https://liferaftgroup.org/event/gdol-calgary/
CATEGORIES:Education,Events
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2024/08/GDOL-Calgary-Featured-Image.jpg
ORGANIZER;CN="GIST Sarcoma Life Raft Group Canada":MAILTO:yvonne.nunnaro@liferaftgroup.ca
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241001T180000
DTEND;TZID=America/New_York:20241001T193000
DTSTAMP:20260403T161723
CREATED:20230727T133611Z
LAST-MODIFIED:20240823T152527Z
UID:10000608-1727805600-1727811000@liferaftgroup.org
SUMMARY:Virtual GIST Patient Support Group
DESCRIPTION:The Patient Support Group meets via Zoom on the first and third Tuesday of each month from 6:00 PM – 7:30 PM ET (NYC Time). \nWe will start each group with a “Round Robin” in which anyone who feels like updating the group on how they are doing/feeling can do so. There is no pressure to speak if you prefer to simply listen. Once we complete our updates\, the group will have the opportunity for organic conversation to develop in relation to our emotional experiences around GIST\, and other challenges that we may be experiencing as a community. \nIn order to be able to moderate a flowing discussion\, the group will be capped at 15 people each month. The first 15 people into the Zoom waiting room will participate. Keep in mind that since the group is now open\, you don’t necessarily have to attend each month to participate. \nContact Brian Morello to join: bmorello@liferaftgroup.org
URL:https://liferaftgroup.org/event/virtual-gist-patient-support-group-2023-first/2024-10-01/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/01/GISTer-Support-Group-2022-1.png
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241002T130000
DTEND;TZID=America/New_York:20241002T140000
DTSTAMP:20260403T161723
CREATED:20230727T134933Z
LAST-MODIFIED:20240614T133545Z
UID:10000644-1727874000-1727877600@liferaftgroup.org
SUMMARY:Virtual GIST Caregiver Support Group
DESCRIPTION:Monthly Virtual Support Group for GIST Caregivers\nHeld on the first Wednesday of the month \nLRG hosts a monthly virtual support group for the caregivers. We will share our stories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling during this journey as a caregiver. The group will be a safe space not only to feel supported by your fellow caregivers\, but also a place to share our own coping mechanisms\, concerns\, successes and trials. All information shared will be kept confidential. \nContact Brian Morello to join: bmorello@liferaftgroup.org \nAbout the Group Leader:\nMarlene Nei\, GIST Caregiver\nAs an active member of The Life Raft Group\, Marlene advocates for the needs of the caregiver community because she feels they are an underrepresented group. It is her mission to advocate for the entire GIST community making sure they are equipped with the appropriate resources on their GIST journey.
URL:https://liferaftgroup.org/event/virtual-gist-caregiver-support-group-2023/2024-10-02/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2023/05/caregiver-sg-2023.jpg
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241007T130000
DTEND;TZID=America/New_York:20241007T130000
DTSTAMP:20260403T161723
CREATED:20240828T192519Z
LAST-MODIFIED:20240904T152915Z
UID:10000790-1728306000-1728306000@liferaftgroup.org
SUMMARY:IDRX-42: Trial Design & Emerging Data from StrateGIST 1
DESCRIPTION:The Life Raft Group invites you to “IDRX-42: Trial Design and Emerging Data from the StrateGIST 1 Study”\, on October 7th\, 2024 at 1PM ET. During this educational webinar\, Suzanne George\, MD of the Dana-Farber Cancer Institute will review emerging data from the first-in-human StrateGIST 1 trial of IDRX-42 in patients with advanced GIST. Dr. George will also discuss the design and rationale for the ongoing Phase 1b portion of the trial\, including first- and second-line cohorts. A Q&A session will follow the presentation. \n\nPlease email srothschild@liferaftgroup.org to submit a question ahead of the presentation.  \n\n\n\nPlease note that this webinar is not a substitute for your physician’s guidance and care.\nREGISTERAbout Our Presenter\n \nDr. Suzanne George\nSarcoma Center at Dana-Farber Cancer Institute \nSuzanne George\, MD is the Division Chief of the Sarcoma Center at Dana-Farber Cancer Institute who leads a team focused on research and clinical care of patients with sarcomas and GIST. She has an extensive research experience in clinical trials and drug development and cares for patient from across New England\, the US and internationally. \nThank you to our Webinar Sponsor!
URL:https://liferaftgroup.org/event/idrx-42-trial-design-and-emerging-data-from-the-strategist1-study/
CATEGORIES:Education,Events,Webcast
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241014T180000
DTEND;TZID=America/New_York:20241014T180000
DTSTAMP:20260403T161723
CREATED:20240528T154845Z
LAST-MODIFIED:20240823T153041Z
UID:10000656-1728928800-1728928800@liferaftgroup.org
SUMMARY:Virtual Florida Support Group
DESCRIPTION:Florida Support Group\nZoom\, 2nd Monday of the Month – 6pm ET\nOur moderator is a fellow GISTER/LRG Member from Florida diagnosed with GIST in late 2016.\nIf you wish to attend\, please email Brian Morello: bmorello@liferaftgroup.org for the Zoom link for the meeting.
URL:https://liferaftgroup.org/event/virtual-florida-support-group-2-2/2024-10-14/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2022/09/florida-support-group.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241015T180000
DTEND;TZID=America/New_York:20241015T193000
DTSTAMP:20260403T161723
CREATED:20230727T134306Z
LAST-MODIFIED:20260105T170322Z
UID:10000715-1729015200-1729020600@liferaftgroup.org
SUMMARY:Virtual GIST Patient Support Group
DESCRIPTION:The Patient Support Group meets via Zoom on the first and third Tuesday of each month from 6:00 PM – 7:30 PM ET (NYC Time). \nWe will start each group with a “Round Robin” in which anyone who feels like updating the group on how they are doing/feeling can do so. There is no pressure to speak if you prefer to simply listen. Once we complete our updates\, the group will have the opportunity for organic conversation to develop in relation to our emotional experiences around GIST\, and other challenges that we may be experiencing as a community. \nIn order to be able to moderate a flowing discussion\, the group will be capped at 15 people each month. The first 15 people into the Zoom waiting room will participate. Keep in mind that since the group is now open\, you don’t necessarily have to attend each month to participate. \nContact Brian Morello to join: bmorello@liferaftgroup.org
URL:https://liferaftgroup.org/event/virtual-gist-patient-support-group-third/2024-10-15/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/01/GISTer-Support-Group-2022-1.png
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20241028T180000
DTEND;TZID=America/Chicago:20241028T180000
DTSTAMP:20260403T161723
CREATED:20240823T175323Z
LAST-MODIFIED:20260226T163049Z
UID:10000849-1730138400-1730138400@liferaftgroup.org
SUMMARY:Virtual Texas Support Group
DESCRIPTION:Texas Support Group Zoom meeting on the 4th Monday of the month @ 6PM Central Time. Jackie Vanderpol will host this zoom meeting. Contact Rachel LoCurto at rlocurto@liferaftgroup.org with any questions or to get the Zoom link.
URL:https://liferaftgroup.org/event/virtual-texas-support-group/2024-10-28/
CATEGORIES:Events,Support Group
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2024/08/texas-support-group.jpg
ORGANIZER;CN="Rachel LoCurto":MAILTO:rlocurto@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20241030
DTEND;VALUE=DATE:20241031
DTSTAMP:20260403T161723
CREATED:20240917T172132Z
LAST-MODIFIED:20241028T131216Z
UID:10000792-1730246400-1730332799@liferaftgroup.org
SUMMARY:GDOL Miami Virtual
DESCRIPTION:GDOL Miami is being held virtually with the GIST experts at Sylvester Comprehensive Cancer Center. \nREGISTERWhat is a GDOL? \nA GDOL is a GIST Day of Learning. This is a free one day event to help patients and caregivers learn more about this rare cancer\, find support\, and enhance their knowledge base to help them navigate their cancer journey. \nThe Life Raft Group is committed to enhancing the survival and quality of life for people living with Gastrointestinal Stromal Tumor (GIST)\, and other rare diseases\, through patient-powered research\, education and empowerment\, and global advocacy efforts. Our vision is to empower a future fueled by data\, guiding our journey toward cures for rare diseases. \nIf you have any questions\, please contact Brian Morello at bmorello@liferaftgroup.org \nClick Image for a PDF of the Agenda\n \nThank you to our Sponsors!
URL:https://liferaftgroup.org/event/gdol-miami-2/
CATEGORIES:Education,Events
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241105T180000
DTEND;TZID=America/New_York:20241105T193000
DTSTAMP:20260403T161723
CREATED:20230727T133611Z
LAST-MODIFIED:20240823T152527Z
UID:10000609-1730829600-1730835000@liferaftgroup.org
SUMMARY:Virtual GIST Patient Support Group
DESCRIPTION:The Patient Support Group meets via Zoom on the first and third Tuesday of each month from 6:00 PM – 7:30 PM ET (NYC Time). \nWe will start each group with a “Round Robin” in which anyone who feels like updating the group on how they are doing/feeling can do so. There is no pressure to speak if you prefer to simply listen. Once we complete our updates\, the group will have the opportunity for organic conversation to develop in relation to our emotional experiences around GIST\, and other challenges that we may be experiencing as a community. \nIn order to be able to moderate a flowing discussion\, the group will be capped at 15 people each month. The first 15 people into the Zoom waiting room will participate. Keep in mind that since the group is now open\, you don’t necessarily have to attend each month to participate. \nContact Brian Morello to join: bmorello@liferaftgroup.org
URL:https://liferaftgroup.org/event/virtual-gist-patient-support-group-2023-first/2024-11-05/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/01/GISTer-Support-Group-2022-1.png
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241106T080000
DTEND;TZID=America/New_York:20241106T170000
DTSTAMP:20260403T161723
CREATED:20240528T163612Z
LAST-MODIFIED:20260226T163718Z
UID:10001087-1730880000-1730912400@liferaftgroup.org
SUMMARY:Virtual GIST Caregiver Support Group
DESCRIPTION:Monthly Virtual Support Group for GIST Caregivers\nHeld on the first Wednesday of the month \nLRG hosts a monthly virtual support group for the caregivers. We will share our stories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling during this journey as a caregiver. The group will be a safe space not only to feel supported by your fellow caregivers\, but also a place to share our own coping mechanisms\, concerns\, successes and trials. All information shared will be kept confidential. \nContact Rachel LoCurto at rlocurto@liferaftgroup.org for more information and to join this meeting. \nAbout the Group Leader:\nMarlene Nei\, GIST Caregiver\nAs an active member of The Life Raft Group\, Marlene advocates for the needs of the caregiver community because she feels they are an underrepresented group. It is her mission to advocate for the entire GIST community making sure they are equipped with the appropriate resources on their GIST journey.
URL:https://liferaftgroup.org/event/virtual-gist-caregiver-support-group-2023-2/2024-11-06/1/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2023/05/caregiver-sg-2023.jpg
ORGANIZER;CN="Rachel LoCurto":MAILTO:rlocurto@liferaftgroup.org
END:VEVENT
END:VCALENDAR