BEGIN:VCALENDAR VERSION:2.0 PRODID:-//The Life Raft Group - ECPv6.15.18//NONSGML v1.0//EN CALSCALE:GREGORIAN METHOD:PUBLISH X-WR-CALNAME:The Life Raft Group X-ORIGINAL-URL:https://liferaftgroup.org X-WR-CALDESC:Events for The Life Raft Group REFRESH-INTERVAL;VALUE=DURATION:PT1H X-Robots-Tag:noindex X-PUBLISHED-TTL:PT1H BEGIN:VTIMEZONE TZID:America/Chicago BEGIN:DAYLIGHT TZOFFSETFROM:-0600 TZOFFSETTO:-0500 TZNAME:CDT DTSTART:20230312T080000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0500 TZOFFSETTO:-0600 TZNAME:CST DTSTART:20231105T070000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:-0600 TZOFFSETTO:-0500 TZNAME:CDT DTSTART:20240310T080000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0500 TZOFFSETTO:-0600 TZNAME:CST DTSTART:20241103T070000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:-0600 TZOFFSETTO:-0500 TZNAME:CDT DTSTART:20250309T080000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0500 TZOFFSETTO:-0600 TZNAME:CST DTSTART:20251102T070000 END:STANDARD END:VTIMEZONE BEGIN:VTIMEZONE TZID:America/New_York BEGIN:DAYLIGHT TZOFFSETFROM:-0500 TZOFFSETTO:-0400 TZNAME:EDT DTSTART:20230312T070000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0400 TZOFFSETTO:-0500 TZNAME:EST DTSTART:20231105T060000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:-0500 TZOFFSETTO:-0400 TZNAME:EDT DTSTART:20240310T070000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0400 TZOFFSETTO:-0500 TZNAME:EST DTSTART:20241103T060000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:-0500 TZOFFSETTO:-0400 TZNAME:EDT DTSTART:20250309T070000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0400 TZOFFSETTO:-0500 TZNAME:EST DTSTART:20251102T060000 END:STANDARD END:VTIMEZONE BEGIN:VEVENT DTSTART;TZID=America/Chicago:20241223T180000 DTEND;TZID=America/Chicago:20241223T180000 DTSTAMP:20260403T173949 CREATED:20240823T175323Z LAST-MODIFIED:20260226T163049Z UID:10000851-1734976800-1734976800@liferaftgroup.org SUMMARY:Virtual Texas Support Group DESCRIPTION:Texas Support Group Zoom meeting on the 4th Monday of the month @ 6PM Central Time. Jackie Vanderpol will host this zoom meeting. Contact Rachel LoCurto at rlocurto@liferaftgroup.org with any questions or to get the Zoom link. URL:https://liferaftgroup.org/event/virtual-texas-support-group/2024-12-23/ CATEGORIES:Events,Support Group ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2024/08/texas-support-group.jpg ORGANIZER;CN="Rachel LoCurto":MAILTO:rlocurto@liferaftgroup.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20241217T180000 DTEND;TZID=America/New_York:20241217T193000 DTSTAMP:20260403T173949 CREATED:20230727T134306Z LAST-MODIFIED:20260105T170322Z UID:10000717-1734458400-1734463800@liferaftgroup.org SUMMARY:Virtual GIST Patient Support Group DESCRIPTION:The Patient Support Group meets via Zoom on the first and third Tuesday of each month from 6:00 PM – 7:30 PM ET (NYC Time). \nWe will start each group with a “Round Robin” in which anyone who feels like updating the group on how they are doing/feeling can do so. There is no pressure to speak if you prefer to simply listen. Once we complete our updates\, the group will have the opportunity for organic conversation to develop in relation to our emotional experiences around GIST\, and other challenges that we may be experiencing as a community. \nIn order to be able to moderate a flowing discussion\, the group will be capped at 15 people each month. The first 15 people into the Zoom waiting room will participate. Keep in mind that since the group is now open\, you don’t necessarily have to attend each month to participate. \nContact Brian Morello to join: bmorello@liferaftgroup.org URL:https://liferaftgroup.org/event/virtual-gist-patient-support-group-third/2024-12-17/ CATEGORIES:Support Group ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/01/GISTer-Support-Group-2022-1.png ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20241209T180000 DTEND;TZID=America/New_York:20241209T180000 DTSTAMP:20260403T173949 CREATED:20240528T163645Z LAST-MODIFIED:20260226T165312Z UID:10001241-1733767200-1733767200@liferaftgroup.org SUMMARY:Virtual Florida Support Group DESCRIPTION:Florida Support Group\nZoom\, 2nd Monday of the Month – 6pm ET\nOur moderator is a fellow GISTER/LRG Member from Florida diagnosed with GIST in late 2016.\nIf you wish to attend\, please email Rachel LoCurto: rlocurto@liferaftgroup.org for the Zoom link for the meeting. URL:https://liferaftgroup.org/event/virtual-florida-support-group-2-2-2/2024-12-09/ CATEGORIES:Support Group ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2022/09/florida-support-group.jpg ORGANIZER;CN="Rachel LoCurto":MAILTO:rlocurto@liferaftgroup.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20241204T130000 DTEND;TZID=America/New_York:20241204T140000 DTSTAMP:20260403T173949 CREATED:20240528T163612Z LAST-MODIFIED:20260226T163718Z UID:10000646-1733317200-1733320800@liferaftgroup.org SUMMARY:Virtual GIST Caregiver Support Group DESCRIPTION:Monthly Virtual Support Group for GIST Caregivers\nHeld on the first Wednesday of the month \nLRG hosts a monthly virtual support group for the caregivers. We will share our stories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling during this journey as a caregiver. The group will be a safe space not only to feel supported by your fellow caregivers\, but also a place to share our own coping mechanisms\, concerns\, successes and trials. All information shared will be kept confidential. \nContact Rachel LoCurto at rlocurto@liferaftgroup.org for more information and to join this meeting. \nAbout the Group Leader:\nMarlene Nei\, GIST Caregiver\nAs an active member of The Life Raft Group\, Marlene advocates for the needs of the caregiver community because she feels they are an underrepresented group. It is her mission to advocate for the entire GIST community making sure they are equipped with the appropriate resources on their GIST journey. URL:https://liferaftgroup.org/event/virtual-gist-caregiver-support-group-2023-2/2024-12-04/ CATEGORIES:Support Group ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2023/05/caregiver-sg-2023.jpg ORGANIZER;CN="Rachel LoCurto":MAILTO:rlocurto@liferaftgroup.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20241203T180000 DTEND;TZID=America/New_York:20241203T193000 DTSTAMP:20260403T173949 CREATED:20230727T133611Z LAST-MODIFIED:20240823T152527Z UID:10000610-1733248800-1733254200@liferaftgroup.org SUMMARY:Virtual GIST Patient Support Group DESCRIPTION:The Patient Support Group meets via Zoom on the first and third Tuesday of each month from 6:00 PM – 7:30 PM ET (NYC Time). \nWe will start each group with a “Round Robin” in which anyone who feels like updating the group on how they are doing/feeling can do so. There is no pressure to speak if you prefer to simply listen. Once we complete our updates\, the group will have the opportunity for organic conversation to develop in relation to our emotional experiences around GIST\, and other challenges that we may be experiencing as a community. \nIn order to be able to moderate a flowing discussion\, the group will be capped at 15 people each month. The first 15 people into the Zoom waiting room will participate. Keep in mind that since the group is now open\, you don’t necessarily have to attend each month to participate. \nContact Brian Morello to join: bmorello@liferaftgroup.org URL:https://liferaftgroup.org/event/virtual-gist-patient-support-group-2023-first/2024-12-03/ CATEGORIES:Support Group ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/01/GISTer-Support-Group-2022-1.png ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/Chicago:20241125T180000 DTEND;TZID=America/Chicago:20241125T180000 DTSTAMP:20260403T173949 CREATED:20240823T175323Z LAST-MODIFIED:20260226T163049Z UID:10000850-1732557600-1732557600@liferaftgroup.org SUMMARY:Virtual Texas Support Group DESCRIPTION:Texas Support Group Zoom meeting on the 4th Monday of the month @ 6PM Central Time. Jackie Vanderpol will host this zoom meeting. Contact Rachel LoCurto at rlocurto@liferaftgroup.org with any questions or to get the Zoom link. URL:https://liferaftgroup.org/event/virtual-texas-support-group/2024-11-25/ CATEGORIES:Events,Support Group ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2024/08/texas-support-group.jpg ORGANIZER;CN="Rachel LoCurto":MAILTO:rlocurto@liferaftgroup.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20241125T120000 DTEND;TZID=America/New_York:20241125T120000 DTSTAMP:20260403T173949 CREATED:20241009T202805Z LAST-MODIFIED:20241120T145456Z UID:10000795-1732536000-1732536000@liferaftgroup.org SUMMARY:Updates from CTOS DESCRIPTION:The Life Raft Group is partnering with Dr. Thierry Alcindor of Dana-Farber Cancer Institute to present “GIST Updates from CTOS 2024” to GIST patients and caregivers on November 25th at 12pm ET. During this virtual presentation\, Dr. Alcindor will discuss scientific updates relevant to GIST patients that were exhibited at the Connective Tissue Oncology Society (CTOS) conference. A Q&A segment followed Dr. Alcindor’s presentation. \n\nPlease email srothschild@liferaftgroup.org to submit a question ahead of the presentation.  \n\n\n\nPlease note that this webinar is not a substitute for your physician’s guidance and care.\nREGISTERAbout Our Presenter\n \nDr. Thierry Alcindor\nDana-Farber Cancer Institute \nDr. Alcindor earned his medical degree at the State University of Haiti and a Master of Science degree at the University of Oxford. He trained in Internal Medicine and Hematology/Oncology at Yale-New Haven Medical Center and Tufts-New England Medical Center\, respectively. Previously at McGill University\, he is now a Senior Physician and medical oncologist at the Dana-Farber Cancer Institute\, affiliated with Harvard Medical School. His interests cover treatment and investigation of sarcomas\, including gastro-intestinal stromal tumors (GIST). \nThank you to our Webinar Sponsors! URL:https://liferaftgroup.org/event/updates-from-ctos/ CATEGORIES:Education,Events,Webcast ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20241119T180000 DTEND;TZID=America/New_York:20241119T193000 DTSTAMP:20260403T173949 CREATED:20230727T134306Z LAST-MODIFIED:20260105T170322Z UID:10000716-1732039200-1732044600@liferaftgroup.org SUMMARY:Virtual GIST Patient Support Group DESCRIPTION:The Patient Support Group meets via Zoom on the first and third Tuesday of each month from 6:00 PM – 7:30 PM ET (NYC Time). \nWe will start each group with a “Round Robin” in which anyone who feels like updating the group on how they are doing/feeling can do so. There is no pressure to speak if you prefer to simply listen. Once we complete our updates\, the group will have the opportunity for organic conversation to develop in relation to our emotional experiences around GIST\, and other challenges that we may be experiencing as a community. \nIn order to be able to moderate a flowing discussion\, the group will be capped at 15 people each month. The first 15 people into the Zoom waiting room will participate. Keep in mind that since the group is now open\, you don’t necessarily have to attend each month to participate. \nContact Brian Morello to join: bmorello@liferaftgroup.org URL:https://liferaftgroup.org/event/virtual-gist-patient-support-group-third/2024-11-19/ CATEGORIES:Support Group ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/01/GISTer-Support-Group-2022-1.png ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20241111T180000 DTEND;TZID=America/New_York:20241111T180000 DTSTAMP:20260403T173949 CREATED:20240528T163645Z LAST-MODIFIED:20260226T165312Z UID:10000657-1731348000-1731348000@liferaftgroup.org SUMMARY:Virtual Florida Support Group DESCRIPTION:Florida Support Group\nZoom\, 2nd Monday of the Month – 6pm ET\nOur moderator is a fellow GISTER/LRG Member from Florida diagnosed with GIST in late 2016.\nIf you wish to attend\, please email Rachel LoCurto: rlocurto@liferaftgroup.org for the Zoom link for the meeting. URL:https://liferaftgroup.org/event/virtual-florida-support-group-2-2-2/2024-11-11/ CATEGORIES:Support Group ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2022/09/florida-support-group.jpg ORGANIZER;CN="Rachel LoCurto":MAILTO:rlocurto@liferaftgroup.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20241106T150000 DTEND;TZID=America/New_York:20241106T170000 DTSTAMP:20260403T173949 CREATED:20241009T185745Z LAST-MODIFIED:20241024T145922Z UID:10000793-1730905200-1730912400@liferaftgroup.org SUMMARY:GDOL North Carolina Virtual DESCRIPTION:GDOL North Carolina is being held virtually Nov 6th\, 3-5 pm ET at Chapel Hill\, North Carolina. \nREGISTERWhat is a GDOL? \nA GDOL is a GIST Day of Learning. This is a free one day event to help patients and caregivers learn more about this rare cancer\, find support\, and enhance their knowledge base to help them navigate their cancer journey. \nThe Life Raft Group is committed to enhancing the survival and quality of life for people living with Gastrointestinal Stromal Tumor (GIST)\, and other rare diseases\, through patient-powered research\, education and empowerment\, and global advocacy efforts. Our vision is to empower a future fueled by data\, guiding our journey toward cures for rare diseases. \nIf you have any questions\, please contact Brian Morello at bmorello@liferaftgroup.org \nClick Image for a PDF of the Agenda\n \nThank you to our Sponsors! URL:https://liferaftgroup.org/event/gdol-north-carolina-virtual-2/ CATEGORIES:Education,Events ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20241106T130000 DTEND;TZID=America/New_York:20241106T140000 DTSTAMP:20260403T173949 CREATED:20240528T163612Z LAST-MODIFIED:20260226T163718Z UID:10000645-1730898000-1730901600@liferaftgroup.org SUMMARY:Virtual GIST Caregiver Support Group DESCRIPTION:Monthly Virtual Support Group for GIST Caregivers\nHeld on the first Wednesday of the month \nLRG hosts a monthly virtual support group for the caregivers. We will share our stories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling during this journey as a caregiver. The group will be a safe space not only to feel supported by your fellow caregivers\, but also a place to share our own coping mechanisms\, concerns\, successes and trials. All information shared will be kept confidential. \nContact Rachel LoCurto at rlocurto@liferaftgroup.org for more information and to join this meeting. \nAbout the Group Leader:\nMarlene Nei\, GIST Caregiver\nAs an active member of The Life Raft Group\, Marlene advocates for the needs of the caregiver community because she feels they are an underrepresented group. It is her mission to advocate for the entire GIST community making sure they are equipped with the appropriate resources on their GIST journey. URL:https://liferaftgroup.org/event/virtual-gist-caregiver-support-group-2023-2/2024-11-06/2/ CATEGORIES:Support Group ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2023/05/caregiver-sg-2023.jpg ORGANIZER;CN="Rachel LoCurto":MAILTO:rlocurto@liferaftgroup.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20241106T130000 DTEND;TZID=America/New_York:20241106T130000 DTSTAMP:20260403T173949 CREATED:20241009T190246Z LAST-MODIFIED:20241107T135829Z UID:10000794-1730898000-1730898000@liferaftgroup.org SUMMARY:Know Your Mutation: Why is Biomarker Testing Important in GIST? DESCRIPTION:The Life Raft Group invites you to “Know Your Mutation: Why is Biomarker Testing Important in GIST?”\, on November 6th\, 2024 at 1PM ET. During this educational webinar\, Michelle Harris and Calvin Chao of Tempus will discuss the importance of biomarker testing in GIST\, the process of biomarker testing\, how to get testing done for free through the LRG\, and more. A Q&A session will follow the presentation. \n\nPlease email srothschild@liferaftgroup.org to submit a question ahead of the presentation.  \n\n\n\nPlease note that this webinar is not a substitute for your physician’s guidance and care.\nREGISTERAbout Our Presenters\n \nDr. Calvin Chao\nSenior Vice President of Medical Affairs\, Tempus \nPreviously\, Dr. Chao spent thirteen years leading studies and education for the Oncotype DX Breast\, Prostate\, and Colon Cancer assays at Genomic Health\, later acquired by Exact Sciences.  Prior to that role\, he worked in various bio-pharmaceutical medical director positions at Onyx Pharmaceuticals\, PDL BioPharma\, TAP Pharmaceuticals\, and SmithKline Beecham. \nIn his early career\, Dr. Chao practiced as a board-certified internist and hospitalist at Kaiser Permanente in California for ten years. He earned his MD from the University of Texas Medical Branch\, completed his medical residency at Presbyterian-St. Luke’s Medical Center in Denver\, Colorado\, received his MBA from St. Mary’s College\, California\, and his BS in Chemical Engineering from University of California\, Berkeley. \n \nMichelle Harris\nSenior Director Medical Affairs\, Tempus AI \nMichelle has worked in the oncology space for almost 20 years in research\, development and medical affairs.  She has been at Tempus AI for 2&1/2 years leading the field medical liaison team\, who work with physicians on research and education.  Prior to Tempus\, Michelle worked in solid tumor drug development and clinical trials at Novartis and Gilead Sciences. \nThank you to our Webinar Sponsors! URL:https://liferaftgroup.org/event/know-your-mutation/ CATEGORIES:Education,Events,Webcast ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20241106T080000 DTEND;TZID=America/New_York:20241106T170000 DTSTAMP:20260403T173949 CREATED:20240528T163612Z LAST-MODIFIED:20260226T163718Z UID:10001087-1730880000-1730912400@liferaftgroup.org SUMMARY:Virtual GIST Caregiver Support Group DESCRIPTION:Monthly Virtual Support Group for GIST Caregivers\nHeld on the first Wednesday of the month \nLRG hosts a monthly virtual support group for the caregivers. We will share our stories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling during this journey as a caregiver. The group will be a safe space not only to feel supported by your fellow caregivers\, but also a place to share our own coping mechanisms\, concerns\, successes and trials. All information shared will be kept confidential. \nContact Rachel LoCurto at rlocurto@liferaftgroup.org for more information and to join this meeting. \nAbout the Group Leader:\nMarlene Nei\, GIST Caregiver\nAs an active member of The Life Raft Group\, Marlene advocates for the needs of the caregiver community because she feels they are an underrepresented group. It is her mission to advocate for the entire GIST community making sure they are equipped with the appropriate resources on their GIST journey. URL:https://liferaftgroup.org/event/virtual-gist-caregiver-support-group-2023-2/2024-11-06/1/ CATEGORIES:Support Group ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2023/05/caregiver-sg-2023.jpg ORGANIZER;CN="Rachel LoCurto":MAILTO:rlocurto@liferaftgroup.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20241105T180000 DTEND;TZID=America/New_York:20241105T193000 DTSTAMP:20260403T173949 CREATED:20230727T133611Z LAST-MODIFIED:20240823T152527Z UID:10000609-1730829600-1730835000@liferaftgroup.org SUMMARY:Virtual GIST Patient Support Group DESCRIPTION:The Patient Support Group meets via Zoom on the first and third Tuesday of each month from 6:00 PM – 7:30 PM ET (NYC Time). \nWe will start each group with a “Round Robin” in which anyone who feels like updating the group on how they are doing/feeling can do so. There is no pressure to speak if you prefer to simply listen. Once we complete our updates\, the group will have the opportunity for organic conversation to develop in relation to our emotional experiences around GIST\, and other challenges that we may be experiencing as a community. \nIn order to be able to moderate a flowing discussion\, the group will be capped at 15 people each month. The first 15 people into the Zoom waiting room will participate. Keep in mind that since the group is now open\, you don’t necessarily have to attend each month to participate. \nContact Brian Morello to join: bmorello@liferaftgroup.org URL:https://liferaftgroup.org/event/virtual-gist-patient-support-group-2023-first/2024-11-05/ CATEGORIES:Support Group ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/01/GISTer-Support-Group-2022-1.png ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20241030 DTEND;VALUE=DATE:20241031 DTSTAMP:20260403T173949 CREATED:20240917T172132Z LAST-MODIFIED:20241028T131216Z UID:10000792-1730246400-1730332799@liferaftgroup.org SUMMARY:GDOL Miami Virtual DESCRIPTION:GDOL Miami is being held virtually with the GIST experts at Sylvester Comprehensive Cancer Center. \nREGISTERWhat is a GDOL? \nA GDOL is a GIST Day of Learning. This is a free one day event to help patients and caregivers learn more about this rare cancer\, find support\, and enhance their knowledge base to help them navigate their cancer journey. \nThe Life Raft Group is committed to enhancing the survival and quality of life for people living with Gastrointestinal Stromal Tumor (GIST)\, and other rare diseases\, through patient-powered research\, education and empowerment\, and global advocacy efforts. Our vision is to empower a future fueled by data\, guiding our journey toward cures for rare diseases. \nIf you have any questions\, please contact Brian Morello at bmorello@liferaftgroup.org \nClick Image for a PDF of the Agenda\n \nThank you to our Sponsors! URL:https://liferaftgroup.org/event/gdol-miami-2/ CATEGORIES:Education,Events ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/Chicago:20241028T180000 DTEND;TZID=America/Chicago:20241028T180000 DTSTAMP:20260403T173949 CREATED:20240823T175323Z LAST-MODIFIED:20260226T163049Z UID:10000849-1730138400-1730138400@liferaftgroup.org SUMMARY:Virtual Texas Support Group DESCRIPTION:Texas Support Group Zoom meeting on the 4th Monday of the month @ 6PM Central Time. Jackie Vanderpol will host this zoom meeting. Contact Rachel LoCurto at rlocurto@liferaftgroup.org with any questions or to get the Zoom link. URL:https://liferaftgroup.org/event/virtual-texas-support-group/2024-10-28/ CATEGORIES:Events,Support Group ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2024/08/texas-support-group.jpg ORGANIZER;CN="Rachel LoCurto":MAILTO:rlocurto@liferaftgroup.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20241015T180000 DTEND;TZID=America/New_York:20241015T193000 DTSTAMP:20260403T173949 CREATED:20230727T134306Z LAST-MODIFIED:20260105T170322Z UID:10000715-1729015200-1729020600@liferaftgroup.org SUMMARY:Virtual GIST Patient Support Group DESCRIPTION:The Patient Support Group meets via Zoom on the first and third Tuesday of each month from 6:00 PM – 7:30 PM ET (NYC Time). \nWe will start each group with a “Round Robin” in which anyone who feels like updating the group on how they are doing/feeling can do so. There is no pressure to speak if you prefer to simply listen. Once we complete our updates\, the group will have the opportunity for organic conversation to develop in relation to our emotional experiences around GIST\, and other challenges that we may be experiencing as a community. \nIn order to be able to moderate a flowing discussion\, the group will be capped at 15 people each month. The first 15 people into the Zoom waiting room will participate. Keep in mind that since the group is now open\, you don’t necessarily have to attend each month to participate. \nContact Brian Morello to join: bmorello@liferaftgroup.org URL:https://liferaftgroup.org/event/virtual-gist-patient-support-group-third/2024-10-15/ CATEGORIES:Support Group ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/01/GISTer-Support-Group-2022-1.png ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20241014T180000 DTEND;TZID=America/New_York:20241014T180000 DTSTAMP:20260403T173949 CREATED:20240528T154845Z LAST-MODIFIED:20240823T153041Z UID:10000656-1728928800-1728928800@liferaftgroup.org SUMMARY:Virtual Florida Support Group DESCRIPTION:Florida Support Group\nZoom\, 2nd Monday of the Month – 6pm ET\nOur moderator is a fellow GISTER/LRG Member from Florida diagnosed with GIST in late 2016.\nIf you wish to attend\, please email Brian Morello: bmorello@liferaftgroup.org for the Zoom link for the meeting. URL:https://liferaftgroup.org/event/virtual-florida-support-group-2-2/2024-10-14/ CATEGORIES:Support Group ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2022/09/florida-support-group.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20241007T130000 DTEND;TZID=America/New_York:20241007T130000 DTSTAMP:20260403T173949 CREATED:20240828T192519Z LAST-MODIFIED:20240904T152915Z UID:10000790-1728306000-1728306000@liferaftgroup.org SUMMARY:IDRX-42: Trial Design & Emerging Data from StrateGIST 1 DESCRIPTION:The Life Raft Group invites you to “IDRX-42: Trial Design and Emerging Data from the StrateGIST 1 Study”\, on October 7th\, 2024 at 1PM ET. During this educational webinar\, Suzanne George\, MD of the Dana-Farber Cancer Institute will review emerging data from the first-in-human StrateGIST 1 trial of IDRX-42 in patients with advanced GIST. Dr. George will also discuss the design and rationale for the ongoing Phase 1b portion of the trial\, including first- and second-line cohorts. A Q&A session will follow the presentation. \n\nPlease email srothschild@liferaftgroup.org to submit a question ahead of the presentation.  \n\n\n\nPlease note that this webinar is not a substitute for your physician’s guidance and care.\nREGISTERAbout Our Presenter\n \nDr. Suzanne George\nSarcoma Center at Dana-Farber Cancer Institute \nSuzanne George\, MD is the Division Chief of the Sarcoma Center at Dana-Farber Cancer Institute who leads a team focused on research and clinical care of patients with sarcomas and GIST. She has an extensive research experience in clinical trials and drug development and cares for patient from across New England\, the US and internationally. \nThank you to our Webinar Sponsor! URL:https://liferaftgroup.org/event/idrx-42-trial-design-and-emerging-data-from-the-strategist1-study/ CATEGORIES:Education,Events,Webcast ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20241002T130000 DTEND;TZID=America/New_York:20241002T140000 DTSTAMP:20260403T173949 CREATED:20230727T134933Z LAST-MODIFIED:20240614T133545Z UID:10000644-1727874000-1727877600@liferaftgroup.org SUMMARY:Virtual GIST Caregiver Support Group DESCRIPTION:Monthly Virtual Support Group for GIST Caregivers\nHeld on the first Wednesday of the month \nLRG hosts a monthly virtual support group for the caregivers. We will share our stories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling during this journey as a caregiver. The group will be a safe space not only to feel supported by your fellow caregivers\, but also a place to share our own coping mechanisms\, concerns\, successes and trials. All information shared will be kept confidential. \nContact Brian Morello to join: bmorello@liferaftgroup.org \nAbout the Group Leader:\nMarlene Nei\, GIST Caregiver\nAs an active member of The Life Raft Group\, Marlene advocates for the needs of the caregiver community because she feels they are an underrepresented group. It is her mission to advocate for the entire GIST community making sure they are equipped with the appropriate resources on their GIST journey. URL:https://liferaftgroup.org/event/virtual-gist-caregiver-support-group-2023/2024-10-02/ CATEGORIES:Support Group ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2023/05/caregiver-sg-2023.jpg ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20241001T180000 DTEND;TZID=America/New_York:20241001T193000 DTSTAMP:20260403T173949 CREATED:20230727T133611Z LAST-MODIFIED:20240823T152527Z UID:10000608-1727805600-1727811000@liferaftgroup.org SUMMARY:Virtual GIST Patient Support Group DESCRIPTION:The Patient Support Group meets via Zoom on the first and third Tuesday of each month from 6:00 PM – 7:30 PM ET (NYC Time). \nWe will start each group with a “Round Robin” in which anyone who feels like updating the group on how they are doing/feeling can do so. There is no pressure to speak if you prefer to simply listen. Once we complete our updates\, the group will have the opportunity for organic conversation to develop in relation to our emotional experiences around GIST\, and other challenges that we may be experiencing as a community. \nIn order to be able to moderate a flowing discussion\, the group will be capped at 15 people each month. The first 15 people into the Zoom waiting room will participate. Keep in mind that since the group is now open\, you don’t necessarily have to attend each month to participate. \nContact Brian Morello to join: bmorello@liferaftgroup.org URL:https://liferaftgroup.org/event/virtual-gist-patient-support-group-2023-first/2024-10-01/ CATEGORIES:Support Group ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/01/GISTer-Support-Group-2022-1.png ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20240928T090000 DTEND;TZID=America/New_York:20240928T170000 DTSTAMP:20260403T173949 CREATED:20240829T183610Z LAST-MODIFIED:20240829T183610Z UID:10000791-1727514000-1727542800@liferaftgroup.org SUMMARY:GDOL Calgary DESCRIPTION:REGISTRATION\nPlease join us for a full day GIST Day of Learning event in Calgary\, Alberta on Saturday September 28\, 2024.\nLocation:  Hotel Alt East Village – 635 Confluence Way SE\, Calgary\, Canada\nRefreshments and Lunch will be provided along with a post conference networking event!\nPatients\, caregivers and family are all welcome at this FREE event. \nSpeakers:\nDr. Xiolan Feng Medical Oncologist\, Tom Baker Cancer Centre. Dr. Feng will be speaking about mutational analysis.\nDr. Andrew Blakely will joining us from the NIH National Cancer Institue to talk about his Surgical Trial.\nDr. Herbert Loong will be presenting on current clinical trials including the Cogent Biosciences PEAK Trial.\nGIST 101 to be presented by David Josephy.\nLiving with the emotional impact of GIST group session with Kristin Austman.\nPatient Panel led by Hazel McLeod. URL:https://liferaftgroup.org/event/gdol-calgary/ CATEGORIES:Education,Events ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2024/08/GDOL-Calgary-Featured-Image.jpg ORGANIZER;CN="GIST Sarcoma Life Raft Group Canada":MAILTO:yvonne.nunnaro@liferaftgroup.ca END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/Chicago:20240923T180000 DTEND;TZID=America/Chicago:20240923T180000 DTSTAMP:20260403T173949 CREATED:20240823T175323Z LAST-MODIFIED:20260226T163049Z UID:10000848-1727114400-1727114400@liferaftgroup.org SUMMARY:Virtual Texas Support Group DESCRIPTION:Texas Support Group Zoom meeting on the 4th Monday of the month @ 6PM Central Time. Jackie Vanderpol will host this zoom meeting. Contact Rachel LoCurto at rlocurto@liferaftgroup.org with any questions or to get the Zoom link. URL:https://liferaftgroup.org/event/virtual-texas-support-group/2024-09-23/ CATEGORIES:Events,Support Group ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2024/08/texas-support-group.jpg ORGANIZER;CN="Rachel LoCurto":MAILTO:rlocurto@liferaftgroup.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20240917T180000 DTEND;TZID=America/New_York:20240917T193000 DTSTAMP:20260403T173949 CREATED:20230727T134306Z LAST-MODIFIED:20260105T170322Z UID:10000714-1726596000-1726601400@liferaftgroup.org SUMMARY:Virtual GIST Patient Support Group DESCRIPTION:The Patient Support Group meets via Zoom on the first and third Tuesday of each month from 6:00 PM – 7:30 PM ET (NYC Time). \nWe will start each group with a “Round Robin” in which anyone who feels like updating the group on how they are doing/feeling can do so. There is no pressure to speak if you prefer to simply listen. Once we complete our updates\, the group will have the opportunity for organic conversation to develop in relation to our emotional experiences around GIST\, and other challenges that we may be experiencing as a community. \nIn order to be able to moderate a flowing discussion\, the group will be capped at 15 people each month. The first 15 people into the Zoom waiting room will participate. Keep in mind that since the group is now open\, you don’t necessarily have to attend each month to participate. \nContact Brian Morello to join: bmorello@liferaftgroup.org URL:https://liferaftgroup.org/event/virtual-gist-patient-support-group-third/2024-09-17/ CATEGORIES:Support Group ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/01/GISTer-Support-Group-2022-1.png ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20240914T080000 DTEND;TZID=America/New_York:20240914T080000 DTSTAMP:20260403T173949 CREATED:20240715T141924Z LAST-MODIFIED:20240820T182732Z UID:10000785-1726300800-1726300800@liferaftgroup.org SUMMARY:GDOL Ohio 2024 DESCRIPTION:GDOL Ohio is being held in-person at The Ohio State University Wexner Medical Center\, Biomedical Research Tower (BRT)\, Room 115\, Columbus\, OH 43210. \nREGISTRATIONWhat is a GDOL? \nA GDOL is a GIST Day of Learning. This is a free one day event to help patients and caregivers learn more about this rare cancer\, find support\, and enhance their knowledge base to help them navigate their cancer journey. \nThe Life Raft Group is committed to enhancing the survival and quality of life for people living with Gastrointestinal Stromal Tumor (GIST)\, and other rare diseases\, through patient-powered research\, education and empowerment\, and global advocacy efforts. Our vision is to empower a future fueled by data\, guiding our journey toward cures for rare diseases. \nIf you have any questions\, please contact Brian Morello at bmorello@liferaftgroup.org \nClick image for a PDF of the Agenda: \n\nThank you to our Sponsors! URL:https://liferaftgroup.org/event/gdol-ohio-2024/ LOCATION:The Ohio State University Wexner Medical Center\, Biomedical Research Tower (BRT)\, 460 W 12th Ave\, Columbus\, OH\, 43210\, United States CATEGORIES:Education,Events ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20240909T180000 DTEND;TZID=America/New_York:20240909T180000 DTSTAMP:20260403T173949 CREATED:20240528T154845Z LAST-MODIFIED:20240823T153041Z UID:10000655-1725904800-1725904800@liferaftgroup.org SUMMARY:Virtual Florida Support Group DESCRIPTION:Florida Support Group\nZoom\, 2nd Monday of the Month – 6pm ET\nOur moderator is a fellow GISTER/LRG Member from Florida diagnosed with GIST in late 2016.\nIf you wish to attend\, please email Brian Morello: bmorello@liferaftgroup.org for the Zoom link for the meeting. URL:https://liferaftgroup.org/event/virtual-florida-support-group-2-2/2024-09-09/ CATEGORIES:Support Group ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2022/09/florida-support-group.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20240909T120000 DTEND;TZID=America/New_York:20240909T120000 DTSTAMP:20260403T173949 CREATED:20240812T202329Z LAST-MODIFIED:20240812T202409Z UID:10000788-1725883200-1725883200@liferaftgroup.org SUMMARY:Locoregional Therapies for Treatment of GIST in the Liver DESCRIPTION:Interventional radiology is a medical specialty that performs various minimally-invasive procedures to treat cancer and other diseases. The Life Raft Group invites world-renowned interventional radiologist Edward Kim\, MD FSIR of Mount Sinai to present “Locoregional Therapies for Treatment of GIST in the Liver” on September 9th at 12pm ET. During this virtual presentation\, Dr. Kim will describe various locoregional therapies and their appropriate uses\, as well as the role of locoregional therapies and systemic therapy in treating GIST when it metastasizes in the liver. A Q&A portion will follow the presentation. \n\nPlease email srothschild@liferaftgroup.org to submit a question ahead of the presentation.  \n\n\n\nPlease note that this webinar is not a substitute for your physician’s guidance and care.\nREGISTERAbout Our Presenter\n \nDr. Edward Kim\nMount Sinai Medical Center \nEdward Kim\, MD FSIR is Professor of Radiology and Surgery and Director of Interventional Oncology at Mount Sinai Health Systems\, under the Division of Interventional Radiology. He attended Rutgers Medical School and finished his Interventional Radiology training at Mount Sinai.  Dr. Kim is a world-renowned Interventional Radiologist\, who focuses on minimally invasive treatments\, known as locoregional therapies\, for the treatment of liver cancer.  He has authored numerous influential peer reviewed publications and runs multiple prospective clinical trials.  He has been invited to be course director and faculty at numerous meetings throughout the world.  He believes that best patient care is achieved through a multidisciplinary collaboration and helps lead the multidisciplinary tumor board at Mount Sinai\, as well as helped institute multidisciplinary office hours with liver transplant\, hepatology and surgery.  He is a thought leader in liver cancer\, especially with regards to radioembolization\, thermal ablation and chemoembolization\, as well as combination therapies with immune checkpoint inhibitors. \nThank you to our Webinar Sponsors! URL:https://liferaftgroup.org/event/locoregional-therapies-for-treatment-of-gist-in-the-liver/ CATEGORIES:Education,Events,Webcast ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20240904T130000 DTEND;TZID=America/New_York:20240904T140000 DTSTAMP:20260403T173949 CREATED:20230727T134933Z LAST-MODIFIED:20240614T133545Z UID:10000643-1725454800-1725458400@liferaftgroup.org SUMMARY:Virtual GIST Caregiver Support Group DESCRIPTION:Monthly Virtual Support Group for GIST Caregivers\nHeld on the first Wednesday of the month \nLRG hosts a monthly virtual support group for the caregivers. We will share our stories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling during this journey as a caregiver. The group will be a safe space not only to feel supported by your fellow caregivers\, but also a place to share our own coping mechanisms\, concerns\, successes and trials. All information shared will be kept confidential. \nContact Brian Morello to join: bmorello@liferaftgroup.org \nAbout the Group Leader:\nMarlene Nei\, GIST Caregiver\nAs an active member of The Life Raft Group\, Marlene advocates for the needs of the caregiver community because she feels they are an underrepresented group. It is her mission to advocate for the entire GIST community making sure they are equipped with the appropriate resources on their GIST journey. URL:https://liferaftgroup.org/event/virtual-gist-caregiver-support-group-2023/2024-09-04/ CATEGORIES:Support Group ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2023/05/caregiver-sg-2023.jpg ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20240903T180000 DTEND;TZID=America/New_York:20240903T193000 DTSTAMP:20260403T173949 CREATED:20230727T133611Z LAST-MODIFIED:20240823T152527Z UID:10000607-1725386400-1725391800@liferaftgroup.org SUMMARY:Virtual GIST Patient Support Group DESCRIPTION:The Patient Support Group meets via Zoom on the first and third Tuesday of each month from 6:00 PM – 7:30 PM ET (NYC Time). \nWe will start each group with a “Round Robin” in which anyone who feels like updating the group on how they are doing/feeling can do so. There is no pressure to speak if you prefer to simply listen. Once we complete our updates\, the group will have the opportunity for organic conversation to develop in relation to our emotional experiences around GIST\, and other challenges that we may be experiencing as a community. \nIn order to be able to moderate a flowing discussion\, the group will be capped at 15 people each month. The first 15 people into the Zoom waiting room will participate. Keep in mind that since the group is now open\, you don’t necessarily have to attend each month to participate. \nContact Brian Morello to join: bmorello@liferaftgroup.org URL:https://liferaftgroup.org/event/virtual-gist-patient-support-group-2023-first/2024-09-03/ CATEGORIES:Support Group ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/01/GISTer-Support-Group-2022-1.png ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/Chicago:20240826T180000 DTEND;TZID=America/Chicago:20240826T180000 DTSTAMP:20260403T173949 CREATED:20240823T175323Z LAST-MODIFIED:20260226T163049Z UID:10000847-1724695200-1724695200@liferaftgroup.org SUMMARY:Virtual Texas Support Group DESCRIPTION:Texas Support Group Zoom meeting on the 4th Monday of the month @ 6PM Central Time. Jackie Vanderpol will host this zoom meeting. Contact Rachel LoCurto at rlocurto@liferaftgroup.org with any questions or to get the Zoom link. URL:https://liferaftgroup.org/event/virtual-texas-support-group/2024-08-26/ CATEGORIES:Events,Support Group ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2024/08/texas-support-group.jpg ORGANIZER;CN="Rachel LoCurto":MAILTO:rlocurto@liferaftgroup.org END:VEVENT END:VCALENDAR