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DTSTART;TZID=America/New_York:20260505T180000
DTEND;TZID=America/New_York:20260505T193000
DTSTAMP:20260531T145638
CREATED:20260105T170043Z
LAST-MODIFIED:20260505T151148Z
UID:10001030-1778004000-1778009400@liferaftgroup.org
SUMMARY:Virtual GIST Patient Support Group
DESCRIPTION:The Patient Support Group meets via Zoom on the first and third Tuesday of each month from 6:00 PM – 7:30 PM ET (NYC Time). \nWe will start each group with a “Round Robin” in which anyone who feels like updating the group on how they are doing/feeling can do so. There is no pressure to speak if you prefer to simply listen. Once we complete our updates\, the group will have the opportunity for organic conversation to develop in relation to our emotional experiences around GIST\, and other challenges that we may be experiencing as a community. \nIn order to be able to moderate a flowing discussion\, the group will be capped at 15 people each month. The first 15 people into the Zoom waiting room will participate. Keep in mind that since the group is now open\, you don’t necessarily have to attend each month to participate. \nIf you wish to attend\, please email supportgroups@liferaftgroup.org for the Zoom link for the meeting.
URL:https://liferaftgroup.org/event/virtual-gist-patient-support-group-2023-first-2/2026-05-05/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/01/GISTer-Support-Group-2022-1.png
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260506T130000
DTEND;TZID=America/New_York:20260506T140000
DTSTAMP:20260531T145638
CREATED:20240528T163612Z
LAST-MODIFIED:20260505T151113Z
UID:10001103-1778072400-1778076000@liferaftgroup.org
SUMMARY:Virtual GIST Caregiver Support Group
DESCRIPTION:Monthly Virtual Support Group for GIST Caregivers\nHeld on the first Wednesday of the month \nLRG hosts a monthly virtual support group for the caregivers. We will share our stories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling during this journey as a caregiver. The group will be a safe space not only to feel supported by your fellow caregivers\, but also a place to share our own coping mechanisms\, concerns\, successes and trials. All information shared will be kept confidential. \nIf you wish to attend\, please email supportgroups@liferaftgroup.org for the Zoom link for the meeting. \nAbout the Group Leader:\nMarlene Nei\, GIST Caregiver\nAs an active member of The Life Raft Group\, Marlene advocates for the needs of the caregiver community because she feels they are an underrepresented group. It is her mission to advocate for the entire GIST community making sure they are equipped with the appropriate resources on their GIST journey.
URL:https://liferaftgroup.org/event/virtual-gist-caregiver-support-group-2023-2/2026-05-06/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2023/05/caregiver-sg-2023.jpg
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260511T180000
DTEND;TZID=America/New_York:20260511T180000
DTSTAMP:20260531T145638
CREATED:20240528T163645Z
LAST-MODIFIED:20260505T151122Z
UID:10000675-1778522400-1778522400@liferaftgroup.org
SUMMARY:Virtual Florida Support Group
DESCRIPTION:Florida Support Group\nZoom\, 2nd Monday of the Month – 6pm ET\nOur moderator is a fellow GISTER/LRG Member from Florida diagnosed with GIST in late 2016.\nIf you wish to attend\, please email supportgroups@liferaftgroup.org for the Zoom link for the meeting.
URL:https://liferaftgroup.org/event/virtual-florida-support-group-2-2-2/2026-05-11/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2022/09/florida-support-group.jpg
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260519T150000
DTEND;TZID=America/New_York:20260519T150000
DTSTAMP:20260531T145638
CREATED:20250710T225236Z
LAST-MODIFIED:20260226T154752Z
UID:10000840-1779202800-1779202800@liferaftgroup.org
SUMMARY:SDH Support Group
DESCRIPTION:We are excited to announce the launch of a dedicated Support Group for SDH-GIST patients\, created to offer a welcoming space for connection\, understanding\, and shared experience. Whether you’re newly diagnosed or have been managing SDH for years\, this group is here to support you. Together\, we will share our stories and knowledge\, discuss challenges\, celebrate progress\, and offer encouragement to one another in a safe\, respectful environment. \nWhat to Expect: \n\nRegular virtual meetings\nPeer support and open discussion\nGuest speakers and educational sessions\nOpportunities to ask questions and share your story\n\nThis group will meet the 3rd Tuesdays of the month. Space is limited as we aim to keep the support groups small to allow for sharing & discussion.  If interested in the group\, please contact Becky Owens at bowens@liferaftgroup.org. A registration link will be sent to those who express interest. You are not alone\, and we hope this group becomes a meaningful part of your life.
URL:https://liferaftgroup.org/event/sdh-support-group/2026-05-19/
CATEGORIES:Events,Support Group
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2025/07/SDH-Support-Group-Event-Banner.png
ORGANIZER;CN="Becky Owens":MAILTO:bowens@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260519T180000
DTEND;TZID=America/New_York:20260519T193000
DTSTAMP:20260531T145638
CREATED:20230727T134306Z
LAST-MODIFIED:20260105T170322Z
UID:10000734-1779213600-1779219000@liferaftgroup.org
SUMMARY:Virtual GIST Patient Support Group
DESCRIPTION:The Patient Support Group meets via Zoom on the first and third Tuesday of each month from 6:00 PM – 7:30 PM ET (NYC Time). \nWe will start each group with a “Round Robin” in which anyone who feels like updating the group on how they are doing/feeling can do so. There is no pressure to speak if you prefer to simply listen. Once we complete our updates\, the group will have the opportunity for organic conversation to develop in relation to our emotional experiences around GIST\, and other challenges that we may be experiencing as a community. \nIn order to be able to moderate a flowing discussion\, the group will be capped at 15 people each month. The first 15 people into the Zoom waiting room will participate. Keep in mind that since the group is now open\, you don’t necessarily have to attend each month to participate. \nContact Brian Morello to join: bmorello@liferaftgroup.org
URL:https://liferaftgroup.org/event/virtual-gist-patient-support-group-third/2026-05-19/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/01/GISTer-Support-Group-2022-1.png
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260521T120000
DTEND;TZID=America/New_York:20260521T120000
DTSTAMP:20260531T145638
CREATED:20260428T124406Z
LAST-MODIFIED:20260514T144606Z
UID:10001650-1779364800-1779364800@liferaftgroup.org
SUMMARY:What It Means to Join a Clinical Trial
DESCRIPTION:REGISTERHosted by The Life Raft Group\, join us on May 21 at 12 PM ET for a candid\, informative conversation about stepping into a clinical trial. Rashmi Chugh\, MD of University of Michigan Rogel Comprehensive Cancer Center will present how clinical trials work\, who they’re for\, and what you can really expect and Dirk Niggemeyer\, GIST patient\, will share his personal journey navigating two clinical trials. \nWhether you’re newly diagnosed\, exploring new treatment options\, or simply want to better understand clinical trials\, this session will help you make more informed decisions with confidence. \nThese webinars are for informational purposes only and should not replace professional medical advice. Always consult your healthcare provider before making any treatment or lifestyle changes. \nAbout Our Presenters:\n \nDr. Rashmi Chugh\nUniversity of Michigan Rogel Comprehensive Cancer Center\n \nDr. Rashmi Chugh is a Professor of Internal Medicine in the Division of Hematology/Oncology at the University of Michigan Rogel Comprehensive Cancer Center\, Associate Division Chief of Clinical Services of Hematology/Oncology\, and Sarcoma Clinical Research Team Co-Leader. Her clinical practice is focused on the care of patients with bone and soft tissue sarcoma including gastrointestinal stromal tumors.  Dr. Chugh’s research involves conducting early and late phase clinical trials of novel therapies alone or in combination with a goal to advance the care of sarcoma patients. She also is Medical Co-Director of the Michigan Adolescent and Young Adult (AYA) Oncology Program and has a particular interest in the care and research surrounding the unique challenges this population faces. \n \nDirk Niggemeyer\nPatient Advocate\n \nDirk Niggemeyer was diagnosed with GIST (KIT Exon 11) in July 2018 when he went from Engineering Manager and youth soccer coach to palliative care patient overnight. He continued working until late 2021. Dirk has participated in two medical studies: For 15 months\, he was in the control group in the Phase 3 Sutent vs Qinlock study\, and he has been participating in the IDRX-42 Phase 1b study for the last 22 months. \nThank You to Our Sponsors:
URL:https://liferaftgroup.org/event/what-it-means-to-join-a-clinical-trial/
CATEGORIES:Education,Events,Webcast
ORGANIZER;CN="Rebecca Pauley":MAILTO:rpauley@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20260525T180000
DTEND;TZID=America/Chicago:20260525T180000
DTSTAMP:20260531T145638
CREATED:20240823T175323Z
LAST-MODIFIED:20260505T151130Z
UID:10000868-1779732000-1779732000@liferaftgroup.org
SUMMARY:Virtual Texas Support Group
DESCRIPTION:Texas Support Group Zoom meeting on the 4th Monday of the month @ 6PM Central Time. Jackie Vanderpol will host this zoom meeting.\nIf you wish to attend\, please email supportgroups@liferaftgroup.org for the Zoom link for the meeting.
URL:https://liferaftgroup.org/event/virtual-texas-support-group/2026-05-25/
CATEGORIES:Events,Support Group
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2024/08/texas-support-group.jpg
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260530T130000
DTEND;TZID=America/New_York:20260530T130000
DTSTAMP:20260531T145638
CREATED:20260424T124559Z
LAST-MODIFIED:20260430T145715Z
UID:10001641-1780146000-1780146000@liferaftgroup.org
SUMMARY:Understanding GIST/Role of Clinical Trials
DESCRIPTION:REGISTERGIST Sarcoma Life Raft Group Canada is holding an Online Only event on\nSaturday May 30th\, 2026 at 1:00pm. \n We will be sharing our perspective on Understanding GIST and The Role of Clinical Trials.\n \nWe will be presenting an updated GIST 101 with David Josephy.  We will also be reviewing how to navigate the Clinical Trials website and when to consider a trial with Gabriel Melkonian. We will also hear from our member – Robert Kirschman who has participated in clinical trials during his journey to share his experience.
URL:https://liferaftgroup.org/event/gist-clinical-trials-lrg-canada/
CATEGORIES:Education,Events,Webcast
ORGANIZER;CN="GIST Sarcoma Life Raft Group Canada":MAILTO:yvonne.nunnaro@liferaftgroup.ca
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260601T120000
DTEND;TZID=America/New_York:20260601T120000
DTSTAMP:20260531T145638
CREATED:20260505T175855Z
LAST-MODIFIED:20260514T144521Z
UID:10001653-1780315200-1780315200@liferaftgroup.org
SUMMARY:Expert Nutrition & Exercise Advice
DESCRIPTION:REGISTERHosted by The Life Raft Group\, join us in honor of National Cancer Survivors Month for an empowering and informative webinar\, “Expert Nutrition & Exercise Advice for Sarcoma Patients” taking place on June 1st at 12 PM ET. \nThis special session will feature Dr. Loren Yavelberg\, Post-Doctoral Associate\, CEP\, ACSM-ACS Exercise Oncology Specialist\, and Dr. Harleen Kaur\, a behavioral scientist with a PhD in Nutrition Sciences\, both from the University of Miami. \nTogether\, they will share practical\, evidence-based guidance on how to support your body through every stage of the cancer journey. From preparing for surgery to rebuilding strength afterward\, the discussion will explore the role of nutrition\, physical activity\, and overall wellness in cancer care. You’ll learn about different dietary approaches\, exercise programs\, and what current research says about their impact. \nWhether you’re newly diagnosed\, in treatment\, or navigating survivorship\, this webinar will provide tools and insights to help you feel stronger\, more informed\, and supported. A Q&A session will follow the presentations. \nThese webinars are for informational purposes only and should not replace professional medical advice. Always consult your healthcare provider before making any treatment or lifestyle changes. \nAbout Our Presenters:\n \nDr. Loren Yavelberg\nUniversity of Miami\n \nDr. Loren Yavelberg is an exercise physiologist with a PhD in Applied Cardiopulmonary Physiology whose research focuses on exercise oncology\, lifestyle medicine\, and supportive care interventions across the cancer continuum. His work integrates clinical trials\, community-based programming\, and behavioral strategies to improve treatment tolerance and patient outcomes. \n \nDr. Harleen Kaur\nUniversity of Miami\n \nDr. Harleen Kaur is a behavioral scientist with a PhD in Nutrition Sciences from the University of Alabama at Birmingham\, where she was supported by the T32 Cancer Prevention and Control Training Program at O’Neal Comprehensive Cancer Center. She is currently supported by the T32 Training to Reduce Burden across the Cancer Control Continuum Multidisciplinary Program at Sylvester Comprehensive Cancer Center\, where she is advancing her training in lifestyle medicine and oncology research. Her research focuses on the design\, implementation\, and evaluation of multibehavior diet and physical activity interventions during active cancer treatment and survivorship. Her work aims to advance precision lifestyle medicine through scalable\, digitally supported behavioral strategies\, leveraging digital technologies to expand reach and incorporating artificial intelligence to enhance personalization. \nThank You to Our Sponsors:
URL:https://liferaftgroup.org/event/nutrition-exercise-advice-for-sarcoma-patients/
CATEGORIES:Education,Events,Webcast
ORGANIZER;CN="Rebecca Pauley":MAILTO:rpauley@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260602T180000
DTEND;TZID=America/New_York:20260602T193000
DTSTAMP:20260531T145638
CREATED:20260105T170043Z
LAST-MODIFIED:20260505T151148Z
UID:10001031-1780423200-1780428600@liferaftgroup.org
SUMMARY:Virtual GIST Patient Support Group
DESCRIPTION:The Patient Support Group meets via Zoom on the first and third Tuesday of each month from 6:00 PM – 7:30 PM ET (NYC Time). \nWe will start each group with a “Round Robin” in which anyone who feels like updating the group on how they are doing/feeling can do so. There is no pressure to speak if you prefer to simply listen. Once we complete our updates\, the group will have the opportunity for organic conversation to develop in relation to our emotional experiences around GIST\, and other challenges that we may be experiencing as a community. \nIn order to be able to moderate a flowing discussion\, the group will be capped at 15 people each month. The first 15 people into the Zoom waiting room will participate. Keep in mind that since the group is now open\, you don’t necessarily have to attend each month to participate. \nIf you wish to attend\, please email supportgroups@liferaftgroup.org for the Zoom link for the meeting.
URL:https://liferaftgroup.org/event/virtual-gist-patient-support-group-2023-first-2/2026-06-02/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/01/GISTer-Support-Group-2022-1.png
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260603T130000
DTEND;TZID=America/New_York:20260603T140000
DTSTAMP:20260531T145638
CREATED:20240528T163612Z
LAST-MODIFIED:20260505T151113Z
UID:10001104-1780491600-1780495200@liferaftgroup.org
SUMMARY:Virtual GIST Caregiver Support Group
DESCRIPTION:Monthly Virtual Support Group for GIST Caregivers\nHeld on the first Wednesday of the month \nLRG hosts a monthly virtual support group for the caregivers. We will share our stories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling during this journey as a caregiver. The group will be a safe space not only to feel supported by your fellow caregivers\, but also a place to share our own coping mechanisms\, concerns\, successes and trials. All information shared will be kept confidential. \nIf you wish to attend\, please email supportgroups@liferaftgroup.org for the Zoom link for the meeting. \nAbout the Group Leader:\nMarlene Nei\, GIST Caregiver\nAs an active member of The Life Raft Group\, Marlene advocates for the needs of the caregiver community because she feels they are an underrepresented group. It is her mission to advocate for the entire GIST community making sure they are equipped with the appropriate resources on their GIST journey.
URL:https://liferaftgroup.org/event/virtual-gist-caregiver-support-group-2023-2/2026-06-03/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2023/05/caregiver-sg-2023.jpg
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260607
DTEND;VALUE=DATE:20260608
DTSTAMP:20260531T145638
CREATED:20260325T150949Z
LAST-MODIFIED:20260505T144748Z
UID:10001639-1780790400-1780876799@liferaftgroup.org
SUMMARY:National Cancer Survivors Day
DESCRIPTION:June 7th is National Cancer Survivors Day.
URL:https://liferaftgroup.org/event/national-cancer-survivors-day/
CATEGORIES:Education,Events
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260608T180000
DTEND;TZID=America/New_York:20260608T180000
DTSTAMP:20260531T145638
CREATED:20240528T163645Z
LAST-MODIFIED:20260505T151122Z
UID:10001257-1780941600-1780941600@liferaftgroup.org
SUMMARY:Virtual Florida Support Group
DESCRIPTION:Florida Support Group\nZoom\, 2nd Monday of the Month – 6pm ET\nOur moderator is a fellow GISTER/LRG Member from Florida diagnosed with GIST in late 2016.\nIf you wish to attend\, please email supportgroups@liferaftgroup.org for the Zoom link for the meeting.
URL:https://liferaftgroup.org/event/virtual-florida-support-group-2-2-2/2026-06-08/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2022/09/florida-support-group.jpg
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260616T150000
DTEND;TZID=America/New_York:20260616T150000
DTSTAMP:20260531T145638
CREATED:20250710T225236Z
LAST-MODIFIED:20260226T154752Z
UID:10000841-1781622000-1781622000@liferaftgroup.org
SUMMARY:SDH Support Group
DESCRIPTION:We are excited to announce the launch of a dedicated Support Group for SDH-GIST patients\, created to offer a welcoming space for connection\, understanding\, and shared experience. Whether you’re newly diagnosed or have been managing SDH for years\, this group is here to support you. Together\, we will share our stories and knowledge\, discuss challenges\, celebrate progress\, and offer encouragement to one another in a safe\, respectful environment. \nWhat to Expect: \n\nRegular virtual meetings\nPeer support and open discussion\nGuest speakers and educational sessions\nOpportunities to ask questions and share your story\n\nThis group will meet the 3rd Tuesdays of the month. Space is limited as we aim to keep the support groups small to allow for sharing & discussion.  If interested in the group\, please contact Becky Owens at bowens@liferaftgroup.org. A registration link will be sent to those who express interest. You are not alone\, and we hope this group becomes a meaningful part of your life.
URL:https://liferaftgroup.org/event/sdh-support-group/2026-06-16/
CATEGORIES:Events,Support Group
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2025/07/SDH-Support-Group-Event-Banner.png
ORGANIZER;CN="Becky Owens":MAILTO:bowens@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260616T180000
DTEND;TZID=America/New_York:20260616T193000
DTSTAMP:20260531T145638
CREATED:20230727T134306Z
LAST-MODIFIED:20260105T170322Z
UID:10000735-1781632800-1781638200@liferaftgroup.org
SUMMARY:Virtual GIST Patient Support Group
DESCRIPTION:The Patient Support Group meets via Zoom on the first and third Tuesday of each month from 6:00 PM – 7:30 PM ET (NYC Time). \nWe will start each group with a “Round Robin” in which anyone who feels like updating the group on how they are doing/feeling can do so. There is no pressure to speak if you prefer to simply listen. Once we complete our updates\, the group will have the opportunity for organic conversation to develop in relation to our emotional experiences around GIST\, and other challenges that we may be experiencing as a community. \nIn order to be able to moderate a flowing discussion\, the group will be capped at 15 people each month. The first 15 people into the Zoom waiting room will participate. Keep in mind that since the group is now open\, you don’t necessarily have to attend each month to participate. \nContact Brian Morello to join: bmorello@liferaftgroup.org
URL:https://liferaftgroup.org/event/virtual-gist-patient-support-group-third/2026-06-16/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/01/GISTer-Support-Group-2022-1.png
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260617T130000
DTEND;TZID=America/New_York:20260617T130000
DTSTAMP:20260531T145638
CREATED:20260529T161111Z
LAST-MODIFIED:20260529T161249Z
UID:10001656-1781701200-1781701200@liferaftgroup.org
SUMMARY:GIST Updates from ASCO 2026
DESCRIPTION:REGISTERASCO (American Society of Clinical Oncology) is an important conference in the oncology community where new scientific research updates are shared. The Life Raft Group is excited to partner with Hirotaka Miroshita\, MD PhD of UC San Diego Health\, who will summarize abstracts and presentations that were presented during this conference that are relevant to the GIST patient community. Join us June 17th at 1pm for this virtual presentation. A Q&A session will follow the presentation. \nThese webinars are for informational purposes only and should not replace professional medical advice. Always consult your healthcare provider before making any treatment or lifestyle changes. \nAbout Our Presenter:\n \nDr. Hirotaka Miyashita\nUCSD Moores Cancer Center\n \nHirotaka Miyashita\, MD\, PhD\, is a board-certified medical oncologist who specializes in treating patients with sarcomas\, including rare and complex soft tissue and bone tumors. He is co-leader of the Sarcoma Disease Team at Moores Cancer Center\, and also leads and participates in biomarker-driven early-phase clinical trials to bring innovative therapies to patients across cancer types. \nDr. Miyashita prioritizes shared decision-making\, empowering his patients to make choices aligned with their goals and values. In caring for patients with sarcomas\, rare and complex cancers that often require individualized care\, he finds his work most rewarding when he can help patients live fulfilling lives with treatment plans that reflect their priorities and values. \nWith training in bioinformatics\, he leverages his expertise to integrate and analyze complex biomedical data in support of precision oncology and translational cancer research. He has published multiple articles on clinical oncology and has experience designing and conducting early-phase clinical trials. He is a strong advocate for community-oriented\, patient-centered clinical trials\, aiming to improve access and equity in cancer research. \nDr. Miyashita completed a hematology/oncology fellowship at Dartmouth Cancer Center as well as a clinical pharmacology fellowship at Dartmouth Hitchcock Medical Center. He completed a residency in internal medicine at Icahn School of Medicine at Mount Sinai (Beth Israel) and a residency in general medicine at the University of Tokyo Hospital in Japan. He also has a PhD in bioinformatics from University of Tsukuba in Japan. \nHe is a member of multiple national and international professional societies\, including the American Society of Clinical Oncology\, the Connective Tissue Oncology Society\, and the SWOG Sarcoma Working Group. Dr. Miyashita is board certified in internal medicine and medical oncology. \nThank You to Our Sponsors:
URL:https://liferaftgroup.org/event/gist-updates-from-asco-2026/
CATEGORIES:Education,Events,Webcast
ORGANIZER;CN="Rebecca Pauley":MAILTO:rpauley@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20260622T180000
DTEND;TZID=America/Chicago:20260622T180000
DTSTAMP:20260531T145638
CREATED:20240823T175323Z
LAST-MODIFIED:20260505T151130Z
UID:10000869-1782151200-1782151200@liferaftgroup.org
SUMMARY:Virtual Texas Support Group
DESCRIPTION:Texas Support Group Zoom meeting on the 4th Monday of the month @ 6PM Central Time. Jackie Vanderpol will host this zoom meeting.\nIf you wish to attend\, please email supportgroups@liferaftgroup.org for the Zoom link for the meeting.
URL:https://liferaftgroup.org/event/virtual-texas-support-group/2026-06-22/
CATEGORIES:Events,Support Group
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2024/08/texas-support-group.jpg
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260624
DTEND;VALUE=DATE:20260625
DTSTAMP:20260531T145638
CREATED:20260421T205043Z
LAST-MODIFIED:20260430T145211Z
UID:10001649-1782259200-1782345599@liferaftgroup.org
SUMMARY:Water of Life 2026
DESCRIPTION:June 24th & 25th\nREGISTERWe’re honored to invite you to an unforgettable evening where exceptional whisky meets meaningful impact!\nThe Water of Life Charity Event returns this June\, bringing together a curated whisky-tasting experience in support of The Life Raft Group and its mission to improve outcomes for people living with GIST\, a rare gastrointestinal cancer. \nAt the heart of the event is our signature whisky speed-tasting\, designed to give you access to a wide range of distinctive pours while deepening your appreciation for the craft and stories behind each one. \nGuests may choose to attend both evenings or join us for the main event. \nPlease note: this year’s experience has been thoughtfully expanded to allow more time to enjoy each tasting. \nMatthew J Lurin\, MD\, MBA\, FACEP\, CPE   Founder\, Water of Life Charity Event \nEVENT DETAILS \n\n\nJune 24th: Ultra-VIP Event\n6:00 PM – Begin at Home Studios with several rare and exclusive whisky pours. Move on next to our Cigar Event\, where you'll continue enjoying special pours alongside our new event cigar. \nJune 25th: Main Event\n5:00 PM – The event begins with two special masterclasses.\n6:45 PM – The first whisky speed tasting starts.\nThere will be two 30-minute breaks:\nDinner break – Dessert and raffle announcement \n\n\n\n\n\n\n\nTICKET INFORMATION \n\n\nULTRA VIP Ticket Includes:\nAttendance at the Ultra VIP Event at Home Studios for food and drinks on Wednesday\, June 24\, followed by cigars at The Carnegie Club\, PLUS attendance at the Water of Life Charity Event at Home Studios\, which includes the two Whisky Masterclasses\, speed tasting\, food\, and a custom WOL Glencairn on Thursday\, June 25. \nVIP Ticket Includes:\nAttendance at the Water of Life Charity Event at Home Studios\, which includes the two Whisky Masterclasses\, speed tasting\, food\, and a custom WOL Glencairn on Thursday\, June 25. \nSTANDARD Ticket Includes:\nAttendance at the Water of Life Charity Event atHome Studios\, which includes the whisky speed tasting\, food\, and a custom WOL Glencairn on Thursday\, June 25. \n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\nYou must purchase tickets before the event. Only 70 tickets will be sold for this exclusive event. \nAct quickly before tickets sell out! Questions or Seating Requests? Please contact us at: wateroflifenyc@gmail.com \nAll attendees must be over the age of 21. The Life Raft Group is a non-profit\, 501(c)(3) tax-exempt organization. Most gifts are 100 percent deductible as a charitable contribution under Federal and State income tax laws. Please consult your individual tax advisor to determine how much of your contribution is deductible. 
URL:https://liferaftgroup.org/event/wol-june-2026/
LOCATION:Home Studios\, Studio 1\, 873 Broadway #301\, NYC\, NY\, 10003\, United States
CATEGORIES:Events,Fundraising
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260630T140000
DTEND;TZID=America/New_York:20260630T140000
DTSTAMP:20260531T145638
CREATED:20260226T181800Z
LAST-MODIFIED:20260505T151139Z
UID:10001609-1782828000-1782828000@liferaftgroup.org
SUMMARY:Virtual North Carolina Patient Support Group
DESCRIPTION:North Carolina Patient Support Group \nZoom\, Last Tuesday of the Month – 2pm ET\nFebruary\, April\, June\, August\, October\, December \n \nIf you wish to attend\, please email supportgroups@liferaftgroup.org for the Zoom link for the meeting.
URL:https://liferaftgroup.org/event/north-carolina-support-group/2026-06-30/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2026/02/NC-Support-Group-Banner.png
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260701T130000
DTEND;TZID=America/New_York:20260701T140000
DTSTAMP:20260531T145638
CREATED:20240528T163612Z
LAST-MODIFIED:20260505T151113Z
UID:10001105-1782910800-1782914400@liferaftgroup.org
SUMMARY:Virtual GIST Caregiver Support Group
DESCRIPTION:Monthly Virtual Support Group for GIST Caregivers\nHeld on the first Wednesday of the month \nLRG hosts a monthly virtual support group for the caregivers. We will share our stories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling during this journey as a caregiver. The group will be a safe space not only to feel supported by your fellow caregivers\, but also a place to share our own coping mechanisms\, concerns\, successes and trials. All information shared will be kept confidential. \nIf you wish to attend\, please email supportgroups@liferaftgroup.org for the Zoom link for the meeting. \nAbout the Group Leader:\nMarlene Nei\, GIST Caregiver\nAs an active member of The Life Raft Group\, Marlene advocates for the needs of the caregiver community because she feels they are an underrepresented group. It is her mission to advocate for the entire GIST community making sure they are equipped with the appropriate resources on their GIST journey.
URL:https://liferaftgroup.org/event/virtual-gist-caregiver-support-group-2023-2/2026-07-01/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2023/05/caregiver-sg-2023.jpg
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260707T180000
DTEND;TZID=America/New_York:20260707T193000
DTSTAMP:20260531T145638
CREATED:20260105T170043Z
LAST-MODIFIED:20260505T151148Z
UID:10001032-1783447200-1783452600@liferaftgroup.org
SUMMARY:Virtual GIST Patient Support Group
DESCRIPTION:The Patient Support Group meets via Zoom on the first and third Tuesday of each month from 6:00 PM – 7:30 PM ET (NYC Time). \nWe will start each group with a “Round Robin” in which anyone who feels like updating the group on how they are doing/feeling can do so. There is no pressure to speak if you prefer to simply listen. Once we complete our updates\, the group will have the opportunity for organic conversation to develop in relation to our emotional experiences around GIST\, and other challenges that we may be experiencing as a community. \nIn order to be able to moderate a flowing discussion\, the group will be capped at 15 people each month. The first 15 people into the Zoom waiting room will participate. Keep in mind that since the group is now open\, you don’t necessarily have to attend each month to participate. \nIf you wish to attend\, please email supportgroups@liferaftgroup.org for the Zoom link for the meeting.
URL:https://liferaftgroup.org/event/virtual-gist-patient-support-group-2023-first-2/2026-07-07/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/01/GISTer-Support-Group-2022-1.png
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260710T150000
DTEND;TZID=America/New_York:20260712T120000
DTSTAMP:20260531T145638
CREATED:20250617T191752Z
LAST-MODIFIED:20260526T154954Z
UID:10000827-1783695600-1783857600@liferaftgroup.org
SUMMARY:Life Fest 2026 - Nashville
DESCRIPTION:Life Fest 2026 will be in Nashville\, Tennessee – Friday\, July 10th through\, Sunday July 12th\, 2026 at the Loews Vanderbilt Hotel\, 2100 West End Avenue\, Nashville\, TN. Hotel\, airline & parking information are on the registration page. \nLife Fest is a unique event where patients and caregivers come together for a weekend to interact with each other and the medical and scientific communities that serve them. Faced with a rare form of cancer\, GIST patients have a great need for information about this disease\, particularly as the science evolves and our understanding reveals a complex set of subtypes of GIST\, each responding differently to available treatments. \nLife Fest workshops provide patients with emerging medical information\, and they come away with a deeper knowledge of the disease\, treatments and side effect management. They find hope in knowing the scientific community is working toward a cure\, and hope is such a vital asset for survival. \nComing together with fellow patients from all walks of life from around the world is a meaningful and powerful experience. In addition to our traditional educational workshops\, Life Fest 2026 will feature scientific presentations highlighting the newest research and the latest treatments. \nCurrently scholarship applications for Life Fest are closed. Please contact Brian Morello at bmorello@liferaftgroup.org for more information. \n\nREGISTERDownload PDF of Agenda (subject to change.) \n\n \n\n \n\n \n\n \n\n \n\nWe have secured a block of hotel rooms for guests attending Life Fest 2026. This special group rate is only available until June 19th\, 2026. \nLoews Nashville Hotel at Vanderbilt Plaza\n2100 West End Ave\,\nNashville\, TN 37203\n1-877-879-7818 \nReserve: www.loewshotels.com/vanderbilt-hotel/group-life-fest-event-2026 \nParking for the conference location (Loews Nashville Hotel at Vanderbilt Plaza):\nSelf-parking for guests at Loews Nashville Hotel at Vanderbilt Plaza is $49 + tax per day\, per vehicle. \nAlternate parking:\nLegacy Parking Company\, LLC – Hayes Street Garage (4 minute walk to Loews Hotel)\n2011 Hayes St\, Nashville\, TN 37203\n1-209-489-7232 \nFor parking details: bit.ly/LF-BookParking \nQuestions about Life Fest 2026?\nPlease reach out to Brian Morello\, Director of Development at bmorello@liferaftgroup.org \nThank You To Our Sponsors:
URL:https://liferaftgroup.org/event/life-fest-2026-nashville/
LOCATION:Loews Vanderbilt Hotel\, 2100 West End Avenue\, Nashville\, TN\, 37203\, United States
CATEGORIES:Education,Events
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260712T073000
DTEND;TZID=America/New_York:20260712T073000
DTSTAMP:20260531T145638
CREATED:20260128T204452Z
LAST-MODIFIED:20260514T180019Z
UID:10001162-1783841400-1783841400@liferaftgroup.org
SUMMARY:Walk for Hope Nashville
DESCRIPTION:REGISTERIf you’re attending Life Fest 2026 Nashville or you live in the Nashville area\, join us Sunday morning for a Walk of Hope with The Life Raft Group on Sunday\, July 12 at 7:00 (registration). Walk starts at 7:30. Walk location will be the Vanderbilt Courtyard across from the Loews Vanderbilt Hotel where the conference is taking place. Join us as we raise  awareness and funds for rare disease research & resources! \nPlease register before June 1st if you can so that we can order enough T-shirts. All shirts can be picked up on the day of the Walk. If you have any questions about the Walk or the t-shirts\, please reach out to Brian: bmorello@liferaftgroup.org
URL:https://liferaftgroup.org/event/walk-for-hope-nashville-2026/
CATEGORIES:Events,Fundraising
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260713
DTEND;VALUE=DATE:20260714
DTSTAMP:20260531T145638
CREATED:20260325T131420Z
LAST-MODIFIED:20260325T131657Z
UID:10001638-1783900800-1783987199@liferaftgroup.org
SUMMARY:GIST Awareness Day
DESCRIPTION:GIST Awareness Day is July 13th.
URL:https://liferaftgroup.org/event/gist-awareness-day/
CATEGORIES:Education,Events
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260713T180000
DTEND;TZID=America/New_York:20260713T180000
DTSTAMP:20260531T145638
CREATED:20240528T163645Z
LAST-MODIFIED:20260505T151122Z
UID:10001258-1783965600-1783965600@liferaftgroup.org
SUMMARY:Virtual Florida Support Group
DESCRIPTION:Florida Support Group\nZoom\, 2nd Monday of the Month – 6pm ET\nOur moderator is a fellow GISTER/LRG Member from Florida diagnosed with GIST in late 2016.\nIf you wish to attend\, please email supportgroups@liferaftgroup.org for the Zoom link for the meeting.
URL:https://liferaftgroup.org/event/virtual-florida-support-group-2-2-2/2026-07-13/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2022/09/florida-support-group.jpg
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260721T150000
DTEND;TZID=America/New_York:20260721T150000
DTSTAMP:20260531T145638
CREATED:20250710T225236Z
LAST-MODIFIED:20260226T154752Z
UID:10000842-1784646000-1784646000@liferaftgroup.org
SUMMARY:SDH Support Group
DESCRIPTION:We are excited to announce the launch of a dedicated Support Group for SDH-GIST patients\, created to offer a welcoming space for connection\, understanding\, and shared experience. Whether you’re newly diagnosed or have been managing SDH for years\, this group is here to support you. Together\, we will share our stories and knowledge\, discuss challenges\, celebrate progress\, and offer encouragement to one another in a safe\, respectful environment. \nWhat to Expect: \n\nRegular virtual meetings\nPeer support and open discussion\nGuest speakers and educational sessions\nOpportunities to ask questions and share your story\n\nThis group will meet the 3rd Tuesdays of the month. Space is limited as we aim to keep the support groups small to allow for sharing & discussion.  If interested in the group\, please contact Becky Owens at bowens@liferaftgroup.org. A registration link will be sent to those who express interest. You are not alone\, and we hope this group becomes a meaningful part of your life.
URL:https://liferaftgroup.org/event/sdh-support-group/2026-07-21/
CATEGORIES:Events,Support Group
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2025/07/SDH-Support-Group-Event-Banner.png
ORGANIZER;CN="Becky Owens":MAILTO:bowens@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260721T180000
DTEND;TZID=America/New_York:20260721T193000
DTSTAMP:20260531T145638
CREATED:20230727T134306Z
LAST-MODIFIED:20260105T170322Z
UID:10000736-1784656800-1784662200@liferaftgroup.org
SUMMARY:Virtual GIST Patient Support Group
DESCRIPTION:The Patient Support Group meets via Zoom on the first and third Tuesday of each month from 6:00 PM – 7:30 PM ET (NYC Time). \nWe will start each group with a “Round Robin” in which anyone who feels like updating the group on how they are doing/feeling can do so. There is no pressure to speak if you prefer to simply listen. Once we complete our updates\, the group will have the opportunity for organic conversation to develop in relation to our emotional experiences around GIST\, and other challenges that we may be experiencing as a community. \nIn order to be able to moderate a flowing discussion\, the group will be capped at 15 people each month. The first 15 people into the Zoom waiting room will participate. Keep in mind that since the group is now open\, you don’t necessarily have to attend each month to participate. \nContact Brian Morello to join: bmorello@liferaftgroup.org
URL:https://liferaftgroup.org/event/virtual-gist-patient-support-group-third/2026-07-21/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/01/GISTer-Support-Group-2022-1.png
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20260727T180000
DTEND;TZID=America/Chicago:20260727T180000
DTSTAMP:20260531T145638
CREATED:20240823T175323Z
LAST-MODIFIED:20260505T151130Z
UID:10000870-1785175200-1785175200@liferaftgroup.org
SUMMARY:Virtual Texas Support Group
DESCRIPTION:Texas Support Group Zoom meeting on the 4th Monday of the month @ 6PM Central Time. Jackie Vanderpol will host this zoom meeting.\nIf you wish to attend\, please email supportgroups@liferaftgroup.org for the Zoom link for the meeting.
URL:https://liferaftgroup.org/event/virtual-texas-support-group/2026-07-27/
CATEGORIES:Events,Support Group
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2024/08/texas-support-group.jpg
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260804T180000
DTEND;TZID=America/New_York:20260804T193000
DTSTAMP:20260531T145638
CREATED:20260105T170043Z
LAST-MODIFIED:20260505T151148Z
UID:10001033-1785866400-1785871800@liferaftgroup.org
SUMMARY:Virtual GIST Patient Support Group
DESCRIPTION:The Patient Support Group meets via Zoom on the first and third Tuesday of each month from 6:00 PM – 7:30 PM ET (NYC Time). \nWe will start each group with a “Round Robin” in which anyone who feels like updating the group on how they are doing/feeling can do so. There is no pressure to speak if you prefer to simply listen. Once we complete our updates\, the group will have the opportunity for organic conversation to develop in relation to our emotional experiences around GIST\, and other challenges that we may be experiencing as a community. \nIn order to be able to moderate a flowing discussion\, the group will be capped at 15 people each month. The first 15 people into the Zoom waiting room will participate. Keep in mind that since the group is now open\, you don’t necessarily have to attend each month to participate. \nIf you wish to attend\, please email supportgroups@liferaftgroup.org for the Zoom link for the meeting.
URL:https://liferaftgroup.org/event/virtual-gist-patient-support-group-2023-first-2/2026-08-04/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/01/GISTer-Support-Group-2022-1.png
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260805T130000
DTEND;TZID=America/New_York:20260805T140000
DTSTAMP:20260531T145638
CREATED:20240528T163612Z
LAST-MODIFIED:20260505T151113Z
UID:10001106-1785934800-1785938400@liferaftgroup.org
SUMMARY:Virtual GIST Caregiver Support Group
DESCRIPTION:Monthly Virtual Support Group for GIST Caregivers\nHeld on the first Wednesday of the month \nLRG hosts a monthly virtual support group for the caregivers. We will share our stories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling during this journey as a caregiver. The group will be a safe space not only to feel supported by your fellow caregivers\, but also a place to share our own coping mechanisms\, concerns\, successes and trials. All information shared will be kept confidential. \nIf you wish to attend\, please email supportgroups@liferaftgroup.org for the Zoom link for the meeting. \nAbout the Group Leader:\nMarlene Nei\, GIST Caregiver\nAs an active member of The Life Raft Group\, Marlene advocates for the needs of the caregiver community because she feels they are an underrepresented group. It is her mission to advocate for the entire GIST community making sure they are equipped with the appropriate resources on their GIST journey.
URL:https://liferaftgroup.org/event/virtual-gist-caregiver-support-group-2023-2/2026-08-05/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2023/05/caregiver-sg-2023.jpg
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
END:VCALENDAR