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DTSTART;TZID=America/New_York:20251203T120000
DTEND;TZID=America/New_York:20251203T120000
DTSTAMP:20260403T141758
CREATED:20251105T160426Z
LAST-MODIFIED:20251105T160426Z
UID:10000922-1764763200-1764763200@liferaftgroup.org
SUMMARY:Updates from CTOS 2025
DESCRIPTION:REGISTERThe CTOS Annual Meeting is the yearly conference of the Connective Tissue Oncology Society\, where global sarcoma experts share new research and clinical insights. The Life Raft Group is partnering with Dr. Pawel Sobczuk of Vall d’Hebron Institute of Oncology to present “GIST Updates from CTOS 2025” on December 3rd at 12 PM ET. During this virtual session\, Dr. Sobczuk will highlight key GIST-relevant findings presented at CTOS\, followed by a Q&A with attendees. \nAbout Our Presenter\n \nDr. Pawel Sobczuk\nVall d’Hebron Institute of Oncology\, Barcelona\, Spain \nPawel Sobczuk is a Polish medical oncologist and clinician-scientist with expertise in sarcoma and skin tumours. He currently works as a postdoctoral fellow at the Sarcoma Translational Research Group at Vall d’Hebron Institute of Oncology in Barcelona\, Spain. He is a Board member of the Polish Society of Clinical Oncology. Dr. Sobczuk is a member of the ESMO Young Oncologists Committee and ESMO Communication Committee.\nDr. Sobczuk completed his medical degree at the Medical University of Warsaw. Following his medical studies\, he undertook a residency in Medical Oncology at Maria-Sklodowska Curie National Research Institute of Oncology in Warsaw\, where he also completed his PhD in medical sciences in 2023. He has completed a scientific fellowship at the Memorial Sloan Kettering Cancer Center in New York.\nHis research primarily focuses on translational studies in sarcoma\, with a primary interest in response to immunotherapy and novel mechanisms of resistance to kinase inhibitors in GIST. Dr Sobczuk is a co-principal investigator of the EFTISARC-NEO clinical trial evaluating a novel immunotherapy combination in the neoadjuvant treatment of patients with soft tissue sarcoma. He has published more than 40 peer-reviewed articles in indexed journals and presented results in numerous international meetings. He serves as a member of the editorial board of renewed journals such as JCO Precision Oncology and Cancer Control. \nThank You to Our Sponsors!
URL:https://liferaftgroup.org/event/updates-from-ctos-2025/
CATEGORIES:Education,Webcast
ORGANIZER;CN="Rebecca Pauley":MAILTO:rpauley@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20251124T180000
DTEND;TZID=America/Chicago:20251124T180000
DTSTAMP:20260403T141758
CREATED:20240823T175323Z
LAST-MODIFIED:20260226T163049Z
UID:10000862-1764007200-1764007200@liferaftgroup.org
SUMMARY:Virtual Texas Support Group
DESCRIPTION:Texas Support Group Zoom meeting on the 4th Monday of the month @ 6PM Central Time. Jackie Vanderpol will host this zoom meeting. Contact Rachel LoCurto at rlocurto@liferaftgroup.org with any questions or to get the Zoom link.
URL:https://liferaftgroup.org/event/virtual-texas-support-group/2025-11-24/
CATEGORIES:Events,Support Group
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2024/08/texas-support-group.jpg
ORGANIZER;CN="Rachel LoCurto":MAILTO:rlocurto@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251120T180000
DTEND;TZID=America/New_York:20251120T180000
DTSTAMP:20260403T141758
CREATED:20251010T143126Z
LAST-MODIFIED:20251010T151211Z
UID:10000921-1763661600-1763661600@liferaftgroup.org
SUMMARY:Texas Hold'Em Poker Event
DESCRIPTION:Join us for an exciting evening of cards\, camaraderie\, and fun at our Texas Hold’em! Whether you’re a seasoned player or just love the thrill of the game\, this is your chance to go all in for a great cause. Exciting prizes will be awarded throughout the night. \nEvent Details: \nCheck-in and buffet at 6:00PM. \n$5\,000 prize pool (for 75+ players).\n$100 buy-in (5\,000 chips).\n500-chip bonus for early registration (48 hr).\nRe-buys and add-ons.\nHot buffet\, soft drinks and coffee included.\nCash bar: beer\, wine\, spirits\, mixed drinks.\nAdmission: cash\, card\, Venmo. \nREGISTER
URL:https://liferaftgroup.org/event/texas-holdem-poker-event/
LOCATION:Elks Lodge #2167\, 33 Ramapo Valley Rd\, Oakland\, NJ\, 07436\, United States
CATEGORIES:Events,Fundraising
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251118T180000
DTEND;TZID=America/New_York:20251118T193000
DTSTAMP:20260403T141758
CREATED:20230727T134306Z
LAST-MODIFIED:20260105T170322Z
UID:10000728-1763488800-1763494200@liferaftgroup.org
SUMMARY:Virtual GIST Patient Support Group
DESCRIPTION:The Patient Support Group meets via Zoom on the first and third Tuesday of each month from 6:00 PM – 7:30 PM ET (NYC Time). \nWe will start each group with a “Round Robin” in which anyone who feels like updating the group on how they are doing/feeling can do so. There is no pressure to speak if you prefer to simply listen. Once we complete our updates\, the group will have the opportunity for organic conversation to develop in relation to our emotional experiences around GIST\, and other challenges that we may be experiencing as a community. \nIn order to be able to moderate a flowing discussion\, the group will be capped at 15 people each month. The first 15 people into the Zoom waiting room will participate. Keep in mind that since the group is now open\, you don’t necessarily have to attend each month to participate. \nContact Brian Morello to join: bmorello@liferaftgroup.org
URL:https://liferaftgroup.org/event/virtual-gist-patient-support-group-third/2025-11-18/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/01/GISTer-Support-Group-2022-1.png
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251118T150000
DTEND;TZID=America/New_York:20251118T150000
DTSTAMP:20260403T141758
CREATED:20250710T225236Z
LAST-MODIFIED:20260226T154752Z
UID:10000834-1763478000-1763478000@liferaftgroup.org
SUMMARY:SDH Support Group
DESCRIPTION:We are excited to announce the launch of a dedicated Support Group for SDH-GIST patients\, created to offer a welcoming space for connection\, understanding\, and shared experience. Whether you’re newly diagnosed or have been managing SDH for years\, this group is here to support you. Together\, we will share our stories and knowledge\, discuss challenges\, celebrate progress\, and offer encouragement to one another in a safe\, respectful environment. \nWhat to Expect: \n\nRegular virtual meetings\nPeer support and open discussion\nGuest speakers and educational sessions\nOpportunities to ask questions and share your story\n\nThis group will meet the 3rd Tuesdays of the month. Space is limited as we aim to keep the support groups small to allow for sharing & discussion.  If interested in the group\, please contact Becky Owens at bowens@liferaftgroup.org. A registration link will be sent to those who express interest. You are not alone\, and we hope this group becomes a meaningful part of your life.
URL:https://liferaftgroup.org/event/sdh-support-group/2025-11-18/
CATEGORIES:Events,Support Group
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2025/07/SDH-Support-Group-Event-Banner.png
ORGANIZER;CN="Becky Owens":MAILTO:bowens@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251113T180000
DTEND;TZID=America/New_York:20251113T180000
DTSTAMP:20260403T141758
CREATED:20250926T124119Z
LAST-MODIFIED:20251027T142841Z
UID:10000920-1763056800-1763056800@liferaftgroup.org
SUMMARY:The WOLF 2025
DESCRIPTION:REGISTERThe Life Raft Group & Dr. Matthew Lurin invite \nyou to the 8th Annual Water of Life Fall Event this November 13th at Keens Steakhouse in New York City.\nThe WOLF begins at 6PM. \nStep into the warmth of autumn at the 8th Annual Water of Life Fall Event (The WOLF)—an unforgettable evening of whisky\, flavor\, and community. Hosted at the legendary Keens Steakhouse in New York City\, this celebration brings together the finest in single malts and rare blends\, paired with the rich\, mouthwatering cuisine that has made Keens an icon for over a century. Imagine the golden glow of whisky in your glass\, the aroma of perfectly seared steak\, and the lively buzz of conversation as friends old and new gather to toast to life. \nBut The WOLF is more than an extraordinary night of luxury delights—it’s a night of purpose. Every sip and every bite fuels a greater mission: raising funds for groundbreaking GIST cancer research. Over the years\, this event has become a cherished tradition where generosity and enjoyment meet\, proving that the right mix of passion\, flavor\, and fellowship can make a real difference. Join us for a night that’s as meaningful as it is delicious\, and be part of keeping hope alive for patients and families worldwide. \nLet’s Drink Whisky to Fight Cancer! Slàinte Mhath!\nMatthew J. Lurin\, MD MBA FACEP CPE\nFounder\, the Water of Life Charity Event (The WOLF)\nMenu for the evening:
URL:https://liferaftgroup.org/event/the-wolf-2025/
LOCATION:Keens Steakhouse\, 72 West 36th St\, New York\, 10018\, United States
CATEGORIES:Events,Fundraising
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251110T180000
DTEND;TZID=America/New_York:20251110T180000
DTSTAMP:20260403T141758
CREATED:20240528T163645Z
LAST-MODIFIED:20260226T165312Z
UID:10001251-1762797600-1762797600@liferaftgroup.org
SUMMARY:Virtual Florida Support Group
DESCRIPTION:Florida Support Group\nZoom\, 2nd Monday of the Month – 6pm ET\nOur moderator is a fellow GISTER/LRG Member from Florida diagnosed with GIST in late 2016.\nIf you wish to attend\, please email Rachel LoCurto: rlocurto@liferaftgroup.org for the Zoom link for the meeting.
URL:https://liferaftgroup.org/event/virtual-florida-support-group-2-2-2/2025-11-10/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2022/09/florida-support-group.jpg
ORGANIZER;CN="Rachel LoCurto":MAILTO:rlocurto@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251110T140000
DTEND;TZID=America/New_York:20251110T140000
DTSTAMP:20260403T141758
CREATED:20250721T171140Z
LAST-MODIFIED:20251015T155959Z
UID:10000846-1762783200-1762783200@liferaftgroup.org
SUMMARY:ctDNA and the INSIGHT Study
DESCRIPTION:REGISTERThe Life Raft Group is partnering with Deciphera Pharmaceuticals and Dr. Jonathan Trent of the Sylvester Comprehensive Cancer Center to present “ctDNA and the INSIGHT Study” on November 10th at 2PM ET. During this virtual presentation\, Dr. Trent will explain how ctDNA works as a non-invasive method to monitor mutations and disease progression\, and how it may help personalize treatment strategies for GIST patients. \nDenisse Evans\, Sr. Director of Data Management & Research for the LRG\, will present the results and analysis of the LRG’s recent patient survey: Understanding Mutational and ctDNA Testing for patients in the U.S. She will highlight how patients currently access and understand testing\, key barriers to uptake\, and what these findings reveal about the real-world experiences of the GIST community. Denisse will also discuss how these insights can help shape future education\, advocacy\, and research efforts to ensure patients have the tools they need to make informed decisions about their care. \nA question-and-answer session will follow the presentation. \nThese webinars are for informational purposes only and should not replace professional medical advice. Always consult your healthcare provider before making any treatment or lifestyle changes. If you have questions or comments\, please reach out to rpauley@liferaftgroup.org. \nAbout Our Presenters\n \nDr. Jonathan Trent\nSylvester Comprehensive Cancer Center \nJonathan Trent\, M.D.\, Ph.D. is a board‑certified oncologist\, professor of medicine\, and Associate Director for Clinical Research at the Sylvester Comprehensive Cancer Center\, University of Miami Health System. He serves as the Director of the Bone and Soft-Tissue Sarcoma Group and leads the Sarcoma Medical Oncology program\, with a focus on gastrointestinal stromal tumor (GIST)\, chondrosarcoma\, synovial sarcoma\, and other rare sarcomas. \nDenisse Evans\, MS\nSenior Director\, Data Mgmt. & Research \nMs. Evans has a wealth of experience in clinical evaluation projects including development of protocols\, case report forms\, informed consent\, surveys\, tissue repositories\, and study initiation She is proficient in data management\, preparing research for publication\, drug development\, clinical trial protocols\, onco-pathological/genetical dissemination\, and formulating research premises. As the Senior Director of Data Management & Research\, Denisse is the principal investigator for study protocol design and strategy of Patient Reported Outcomes (PRO). She has expertise in the analysis\, reporting\, and dissemination of PRO data and present scientific work. \nShe leads a dedicated staff in both patient support and in the identification of data trends that may lead to actionable information that will help patients coping with Gastrointestinal Stromal Tumor. In addition\, she takes the lead in collaborative research initiatives\, including maintaining relationships with potential partners\, contributing ongoing data\, and supporting hypothesis generation with the goal of increasing patient survival and advancing GIST research. \nDenisse holds a Bachelor of Science degree in Biology from Rowan University\, and a Master of Science Degree in Biomedical Science from Fairleigh Dickinson University. \nThank You to Our Sponsor!
URL:https://liferaftgroup.org/event/ctdna-and-the-insight-study/
CATEGORIES:Education,Webcast
ORGANIZER;CN="Rebecca Pauley":MAILTO:rpauley@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251105T130000
DTEND;TZID=America/New_York:20251105T140000
DTSTAMP:20260403T141759
CREATED:20240528T163612Z
LAST-MODIFIED:20260226T163718Z
UID:10001097-1762347600-1762351200@liferaftgroup.org
SUMMARY:Virtual GIST Caregiver Support Group
DESCRIPTION:Monthly Virtual Support Group for GIST Caregivers\nHeld on the first Wednesday of the month \nLRG hosts a monthly virtual support group for the caregivers. We will share our stories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling during this journey as a caregiver. The group will be a safe space not only to feel supported by your fellow caregivers\, but also a place to share our own coping mechanisms\, concerns\, successes and trials. All information shared will be kept confidential. \nContact Rachel LoCurto at rlocurto@liferaftgroup.org for more information and to join this meeting. \nAbout the Group Leader:\nMarlene Nei\, GIST Caregiver\nAs an active member of The Life Raft Group\, Marlene advocates for the needs of the caregiver community because she feels they are an underrepresented group. It is her mission to advocate for the entire GIST community making sure they are equipped with the appropriate resources on their GIST journey.
URL:https://liferaftgroup.org/event/virtual-gist-caregiver-support-group-2023-2/2025-11-05/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2023/05/caregiver-sg-2023.jpg
ORGANIZER;CN="Rachel LoCurto":MAILTO:rlocurto@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20251027T180000
DTEND;TZID=America/Chicago:20251027T180000
DTSTAMP:20260403T141759
CREATED:20240823T175323Z
LAST-MODIFIED:20260226T163049Z
UID:10000861-1761588000-1761588000@liferaftgroup.org
SUMMARY:Virtual Texas Support Group
DESCRIPTION:Texas Support Group Zoom meeting on the 4th Monday of the month @ 6PM Central Time. Jackie Vanderpol will host this zoom meeting. Contact Rachel LoCurto at rlocurto@liferaftgroup.org with any questions or to get the Zoom link.
URL:https://liferaftgroup.org/event/virtual-texas-support-group/2025-10-27/
CATEGORIES:Events,Support Group
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2024/08/texas-support-group.jpg
ORGANIZER;CN="Rachel LoCurto":MAILTO:rlocurto@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251021T180000
DTEND;TZID=America/New_York:20251021T193000
DTSTAMP:20260403T141759
CREATED:20230727T134306Z
LAST-MODIFIED:20260105T170322Z
UID:10000727-1761069600-1761075000@liferaftgroup.org
SUMMARY:Virtual GIST Patient Support Group
DESCRIPTION:The Patient Support Group meets via Zoom on the first and third Tuesday of each month from 6:00 PM – 7:30 PM ET (NYC Time). \nWe will start each group with a “Round Robin” in which anyone who feels like updating the group on how they are doing/feeling can do so. There is no pressure to speak if you prefer to simply listen. Once we complete our updates\, the group will have the opportunity for organic conversation to develop in relation to our emotional experiences around GIST\, and other challenges that we may be experiencing as a community. \nIn order to be able to moderate a flowing discussion\, the group will be capped at 15 people each month. The first 15 people into the Zoom waiting room will participate. Keep in mind that since the group is now open\, you don’t necessarily have to attend each month to participate. \nContact Brian Morello to join: bmorello@liferaftgroup.org
URL:https://liferaftgroup.org/event/virtual-gist-patient-support-group-third/2025-10-21/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/01/GISTer-Support-Group-2022-1.png
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251021T150000
DTEND;TZID=America/New_York:20251021T150000
DTSTAMP:20260403T141759
CREATED:20250710T225236Z
LAST-MODIFIED:20260226T154752Z
UID:10000833-1761058800-1761058800@liferaftgroup.org
SUMMARY:SDH Support Group
DESCRIPTION:We are excited to announce the launch of a dedicated Support Group for SDH-GIST patients\, created to offer a welcoming space for connection\, understanding\, and shared experience. Whether you’re newly diagnosed or have been managing SDH for years\, this group is here to support you. Together\, we will share our stories and knowledge\, discuss challenges\, celebrate progress\, and offer encouragement to one another in a safe\, respectful environment. \nWhat to Expect: \n\nRegular virtual meetings\nPeer support and open discussion\nGuest speakers and educational sessions\nOpportunities to ask questions and share your story\n\nThis group will meet the 3rd Tuesdays of the month. Space is limited as we aim to keep the support groups small to allow for sharing & discussion.  If interested in the group\, please contact Becky Owens at bowens@liferaftgroup.org. A registration link will be sent to those who express interest. You are not alone\, and we hope this group becomes a meaningful part of your life.
URL:https://liferaftgroup.org/event/sdh-support-group/2025-10-21/
CATEGORIES:Events,Support Group
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2025/07/SDH-Support-Group-Event-Banner.png
ORGANIZER;CN="Becky Owens":MAILTO:bowens@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251013T180000
DTEND;TZID=America/New_York:20251013T180000
DTSTAMP:20260403T141759
CREATED:20240528T163645Z
LAST-MODIFIED:20260226T165312Z
UID:10001250-1760378400-1760378400@liferaftgroup.org
SUMMARY:Virtual Florida Support Group
DESCRIPTION:Florida Support Group\nZoom\, 2nd Monday of the Month – 6pm ET\nOur moderator is a fellow GISTER/LRG Member from Florida diagnosed with GIST in late 2016.\nIf you wish to attend\, please email Rachel LoCurto: rlocurto@liferaftgroup.org for the Zoom link for the meeting.
URL:https://liferaftgroup.org/event/virtual-florida-support-group-2-2-2/2025-10-13/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2022/09/florida-support-group.jpg
ORGANIZER;CN="Rachel LoCurto":MAILTO:rlocurto@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251004T100000
DTEND;TZID=America/New_York:20251004T160000
DTSTAMP:20260403T141759
CREATED:20250812T163703Z
LAST-MODIFIED:20250812T163703Z
UID:10000919-1759572000-1759593600@liferaftgroup.org
SUMMARY:Montreal GIST Day of Learning/Annual General Meeting
DESCRIPTION:GIST Sarcoma LRG Canada is hosting a GIST Day of Learning/GDOL/Annual Meeting on October 4 in Montreal for patients and caregivers. Refreshments and lunch provided.\nMORE Info/register
URL:https://liferaftgroup.org/event/montreal-gist-day-of-learning-annual-general-meeting/
CATEGORIES:Education,Events
ORGANIZER;CN="GIST Sarcoma Life Raft Group Canada":MAILTO:yvonne.nunnaro@liferaftgroup.ca
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251001T130000
DTEND;TZID=America/New_York:20251001T140000
DTSTAMP:20260403T141759
CREATED:20240528T163612Z
LAST-MODIFIED:20260226T163718Z
UID:10001096-1759323600-1759327200@liferaftgroup.org
SUMMARY:Virtual GIST Caregiver Support Group
DESCRIPTION:Monthly Virtual Support Group for GIST Caregivers\nHeld on the first Wednesday of the month \nLRG hosts a monthly virtual support group for the caregivers. We will share our stories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling during this journey as a caregiver. The group will be a safe space not only to feel supported by your fellow caregivers\, but also a place to share our own coping mechanisms\, concerns\, successes and trials. All information shared will be kept confidential. \nContact Rachel LoCurto at rlocurto@liferaftgroup.org for more information and to join this meeting. \nAbout the Group Leader:\nMarlene Nei\, GIST Caregiver\nAs an active member of The Life Raft Group\, Marlene advocates for the needs of the caregiver community because she feels they are an underrepresented group. It is her mission to advocate for the entire GIST community making sure they are equipped with the appropriate resources on their GIST journey.
URL:https://liferaftgroup.org/event/virtual-gist-caregiver-support-group-2023-2/2025-10-01/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2023/05/caregiver-sg-2023.jpg
ORGANIZER;CN="Rachel LoCurto":MAILTO:rlocurto@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250927T080000
DTEND;TZID=America/New_York:20250927T080000
DTSTAMP:20260403T141759
CREATED:20250310T203711Z
LAST-MODIFIED:20250925T145704Z
UID:10000814-1758960000-1758960000@liferaftgroup.org
SUMMARY:GDOL Boston
DESCRIPTION:GDOL Boston will take place in-person on September 27th at the Dana-Farber Cancer Institute. \nREGISTERClick for PDF Agenda\n \nWhat is a GDOL? \nA GDOL is a GIST Day of Learning. This is a free one day event to help patients and caregivers learn more about this rare cancer\, find support\, and enhance their knowledge base to help them navigate their cancer journey. \nThe Life Raft Group is committed to enhancing the survival and quality of life for people living with Gastrointestinal Stromal Tumor (GIST)\, and other rare diseases\, through patient-powered research\, education and empowerment\, and global advocacy efforts. Our vision is to empower a future fueled by data\, guiding our journey toward cures for rare diseases. \nIf you have any questions\, please contact Brian Morello at bmorello@liferaftgroup.org
URL:https://liferaftgroup.org/event/gdol-boston/
CATEGORIES:Education,Events
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20250922T180000
DTEND;TZID=America/Chicago:20250922T180000
DTSTAMP:20260403T141759
CREATED:20240823T175323Z
LAST-MODIFIED:20260226T163049Z
UID:10000860-1758564000-1758564000@liferaftgroup.org
SUMMARY:Virtual Texas Support Group
DESCRIPTION:Texas Support Group Zoom meeting on the 4th Monday of the month @ 6PM Central Time. Jackie Vanderpol will host this zoom meeting. Contact Rachel LoCurto at rlocurto@liferaftgroup.org with any questions or to get the Zoom link.
URL:https://liferaftgroup.org/event/virtual-texas-support-group/2025-09-22/
CATEGORIES:Events,Support Group
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2024/08/texas-support-group.jpg
ORGANIZER;CN="Rachel LoCurto":MAILTO:rlocurto@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250916T180000
DTEND;TZID=America/New_York:20250916T193000
DTSTAMP:20260403T141759
CREATED:20230727T134306Z
LAST-MODIFIED:20260105T170322Z
UID:10000726-1758045600-1758051000@liferaftgroup.org
SUMMARY:Virtual GIST Patient Support Group
DESCRIPTION:The Patient Support Group meets via Zoom on the first and third Tuesday of each month from 6:00 PM – 7:30 PM ET (NYC Time). \nWe will start each group with a “Round Robin” in which anyone who feels like updating the group on how they are doing/feeling can do so. There is no pressure to speak if you prefer to simply listen. Once we complete our updates\, the group will have the opportunity for organic conversation to develop in relation to our emotional experiences around GIST\, and other challenges that we may be experiencing as a community. \nIn order to be able to moderate a flowing discussion\, the group will be capped at 15 people each month. The first 15 people into the Zoom waiting room will participate. Keep in mind that since the group is now open\, you don’t necessarily have to attend each month to participate. \nContact Brian Morello to join: bmorello@liferaftgroup.org
URL:https://liferaftgroup.org/event/virtual-gist-patient-support-group-third/2025-09-16/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/01/GISTer-Support-Group-2022-1.png
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250916T150000
DTEND;TZID=America/New_York:20250916T150000
DTSTAMP:20260403T141759
CREATED:20250710T225236Z
LAST-MODIFIED:20260226T154752Z
UID:10000832-1758034800-1758034800@liferaftgroup.org
SUMMARY:SDH Support Group
DESCRIPTION:We are excited to announce the launch of a dedicated Support Group for SDH-GIST patients\, created to offer a welcoming space for connection\, understanding\, and shared experience. Whether you’re newly diagnosed or have been managing SDH for years\, this group is here to support you. Together\, we will share our stories and knowledge\, discuss challenges\, celebrate progress\, and offer encouragement to one another in a safe\, respectful environment. \nWhat to Expect: \n\nRegular virtual meetings\nPeer support and open discussion\nGuest speakers and educational sessions\nOpportunities to ask questions and share your story\n\nThis group will meet the 3rd Tuesdays of the month. Space is limited as we aim to keep the support groups small to allow for sharing & discussion.  If interested in the group\, please contact Becky Owens at bowens@liferaftgroup.org. A registration link will be sent to those who express interest. You are not alone\, and we hope this group becomes a meaningful part of your life.
URL:https://liferaftgroup.org/event/sdh-support-group/2025-09-16/
CATEGORIES:Events,Support Group
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2025/07/SDH-Support-Group-Event-Banner.png
ORGANIZER;CN="Becky Owens":MAILTO:bowens@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250913T080000
DTEND;TZID=America/New_York:20250913T080000
DTSTAMP:20260403T141759
CREATED:20250310T193818Z
LAST-MODIFIED:20250905T005807Z
UID:10000813-1757750400-1757750400@liferaftgroup.org
SUMMARY:GDOL Los Angeles
DESCRIPTION:GDOL Los Angeles will take place in-person on September 13th at UCLA Health. \nREGISTERClick for PDF Agenda\n\n \nWhat is a GDOL? \nA GDOL is a GIST Day of Learning. This is a free one day event to help patients and caregivers learn more about this rare cancer\, find support\, and enhance their knowledge base to help them navigate their cancer journey. \nThe Life Raft Group is committed to enhancing the survival and quality of life for people living with Gastrointestinal Stromal Tumor (GIST)\, and other rare diseases\, through patient-powered research\, education and empowerment\, and global advocacy efforts. Our vision is to empower a future fueled by data\, guiding our journey toward cures for rare diseases. \nIf you have any questions\, please contact Brian Morello at bmorello@liferaftgroup.org
URL:https://liferaftgroup.org/event/gdol-los-angeles/
CATEGORIES:Education,Events
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250908T180000
DTEND;TZID=America/New_York:20250908T180000
DTSTAMP:20260403T141759
CREATED:20240528T163645Z
LAST-MODIFIED:20260226T165312Z
UID:10001249-1757354400-1757354400@liferaftgroup.org
SUMMARY:Virtual Florida Support Group
DESCRIPTION:Florida Support Group\nZoom\, 2nd Monday of the Month – 6pm ET\nOur moderator is a fellow GISTER/LRG Member from Florida diagnosed with GIST in late 2016.\nIf you wish to attend\, please email Rachel LoCurto: rlocurto@liferaftgroup.org for the Zoom link for the meeting.
URL:https://liferaftgroup.org/event/virtual-florida-support-group-2-2-2/2025-09-08/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2022/09/florida-support-group.jpg
ORGANIZER;CN="Rachel LoCurto":MAILTO:rlocurto@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250903T130000
DTEND;TZID=America/New_York:20250903T140000
DTSTAMP:20260403T141759
CREATED:20240528T163612Z
LAST-MODIFIED:20260226T163718Z
UID:10001095-1756904400-1756908000@liferaftgroup.org
SUMMARY:Virtual GIST Caregiver Support Group
DESCRIPTION:Monthly Virtual Support Group for GIST Caregivers\nHeld on the first Wednesday of the month \nLRG hosts a monthly virtual support group for the caregivers. We will share our stories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling during this journey as a caregiver. The group will be a safe space not only to feel supported by your fellow caregivers\, but also a place to share our own coping mechanisms\, concerns\, successes and trials. All information shared will be kept confidential. \nContact Rachel LoCurto at rlocurto@liferaftgroup.org for more information and to join this meeting. \nAbout the Group Leader:\nMarlene Nei\, GIST Caregiver\nAs an active member of The Life Raft Group\, Marlene advocates for the needs of the caregiver community because she feels they are an underrepresented group. It is her mission to advocate for the entire GIST community making sure they are equipped with the appropriate resources on their GIST journey.
URL:https://liferaftgroup.org/event/virtual-gist-caregiver-support-group-2023-2/2025-09-03/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2023/05/caregiver-sg-2023.jpg
ORGANIZER;CN="Rachel LoCurto":MAILTO:rlocurto@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20250825T180000
DTEND;TZID=America/Chicago:20250825T180000
DTSTAMP:20260403T141759
CREATED:20240823T175323Z
LAST-MODIFIED:20260226T163049Z
UID:10000859-1756144800-1756144800@liferaftgroup.org
SUMMARY:Virtual Texas Support Group
DESCRIPTION:Texas Support Group Zoom meeting on the 4th Monday of the month @ 6PM Central Time. Jackie Vanderpol will host this zoom meeting. Contact Rachel LoCurto at rlocurto@liferaftgroup.org with any questions or to get the Zoom link.
URL:https://liferaftgroup.org/event/virtual-texas-support-group/2025-08-25/
CATEGORIES:Events,Support Group
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2024/08/texas-support-group.jpg
ORGANIZER;CN="Rachel LoCurto":MAILTO:rlocurto@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250819T180000
DTEND;TZID=America/New_York:20250819T193000
DTSTAMP:20260403T141759
CREATED:20230727T134306Z
LAST-MODIFIED:20260105T170322Z
UID:10000725-1755626400-1755631800@liferaftgroup.org
SUMMARY:Virtual GIST Patient Support Group
DESCRIPTION:The Patient Support Group meets via Zoom on the first and third Tuesday of each month from 6:00 PM – 7:30 PM ET (NYC Time). \nWe will start each group with a “Round Robin” in which anyone who feels like updating the group on how they are doing/feeling can do so. There is no pressure to speak if you prefer to simply listen. Once we complete our updates\, the group will have the opportunity for organic conversation to develop in relation to our emotional experiences around GIST\, and other challenges that we may be experiencing as a community. \nIn order to be able to moderate a flowing discussion\, the group will be capped at 15 people each month. The first 15 people into the Zoom waiting room will participate. Keep in mind that since the group is now open\, you don’t necessarily have to attend each month to participate. \nContact Brian Morello to join: bmorello@liferaftgroup.org
URL:https://liferaftgroup.org/event/virtual-gist-patient-support-group-third/2025-08-19/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/01/GISTer-Support-Group-2022-1.png
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250819T150000
DTEND;TZID=America/New_York:20250819T150000
DTSTAMP:20260403T141759
CREATED:20250710T225236Z
LAST-MODIFIED:20260226T154752Z
UID:10000831-1755615600-1755615600@liferaftgroup.org
SUMMARY:SDH Support Group
DESCRIPTION:We are excited to announce the launch of a dedicated Support Group for SDH-GIST patients\, created to offer a welcoming space for connection\, understanding\, and shared experience. Whether you’re newly diagnosed or have been managing SDH for years\, this group is here to support you. Together\, we will share our stories and knowledge\, discuss challenges\, celebrate progress\, and offer encouragement to one another in a safe\, respectful environment. \nWhat to Expect: \n\nRegular virtual meetings\nPeer support and open discussion\nGuest speakers and educational sessions\nOpportunities to ask questions and share your story\n\nThis group will meet the 3rd Tuesdays of the month. Space is limited as we aim to keep the support groups small to allow for sharing & discussion.  If interested in the group\, please contact Becky Owens at bowens@liferaftgroup.org. A registration link will be sent to those who express interest. You are not alone\, and we hope this group becomes a meaningful part of your life.
URL:https://liferaftgroup.org/event/sdh-support-group/2025-08-19/
CATEGORIES:Events,Support Group
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2025/07/SDH-Support-Group-Event-Banner.png
ORGANIZER;CN="Becky Owens":MAILTO:bowens@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250812T120000
DTEND;TZID=America/New_York:20250812T120000
DTSTAMP:20260403T141759
CREATED:20250707T163827Z
LAST-MODIFIED:20250707T193754Z
UID:10000828-1755000000-1755000000@liferaftgroup.org
SUMMARY:Making Cents of Caregiving
DESCRIPTION:The Life Raft Group is partnering with Al Berg of the AARP NJ Speakers Bureau to present “Making Cents of Caregiving” on August 12\, at 12PM ET. In this informative and educational session\, you will be introduced to essential information caregivers need to more easily manage the financial complexities of caregiving. Over the course of the presentation\, you will learn how to incorporate financial tips and resources into your caregiving. By the end of the session\, we hope you have the confidence to make your own financial plans for your loved one’s care and well-being. A question and answer session will follow the presentation. \nThese webinars are for informational purposes only and should not replace professional medical advice. Always consult your healthcare provider before making any treatment or lifestyle changes. If you have questions or comments\, please reach out to rpauley@liferaftgroup.org. \nREGISTERAbout Our Presenters\n \nAl Berg\nAARP NJ Speakers Bureau \nAl Berg is a volunteer with the AARP NJ Speakers Bureau\, giving presentations on a variety of topics of interest to older Americans.  During the day\, Al heads up cybersecurity for a major entertainment company. When he is not fighting off hackers\, he is an EMT with the Weehawken Volunteer First Aid Squad and lives in Weehawken with his wife and a very spoiled cat. \nThank You to Our Sponsors!\n 
URL:https://liferaftgroup.org/event/making-cents-of-caregiving/
CATEGORIES:Education,Webcast
ORGANIZER;CN="Rebecca Pauley":MAILTO:rpauley@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250811T180000
DTEND;TZID=America/New_York:20250811T180000
DTSTAMP:20260403T141759
CREATED:20240528T163645Z
LAST-MODIFIED:20260226T165312Z
UID:10000666-1754935200-1754935200@liferaftgroup.org
SUMMARY:Virtual Florida Support Group
DESCRIPTION:Florida Support Group\nZoom\, 2nd Monday of the Month – 6pm ET\nOur moderator is a fellow GISTER/LRG Member from Florida diagnosed with GIST in late 2016.\nIf you wish to attend\, please email Rachel LoCurto: rlocurto@liferaftgroup.org for the Zoom link for the meeting.
URL:https://liferaftgroup.org/event/virtual-florida-support-group-2-2-2/2025-08-11/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2022/09/florida-support-group.jpg
ORGANIZER;CN="Rachel LoCurto":MAILTO:rlocurto@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250806T130000
DTEND;TZID=America/New_York:20250806T140000
DTSTAMP:20260403T141759
CREATED:20240528T163612Z
LAST-MODIFIED:20260226T163718Z
UID:10001094-1754485200-1754488800@liferaftgroup.org
SUMMARY:Virtual GIST Caregiver Support Group
DESCRIPTION:Monthly Virtual Support Group for GIST Caregivers\nHeld on the first Wednesday of the month \nLRG hosts a monthly virtual support group for the caregivers. We will share our stories\, if you are comfortable\, and speak freely about the new fears and anxieties we might be feeling during this journey as a caregiver. The group will be a safe space not only to feel supported by your fellow caregivers\, but also a place to share our own coping mechanisms\, concerns\, successes and trials. All information shared will be kept confidential. \nContact Rachel LoCurto at rlocurto@liferaftgroup.org for more information and to join this meeting. \nAbout the Group Leader:\nMarlene Nei\, GIST Caregiver\nAs an active member of The Life Raft Group\, Marlene advocates for the needs of the caregiver community because she feels they are an underrepresented group. It is her mission to advocate for the entire GIST community making sure they are equipped with the appropriate resources on their GIST journey.
URL:https://liferaftgroup.org/event/virtual-gist-caregiver-support-group-2023-2/2025-08-06/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2023/05/caregiver-sg-2023.jpg
ORGANIZER;CN="Rachel LoCurto":MAILTO:rlocurto@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20250728T180000
DTEND;TZID=America/Chicago:20250728T180000
DTSTAMP:20260403T141759
CREATED:20240823T175323Z
LAST-MODIFIED:20260226T163049Z
UID:10000858-1753725600-1753725600@liferaftgroup.org
SUMMARY:Virtual Texas Support Group
DESCRIPTION:Texas Support Group Zoom meeting on the 4th Monday of the month @ 6PM Central Time. Jackie Vanderpol will host this zoom meeting. Contact Rachel LoCurto at rlocurto@liferaftgroup.org with any questions or to get the Zoom link.
URL:https://liferaftgroup.org/event/virtual-texas-support-group/2025-07-28/
CATEGORIES:Events,Support Group
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2024/08/texas-support-group.jpg
ORGANIZER;CN="Rachel LoCurto":MAILTO:rlocurto@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250715T180000
DTEND;TZID=America/New_York:20250715T193000
DTSTAMP:20260403T141759
CREATED:20230727T134306Z
LAST-MODIFIED:20260105T170322Z
UID:10000724-1752602400-1752607800@liferaftgroup.org
SUMMARY:Virtual GIST Patient Support Group
DESCRIPTION:The Patient Support Group meets via Zoom on the first and third Tuesday of each month from 6:00 PM – 7:30 PM ET (NYC Time). \nWe will start each group with a “Round Robin” in which anyone who feels like updating the group on how they are doing/feeling can do so. There is no pressure to speak if you prefer to simply listen. Once we complete our updates\, the group will have the opportunity for organic conversation to develop in relation to our emotional experiences around GIST\, and other challenges that we may be experiencing as a community. \nIn order to be able to moderate a flowing discussion\, the group will be capped at 15 people each month. The first 15 people into the Zoom waiting room will participate. Keep in mind that since the group is now open\, you don’t necessarily have to attend each month to participate. \nContact Brian Morello to join: bmorello@liferaftgroup.org
URL:https://liferaftgroup.org/event/virtual-gist-patient-support-group-third/2025-07-15/
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2021/01/GISTer-Support-Group-2022-1.png
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
END:VCALENDAR