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DTSTART;TZID=America/Los_Angeles:20200215T090000
DTEND;TZID=America/Los_Angeles:20200215T170000
DTSTAMP:20260620T005516
CREATED:20191101T154951Z
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UID:10000047-1581757200-1581786000@liferaftgroup.org
SUMMARY:GDOL Seattle 2020
DESCRIPTION:Join us at GDOL Seattle\, Saturday\, February 15\, 2020 hosted in partnership with the Seattle Cancer Care Alliance at the Orin Smith Auditorium (Building C) on the University of Washington campus – 850 Republican St.\, Seattle\, Washington. GDOL Seattle is an event for patients & caregivers to learn more about GIST\, find support\, & enhance knowledge to help navigate their cancer journey. Meet with other patients and caregivers and experts\, clinicians\, and researchers in the study and treatment of GIST. \nRegisterVIEW AGENDAWhat’s a GDOL?  A GDOL is a GIST Day of Learning\, a free one-day event to help you\, as patients and caregivers\, learn more about GIST\, find support\, and enhance your knowledge base to help you navigate your cancer journey. At a GDOL\, you will learn more about your disease from expert clinicians\, researchers\, and advocates and connect with other patients\, caregivers\, and family members who are also on this rare journey. You are not alone. \nThe LRG’s mission is simple: cure GIST and help those living with it until then. To do this\, we focus on three key areas: research\, patient support & education\, and advocacy. \nSee what a GDOL can offer you – visit this link to see presentations\, photos\, and posts about past GDOLs: \n\nView Past GDOLs  \n\nFor questions or more information about GDOL\, Diana Nieves\, Senior Director\, Outreach & Engagement\, DNieves@liferaftgroup.org
URL:https://liferaftgroup.org/event/gdol-seattle-2020/
LOCATION:Orin Smith Auditorium – Building C\, University of Washington\, 850 Republican Street\, Seattle\, 98109\, United States
CATEGORIES:Education,Events
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2019/11/Seattle-GDOL.png
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20191112T113000
DTEND;TZID=America/New_York:20191112T133000
DTSTAMP:20260620T005516
CREATED:20191101T164316Z
LAST-MODIFIED:20191101T164316Z
UID:10000048-1573558200-1573565400@liferaftgroup.org
SUMMARY:North Carolina GISTers Lunch
DESCRIPTION:North Carolina GISTers Lunch\nJoin us at Firebirds in the Northlake Mall\, Charlotte\, NC\,\non Tuesday\, November\, 12 at 11:30 am.\nPlease RSVP to Carolyn DeWalt @ ckdew77@aol.com\nor call 704-860-8201 for more information. \nRSVP
URL:https://liferaftgroup.org/event/north-carolina-gisters-lunch/
LOCATION:Firebirds\, 6801 Northlake Mall Dr\, Charlotte\, NJ\, 28216\, United States
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2019/11/nc-gisters-lunch.jpg
ORGANIZER;CN="Carolyn DeWalt":MAILTO:ckdew77@aol.com
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20190713
DTEND;VALUE=DATE:20190714
DTSTAMP:20260620T005516
CREATED:20190702T201328Z
LAST-MODIFIED:20190814T174815Z
UID:10000032-1562976000-1563008400@liferaftgroup.org
SUMMARY:HAGÁMOSLO POSIBLE
DESCRIPTION:A GIST Awareness Day event presented by Fundación GIST Chile on July 13\, 2019\nDía internacional de la concientización del GIST\nColaboremos para lograr tener diagnósticos oportunos y tratamientos adecuados para los pacientes con GIST\, y para tener una Ley Nacional del Cáncer con financiamiento. \n \ndownload flyer\nHagámoslo posible – GIST Chile \nGIST and other gastrointestinal cancer patients and caregivers will meet to raise awareness of the needs of cancer patients in Chile to have a National Cancer Law with a budget assigned by the government. \nAgenda:\nWelcome new patients \nHow can we help ourselves to have a good quality of life? \nUpdate on news regarding the status of the National Cancer Law \nCoffee Break \nShare individual experiences \nGroup and individual GAD 2019 photos \nLocation:\nAv. Cristobal Colon 4198\, Las Condes\, Santiago\, Chile \nFor more information contact: pfernandez@gistchile.cl
URL:https://liferaftgroup.org/event/hagamoslo-posible/
LOCATION:NJ
CATEGORIES:Events
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2019/07/hagamosla-posible-feature1.png
ORGANIZER;CN="Fundaci%C3%B3n GIST Chile":MAILTO:pfernandez@gistchile.cl
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20190508T130000
DTEND;TZID=America/New_York:20190508T130000
DTSTAMP:20260620T005516
CREATED:20190423T160916Z
LAST-MODIFIED:20190423T161403Z
UID:10000004-1557320400-1557320400@liferaftgroup.org
SUMMARY:Ask the Experts LIVE
DESCRIPTION:Want to know more about GIST?\nDo you have some burning questions to ask GIST experts?\n\nMembers of the LRG GIST Global Expert Surveillance Team\nwill be at the LRG offices on May 8th at 1:00 pm ET for an\nAsk the Experts LIVE event to be broadcast on YouTube Live.\n\n\n\n \nDr. Gary Schwartz\nColumbia University Irving Medical Center \n\nDr. Jason Sicklick\nMoores Cancer Center\, University of California\, San Diego\n\n\nDr. Jonathan Trent\nSylvester Comprehensive Cancer Center \n\nRegister\n\n\n\n\nWe welcome you to submit your questions ahead of time.\nQuestions can be emailed to Sara Rothschild at srothschild@liferaftgroup.org.\nViewers can also ask questions live during the event.\n\n\nDisclaimer:\nWe cannot provide individual medical advice during this live event. Information provided is not intended as a substitute for your physician’s guidance and care.
URL:https://liferaftgroup.org/event/ask-the-experts-live/
LOCATION:You Tube Live
CATEGORIES:Education,Events
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2019/04/ask-the-experts-live-eventpg.jpg
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20190503T130000
DTEND;TZID=America/New_York:20190503T140000
DTSTAMP:20260620T005516
CREATED:20190418T143423Z
LAST-MODIFIED:20190507T155606Z
UID:10000019-1556888400-1556892000@liferaftgroup.org
SUMMARY:LRG Webcast: Genetic Testing and SDHx Mutations
DESCRIPTION:Genetic Testing and SDHx Mutations:\nWhat do they have to do with PGL/GIST/Pheos?\nLISTEN TO WEBCAST\n\nThis webcast will highlight how SDHx mutations impact risks for paraganglioma\, pheochromocytomas\, and GIST. We’ll discuss why genetic testing is helpful for any diagnosis of GIST\, paraganglioma or pheochromocytoma\, and what the SDHx genes have to do with tumor risk. We’ll discuss what types of tumors are associated with mutations in the SDHx genes\, and how different SDHx genes (SDHA\, SDHB\, SDHC\, SDHD\, SDHAF2) have different tumor and location risks. This webcast will highlight recommendations for screening and current research initiatives for SDHx and paragangliomas.\n\nAbout the Presenter:\nSamantha Greenberg is a board-certified genetic counselor who oversees the SDHx clinic and specializes in paraganglioma research at Huntsman Cancer Institute. She graduated with a Master’s Degree in Human Genetics and a Master’s of Public Health from the University of Michigan\, and a Bachelor’s Degree in neuroscience from the same university. Prior to her graduate training\, she taught 7th grade science in Tulsa\, Oklahoma\, through Teach for America. At Huntsman\, Samantha also continues public health genomics work with the Department of Health focused on rural clinician education and programming. She has worked to expand cancer genetics’ role in genitourinary cancers\, and oversees the VHL Clinical Care Center.\n\nTechnical Tips to Join Meeting:\n\nThis is a web only meeting\, accessed only by your internet connection. Participants are encouraged to use the web link automatically provided after registration and to use computer speakers (and/or headsets if available) to hear the audio portion of the meeting. Please log in at least ten minutes prior to the start of the webinar.\nPlease ensure you have an updated version of Adobe Flash Player (Google Chrome has Flash built in).\nIf you are using a mobile device or tablet\, in order to view and hear the conference\, download the ReadyTalk App from your App store.\n\nDisclaimer:\nWe cannot provide individual medical advice during this webcast. Information provided in this webcast is not intended as a substitute for your physician’s guidance and care.
URL:https://liferaftgroup.org/event/lrg-webcast-genetic-testing-and-sdhx-mutations/
LOCATION:NJ
CATEGORIES:Education,Events,Webcast
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2019/04/greenberg-event.jpg
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
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