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X-WR-CALDESC:Events for The Life Raft Group
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DTSTART;TZID=America/New_York:20240721T071500
DTEND;TZID=America/New_York:20240721T071500
DTSTAMP:20260505T031349
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UID:10000767-1721546100-1721546100@liferaftgroup.org
SUMMARY:GIST Do It Walk San José
DESCRIPTION:Join us for this fundraising walk at Life Fest 2024 in San José\, California\, in memory of GISTer Ted Wolf!\nRegistration + T-shirt is a $40 donation. Additional T-shirts are a $25 donation per shirt.\nREGISTER FOR WALK If you are not walking or want additional T-shirts\, you can get T-shirts for $25 donation + shipping (per shirt)\, order here:\nT-Shirt sizes are S\, M\, L\, XL\, 2XL\, and 3XL. \nShirts are navy blue 50/50 cotton blend. \n\nT-SHIRTS
URL:https://liferaftgroup.org/event/gist-do-it-walk-san-jose/
LOCATION:Signia by Hilton San Jose\, 170 S. Market St\, San Jose\, CA\, United States
CATEGORIES:Fundraising
ORGANIZER;CN="Brian Morello":MAILTO:bmorello@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230418T120000
DTEND;TZID=America/New_York:20230418T130000
DTSTAMP:20260505T031349
CREATED:20230330T191338Z
LAST-MODIFIED:20230330T191338Z
UID:10000490-1681819200-1681822800@liferaftgroup.org
SUMMARY:Fueling GIST Research - Our Community in Action!
DESCRIPTION:Diana Nieves will be chatting with a group of fundraisers from our community who have combined GIST advocacy with a personal passion in their lives to raise funds for GIST research. We are grateful to these individuals who have been so creative and thankful that they are willing to join us on April 18 at noon ET to share how to create a successful virtual or in-person fundraiser to further GIST research. \nJoin us during for virtual presentation to learn how you can help fuel the future of GIST research! \nREGISTERAbout Our Presenter:\nDiana Nieves\nChief Development & Involvement Officer \nIn her role as Chief Development & Involvement Officer\, Diana is charged with busting up silos and eliminating barriers to keep our relationships with members\, donors\, volunteers\, and others focused on our common goal of achieving LRGs mission. She actively cultivates\, engages and deepens these relationships so that she can elevate LRG fundraising and volunteering efforts while meaningfully acknowledging contributions made to the LRG and rare diseases overall. She works closely with the senior executive team and Board of Directors to ensure the development and success of the organization by instilling a culture of community involvement\, philanthropy\, strategic planning while addressing any development issues within the organization. Diana holds a Master of Public Administration degree from New York University\, and a Bachelor of Business Administration from Adelphi University. \nOur Guest Panel includes:\n \nThank you to our 2023 Webinar Sponsors!
URL:https://liferaftgroup.org/event/fueling-gist-research-our-community-in-action/
LOCATION:CA
CATEGORIES:Education,Events
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20200712
DTEND;VALUE=DATE:20200713
DTSTAMP:20260505T031349
CREATED:20200617T193746Z
LAST-MODIFIED:20200709T124151Z
UID:10000081-1594512000-1594598399@liferaftgroup.org
SUMMARY:Virtual GIST DO IT Walk
DESCRIPTION:As part of our Virtual Life Fest celebration\, we will be hosting a Virtual GIST Do It Walk on Sunday\, July 12\, 2020.  The walk will be held in memory of Ted Wolf\, who lost his battle with GIST in 2018. \nA virtual walk is a real walk\, but on your terms. You get choose your own course\, what time you start\, and who walks next to you! \nregisterSponsors
URL:https://liferaftgroup.org/event/virtual-gist-do-it-walk/
LOCATION:CA
CATEGORIES:Events,Fundraising
ORGANIZER;CN="Diana Nieves":MAILTO:dnieves@liferaftgroup.org
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DTSTART;TZID=America/New_York:20200521T130000
DTEND;TZID=America/New_York:20200521T140000
DTSTAMP:20260505T031350
CREATED:20200514T180855Z
LAST-MODIFIED:20200616T204452Z
UID:10000067-1590066000-1590069600@liferaftgroup.org
SUMMARY:Conversations with the LRG: Staying Alive in Difficult Times
DESCRIPTION:REcording available on FacebookJoin us on May 21\, 2020 at 1PM ET for the next in our “Conversations with the LRG” series. In this presentation\, Executive Director\, Norman Scherzer will be joined by staff member and Data Analyst\, Jerry Call and by Professor David Josephy to discuss relevant scientific topics including the impact of COVID-19 on GIST patients\, and thoughts on promising research for GIST. There will be a 15-minute Q & A at the end of the presentation. \nYou may submit questions in advance to Mary Garland\, Communications Director: mgarland@liferaftgroup.org \nYou will also be able to submit questions during the presentation that will be answered at the end. \nAbout the Panelists:\n\nAs founder and Executive Director of the LRG\, Norman leverages his extensive experience in the communicable disease sector which included 25 years at the Center for Disease Control and from his position as Assistant Commissioner of Health for New York City\, to help cancer patients both survive and thrive. \nSee Norman Scherzer’s presentation Personal Cancer Survival Plan and the accompaniment Personal Cancer Survival Plan (PDF) \n\nLRG Staff member\, Jerry Call\, is an expert in the science and treatment of GIST. Jerry has been part of the Life Raft Group since its beginnings\, and is currently serving as a Data Analyst\, helping to identify vital information to help patients survive and thrive. \nRead Jerry Call’s latest study\, featured in LRG Science\, Survival in advanced GIST has improved over time and correlates with increased access to post-imatinib tyrosine kinase inhibitors: results from Life Raft Group Registry \n\nDr. David Josephy is a Professor of Biochemistry at the University of Guelph in Canada and serves as President of Life Raft Group Canada. He has given presentations globally on understanding the basics of GIST in his GIST 101 lecture. \nSee Dr. Josephy’s presentation The Biology of GIST – What Every Patient Needs to Know.
URL:https://liferaftgroup.org/event/conversations-staying-alive/
LOCATION:The Life Raft Group\, 155 US Highway 46\, Ste. 202\, Wayne Plaza II\, Wayne\, NJ\, 07470\, United States
CATEGORIES:Events,Fundraising
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2020/05/Conversations-2.png
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DTSTART;TZID=America/New_York:20190516T174500
DTEND;TZID=America/New_York:20190516T223000
DTSTAMP:20260505T031350
CREATED:20190328T171049Z
LAST-MODIFIED:20190603T160559Z
UID:10000023-1558028700-1558045800@liferaftgroup.org
SUMMARY:Water of Life
DESCRIPTION:Tickets\n\nNow in its fifth year\, the Water of Life is a wonderful evening. Considered by Forbes Online to be one of the top whisky events in the world (and just one of two in the United States to make the list) this event benefiting the Life Raft Group is your chance to enjoy several top spirits with the experts who can discuss them best. \nWhether you crave a spirit that is old in age\, or old and dusty due to years in the bottle; one that is smoky; one that is heavily influenced by a sherry cask\, or bourbon cask\, or port cask; or one from world markets other than just the US or UK\, the Water of Life is the best opportunity to quench your thirst. Maybe a cigar as well? \nIt will also quench your thirst for knowledge. Enjoy your drams in the presence of some of the best-known makers\, ambassadors\, distributors\, retailers\, bloggers\, and even purchasers assembled at a whisky event. \nWith pricing tiers for a range of aficionados\, from beginners to Keepers\, the Water of Life allows something for everyone. Whether you select standard\, VIP\, or Ultra-VIP you will treated to a memorable night. \nAnd remember\, as your ticket price is considered a charity donation\, you can feel good about yourself\, while also feeling quite good! \nSlàinte Mhath! \nCome to Water of Life 2019 and support The Life Raft Group.\n\nThe mission of the Life Raft Group is to enhance survival and quality of life for people living with GIST through patient-powered research\, education and empowerment\, and global advocacy efforts.\n\nWednesday May 15 at 6pm\nUltra-VIP event (exact details sent to attendees)\n\n\nThursday May 16\n5:45 pm – 6:30 pm\n\n\n\nMasterclass\n6:30 pm -7:30 pm\nVIP Only\n\nMain Event\n7:30 pm – 10:30 pm
URL:https://liferaftgroup.org/event/water-of-life/
LOCATION:The Platform At The Pennsy\, 2 Pennsylvania Plaza\, 2nd Floor\, New York\, NY\, 10121\, United States
CATEGORIES:Events,Fundraising
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2019/03/WOLF.png
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