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DTSTART;TZID=America/New_York:20250714T120000
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UID:10000815-1752494400-1752494400@liferaftgroup.org
SUMMARY:Día del aprendizaje sobre GIST en español
DESCRIPTION:RESERVE LA FECHA – 14 de Julio\n \nPronto compartiremos la agenda. \n¡Reserve la fecha para el primer GIST Day of Learning en español!  \nEl día del aprendizaje sobre Los Tumores del Estroma Gastrointestinal (GIST) es un evento gratuito diseñado para pacientes y cuidadores\, donde pueden informarse sobre este cáncer poco común\, encontrar apoyo y fortalecer su conocimiento para afrontar su camino contra el GIST. \nREGISTRATELink Agenda PDF\n \n¿Qué es un GDOL? \nUn GDOL es un GIST Day of Learning (Día de Aprendizaje sobre GIST). Este es un evento gratuito de un día diseñado para ayudar a pacientes y cuidadores a aprender más sobre este cáncer raro\, encontrar apoyo y ampliar sus conocimientos para navegar su camino en el tratamiento del cáncer. \nThe Life Raft Group está comprometido con mejorar la supervivencia y calidad de vida de las personas que viven con Tumor del Estroma Gastrointestinal (GIST) y otras enfermedades raras\, a través de la investigación impulsada por los pacientes\, la educación\, el empoderamiento y esfuerzos de defensa a nivel global. Nuestra visión es impulsar un futuro basado en datos\, guiando nuestro camino hacia la cura de enfermedades raras. \nSi tiene alguna pregunta\, comuníquese con Brian Morello en bmorello@liferaftgroup.org. \nGracias a Nuestros Patrocinadores!
URL:https://liferaftgroup.org/event/dia-del-aprendizaje-sobre-gist-en-espanol/
CATEGORIES:Education,Events
ORGANIZER;CN="Rebecca Pauley":MAILTO:rpauley@liferaftgroup.org
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220713T120000
DTEND;TZID=America/New_York:20220713T130000
DTSTAMP:20260417T034154
CREATED:20220629T193124Z
LAST-MODIFIED:20220629T233740Z
UID:10000236-1657713600-1657717200@liferaftgroup.org
SUMMARY:GIST Awareness Day Webinar: SDH Updates and Stories
DESCRIPTION:GIST Awareness Day (GAD)\, July 13th)\, is a time where GIST experts\, patients\, caregivers can come together to educate the public about this disease and advocate towards finding a cure. The Life Raft Group invites GIST patients and caregivers to celebrate GAD with us on July 13th at 12pm. During this virtual event\, Dr. John Glod\, Clinical Director of the Pediatric Oncology Branch in the Center for Cancer Research at National Cancer Institute\, will discuss updates from the NIH Pediatric & Wildtype GIST Clinic\, which is a part of My Pediatric and Adult Rare Tumor Network (MyPART). Immediately following Dr. Glod’s presentation\, pediatric GIST patient Lleyton Schelesky will share his GIST story. After the presentations\, there will be time for a Q&A. \nIf you have questions about SDH-deficient GIST and would like to submit them prior to the webinar\, please send them to Sara Rothschild at srothschild@liferaftgroup.org. \nREGISTERAbout the Presenters\nJohn Glod\, MD\, PhD\nAssociate Research Physician\, National Cancer Institute\, Pediatric Oncology Branch \nDr. Glod obtained his M.D. and Ph.D. from the University of Colorado in Denver and trained in pediatrics and pediatric oncology at Cincinnati Children’s Hospital\, Johns Hopkins Hospital\, and the Pediatric Oncology Branch of the NCI.  Following an fellowship in neuro-oncology at the NCI\, Dr. Glod served as faculty in the departments of pediatrics and pharmacology at Rutgers Cancer Institute of New Jersey. Dr. Glod joined the Pharmacology and Experimental Therapeutics Section in 2013.  His research interests focus on understanding the biology of rare pediatric solid tumors and exploring new therapies for patients with these diseases. \n\nLleyton Schelesky\nPatient Advocate \nLleyton was diagnosed with GIST at age 12. Now a young adult\, Lleyton will share his experience with SDH-deficient GIST.
URL:https://liferaftgroup.org/event/gist-awareness-day-2022/
CATEGORIES:Events
ORGANIZER;CN="Sara Rothschild":MAILTO:srothschild@liferaftgroup.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20190720T080000
DTEND;TZID=America/New_York:20190720T110000
DTSTAMP:20260417T034154
CREATED:20190701T191100Z
LAST-MODIFIED:20190701T202820Z
UID:10000030-1563609600-1563620400@liferaftgroup.org
SUMMARY:GIST Awareness Day - Nairobi\, Kenya
DESCRIPTION:Celebrate GIST Awareness Day (GAD) at a GIST Day of Learning from 8-11am on July 20th at The Nairobi Hospital Cancer Center with Henzo Kenya\, in partnership with The Nairobi Hospital and The Max Foundation. You can download the flyer pictured below here.
URL:https://liferaftgroup.org/event/gist-awareness-day-nairobi-kenya/
LOCATION:Nairobi Hospital Cancer Center\, Nairobi\, Kenya
CATEGORIES:Education,Events,International
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2017/07/GAD-slider-940.jpg
ORGANIZER;CN="Henzo Kenya":MAILTO:info@henzokenya.or.ke
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20190714
DTEND;VALUE=DATE:20190715
DTSTAMP:20260417T034154
CREATED:20190701T181532Z
LAST-MODIFIED:20190709T152321Z
UID:10000029-1563062400-1563062400@liferaftgroup.org
SUMMARY:GIST Awareness Day - Mumbai\, India
DESCRIPTION:The Max Foundation is planning a special day for Friends of Max (FOM) on Sunday\, July 14th in Mumbai\, India to observe and celebrate GIST Day of Awareness (GAD) 2019. This is the annual Patient Group Meeting for the FOM Mumbai City Chapter in the Tata Memorial Hospital auditorium. We are expecting a large group of CML and GIST patients as well as our oncologist fraternity and many of our nonprofit peers from around the city. Please join us! For more information contact Viji Venkatesh at vvenkatesh@themaxfoundation.org or Nikhil Guhagarkar at gdental99@gmail.com. \n  \n 
URL:https://liferaftgroup.org/event/gist-awareness-day-mumbai-india/
CATEGORIES:Education,Events,International
ATTACH;FMTTYPE=image/jpeg:https://liferaftgroup.org/wp-content/uploads/2019/07/GAD-Mumbai-India-feature.jpg
ORGANIZER;CN="The Max Foundation":MAILTO:vvenkatesh@themaxfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20190713
DTEND;VALUE=DATE:20190714
DTSTAMP:20260417T034154
CREATED:20190702T201328Z
LAST-MODIFIED:20190814T174815Z
UID:10000032-1562976000-1563008400@liferaftgroup.org
SUMMARY:HAGÁMOSLO POSIBLE
DESCRIPTION:A GIST Awareness Day event presented by Fundación GIST Chile on July 13\, 2019\nDía internacional de la concientización del GIST\nColaboremos para lograr tener diagnósticos oportunos y tratamientos adecuados para los pacientes con GIST\, y para tener una Ley Nacional del Cáncer con financiamiento. \n \ndownload flyer\nHagámoslo posible – GIST Chile \nGIST and other gastrointestinal cancer patients and caregivers will meet to raise awareness of the needs of cancer patients in Chile to have a National Cancer Law with a budget assigned by the government. \nAgenda:\nWelcome new patients \nHow can we help ourselves to have a good quality of life? \nUpdate on news regarding the status of the National Cancer Law \nCoffee Break \nShare individual experiences \nGroup and individual GAD 2019 photos \nLocation:\nAv. Cristobal Colon 4198\, Las Condes\, Santiago\, Chile \nFor more information contact: pfernandez@gistchile.cl
URL:https://liferaftgroup.org/event/hagamoslo-posible/
CATEGORIES:Events
ATTACH;FMTTYPE=image/png:https://liferaftgroup.org/wp-content/uploads/2019/07/hagamosla-posible-feature1.png
ORGANIZER;CN="Fundaci%C3%B3n GIST Chile":MAILTO:pfernandez@gistchile.cl
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